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CDC’s National Center on Birth Defects and Developmental Disabilities Birth Defects and Developmental Disabilities Hereditary Blood Disorders Human Development and Disability “Aligning our Future” by José F. Cordero, MD, MPH Assistant Surgeon General Director, National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention CityMatch Conference, September 14, 2004, Portland Oregon Promoting the health of babies, children, and adults, and enhancing the potential for full, productive living

CDC’s N ational C enter on B irth D efects and D evelopmental D isabilities Birth Defects and Developmental Disabilities Hereditary Blood Disorders Human

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Page 1: CDC’s N ational C enter on B irth D efects and D evelopmental D isabilities Birth Defects and Developmental Disabilities Hereditary Blood Disorders Human

CDC’s National Center onBirth Defects and Developmental

DisabilitiesBirth Defects and Developmental DisabilitiesHereditary Blood DisordersHuman Development and Disability

“Aligning our Future” by José F. Cordero, MD, MPH Assistant Surgeon General Director, National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention

CityMatch Conference, September 14, 2004, Portland Oregon

Promoting the health of babies, children, and adults, and enhancing

the potential for full, productive living

Page 2: CDC’s N ational C enter on B irth D efects and D evelopmental D isabilities Birth Defects and Developmental Disabilities Hereditary Blood Disorders Human

CDC’s Organization Prior to Future’s Initiative

Page 3: CDC’s N ational C enter on B irth D efects and D evelopmental D isabilities Birth Defects and Developmental Disabilities Hereditary Blood Disorders Human

Coordinating Centerfor Health Promotion

Coordinating Centerfor Environmental andOccupational Health

and Injury Prevention

CoordinatingCenter for Infectious

Diseases

Office of TerrorismPreparednessand Response

Office of GlobalHealth

Coordinating Center for Public Health Information

and Services

Office of the Director

People Living inAll Communities

Partners Alliances

Channels

Stakeholders

Operational Perspective of the New Customer Centric CDC Organizational Chart

Page 4: CDC’s N ational C enter on B irth D efects and D evelopmental D isabilities Birth Defects and Developmental Disabilities Hereditary Blood Disorders Human

Coordinating Center for Health Information and Services

BusinessBusinessBusinessBusinessPublic Health Public Health SystemsSystems

Public Health Public Health SystemsSystems

Health Care Health Care DeliveryDelivery

Health Care Health Care DeliveryDelivery

Federal Federal AgenciesAgenciesFederal Federal

AgenciesAgenciesEducationEducationEducationEducation

NationalNationalCenter for Health Center for Health

MarketingMarketing

NationalNationalCenter for Health Center for Health

MarketingMarketing

National Center National Center forfor

Public HealthPublic HealthInformaticsInformatics

National Center National Center forfor

Public HealthPublic HealthInformaticsInformatics

National Center forNational Center forHealth StatisticsHealth Statistics

National Center forNational Center forHealth StatisticsHealth Statistics

Coordinating Center Coordinating Center for Infectious Diseasesfor Infectious Diseases

NCID, NCHSTP, NIPNCID, NCHSTP, NIP

Coordinating Center Coordinating Center for Infectious Diseasesfor Infectious Diseases

NCID, NCHSTP, NIPNCID, NCHSTP, NIP

Coordinating Coordinating Center for Center for

Health PromotionHealth PromotionNCCDPHP, NCBDDD, NCCDPHP, NCBDDD,

GenomicsGenomics

Coordinating Coordinating Center for Center for

Health PromotionHealth PromotionNCCDPHP, NCBDDD, NCCDPHP, NCBDDD,

GenomicsGenomics

Coordinating Center for Coordinating Center for Environmental and Environmental and

Occupational Health Occupational Health and Injury Preventionand Injury Prevention

NCEH/ATSDRNCEH/ATSDR

NCIPC, NIOSHNCIPC, NIOSH

Coordinating Center for Coordinating Center for Environmental and Environmental and

Occupational Health Occupational Health and Injury Preventionand Injury Prevention

NCEH/ATSDRNCEH/ATSDR

NCIPC, NIOSHNCIPC, NIOSH

Office Office of Global Healthof Global Health

Office Office of Global Healthof Global Health

Office for TerrorismOffice for TerrorismPreparedness & Preparedness &

Emergency ResponseEmergency Response

Office for TerrorismOffice for TerrorismPreparedness & Preparedness &

Emergency ResponseEmergency Response

Strategy andStrategy and InnovationInnovation

Strategy andStrategy and InnovationInnovation

Chief of Chief of ScienceScienceChief of Chief of ScienceScience

Chief of PublicChief of PublicHealth ImprovementHealth Improvement

Chief of PublicChief of PublicHealth ImprovementHealth Improvement

Workforce and Workforce and Career DevelopmentCareer Development

Workforce and Workforce and Career DevelopmentCareer Development

CustomersSAFER HEALTHIER PEOPLE

Executive Leadership TeamManagement Council Executive Board

Partners Alliances Stakeholders

Office of the Chief Office of the Chief Operating OfficerOperating Officer

Office of the Chief Office of the Chief Operating OfficerOperating Officer

Office of the Office of the Chief of StaffChief of StaffOffice of the Office of the Chief of StaffChief of Staff

CDC WashingtonCDC WashingtonCDC WashingtonCDC Washington

DirectorDirectorDirectorDirector

Channels

Page 5: CDC’s N ational C enter on B irth D efects and D evelopmental D isabilities Birth Defects and Developmental Disabilities Hereditary Blood Disorders Human

Health Protection Goals

Preparedness

• People in all communities will be protected from infectious, environmental, and terrorist threats.

Health Promotion & Prevention of Disease, Injury, and Disability

• All people will achieve their optimal lifespan with the best possible quality of health in every stage of life

Page 6: CDC’s N ational C enter on B irth D efects and D evelopmental D isabilities Birth Defects and Developmental Disabilities Hereditary Blood Disorders Human

The Role of Coordinating Center for Health Promotion

• Minimize silos

• Identify and capitalize on opportunities for coordination of research

• Decrease duplication and redundant activities

• Provide leadership, management, and accountability for cross-center goals

Page 7: CDC’s N ational C enter on B irth D efects and D evelopmental D isabilities Birth Defects and Developmental Disabilities Hereditary Blood Disorders Human

Why the Futures Initiative Matters

• Health impact• CDC—a customer-centric organization• Public health research• Leadership for the nation’s health system• Global health• Effectiveness and accountability

Page 8: CDC’s N ational C enter on B irth D efects and D evelopmental D isabilities Birth Defects and Developmental Disabilities Hereditary Blood Disorders Human
Page 9: CDC’s N ational C enter on B irth D efects and D evelopmental D isabilities Birth Defects and Developmental Disabilities Hereditary Blood Disorders Human

Quote from CityLights

“MCH specialists… look for a door at CDC marked ‘MCH’ as the point of entry to the wealth within. Finding none, they face the daunting prospect of navigating a maze of programs, people and projects to access and effectively use CDC’s many wonders - without a map.”

Page 10: CDC’s N ational C enter on B irth D efects and D evelopmental D isabilities Birth Defects and Developmental Disabilities Hereditary Blood Disorders Human

Commitment to scientific excellence

Commitment to partners

Integrity and stewardship of the public’s trust

Roles of centers

What is not changing

Page 11: CDC’s N ational C enter on B irth D efects and D evelopmental D isabilities Birth Defects and Developmental Disabilities Hereditary Blood Disorders Human

NCBDDD Strategic Planning

MANAGEMENT PLAN

RESEARCH PLANHEALTH

MARKETING PLAN

Center Focus Areas

VisionMission

Core Values

Partner and Customer

Management

Programmatic Resource Planning

•Governance•Resource Management•Process Improvement Goals

•Research Topics

•Research Strategies

•Intervention/Program Strategies

•Communication Strategies

•Policy Strategies

PUBLIC HEALTH STRATEGIC PLANNING MODEL

Page 12: CDC’s N ational C enter on B irth D efects and D evelopmental D isabilities Birth Defects and Developmental Disabilities Hereditary Blood Disorders Human

Promote healthy birth outcomes Promote healthy birth outcomes

Ensure optimal child development and well-being through early early identification and intervention

Ensure optimal child development and well-being through early early identification and intervention

Ensure a healthy environment and appropriate emergency response

Ensure a healthy environment and appropriate emergency response

Prevent secondary conditions and promote health of adolescents and adults

Prevent secondary conditions and promote health of adolescents and adults

Address health disparities Address health disparities

For populations served by the center’s mission, we will:

NCBDDD Focus Areas

Page 13: CDC’s N ational C enter on B irth D efects and D evelopmental D isabilities Birth Defects and Developmental Disabilities Hereditary Blood Disorders Human

Center Focus Area 1

Promote Healthy Birth Outcomes

Primary prevention of adverse congenital and developmentaloutcomes with origins in the preconception, prenatal, andperinatal periods.

Research and surveillance into thecauses and risk factors associatedwith these outcomes.

Page 14: CDC’s N ational C enter on B irth D efects and D evelopmental D isabilities Birth Defects and Developmental Disabilities Hereditary Blood Disorders Human

Folic Acid:A Prevention Program

Fetal Alcohol Syndrome Prevention Program

Kernicterus in Full-Term Infants

Birth Defects State Programs

Healthy Birth Outcomes

Page 15: CDC’s N ational C enter on B irth D efects and D evelopmental D isabilities Birth Defects and Developmental Disabilities Hereditary Blood Disorders Human

Center Focus Area 2

Ensure Optimal Child Development and Well-Being Through Early Identification

and Intervention

Primary and secondary prevention of adverse physical, social, emotional, and developmental outcomes in children from birth through pre-adolescence.

Page 16: CDC’s N ational C enter on B irth D efects and D evelopmental D isabilities Birth Defects and Developmental Disabilities Hereditary Blood Disorders Human

Developmental Milestones: Target Audiences

Primary Audiences: Child health care providers, including pediatricians, family physicians, PAs and NPs, nurses, parents of Children Ages 4 and Younger

Secondary Audience:Childcare providers, including day care workers, Head Start, and preschool teachers

Page 17: CDC’s N ational C enter on B irth D efects and D evelopmental D isabilities Birth Defects and Developmental Disabilities Hereditary Blood Disorders Human

Center Focus Area 4

Address Health Disparities

Research and intervention in promoting health equity across the lifespan, regardless of disability status, race, ethnicity, socio-economic status, or age.

Study of differential incidence, treatment access, and survival rates among special populations, including infants with birth defects or genetic conditions, children with developmental disabilities, people with bleeding disorders, and people with physical and mental disabilities.

Measurement and improvement of quality of life and participation in social and community activities.

Page 18: CDC’s N ational C enter on B irth D efects and D evelopmental D isabilities Birth Defects and Developmental Disabilities Hereditary Blood Disorders Human
Page 19: CDC’s N ational C enter on B irth D efects and D evelopmental D isabilities Birth Defects and Developmental Disabilities Hereditary Blood Disorders Human

1995 1996 1997 1998 1999 2000 2001

Year & quarter of birth

Pre-fortification Optional fort. Mandatory fortification

Impact of Fortification by Race/Ethnicity (Prevalence of Spina Bifida and Anencephaly)

0.0

2.0

4.0

6.0

8.0

10.0

12.0

Pre

vale

nce

(per

10,

000)

HispanicWhiteBlack

Page 20: CDC’s N ational C enter on B irth D efects and D evelopmental D isabilities Birth Defects and Developmental Disabilities Hereditary Blood Disorders Human

Spanish-language Folic Acid CampaignIntervention Strategy

Mass Media

Interpersonal Communication

A “surround sound” approach

AND

Page 21: CDC’s N ational C enter on B irth D efects and D evelopmental D isabilities Birth Defects and Developmental Disabilities Hereditary Blood Disorders Human

Washington

Montana

Oregon

Nevada

California

Utah

Arizona

New Mexico

Colorado

Idaho

Wyoming

North Dakota

South Dakota

Minnesota

IowaNebraska

Kansas

TexasFlorida

Mississippi

Louisiana

Alabama

Georgia

South Carolina

North Carolina

Virginia

Maine

New York

Michigan

Wisconsin

Oklahoma

Missouri

Arkansas

Tennessee

Kentucky

IllinoisIndiana

Michigan

Ohio

West Virginia

DC

Maryland

Delaware

New Jersey

Vermont

Rhode Island

Connecticut

New Hampshire

Massachusetts

Alaska

Hawaii

Pennsylvania

U.S. Virgin Islands

SFACES Communities

Puerto Rico

Guam

Bakersfield

Miami

San AntonioLos Angeles

Sacramento

New York

Denver

Las Vegas

Intervention

Comparison

Page 22: CDC’s N ational C enter on B irth D efects and D evelopmental D isabilities Birth Defects and Developmental Disabilities Hereditary Blood Disorders Human

SFACES: Consumption from multivitamin or folic acid alone

44.0

36.8

37.5

35.0

42.2

30.4

0

7.45.6

3.41.6

05

101520253035404550

2000 2002 2003

Survey year

Per

cent

age

of r

espo

nden

ts

Intervention Multivitamin

Comparison Multivitamin

Intervention Folic acidComparison Folic acid

Page 23: CDC’s N ational C enter on B irth D efects and D evelopmental D isabilities Birth Defects and Developmental Disabilities Hereditary Blood Disorders Human

CDC’s National Center onBirth Defects and Developmental

Disabilities

Birth Defects and Developmental DisabilitiesDisability and HealthHereditary Blood Disorders

THANK YOU !

Promoting the health of babies, children, and adults, and enhancing

the potential for full, productive living