Center for Hospice, Palliative Care & End-of-Life Studies

at USF

13201 Bruce B. Downs Blvd., MHC 1305A, Tampa, FL 33612 813-974-9808

Mission Statement

The mission of the Center is to optimize care and systems of TTcare for patients and families faced with non-curable diseases

by generating new knowledge through interdisciplinary

research, using that knowledge to educate health and human

service professionals,

quality end of life care.

The USF Center for Hospice, Palliative Care & End-Of-Life Studies

Center for Hospice, Palliative Care &End-of-Life Studies at USF

2005 Annual Report

Other Center members are making headlines as well.

Kathleen Egan, MA, BSN, CHPN,Community Director of theCenter,Magno Excellence in Education and Leadership Award at the 7th

2005, at Capital Hospice, Falls Church, Virginia.

cal trial conducted by SusanMcMillan, PhD, ARNP, FAAN inthe journal Cancer in December

patients with cancer, and was conducted in collaboration with Center members Brent Small, PhD; Ronald Schonwetter, MD; and William E.

National Cancer Institute and the National Insti

lated to patients’ symptoms and caregiving tasks.

The Center is increasingly visible in our local area as well as regionally and nationally. An article about the Center and hospice care was published in MD News in November 2005. The Center’s

“Quality and Meaning at the End-of-Life: Practice, Research and Policy,” was attended

Southeast region and around the country.

Executive Summary

T

students associated with our Center.

Allison Burton, PhD, Center Graduate Research Assistant in 2001, has been appointed as

helping her to develop a training program dur

opportunities made available to her. Dr. Burton is

Elissa Foster, PhD,toral student in the Department

a Center Pilot Research Grant in

unteers.” Dr. Foster has written a book about her experiences entitled, “Communication and

Finding Magic in the Mundane,” which will be published in June 2006 by Lawrence Erlbaum Publishers. Dr. Foster is currently an Assistant

McMillan, PhD, RN, FAAN presented a work

Memphis, presented a workshop on process in

petitively selected research papers, and plenary

services.

chaired by Lori Roscoe, PhD, is planning our Building Bridges: Interdisciplinary

Paths to Palliative & End-of-Life Care for People with

Diverse Conditions (Cancer, Dementia and Heart Disease),the Renaissance Tampa Hotel International Plaza

Center—Susan McMillan, PhD, RN, FAAN; William Haley, PhD; and Ladislav Volicer, MD, PhD.

The Center has a new website, www.eolcenter.usf.edu,

as links to our community partners and other

William E. Haley, PhDCenter Academic Director

Professor and Director,School of Aging Studies

Kathleen Egan, MA, BSN, CHPNCenter Community DirectorVice President,The Hospice

Institute of the Florida Suncoast

Executive Committee & Staff

The Center is governed by an Executive Committee representing community providers and university

2006 Executive Committee

Academic Partners

William Haley, PhDAcademic Director

Iraida Carrion, MSW, LCSW

June Leland, MDJames A. Haley Veterans Hospital

Susan McMillan, PhD, ARPN, FAAN

Hana Osman, PhDCommunity and Family Health

Lori Roscoe, PhD

Staff

Nancy Hallford

2006 Executive Committee

Community Partners

Kathleen Egan, MA, BSN, CHPNCommunity Director

Suncoast

Kristine Donovan, PhD

Research Institute

Christina Gallagher, PhDHope Hospice and Palliative Care, Inc.

Sehwan Kim, PhD

Joseph Polubinski, PhD

Suncoast

Ronald Schonwetter, MD

Debra French, RN, MS, CSTideWell Hospice and Palliative Care

David Weiland, MD

Center Partners

University of South Florida

Health Sciences Center

H. Lee Moffitt Cancer Center

& Research Institute

• Founding Partners • • Sponsors •

The Hospice of Florida Suncoast TideWell Hospice and Palliative Care

Lifepath Hospice & Palliative Care, Inc. Hope of Southwest Florida

The Center’s Community PartnersThe Center’s Community Partners are com

TideWell Hospice and Palliative Care—as well at

H. Lee Moffitt Cancer Center & Research Institute

nated Comprehensive Cancer Center and serves

many exemplary research and clinical departments is its Psychosocial and Palliative Care Program. The program is designed to address the emotional, social, spiritual, and physical needs

provided by a multidisciplinary team comprised

work, hospital chaplaincy, clinical psychology,

rology, and pain management. Other services provided through the Psychosocial and Palliative

groups, rehabilitative services, the Arts in Medicine Program, the Integrative Medicine Program, and Families First Program, a program designed

The Center’s Hospice PartnersThe hospices that are partners in the Center

5,790 patients in 2005.

community partner hospices is described below.

The Hospice of Florida Suncoast

Pinellas County who were dedicated to improv

committed volunteers.The Hospice mission centers on patients and

well as providing comprehensive hospice and

comfort

– relief from pain and suffering – lessening anxious-ness – enhancing quality of life. Counseling and

lies are assisted as they become caregivers and

As a community hospice in tune with its neighbors, The Hospice provides individual

County, as well as various training and education

has always been directed by the philosophy that

its mission, developing innovative programs and services based upon their expressed needs and desires.

LifePath Hospice & Palliative Care, Inc.

pice in Hillsborough County and Good Shepherd

Hospice in Polk, Highlands and Hardee counties.

pice and Palliative Care, Inc. is to make the most

pice in the nation, LHPC continues to be a leader in program development, research and other

counties.

patients to LHPC and 172 nursing homes and

acute inpatient unit in Temple Terrace, ground

pice House at Palm Terrace in Lakeland, which was damaged and closed due to the devastating

consult service opened in 2005 with a partnership

A partnership with the National Hospice and Pal

communities. A $100,000 grant was awarded by

reavement and caregiver programs in that area.

cal, psychosocial and etiological research that

clinical trials in cooperation with major universities and a pharmaceutical company. Other intramural research projects conducted in 2005

among Hospice Patients.

Hope of Southwest FloridaHope of Southwest Florida

complex needs related to transitions, loss and

Hope Hospice, which enables seriously ill pa

Pathways of Hope, a community counseling

support groups, psychotherapy, crisis management, burnout prevention, consultation, training and education and supports schools, businesses,

other community organizations.

Hope LifeCare,

provided by a nursing home.

TideWell Hospice and Palliative CareTideWell Hospice and Palliative Care is a private,

sive care and services in hospice and palliative

and Saratsota counties. Emphasizing choice and

rpoviding direct support, education, and research at local state, and national levels. In addition,

through Journeys HomeCare and through Tran-sitions,hospice clients.

TideWell Hospice and Palliative Care is diligent in its commitment to the communities it serves.

reach.

TideWell Hospice and Palliative Care believes in

and palliative care with all its communities. Gen

a new emphasis on experiential learning oppor

medical colleges.

verse bereavement programs to all communities. Children and adolescents participate in school programs, camps, and individual and group support programs. Adults are supported with their

programs and in specialized classes including ex

MembersI

research and practice.

Committees

Executive Committee

Deborah French, RN, MS, CS, Administrative

Conference Planning Committee

tee, chaired by Lori Roscoe, PhD, was actively

Diverse Conditions (Cancer, Dementia, and Heart

PhD; David McGrew, MD; Susan C. McMillan, PhD, ARPN, FAAN; Cynthia Myers, PhD, LMT; Ronald Schonwetter, MD; and Ladislav Volicer, MD, PhD.

Susan McMillan, PhD, ARPN, FAAN; Hana Osman, PhD; Joseph Polubinski, PhD; Mary Lou Proch, EdD; Jocelyn Rowe, MD; Ronald Schonwetter, MD; and Ladislav Volicer, MD, PhD.

Research Committee

The Research Committee reviews abstracts

Committee was chaired by Susan McMillan, PhD, ARPN, FAAN; who was then succeeded by Joseph Polubinski, PhD. Members include Susan

and Brent Small, PhD.

Active Grant Projects

Psychosocial Impact of Stroke on Family CaregiversDavid Roth, PhD, (UAB)

William Haley, PhD

Caregivers of Cancer Pain Patients: Coping Intervention Susan McMillan, PhD,

ARNP, FAANBrent Small, PhD; Kristine

Donovan, PhD

Use of Standardized Assesssments to Improve Hospice Outcomes

Susan McMillan, PhD, ARNP, FAAN

William Haley, PhD; Brent Small, PhD; Ronald Schonwetter, MD

$1,700,000

Florida’s Minority Elders: An Assessment of Physical and Mental Health Service Needs

Jennifer Salmon, PhD; Kathryn Hyer, PhD

William E. Haley, PhD

USF Scholars in Patient-Oriented Research

Susan C. McMillan, PhD, ARNP, FAAN

Prospective Study of Sexual Health in Early Cervical Cancer

Kristine A. Donovan, PhD

American Cancer Society Mentored Research

Post-doctoral Public Sector Interdisciplinary TrainingVictor Molinari, PhD

William E. Haley, PhD

$667,767

University of South Florida Education and Information Core

Grant)

Huntington Potter, PhDWilliam E. Haley, PhD

Cognitive-Behavioral Aspects of Cancer-Related FatigueKristine A. Donovan, PhD

Istudies. Center members are indicated in bold type. Grants that were awarded or active during 2005

Massage Therapy for Children, Adolescents, and Young Adults at End of Life

Cynthia D. Myers, PhDSehwan Kim, PhD

Home-Based Massage and Relaxation for Sickle Cell Pain

Cynthia D. Myers, PhD

$250,000

Examining Disparities in Advance Care Planning Among Poor Elders in Southwest Florida

Kathy Black, PhDHana Osman, PhD; Sandra Reyn

olds, PhD

$20,000

Living with Memory Impairment—Assessing the Needs of Families with Mild Cognitive Impairment

William E. Haley, PhD

the Johnnie B. Byrd Sr. Alzheimer’s Center and Research Institute

Predictors of Sexual Heaalth in Early Stage Cervical Cancer

Kristine A. Donovan, PhD

$20,000American Cancer Society Institutional Grant

Understanding Communication about Symptoms in Children with Serious Illness

Cynthia Myers, PhD (Consultant)

Glaser Pediatric Research Network

2005 Center Meeting Presentations

January 25, 2005

Jennifer Salmon, PhD,andKathleen Egan, MA, BS, CHPN, The Hospice

March 22, 2005

Ladislav Volicer, MD, PhD

“Palliative Care for Individuals with a Progressive Degenerative Dementia”

May 24, 2005

Lora Azzarello, PhD

Institute“Depression in Geriatric Cancer Patients”

July 26, 2005

Dorothy Helen Moore, PhD

September 27, 2005

Ronald Schonwetter, MD,Palliative Care, Inc.Lori Roscoe, PhD,Sehwan Kim, PhD, Care, Inc.“Quality-of-Life and Symptom Control in Hospice Cancer Patients Receiving Chemotherapy”

November 29, 2005

Elizabeth Bergman, PhD,

“Hospice Bereavement Service Utilization and Preferences Among Spouses in Hospice”

Center members attend monthly meetings to get updates on projects, network about research opportunities, and share news about educational and policy initiatives. Every other month, a research presen

JANUARY

American Psychosocial Oncology Society2nd Annual Conference. Phoenix, Arizona

Azzarello, L.M., Small, B.J., Weitzner, M.A.,

“Major Depression at the End of Life”Donovan, K.A.,P.B.

“Problems with Sexual Interest or Activity in a Sample of Ambulatory Cancer Patients Referred for Pain Management”

Haley, W.E.“Family Caregiver Intervention in Hospice: Results of a Randomized Trial”

Donovan, K.A.,P.B.

American Association of Hospice andPalliative Medicine/Hospice and PalliativeNurses Association Annual ScientificMeeting, New Orleans, Louisiana

Schonwetter, R.S.Roscoe, L.A.

“Chemotherapy Use among Hospice Cancer Patients”

FEBRUARY

National Gerontological Social WorkConference at the Council on Social WorkEducation Annual Program Meeting, NewYork, New York

Black, K. “Social Workers’ Death Attitudes, Experiences, and Advance Directive Communication Behavior: Implica-tions for Training and Practice”

2005 Presentations by Center Membersat National Conferences

M2005. In addition, Center members gave numerous invited lectures and research presentations at local

MARCH

Quality and Meaning at the End-of-Life:Practice, Research and Policy,” Center forHospice, Palliative Care and End of LifeStudies at USF, Tampa, Florida

Bergmann, E., Polubinkski, J.P.“Both Sides of the Coin: Factors in the Decision to Choose or Not Choose Hospice”

Black, K.“Health Care Professionals’ Advance Directive Com-munication Practices with Hospitalized Elders”

Egan, K.

Myers, C.D.“Integrative Medicine: Complementary Therapies in Cancer Care”

Roscoe, L.A., Hyer, K., Engh, B.“Nursing and Hospice Staff Members’ Perceptions

Homes”

H. Lee Moffitt Cancer Center & ResearchInstitute, Skill Building in Psychosocial

Oncology, Tampa, FloridaDonovan, K.

“Identifying Patients in Need of Psychosocial Inter-vention”

Myers, C.D.“Integrative Medicine in Cancer Care”

The Academy of Elder Law Attorneys 2005

Elder Concert, Tampa, FloridaEgan, K.

APRIL

Twenty-sixth Annual Scientific Sessions ofthe Society of Behavioral Medicine, Boston,Massachusetts

Ransom, S., Jacobsen, P.B., Azzarello, L.M.,Weitzner, M.A.

“Religious Well-being of Terminal Cancer Patients and Caregiver Quality of Life: A Mediational Model”

Society of Behavioral Medicine AnnualMeeting, Boston, Massachusetts

Donovan, K.A., “Multidimensional Subgroups of Cancer Patients Referred for Pain Management”

National Hospice and Palliative CareOrganization: Clinical Team Conference VI,

Atlanta, GeorgiaConley, M. & Rigney, C.

“Lessons Learned: Implementation of a Disaster and Recovery Plan”

Egan, K.“Innovations in Community Caregiving Training”“Manager Development Program”“Spiritual Care”

Polubinski, J.P. & Egan, K.A.“Developing Infrastructure and Building Capacity for Research”

American Medical Directors Association

Annual Meeting, New Orleans, LouisianaVolicer, L.

“Namaste: A Holistic Program For Residents With Advanced Dementia”

MAY

Annual Educational Forum International,Waldenstrom’s MacroglobulinemiaFoundation, Tampa, Florida

Myers, C.D.“Complementary Therapies in Cancer Care”

American Geriatrics Society AnnualScientific Meeting, Orlando, Florida

Schonwetter, R.S., Roscoe, L.A., Nwosu, M.,

“Quality-of-life and Symptom Distress in Hospice Cancer Patients Taking Chemotherapy”

The Hospice of the Florida Suncoast CrossBayou Center, Largo, Florida

Egan, K. “ELNEC –Nursing Care at the End of Life Community Healthcare Training for Professionals”

JUNE

Johns Hopkins University, “Integration ofComplementary and Alternative Medicinein to Clinical Practice”

Myers, C.D. “Massage Therapies: Techniques and Indications”

Massage Therapy Foundation: HighlightingMassage in CAM Research Conference,Albuquerque, New Mexico

Myers, C.D.“Levels of Evidence”

Myers, C.D. “Pediatric Massage Research: Four Current Studies”

The Hospice of the Florida Suncoast CrossBayou Center, Largo, Florida

Egan, K. “ELNEC – Achieving Quality Care at the End of Life Community Healthcare Training for Professionals”“ELNEC – Cultural Considerations in End-of-Life Care Community Healthcare Training for Professionals”

AUGUST

American Psychological Association

Meetings, Washington, D.C.Haley, W.E.

“Needs and Expectations of Care Partners for Persons with MCI”

Florida Academy of Physician Assistants,Tampa, Florida

Pollett, A.“End of Life Decisions and the Hospice Choice”

NHPCO 1st National Conference on Accessto Hospice & Palliative Care, St. Louis,Missouri

Egan, K.“Access to Family Caregivers Upstream”

SEPTEMBER

2005 FACTors Breast Cancer EducationConference, Tampa, Florida

Donovan, K.“Distinguishing Fatigue and Depression in Women with Breast Cancer”

National Hospice and Palliative CareOrganization: 20th Management andLeadership Conference, Hollywood, Florida

Egan, K.“Connecting to Family Caregivers Upstream – Dispelling Hospice Myths and Increasing Access”

Polubinski, J.P. & Egan, K.A.“Developing Infrastructure and Building Capacity for Research”

International Psychogeriatric AssociationMeeting, Stockholm, Sweden

Volicer, L.“The Hospice Approach to Dementia”

Alzheimer International Meeting, Istanbul,Turkey

Volicer, L.“Strategies for Management of Challenging Behaviors”

Florida Osteopathic Medical Association,Tampa, FL

Pollett, A.“End of Life Decisions and the Hospice Choice”

National Hospice and Palliative CareOrganization: Inpatient Institute,Hollywood, Florida

Tonzi, A.“TideWell Hospice and Palliative Care Model for Inpatient Care”

OCTOBER

Green Ribbon Health Humana/Pfizer Health

Foundation, Tampa, FloridaEgan, K.

“End of Life Care”

International Society for Geriatric Oncology,Geneva, Switzerland

Robb, C., Jan, Y., Molinari, V., Overcash, J.,Haley, W.E., Extermann, M.

“Impact of Mastery on Older Breast Cancer Survivors”

1st National Cancer Research Institue CancerConference, Birmingham, England

Perkins, E.A., Small, B.J., Balducci, L., Extermann, M., Haley, W.E.

“The Salience of Health Status and Psychosocial Factors in Overall Well-being among Older Breast Cancer Survivors”

NCRI SuPaC International Workshop ofResearchers from the United Kingdom,Canada, and the U.S., National CancerInstitute, Birmingham, England

McMillan, S.C.“The Need for International Collaboration in PalliativeResearch”

Huntington Study Group Conference,Philadelphia, Pennsylvania

Roscoe, L.A., McCall, M., Haley, W.E.,

“Caregivers of Persons with Late-Stage Huntington’s Disease: Preliminary Observations”

Boston Alzheimer’s Symposium, Boston,Massachusetts

Volicer, L.“Enhancing Quality of Life in All Stages of Dementia”

NOVEMBER

58th Annual Scientific Meeting of the Ge-rontological Society of America, Orlando,Florida

Bergman, E.J., Small, B.J., Haley, W.E.“Depression, Social Support, and Utilization of Formal Bereavement Services”

Black, K.“Health Care Professionals’ Death Attitudes, Experi-ences, and Advance Directive Communication Behavior”

Burton, A.M., Haley, W.E., Small, B.J.“Bereavement after Caregiving or Unexpected Death:Effects on Elderly Spouses”

Burton, A.M., Kwak, J., Haley, W.E.“Assessing Bereaved Former Hospice Caregivers”

Haley, W.E., McMillan, S.C., Small, B.J.,Weitzner, M., Schonwetter, R.,Moody, L.

“Effectiveness of a Coping Skills Intervention for Hospice Family Caregivers: A Randomized Trial”

Roscoe, L.A., Hyer, K.,“Quality-of-life at the End-of-life for Nursing Home Residents: Perceptions of Hospice and Nursing Home Staff Members”

7th Annual Josefina Magno ConferenceSeries, Fairfax, Virginia

Egan, K.“Improving Palliative Care through Education & Research”

Conference on Legal, Medical & Ethical IssuesConcerning End of Life Decision Making,Suffolk University, Boston, Massachusetts

Volicer, L.“Medical Perspectives on End-of-life Dementia”

TBudget

DECEMBER

Florida Hospices and Palliative Care, Inc.,21st Annual Symposium, Orlando, Florida

Egan, K.“Connecting to Family Caregivers Upstream – Dispelling Hospice Myths and Increasing Access”

2005 Publications by Center MembersCand palliative care in 2005, both in collaboration with other Center members, as well as with research

Black, K. (2005). Social workers’ personal death attitudes, experiences, and advance directive communication behavior. Journal of Social Work in Palliative and End-of-Life Care,1

Black, K. (2005). Advance directive communica

interdisciplinary health care team. Social Work in Health Care, 40,

Black, K. The New Social Worker, 12,

Black, K., Osman, H. (2005). Concerned about

practice. Journal of Case Management, 6,

Donovan, K.A., Small, B.J., Andrykowski, M.A.,

cancer. Cancer,

Egan, K., Haley, W.E.

Tampa Bay M.D. News, Sunshine Media.

Egan, K., Labyak, M.Textbook of

Palliative Nursing, nd

Edition.

Ganzini, L., Volicer, L., Nelson, W. A., Fox, E. and

ing capacity. Journal of the American Medical Direc-tors Association, 6,

Haley, W.E. (2005). Clinical geropsychology in Clinical

Psychology: Science and Practice, 12,

Harper, D.G. Volicer, L.,

enous circadian rhythm in aging and Alzheimer disease. American Journal of Geriatric Psychiatry, 13,

Volicer, L.

an integrated network. Clinical Gerontologist, 29,

Holley, S.P, McMillan, S.C., Hagan, S., et al. (2005).

Believing in themselves. Oncology Nursing Forum, 32,

Hughes, J.C., Robinson, L. and Volicer, L. (2005). Specialist palliative care in dementia. British MedicalJournal, 330,

Jacobsen, P.B., Donovan, K.A.,

based approach. In Chang, A.E. et al (Eds.), Oncology: An evidence-based approach. New York,

Jacobsen, P.B., Donovan, K.A., Trask, P.C., Fleish

Cancer, 103,

Kwak, J., Haley, W.E. (2005). Current research

The Gerontologist,45,

McMillan, S.C.

attitudes. Oncology Nursing Forum, 32,

Molinari, V., Haley, W.E., Schinka, J., Hyer, K.,

Fellowship Model. Gerontology and Geriatrics Education, 25,

Mitchell, G.E., Kwak, J., Hospice length of stay among Florida Medicaid consumers.

Administration.

Myers, C.D., Jacobsen P. (2005). Integrative medi

editorial]. Cancer Control, 12,

Myers, C.D.,

alternative medicine use during childhood cancer. Cancer Control, 12,

Pang, M.S., Volicer, L., Leung, W.A. (2005). An

Chinese Journal of Geriatrics, 24,

Polubinski, J.P.,

setting. Journal of Pain and Symptom Management, 30,

Roscoe, L.A., Schonwetter, R.S.,

Teaching and Learning in Medicine, 17,

Roscoe, L.A., Schonwetter, R.S., (2005). Implementation and evaluation. Medical Education, 39, 511.

Roth, D.L., Mittelman, M., Clay, O., Madan, A., Haley, W.E. (2005). Changes in social sup

Alzheimer’s disease. Psychology and Aging, 20,

Salmon, J.R., Kwak, J.,Egan, K.

Journal of Pain and Symptom Management, 22,

Salmon, J.R., Kwak, J.,

American Journal of Hos-pice and Palliative Medicine, 29,

Black, K.

Schiavo. Death Studies, 29,

Tsao, J.C.I., Dobalian, A,. Myers, C.D.,

sons living with HIV. Journal of Pain and Symptom Management, 30,

Tsao, J.C.I., Myers, C.D., Craske, M.G., Bursch, B.,

sample. Journal of Psychopathology and Behavioral Assessment, 27,

Volicer, L.,

Journal of the American Medical Directors Association, 5,

Volicer, L.dementia in residential care settings.

, Alzheimer’s Association.

Volicer, L. (2005). Caregiver burden in dementia Current Psychosis

& Therapeutics Reports, 3,

Volicer, L.dementia. Alzheimers Care Quarterly, 6,

Myers, C.D.

Journal of Pediatric Psychology.