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RegistrationA Guide for Data
Collection
Adapted Training Slides from the Cambridge Health Alliance
Before we begin…Before we begin…
Only have to collect it once, if we collect it correctly.
AgendaAgenda
What are health disparities? Why are data important? How will we collect the data? How should we address
concerns? Role Plays Resources and Questions
What are health What are health disparities?disparities?
Health disparities are differences Health disparities are differences between populations in:between populations in:
Presence of diseasePresence of disease Access to health care Access to health care Use of health care services Use of health care services Health outcomesHealth outcomes
What causes health What causes health disparities?disparities?
Social, economic, and environmental factors
Barriers to getting health care
Differences in quality of health Differences in quality of health carecare
Top Disparity for BlacksTop Disparity for Blacks
1.0
10.4
0
2
4
6
8
10
12
WhiteBlack
Odds Ratio of New Cases of AIDS for Blacks= 10.4
2005 National Healthcare Disparities Report
Top Disparity for AsiansTop Disparity for Asians
2005 National Healthcare Disparities Report
1.0
1.6
0
0.2
0.4
0.6
0.8
1
1.2
1.4
1.6
WhiteAsian
Odds Ratio of Lack of Treatment for Serious Mental Illness for Asians= 1.6
Top Disparity for HispanicsTop Disparity for Hispanics
2005 National Healthcare Disparities Report
Odds Ratio of New Cases of AIDS for Hispanics= 3.7
1.0
3.7
0
0.5
1
1.5
2
2.5
3
3.5
4
WhiteHispanics
To Eliminate Disparities, To Eliminate Disparities, We Need to Collect Better DataWe Need to Collect Better Data
Why Improve the Why Improve the Data?Data?
68%
70%
71%
77%
70%
0% 20% 40% 60% 80% 100%
Black, Non- Hispanic
White, Non- Hispanic
State
Hispanic
Asian
Percent of Mothers Breastfeeding by Race/Ethnicity, MA
35%
91%
71%
0% 20% 40% 60% 80% 100%
Cambodian
Laotian
Vietnamese
Chinese
MA TOTAL
Thai
Filipino
Korean
Pakistani
Japanese
Asian Indian
Source: Asian Births in Massachusetts: 1996-1999; Hispanic Births in Massachusetts: 1996-1999; andBlack Births in Massachusetts: 1997-2000
Why Collect the Data?Why Collect the Data?
Identify DisparitiesIdentify Disparities
Target InterventionsTarget Interventions
Improve QualityImprove Quality
What do Patients Think?What do Patients Think?
“ “It is important for hospitals It is important for hospitals and clinics to collect and clinics to collect
information from patients information from patients about their race or ethnic about their race or ethnic
background”background”– Strongly agreeStrongly agree 43%43%– Somewhat agreeSomewhat agree 37%37%– UnsureUnsure 6%6%– Somewhat disagreeSomewhat disagree 10%10%– Strongly disagreeStrongly disagree 4%4%
Study conducted at Northwestern Memorial Hospital Data shown in HRET tool kit
““It is important for hospitals It is important for hospitals and clinics to conduct and clinics to conduct
studies to make sure that studies to make sure that all patients get the same all patients get the same
high-quality care regardless high-quality care regardless of their race or ethnic of their race or ethnic
background”background”– Strongly agreeStrongly agree 93%93%– Somewhat agreeSomewhat agree 4%4%– UnsureUnsure 2%2%– Somewhat disagreeSomewhat disagree 1%1%– Strongly disagreeStrongly disagree 0%0%
Study conducted at Northwestern Memorial Hospital Data shown in HRET tool kit
““How concerned would you How concerned would you be that this data could be be that this data could be
used to discriminate against used to discriminate against patients”patients”
– Not concerned at allNot concerned at all 34%34%– A little concernedA little concerned 15%15%– Somewhat concernedSomewhat concerned 20%20%– Very concernedVery concerned 31%31%
Study conducted at Northwestern Memorial Hospital Data shown in HRET tool kit
Introduce the QuestionsIntroduce the Questions
Use Tools for Registration StaffUse Tools for Registration Staff
Distribute Patient Education MaterialsDistribute Patient Education Materials
How can we do this?How can we do this?
Tools for RegistrationTools for Registration
Reporting Race, Ethnicity Reporting Race, Ethnicity and Language: and Language:
A Guide to Helping A Guide to Helping PatientsPatients
IntroductionIntroductionAt the Cambridge Health Alliance, we At the Cambridge Health Alliance, we provide the best care possible for all provide the best care possible for all
of our patients. We are now of our patients. We are now collecting race and ethnicity collecting race and ethnicity
information from all of our patients information from all of our patients to help us know them better. We to help us know them better. We
can learn more about the can learn more about the communities we serve if we know communities we serve if we know your race and ethnicity. We can your race and ethnicity. We can better care for all patients if we better care for all patients if we know more about race, ethnicity, know more about race, ethnicity,
language and culture. This language and culture. This information will only be used to give information will only be used to give all patients the best care possible.all patients the best care possible.
IntroductionIntroductionThe Introduction should tell The Introduction should tell
patients:patients: We are collecting race and We are collecting race and ethnicity data from all patientsethnicity data from all patients We need this information to know We need this information to know more about your culture and more about your culture and languagelanguage This will only be used to better This will only be used to better meet the needs of the patients we meet the needs of the patients we serveserve
Race and Ethnicity: Race and Ethnicity: What’s the What’s the Difference?Difference?
What will change?What will change?
What is your race?What is your race?
If a patient asksIf a patient asks“What is Race?”“What is Race?”
Your Your racerace is the group or groups that is the group or groups that you identify with as having similar you identify with as having similar physical characteristics or similar physical characteristics or similar
social and geographic origins.social and geographic origins. You can You can tell me more than one.tell me more than one.
For example, please let us know if you are Asian, Black, White, etc.
Record Patient’s ResponseRecord Patient’s Response
What is your RACE?You can choose more than one.
American Indian or Alaska Native
Native Hawaiian or other Pacific Islander
Asian
Black
White
Other
Help Us Know Our Patients BetterWhen we know your race and ethnicity, we learn more about your
culture and language. This helps us to know you better and to improve the care that we give to all patients. Beginning in January
2007, we will ask for race and ethnicity information from all patients. We can better meet the needs of the communities that we serve if we know more about our patients’ race, ethnicity, culture and language.
What is your ethnicity?What is your ethnicity?
If a patient asksIf a patient asks“What is Ethnicity?”“What is Ethnicity?”
Your Your ethnicityethnicity refers to your refers to your background, heritage, culture, background, heritage, culture,
ancestry or sometimes the country ancestry or sometimes the country where you were born. You can tell me where you were born. You can tell me
more than one.more than one.For example, please let us know if you are
Haitian, Vietnamese, Brazilian, etc.
Record Patient’s ResponseRecord Patient’s Response
Are you Hispanic, Latino or Are you Hispanic, Latino or Spanish?Spanish?
If a patient asksIf a patient asks “What is meant by “What is meant by Hispanic, Latino or Hispanic, Latino or
Spanish?”Spanish?”A person is Hispanic, Latino or A person is Hispanic, Latino or
Spanish if they or their family come Spanish if they or their family come from a country in Latin America or from a country in Latin America or another Spanish-speaking country.another Spanish-speaking country.
Record Patient’s Yes or No ResponseRecord Patient’s Yes or No Response
If the response is some, partly, half, If the response is some, partly, half, or a little, please enter Yes.or a little, please enter Yes.
If a patient declines, enter No.If a patient declines, enter No.
Any other races?Any other races?
Only have to collect it once,
if we collect it correctly.
What your country of What your country of residence?residence?
If OUTSIDE of the US
Asking about Asking about LanguageLanguage
What is the primary language spoken in What is the primary language spoken in your home? “Language Spoken”your home? “Language Spoken”
In what language do you prefer to read In what language do you prefer to read health-related materials? “Written”health-related materials? “Written”
In what language do you prefer to In what language do you prefer to discuss health-related concerns? discuss health-related concerns? “Medical Care”“Medical Care”
Asking about Asking about LanguageLanguage
REMEMBERREMEMBER
You can use Phone You can use Phone Interpretation.Interpretation.
Dial 3333 and press 2 for phoneDial 3333 and press 2 for phone
Addressing Patient Addressing Patient ConcernsConcerns
If the Admissions Source on the B/AR Info tab is“Transfer from other facility”, (HOS or HOS-CHA) then an
additional field must be filled out on the Other tab.
Transfer HospitalTransfer Hospital
Role PlaysRole Plays
- What is your Race?- What is your Race?- What is your Ethnicity?- What is your Ethnicity?- Are you Hispanic, Latino - Are you Hispanic, Latino or or Spanish?Spanish?- Any other races?- Any other races?
Questions for Role Questions for Role PlaysPlays
ResourcesResources
QuestionsQuestions
Contact:Contact:Jacquelyn CagliaJacquelyn Caglia
Community AffairsCommunity Affairs617.499.6618617.499.6618
[email protected]@challiance.org
These slides were These slides were adapted by the adapted by the
Cambridge Health Cambridge Health Alliance using original Alliance using original
materials from :materials from :
MGH Disparities Solution MGH Disparities Solution CenterCenter
MA Department of Public MA Department of Public HealthHealth
