Upload
jennifer-walters
View
218
Download
1
Embed Size (px)
Citation preview
Journal MonitorCHILD PSYCHOLOGY SELECTIONCompiled by Jennifer Walters
Clinical Child Psychologyand Psychiatry (2002)
This year has seen a change of editor of
this journal and there is a moving tribute
to the outgoing editor, Bryan Lask, by
Kenneth Nunn to be found in Volume 8,
No.2, 2003. The journal is now in the
capable hands of Bernadette Wren who
will, I am sure, continue the excellent
tradition of clinical papers that are of in-
terest to a wide audience of practitioners.
This journal is such a rich source of
clinical interest that it is always difficult
to pick out which papers to review. The
first papers I have chosen interested me
because they represent parental per-
spectives. Two papers are written by
parents, and a third is about the differ-
ing views between parents and teach-
ers.
K. Yazbak. The new autism. Vol. 7,
No. 4, pp. 505–517.
A. J. Wakefield. Commentary on �Thenew autism�. Vol. 7, No. 4, pp. 518–524.
Jeremy Turk. Commentary on Yazbak
and Wakefield. Vol. 7, No. 4, pp. 525–
528.
A big area of controversy is that of the
MMR vaccine and autism, and specific-
ally whether the MMR can be linked
with bowel disease leading to autism. In
this issue there are three papers devo-
ted to this subject. In the first a mother
of two autistic children, K Yazbak,
writes strongly in support of the argu-
ment that there are links, talks of
regressive autism having a genetic link
to immune fragility, and of autism being
an epidemic. Andrew Wakefield reiter-
ates his original arguments1 (1998)
surrounding the controversy in a paper
following that of Yazbak. He concludes
that �As a first step, there is no substi-
tute for listening to parents.� However,
Jeremy Turk, a child psychiatrist who
listens carefully to parents and is
extremely supportive of parents of chil-
dren with a disability, expounds a clear
and respectful argument as to why he
disagrees with Yazbak and Wakefield.
In particular, he points out that few
people with autistic spectrum disorder
have �been anywhere near an MMR
vaccine� and that �hardly any people
who have received an MMR vaccine
develop autism�.
Deborah Christie & Amita Jassi. ‘Oh no
he doesn’t!, ‘Oh yes he does!’: Compar-
ing parent and teacher perceptions
in Tourette’s Syndrome. Vol. 7, No. 4,
pp. 553–558.
This paper, written from a specialist
Tourette’s clinic in London, discusses
the apparent mismatch between parent
and teacher views of children with
Tourette’s. Parents attending specialist
clinics report that learning and atten-
tional difficulties are their greatest con-
cern, more than the tics. Teachers,
however, are also concerned regarding
attention in these children but report
fewer behaviours as being of concern
than do parents. Those behaviours that
teachers do report are rated as less
severe than parental ratings. These
discrepancies of reporting can lead to
conflict between home and school, with
parents feeling blamed by profession-
als. The authors stress that their role is
not to blame but is to show parents how
they have a role in shaping their chil-
dren’s behaviour. Teachers, on the
other hand, can be helped to under-
stand how certain behaviours are less
controllable at home, and possibly
modify homework demands accord-
ingly. The authors� clinic offers work-
shops to teachers of affected children.
Another paper by a parent appears in
a whole issue on sexual identity and
gender. In this edition the guest editors
state that they wish to redress the under
representation of articles on this topic in
the clinical and research literature
regarding child and adolescent services.
Children who identify as lesbian, gay,
bisexual or transgendered (lgbt) are
presenting at younger ages. The papers
look at many aspects of this subject,
including exploration of issues for chil-
dren of lgbt parents.
M. Griffiths. Invisibility: The major
obstacle in understanding and diagno-
sing transsexualism. Vol. 7, No. 3,
pp. 493–496.
Margaret Griffiths from Mermaid’s
Support Group for children UK talks
very movingly about the dilemmas for
a parent of a transsexual child. The
themes she highlights are common-
place for parents of children with any
form of difficulty – getting referred for
specialised help, school support, deal-
ing with reactions of friends and rela-
tives. The difference it makes if
parents have a strong relationship
with a partner is emphasised. But,
however good the professional help
may be, there seems to be no substi-
tute for meeting other parents in sim-
ilar situations.
Regis Brunod & Solange Cook-Darzens.
Men’s role and fatherhood in French
Caribbean families: A multi-systemic
�resource� approach. Vol. 7, No. 4,
pp. 559–569.
This article refreshingly writes about
the diversity of family structures in
which children can be raised using
French Caribbean families to illustrate
the ideas. It urges mental health pro-
fessionals to apply more flexible con-
cepts of �fatherhood� than those seen as
the nuclear family model. The authors
(who are a paediatrician/psychiatrist
working in the French West Indies and
a family therapist working in Paris)
write about how they wish to emphasise
the notion of �family environment�rather than what they see as the
restrictive notion of �family�. Further-
more, they suggest that positive child
outcomes can be achieved by a wide
variety of family structures. They focus
on the �quality� of the family environ-
ment rather than on the particular
constellation. An idea I found interest-
ing is of the neighbourhood, for exam-
ple, playing a powerful �disciplinarianand socialising� role. The broader social
context provides wide possibilities of
support to families that are not so
available in the nuclear family context.
The authors argue that if fathers do not
reside with their families in the Carib-
bean context it does not mean that they
are disengaged or irresponsible. They
may still spend time with their children
and can be involved with joint decision
making within the family. However, the
authors do acknowledge that girls may
do better in Caribbean families than
boys because of the abundance of
female models. A more positive view of
1Wakefield, A. J., Murch, S. H., Anth-ony, A., et al. (1998). Ileal-lymphoidnodular hyperplasian non-specific coli-tis and pervasive developmental dis-order in children. Lancet, 351, 637–641.
� 2004 Association for Child Psychology and Psychiatry.Published by Blackwell Publishing, 9600 Garsington Road, Oxford OX4 2DQ, UK and 350 Main Street, Malden, MA 02148, USA
Child and Adolescent Mental Health Volume 9, No. 1, 2004, pp 38–41
the matrifocal family is proposed. I do
wonder, however, where this ultimately
leaves the men?
Kasia Kozlowska. Good children with
conversion disorder: Breaking the
silence. Vol. 8, No. 1, pp. 73–90.
This paper from Australia emphasises
the patient’s point of view and gives a
comprehensive overview of the theoret-
ical perspectives in conversion disorder
in children. The author then presents
two accounts by teenage girls them-
selves 18 months after initial presen-
tation. Both these accounts are
extremely interesting in elucidating
the aetiology and mechanisms whereby
the girls presented with symptoms of
being unable to walk. The author feels
that they illustrate cases of compliant,
�good� children who use this behaviour
to manage their attachment relation-
ships. They initially appeared discon-
nected from their experience in the
family. Both families emphasised the
organic aspects of the illness and were
sceptical of psychological interven-
tions. The paper emphasises how ini-
tially a lack of social, family, and
psychological difficulties are acknow-
ledged and the children have appar-
ently �exemplary� functioning. The
solution seems to be for the children
to present with a conversion disorder
as a way of dealing with unbearable
predicaments.
Anne E. Thompson, Carole Morgan &
Irene Urquart. Children with ADHD
transferring to secondary schools:
Potential difficulties and solutions.
Vol. 8, No. 1, pp. 91–104.
Nick Child. Deficient attention and dis-
ordered activity: Child psychiatry’s re-
sponse to ADHD. Vol. 8, No. 2, pp. 167–
178.
Two papers on ADHD caught my eye,
this being a topic of endless debates both
in CAMHS and in the media. The first
concerns ADHDand transition to secon-
dary school, which for many children
can be a difficult time, but for those with
a diagnosis of ADHD particular prob-
lems present. This paper covers the
academic problems encountered, social
problems linked with adolescence in
general, and practical problems such
as takingmedication in school. The need
for joint working between health practi-
tioners and school staff is emphasised.
A second paper is written by a retir-
ing consultant from Lanarkshire, Nick
Child. The paper is thoughtful and
often humorous but has a serious
message – ADHD attracts great busi-
ness for child psychiatry but �like any
business that booms when it is not
ready� it risks going bust. He urges
urgent business planning for services.
Using the analogy of hospital services
dealing with a Terror Bug he recom-
mends that specialist Tier 4 services
should not be the frontline for ADHD
referrals. He suggests that a Tier 3
service with a multidisciplinary
approach is more appropriate and prior
to that, a filtering through Tier 2. A
small proportion of children may need
�the magic label and the pill� but they
will also need much wider support
offered to more general cases.
Child talks about how, using a
multi-agency approach, differentiation
between core and broad ADHD can be
facilitated. There can be milder categ-
ories of children without labelling who
benefit from, for example, help with
parenting. Specialist ADHD clinics
result in over inclusive labelling.
This is a complexly argued paper
and has some challenging ideas that
could be applied to several other areas
of our work, for example autistic spec-
trum disorder, where diagnoses are
sought. It is worth remembering, how-
ever, those although it may not be a
good idea to have a proliferation of
specialist clinics from the profes-
sional’s point of view, parents would
often like to feel they can go straight to
�the experts�.
Helen Minnis, Eileen Kelly, Hannah
Bradby, Rachel Oglethorpe, Wendy
Raine & Deborah Cockburn. Cultural
and language mismatch: Clinical com-
plications. Vol. 8, No 2, pp. 179–186.
For those who work with ethnic minor-
ity groups of any kind this paper sti-
mulates interesting ideas. The authors�research is based in Glasgow where
there is a high proportion of South
Asian families but few referrals of this
group. All the clinic team members are
white British (and mostly female jud-
ging by the names of the authors) and
experience a gulf between how the chil-
dren referred are experienced by the
families and how they, the profession-
als, perceive them. A large proportion of
the children were diagnosed as having
ADHD compared with the general pop-
ulation. Implications for practice are
discussed. Points emerging are that
workers require specialised training in
cultural awareness. Routine recording
of cultural and religious issues should
be made in case notes and greater
efforts to involve extended family in
the consultations. Obviously, involve-
ment of South Asian workers would be
ideal.
FAMILY THERAPY SELECTIONReviewed by Jenny Altschuler
Families, Systems & Health(2003)
J. Gougreau & F. Duhamel. Interven-
tions in perinatal family care: A partici-
patory study. Vol. 21, No. 2, pp. 165–
180.
Drawing on the views of eight physi-
cians and four couples, this research
explored which interventions were
likely to be helpful in preparing preg-
nant couples for parenting. Overall,
interventions aimed to increase levels
of exchange between spouses. Men in
particular talked about feeling left out
of the process, highlighting the need for
their inclusion in anticipatory guid-
ance, for example raising questions of
the role of fathers to be/spouses during
pregnancy and delivery, balancing the
role of parent and spouse and the
sharing of household tasks. Perhaps
what is most surprising is that this
process is still being reported, despite
increased recognition of the role of
fathers.
C. Sallford & L. R. M. Hallberg. A
parental perspective on living with a
chronically ill child: A qualitative study.
Vol. 21, No. 2, pp. 193–204.
This study explored parents� experienceof living with a child with Juvenile
Arthritis. Drawing on taped, open inter-
views with 22 parents, analysed using
grounded theory, the paper identified
gendered differences in the experience
of fathers and mothers. They focused in
particular on parental vigilance, differ-
entiating between the role of the �man-
aging mother� and the �waiting father�.The former included noting how the
mother’s daily life was closely emotion-
ally and practically engaged with the ill
child, with a sense of constant pressure
that �would never go away�. The �waiting
father� was seen as a �more passive role
and an attitude of wait and see�. Draw-
ing primarily on the notion of a strict
gendered division to family life, the
authors account for these differences
by saying fathers had minimal chance
of participating in the routines of car-
ing. The authors also discuss the emo-
tional challenges faced by parents
including the need to response continu-
ally to adjustments.
Journal Monitor 39
Although some of the issues dis-
cussed may need to be reconsidered
for families where there is a less rigid
gender division, the notion of the re-
sponses of one parent having an effect
on the actions of the other is an import-
ant issue. The authors conclude that
parents in this study wished profes-
sionals in health care units and schools
would understand the position of par-
ents and provide emotional support in a
non-judgmental way. Lack of control
with less support, information and
communication results in increased
uncertainty, anxiety and an inability to
manage. This paper highlights the need
to recognise the position of parents in
the child’s response to illness and treat-
ment: it therefore has much to offer all
professionals dealing with parents car-
ing for ill children.
CHILD PSYCHIATRY SELECTIONCompiled by Nisha Dogra
European Child & AdolescentPsychiatry (October 2002–September 2003)
David C. Taylor. Whatever happened to
child and adolescent psychiatry? (Edi-
torial). Vol. 12, Issue 2, pp. 55–57.
David C. Taylor. The concept of mental
health in children. Vol. 12. Issue 3.
pp. 107–113.
The articles appeared in different issues
due to a publishing error, but I have
chosen to review them together because
the issues are very clearly related. In
the first paper, the editorial, David
Taylor provides the rationale for his
views about the National Assembly for
Wales� strategy document, �Everybody’sBusiness: Improving Mental Health Ser-
vices in Wales; Child & Adolescent
Mental Health Services Strategy� (Sep-tember, 2001). Taylor states that the
objective of the document is to measure
the distance between serious practi-
tioners in the field and their govern-
ment. The advisory committee on which
the Assembly relied was national but
had only one practising child psychiat-
rist among its 16 members. Taylor
expresses concern with the use of the
term, �child and adolescent mental
health services�, feeling that this is
perhaps a way of avoiding the term
�child and adolescent psychiatry�, there-by sidelining medically qualified staff.
He also argues that there is a confusion
of issues between clinical and political
action on behalf of children. The docu-
ment uses a series of euphemisms such
as �troubled children� and �damaged
young people�, and Taylor feels that
these euphemisms are unhelpful. He
also criticises the concept of tiers that
has been widely accepted in the UK
following HAS 1995.
Taylor disagrees very strongly with
the introduction in the document,
which states that �both mental health
problems and disorders in children and
young people are symptoms of a deep
malaise in society generally�. Taylor’s
main concern with the strategy docu-
ment is that �it lacks a clinical, diag-
nostic, perspective and hence it
confounds political and clinical activity.
It confounds the general effect of pov-
erty and deprivation with the problems
of parenting and child management. It
then confounds these poor, deprived,
badly managed children with those
children whose behaviour comes to
notice because of a health problem�.Taylor also states that the disassocia-
tion of the management of health, social
services, and education has added to
the problem. Health Trusts, he argues,
create illogical boundaries and artificial
difficulties that prevent patient mobility
in their choice of clinic. He states that
each of the participants who worked
together in producing this strategy
document has to account for why they
would accept financial liability for the
management of a child who might more
happily land elsewhere. Taylor argues
that the deepest malaise that affects the
services available to children in Wales
has been in the government of health,
education and social services, hitherto
to the responsibility of the UK Govern-
ment. If the Assembly could do some-
thing to change it, it would be useful to
Welsh children.
Taylor criticises the document for not
discussing the eccentric location of
available services clearly enough to
solve the problems of coping with chil-
dren who need close observation or
intensive care but who reside far from
the meagre resources that are available.
Taylor also feels that, worst of all, the
plan redefined adolescents to include
people up to 18 years. His argument is
that humans now mature much earlier
and the move is totally in the wrong
direction. Taylor feels that child psychi-
atry, for far too large a number, is still a
forum of child guidance. �Many people
who qualify in medicine regret doing so.
My view was that child psychiatry
allowed too many qualified doctors the
privileges of a professional career with-
out the continuing responsibility of
practicing medicine�. He claims that it
behoves the physician in the team to
take a clinical approach to the topic and
that clinical means dispassionate, diag-
nostic, giving close attention to detail so
that the case can serve as a matter for
study. This should be a detailed,
systematic enquiry that produces regu-
lar and reliable data, rather than a
casual conversation. Taylor concludes
that child psychiatry in Wales needs a
plan of how to interest students of
relevant disciplines to train them to
high levels of performance and then
put properly trained staff in place to
treat the children who need psychiatric
treatment. For him, �Everybody’s Busi-
ness� is a management document out-
lining the proposal to be taken forward
by other managers and it is evidence of
political intention but is formed without
content and fails to discriminate be-
tween political action, public mental
health and a proper child and psychi-
atric service that will ultimately do
nothing to rescue �the wasted children�.The second paper, The concept of
mental health in children, is based on
some early work that Taylor had done in
the 1970s as part of a teaching lecture-
ship in Oxford. Taylor first of all pre-
sents his position in 1975 and the
definition of child mental health at that
point. He then discusses some of the
problems of defining mental health in
children, including: accepting patient
status, the status of symptoms, third
party accounts, and the inapplicability
of conventional clues to mental health.
There is then a section on choice and
health, with the final section being an
envoi to update the article. It is perhaps
the envoi section that is most relevant
to the editorial reviewed above.
In this section, Taylor argues that
maintaining mental health, as with
physical health, is mostly a matter of
public hygiene and agreement to gov-
ernment by rules. He states that not
much thought is given to child psychi-
atry because all the institutions that
govern it are political, involving the
financing of the poor, the management
of those claiming various benefits, child
care, and education in its broadest
sense. He describes this as leading to
an �underclass� that is not a moral
category but a sociological statement
about a grouping of persons who re-
quire practical help. The underclass
also defines itself in most health sur-
veys as those most likely to have the
worst health on most measures. He
argues that members of the underclass
are alienated from the values and insti-
tutions of the majority to such an extent
40 Journal Monitor
that it is difficult to stop intergenera-
tional perpetuation.
To effect change, there has to be a
recognition of the distinction between
treatment and prevention. Mental ill-
ness is treated when it is recognised
and it can only be prevented by being
considered part of public health. By
public health, he refers to those advan-
tages that are in place to permit a
society to live, as far as is feasible, free
from diseases. Taylor argues that chil-
dren in particular have benefited from
an epoch of physical care where they all
enjoyed close and detailed observation
by several different medical profession-
als from babyhood, and that these
benefits are now slipping away. The
scale of provision, however, for the
invigilation of physical health is still
massive in comparison with resources
allocated to the public health aspects of
child mental health. A public health
approach would mean that intervention
should be with parents-to-be. Taylor
concludes that school teachers, educa-
tionalists, psychologists and school
medical staff must give proper recogni-
tion to the innate and acquired varia-
tions between children attending school
and must provide regular monitoring of
their attendance and performance. All
children should be treated with proper
consideration but children should not
be treated equally for the very good
reason that they are not. A public
health approach would require that
the local records of children with mental
illness, problematic behaviour or brain
impairments be a matter of public
record and concern. These would reveal
areas of the country with institutional-
ised educational and behavioural fail-
ure and these in turn would attract
attention and could at least hope to
command the attention of politicians
and the appropriate resources to deal
with it.
One reason for choosing both these
articles was that I was struck by the
lack of any references for either article. I
found this particularly striking in an
age where we are supposedly more
evidence-based for our stances. How-
ever, that apart, I thought that both the
articles were very interesting. I was
struck by the passion with which Taylor
conveyed his thoughts. I was also
struck by how the debate in his papers
had mirrored the debates that had
taken place within our service over the
last few years. When I started as a
lecturer 10 years ago, we were a child
and family psychiatric service and for-
mally, a few years ago, became the child
and adolescent mental health service.
The removal of the word psychiatry
from our service title caused consider-
able discussion and concern that it was
about sidelining the medical profession
from the service. The points that Taylor
raises are very valid and important for
services and the professions, especially
psychiatry, to address as a whole. The
papers highlight that in compromising
and negotiating, we should not sell out
on the most important principles. It is
important to recognise that terms are
being used euphemistically and at
which point it is worth sticking to the
principle and not changing terms. As a
psychiatrist I accept the concept that
child mental health should be every-
body’s business but I do not accept that
anybody and everybody is able to make
equally competent judgements about
when children have mental health prob-
lems and the impact of these. Unfortu-
nately, the concept of �everybody’sbusiness� appears often to mean that
anybody and everybody has equal capa-
bilities in assessing and managing child
mental health problems. This is irres-
pective of whether they have been
appropriately trained or not. An indi-
vidual’s opinion counts as expertise in
child mental health when it does in no
other area of clinical practice. I do not
necessarily agree with all the points
made by Taylor but I did feel very
strongly that these articles are timely
and an indication to child psychia-
trists – but also to other child mental
health specialists – that we need to
ensure we are very clear about what
our roles and responsibilities are. It is
important that we do not see our pro-
fessional roles confused with our polit-
ical ones but that we also recognise
when the two impact on each other. I
was also left with a feeling, however,
that it is important that we do not
polarise the role of psychiatrists as
being either biological or psychosocial.
It is important that we keep a balanced
view of the nature of children’s prob-
lems and do not seek to provide solely
medical or social causes for issues that
are more complex. It would have been
interesting to have another perspective
because although I identified with the
issues when reading it, I was unsure of
its relevance to professionals outside
the UK. A multi-agency forum may be
an interesting place to discuss these
articles.
Journal Monitor 41