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Diary Dates
Jan 19th
SGM at The Grosvenor Garden Centre
To be advised
Future SGM’s
Mar 29th AGM - St Lukes Cheshire Hospice
See www.mndcheshire.org
Registered Charity No 294354
Cheshire BranchCheshire BranchCheshire BranchCheshire Branch January 2009 Issue No 0901/04
The The The The BBBBranch ranch ranch ranch CCCCommittee ommittee ommittee ommittee hope you have hope you have hope you have hope you have had a great Christmas and had a great Christmas and had a great Christmas and had a great Christmas and would like to would like to would like to would like to extend a very happy new year to all extend a very happy new year to all extend a very happy new year to all extend a very happy new year to all ourourourour readers, and we hope readers, and we hope readers, and we hope readers, and we hope to see you to see you to see you to see you all all all all aaaat t t t ourourourour support meetingssupport meetingssupport meetingssupport meetings in 2009. in 2009. in 2009. in 2009.
Christmas PartyChristmas PartyChristmas PartyChristmas Party
Our Christmas celebration took Our Christmas celebration took Our Christmas celebration took Our Christmas celebration took place at Reaseheath Hall near place at Reaseheath Hall near place at Reaseheath Hall near place at Reaseheath Hall near Nantwich on December 6th. Nantwich on December 6th. Nantwich on December 6th. Nantwich on December 6th. More than 40 Members and More than 40 Members and More than 40 Members and More than 40 Members and friends of the Cheshire Branch friends of the Cheshire Branch friends of the Cheshire Branch friends of the Cheshire Branch were entertained by one of were entertained by one of were entertained by one of were entertained by one of Malcolm MMalcolm MMalcolm MMalcolm Macfarlane’s musical acfarlane’s musical acfarlane’s musical acfarlane’s musical quizzes. quizzes. quizzes. quizzes.
TTTThe splendid he splendid he splendid he splendid refreshments, including a cake refreshments, including a cake refreshments, including a cake refreshments, including a cake providedprovidedprovidedprovided by by by by Christine Braydon, wereChristine Braydon, wereChristine Braydon, wereChristine Braydon, were enjoyed as new enjoyed as new enjoyed as new enjoyed as new friends were made and old friends friends were made and old friends friends were made and old friends friends were made and old friends reunited. reunited. reunited. reunited. A raffle produced £122 for the funds, A raffle produced £122 for the funds, A raffle produced £122 for the funds, A raffle produced £122 for the funds, and our thanks must go to everyone and our thanks must go to everyone and our thanks must go to everyone and our thanks must go to everyone who donatewho donatewho donatewho donated the prizes. d the prizes. d the prizes. d the prizes.
Registered Charity No 294354
Cats thaCats thaCats thaCats that t t t express express express express
themselvesthemselvesthemselvesthemselves
This is what a bad
mood looks like
This is what cold
looks like
This is what tired looks like
St Lukes St Lukes St Lukes St Lukes CheshireCheshireCheshireCheshire HospiceHospiceHospiceHospice by Eric Pickstoneby Eric Pickstoneby Eric Pickstoneby Eric Pickstone
In August 2006 I was diagnosed with MND, and as many of you will know my life was blown apart. I could not have coped with things without the support of the Cheshire Branch of the Association. However in the middle of 2007 I was diagnosed with a hernia and opted for surgery at the Countess of Chester Hospital as my MND consultant was based there, as were my records. After discharge and suffering severe discomfort for some time I was an emergency admission to hospital and catheterised. Subsequent to this I suffered from depression, panic attacks, hallucinations, in addition to catheter problems and infections for several weeks. Eventually an out of hours GP prescribed an alternative medication following which I was able to sleep in bed and become a little calmer. In January 2008 the MND Specialist Nurse asked my GP to refer me to St Lukes Hospice and it was arranged for me to visit and see their facilities. I was obviously horrified and very reluctantly agreed to go on the visit. I went with my wife and was frightened to think I was visiting an institution and broke down. The nurse in charge of the day care calmed me down and said that I was not the first person to do that and asked me to give them a try. The following week I was picked up by a volunteer driver who put me at ease although I was still apprehensive. On arrival I met some of the other day care patients and a number of volunteer carers who made me most welcome. There were a number of dedicated staff there who were wearing normal clothes as well as therapists and people who can do hairdressing, chiropody, manicure, hand waxing, and painting etc. My dedicated nurse and the painting lady threatened to have me painting within 2 weeks. Perhaps it took a little longer than that but I agreed to give it a go. I have now done 6 paintings and now get a little uptight when there is anything happening to prevent it. The staff always have time for you and always have time to listen to your problems and offer advice and support if needed. All needs, no matter how large or small are catered for. Not only do St Luke care for me as a patient they also give support and therapy to wives and carers. I still have problems and only console myself knowing that I can go to St Lukes as long as they will have me, but my attendance is subject to regular reviews. St Lukes has given me back my sanity. I do not know where I would be without them. Woe betides any one who tries to make an appointment for me on St Lukes day.
Nantwich Rotary Club president John Meadows presents the cheque to Motor Neurone Disease
Association representative Joan Park
Hints & Tips: The National Trust admission policy admits the necessary companion of a disabled visitor free of charge. This is on request and while the normal charge applies to the
disabled visitor. An 'Admit One' card can be issued in this instance. This policy also applies to annual membership. There is also a very useful publication, called Access Guide, issued by the National Trust which describes all the disabled facilities at their properties Please contact our Access for All Office on 01793 817400 or email
[email protected] for further details.
’Tea at Nunsmere Hall’’Tea at Nunsmere Hall’’Tea at Nunsmere Hall’’Tea at Nunsmere Hall’
A thank you from Christine and her husbandA thank you from Christine and her husbandA thank you from Christine and her husbandA thank you from Christine and her husband Whilst enjoying the Strawberry Evening, we were fortunate to win the bid for “Tea at Nunsmere Hall”. We were treated like Royalty, mostly due to the fact that Joan Park had travelled there especially the day before. Joan had told the staff that we were celebrating our wedding anniversary, and had left a beautifully versed card for us. After lovely tea, sandwiches, cakes, scones and cream, we were given complimentary champagne. Following that we were given a tour of this beautiful hotel. Altogether, it was a fabulous afternoon, and a memorable anniversary.
Rotary club handsRotary club handsRotary club handsRotary club hands £2,500 to charity£2,500 to charity£2,500 to charity£2,500 to charity BIG-HEARTED members of Nantwich Rotary Club gave a cheque for £2,500 to the Motor Neurone Disease Association. It was gratefully received by local campaigner Joan Park. She said: "Motor Neurone Disease is dreadful, both for those who suffer from it and their carers. This generous donation will help fund specialist equipment, such as stair-lifts, bathroom equipment and tools to help communication where people have lost the ability to speak. It will all be used for local people. It is through such donations that we can help the people of Cheshire to be as independent as possible for as long as possible." Rotary club president John Meadows said: "The club is delighted to be able to support this extremely worthwhile local charity."
TTTTATTONATTONATTONATTON
ATATATAT
CCCCHRISTMASHRISTMASHRISTMASHRISTMAS
The Mansion dates
from the 18th century
and is traditionally
decorated with garlands
and floral decorations
using foliage from the
Parkland and Gardens
which also gives a lovely
fragrance.
On Wednesday 3rd
December Members and
friends of the Cheshire
Branch took the
opportunity to have a
tour round the Mansion
which is operated by
Cheshire County
Council on behalf of the
National Trust.
A decoration
demonstration was given
in the Kitchens by some
of the team who decorated
the Mansion
At the end of the tour
they stopped off at the
Stables Restaurant for
tea and cakes
Registered Charity No 294354
A Christmas Carol ConcertA Christmas Carol ConcertA Christmas Carol ConcertA Christmas Carol Concert.
by Frank Caseyby Frank Caseyby Frank Caseyby Frank Casey Continuing their tradition of supporting local charities, the Ellesmere Port Music Society held a Christmas Carol Concert at the Ellesmere Port Civic Hall on Saturday the 13th December. Some 90 members of the Ellesmere chorus were supported by The Metropolitan Brass Quintet and Christleton High School Choir. Leigh Stanley was the MC, introducing songs for both the choirs, with frequent opportunities for the audience to join in with well known songs. The members of the Metropolitan Brass Band were also given several opportunities to show off their prowess, which was very much appreciated by all. The evening was a great success and enjoyed by everyone. A Donation from the proceeds of the Concert was made to Fighting Motor Neurone Disease at the interval The Chairman, David Price of the Ellesmere Port Music Society presented me with their donation, a cheque for £500. I was delighted to be accompanied by Ms Marion Chadwick, a Branch Committee Member.
Business AcumenBusiness AcumenBusiness AcumenBusiness Acumen
A man is getting into the shower just as his wife is finishing up her shower, when the doorbell rings.
The wife quickly wraps herself in a towel and runs downstairs.
When she opens the door, there stands Bob, the next-door neighbour.
Before she says a word, Bob says, 'I'll give you £800 to
drop that towel.'
After thinking for a moment, the woman drops her towel and stands naked in front of Bob, after a few seconds,
Bob hands her £800 and leaves.
The woman wraps back up in the towel and goes back upstairs.
When she gets to the bathroom, her husband asks,
'Who was that?'
'It was Bob the next door neighbour,' she replies.
'Great,' the husband says, 'did he say anything about the £800 he owes me?'
Moral of the story:
If you share critical information pertaining to credit and risk with your shareholders, in time you may be in a position to prevent avoidable exposure.
NewsletterNewsletterNewsletterNewsletter
This is your This is your This is your This is your newsletternewsletternewsletternewsletter
So please let us have your contributions. These can take the form of ‘humour’,
‘personal experiences’, ‘hints and tips’, ‘questions’,
‘holidays’ ‘photographs’, and
any other information that you
might think of interest to our
members.
You do not have to be a Jane or a William to submit any of the
above. I will take articles in any format and if necessary edit them
and get your approval before publication.
So please do So please do So please do So please do submitsubmitsubmitsubmit youryouryouryour contributions contributions contributions contributions and make this and make this and make this and make this newsletter work newsletter work newsletter work newsletter work for everyone in for everyone in for everyone in for everyone in
CheshireCheshireCheshireCheshire
Registered Charity No 294354
2009 Challenges2009 Challenges2009 Challenges2009 Challenges
Registered Charity No 294354
Deadlines for Deadlines for Deadlines for Deadlines for the the the the April April April April NewsletterNewsletterNewsletterNewsletter
All Stories, All Stories, All Stories, All Stories, information or information or information or information or articlearticlearticlearticlessss to be to be to be to be received byreceived byreceived byreceived by 29292929thththth MarchMarchMarchMarch
If you require advice
or further information please contact Hal Bailey on 01565 634831 or by email on
The Lions Club The Lions Club The Lions Club The Lions Club ofofofof
Crewe and Crewe and Crewe and Crewe and NantwichNantwichNantwichNantwich
Kindly presented a cheque for £200 to Joan Park on 8th
December.
They have very generously
donated to the MND Association annually for over
5 years
New stem cell clinNew stem cell clinNew stem cell clinNew stem cell clinicicicic opens opens opens opens
OVER the last few months we have become aware of a new stem cell clinic that has opened in Cologne, called 'X-Cell' that is offering stem cell treatments to people with MND. Currently there is no scientific basis for how this treatment may help motor neurones affected by MND on a cellular level, and thus no evidence for how it may help people with MND. In addition, the side effects of receiving a stem cell treatment are unknown. Thus the treatment offered in Cologne is unproven. We would encourage anyone with MND who is considering embarking on an unproven treatment to discuss all the implications with their neurologist before making a decision. More information is available in our Research Information Sheet U. If you would like to talk this over with someone, please contact the Research Development team on 01604 611 880 or alternatively by email at research @ mndassociation.org.
Right care, Right dealRight care, Right dealRight care, Right dealRight care, Right deal
'RIGHT care Right deal' is a new joint national campaign launched to build public awareness and support for brave and innovative solutions for the social care system. Right Care Right Deal comprises a group of charities; Help the Aged, Carers UK and Counsel + Care. These three charities are working with older people, their families and carers to urge the Government to renew its vision for the future of social care in England. They are calling for a system that:
� enables people to assess their own needs and to choose the right support; � is better funded, sustainable and more efficient; � supports families and carers as an integral part of the system; � reaches more people, earlier; � offers individuals a fair, simple and consistent deal; and � is easy to understand, access and use.
The Right care Right deal coalition wants a future where people can live their lives their way. The Government has now called for a wide ranging debate on the future of care. Add your voice and show that social care really is everybody's business. Please get involved with the campaign by logging on to the Right care, Right deal website and complete an email that will be sent to your MP, to forward to Gordon Brown. Visit www.rightcare.org.uk and select the Take Action button.
Add YOUR voice to national campaign
Registered Charity No 294354
Food for Food for Food for Food for thoughtthoughtthoughtthought
Attending a wedding for the first time, a little girl said to her
mummy
'Why is the bride dressed in white?''
The mother replied,
'Because white is the colour of
happiness, and today is the
happiest day of her life.'
The child thought about this for a
moment then said,
'So why is the groom wearing
black?'
The treatment offered in Cologne
is unproven
Financial Financial Financial Financial StuffStuffStuffStuff
Cash at the Bank now stands at £11,809.91
Association VisitorAssociation VisitorAssociation VisitorAssociation Visitor TrainingTrainingTrainingTraining D D D Dates 2009ates 2009ates 2009ates 2009
The dates for the courses in 2009 are listed below. Please contact the [email protected] or Simon Cask on 01604 611869 for leaflets listing the dates to give out to anyone you know who's interested in the role or who is waiting to go on a course. The North Intro Day: Thursday 2 April 2009 Residential: Friday 24 April and Saturday 25 April 2009 Follow-up Day: Tuesday 23 June 2009 Closing date: 19 February 2009 The Midlands Intro day: Wednesday 9 September 2009 Residential: Friday 25 September and Saturday 26 September 2009 Follow-up day: Thursday 19 November 2009 Closing date: 30 July 2009 There are 3 other courses which are being held in London. Again if you are interested please contact Simon Cask on the above telephone number.
Stop PressStop PressStop PressStop Press University given green light for MND research University given green light for MND research University given green light for MND research University given green light for MND research instiinstiinstiinstitute.tute.tute.tute. Sheffield is set to become a world centre for research into Motor Neurone Disease. Go to http://mndcheshire.org/4.html for the full story
TREASURER'S REPORT AS AT 30 th November 2008
Income Expenditure
Item Year to Date Item Year to Date
General & Restricted Donations 6,592.17 Financial Support 5471.32
In Memoriam Donations 10,735.23 Transfers to Central Funds 13,277.71
Fund Raising 4,569.51 Branch Admin costs 891.12
Bank Interest 356.81 Info/Education 40.00
Gift Aid reclaimed 5.64 Publicity 79.61
Total Expenditure 19,759.76
Surplus 2,499.60
Total Income 22,259.36 Total 22,259.36
. ResignationsResignationsResignationsResignations
Unfortunately since the last newsletter in October the Branch has received resignations from Lesley Allen, and David Mansfield, and we are sure that
everyone wishes them all the best in the
future.
Lesley, as everyone knows was an
Association Visitor, she was also an active
committee member. But due to business
pressures found that the time she could spend on Branch
matters was beginning to be compromised. She had worked tirelessly for the Branch for approximately 2½ years and will be missed by everyone.
David joined the
committee in April this year as Treasurer, but found that along with his other commitments could not devote as much time to the Branch as he would
have liked.
Registered Charity No 294354
Useful CUseful CUseful CUseful Contactsontactsontactsontacts
Branch ContactsBranch ContactsBranch ContactsBranch Contacts
Important NoticeImportant NoticeImportant NoticeImportant Notice
IIIIf anyone knowsf anyone knowsf anyone knowsf anyone knows a local shop or other retail a local shop or other retail a local shop or other retail a local shop or other retail outlet outlet outlet outlet then please get in touch with then please get in touch with then please get in touch with then please get in touch with MargaretMargaretMargaretMargaret either by phone either by phone either by phone either by phone 01565 63483101565 63483101565 63483101565 634831 or by e or by e or by e or by e----mail mail mail mail [email protected]@[email protected]@mndcheshire.org We have a number We have a number We have a number We have a number of collection boxes collecting dustof collection boxes collecting dustof collection boxes collecting dustof collection boxes collecting dust in garages or in garages or in garages or in garages or bedroomsbedroomsbedroomsbedrooms, rather than cash, rather than cash, rather than cash, rather than cash,,,,. The only proviso is . The only proviso is . The only proviso is . The only proviso is that the Branch needs full details of where they that the Branch needs full details of where they that the Branch needs full details of where they that the Branch needs full details of where they are going to be situatare going to be situatare going to be situatare going to be situated prior to issuinged prior to issuinged prior to issuinged prior to issuing the the the the collection boxcollection boxcollection boxcollection box
Secretary David Ward 01565 653475 [email protected]
Treasurer Martin White 01695 628292 [email protected]
Branch Contact Publicity Officer Hal Bailey 01565 634831 [email protected]
Registered Charity No 294354
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MND Connect offers support, information and advice to: People living with MND, Health and Social Care Professionals, staff and volunteers
Kathy James is the Association's Regional Care Development Adviser (RCA) working in the Branch area, who has detailed knowledge of the care and management of Motor Neurone Disease. She can be contacted on 0845 375 1832, or email: [email protected]
