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    Developing Instrument Data

    Collection (1)

    Kumboyono

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    Choosing an instrument

    Appropriateness

    Validity

    Responsiveness

    Precision

    Interpretability

    Acceptability

    Reliability

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    Choosing an instrument

    Appropriateness

    Is the content of the instrument appropriate to thequestions which the study is intended to address?

    Reliability

    Does the instrument produce results that are reproducibleand internally consistent?

    Validity

    Does the instrument measure what it claims to measure?

    Responsiveness

    Does the instrument detect changes over time that matterto patients?

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    Choosing an instrument (2)

    Precision

    How precise are the scores of the instrument?

    Interpretability

    How interpretable are the scores of the instrument? Acceptability

    Is the instrument acceptable to patients?

    Feasibility

    Is the instrument easy to administer and process?

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    Overview of Lecture

    What are questionnaires? Why use them?

    Ideal properties of a questionnaire

    Planning a questionnaire (general principles)

    (Choosing/adapting a data collection method, Questions and response categories, Use

    of existing data collection instruments)

    Questionnaire completion issues

    Piloting

    Conclusions

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    What are questionnaires?Why use them?

    Why use them? Measures of outcome (i.e. in a trial)

    Audit/Quality assurance (patients and clinicians)

    Assessment of health care needs/ preferences

    Assessment of individual patient care/satisfaction with that care

    List goes on!

    A Quantitativesurvey method

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    Planning a questionnaire

    What to ask?

    Who to ask? When to ask?

    How to ask?

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    Questionnaire design steps

    1. Literature Review and initial planning

    2. Choose the most appropriate method of data collection (e.g.self-completed questionnaires vs. interviews)

    3. Design or adapt data collection instruments (Layout, Presentation,Types of instruments)

    4. Conduct pilot work and refine methods and instruments

    5. Design and select sample

    6. Conduct data collection (often termed field work)

    7. Process data8. Analyse data

    9. Report findings

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    Initial Planning & Literature Review

    So where to start?

    List topics of interest - If research question is already known!

    (why ask?)

    Review existing literature on your topic, collate existing

    questions and scales that can be used (What worked? What

    didnt? Dont re-invent the wheel!)

    First opportunity to think about - timing, frequency, content,

    wording, layout & administration mode

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    Choosing the data collection

    method (administration methods) Self-completion

    Self completion postal survey (retrospectively)

    Self completion concurrent survey

    Computer-assisted (internet based?) Paper based

    Interviewer administration

    Face-to-face (paper/computer assisted) Telephone interviews

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    Advantages/ Disadvantages

    Postal Administration ?

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    Advantages/ Disadvantages

    Postal

    Advs:

    Cheap

    Easy to administer (large volume of participants can be accessed

    easily) Privacy for sensitive/ stigmatised questions to be explored (more or

    less likely to divulge without someone present?)?

    Participants can verify responses over time (checking)

    Dis: Missing data?

    Low response rates?

    Misunderstanding of questions (meaning and flow)?

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    Design/adapt data collection instruments(Questionnaire layout)

    Introduction

    Anonymity & confidentiality

    Deadlines

    Feedback (potentially)

    Instructions

    Return envelope (reply paid)

    Personalisation

    Covering

    letter?

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    Design/adapt data collection instruments(Presentation issues)

    Length

    Shorter more likely to be completed

    Dont need to know, dont ask!

    Visual Impact

    Paper colour & quality

    Font size

    Layout

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    General principles of questionnaire design

    (1)

    Ensure all questions and sub questions are clearly labelled

    (1,2a,2b,3,4a, etc)

    Start with easier (not too sensitive initially!)

    Use a logical order but if a long questionnaire start with most

    important first

    Put demographic questions at the end

    Ask about behaviour before attitudes

    Ask about past behaviour before current behaviour

    Ask general questions first, then more specific

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    General principles of questionnaire design

    (2)

    Use funnelling-(start broad then narrowdown)

    Use filtering

    Use familiar words (avoid technical jargon)

    Avoid vague terms/abbreviations

    Avoid ambiguity

    Keep questions short (if possible)

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    General principles of questionnaire design

    (3)

    Avoid double negatives

    Avoid manipulating responses (by conveying

    an assumption)

    Avoid leading questions

    Use hypothetical questions carefully

    Avoid bias (mention more later on this)

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    Types of questions

    Behavioural

    Factual

    Knowledge

    Attitude

    Primary consideration: Response formats

    2 basic kinds - Open Response

    - Closed Response

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    Open and closed question responses

    Open are just that, left open

    - e.g. How do you feel about your health today?

    Closed questions have pre-coded answers

    - Do you feel well today? Yes No

    - Today my health is excellent:(Tick)

    Agree Neither agree or disagree Disagree

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    Open format

    Open questions useful when.

    replies unknown

    too many/complex to pre-code

    good for search for explanations to answers

    Open questions are NOT useful when

    need to be coded somehow possibility of

    bias introduced difficult to analyse and generalise

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    Closed format

    Closed format are useful because.

    Easy and quick to fill in

    Easy to code, record and analyse

    Closed Format are not useful because..

    need cover all possible responses(comprehensive)

    usually mutually exclusive no room ambiguity

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    Examples of response categories

    Yes/no

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    Examples of response categories

    Scales (1-10)

    Height/ weight etc

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    Examples of response categories

    Frequency, duration, distress

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    Format of response categories

    Circling or tick boxes

    Skip & branch

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    Design/adapt data collection

    instruments (Types of instrument)

    Can use data collection instruments (with already defined

    response categories) and just adapt them for your work.

    Existing data collection instruments tend to be specific for a

    particular health related topic.

    For e.g.

    - disease specific

    - site or region (of the body!) specific

    - dimension specific- generic

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    Design/adapt data collection

    instruments (Types of instrument)

    Disease specific

    The Gastrointestinal Symptom Rating Scale (GSRS)

    The Arthritis Impact Measurement Scales (AIMS)

    Hospital Anxiety & Depression Scale (HADS)

    (overleaf)

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    HADS

    (Hospital Anxiety &Depression Scale)

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    HADS

    (Hospital Anxiety &Depression Scale)

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    Visual

    analogue scale(EQ5d)

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    The ICIQ -Internal

    Consultation onIncontinence

    Modular

    Questionnaire

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    Questionnaire completion issues

    Under-reporting

    Over-reporting (exaggeration)

    Social desirability bias

    Observer bias (in interview situation only ?)

    Memory errors (time frame consideration? Too soon,

    cloud judgement? Too long forgotten?) Ill-considered responses (possibly inaccurate on

    reflection?)

    Skewed/misleadingresponses

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    Piloting and Evaluation

    A pilot project - Serving as a tentative model for future experiment or development(serving or leading as guide)

    (Ref: Teijlingen Van E et al 2001)

    Piloting1. Development

    & testing ofresearch

    instruments

    2. Assement ofthe feasibility of

    a full scalesurvey

    3. Identification oflogistical problems

    with the questionnaire

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    Pilot and evaluate

    Prepare first draft and pre-test

    Distribute questionnaire to small sample

    Evaluate responses & redraft

    Points to check: (adapted from Bowling 2002)

    The questions measure what is intended

    The wording is understood by all and mean a similar thing to all

    Instructions are easily understood/followed

    Do the responses suggest all relevant issues have been covered? Any questions systematically/frequently missed etc

    Basically test for bugs

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    Conclusions

    When it comes to questionnaire design

    No universal recommendations, just issues

    to be aware of, consider and balance out Take into account aims of study, population

    and resources available

    Principal objective is to collect data that isRELIABLE, VALID & UNBIASED

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    References

    Oppenheim AN. Questionnaire design, interviewing and attitudemeasurement. 2nd ed. London: Pinter; 1992.

    McColl et al (2001). Design and use of questionnaires: a review of bestpractice applicable to surveys of health service staff and patients.

    HTA: 5 (31). Bowling A. Research methods in health: Investigating health and

    health services, 2nd edition. Open University Press, 2002.

    Teijlingen Van E, Rennie AM, Hundley V, Graham W, The importance ofconducting and reporting pilot studies: the example of the ScottishBirths Survey. Journal of Advanced Nursing 2001; 343; 289-295

    www.natcen.ac.uk

    www.statistics.gov.uk

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