CORPORATE PARTNER

CURERARE DISEASE

PACKAGE2019

Ride to Cure Rare Disease New England | September 21, 2019 Registration at 9 AM, Ride at 10 AM

Cure Rare Disease, a non-profit organization (tax I.D. number 82-2473513), is qualified as a tax-exempt organization under section 501(c)(3) of the IRS and has been designated as a “public charity” under section 170. Charitable contributions to Cure Rare Disease are tax-deductible to the extent permitted by law for purposes of State and Federal income taxes. Cure Rare Disease is qualified to receive tax deductible bequests, devices, transfers, and gifts under section 2055, 2106, or 2522 of the Code. Please consult your tax or legal advisor.

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OVERVIEW/ WHO WE ARE

UNIQUE

Cure Rare Disease is a nonprofit organization focused on ending rare, neuromuscular diseases for which there are no treatments or cures. We forge collaborations with leading researchers & clinicians to develop customized therapeutics with unparal-leled speed for those who have no other hope.

Ride to Cure Rare Disease is a bike ride event, not a race, which brings together riders from all walks of life united in the mission to end rare disease as they ride through beautiful scenery of Cape Cod. The ride will take place on September 21, 2019 starting in South Yarmouth, MA. Registration begins at 9 AM and the ride begins at 10 AM

With over 300 million people globally

impacted by over 7,000 different rare diseases, rare is not

so rare.

1. Ride to Cure Rare Disease is a day-long bike ride that takes riders through scenic Cape Cod at the end of summer. The ride stretches from the beginning of the newly renovated Cape Cod Rail Trail in Yarmouth, MA to Wellfleet, MA and back. Riders can choose a 25-mile or 50-mile ride with support and refreshments along the way.

2. Ride to Cure Rare Disease is accessible to all levels of riders. Electric bikes will be avail-able for rent at affordable price. “E-bikes” are motorized bikes that have a maximum assist-ed speed of 20 mph.

3. To top off a day of riding, there will be a party with food, live music and a celebration to recognize our riders, our sponsors and the quest to cure rare disease. This year, we will hold our reception in Yarmouth.

CURERARE DISEASE

Cure Rare Disease, a non-profit organization (tax I.D. number 82-2473513), is qualified as a tax-exempt organization under section 501(c)(3) of the IRS and has been designated as a “public charity” under section 170. Charitable contributions to Cure Rare Disease are tax-deductible to the extent permitted by law for purposes of State and Federal income taxes. Cure

Rare Disease is qualified to receive tax deductible bequests, devices, transfers, and gifts under section 2055, 2106, or 2522 of the Code. Please consult your tax or legal advisor.3

WHAT IS RARE DISEASE?

19 years ago, we found out that my brother, Terry, had

Duchenne muscular dystro-phy, a fatal, rare disease. It

was crushing. However, through Cure Rare Disease, we have hope for a brighter

future for Terry and many others.

- Rich, CRD Founder

WHAT WE DO Cure Rare Disease is a national organization dedicated to ending rare disease. We recog-nize that every person with a rare disease is different. As such, we and our collaborators believe that the solution to treating those suffering is through rapidly customizing thera-peutics specific to the individual. While profit-driven organizations are incentivized to treat large populations, as a nonprofit biotechnology company, our focus is on treating all who suffer from even the rarest of rare diseases.

Rare diseases are those that impact less than 200,000 people at any given time. While there are over 7,000 rare diseases known, Cure Rare Disease focuses on developing tailor-made therapeutics for 8 primary rare diseases including:

- Duchenne muscular dystrophy- Becker’s muscular dystrophy

- Spinal muscular atrophy- Sickle cell disease

- Limb-girdle muscular dystrophy- Charcot-Marie-Tooth

- Canavan Disease- Cystic fibrosis

LOCAL PARTNERSHIP EFFORTSWe believe that the quickest path to ending rare disease is through collaboration. And so we’ve orchestrated an unprecedented collaboration with the leading research universities and researchers in the US. Our collaborators include Boston Children’s Hospital, the Uni-versity of Massachusetts Medical School, Yale Medical School and UCLA. By working with top talent, our goal is to develop a platform to rapidly customize treatments for rare dis-ease.

“The potential to treat debilitating rare diseases through the work that Cure Rare Disease and its collaborators are doing is unparalleled. Within a

few years, people suffering could see an effective treatment tailor-made for them.”— Professor Louis Kunkel, Boston Children’s Hospital

Cure Rare Disease, a non-profit organization (tax I.D. number 82-2473513), is qualified as a tax-exempt organization under section 501(c)(3) of the IRS and has been designated as a “public charity” under section 170. Charitable contributions to Cure Rare Disease are tax-deductible to the extent permitted by law for purposes of State and Federal income taxes. Cure Rare Disease is qualified to receive tax deductible bequests, devices, transfers, and gifts under section 2055, 2106, or 2522 of the Code. Please consult your tax or legal advisor.

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SPONSORSHIP BENEFITSEnhanced ExposurePositive exposure as volunteers and partici-pants promote Riding to Cure Rare Disease to their friends and colleagues.

Strong Local ConnectionsStrengthen a company’s local connections by supporting a Massachusetts-based orga-nization that’s changing the paradigm of how rare disease is treated.

Greater Employee Pride and LoyaltyInspire a sense of pride among your em-ployees and enrich your internal corporate image.

Better EmployeesOver 84% of Americans ages 21 – 35 consid-er a company’s commitment to social issues when deciding where to work.

OUR CORPORATE SPONSORS

Having our company asso-ciated with Cure Rare Dis-ease has been great for us. Our employees are pas-sionate about the mission and its important to us that our customers know that we support the good work being done locally.

- Jesse, East River Energy

FEATURED IN:

WAYS TO GET INVOLVEDCreate a Corporate Ride Team-Discounted registrations are avaliable for corporate teams. 50% of your team’s fund-raising dollars can be assigned to your Corporate Sponsorship Tier

Monetary Donations-Be a proud sponsor of Riding to Cure Rare Disease.

Greater Employee Pride and Loyalty-Come and support the riders at a rest stop, start or finish line.

Ride To Cure

Ride To Cure Rare Disease

Cure Rare Disease, a non-profit organization (tax I.D. number 82-2473513), is qualified as a tax-exempt organization under section 501(c)(3) of the IRS and has been designated as a “public charity” under section 170. Charitable contributions to Cure Rare Disease are tax-deductible to the extent permitted by law for purposes of State and Federal income taxes. Cure

Rare Disease is qualified to receive tax deductible bequests, devices, transfers, and gifts under section 2055, 2106, or 2522 of the Code. Please consult your tax or legal advisor.5

SPONSORSHIP OPPORTUNITIES

Platinum - $25k Bronze - $5kSilver - $10kGold - $15k

Opportunity to address participants at start/reception

Recognition as "Official sponsor of Riding to Cure Rare Disease"

Day of recognition from participants, families, staff and volunteers

Rest Stop sponsorship

Co-branding opportunities

Logo on event poster

Logo placement on registration/route signs

Logo placement on ride t-shirts

Logo placement on bike bib

Logo placement and link on CRD Website

Acknowledgement on CRD social media

Rest stop sponsorship & employee volunteerism opportunity

Ride

Cure Rare Disease, a non-profit organization (tax I.D. number 82-2473513), is qualified as a tax-exempt organization under section 501(c)(3) of the IRS and has been designated as a “public charity” under section 170. Charitable contributions to Cure Rare Disease are tax-deductible to the extent permitted by law for purposes of State and Federal income taxes. Cure Rare Disease is qualified to receive tax deductible bequests, devices, transfers, and gifts under section 2055, 2106, or 2522 of the Code. Please consult your tax or legal advisor.

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SPONSOR NOW2019 Corporate Sponsor Form

SPONSORSHIP LEVELNational Gold Silver Bronze

TOTAL VALUE OF CONTRIBUTION:

PAYMENTPlease make checks payable to: Cure Rare Disease

CHECKVISADISCOVER

AMEXMASTERCARD

All donations are tax deductable to the extent permitted by law

CURERARE DISEASE

PLEASE RETURN FORM TO By mail: Cure Rare Disease30 Cambridgepark Drive, Apt. 3134, Cambridge, MA, 02140

For additional information or questions regarding this event, email Bill@cureRD.org

CURERARE DISEASE

THANK YOU FOR YOUR CONTRIBUTION.