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Issue No. 24 March / April 2000

CCARDIAC

RRISK in the

YYOUNG

BI-MONTHLY UPDATE

MEET OUR REPRESENTATIVES

IN SUSSEX - IT`S JENNY COLE

I have been directly involved with CRY since 1997 two years after thesudden death of our 14 year old son Jeremy from ARVC. The suddenness and totality of his loss has had a devastating effect on ourfamily and we know this is something that we will all have to live alongside the rest of our lives.

Some time after his death wecontacted CRY who made usaware that we were not aloneand also put us in touch with StGeorges Medical School inLondon.

We were shocked to find outafter screening at the hospitalthat other members of ourdirect family were also affectedwith the same genetic conditionand that this could have beenpicked up earlier if there hadbeen a screening programmein existence. This might havesaved the life of our son had hiscondition been detected earlier.

CRY has been of enormouspractical help and comfort to usas a family. We feel that a positive approach to screeningas part of an on-going awareness programme of making the public andalso the medical profession more familiar with the potential causes ofsudden death in young persons and the symptoms to be on the lookout for, could undoubtedly save lives.

I have been involved directly with high profile fund-raising activitiescombined with publicising the activities of CRY in our local area andhave also made many contacts and friends through out contacts withCRY. I look forward very much to helping CRY achieve its aims in thefuture.

Jenny & Nigel Cole seen

here at The 999 Challenge

NEWSLETTERMarch / April 2000

After a spell of brutal Arctic weather that froze the petals on our spring flowers theMillennium London Marathon was run on a beautiful soft sunny day that put asmile on the faces of competitors and spectators. CRY had 40 runners partici-pating and vying for space with 33,000 others + a double decker bus, a team ofWombles a huge cake and a giant caterpillar. As always it was a privilege to bea witness to such a moving occasion and be part of the tidal wave of enthusiasmof the millions of supporters for those intrepid athletes that take part.

Raising awareness of the potential for cardiac abnormalities in the young,with thedonations of ECG machines to Hospitals and Doctors Surgeries, continuesapace. In memory of Jeremy Cole an ECG machine was donated to the to A& E Department at Eastbourne District General Hospital where ConsultantCardiologist Mr Rowland Cottingham confirmed that the hospital had subse-quently reviewed their practices in the A & E Department after Jeremy's death,and that as a result of this they had already referred on a young boy to GreatOrmond Street where he had been confirmed as having a cardiac condition. TheAndy Gard Memorial Fund have donated an ECG machine to ColchesterHospital Children's Ward where John Bick was requested to give a demonstra-tion and training session to the nurses, which was very well received. The sisteri/c the Children's Ward was surprised to learn about CRY and delighted to be tan-gentially involved in our campaign.

Many thanks to all of you that are getting such terrific coverage in your localnewspapers for CRY activities. Since our last Update it has again been a busymedia time for CRY. Kathy Haffenden did an interview for The Mirror (seeRaising Awareness) about the death of her son Justin which provoked a numberof calls to the office; Collette Farragher did a TV interview on Midlands Todayabout the sudden Death from WPW of her son Curtis, which also featured ourChairman Dr Greg Whyte; and Paulette Smith did a TV interview on Harlechabout the sudden death from Myocarditis of her son Christian, which included aninterview with Terry Yorath about Daniel's sudden death and our DivisionalRepresentative for Wales Maureen Ward's death of her son Caradoc, both ofwhom died suddenly from HCM. I hope that those of you who saw The Doctor'sepisode of Second Chance enjoyed it. Also "That's Esther" which focused onCRY's screening campaign featuring an interview with Terry Yorath, ProfessorMcKenna, Dr Sanjay Sharma and Dr Greg Whyte, and detailing the tragic deathsof Jeremy Cole from ARVC and Laura Fox from SDS.

Finally, an exciting bit of research news. Renowned health psychologistProfessor Andrew Steptoe, will again be supervising Steven Cox in a newresearch project, this time into the psychological impact on students, of CRY'sECG Testing in schools. This is a crucial area of study and one I have been fre-quently challenged about. It is reassuring that, if approval is given, we will thenbe able to furnish the answers to some of the emotive questions that our ECGTesting programme provokes.

JULIE`S FANTASY

INTERVIEWWITH

BIG BUGThe Marathon`sonly 12 legged

entrantJULIE Did you make friends with a Womble?

BIG BUG Yes, I did. It was rather cuddly.

JULIE Was this your first Marathon?

BIG BUG Yes it certainly was.

JULIE How did you feel at the start of the run?

BIG BUG Nervous and excited - my legs were shivering and people were laughing

and waving at me.

JULIE Was it hot in there?

BIG BUG Yes, Very!

JULIE Can you run quicker with all those legs?

BIG BUG No, because most of them are false.

JULIE Were you attacked by any rhinos?

BIG BUG No. They were very friendly.

JULIE How did you feel when you saw the Finish Line?

BIG BUG There is only one word to describe that - RELIEVED!

JULIE How many blisters did you have?

BIG BUG Too many to count.

JULIE Where did you put your medal?

BIG BUG Where everyone could see it.

Theme - Marathon

Photo-Call

Why is this

Big Bug in

such a hurry?

.. ... .. ... ...... ....!

can you find

these words?WORDSEARCH

DAVID CHAPMAN MEMORIAL FUND

Lynn Peacock, Carol Sinter and Alison

Wagett walked The James Herriot Fun -

Run dressed as Wallace and Gromit.

Lynn writes “we have all seen the effect

that Sudden Death Syndrome has had

upon the people close to us, and we

wanted to help everybody in the same

situation”. The girls had a lot of fun and

raised a brilliant £93.24 in memory of

David.

STAGECOACH THEATRE ARTS

Stagecoach Theatre Arts in Camberley, held 2 end of term presentation Plays.

Lindy writes “ In many ways, we were grateful that we did not have to do it all in

Camberley town centre. It was difficult enough in the confines of the school theatre!

Anyway, it was great fun and the children, parents and any number of relatives all

thoroughly enjoyed themselves and, if the truth were told, so did we and our

teachers – despite the ever rising blood pressure!” It was definitely all worth it in the

end as a fantastic £247.70 was raised for CRY Core Funding

MALPAS PARK PRIMARY SCHOOL

Malpas Park Primary School in Newport Gwent, held a collection for CRY at

their Harvest Festival and raised a fantastic £123.00 for Core Funding.

JAN SMITH CRY`S ADMINISTRATOR

REPORTS FROM

Hello again from St George's

As you will know from the last Update, Iwas away during part of March and am nowin the last stages of catching up again.

Further to last month's bulletin, you will beaware that CRY was looking to improvecustomer relations with Marquette Hellige,the supplier of our ECG Recorders.Progress has been made, and we are nowin the final stages of setting up a contractwith a new supplier. We will still use MAC1200 ECG Recorders (these are definitelythought to be the best of their type) but thenew contract includes better after-care andtraining and more reliable delivery times.We hope this will improve what has been attimes, quite a sluggish service.

I am sure you will appreciate the need to centralise purchasing of ECG Machines.A number of CRY contacts have sought information on buying ECG machines orother cardiac equipment using different sources, but unfortunately, at the currenttime this is not possible. Please note that CRY cannot be responsible for ECGrecorders that have been secured through an independent venture.

Ethical Approvals

Western Isles Health Board - this is still progressing steadily, and we are nowlooking forward to hearing the outcome of their meeting scheduled for 8th May.Unfortunately the Ethics Committee did not meet in March as scheduled so weare still waiting for their second set of comments

Highlands Health Board - encouraging - contact has been made with theCommittee, and we are due a letter in the post, outlining six issues that theywould like clarified.

West Lothian - the Council is seeking further information from us in the light ofthe recent Scottish Executives Press Release on screening.

Tenby - if anyone knows of a novel yet legal method to draw a response from themedical fraternity please get in touch, we are now chasing for one response!

Essex - we have received relevant paperwork via Caroline Gard for Essex.

To clarify this situation, Caroline Gard will be pursuing Ethical Approval for NorthEssex Health Authority, and this is currently the only Ethical Approval we areseeking in the East of England. The work load attached to these projects is con-siderable; as a national charity we need to establish ourselves in different parts

of the UK.

St George's

I have recently received enquiries on screening/patient care procedures fromfamilies who have no history or current chest/heart problems, and thought itmight be helpful to clarify what St George's is able to offer in the name of CRY.You can be seen at St George's for screening but your GP is unlikely to refer youon unless there is a genuine reason for concern. If you want screening and youhave no specific chest problems, you can be seen privately. Here at St George'sProfessor McKenna runs a private clinic on a Monday, and his secretary, MsFrances Manton will be able to advise of you costs and availability on (020) 8 7255911.

Improvements to Information Swapping

Communication in an ever developing environment is always a bit of challenge!As the charity is growing, we are very much aware of how important it is to tryand let people know of developments and amendments to policy and we aresteadily working to improve the situation so please bear with us. CRY is nowlooking to develop what can best be described as a corporate identity - in simpleterms, this means an easily identifiable "look". Shallow as it sounds, this will actually go a long way in securing interest in ourcause, particularly from the corporate sector, who we have yet to target. Manycompanies have a budget for supporting charitable concerns, but the competitionto receive funding is quite tough. We have to convince each Board member thatshareholder money should come to us rather that be sent to the shareholder!

With this in mind, it would enormously helpful if you would remember to provideAlison Cox with a draft of any publicity material that you are planning to use fora fundraising event. We can help with the wording, and advise on typeface andlayout if needed. This way, we can gradually develop our "look" . It also helps usto keep up to speed with all your efforts too!

Sports Cardiology

The concept of a Sport Cardiology Unit was originally mooted about four yearsago and our aim is to establish a unit which will offer sportsmen/women an oppor-tunity to have a full cardiac evaluation. based on scientific evidence they will alsoreceive advice on their training schedules, general health, and nutrition. The unitwould be seen as a centre of excellence, and the research data would be invalu-able to St George's in terms of publications and research projects. The first meet-ing to discuss the way forward recently took place, and although this is a longterm project, we have now begun in earnest. I look forward to keeping you updat-ed of developments.

Please do get back to me on (020) 8 725 5098 if there is anything you wish todiscuss relating to the above, or generally related to CRY. Kind regards from Jan.

CARDIOLOGICAL SCIENCESST GEORGES HOSPITAL

MEDICAL SCHOOL

The London Marathon.

The London Marathon is one of our major fund-raising

events. Over the last three years we have fielded an

average of 50 entrants per year, in the approximate pro-

portion of 75% Golden Bond, to 25% donated (public)

place runners. Average gross income from this source

is around £35,000 pa. However, there are expendi-

tures attached to this, the initial cost of 'Golden Bonds'

is £250.00, and the support infrastructure provided to

our runners by CRY.

How does it work?

Each year we purchase a number of Golden Bond

entries from London Marathon Ltd. These are then

made available to members of CRY and the general

public in exchange for a pledge to raise a guaranteed

minimum amount of sponsorship. The amount of spon-

sorship asked for is set in consultation with Alison on a

year by year basis and reflects the amount asked for by

other charities offering the same kind of placements.

In exchange for a signed pledge, we provide each runner with the relevant London Marathon

Registration Documents, official London Marathon News Magazines and updates, a CRY T shirt or

running vest, personalised posters and sponsorship forms, a CRY Runner Pin Badge and a Good

Luck card in the week prior to the race. We also provide a similar level of support to our donated

(public) place runners, but do not stipulate a minimum amount of sponsorship. Entrants may run

for a nominated Memorial Fund or in favour of the CRY General Fund. We expect our runners to

wear the CRY livery as much as possible in the lead up to the race and especially during the race.

We usually allow a nominal three months for sponsorship to be collected, which, for accounting pur-

poses, MUST be remitted direct to the CRY Marathon Co-ordinator. Remittances may be sent in

singly or collectively as convenient to the runner. On receipt, all amounts are acknowledged,

cheques recorded against the nominated fund, and receipts issued. They are then batched up and

sent with covering letters to our Central Office to be officially recorded and banked - this usually

happens on the day of receipt and certainly within two days of receipt. Following the designated

collecting period, all sponsorship accounts are totalled up to determine the winners of our incentive

awards (London Marathon Finishers watches) which are awarded to the top five male and top five

female fund-raisers. Finally a financial report recording the details of all amounts received is pre-

pared and submitted to the board of Trustees.

This year, our field of Golden Bond runners is 31, which, due mainly to injuries sustained during

training, is somewhat less than in previous years. The number of donated place runners (9) is also

less than other years, and this I suspect is due to people either not being fully aware of our support

infrastructure or because they have elected to use their sponsorship in support of CRY Golden

Bond runner. However, this year we have sent out over 70 invitations and information packs, 120

personalised CRY posters, 320 personalised sponsorship forms, 22 badges, 42 Good Luck Cards,

35 CRY T shirts and 13 CRY running vests.

Maureen Ward usually fields a strong team of runners from her area, with a core of regular runners,

mainly local TA members, supporting the Caradoc James Memorial Fund. We also enjoy a lot of

support from the Royal Navy, Fleet Air Arm and Royal Air Force through the Nigel Foster Memorial

Fund. Caroline Gard's contingent from Essex have also been prolific fund-raisers with one of

MIKE FOSTER CRY`S

PROJECTS MANAGER REPORTS

Caroline's friends being awarded a special prize (donated by Canon Cameras), for being the top

female (London Marathon) fund-raiser for CRY in 1999. Both Caroline and her husband, Peter, are

running in this year's race. The winner of the Canon Camera for top male fund-raiser in 1999 was

Rodger White who ran for Dominic O'Loughlin's Memorial Fund. Unfortunately, there is not suffi-

cient space for me to reflect accolades on everyone who deserves it (they all do), so I will just say

a sincere thank you on CRY's behalf to all of those who took part. Don't forget, the London

Marathon is YOUR event - Golden Bond places are available to anyone who can commit to raising

the required amount - to run for CRY or a nominated Memorial Fund. Contact me on 01329 231734

for further details. Unfortunately, only those runners who have registered with, and remit their

sponsorship returns to the CRY Marathon Co-ordinator, can be formally recognised and become eli-

gible for any CRY incentive awards.

General Fundraising Support.

I am also able to offer fundraising support to anyone who requests it, in the form of customised

posters and sponsor forms, etc. Previous fundraising events and assistance include: - The Great

North Run; The Great North Walk; (various contacts from the North, including Steve Stainthorpe &

Ivor Clyde; Tony Lucas and friends), Coast to Coast Cycle Ride (899 Naval Air Squadron), Island

Treasure Hunt (12 Signals Unit Cyprus), 5 A Side Football Tournament (Sherralyn Rampton,

Portsmouth); Duke of Edinburgh Award Scheme (a relative of Sherralyn's from Essex); Local Half

Marathons (Bath: Portsmouth), Leeds Marathon (Julia Hartley), open letters of introduction for var-

ious purposes (sponsorship; raising awareness; etc). If I can be of help in your campaign, please

contact me on 01329 231734 as early as possible. (It would also be nice to get feedback with

respect to the successfulness of the campaign).

General Administrative Support.

This can mean anything to do with relieving pressure on the Central Office, and includes repre-

senting CRY at 'handover' ceremonies and talking to groups about CRY and its aims. Background

activities include on going assistance with the development and preparation of internal procedures

and documentation. I will shortly be preparing an inventory of fixed assets, which will entail iden-

tifying and recording the salient details and location of all equipment belonging to CRY, and will

include everything from the Mobile Screening Van to the office pencil sharpener. We will also be

analysing the cost effectiveness of all our operations including the London Marathon; CRY

Commando Challenge; some aspects of the ECG Community Testing Programmes and 'ring

fenced' funds.

General.

My hours of work are somewhat flexible, and from time to time, I do have to leave the office to con-

duct CRY business elsewhere, (post, meeting contacts, business meetings, etc), but I am usually

at my desk by 7:30 each morning and work through to 12:30. My afternoon sessions are usually

between 13:30 and 17:00 and I can usually be contacted up until 22:00 daily and most weekends.

My address is:331, Gosport Road, Fareham, Hants. PO16 0SZ.

Telephone: 01329 231734 (CRY).

Fax: 01329 280379.

e-mail: foster1m@aol.com.

ANDY THOMPSON HASRAISED £3,060.13

IN MEMORY OF NIGEL FOSTER

This was the third year I have run the London Marathon for CRY. I was fortunate in obtaining apublic place, and had planned to run with my wife Helen, using a CRY Golden Bond. However,because of a viral infection, Helen was unable to run. Despite the vagaries of the winter weatherand a job change, I was determined to score a marathon hatrick.

The New Year began with about four short runs a week and progressed to long runs on Sunday. Inthe last five to six weeks of my training, the runs reached about 18 miles, which were really hard!

Although the night before the 'big day' is intended to be quietand relaxing, I had arranged to meet up with two of my serv-ice colleagues, Andy Dustan and Paul Brunell, both CRYrunners, for a night on the town, and it almost happened.The weather was cold, wet and windy, so Saturday after-noon was spent in Covent Garden. In the evening we wentto the Cinema in Liecester Square to East is East. Theseats were covered in leopard skin and we all thought itmust be a bit like sitting in Bet Lynch's lounge.

After the show we thought it best to have a hot bath and turnin early so we could be fully rested for the big day. Werepaired to our service accommodation, opposite the TateGallery, which was everything our service training had pre-pared us for. It was completely run down; the water wascold and brown; the rooms were cold and noisy and it wasalmost impossible to sleep. We decided to get up early andhop on a tube to Greenwich where we hoped we might geta cup of tea and a bite of something to boost our energyreserves. But Greenwich being Greenwich, and on a Sunday to boot, we ended up stuffing our-selves with jelly babies bought from a newsagents.

We arrived at Blackheath at around 8:15 and it was already quite busy with lots of other runnersmilling around and trying not to show their nervousness. Andy Dustan and myself knew what toexpect from previous occasions but this was Paul's first time and he was really soaking up theatmosphere. We all were! Whatever happened now, this was going to be a memorable day formany thousands of runners. The atmosphere continued to build as the three of us split up to findour allotted starting points. 09.30am - BANG - balloons released and we were off. It took me tenminutes to arrive at, and cross the start line.

The first major milestone was the Cutty Sark. There were loads of cameras and a brilliant crowdshouting encouragement. The atmosphere was electric and invigorating, preparing us well for thetrek to Tower Bridge. Unbelievably I didn't see the London Eye as I ran past it! After about 13 milesI was feeling really good, and for the next five or six miles into Docklands I still felt fine. In fact atmy 13-14 mile point, the faster runners were on their way back from Canary Warf on their way toTower Bridge, which would have been their 22-mile point.

Between 17 and 20 miles it became really hard work. I was tired, taking on a lot of drink and won-dering why I was there! After Tower Bridge I knew that I only had about 4 miles to go, and then itwas there - Big Ben! So off I trotted to Parliament Square, Bird Cage walk and on to BuckinghamPalace. Now there were thousands of spectators lining the route, shouting and cheering andegging us on. At the final mile I used my mobile to give Helen a call. Around the corner and intothe Mall, the electronic clock, the finishing line and some refreshment. As I crossed the line theclock recorded 3hrs 43mins and 23 seconds - which I might add was the same time as OlympicMedallist Roger Black!

Throughout the run I didn't see Paul and Andy, due to the different starting points, but we all com-pleted the race within two minutes of each other. Although I have said that I will never do it again,I'm already looking into whether I can swim far enough to compete in the London Triathlon inOctober. Paul said that he will do another one, and Andy has already asked us both if we want togo out to Washington in September to do the US Marine Corp Marathon.

So on the whole, the experience of running 26.2 miles with over 30,000 people, being beaten by aWomble and being shown on TV, was exhilarating for all three of us dedicated CRY runners.

Andy seen here before setting

off on the 899 Naval Air Squadron

Coast to Coast cycle ride

£3,250.00 HAS BEEN RAISEDIN MEMORY OF DAVID CROSS

Christmas Cards 1999

Thank you to Jo & Charlie Cross who donated

£1,000 to cover printing costs of their

Christmas Cards which enabled CRY

to make a profit for the first time.

After hearing

about CRY`S

North East

Screening

Programme

Northern Electric

and Gas have

donated a

brilliant £500.00

towards ECG

testing.

After Jo wrote to

Rolls Royce

(David`s old

employer) their

Charitable

Donations

Committee decided

to award CRY a

whopping £1,500.00

David at his graduation in 1992David died age 26 on 30.09.96 from

Hypertrophic Cardiomyopathy. Since

they found out about CRY his

parents Jo, Charlie, & their support-

ers have been busy raising aware-

ness and raising money for David`s

Memorial Fund. More than £14,000

has been raised in a little over 3

years. The Cross`s have also had the

first CRY Mobile Screening weekend

in the region when 40 youngsters

were tested for the condition - which

marked the 3rd Anniversary of

David`s death. Jo is no longer work-

ing and has taken this year out to

concentrate on her CRY work

Rob Andrew

CRY`S Patron

has donated his

appearence fee

through The

Rotary Club of

Consett which

was a brilliant

£250 in memory

of David.

IN MEMORY OF NIGEL FOSTER

NIGEL FOSTER MEMORIAL

(RESEARCH) FELLOWSHIP.

Up until this year, all funds raised for

CRY in Nigel`s name have been con-

tributed to the CRY General Fund.

However, for the next three years,

Mike & Rose (Nigel`s mum & dad)

have agreed to help finance a

research fellowship at the University

of Wolverhampton, to carry out further

research into the effect of exercise on

cardiovascular function. The pro-

gramme will be conducted under the

auspices of Dr Greg Whyte, Head of

Department of Sports Sciences, and it

is hoped, will gain proactive support

from elements of the Armed Forces.

Nigel seen here on detachment abroad

Mike & Rose Foster at MCS TCW Brize Norton for Nigel`s Tree Planting Ceremy

THE FLORA LONDONMARATHON 2000

The Flora London Marathon was held on Sunday 16th April. 40 CRY

Runners took up the challenge, on what was a fantastic day. Below

are some of our runners as they came past Buckingham Palace and

headed down the home straight with the finish line in sight. There

was plenty of encouragement for them from the Grandstand with

several CRY supporters in attendance.

Marion & Julie

(Kids for CRY) Tanner

looking out for Big Bug?

Maureen & Harry Ward with Tony

Can you spot any of your CRY Runners?

THE COLE FAMILY`SECG MACHINE PRESENTATION

In March 2000 a CRY ECG Machine was presented to The Accident and Emergency Department

of Eastbourne District General Hospital in memory of Jeremy Cole. The ECG machine was accept-

ed by Rowland Cottingham, Consultant to The A & E Department. The Coles write “We are both

very pleased that the ECG machine will be sited in the A & E Department which is the first port of

call for anyone of any age admitted suffering a cardiac related condition in the local area and we

are sure that the plaque on the ECG machine will always be a timely reminder of why it has been

given. We know that having an ECG machine placed in such a position must have made an impact

on the hospital and the staff involved”.

Tony Meier Vice Chairman of

Eastbourne Hospitals (NHS) Trust

Councillor Maurice Skilton (Chairman of the East

Sussex County Council), Jenny Cole, Nigel Cole

and Rowland Cottingham

Members of The ‘999’ Emergency

Services teams who have raised so

much money for CRY

Jenny Cole (CRY`S Sussex Representative) and Rowland Cottingham(Consultant in Accident and Emergency Medicine at the Hospital) - it is in

Rowland`s deptartment that the ECG machine has been placed

From L to R Jenny Cole, (at

the very back Pat Guy from

C & A Eastbourne), Chris

Randall head of PR at The

Eastbourne Hospitals Trust,

A Sister from The A & E Dept

at the Hospital, Dave Piercy

Chairman of Eastbourne

Old Town Boys FC, and

Graham Erskine General

Manager of The Eastbourne

David Lloyd Leisure Centre

RAISING AWARENESS

With Permission Daily Mirror 13.04.00

RAISING AWARENESS

With Permission Wolverhampton Express & Star 16.02.00

RAISING AWARENESS

With Permission Hampstead & Highgate Express 25.02.00

RAISING AWARENESS

With Permission Newcastle Journal 30.03.00

RAISING AWARENESS

With Permission Middlesbrough Evening Gazette 28.03.00

RAISING AWARENESS

With Permission Bolton Evening News 13.12.99

RAISING AWARENESS

With Permission The Darwin Citizen 24.03.00

RAISING AWARENESS

With Permission Frinton Evening Gazette 11.02.00

OFFICE FURNITURE

APPEAL

We have now moved into

local offices and

desperately need Office

Furniture. We would very

much appreciate items

donated or at very

special prices.

especially sound proofedpanels!

Please contact the CRY

Office if you can help us

in any way

CHRISTMAS CARDS 2000

WE ARE NOW PLANNING OUR

CHRISTMAS CARD SELECTION

FOR THIS YEAR. IF YOU HAVE A

CARD DESIGN YOU COULD

DONATE TO CRY WE WOULD

BE MOST GRATEFUL TO HEAR

FROM YOU.

PLEASE CONTACT CAROLINE

GARD ON 01255 - 673598

OR VIA E MAIL

carolinegard@hotmail.com

IF ANYONE HAS ANY

QUERIES ON ECG

PROGRAMMES OR

MOBILE SCREENING

ENQUIRIES PLEASE

CONTACT JAN SMITH

CRY`S ADMINISTRATOR AT

ST GEORGES HOSPITAL

MEDICAL SCHOOL ON

0208 725 5098

OR jsmith@sghms.ac.uk

NEW CRY GUIDELINES

BECAUSE OF THE GROWTHOF CRY, GUIDELINES FORREPRESENTATIVES ARE

BEING INTRODUCED WHICHWILL BE AVAILABLE ONREQUEST. CRY WILL BE

INTRODUCING 8 U.K DIVISIONAL REPRESENTA-

TIVES WHO WILL BE SUPPORTED BY COUNTYREPRESENTATIVES. OUR

CRY ADMINISTRATOR JAN SMITH IS ALSO

PRODUCING A MANUALON “GETTING INVOLVEDWITH CRY” WHICH WE

HOPE TO HAVE READY BYLATE SPRING 2000

BULLETIN BOARD

If you would like Tony to consider any

item for Bulletin Board please fax details

(including your item) through to

him on 01372 279335

E MAIL CONTACTSKeeley Ashley - Keeleyashley@aol.com

Roy Ball - royandgillball@selcroftavenue.freeserve.co.uk

Nigel & Jenny Cole - nigel1949@hotmail.com

Jo & Charlie Cross - chascross@compuserve.com

Mike Foster - foster1m@aol.com

Caroline Gard - carolinegard@hotmail.com

Harry Hindle - Capt.Harry@ntlworld.com

Anne Jolly - jollyjon@netcomuk.co.uk

Alan & Gloria Moss - mosses@cherrystonescottage.freeserve.co.uk

Jan Smith - jsmith@sghms.ac.uk

Adrian Woodhead - adrian@woodhead88.freeserve.co.uk

More and morepeople are

using email asa fast

and convenientway of

communication.If you would like to be put on ourCRY list, please

email us withyour details.

BULLETIN BOARD

Please bear in mind when organising fundraisings it

would be brilliant if you can take photos of your

great day. It would also be extremely useful to Tony

if, when you write in to the office that you clearly

state how much was raised, and by whom.

RON PRESLEY

We would like to send our best

wishes to Ron who is shortly going

into hospital for a heart by-pass

operation, and also for a speedy

recovery. Ron helped to start CRY 5

years ago and was CRY`S Chairman

for 4 years

QUESTIONS & ANSWERSIf anyone has any questions that they would like

answered in the Brochure then please fax them

through to the office, if we have enough interest

then a Questions and Answers Page will be

included in the Update. (No medical queries please)

LATEST STATISTICS

NOW REVEAL THAT

NEARLY 1 IN 100

CHILDREN ARE

BORN WITH A

HEART DEFECT

We have received a few requestsfor a copy of the ‘That`s Ester’

programme which was broadcaston 30.04.99. If you would like to

borrow a copy then please send aself addressed padded Jiffy bagwith stamps to the value of 66p

to the Office.

Michelle Houghton has compiled a brilliant recipes book if

anyone would like a copy please contact Irene Wickers on

01254 707895. They cost £1.00 and all proceeds to go to the

Neil Wickers & David Staff Memorial Fund

BULLETIN BOARD

Anyone requiringCRY Posters or

SponsorshipForms pleasecontact Mike

Foster ProjectsManager on

01329 231734 or via

e-mail - addresson opposite page

SINEAD CHAPMANWe have heard that thesurgery Sinead had toinsert a defibrilator wentvery well, but she will beneeding to return to thehospital for further treatment. We are all thinking of you Sinead, especially yourfriends on the CRY Counselling Course.

RING FENCED

FUNDRAISING

Please remember thatunless you notify us andget the necessary docu-mentation and confirma-tion from the office for“ring fenced” fund raisingbefore you start a fundraising venture all fundsraised will be used forCRY Core Funding.Retrospective “ring fenc-ing” is unfortunately justnot possible. CRY cannot be responsible forany “ring fenced” fundraising unless it hasbeen authorised.

Have you run in The Flora London

Marathon for CRY?

Did you raise at least £1,000?

Would you like to be featured in our

Update Brochure?

Could you write an account of your

run in 400-700 words?

Can you supply a photo of yourself

at the event?

If you have answered ‘Yes’ to all of

the above Tony would be very

pleased to hear from you on

01372 276187

Are you up for

THE CRY COMMANDO CHALLENGE?

This years CRY Commando

Challenge will be on Saturday 7th October

at Woodbury Common in Devon

If you would like to register your

team please contact Mike Foster -

Co-ordinator of CRY Commando

Challenge on 01329 231734

Teams need to be a minimum of 3 and a maximum of 5 people

LLuuccii’’ss LLoocckkeett ffoorr CCRRYYLuci has designed, especially for CRY, a

superb sterling silver (or 9 carat gold)

locket which opens to hold two photos.

The silver chain can be any length up to a

maximum of 20 inches, and the locket can

be personalised with the addition of any

initial. The cost, including post, packing & insurance is £75,00 and order forms are

available from the office. Gold initial and clasp are available for the additional charge

of £15.00. All lockets are made individually, hallmarked and engraved on the back

with CRY and our ECG line.

SECTION 64 GRANTS

CRY was again unsuccessfull in it`s application for a

Section 64 Grant for 1999. Ifanyone would like the list of

successfull applicants pleaseapply to the office

CRY`S Powerpoint Presentation is now

available in either CD ROM or FLOPPY

DISC formats. Ideal for fundraisings

where a computer can be used to dis-

play information about CRY. Also fea-

tured is CRY`S Website so if any of you

haven`t got access to the Internet and

you would like to see the site now`s your

chance! The cost is £10.00 inc P&P and

can be obtained from the office

Maureen Ward CRY`s

ECG “Consultant”!

Maureen has offered to

talk to anyone needing

help with organising

Mobile Screenings,

ECG Testing , or Ethical Approval. You name

it. She`s done it!

Try her on 01834 843742

June Boulton is dedicating

all her fundraising money

for office furniture and

equipment, in memory of

her 17 year old son John,

who died suddenly last

year in his sleep of Sudden

Adult Death Syndrome.

She is doing a “Pubs &

Clubs” circuit & would be

grateful for Raffle prizes. If

you have any ideas or

prizes please contact her on

0151 287 2519

ESPECIAL THANKS TO NIGEL COLE FOR THE FANTASTIC

AMOUNT OF TIME HE SPENT IN ORGANISING THE ORDERING &

DELIVERY OF OUR WONDERFUL NEW VAN

Would you like to run in

The London Marathon for CRY?

If so please contact Mike Foster onphone 01329 231734 fax 01329 280379

Liz Foy for Sarah Louise Williamson 1999