QUARTERLYUPDATE

CRY Patrons: Rob Andrew MBE, Jeremy Bates,Ian Botham OBE,Mark Cox MBE,Nick Gillingham MBE, Rob Jones MBE, Professor WJ McKenna,Sir Steve Redgrave CBE.

CARDIACRISK in theYOUNG

Summer 2002 - Issue 33

No part of this publication may be reproduced, stored in a retrieval system or transmitted in any form or by any means, electronic, mechanical, photocopy-ing, recording or otherwise without prior permission of the Editor. The Editor and Committee welcome letters but reserve the right to edit when necessaryand to withhold publication. Any opinion or statement by the author of any article or letter published does not necessarily represent the opinion of the Editor,or its Officers. Articles pertaining to health related topics are FOR INFORMATION ONLY. Readers should obtain advice from their own practitioner beforeattempting to diagnose or administer any medication. Mention of any products or procedure should not be considered as an endorsement for said productor procedure.

CRY Representatives1 Meet Amanda Edgar our County Representative for West Yorkshire

Newsletters and Reports2 Newsletter - Alison Cox the Chief Executive4 Jan`s Report5 Steve`s Report6 All Party Parliamentary Group

8 My London Marathon by Cheryl Seamen

Kids for CRY10 Kids for CRY Fundraising Crossword/ Poem11 Julie’s Interview with George Moody - Volunteer Screening Administrator for the Western Isles ECG

Testing Pilot Study12 Kids for CRY Fundraising

CRY Fundraising

13 Our Fundraisers

In memory of 18 Lewis Marsh19 Andy Gard20 Jamie Bucknell22 Jeremy Cole23 David Pollard

Screenings24 Mobile Screening in memory of David Staff and Neil Wickers25 Western Isles Screening in memory of Joanne Fotheringham

Raising Awareness26 Too young to die27 Young at risk of sudden death28 Tragic Loss. Sudden Adult Death30 Friends of Levon cycle 250 miles in memorial tribute31 My big brother32 Wimbledon Charity Cheque33 Fund boosts ambulance service34 Golf tournament raises £2,50035 Footballers in fun run for Jamie36 No mountain high enough for challenge team. Fighting elements for funds37 There’ll be tears of laughter at concert. Fundraising couple in marathon effort38 Dominic Festival scores another success39 CRYing out for sports medicine40 Charity cheque in memory of David41 Saving young lives42 Daughter’s sudden death devastated family43 For the love of Joanne44 Bradley, 15, is a miracle boy45 Mother battles to beat cardiac death in young. Mother campaigns for heart screening46 Brave mum’s accolade. Heart scanner is vital for region. Tackling a timebomb47 Lisa’s death must not be in vain. MP joins CRY to help heart campaign48 Jazz event all heart in raising unit funds. Fighting ‘silent killer’. ‘If we can save just one life, it will ....49 Family’s war on a ‘silent killer’. ‘There was no reason...it was such a shock’50 Cry from the heart51 Tragic son spurs mum’s campaign

Bulletin Board

Back Cover ‘God’s Lent Child’

Contents

CRY Unit 7 - Epsom Downs Metro Centre, Waterfield, Tadworth, Surrey KT20 5LRTel: 01737 363 222 Fax: 01737 363 444 Web site: www.c-r-y.org.uk e-mail cry@c-r-y.org.uk

On the 18th August 1998 myhusband, Nigel Edgar, died in hissleep. We were all devastated.We couldn’t understand howNigel could have died; he wasonly 33 years old, fit and healthy.Through CRY, I have learnt thatundetected heart abnormalitiescan lead to sudden death. Wewere not aware that Nigel had anenlarged heart, if we had, his lifecould have been saved.

Screening saves lives and Iwould like to see a NationalScreening Programme take placeand strongly endorse CRY’s workin this area. Our children, James(10) and Jane (8), are now beingscreened. I would like to see allschool children being screened.Screening raises awareness ofsymptoms and saves young lives.

I don’t know how we would have coped without the help and information thatwe have received from CRY. I would like to be there for other bereaved fami-lies and I am presently taking the CRY Counselling Course so that I can dojust that. I know how much talking to other families has helped me and I thinkthe counselling training that CRY gives families is excellent and gives us a realchance to feel confident that we can hopefully help others.

I have been really pleased with the response we have had to raising funds tohelp CRY achieve their aims. James and Jane have also enjoyed raisingfunds and have been involved in a sponsored walk and a ‘come as you pleaseday and bun sale’ at their school. People have been so interested in CRY’scampaign and have really rallied round. Getting CRY’s message heard is soimportant to all our family now.

Amanda Edgar

Meet our Representatives

County Representative for West Yorkshire - Amanda Edgar

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Amanda and Nigel wedding17th June 1989

Summer 2002 Newsletterby the Chief Executive

On a hot Monday in July the HonoraryPresident of our Centre for Sports Cardiology,Ian Botham, somehow found the time in his fre-netic schedule to squeeze in a visit toWestminster and launch a hugely importantevent for CRY - the instigation of an All PartyParliamentary Group (APPG) for cardiac risk inthe young. This anchored the culmination of ajourney whose passage began in 1997 after Iwas contacted by Adrian Woodhead shortlyafter his wife Sarah had died suddenly in hisarms aged 28. Sarah's nausea and faintinghad been dismissed as symptoms of the preg-nancy that they were both so hoping for. Thereality was that Sarah was suffering from car-diomyopathy, the condition that had killed hermother, just after she hadbeen born. Adrian vowedthat in memory of Sarahhis goal would be to targetchange throughGovernment and his MP,Julian Lewis, pledged hissupport for our campaign.Last year Julian was final-ly successful in his appli-cation for an AdjournmentDebate on cardiac risk inthe young and the Ministerof Health, Yvette Cooper, responded in theHouse, to his appeal.

After attending our Parliamentary Reception inApril, Jeff Morland's MP Kevan Jones, dis-cussed with Julian the potential for co-ordinat-ing an All Party Parliamentary Group - our ulti-mate goal - and this reached fruition in July. Inhis speech to galvanise MP's support Ian

emphasised his determi-nation to see changesmade telling MP's "at theend of the day thesedeaths are indiscriminate.They affect all sorts ofpeople - amateur sports-men, professional sports-men, a guy playing on apitch, a kid at schoolsports day. It is somethingthat must be addressedand has been swept under

the carpet for too long." For a charity such asCRY to have an APPG is a fantastic achieve-

ment and gives us an opportunity to have a

voice and influence in the corridors of power -the place where decisions are made, and I ammost grateful to Adrian and Jeff for all the workthey have done with MP’s to make this happen.

We have had 4 major national media articlessince our Spring newsletter, in the SundayTimes, The Times, PE Sport and TheParamedic a magazine which is circulated toevery paramedic in the country. Consequentlyalthough the summer holidays is usually a quiettime in the CRYoffice giving us amuch longed foropportunity tocatch-up, we haveinstead been field-ing hundreds ofenquiries for ourscreening pro-gramme, whichwith Staff holidaybreaks has kept usworking at ourusual breakneckpace!

John Inverdale took timeout from his hecticschedule during The Championships atWimbledon to accept a cheque in theWimbledon Museum on behalf of CRY from hisfriend Mark Loveday. Mark had raised anastonishing £15,000 by running with friends at2

Iam Botham arriving at Portculis House

Kevan Jones MP

Julian Lewis MP

the London Marathon in memory of his babyson who had died suddenly last year. The lasttime I had seen John was when he was partic-ipating in our very successful tennis pro-am atSutton Tennis Club, and he expressed a partic-ular interest in CRY's programme particularly inrelation to sport.

Another important step in raising awarenessamongst medics has been made by DoreenHarley who has been working for some timewith the Flintshire local health group who havedistributed CRY's literature to the 26 area GPpractices. All Cardiologists serving the 3 mainhospitals for North Wales and Chester aregoing to be included in this initiative that it ishoped will now be extended to other GP sur-geries in North Wales.

Our very important, and long awaited, ECGTesting Programme in the Western Isles hasnow been concluded, a project that has takentwo and a half years to complete. IntroducingECG testing to the Hebridean Island of Lewis

has not only given us the opportunity to checkthe cardiac health of the Island's schoolchildrenbut also to raise awareness of CRY's pro-gramme North of the Border with a number ofnewspaper articles, radio and TV interviews.The testing was in memory of JoanneFotheringham whose Headmaster GeorgeMoody offered to be the volunteer administrator

of this event that will yield important researchon the efficacy of ECG testing amongst adoles-cents. George was able to bring his immenseexperience and understanding of local prob-lems to the organisation of the ECG testing pro-gramme, and secure the interest and co-opera-tion of all relevant parties. Organising anyscreening event is challenging and time con-suming - managing an event on a remoteIsland in the farthest reaches of the UK was anaccomplishment that CRY can be very proudof!

The Genetics Knowledge Park is an alliancebetween a dozen NHS Hospitals and MedicalSchools in London, and they have organised aconference on Genetics, Human Health andDisease and asked our Patron ProfessorMcKenna to invite CRY to attend as one of anumber of specialist support groups. This willbe held at the Natural History Museum, Londonon Saturday November 30 and is for anybodywho wants to know about genetics. A flyer onthe conference is included with this Update.

I am also delighted to have been asked tospeak at The Athletes Heart Symposium on"the impact of sudden cardiac death - the casefor screening" to be held at University CollegeLondon, on December 17. This symposium ison day one of a 4-day meeting of the UKPhysiological Society and includes a galaxy offamous names in the world of sports cardiologyincluding many of those familiar to CRY sup-porters - Professor Bill McKenna, ProfessorPaul Thompson (USA), Dr Dominico Corrado(Italy), Dr Len Shapiro, and Dr Sanjay Sharma.

In conclusion it is interesting to note that at thebeginning of 2002 we made what we thoughtwas an ambitious decision to print 10,000 ofboth our new General and ParliamentaryLeaflets - an order that was conscientiously cal-culated to be sufficient to last the entire year.Astonishingly within 3 months supplies wereexhausted and we had to urgently reorderanother print run of10,000! This isnow exhaustedand we haveagain reordered10,000! It is bysuch barometersthat we canmeasure the paceat which CRY'scampaign messageis being promulgat-ed.

3

Ron Presley, Mark Loveday, John Inverdale, and BobAlsop

Steve, Alex, Sanjay and George at the Western IslesScreening

A warm welcome to the News section from St George's. September has been a busy month, catching upwith screening events with the Western Isles project under control.

Dr Sam Firoozi leaves St George's for his rotation work which last two years. Sam has attended many CRY screenings andwe hope will still be able to join us from time to time as his clinical programme allows. In the meantime, we wish him lots ofluck for the forthcoming two years.

As the profile of the charity continues to grow so do the number of written enquiries, e-mails and incoming calls. If you findthe phone is engaged a lot, please phone the CRY office number and request that a message is passed on. I realise that thiscan be frustrating, but plans are afoot to reduce the number of general enquiries through production of an information sheet.

St. George’s

Jan Smith CRY’s Screening ManagerReports from Cardiological Sciences St George’s Hospital Medical School

Western Isles Screening

Sports ScreeningsWe have had a run of mobile screening events in conjunction with The Lawn Tennis Association. Tony Hilland Steve Cox have seen much of the English road network in recent weeks doing sterling work operat-ing the screenings on site. Our first screening was in Welwyn on 5th September, followed by Bath on 10th,Loughborough on 12th and Leeds on 27th.

4

Working in conjunction with the Rugby Football League, CRYhas been invited to attend a multi testing medical day with theRFL Junior Players - 15-17 year age group. With two Echotechnicians, two Cypress Echo machines (one of them is on

The CRY team returned for a follow up trip to the WesternIsles of Scotland further to the ECG testing study held in Mayand June. Dr Sharma flew up to Stornoway, together withPauline Hales who undertook the Echocardiograms. SteveCox also attended (in between the tennis screenings) a featinvolving some extreme diary juggling, since the most suit-able weekend transpired to be the 6-9th September!

Out of the 288 young people reviewed, 22 clients were invit-ed to attend for cardiac screening. Nineteen people wereable to attend on Saturday 7th September at the NicolsonInstitute in Stornoway, on the Isle of Lewis. BBC Scotlandcame to the screening and Dr Sharma was interviewed.

We had been warned the weather wouldn't be the best - apicture of Sanjay Sharma on the beach, umbrella in hand,testifies to this fact! However, everyone involved in pullingthis event together did their best to ensure the team was

Rugby Football Leagueloan to us for the day) and one ECG technician, the clinicalteam have 40 players to screen in a day. Dr Sharma is theattending Cardiologist for this event, which is on Saturday28th September.

made welcome and comfortable. Alex Fotheringham wasable to get over for the weekend and was "overwhelmed anddelighted" at the work carried out in her daughter’s name."Everyone is talking about it!" she reported, "what will happennext, where will it go; we've had nothing like this for years".Ms Jane Adams, Director of Nursing at The Western IslesHospital provided us with superb ECG Technicians, and tworeturned for the event on 7th September. All the Medicsinvolved were enthusiastic and supportive of the aims of theproject and CRY is now looking at developing this study inother Islands in the area, once funding is secured.

Special thanks go to Mr George Moody for all his support. Hisbackground knowledge of the Island and personal approachto those involved was invaluable to CRY. Alex presented MrMoody with a painting of Northern Ouist in the Western Isleswhich was supplied by CRY's John Bennett.

As you are probably aware, CRY has various funding oppor-tunities. If you decide that you would like to fundraise for thecharity, you currently have three options. Firstly, you canmake a straightforward donation to CRY. Secondly you canrequest a Memorial Fund, which is a way of tracing your ownfinancial contribution to CRY in memory of your relative orchild. In both instances your fundraising goes directlytowards CRY development and core funding costs. Supportof this kind is essential; it provides the platform from whichthe charity is able to expand its services. Core funding cov-ers office costs, staff time, production and publicity materialsand our initiatives improve the services offered to families,old and new to CRY.

The third option is to request a Ring Fenced Memorial Fund.Ring Fenced Funding is only set in place when the CRY con-tact has a specific local community project in mind and a peri-od of 12 months has elapsed since they linked with CRY. Thislead in period allows families some much needed space andtime to get to know the Charity and decide what they wouldlike to aim for. It may be that the intention is to buy an ECGmachine for a surgery, perhaps another piece of equipment,

Other Medical Informationor a mobile screening session. The project must be agreedwith the CRY office. With a few forms signed and returned,incoming monies can then be accrued for a specific commu-nity project, with CRY deducting 25% of incoming monies,which goes towards support for CRY core costs. The projectwork with families can require a lot of support which, is why adeduction is necessary.

Ring Fenced Funding cannot be backdated. Please note thatthere is a significant difference between having a MemorialFund and a Ring Fenced Fund.

We know of no other charity that is prepared to place its sup-porters in such a position of responsibility. Please help us tokeep this option open by discussing your plans before you putthem into action. If you have a specific project in mind, let theoffice know, in writing, what you would like to do - if CRY isable to help, we do everything possible, within our guidelines,to enable the family to take their project forward. However,CRY cannot be held responsible for project work that hasbeen set in motion, without the knowledge and consent of theOffice.

Sally Reid is holding an ECG Testing session also on Saturday 28th September in Sandhurst, Berkshire.ECG Testing

Report from Steve CoxCRY Manager

After the ongoing success of thelast two years London Marathon wehave been advised to raise ourpledge up to £1250.

We know this is quite a big jumpbut it is still lower than manycharities, and with CRY being sodependent on the LondonMarathon for core funding it isimportant that we maximise itspotential.

If you know of anyone who is interestedin running please ask them to contact the CRY office.

If you would love to run, and are happy to be in costume,but do not feel you can be tied into the £1250 pledge,please call me to apply for a “concessionary” heart cos-tume place.

Genetics Conference - Genetics, Human Health & Disease.

We have sent out a copy of this upcoming conference for anyone who is interested in further infor-mation about genetics. It is for those without a medical or scientific background. The aims is to cre-ate an enjoyable, jargon-free environment in which questions can be answered. You will also beable to ask questions in advance. CRY has been invited to the conference. Come and talk toProfessor McKenna and other leaders in the field of Genetics.

Please try to help us make your fundraising efforts go further. If you are going to hold a fundraising event please contactthe CRY office for new sponsor forms with a gift aid column. If you would like to download our most updated sponsor-ship form it can be found on the website under www.c-r-y.org.uk/sponsorshipforms. This is a generic form that can beadapted for your purposes. Please ask all sponsors to give a full accurate address, to sign the form, and to tick thegift aid box. All three of these are needed for CRY to be able to claim the extra ‘Gift Aid’ of 28p on every pound. Atsome events it may not be possible to claim in this way, however, if any sponsor is willing to sign up to Gift Aid a singleform can also be downloaded off www.c-r-y.org.uk/giftaid.

If you would like an A4 or A3 copy of any of the pages or articles in thisupdate (laminated) please contact the office

There will be 8 heart costumes places available with apledge of £500. These places will only be available toCRY fundraisers and those who have run in costume overthe past two years, so please call soon before all theplaces are taken.

As soon as the next marathon poster goes to print I willplace a copy on the marathon page of the website. If youwould like copies to distribute in your local community youwill be able to download them or alternatively contact theoffice for us to send out.

One area that must be stressed is - it will only be possibleto ringfence marathon monies that exceed the pledge. I.e,if your runner were to take a Golden Bond place and raise£1,500, £250 will be able to be ringfenced for your speci-fied project. Please make sure we are aware of anyupcoming project you plan to ringfence.

Please call me if there is anything you are unsure about inregard to the Marathon.

Our home page now receives between 400 and 500 hitson the average day, and up to 2000 hits following a rais-ing awareness appeal. At a meeting last week we werethe envy of a number of people in the London Marathonwith our page coming up higher than many LondonMarathon sites. Much of this is down to the excellent workof David Gregory.

Please email us any phrases you would use when search-ing for further information in this area. With so much activitiy on the web site we hope this to bedeveloping as an excellent area for you to promote yourupcoming events. Please send in details of any annual orupdoming events you would like advertised.

We still have supplies of CRY Christmas Card Leafets for distribution. Please call the office if you would like us to sendyou some.

The past few months have been hectic to say the least. Sadly Pat has broken her hip and hasneeded some time off. Because of this, many thank you letters have not been sent. So sorry for thedelay, we have not forgotten, its just we are so dependent on Pat’s help. Once again Tony has beencalled out of retirement and is helping to cover until she is better again.

CRY Christmas Cards

For the first time last week we had a medical company askto promote themselves on our site. Although we will bekeeping the Home Page specific to CRY, this is an excel-lent marker that the work put in on the website has paid offand is gaining international credibility.

So many raising awareness articles are now coming in,you may have noticed in some cases we have put morethan one on a page. As a result the font may be quitesmall, so if you are having difficulty reading any of these,please remember the full text is on the web site for all arti-cles that are in this Update.

Gift Aid

5

London Marathon 2002/3

CRY Website

Your support will help us to fund:

. The CRY Centre for Sports

Cardiology at the British Olympic

Medical Centre

. CRY’s heart screening programme

. Medical research into Sudden

Death Syndrome and the

athlete’s heart

& help us raise awareness of

Cardiac Risk in the Young

and support those affected

CRY’s APPEAL

“Run for CRY in the Flora London Marathon”

‘Youngsters are dying needlessly.

We can and must change things.’

says Ian Botham OBE -

Honorary President of the

CRY Centre for Sports Cardiology

Every week 4 to 8 ‘apparently fit and

healthy’ young people die in the UK

of undiagnosed heart conditions

For more information go to the website www.c-r-y.org.uk or call us on 01737 363 222

CARDIAC RISK

IN THE YOUNG

Upcoming Conferences

Cardiac Risk in the YoungAll Party Parliamentary Group

Ian Botham OBE met with North Durham MP, Kevan Jones and Parliamentary colleagues on Monday 8th July to launchan All Party Parliamentary Group on Cardiac Risk in the Young at Portcullis House, Westminster.

Kevan Jones was alerted to CRY by his constituents, Jeff and Sandra Moreland, whose son, Levon, died suddenly andtragically from Wolfe Parkinson White. He has been working with CRY to bring together interested parties in Westminster

and form the group. The All Party ParliamentaryGroup will work closely with CRY to examine theissues surrounding cardiac risk in young people.At Monday’s launch Ian Botham OBE, Presidentof the CRY Centre for Sports Cardiology wasguest speaker.

This All Party Parliamentary Group provides CRYwith a crucial opportunity to get involved in theonly place that is going to influence change - thePalace of Westminster.

The Chairman of the APPG Kevan Jones(Labour) MP for North Durham explained how hegot involved.

6

Cardiac Risk in the YoungAll Party Parliamentary Group

"The reason I am here today is because I got involved in this worthy issuefrom a personal perspective through my constituents Jeff and SandraMorland whose son died suddenly. Jeff has long been a good friend of mindwhen I was a trade union official before becoming an MP.

Alison Cox had a Parliamentary Reception earlier this year when I metJulian Lewis, the MP for New Forest East, who had also been involved withAlison. Julian and I got together to try and take the awareness campaign onto Parliament and to form an All Party Group and that is why we are heretoday.

I am very pleased that Ian Botham has joined us to launch the ParliamentaryGroup. It is very much about awareness and making sure that we raiseissues that need to be raised about CRY in Parliament but also try and havethe more general awareness campaign amongst the general public."

Julian Lewis (Conservative) MP for New Forest East and Vice Chairmansaid "Like Kevan I was drawn into this as a result of a constituent coming tosee me. He had lost his wife in her late twenties. She had been as fit as aflea, having had no indication there was anything wrong with her and thensuddenly he was widowed. As he said if only they had known what the pos-sibilities were they would have planned their lives differently and not post-poned some of the things they had postponed, thinking they had all the timein the world. So it is not always sufficient to say we can take pre-emptivesteps so that a disaster won't happen. Even if a condition is such that theoutcome cannot be changed people are entitled to the knowledge of whatthey might face so that they can plan their lives accordingly. I commend thework of Alison and am delighted that Kevan has taken on the main burdenof being willing to start up and administer the Group and I am very happy togive my measure of support on behalf of my party."

Ian Botham OBE launched the group and said“Ladies and gentlemen, Julian and Kevan. I was asked to get involved withthis a little while back, by an old school friend of mine, down at Yeovil. It wasin the aftermath of a tragedy - a 7-year-old girl had died at the swimmingpool there. Her father saw what happened; otherwise it would have gonedown as another drowning. Another young lad I knew, Wilf Slack, fit andhealthy, played for England; we were told had epilepsy, and the nextmoment he had fallen down dead. The other evening I was out having din-ner with my wife, Cathy, and bumped into Terry Yorath who I have not seenin a long while now. What happened to his son is well documented. And itgoes on. This morning I rang home and my wife informed me that a postmortem is going on in the North East on a young healthy sporty teenagerwho had fallen over and died. So it is happening a lot more than we realise.

Coming from a sporting background rather than an academic backgroundand having 3 grand children, and two daughters and a son - a son who isa professional rugby player which is probably the most physically demand-ing sport there is - I would, for one, like to think there is a situation not toofar away where we have, like breast cancer units, units going round toschools and clubs. At the end of the day these should be available. It isavailable in America. You cannot play sport in America without beingscreened, or in Italy and I believe it is now happening in Australia. I believeit is something that should be done here in this country. It is no good say-ing afterwards "well this is what we should have done". I would like to seeCRY try and build up prevention. That is what it is all about to me.

I know it would be Alison's dream to have these scanning machines or mon-itoring units going around the schools and the colleges, and even the pro-fessional clubs. At the end of the day it can happen to anyone - in your-teens, in your early 20's or 30's. It doesn't matter. It is indiscriminate. Itaffects all sorts of people. Amateur sportsmen, professional sportsmen,guys playing on a pitch, dad walking the dog, and the kid at a school sportsday. It can affect anyone with children. It has been swept under the carpetfor too long. There have been too many excuses over the years.

I think it needs to be addressed and I am speaking not only as a sportsmanbut as a parent and grandparent. That is all I wanted to say on the subjectbecause you can sit around and talk about these things forever but I think itreally needs action rather than a lot of gossip. 7

My London MarathonBy Cheryl Seamen

My twin sister Paula and I werevery keen runners when wewere younger, competing atschool events and then withour club the WorthingHarriers. I ran the 800m andthe 1500m when I wasyounger and moved on to the

400m hurdles when I was asenior competing at county

level. I had always said that oneday I would run the London Marathon andwatched in awe every year at the people who hadalready taken up the challenge. I never thought forone moment however that I would be running itunder such emotional circumstances.

I decided to run for CRY after my younger brotherBen died from Sudden Adult Death Syndrome inSeptember 2001 just days after I was married.Paula found out about thecharity on the web and enteredand when she first told me Iwas ready to offer my supportin helping her to train, but thenone night I thought I can't letPaula go this alone. We'vealways done everything togeth-er so I got my charity place inJanuary and started to train.

It was long and hard. I hadnever run this far before. The training left me tiredand sore and it always seemed to rain when I wentout on those dark cold nights!

Everything seemed to be going to plan when Icame down with a mystery virus with less than amonth to go. I was on antibiotics and couldn't eatproperly, I lost 10lbs and felt awful. Everybodytried to talk me out of running and I had my doubtstoo but we had raised so much through sponsormoney that I felt I couldn't let people down.

Finally I said my goodbyes to my husband Kevinand daughter Jasmine and climbed on a train onSaturday morning with Paula and our huge redsmiling hearts. We travelled to London and peopledidn't stop asking us about the hearts and wishingus good luck and complete strangers sayingthey'd look out for us on the TV.

We booked into the hotel and registered and triedto relax but I was so tired from my illness that iwent to bed early only to lie awake for hours wor-rying. The morning arrived and we went down tobreakfast and forced ourselves to eat something.8

Then before we knew it we were on our way withthe other CRY runners to the start.

I was very nervous now as even the walk up thehill to the start seemed to leave me breathlessbut I told myself it was just because we werehaving to carry all our bags and the costumes.

We lined up and everyone was really chattingwith nervous excitement and the gun went offand everybody cheered. We slowly edged ourway to the start and some people were evenbreaking into a jog but I refused to run any fur-ther than necessary and we found ourselvesvery near the back of the whole race! Finallyafter 20 minutes we went through the line andcheered we had started!

I jogged the first mile slowly trying to take every-thing in and it seemed to come really quickly

and we all cheered as we wentthrough, I thought this is goingto be exhausting if we have toget this excited at every mile,when Paula turned to me andsaid that was a 12 minute mile,too slow and did I mind if shewent off without me. This was ascary thought but I didn't wantto hold her back, she was muchfitter than me and wanted to runa decent time. I just wanted to

get round in one piece so off she went. My raceplan was to start slow and get slower!

The first time I saw my family was at the CuttySark and it was very emotional. I wasn't expect-ing them here because we knew it would bebusy so it was really great. I went over andhugged and kissed them, they were all cryingand cheering me on and I thought I must lookterrible so I kept saying I was alright just slow. Iasked about Paula as well because she was toofar ahead for me to see now. They said theywould try and see me again before the end andI said “yes please; because i might not make itto the end!”

I carried on jogging and walking and drinkinglots and also using the loo lots which I thoughtmust be a good sign. I walked up the hills andjogged down them and if I felt like I needed a bitof support I ran along the edge of the roadwhere lots of children were holding their handsout to slap, or giving out sweets. The crowdswere great cheering me along at this stage andcalling out my name although I was called an

apple, cherry and a tomato instead of a heartwhich I kept correcting until I found it too tiring andjust smiled or waved back.

When I hit about 12 miles I thought well this is thefurthest I have ever run and everything from hereis a bonus. The pace was very slow by now andmy legs were very sore so I walked much moreand only jogged when I felt I could, which wasn'tvery often. It was at this stage that I realised justhow much training you really need to do to run themarathon and I was beginning to have my doubtsabout finishing at all.

In fact I told myself at about 15 miles that I woulddrop out at the very next first aid station and sayhow sorry I was to everyone but I just couldn't doit. It was just too painful. Then at 18 miles I sawall my family again! They were cheering me onand saying how I looked so fresh so I didn't havethe heart to tell them all about how I didn't want togo on. My dad walked along beside me andoffered to walk the rest of the way with me but isaid I'd be ok and that I’d see them all at the end.It was very emotional and I had to fight back thetears, I just didn't have the energy to cry right now.The next mile was the longest of the whole raceand the pain was almost unbearable but I kepttelling myself that this was nothing compared tothe pain of losing Ben and I had to finish this forhim and for CRY.

When I got to 20 miles I said to myself it's alldownhill from now on. I started counting down the

miles to theend that in e v e rthought i'dsee. I walkedwith twoother peopleand joined inwith theirm o a n i n gabout achesand pains,then Istopped for am a s s a g e .The guy whodid it for mepromised thathe would getme to the endwith no morepain. He lied!

As I made my way alongthe last 3 miles the crowdscheered us on but some ofthem were so encouragingthat I realised how awful imust have looked bynow. I was alsonow having towalk on the pave-ments going upand down thekerbs becausethe roads hadb e e nreopened tothe traffic, itmade it evenharder onmy legs. Iwas alsofighting my way through the crowds of peoplewho had seen their family and friends finishalready and were now going home! Some ofthem were amazed that I was still going, it hadtaken me so long and a photographer steppedout and took a photo of me and asked me if I wasthe very last person! I started to panic then think-ing that all the officials would have gone homeand I wouldn't even get my chance to cross theline and kiss my medal as it was placed aroundmy neck. It didn't speed me up though I was juststuck at this pace now but even more deter-mined to finish.

As the last 300m or so stretched in front of me isaw my family again. My husband hopped overthe barrier and walked the rest of the way in withme trying to encourage me to break into a runbut I couldn't, my legs were too sore and I didn'twant to risk collapsing altogether and not finish-ing. Then finally I could see the finish line andjust kept going straight ahead. I crossed the lineand found that i was too tired to be emotionalnow, I just felt bad that my family had waited solong for me. I grabbed a sandwich and forced myself to eat, after all it had been nearly 7 hourssince I started.I took it all very easy walking backto the tube station stopping and resting but Iwouldn't sit down because I knew I couldn't getup again. When we all finally got home I sat inthe bath and hoped my legs would feel better thenext day but they didn't. In fact I couldn't walk fora few days but now I'm fully recovered and i'llalways remember my marathon day and the mix-ture of emotions I felt when I completed it.

My London MarathonBy Cheryl Seamen

Cheryl’s ssister PPaula iin hherheart ccostume 9

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W C O G A E L I C S I H Z R T Q C R X B N E K O L E W I S T D B F N A S P V I O Y R S H N C A N H U M I L Y T M L T A Y H D I N I J X M R G T E U S C F E R R Y W S E A L R W P I J J Q F V R E N R S D

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Can you find these words?

HEBRIDESISLESEA

LEWISGAELICHARRISFERRY

ATLANTICWINDY

IITT''SS OONNLLYY TTHHEE SSTTOORRMM

""WWhhaatt''ss tthhaatt ccrreeaattuurree tthhaatt rraattttlleess tthhee rrooooff??""""HHuusshh,, iitt''ss oonnllyy tthhee ssttoorrmm..""

""WWhhaatt''ss bblloowwiinngg tthhee ttiilleess aanndd tthhee bbrraanncchheess ooffff??""""HHuusshh,, iitt''ss oonnllyy tthhee ssttoorrmm..""

""WWhhaatt''ss rriiddiinngg tthhee sskkyy lliikkee aa wwiilldd wwhhiittee hhoorrssee,,FFllaasshhiinngg iittss tteeeetthh aanndd ssttaammppiinngg iittss hhoooovveess??""

""HHuusshh,, mmyy ddeeaarr,, iittss oonnllyy tthhee ssttoorrmm,,RRaacciinngg tthhee ddaarrkknneessss ttiillll iitt ccaattcchheess tthhee ddaawwnn..

HHuusshh,, mmyy ddeeaarr,, iitt''ss oonnllyy tthhee ssttoorrmm,,WWhheenn yyoouu wwaakkee iinn tthhee mmoorrnniinngg,, iitt wwiillll bbee ggoonnee""..

bbyy DDaavviidd GGrreeyyggoooossee

Who’s made a house out of one of the CRY heart costumes ?.............

HHooww ddiidd yyoouu ffiinndd oouutt aabboouutt CCRRYY??

I was a Head Teacher in a 100 pupil school in Bayble in the Isle of Lewis. During the Easter Holidays in 1997, Iwas told that one of my teachers had died in her sleep. Joanne Fotheringham had been with us for 18 monthsand taught 24 Primary 4 and 5 pupils. We were all devastated by the news. She was so well liked and respect-ed in the community that we raised money for the pupils to build a memorial garden to her. This was when I gotto know Mrs Alex and Mr Fraser Fotheringham very well. They wanted to save other parents going through thesame traumatic experience that they had had. They wanted to screen all the teenagers in the Western Isles and inWestern Ross-shire where Joanne was born and brought up. Mrs Fotheringham had informal discussions start-ing in March 1999 with Health Officials and in January 2000 CRY put in a formal application to the HighlandHealth Board and to the Western Isles Health Board for approval to carry out an ECG survey of teenagers in the15 - 18 age range.

WWhhyy ddoo yyoouu wwaanntt ttoo hheellpp CCRRYY??

It was at this stage that I got involved with CRY as most people in England really have no idea what the WesternIsles looks like. There are 5 main Islands and the total population is about 25,000 people. Most people stay inthe Isle of Lewis which has two schools catering for 15 - 18 year olds as well as a Further Education College.To drive from the Isle of Barra in the South to the north end of Lewis will take you 6 hours driving and 2 one hourferry journeys. CRY originally hoped to do all teenagers in all the Islands but when Mrs Alison Cox came toStornoway in October 2001, she soon realised that we would have to restrict ourselves to Lewis to begin with.

WWhhaatt iiss yyoouurr jjoobb ffoorr CCRRYY??

It was during this visit that I agreed to do all the administration for CRY on the island.

HHooww lloonngg hhaavvee yyoouu bbeeeenn hheellppiinngg CCRRYY??

We hoped to start screening in mid-April in 2002. This suited me very well as I am 65 this year and would haveto retire from my teaching post at Easter time.

CCoouulldd yyoouu pplleeaassee eexxppllaaiinn tthhee eetthhiiccaall aapppprroovvaall iinn tthhee WWeesstteerrnn IIsslleess??

It is CRY's policy to work in conjunction with Medical Authorities when dealing with ECG screenings. There are19 different General Practitioners in Lewis as well as the Doctors in the main Western Isles Hospital. All thesepeople had to agree with the project. The Local Research Ethics Committee have to give their approval beforeany medical research project can go ahead. This took from January 2000 to January 2001 before they werehappy with the answers given to all the questions they raised.

HHooww mmaannyy ssttuuddeennttss hhaavvee bbeeeenn tteesstteedd iinn tthhee WWeesstteerrnnIIsslleess ssoo ffaarr??

I distributed 716 invitations to teenagers of which 315 accept-ed. Due to various circumstances some could not come dur-ing the period of the screening with the result that 289 ECGprintouts were sent to St George's Hospital in London forreview. 22 people were recalled for further testing which wasmuch higher than anticipated. Dr Sharma has arranged forfour to have further testing done by Dr Vishu at the WesternIsles Hospital while one will have to go to a mainland hospitalfor treatment.

WWhhaatt aarree yyoouurr hhooppeess ffoorr CCRRYY iinn tthhee WWeesstteerrnn IIsslleess iinn tthhee nneeaarr ffuuttuurree??

Currently we are trying to raise enough funding to carry out a screening in the other islands, to do a further one inLewis and to do one in Ullapool. I am very hopeful that all of these will take place.

Julie’s Interview with George Moody - Volunteer ScreeningAdministrator for theWestern Isles ECGTesting Pilot Study

‘Currently we are trying to raiseenough funding to carry out ascreening in the other islands,

to do a further one in Lewisand to do one in Ullapool. I am

very hopeful that all of thesewill take place.’

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The Halfway HousesPrimarySchool collect-ed £200 attheir perform-ances by thechildren ofSnow White.

Mrs Frances Presley arrangeda visit to the WimbledonTennis Championships forsome pupils at the BlossonHouse School. After a fantas-tic day a donation of £250was made to CRY.

Miss C I Lush, the formtutor of 9E sent in acheque for £68 after heryear group at The EMM-BROOK SCHOOL inWokingham,Berkshireraised somemoney by sell-ing badges.

The members of WOW (Weymouth Operatic Workshop), ayouth Musical Theatre group donated £300 to the Laura Moss

Fund. A bucket collectionwas taken at the end ofeach performance of ‘WestSide Story’ produced recent-ly by the group at theWeymouth Pavillion Theatre.

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West Leeds HighSchool collected £350in memory ofChristopher Rennard

Laura

Pam Spender attendedTonyrefail Junior Schooland received a cheque inthe sum of £400 drawnin favour of CRY.

In memory of Jamie BucknellLoren Grosvenor had a non-uniformday at Lakeside County PrimarySchool in York in honour of Jamieand managed to raise £194. Sheorganised it to coincide with Jamie’sbirthday and was very proud that allthe children took part in the event.Her Head Teacher, Mrs Latham,thought it was a brilliant idea andallowed Loren to go ahead with it.

In memory of Laura Moss

In memory of Christopher Rennard

Evy Sayer held a refreshment stop onthe BERGH-APTON SCULPTURETRAIL, held earlier on this year, andraised an incredible £1585 for Kevin’sMemorial Fund. ‘I have never cooked somany cakes, sausage rolls andcornish pasties in my life’, she

said.

This was the third biennial Trailheld in South Norfolk and named

Kairos after the youngest son of Zeus:the god of opportunity, and of personaltime.

In memory of Kevin Sayer

Our Fundraisers

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Julie Hatton forwarded a cheque for £222, £200 of this was raised by raffling aBoro football shirt that was kindly donated by Mr Michael Greenup.

Halliburton KBR Production services is an engineering and con-struction company to the oil and gas petrochemical industry,providing most of the oil and gas companies currently operatingin the North Sea. With safety being paramount they introduceda ‘safety incentive’ scheme in which, at the end of each month,members of the offshore construction crew are given anamount of money to donate to their chosen charities.

In July, the committee decided that Leon Manners ‘Screening Fund’should receive a cheque for £1000.

The Beacon Public House held a casino charitynight in memory of Leon and raised £115.

Tees Valley Leisure in Middlesborough gave a great raffle prize of a year’s mem-bership for their gym. This was valued at £145 and managed to raise £252through the sale of raffle tickets.

Not forgeting all the pennies from the Collection Boxes!!!

In memory of Leon Manners

Our Fundraisers

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The Conset Theatre Workshop JuniorGroup in County Durham presented ‘TheMelody Lingers On’ , The producer,Margaret Darroch, made a donation to CRYof £300 through the sale of programmes.Each programme had a CRY leaflet in it andover 500 were handed out on the night.Maralyn and Kenny Bowen joined them onthe evening and all thoroughly enjoyed thefantastic show.

This was the 10th birthday production andheld at the local EMPIRE theatre for 3nights. Next year’s show will be ‘Oh What aLovely War’.

Representatives of Elmham Surgery in Norfolkreceiving the generous donation from CRY of anECG machine. l to r Penny Loauch NursePractitioner, Dr Simon Hibberd and Dr SimonCarroll.’The machine is the pride of the place inthe Nursing department and everyone says it isthe best machine that we have!’

Prior to this year’s WimbledonChampionships, Julian Cox, raffledhis pair of Centre Court tickets atthe stockbrocking companySeymour Pierce Ellis and raised£780 forCRY. Lastyear Julianraffled histickets andraised over£1000.

Blackburn andDarwen Districtof Freemasonsawarded £400 toNeil WickersMemorial Fundfor Cardiac Riskin the Young

In memory of Neil Wickers

Following a Fun Day at the Shropshire Lad Pub, Lyne Keefe send in £380 inmemory of her brother Patrick.

In memory of Patrick Keefe

Our Fundraisers

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Mr and Mrs Markham sent in a cheque for £500 in memoryof their son who died aged 30 of a heart attack.

In memory of Christopher John Markham

Last year a bike was donated and raffled by Maralyn andKenny Bowen. The lady who won it re-donated it back

to CRY. Paul Bowen heard of a local lad who hadgone through several operations for a brain tumour,so he had a whip round at his work CampbellMachine Co. for the bike and donated it to the boy

giving the £105 raised to his brother Ian’s MemorialFund at CRY. The bike has now found a new home!

In memory of Ian Bowen

We were exceptionally lucky this year weather wise inglorious Worcestershire. The licensee's Kath &EddieRobinson, Julia & Alan, the licensee's daughter & sonin law were fantastic and with our son in law TonyBarker, the organizer, raised a tremendous £1050,easily beating our previous high of £700.

Our thanks also go to Rob on the Bar- B-Que.Lorraine with the Raffle & all the helpers.

Mothers Benita Davies (Paul Davies 15), Diane Tolley (Robert Poyser 16) & widowJulie Chipperfield- Carr with dad Ken (Eamonn Chipperfield-Carr 34) came alongto offer their support to Gill & myself along with our eldest granddaughterCatherine 9

The competion winners were Singles winner Pete Hopkins. Runner up Andy Lancett. Doubles winners PeteHopkins & Andy Lancett & runners up John Head & Sam Davies. Trophy's donat-ed by Mr. & Mrs. Gunn in memory of their son & step son Gary Astle 20

The winning balloon was found by Mary Jarass. Mary requested the £25 prizemoney went to a Heart Charity - well done CRY!

The buyer of the balloon was Mrs Carol Lancett, mother of the winning bowls player.

Roy Ball

The Weary Traveller Annual Bowling Tournament 2002

Catherine

Our Fundraisers

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Dean Bowler had a place in this year’s London Marathon and wanted to runfor CRY! He had run before, but found it hard to raise more than £400.However, this year he was really chuffed to get over double his last effortraising a fantastic £850.

On the 14th May Doreen Harley andAnne Wall visited the Rotary Club ofNestor to speak about the work ofCRY. Anne had been in touch withthem earlier to see if they would support her work in Nestor arising from the tragic loss ofher son Craig. After the Club Council and Business Meeting they were unanimous in theirpraise of the joint presentation and in an expression of gratitude for the awareness theywere given about Sudden Death Syndrome they agreed to donate £200 to CRY’s work,with a substantial portion of this going to Anne’s efforts in Nestor.

The North West Ward Liberal Club in Leeds held a charitynight on 3rd July 2002. Ann Geldard, the Club Secretary,sent in a cheque for £600 which was raised on the night tohelp fund CRY’s research programme.

Suzanne Taylor died 25th October 1999 of ARVC. Sincethen her friends and colleagues at the Royal MailChester have been incredibly supportive. Most recentlythey organised a charity cricket match which took placeon Monday 3rd June - or almost took place. The samehappened as last year - it was rain - stop - play!Friends and supporters still turned up and all movedon to a nearby pub where a raffle was drawn for-prizes which had mostly been donated by manage-ment. The event raised £355 in memory of Suzanne.

In memory of Suzanne Taylor

Various branches of the Amalgamated Engineering andElectrical Union (AEEU) have made further donations toLevon’s fund of £350. The Philips Durham andWashington Amicus AEEU Branches each donated£100 to Levon’s Fund.

In memory of Levon Morland

A charitylunch held inthe Parish ofSt. ClementScarcroftRoad, York

raised £130 for CRY.

Ben Dunning, with the help of somefriends, organised a Boat Party on theRiver Thames. £449.47 was raised froma portion of the proceeds generatedfrom the ticket sales. Ben’s sister’sboyfriend died of an undetectedheart problem early this year.

Andy Storey ran the London Marathon forDavid Staff and Neil Wickers MemorialFund and raised £492. This was his firstMarathon. He was struggling near the enduntil he was ‘picked’ up by a gaggle ofCRY runners in hearts who helped him tothe finish. He’s the odd one out in thephoto on the website!

Our Fundraisers

Louise O Brian sent in £105 raised in memory of ChristopherRennard at a charity football match at the Junction Pub in BeestonLeeds.

Amanda Coxfrom Aberdeendid a para-chute jump forCRY andraised £110.

Michael Jones completed a 20mile charity walk for CRY andraised £200.

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Mrs Patricia Dean lost hereldest son Michael on 23rdMay 1993 aged 22 yearsfollowing a cardiac arrest.After reading the CRY litera-ture she sent in a generous cheque of £100 saying ‘reading thestories of other readers was like read-ing Michael’s story.’

Shiela Clarkeheld a tabletopsale at a sum-mer fair andraised £100 forCRY

Patrick Fearon died sud-denly in April at the ageof 22. He was a studentat Reading University.£346 was received indonations at his funeralto go to CRY.

The Colchester School of Danceheld their annualDance SchoolShow’s raffle inmemory of a closefriend who diedrecently and raised£114 for CRY

Mary Abraham helda ‘strawbery tea’day and raised anincredible £118.90in memory of herson Philip

There is a very small hamletnear Darwen and when any-one gets married in the vil-lage the road is blocked offand the groom has to pay£10 to the Landlord at theRock public house (to gether past the tractors thatblock the road. Many thanksto the landlord for givinghis proceeds to CRY.

In memory of Lewis Marsh

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In September 2001, Sandie Vallance, a member of the LewisMarsh Fund Team was diagnosed with breast cancer. Shewas operated on and then given both chemotherapy andradiotherapy. During the chemotherapy her hair beganto fall out. She was advised to cut her hair short but

decided to go the whole hog and have her hairshaved off. Her friends wanted to show their sup-port for her immense courage over her illness anddecided to sponsor her head shaving. And that ishow she raised the £1165.

Sandie has continued to support and help with the fundeven though she has been unwell and we all wish her aspeedy recovery.

Robert Corby (left), a friend of Jill Marsh’s, also had all his hair cut off for theFund.

£994 was donated in memory of the father of Mr Giles and the wife of MrWeston, both friends of Gill Marsh.

The Guildford School ofActing held their annualconcert in memory ofLewis and as usual thiswas superbly present-ed and supported rais-ing a wonderful £3,341for Lewis’ Fund. As aresult the final paymentwas made to securethe new CRY AcusonCypress echocardio-gram machine in mem-ory of Lewis, which ishoused at the CRY Centre for Sports Cardiology and cost £30,000.

Having our own portable echocardiogram machine will enable CRY's mobilescreening programe to move forward to the next level. For the first time wehave been able to take the ECHO onto an aeroplane which made it possible to

do all echo tests for ourWestern Isles screeninginitiative on the island.This saved everyone animmense amount of trav-el time and hugelyhelped CRY's screeningteam. Our very specialthanks to Lewis' familyand friends and ofcourse to Sally Reid whohas worked so hard toprogress CRY's screen-ing initiatives.

The GGuildford SSchool oof AActing aannual cconcert in mmemory oof LLewis

The CCypress bbeing uused bby JJohn PPither aand DDrSam FFiroozi aat aa CCRY sscreening

4 members of the Frinton “41club” cycled from Frinton - York in Julyto raise money for CRY and Prostate Cancer Research. Having lost3 members of their team within 6 months to heart attacks and can-cer problems and with another member suffering from prostate can-cer, these intrepid 4 decided to do something positive.

Averaging 44 miles a daythey managed to findgood watering holes andfeeding stations en routeand with a backup teamof wives and friends -regular supplies of cleanclothes!! All in all a bril-liant effort and £3000raised, £1500 to CRY and£1500 to Prostate Cancerresearch.Well done guys.

Caroline Gard

In memory of Andy Gard

The Rotary Club once again donated a fantastic cheque to Andy’s memorial fund. Inall they have now given £2,500. 19

In memory of Jamie Bucknell

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On the 12th of November 2001 Jamie collapsedand died while in an English lesson at school.

After Jamie’s death had been announcedhis family received many letters andcards one of which was from MarjorieScott informing them of the work carriedout by CRY. Since then Jamie’s familyand friends have been so supportive ofCRY’s aims.

On July 13th 2002 Julie Lister (Jamie’sAuntie) and family held a

‘Family Music Evening’ not justto raise money but also for everyone to have afun and enjoyable evening. ‘Believe me they allhad a fantastic night, so much so that everyone onleaving asked when the next night was going to be!’£500 was raised on the night. Julie’s husband is amusician and he arranged for the band to play alongwith a 16 year old local girl to sing with them. The local club

gave them the ballroom free of charge and alocal DJ also offered his services

The incredibly generous ‘Bar Staff Lea Club’made further donations of their tips on their‘Family Fun Night’

The ‘Normandy Band Kings Division’ with spe-cial guest vocalist KatyMcClelland and Second ImageDiscos were the guest band forthe Family Fun Evening andraised a further £500.

Their talent was fantastic and allwho were there were eternallygrateful for the support they weregiven.

Debbie Bucknell keeps sending in cheques for the ‘Fun Run’collected by friends £592.50, £317.50, £286, £140, £400.30,£279....... Mark Lister raised £100. We hope people are notstill running!

After the great support of her local pub ‘The Ship Inn’ Debbiesent in a further £162 from a Collection Box, as well as manyother collections in her area including the local post office inStrensall.

Paul Boyne recently sent in one cheque for £350 as well as a

Some of the more adventureousdads wanting to have fun. Move over Village People

DJ John who worked very hard

The stage with many balloonsEach table had a balloon on and one

of CRY’s leaflets

Just some of the party animalswho wanted to have fun

Band in the background withBrendan Needham the vocalist

singing his heart out, he was verygood.

Louise (left), Jamies cousin,dancing the night away

Jean, Jamie’s Nana, whohelped get the room ready

KatyMcClelland

Northern Lights

CAF cheque to add a further £250 under the Lattice FoundationMatched Giving Scheme. All in support of Jamie’s Fund. This wasraised by the Your Groves A.R.L.F.C (of which Paul is a committeemember) and Acorn A.R.F.L. Sports and Social Club. Many of themembers are friends of the Bucknell family and have been touched by

his tragic death.

The ‘have a heart appeal’ raised well over £5000 of which £1900 was raised from RobertWilkinson Primary School holding a sponsored skip. The Strensal Guides held a talentcontest and raised £104.10.

Marcel and Emily Neilson, friends of the Bucknell family held a candle party and raised£780 for Jamie’s Memorial Fund.

Jackie Jefferson recently send in a cheque for £120 raised for the CRY Appeal by thefriends and neighbours of Meadowfields Drive after their Jubilee Party.

Sandra and Pete with other family friends held a Football Tournament in memory ofJamie and raised £610.

The Huntington and District Working Men’s Club held raffles in memory of Jamie andraised £550 for his fund.

In memory of Jamie Bucknell

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Our local newspaper ‘The Eastbourne Herald’ held a special charity JubileeConcert on June 2nd at the Congress Theatre, Eastbourne with‘CRY’ being one of the nominated local charities to benefitdirectly from the proceeds.

The concert included performances by many youth andother organisations in the Eastbourne area. We wereable to both place and man a large ‘CRY’ informationstand in a prominent position in the entrance foyer aswell as getting coverage in the concert’s souvenir pro-gramme.

It was a very lively and well supoprted evening held dur-ing the ‘Jubilee’ week-end and as one of the beneficiarieswe received a cheque for £1000 towards our fundraisingin memory of our son Jeremy who died suddenly fromARVC in 1995.

We have already managed to fund two ‘CRY ECGs both in the local hospital andin a local doctor’s surgery and are now fundraising towards supplying a ‘defibrilla-tor’ for use within the same GP practice

Jenny Cole

In memory of Jeremy Cole

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In memory of David Pollard

David passed away on January the sixth this year aged eighteen. David was sixfeet five inches tall and weighed thirteen stone, plus he was in extremely good

health, visiting the gym three times a week with myself. David was lead guitaristfor a very talented band called, Not So Pretty, who were on the verge of per-forming live and were in the process of organising venues.

David worked as a junior shopfitting supervisor; he was due to receive acompany car next year. Early in the afternoon of January the sixth, I hadspoken to David, he was strumming his guitar in his bedroom, the time wasaround twelve thirty. I mentioned that I had cleaned his car ready for workthe next day. My wife Susan then spoke to David about inviting one of hisfriends around for Sunday lunch. David was his cheerful and normal self,this was around twelve fifty. I was outside cleaning my own car whenSusan called me, I could tell by the tone of her voice that something wasdreadfully wrong. I ran upstairs to David's room noticing three lunches ready

to be served on the kitchen worktop. David was lying on the floor making arasping noise, we found out later from the pathologist that this was the respi-

ratory system still working like a reflex action, even though David's heart hadstopped. The paramedics arrived and tried to restart the heart but it was too

late, David had apparently died at one p.m. We also later found out, that Davidwas texting one of his friends at around twelve fifty five, apparently feeling no ill

effects.

The cause of death was noted on the post mortem as Cardiac Arrhythmia we were told that there is a cer-tain amount of speculation with this diagnosis, as the body's electrical system is not present after death. Ineffect we were told that due to the lack of any major defects there could be no other possible cause. Thisuncertainty caused and still causes my wife and I great distress as we still do not have a tangible reason forour devastating loss.David had never shownany symptoms whatsoev-er, apart from the previousThursday when he com-plained of a strong heart-beat, however, this did notstop him going to the pubwith friends and by Friday,David said it was back tonormal.

My wife and I were told byour GP and thePathologist that David didnot die from any known condition, likefor example, Long QT, we were alsotold that David's condition would nothave been picked up by an E.C.G. anddue to the short time from David show-ing any symptoms (Thursday evening)to his death (Sunday afternoon) even ifDavid had visited his GP there wouldhave been no time to prevent the finaloutcome. David was our only child, weabsolutely idolised him. I hope themoney raised goes some way to pre-venting this kind of this happening toother parents.Ross and Susan Pollard

There have been many fundraisingevents held in memory of David includ-ing £1052 raised at a disco and theIlkeston Fire Station’s car wash.

Through a close friend of the family, atop England and Liverpool footballplayer, also donated his fee of £250 toCRY after appearing on ‘Question ofSport’ 23

On the 8th and 9th of June, the CRY van headed up to Darwen for a mobile screening in memory of DavidStaff and Neil Wickers . We were delighted that Sanjay was able to attend,

and made sure we treated him appropriately with Kit Kats! The venuewas fantastic at the Darwen Access Point Employment,Training andCareers Advice, and we even had a guest appearance from Kennyin a Heart (he always dresses like that!). The screening was heldon the Saturday, with two echo technicians Dave Oxborough andMike Morre, with Adelle taking ECG’s. Having two echos helpedus to keep Sanjay busy, and everyone on their toes! Many thanksto all who volunteered on the day including Alex, the access point

caretaker who was so helpful in setting up, Brenda Poole,Jaqueline and John Squelch, Doreen Wickers, Marie Yates, Patricia

Rutter, Kathleen Taylor, and Angela Wilson and of course Bill & IreeneWickers and Granville & Susan Staff in setting up the event.

Mobile Screening in memory of David Staff and Neil Wickers

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Western Isles ScreeningIn memory of Joanne Fotheringham

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On the 6th September, Sanjay, Steve and Pauline, Sanjay’s Echo Technicianfrom Lewisham, flew up to the Western Isles to conclude our first ethicallyapproved school based ECG Testing programme. George Moodyarranged for a bus, donated locally, for the weekend to transport us andshow us some of the sights on Sunday (very much a day of rest on theWestern Isles) He picked us up from the Airport on Friday night andtook us straight to our venue the Dentistry Clinic in Nicholson School. Itwas great that Alex Fotheringham was able to make it over from themainland for the weekend. It was a fantastic weekend and we weretreated to wonderful island hospitality. Sanjay managed to see everyonewith a little time left over to even see some of the Island’s incrediblecoastline.

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© Peta Bee/The Sunday Times, 18th August 2002

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RAISING AWARENESS

Printed with Permission of the Flintshire Chronicle

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RAISING AWARENESS

Printed with Permission the Southampton Daily Echo

RAISING AWARENESS

Printed with Permission of the Northampton Evening Telegraph

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BULLETIN BOARD

Before you embark on any commitmentto project funding please call JAN SMITHfor details of forms required to regulatethis. This should be a great timesaver,

as you need to check your information iscorrect before proceeding. The definitive

guide to CRY projects for ring fencedfunding is now available from Jan.

Zip Wires, High Ropes Courses and Raft Building - you can betaking part in all these exhilarating activities and more as part of a uniquetwo-day residential adventure Challenge being promoted by CRY.

CRY is currently looking for teams of eight people to take part in this nationwide Team Challenge which is taking place at purpose-built Outward Bound centres set in idyllic locations across the UK.

Teams take on a variety of mental and physical challenges over a two-dayperiod which is designed to promote teamwork within an enjoyable outdoorsenvironment in the Lake district, North Wales or the Scottish Highlands.

No previous experience is needed as all training is provided and if your teamraises the minimum sponsorship level of £2,800 for CRY then all your teammembers get to take part for free!

If you would like more information please contact the office.

MOBILE PHONES- Recycle and donate to

CRY

We now raise money by recy-cling old mobile phones. If youare in contact with a companywho is replacing their mobile

phones, or simply have accessto a large number (more than10), please contact the office

and we will help you dispose ofthem while benefiting CRY.

(Phones should include batteriesand chargers)

E MAIL CONTACTSCRY head office - cry@c-r-y.org.ukKeeley Ashley - keeley@silentwhistle.co.ukRoy & Gill Ball - royandgillball@selcroftavenue.freeserve.co.ukNigel & Jenny Cole - nigel1949@hotmail.comJo & Charlie Cross - chascross@compuserve.comCaroline Gard - carolinegard@hotmail.comAlan & Gloria Moss - mosses@exite.co.ukTim & Sylvia Salisbury - thesalisburys@cwctv.netGranville Staff (work) - granville.staff@darwen.deconorth.comJan Smith - jsmith@sghms.ac.ukAdrian Woodhead - adrian@woodhead88.freeserve.co.ukDoreen Harley - doreen@harley1948.fsnet.co.ukSally Reid - sally.reid@virgin.net

More and more peopleare using email

as a fast and convenient way of

communication.If you would like

to be put on our CRYlist, please email us with

your details.

Give as You Earn

If you make regular donations toCRY you may be interested indonating through your payroll. Thisenables you to make a pre taxdonation with a 10% bonus addedby the government if made through‘Give as you Earn’

B L A Z E

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Blaze is an organisation best known for their Firewalking Experience. If you are interested insomething completely different- like learning how to walk barefoot across broken glass, experiencebeing a fall guy or bodyguard or ‘simply’? surviving the call of the wild for 5 days and nights - youmay finally have found the place to be. For more information on these events either contact theoffice or go to their website www.blazefirewalking.com. There are a number of different events onoffer to those who are wishing to fundraise for CRY.

Are yyou iinterestead iin rrunning tthis yyears London MMarathon? PPlease ccontact SSteve iin tthe CCRY

office ffor hhow tto aapply.

Would you like laminated colour copies of any of thepages in the brochure? Please contact the office, stating

quantity and which page.If you would like CRY to

consider any item for Bulletin Board please faxdetails (including your item) through to Steve on

01737 363444

Please bear in mind when organising fundraisings that itwould be great if you could take photos of your great day.It would also be extremely useful if, when you write in tothe office, that you clearly state how much was raised,

and by whom.

BULLETIN BOARD

RING FENCED FUNDRAISING

Please remember that unless you notify usand get the

necessary documentation and confirmationfrom the office for “ring fenced” fundraisingbefore you start a fundraising venture, allfunds raised will be used for CRY CoreFunding. Retrospective “ring fencing” is

unfortunately just not possible. CRY cannotbe responsible for any “ring fenced”

fundraising unless it has been authorised.

“Ring fenced” fundraising is for specific proj-ects only. After the successful conclusion of

the authorised project, fundraising will bedirected again to CRY Core Funding.

Because of the appeal of certain projects,some will have a waiting list

Please give me acall or email me ifyou have any sug-gestions on how youwould like the con-tent of your futurefundraising pages tobe laid out .

Best wishesSteve Cox 53

ChristmasCards

We aare llooking ffor hhelp iin ddistributing oourChristmas CCards aand CChristmas CCard lleaflet.

If vvolunteers ccould aapproach llocal bbusiness ttosee iif tthey ccan aadopt CCRY.

We aare aalso llooking ffor aa ffew vvolunteers to ggive uup hhalf dday aa wweek ffrom

September - DDecember tto wwork iin ttheir llocal ‘Cards 44 GGood CCauses’ sshop iin 22003.

Last month our volunteer family co-ordina-tor Pat Ure broke her hip bone while outplaying cricket. Although she is recoveringwell, this will meanthere is a delay inthank you lettersbeing sent out. If youwould like to send hera card please send itto the CRY office andwe will forward it onto her.

If you would like to go to theupcoming SADS conference hostedby SADS UK on October 12/13thplease apply to the CRY office forfurther information

Pat wwith aa MMarine aat ttheCRY CCommando CChallenge