Cultural Hospice and Palliative Report

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    Cultural Competence in

    Hospice and Palliative care

    GROUP 2B**Albano Nicole **Lucas Allan**De Rosas Jency Ann **Rabano Darlen Joy**Javier Jean **Yoma Paolo

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    Cultural Competence

    *Refers to a dynamic, continuousprocess of awareness, knowledge, skill,interaction and sensitivity.

    *Seeking to become more culturallycompetent requires learning in :

    - Attitudes - Beliefs- Values - Cognitive or

    intellectual- Feelings - Critical thinking- Psychomotor or behavioural domains

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    Cultural competence is an on going

    process, not an end point

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    identify 4 components necessary inpursuing

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    Cultural Awareness

    * Is their understanding of the differences betweenthemselves and people

    from other countries or other backgrounds,

    especially differences in attitudes and values

    *Begins with an examination of ones ownheritage, familys practices, experience andreligious or spiritual beliefs.

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    *Each member of the hospice and palliative

    care team brings his/her cultural andphilosophical views, education, religion,spirituality, and life experience to the care

    of the patient and family.

    *Assessing ones own attitudes, beliefs and

    practices surrounding the end of lifeprovides and important cultural awareness

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    Cultural Knowledge

    *Since Culture is the prevailing norms, practices, belief,values etc., knowledge about these can be described asCultural knowledge.

    *Serve as a guide to assist the hospice/palliative care teammembers in gaining a better understanding of anindividual and family

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    Cultural Skill* Cultural skill in hospice and Palliative care is required for

    competency

    *Skills that can be acquired:-Cultural assessment

    -Cross cultural communication

    -Cultural interpretation

    -Appropriate Intervention

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    *Multiple tools are available to assesscultural behaviour. These tools focus on:

    -Religion-Health related Beliefs and practices-Nutrition

    -Socioeconomic-Considerations- education

    - communication-values orientation-cultural aspects on disease

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    Cultural Encounter

    Individuals meet each other with their own conditions,

    prejudices and level of education. Just as we do with

    people from our own country, we should try to see, listen

    to and understand our fellows even if they come from a

    foreign place.

    Such an encounter is a process in which understanding

    is created whilst the parties make an effort to establish

    contact, a common foundation and a common language.

    We encounter cultures through the people we meet.

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    It is one between individuals and must therefore

    always be characterised by respect and

    openness to the Others worldview. It is

    extremely important to regard the Other as ahuman being, a person, an individual with his or

    her own feelings, values and goals to which I

    should react as politely, wisely and warmly as

    possible.

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    Hospice and Palliative care issuesinfluenced by Culture

    -Nutrition

    -Decision Making

    -Pain management

    -Death and dying rituals

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    Nutrition

    Across cultures, food is used in building or maintaining human relationships

    Food is used in rituals, celebrations, and rites of passage to establish and maintain social andcultural relationships with families, friends, andothers.It serves to assess social relationships or interpersonal closeness.

    For centuries, food has been used to assess,

    treat and prevent illness.

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    Dietary patterns of cultural groups need tobe assessed and integrated into the planof care. When working with the patientsand families to identify foods that affect thesymptoms, it is important to consider food

    practices that are culturally significant.

    Its important to ask the patient or family if

    involving a leader in their cultural or religious group may be helpful in makingfood and fluid decisions.

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    Decision makingPatient Self-Determination Act (PSDA) of 1991, health care decision

    making shifted from the physician to the patient.

    Act was the result of social change and the consumer rights

    movement in the early 1970s in the United States.

    Based on the belief that patienthas an inherent right to

    information relevant to health

    care decision making. The

    assumption is that patient wants

    control over the dying process.

    Advance Directives were

    initiated as a result of PSDA.

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    4 values that provide foundations for the

    PSDA and end-of-life decision making in

    America include:

    Patient autonomy

    Informed decision making

    Truth telling

    Control over the dying process

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    This is the Euro-American vision of healthcare. It

    assumes that the individual rather than the family or

    other social group, is the appropriate decision maker.

    But many non-Euro-American cultures do not embrace

    this vision or these values.

    In many non-Euro-American cultures the concept oninterdependence among family and community members

    is more valued than individual autonomy.

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    Many cultures are family-centered rather than

    individualistic, and would prefer that the family, rather

    than the patient, receive and process information.

    Autonomy may not be seen as empowering, but rather

    may seem burdensome to patients already too sick to

    make meaningful choices.

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    Some non-European cultures do not approve of

    full disclosure. This Western practice of blunt,

    truthful communication is seen as rude and

    disrespectful in some cultural groups. These

    families prefer to receive threatening information

    and filter it before telling their loved ones. This

    practice is to believed to encourage patients to

    maintain hope.

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    Hospice / palliative care team members must consider

    the harm that may occur when the medical community

    violates cultural practices. It may be helpful to explain

    the Euro-American perspective to enhance

    understanding and present needless suffering.

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    It is essential for hospice / palliative care

    team members to be aware that ethical

    norms in the United States are guided by a

    Euro-American perspective and may not

    be appropriate in other cultures.

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    Pain management

    Pain is a highly personal and subjective experiencedinfluenced by cultural learning. Pain is whatever the

    person says it is, and existing whenever the person says

    it does. Patterned attitude of pain behaviors exist in

    every culture as demonstrated by Zoborowskis classic

    work. Pain tolerance varies from person to person

    depending on numerous factors such as past

    experiences with pain, coping skills, motivation to endure

    pain and energy level.

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    Assessment of pain can be identified using terms thatdescribe pain intensity across most cultural groups.

    Pain, hurt, ache are words commonly used bypersons of different ethnic and educational backgroundsto describe pain. It is important to standardize theassessment and not rely on culturally laden painindicators such as facial expression, body movement,and vocalize to assess pain.

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    Comprehensive pain management

    involves pharmacologic and non

    pharmacologic interventions may improvethe ability to alleviate pain. Healing

    practices to cultures should be offered to

    patient and family

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    DEATH RITUALS IN MUORNING

    PRACTICES

    The meaning of death, and how it is recognized, acknowledged, and

    celebrated, varies among cultures

    .

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    It is the responsibility of the Hospice/Palliative

    care team to learn about these rituals andweave them into a culturally meaningful context

    for the pt and family

    Most cultures have specific rituals that begin

    before death and may last for months or even

    years after death

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    In helping family members deal with death,the hospice/palliative care team must shoerespect for the familys cultural heritageand encourage the family to identify howthey will commemorate the death of their loved one

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    Family Questions Regarding Cultural

    Traditions In Dealing With Death

    What are the prescribed rituals for

    handling dying, the dead body, the

    disposal of the body, and rituals to

    commemorate loss?

    What are the groups beliefs about

    what happens after death?

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    What do they believe about

    appropriate emotional expression and

    integration of a loss experience?

    What are the gender rules for handling

    the death?

    Are certain deaths particularly

    stigmatized or traumatic for the group?

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    It is important to recognize that cultures differ in public expression of grief.

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    During the dying experience and after

    death, the major tasks of the grief

    process are universal regardless of the

    cultural differences.

    Accept the reality of the loss.

    Feel and experience the pain of grief associated with loss.

    Begin to adjust to an environment without the deceased and begin

    the transformation to new society and family roles.

    Withdraw emotional energy from the dead and focus energy on the

    living.

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