77
ED 426 555 TITLE INSTITUTION PUB DATE NOTE AVAILABLE FROM PUB TYPE EDRS PRICE DESCRIPTORS IDENTIFIERS ABSTRACT DOCUMENT RESUME EC 306 991 Evaluation of Early Intervention in Washington State. Literature Summary: Acronyms, Summaries of Selected Research Studies, Theoretical Viewpoints, Bibliography. University of South Florida, Tampa. Dept. of Gerontology. 1998-00-00 117p.; For related document, see EC 306 990. Research and Data Analysis, Department of Social and Health Services, Olympia, Washington 980504-5204; Report Number 7.95b. Information Analyses (070) MF01/PC05 Plus Postage. *Disabilities; Early Childhood Education; Early Intervention; *Educational Strategies; Exceptional Child Research; Infants; *Outcomes of Education; *Program Effectiveness; Research Projects; *Teaching Methods; Toddlers Washington This report summarizes research studies on the effectiveness of early intervention for children with disabilities in Washington state. In chart form, each summary includes information on the study program, study group, description of the research, outcome measures, and the results of the study. It includes 34 research studies and 20 theoretical research studies. (Contains over 300 references.) (CR) ******************************************************************************** Reproductions supplied by EDRS are the best that can be made from the original document. ********************************************************************************

DOCUMENT RESUME ED 426 555 EC 306 991 … Infant Neurological International Battery INREAL A language intervention program ISCS Inferred Self-Concept Scale ITQ Carey Infant Temperament

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ED 426 555

TITLE

INSTITUTIONPUB DATENOTEAVAILABLE FROM

PUB TYPEEDRS PRICEDESCRIPTORS

IDENTIFIERS

ABSTRACT

DOCUMENT RESUME

EC 306 991

Evaluation of Early Intervention in Washington State.Literature Summary: Acronyms, Summaries of Selected ResearchStudies, Theoretical Viewpoints, Bibliography.University of South Florida, Tampa. Dept. of Gerontology.1998-00-00117p.; For related document, see EC 306 990.Research and Data Analysis, Department of Social and HealthServices, Olympia, Washington 980504-5204; Report Number7.95b.

Information Analyses (070)MF01/PC05 Plus Postage.*Disabilities; Early Childhood Education; EarlyIntervention; *Educational Strategies; Exceptional ChildResearch; Infants; *Outcomes of Education; *ProgramEffectiveness; Research Projects; *Teaching Methods;ToddlersWashington

This report summarizes research studies on the effectivenessof early intervention for children with disabilities in Washington state. Inchart form, each summary includes information on the study program, studygroup, description of the research, outcome measures, and the results of thestudy. It includes 34 research studies and 20 theoretical research studies.(Contains over 300 references.) (CR)

********************************************************************************

Reproductions supplied by EDRS are the best that can be madefrom the original document.

********************************************************************************

rI

Evaluation of Early Interventionin Washington State

Literature Summary

U.S. DEPARTMENT OF EDUCATIONfT0 ice of Educational Research and ImprovementE CATIONAL RESOURCES INFORMATION

CENTER (ERIC)his document has been reproduced as

received from the person or organizationoriginating it.

0 Minor changes have been made toimprove reproduction quality.

Points of view or opinions stated in thisdocument do not necessarily represent

OERLposition_or policy.

1

PERMISSION TO REPRODUCE ANDDISSEMINATE THIS MATER/AL HAS

BEEN GRANTED BY

TiRouJTO THE EDUCATIONAL RESOURCES

INFORMATION CENTER (ERIC)

Washington State Department of Social and Health ServicesResearch and Data Analysis

Infant Toddler Early Intervention Program

ACRONYMS

SUMMARIES OF SELECTED RESEARCH STUDIES

THEORETICAL VIEWPOINTS

BIBLIOGRAPHY

When ordering, please refer toReport Number 7.95b

ACRONYMS

ADD Attention Deficit DisorderAPGAR Scoring system named after. Virginia Apgar used to evaluate condition

of a new infantBDI Battelle Developmental InventoryBPD Bronchopulmonary DysplasiaBW Birth WeightCA Chronological AgeCAMS Curriculum and Monitoring SystemCAPER Early Childhood Continuum of Assessment, Programming Evaluation,

and ResourcesCBCL Child Behavior ChecklistCEEPS Comprehensive Early Evaluation Programming SystemCEFF Comprehensive Evaluation of Family FunctioningCES-D Depression ScaleCIQ Child Improvement QuestionnaireCVS Child Vulnerability ScaleDA Developmental AgeDAS Dyadic Adjustment ScaleDD Developmentally DisabledDQ Developmental Quotient ,

ECRI: SU Early Childhood Research Institute:, Service UtilizationEI Early InterventionEICS Early Intervention Collaborative StudyEMI Early Intervention Research InstituteFACES Family Adaptation and Cohesion Evaluation ScaleFFSS Family Functioning Style ScaleFILE Family Inventory of Life Events and ChangesFRS Family Resource ScaleFSS Family Support ScaleGAS Goal Attainment ScalingHOME Home Observation for Measurement of the Environment InventoryIEI Intervention Efficiency IndexLEP Individualized Education PlanIFSP Individualized Family Service PlanIHDP Infant Health and Development ProgramINFANIB Infant Neurological International BatteryINREAL A language intervention programISCS Inferred Self-Concept ScaleITQ Carey Infant Temperament ScaleIVH Intraventricular Hemorrhage

3

JSI Joseph Preschool and Primary Self-Concept Screening TestLBW Low Birth WeightLICC Local Interagency Coordinating CouncilMA Maturity AgeMCDI Minnesota Child Development InventoryNEILS National Early Intervention Longitudinal StudyNICU Neonatal Intensive Care UnitOSEP Office of Special Education ProgramsPAAT Parent as a Teacher ScalePCI Proportional Change IndexPIE Parent Involvement in EducationPPS Parent Protection ScalePPVT Peabody Picture Vocabulary TestPSAS Parent Self-Awareness ScalePSI Parenting Stress IndexSD Standard DeviationSEM Structural Equation ModelingSES Socioeconomic StatusSIB Scales of Independent BehaviorSICD Sequenced Inventory of Communication DevelopmentSMA Standard Metropolitan AreaSPECS System to Plan Early Childhood ServicesSRI Stanford Research InstituteSRRS Social Readjustment Rating ScaleSSRS Social Skills Rating ScaleWISC III Wechsler Intelligence ScaleWJ-R Woodcock-Johnson Tests of AchievethentCA,CO,CT,FL, California, Colorado, Connecticut, Florida,HA,MI,NJ,NC, Hawaii, Minnesota, New Jersey, North Carolina,PA,UT Pennsylvania, Utah

54

SUMMARIES OFSELECTED RESEARCH STUDIES

5 6

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RE

SUL

TS

And

rew

s, H

., G

oldb

erg,

N=

471,

165

child

ren

born

inSu

rviv

al a

naly

sis

test

ing

cert

ain

Var

iabl

es c

onsi

dere

d as

pos

sibl

e pr

edic

tors

Sign

ific

ant p

redi

ctor

s of

spe

cial

ed

D.,

Wel

len,

N.,

New

Yor

k 19

76 th

roug

h 19

86pa

rent

al, c

hild

-rel

ated

, and

in a

dditi

on to

thos

e m

entio

ned

at r

ight

plac

emen

t wer

e M

edic

aid

paym

ent f

orPi

ttman

, B.,

and

and

enro

lled

in N

YC

pub

licpr

egna

ncy-

rela

ted

fact

ors

for

incl

uded

mot

her's

age

, evi

denc

e of

birt

h (a

pov

erty

indi

cato

r), u

nmar

ried

Stru

enin

g, E

. (19

95).

scho

ols

in 1

992

sign

ific

ant d

iffe

renc

es b

etw

een

the

subs

tanc

e ab

use

by m

othe

r, a

nd p

rese

nce

ofst

atus

of

mot

her,

larg

e fa

mily

siz

e, lo

wPr

edic

tion

of S

peci

al.c

ompa

riso

n po

pula

tions

(sp

ecia

l ed

com

plic

atio

ns o

f pr

egna

ncy.

pare

ntal

ed,

mot

her

born

in th

e U

S, lo

wE

duca

tion

Plac

emen

tvs

. reg

ular

ed)

. In

addi

tion,

mod

eled

leve

l of

pren

atal

car

e, m

ale

gend

er, l

owfr

om B

irth

Cer

tific

ate

Dat

a. A

mer

ican

for

3 di

ffer

ent s

ubgr

oups

: lea

rnin

gdi

sabi

lity,

em

otio

nal d

isor

der,

men

tal

birt

hwei

ght,

and

a lo

w A

pgar

sco

re.,

Jour

nal o

f Pr

even

tive

reta

rdat

ion

.

Med

icin

e, 1

1(3)

, 55-

61.

..

Bai

ley,

E.J

., an

d36

chi

ldre

n 19

81-2

, age

s 6

toO

bjec

tive

was

doc

umen

tatio

n of

chi

ldC

hild

cha

nge:

one

7gro

up p

re-p

ostte

stSu

gges

t a p

ositi

ve im

pact

.B

rick

er, D

. (19

85).

142

wee

ks o

f ag

e, o

f w

hich

chan

ge, a

s w

ell p

opul

atio

nco

mpa

riso

n w

ith a

5-

to 7

-mon

th in

terv

alE

valu

atio

n of

a T

hree

-80

% w

ere

hand

icap

ped

(wid

ech

arac

teri

stic

s, p

aren

t sat

isfa

ctio

n,be

twee

n te

st a

dmin

istr

atio

ns. N

orm

-U

nifo

rmly

pos

itive

CE

EPS

pre

- po

st-t

est

'Yea

r E

arly

Int

erve

ntio

nra

nge

of s

ever

ity).

and

prog

ram

ope

ratio

n co

sts.

refe

renc

ed: G

esel

l Dev

elop

men

tal

com

pari

sons

. Com

pari

sons

usi

ng G

esel

lD

emon

stra

tion

Proj

ect.

Top

ics

in E

arly

46 c

hild

ren

the

follo

win

g ye

ar,

Prog

ram

com

pone

nts:

hom

e ba

sed

upto

15

mon

ths,

cen

ter

base

d 15

to 3

6Sc

hedu

les

(ada

ptiv

e be

havi

or, g

ross

mot

or,

fine

mot

or, l

angu

age,

per

sona

l-so

cial

mat

urity

age

(M

A)

wer

e si

gnif

ican

tlydi

ffer

ent f

or th

e to

tal g

roup

s.C

hild

hood

Spe

cial

ages

9 to

137

wee

ks o

f ag

e, o

fm

onth

s.de

velo

pmen

t). C

rite

rion

-ref

eren

ced:

Com

pari

sons

usi

ng D

Q s

core

s w

ere

gen

Edu

catio

n, 5

(2),

52-

65.

whi

ch 7

4% w

ere

hand

icap

ped.

Com

preh

ensi

ve E

arly

Eva

luat

ion

and

non-

sig

acro

ss a

ll gr

oups

..

Prog

ram

min

g Sy

stem

(C

EE

PS)

(gro

ss-

The

Ear

ly I

nter

vent

ion

mot

or, f

ine-

mot

or, c

omm

unic

atio

n,Su

bgrO

up a

naly

sis

by le

vel o

f di

sabi

lity:

Prog

ram

at t

he U

niv

ofco

gniti

on, s

elf-

help

, soc

ial;

thou

ght t

oC

EE

PS a

nd M

A c

ompa

riso

ns w

ere

OR

, sup

port

ed b

y O

SEP

.m

easu

re s

kills

that

will

lead

to in

crea

sing

.sta

tistic

ally

sig

.exc

ept f

or C

EE

PS f

or th

ean

d R

ehab

ilita

tive

inde

pend

ence

; ass

essm

ent r

esul

ts [

i.e.

at-r

isk

grou

p (Y

ears

2 &

3)

and

MA

for

Serv

ice'

s H

andi

capp

edfa

iled

item

s] d

irec

t int

erve

ntio

n go

als)

.at

-ris

k &

sev

ere

grou

ps, Y

ear

2. G

esel

lC

hild

ren

Ear

lyD

Q s

core

s w

ere

nons

ig, b

ut s

ugge

sts

the

Edu

catio

n Pr

ogra

m.

)D

Q a

lso

used

.m

ajor

ity m

aint

aine

d th

eir

rate

of

deve

lopm

ent.

Pare

nts

wer

e gi

ven

a co

nsum

er s

atis

fact

ion

surv

ey.

87

Miti

t.6W

AN

::1:ii

iiiiii

i:::::

::::::

::::::

::::::

::::::

::0-0

( M

O:::

::::::

:::B

::::%

::i::b

tjf'-'

'....-

''':M

#Agt

ftt:

Bar

nett,

S.W

., an

d39

hal

f-da

y pr

esch

oole

rsC

ompa

red

half

-day

and

ful

l-da

yN

o di

ffer

ence

s in

edu

catio

nal o

utco

mes

No

diff

eren

ces

in e

duca

tiona

l out

com

es;

Pezz

ino,

J. (

1987

).39

ful

l-da

y pr

esch

oole

rspr

esch

ool p

rogr

ams

in c

ost-

mea

sure

d by

sta

ndar

dize

d te

sts

(Min

neso

taha

lf-d

ay p

rogr

ams

appe

ar to

be

mor

e co

st-

Cos

t-ef

fect

iven

ess

Ana

lysi

s fo

r St

ate

and

Chi

ldre

n m

atch

ed w

ithin

prim

irY

han

dica

ppin

g co

nditi

onef

fect

iven

ess

anal

ysis

.C

hild

Dev

elop

men

t Inv

ento

ry (

MC

DI)

,ba

sed

on m

othe

r's o

bser

vatio

ns, a

nd th

eef

fect

ive.

Loc

al D

ecis

ion

Mak

ing:

on: c

hron

olog

ical

age

, mon

ths

Ear

ly C

hild

hood

Con

tinuu

m o

fA

n A

pplic

atio

n to

Hal

f-D

ay a

nd F

ull-

Day

of p

rior

pre

scho

ol p

rogr

amex

peri

ence

, and

dev

elop

men

tal

Ass

essm

ent,

Prog

ram

min

g, E

valu

atio

n,an

d R

esou

rces

(C

APE

R),

cri

teri

on-

Pres

choo

l Spe

cial

leve

l at p

rogr

am e

ntry

. Ave

age

refe

renc

ed m

easu

re o

f ch

ildre

n's

mas

tery

Edu

catio

n Pr

ogra

ms.

48 m

onth

s.of

ski

lls).

Com

bine

d te

st d

omai

ns:

Jour

nal o

f th

e D

ivis

ion

for

Ear

ly C

hild

hood

,co

gniti

ve, l

angu

age,

mot

or, s

ocia

l, an

d se

lf-

help

..

11(2

), 1

71-1

79.

Bel

sky,

J.,R

ovin

e, M

.,an

d T

aylo

r, D

.G.

60 m

othe

r-in

fant

dya

dspa

rtic

ipat

ing

in th

eU

sed

natu

ralis

tic h

ome

obse

rvat

ions

on m

othe

r-in

fant

inte

ract

ion

to a

sses

sM

othe

r-in

fant

inte

ract

ion

obse

rved

at

infa

nt a

ge o

f 1,

3, a

nd 9

mon

ths;

at 1

yr

62%

of

atta

chm

ents

rat

ed a

s se

cure

; 38%

as in

secu

re (

25%

avo

idan

t, 13

%

(198

4). T

hePe

nnsy

lvan

ia I

nfan

t and

Fam

ilyth

e hy

poth

eses

that

infa

nts

clas

sifi

edbr

ough

t to

lab

to a

sses

s qu

ality

of

resi

stan

t).

Penn

sylv

ania

Inf

ant a

ndD

evel

opm

ent P

roje

ct.

as s

ecur

ely

atta

ched

had

exp

erie

nced

atta

chm

ent.

Fam

ily D

evel

opm

ent

the

mos

t sen

sitiv

e ca

re, a

s re

veal

edD

ata

supp

orte

d th

e ge

nera

l con

tent

ion

that

Proj

ect,

III:

The

Ori

gins

of I

ndiv

idua

lD

iffe

renc

es in

Inf

ant-

Prim

arily

mid

dle-

clas

s,by

inte

rmed

iate

leve

ls o

f re

cipr

ocal

inte

ract

ion

and

mat

erna

l stim

ulat

ion,

with

res

ista

nt in

fant

s ex

peri

enci

ng

Beh

avio

r ca

tego

ries

: mat

erna

l voc

aliz

atio

nto

infa

nt, i

nfan

t voc

aliz

atio

n, m

ater

nal

resp

onsi

ve v

ocal

izat

ion

(to

infa

nt

indi

vidu

al d

iffe

renc

es in

atta

chm

ent a

re a

func

tion

of b

oth

mat

erna

l car

e an

dpo

tent

ially

end

urin

g ch

arac

teri

stic

s of

the.

Mot

her

Atta

chm

ent:

Mat

erna

l and

Inf

ant

Con

trib

utio

ns. C

hild

the

leas

t and

avo

idan

t inf

ants

the

mos

t suc

h in

tera

ctiv

e ex

peri

ence

,T

este

d to

det

enni

ne w

heth

er, r

elat

ive

voca

lizat

ion)

, mat

erna

l stim

ulat

ion/

arou

sal,

infa

nt r

espo

nse

to s

timul

atio

n/ar

ousa

l,m

ater

nal p

ositi

ve a

ffec

t, in

fant

look

s at

infa

nt. C

anno

t con

clud

e th

at e

ither

ism

ore

resp

onsi

ble,

but

incl

ined

to b

elie

veth

at c

are

prov

ided

by

the

mot

her

play

s a

Dev

elop

men

t 55,

718

-72

8.

to m

othe

rs o

f se

cure

infa

nts,

mot

hers

of r

esis

tant

infa

nts

wer

e si

gnif

ican

tlym

othe

r, m

ater

nal u

ndiv

ided

atte

ntio

n,th

ree-

step

con

tinge

nt e

xcha

nge,

infa

ntgr

eate

r ro

le.

less

res

pons

ive

to in

fant

dis

tres

s an

dfu

ss/c

ry, m

ater

nal s

ooth

e (p

hysi

cal o

rL

evel

s of

rec

ipro

cal i

nter

actio

n ra

nked

as

nond

istr

ess

voca

lizat

ions

, and

thos

eve

rbal

), m

ater

nal h

old,

and

mat

erna

l fee

dex

pect

ed, a

lthou

gh th

is w

as o

nly

of a

void

ant i

nfan

ts p

rovi

ded

sign

ific

antly

less

phy

sica

l con

tact

.(b

reas

t or

bottl

e).

stat

istic

ally

sig

at 9

mo.

Sam

e fo

r th

em

ater

nal i

nvol

vem

ent c

ompo

nent

of

Als

o te

sted

whe

ther

inse

cure

infa

nts

wou

ld b

e fu

ssie

r th

an s

ecur

ely

Atta

chm

ent m

easu

red

usin

g A

insw

orth

and

Witt

ig (

1969

) st

rang

e si

tuat

ion,

cod

edre

cipr

ocal

inte

ract

ion.

atta

ched

infa

nts.

usin

g A

insw

orth

et a

l.'s

(197

8) P

atte

rns

ofA

ttach

men

t.T

here

is n

o su

ppor

t for

the

pred

ictio

n th

atav

oida

nce

is a

ssoc

iate

d w

ith m

ater

nal

disd

ain

for

phys

ical

con

tact

with

the

infa

nt.

9.

Can

con

clud

e th

at th

e co

vari

atio

n of

fuss

ines

s an

d at

tach

men

t is

dete

rmin

ed, a

tle

ast i

n pa

rt, b

y th

e ef

fect

of

mot

heri

ng o

nin

fant

beh

avio

r.

108

Bra

dley

, R.H

.,Su

bgro

up o

f th

e In

fant

Hea

lthM

ulti-

site

, ran

dom

ized

, clin

ical

tria

lC

ondi

tions

fou

nd to

aff

ord

som

e pr

otec

tion

The

inci

denc

e of

res

ilien

ce ir

i the

Whi

tesi

de, L

.,an

d D

evel

opm

ent P

rogr

am; 4

10co

mpa

red

the

resi

lienc

e of

LB

Wfr

om th

e de

lete

riou

s co

nseq

uenc

es o

f pr

e-in

terv

entio

n gr

oup

was

sig

nifi

cant

ly

Mun

dfro

m, D

.J.,

Cas

ey,

LB

W c

hild

ren

livin

g in

pov

erty

,ch

ildre

n in

two

grou

ps: 1

) st

anda

rdm

atur

ity c

ompo

unde

d by

pov

erty

incl

ude:

grea

ter

(39%

) th

an th

e in

cide

nce

for

the

P.H

., K

elle

her,

K.J

.,an

d Po

pe, S

.K. (

1994

).E

xclu

ded

thos

e w

ith s

erio

usch

roni

c he

alth

pro

blem

s.pe

diat

ric

follo

w u

p fo

r fi

rst 3

yea

rs;

and

2) a

n in

terv

entio

n pr

ogra

m.w

hich

Low

den

sity

in th

e ho

me

A s

afe

area

in w

hich

to p

lay

follo

w-u

p gr

oup

(12%

).

Con

trib

utio

n of

Ear

lyad

ded

fam

ily e

duca

tion

and

supp

ort

Res

pons

ivity

of

the

pare

ntSe

cond

ary

anal

ysis

: In

the

abse

nce

of

Inte

rven

tion

and

Ear

lyse

rvic

es p

rovi

ded

in th

e ho

me,

plu

sA

ccep

tanc

e of

the

child

havi

ng a

t lea

st th

ree

prot

ectiv

e ca

regi

ving

Car

egiv

ing

Exp

erie

nces

an e

duca

tiona

l day

car

e ex

peri

ence

Var

iety

of

expe

rien

ces

for

the

child

expe

rien

ces

at 1

2 m

onth

s, th

e od

ds th

at a

to R

esili

ence

in L

ow-

from

age

1 u

ntil

age

3.T

he a

vaila

bilit

y of

enr

ichi

ng le

arni

ngpr

emat

ure,

LB

W c

hild

livi

ng in

pov

erty

Bir

thw

eigh

t, Pr

emat

ure

mat

eria

lsw

ill s

how

ear

ly s

igns

of

resi

lienc

e ar

e lo

w

Chi

ldre

n L

ivin

g in

Prog

ram

:(<

28%

) de

spite

par

ticip

atin

g in

an

Pove

rty.

Jou

rnal

of

Wee

kly

hom

e vi

sits

thro

ugh

age

Info

rmat

ion

on th

ese

cond

ition

s w

ere

inte

nsiv

e m

ultif

acet

ed in

terv

entio

n su

ch

Clin

ical

Chi

ld1,

biw

eekl

y th

erea

fter

mea

sure

d fr

om th

e H

ome

Obs

erva

tion

for

as I

HD

P. C

onse

quen

ces

wer

e so

mew

hat

Psyc

holo

gy 2

3, 4

25-

From

age

1 to

3, c

hild

Mea

sure

men

t of

the

Env

iron

men

t inv

ento

ryle

ss s

ever

e at

36

mon

ths

(32%

).

434.

deve

lopm

ent c

ente

r at

leas

t 4(H

OM

E; C

aldw

ell &

Bra

dley

, 198

4), t

hehr

s/da

y, 5

day

s/w

k

Hom

e vi

sits

incl

uded

a p

robl

em-

Infa

nt-T

oddl

er a

nd E

arly

Chi

ldho

odve

rsio

ns .

(Lim

itatio

ns to

def

initi

on: c

rite

rion

val

ues

rath

er th

an c

ontin

uum

; bas

ed o

nde

velo

pmen

tal s

core

s at

a s

ingl

e ag

e;.

solv

ing

curr

icul

um, a

nd b

oth

Chi

ld m

easu

res:

'm

easu

re o

f he

alth

sta

tus

wea

k; h

igh

com

pone

nts

used

a c

oord

inat

edSt

anfo

rd-B

inet

Int

ellig

ence

Tes

tnu

mbe

r de

fmed

bas

ed s

olel

y on

IQ

sco

re;

educ

atio

nal c

urri

culu

m o

f le

arni

ngga

mes

and

act

iviti

es.

Chi

ld B

ehav

ior

Che

cklis

tH

ealth

sta

tus

(que

stio

n to

par

ent)

high

num

ber

(70%

) of

Afr

ican

Am

eric

ans)

Gro

wth

sta

tus

Res

ilien

t chi

ldre

n w

ere

iden

tifie

d as

thos

e w

ho w

ere

func

tioni

ng a

t age

3w

ithin

acc

epta

ble

rang

es in

the

area

sof

cog

nitiv

e co

mpe

tenc

e, b

ehav

iora

lco

mpe

tenc

e, h

ealth

sta

tus,

and

gro

wth

stat

us.

1 2

9

Bri

tain

, L.A

., H

olm

es,

698

child

ren

refe

rred

to a

nD

escr

ibed

the

pres

entin

g pr

oble

ms

ofD

evel

opm

enta

l quo

tient

and

com

pari

son

ofR

esul

ts in

clud

ed:

G.E

., an

d H

assa

nein

,ea

rly

inte

rven

tion

prog

ram

ove

ral

l chi

ldre

n by

med

ical

con

ditio

ngr

oup

char

acte

rist

ics

such

as

birt

h w

eigh

t,C

hron

olog

ical

age

ran

ged

from

aR

.S. (

1995

). H

igh-

Ris

k15

yea

rs (

1975

to 1

989)

, 464

of

grou

ps (

25 g

roup

s). C

ompa

red

gest

atio

nal a

ge, a

nd g

ende

r.m

ean

of 6

.6 m

onth

s fo

r th

e 11

4C

hild

ren

Ref

erre

d to

an

Ear

ly I

nter

vent

ion

who

m a

ttend

ed th

e pr

ogra

m f

orat

leas

t 6 m

onth

s.gr

oups

reg

ardi

ng b

irth

wei

ght,

gest

atio

nal a

ge, a

nd g

ende

r. L

ooke

d

child

ren

with

Dow

n sy

ndro

me,

to a

mea

n of

39.

9 m

onth

s in

14

child

ren

Dev

elop

men

t Pro

gram

.at

cha

nges

in g

roup

pro

port

ions

ove

rw

ith s

peec

h ar

ticul

atio

n pr

oble

ms.

.C

linic

al P

edia

tric

s,34

(12)

, 635

-41.

time.

Com

pare

d gr

oup

DQ

cha

nges

duri

ng in

terv

entio

n fo

r th

ose

rem

aini

ng in

the

prog

ram

at l

east

6m

onth

s.

Exc

ept f

or D

own

synd

rom

e ch

ildre

nan

d th

ose

born

of

mot

hers

with

intr

aute

rine

infe

ctio

n, m

ost w

ere

1 yr

or o

lder

, but

less

than

24

mon

ths,

on

adm

issi

on.

Prog

ram

was

bas

ed o

n a

neur

odev

elop

men

tal a

ppro

ach,

with

an e

duca

tiona

l com

pone

nt. I

nitia

las

sess

men

t; re

eval

uatio

ns e

very

12

mon

ths

(eve

ry 6

mon

ths

from

197

5-19

80).

.

Man

y pr

oble

ms

wer

e fa

irly

eve

nly

dist

ribu

ted

betw

een

the

sexe

s.H

owev

er, g

irls

wer

e re

pres

ente

dsi

gnif

ican

tly m

ore

in th

em

oder

ate/

seve

re D

D a

nd m

icro

-ce

phal

y gr

oups

. Boy

s w

ere

stri

king

lyan

d si

gnif

ican

tly m

ore

invo

lved

with

mild

DD

beh

avio

ral p

robl

ems

and

spee

ch a

rtic

ulat

ion

prob

lem

s.M

ost g

roup

s ha

d st

atis

tical

lysi

gnif

ican

t sho

rter

ges

tatio

nal a

ges

than

the

norm

of

40 w

eeks

(exc

eptio

ns w

ere

for

grou

ps w

ithce

ntra

l ner

vous

sys

tem

tum

or,

post

nata

l inf

ectio

n, a

utis

m, m

ostly

spee

ch p

robl

ems,

spe

ech

artic

ulat

ion,

"

intr

aute

rine

infe

ctio

n, s

pina

bif

ida,

met

abol

ic p

robl

ems,

mac

roce

phal

y,an

d po

stna

tal t

raum

a). G

roup

mea

nsra

nged

fro

m 3

6.1

to 3

9.8.

Tes

ts f

or li

near

ity o

f tr

end

inpr

opor

tions

ove

r th

ree

time

peri

ods

show

ed a

dow

nwar

d tr

end

over

tim

ein

adm

issi

on o

f gr

oups

with

mild

DD

, inc

reas

ed m

uscl

e to

ne o

rde

crea

sed

mus

cle

tone

, mos

tly m

otor

prob

lem

s, a

nd h

ydro

ceph

alus

. The

rew

as a

sig

nifi

cant

upw

ard

tren

d fo

rgr

oups

with

sei

zure

his

tory

, mic

rcep

-ha

ly, D

own

synd

rom

e, a

nd a

utis

m.

13In

crea

sed

repr

esen

tatio

n m

ay b

ere

late

d to

ear

lier

diag

nosi

s an

d/or

refe

rral

.

1 4

10

......

....

......

.. ...

:IT

IPO

tti4.

01C

AM

:::::

......

....

......

......

. ..

.

.:8:::

::"o

111%

::::..

....m

::::::

::::::

::::::

::::::

:::::M

OIE

SMIP

TIO

N:::

::::::

::::::

::::::

::::::

::::D

::::::

::::::

::::::

::::::

::::::

:-..1

4.1.

.:::

:M:::

::::::

::::::

::::::

::::::

g::::

::::::

::::::

::::::

::::::

::::::

...M

r. 1

:1:::

::::::

::::::

::::::

::::::

:::::E

::::::

::::::

::;i:i

:

The

2 D

D g

roup

s di

d no

t dif

fer

muc

hei

ther

in m

ean

gest

atio

nal a

ge o

r in

birt

h w

eigh

t. M

oder

ate/

seve

re D

Dch

ildre

n w

ere

mor

e lik

ely

than

thos

ein

the

mild

DD

gro

up to

hav

eab

norm

al m

uscl

e to

ne, m

icro

ceph

aly,

decr

ease

d vi

sion

or

hear

ing,

stra

bism

us, a

nd s

eizu

res.

The

mild

DD

gro

up w

as n

or li

kely

to h

ave

had

mkr

ocep

haly

or

mos

tly s

peec

hpr

oble

ms.

The

re w

as r

elat

ive

stab

ility

in th

em

ean

DQ

fro

m a

dmis

sion

todi

scha

rge.

Exc

eptio

ns: g

roup

s w

ithpo

stna

tal t

raum

a, m

ostly

spe

ech

prob

lem

s, a

nd s

peec

h ar

ticul

atio

npr

oble

ms

show

ed s

ome

over

all

impr

ovem

ent,

and

thos

e w

ith D

own

synd

rom

e an

d in

trau

teri

ne in

fect

ion

,sho

wed

a d

eclin

e ov

er ti

me

(sig

nifi

cant

for

Dow

n gr

oup)

.

Not

e th

at m

aint

enan

ce o

f a

child

's D

Qov

er ti

me

can

be v

iew

ed a

s pr

ogre

ss a

ndiS

a r

ealis

tic g

oal f

or in

terv

entio

npr

ogra

ms

to a

chie

lie.

Car

o, P

., an

dD

erev

ensk

y, J

.L.

(199

1) F

amily

-Foc

used

Inte

rven

tion

Mod

el:

Impl

emen

tatio

n an

dR

esea

rch

Find

ings

,T

opic

s in

Ear

lyC

hild

hood

Spe

cial

Edu

catio

n 11

(3)

66-8

0.,

16 f

amili

es h

avin

g in

fant

s w

ithm

oder

ate

or s

ever

e di

sabi

litie

sfr

om a

ll SE

S le

vels

, with

age

rang

e 2

- 43

mon

ths.

Eva

luat

ed th

e ef

fect

iven

ess

of a

n E

lpr

ogra

m b

ased

on

the

fam

ily-f

ocus

edin

terv

entio

n m

odel

as

conc

eptu

aliz

edby

Bai

ley

et a

l., r

ecog

nizi

ng th

etr

ansa

ctio

nal n

atur

e of

fam

ilies

and

the

use

of v

ario

us c

hild

, sib

ling,

and

pare

nt a

sses

smen

ts to

illu

stra

tein

divi

dual

str

engt

hs &

nee

ds.

Prog

ram

: 2-h

r w

eekl

y ho

me

visi

t ove

r5

mon

th P

erio

d. P

aren

t(s)

& in

fant

spr

esen

t at e

ach

sess

ion,

sib

s at

tend

ing

sess

ions

mon

thly

.Se

t wee

kly

goal

s.

'Chi

ld V

aria

bles

:B

atte

lle D

evel

opm

enta

l Inv

ento

ryM

ovem

ent A

sses

smen

t of

Infa

nts

Pare

nt V

aria

bles

:Fa

mily

Res

ourc

e Sc

ale

Fam

ily S

uppo

rt S

cale

Pare

nt S

atis

fact

ion

Scal

e

Pare

nt-C

hild

Atta

chm

ent a

nd I

nter

actio

n:Pa

rent

Beh

avio

r Pr

ogre

ssio

n (F

orm

s1

& 2

)T

each

ing

Skill

s In

vent

ory

Cri

tical

Eve

nts

Che

cklis

t

Pare

nts

perc

eive

d.si

gnif

ican

t pro

gres

s in

the

abili

ty o

f th

eir

fam

ilies

to m

eet t

hech

alle

nges

of

livin

g w

ith y

oung

chi

ldre

nw

ith d

isab

ilitie

s.

As

a gr

oup,

incr

ease

s in

the

child

ren'

s ag

eeq

uiva

lent

sco

res

on th

e B

DI

wer

e ne

arly

equi

vale

nt to

per

fonn

ance

s ex

pect

ed f

orno

ndis

able

d ch

ildre

n. A

ll ch

ildre

n ha

d a

dim

inis

hed

risk

sco

re a

nd im

prov

emen

t in

the

qual

ity o

f th

eir

mot

or m

ovem

ents

. EI

appe

ared

to r

eirt

forc

e, m

odif

y, o

rsi

gnif

ican

tly e

nhan

ce th

e pe

rcei

ved

qual

ity o

f th

e in

tera

ctio

nal b

ehav

iors

amon

g fa

mily

mem

bers

.

Incr

emen

ts in

the

obse

rved

beh

avio

rsin

dica

ted

the

acqu

isiti

on o

f a

stro

ngpa

rent

-chi

ld b

ond

and

pare

ntal

abi

lity

to

t_15

1116

prom

ote

mat

ure

child

beh

avio

rs in

all

deve

lopm

enta

l dom

ains

. Sig

nifi

cant

incr

ease

s in

par

enta

l tea

chin

g sk

ills.

Incr

ease

d at

tach

men

t and

inte

ract

iona

lbe

havi

ors

in f

amili

es w

ere

obse

rved

; all

fam

ilies

rea

lized

eff

ectiv

e at

tach

men

ts(b

ut a

ll w

ere

volu

ntee

rs &

may

hav

e be

enm

otiv

ated

to r

espo

nd).

.

Cas

to, G

.C.,

and

74 p

rim

ary

rese

arch

stu

dies

Stat

istic

ally

inte

grat

ed f

mdi

ngs

from

IQ, l

angu

age,

mot

or, s

ocia

l-em

otio

nal,

self

-E

arly

inte

rven

tion

prog

ram

s do

res

ult i

nM

astr

opie

ri, M

.A.

with

han

dica

pped

chi

ldre

n74

stu

dies

inve

stig

atin

g th

e ef

fica

cyhe

lp, a

cade

mic

ach

ieve

men

t, pa

rent

mod

erat

ely

larg

e im

med

iate

ben

efits

for

(198

6) T

he E

ffic

acy

ofof

ear

ly in

terv

entio

n w

ithat

titud

e, p

aren

t ski

ll le

vels

, mot

her/

infa

ntha

ndic

appe

d po

pula

tions

.E

arly

Int

erve

ntio

nha

ndic

appe

d pr

esch

oole

rs, c

ondu

cted

eye

cont

act,

wei

ght g

ains

, var

ious

type

s of

Prog

ram

s: A

Met

a-A

naly

sis.

Exe

eptio

nal

Chi

ldre

n, 5

2(5)

, 417

-42

4:

from

193

7 to

198

4 (m

ost s

ince

197

0).

mot

her/

infa

nt in

tera

ctio

nE

vide

nt in

var

iabl

es s

uch

as I

Q, m

otor

,la

ngua

ge, a

cade

mic

ach

ieve

men

t (fe

wre

sults

for

out

com

es s

uch

as s

elf-

conc

ept,

soci

al c

ompe

tenc

y, o

r fa

mily

and

pee

rre

latio

nshi

ps).

(Not

e: th

e ef

fect

siz

es w

hen

only

goo

dqu

ality

stu

dies

are

con

side

red

are

notic

eabl

y lo

wer

)

Dat

a re

late

d to

the

four

var

iabl

es m

ost

cite

d by

pre

viou

s re

view

ers:

1)In

terv

entio

n pr

ogra

ms

whi

ch u

tiliz

epa

rent

invo

lvem

ent a

re n

ot m

ore

effe

ctiv

e th

an th

ose

whi

ch d

o no

t.

2) T

here

are

few

dat

a to

sup

port

the

notio

n. th

at "

earl

ier

is b

ette

r" in

star

ting

inte

rven

tion

prog

ram

s.

)W

ithin

dis

adva

ntag

ed p

opul

atio

ns,

mor

e hi

ghly

str

uctu

red

prog

ram

s ar

eas

soci

ated

with

mor

e ef

fect

ive

outc

omes

. Thi

s is

not

as

wel

lsu

ppor

ted

by th

e da

ta f

rom

the

hand

icap

ped

popu

latio

n.)

With

in d

isad

yant

aged

pop

ulat

ions

,pr

ogra

m in

tens

ity/d

urat

ion

is n

otfo

und

to b

e re

late

d to

inte

rven

tion

effe

ctiv

enes

s. F

or h

andi

capp

edpo

pula

tions

, lon

ger,

mor

e in

tens

epr

ogra

ms

are

asso

ciat

ed w

ithin

terv

entio

n ef

fect

iven

ess.

1 7

121

8

,V1W

W:0

400-

:.

Dih

off,

R.A

., M

c E

wan

,St

udy

1:St

udy

1 re

port

ed e

ffec

tiven

ess

of a

Eva

luat

ion

was

by

deve

lopm

enta

l sta

ndin

g:St

udy

1: S

uppo

rts

the

effe

ctiv

enes

s of

M.,

Farr

elly

, M.,

From

thos

e el

igib

le w

ithin

the

tran

sdis

cipl

inai

y pr

ogra

m f

or c

hild

ren

Phys

ical

and

occ

upat

iona

l the

rapy

earl

y in

terv

entio

n in

gen

eral

, with

mos

tB

rosv

ic, G

.M.,

geog

raph

ic a

rea,

3 g

roup

s w

ere

0-3

duri

ng 1

2 m

onth

s of

par

t- o

r fu

ll-w

ith M

eckl

enbu

rg S

cale

prog

ress

mad

e in

ful

l-tim

e cl

ass.

Car

pent

er, L

.,id

entif

ied

and

subj

ects

in e

ach

time

inte

rven

tion.

Rec

eptiv

e-E

mer

gent

Lan

guag

e Sc

ale

Impr

ovem

ent n

ot ju

st m

atur

atio

n; n

otA

nder

son,

J.,

Kaf

er,

wer

e m

atch

ed o

n ra

ce, s

ex,

Stud

y 2

exam

ined

str

ess

of p

aren

ts,

Lea

rnin

g A

ccom

plis

hmen

t Pro

file

refl

ecte

d in

mat

ched

con

trol

gro

up.

L.B

., R

izzu

to, G

. E.,

and

Blo

szin

shky

, S.

'dis

ease

sta

te, s

ever

ity o

fim

pair

men

t, an

d co

gniti

vean

d ef

fect

s of

a b

imon

thly

par

ent

grou

p(s

ocia

l-ad

aptiv

e sk

ills)

Bay

ley

Scal

es o

f In

fant

Dev

or

Prog

ram

mat

ic d

iffe

renc

es a

lso

refl

ecte

d in

diff

eren

t ass

essm

ents

(pa

rt-t

itne

larg

ely

(199

4). E

ffic

acy

offu

nctio

n.St

andf

ord-

Bin

etR

evis

ed S

cale

gros

s m

otor

act

iviti

es, f

ull-

larg

ely

fine

-Pa

rt-

and

Full-

Tim

ePa

rt-t

ime:

16

boys

, 11

girl

s(c

ogni

tive

func

tioni

ng)

mot

or w

/spe

ech/

lang

uage

inst

ruct

or)

Ear

ly I

nter

vent

ion.

Full-

time:

16

boys

, 21

girl

sPe

rcep

tual

and

Mot

orSt

udy

2:N

o si

g di

ffer

ence

s be

twee

n gr

oups

at

Skill

s, 7

9, 9

07-9

11.

Con

trol

gro

up: 1

4 bo

ys, 9

gir

lsst

art

refe

rred

for

and

qua

lifie

d, b

utPa

rent

ing

Stre

ss I

nven

tory

cho

sen

beca

use.

No

sig

chan

ges

in c

ogni

tive

pare

nts

did

not e

nrol

l. D

id n

otsu

bsca

les

mea

sure

the

reci

proc

al n

atur

e of

func

tioni

ng f

or a

ny o

f th

e gr

oups

part

icip

ate

in p

rogr

amch

ild-t

o-pa

rent

inte

ract

ions

as

wel

l as

Gro

ss m

otor

ski

ll: r

elat

ive

to th

eac

tiviti

es, b

ut w

ere

scre

ened

beha

vior

s re

port

ed to

be

rela

ted

toco

ntro

l chi

ldre

n, b

oth

prog

ram

initi

ally

and

aga

in 6

mon

ths

dysf

unct

ion

with

in th

e ch

ild-p

aren

t sys

tem

.gr

oups

sho

wed

sig

impr

ovem

ents

late

r.C

hild

Cha

ract

eris

tics

Dom

ain

scal

ein

clud

es s

ubsc

ales

mea

suri

ng th

e ch

ild's

oVer

6 m

onth

s (a

dditi

onal

gai

ns f

orpa

rt-t

ime

grou

p ov

er r

d 6

mon

ths)

Stud

y 2:

33 m

othe

rs a

nd 3

fat

hers

of

adap

tabi

lity

and

plas

ticity

, acc

epta

bilit

y to

the

pare

nt, d

eman

ding

ness

, moo

d,di

stra

ctib

ility

and

hyp

erac

tivity

, and

the

Fine

mot

or s

kills

: rel

ativ

e to

the

cont

rol c

hild

ren,

bot

h pr

ogra

mgr

oups

sho

wed

sig

impr

ovem

ents

enro

lled

child

ren

serv

edex

tent

to w

hich

a c

hild

rei

nfor

ces

the

over

6 m

onth

s (a

dditi

onal

gai

ns f

orvo

lunt

arily

as

subj

ects

pare

nt. P

aren

t Cha

ract

eris

tics

Dom

ain

scal

e in

clud

es s

ubsc

ales

mea

suri

ng a

pare

nt's

dep

ress

ion,

unh

appi

ness

, and

guilt

, atta

chm

ent,

rest

rict

ions

impo

sed

byth

e pa

rent

al r

ole,

sen

se o

f co

mpe

tenc

e,so

cial

isol

atio

n, r

elat

ions

hip

with

spo

use,

and

heal

th.

full-

time

grou

p ov

er 2

nd 6

mon

ths)

Lan

guag

e: r

elat

ive

to th

e co

ntro

lch

ildre

n bo

th p

rogr

am g

roup

ssh

owed

sig

impr

ovem

ents

ove

r 12

mon

ths

(sig

gai

ns f

or f

ull-

time

grou

pal

so a

fter

6 m

onth

s)So

cial

ada

ptat

ion

skill

s sh

owed

sig

impr

ovem

ents

fro

m b

asel

ine

for

both

grou

ps a

fter

12

mon

ths

ofin

terv

entio

n

Stud

y 2:

Mut

ual p

redi

ctab

ility

indi

cate

dsi

g re

latio

nshi

ps b

etw

een

stre

ss a

ttrib

uted

to c

hara

cter

istic

s of

the

child

and

the

pare

nt. P

aren

ts a

ttend

ing

the

bim

onth

lypa

rent

s' g

roup

rep

orte

d si

gnif

ican

tde

crea

ses

in s

tres

s at

trib

utab

le to

the

adap

tabi

lity

and

the

dem

andi

ngne

ss o

fth

eir

child

ren.

13

19

20

'O

GR

Am

i....,

,:::::

::::

::::m

voro

wor

s.:::

::::::

::::::

::::::

:::::.

::::::

::::::

::::::

::::::

::::::

::::::

:::r-

-titt

etW

ii::::

::::::

::::::

::::::

::::::

::::::

:i:i::

::::::

::::::

::::::

::::::

::::::

::::''

'''''

'''IO

A0)

)03:

':::

:::::]

::::::

::::::

::::::

::::;:

::::::

::::::

::::::

::::::

::::::

;:::::

::::::

:''''

tifttt

::::::

::::::

::::::

::::::

::::::

::::::

::::::

1::::

::::::

::::0

The

mos

t pre

dict

ive

mea

sure

for

the

Chi

ldC

har.

Dom

ain

was

chi

ldre

n's

adap

tabi

lity

and

flex

ibili

ty. F

or P

aren

t Cha

r:: 1

)pa

rent

s' p

erce

ptio

ns o

f de

pres

sion

,un

happ

ines

s, a

nd g

uilt,

and

2)

sens

e of

com

pete

nce

as a

par

ent.

Edg

ar, E

., H

egge

lund

,M

., an

d Fi

sche

r, M

.(1

988)

A L

ongi

tudi

nal

Stud

y of

Gra

duat

es o

fSp

ecia

l Edu

catio

nPr

esch

ools

: Edu

catio

nal

Plac

emen

t Aft

erPr

esch

ool.

Top

ics

inE

arly

Chi

ldho

odSp

ecia

l Edu

catio

n, 8

(3),

61-7

4.

582

spec

ial e

d pr

esch

ool

grad

uate

s fr

om 1

0 sc

hool

dist

rict

s in

WA

dur

ing

the

1983

-198

6 sc

hool

yea

rs (

3).

.

Add

ress

ed 2

que

stio

ns:

1) W

hat i

s th

e fi

rst e

duca

tiona

lpl

acem

ent f

or s

peci

al e

duca

tion

pres

choo

l gra

duat

es a

fter

age

6?

2) H

ow s

tabl

e ar

e th

ese

plac

emen

tsov

er th

e fi

rst 2

yea

rs o

fel

emen

tary

sch

ool?

Spec

ial e

duca

tion

plac

emen

tIn

itial

pla

cem

ent:

13%

wer

e pl

aced

inre

gula

r ed

ucat

ion

setti

ngs

with

out s

peci

aled

sup

port

(19

% o

f al

l mild

lyha

ndic

appe

d, 1

2% o

f th

e m

ildly

ret

arde

d,an

d 6%

of

the

seve

rely

han

dica

pped

). A

nad

ditio

nal 1

9% w

ere

plac

ed in

reg

ular

ed

with

spe

cial

sup

port

ser

vice

s. 6

4% w

ere

in p

lace

d in

eith

er s

elf-

cont

aine

d or

reso

urce

roo

m s

ettin

gs

Stab

ility

of

plac

emen

t app

eare

d to

be

very

hig

h. O

f th

e 45

chi

ldre

n w

ho m

ade

plac

emen

t cha

nges

, 28

(62%

) m

oved

tole

ss r

estr

ictiv

e se

tting

s.

Inno

cent

i, M

.S. (

1996

).Fi

nal R

epor

t for

Pro

ject

Peri

od O

ctob

er 1

, 199

0-

Dec

embe

r 31

, 199

5 of

the

Lon

gitu

dina

l Stu

dies

of th

e E

ffec

ts o

fA

ltern

ativ

e T

ypes

of

Ear

ly I

nter

vent

ion

for

Chi

ldre

n w

ithD

isab

ilitie

s: F

ollo

w-U

pIn

stitu

te. S

ubm

itted

toth

e U

.S. D

epar

tmen

t of

Edu

catio

n by

the

Ear

lyIn

terv

entio

n R

esea

rch

Inst

itute

,

9 si

tes

(of

16 s

ites

incl

uded

inth

e or

igin

al 5

-yr

stud

y)

Stra

tifie

d, r

ando

m s

ampl

ew

ithin

site

s.

Pare

ntal

con

sent

; ass

esso

rsun

awar

e of

sub

ject

ass

ignm

ents

or s

tudy

hyp

othe

ses.

10-y

r lo

ngitu

dina

l stu

dy c

ontr

acte

d by

the

Dep

t of

Ed

addr

esse

d:T

reat

men

t int

ensi

ty (

com

pare

dex

istin

g hi

gh-q

ualit

y pr

ogra

ms

tom

ore

inte

nsiv

e al

tern

ativ

esde

velo

ped

for

the

stud

y, i.

e.,

1/w

eek

and

3/w

eek)

Mos

t app

ropr

iate

age

for

serv

ices

to b

egin

(co

mpa

red

trea

tmen

t at f

irst

ent

ry o

r at

afu

ture

poi

nt in

tim

esev

erel

ym

edic

ally

fra

gile

chi

ldre

n)Sy

stem

atic

pro

gram

dif

fere

nces

(i.e

., ad

ded

mor

e in

tens

e fa

mily

com

pone

nt to

cla

ssro

om-b

ased

prog

ram

, for

som

e)C

ompa

red

prog

ram

cos

t dat

a fo

rco

st e

ffec

tiven

ess

disc

ussi

ons

Tes

ting

com

mon

ly in

volv

ed o

nepr

etes

t, up

to e

ight

rea

sses

smen

ts

Cog

nitiv

e, m

otor

, lan

guag

e fu

nctio

ning

,m

othe

r an

d ch

ild in

tera

ctio

n, p

aren

tal

attit

udes

tow

ard

thei

r ch

ild w

ith a

disa

bilit

y, c

hild

suc

cess

in s

choo

l as,

indi

cate

d by

spe

cial

edu

catio

n cl

ass

plac

emen

t and

ret

entio

n, a

nd p

erce

ived

stre

ss a

s re

port

ed b

y th

e pa

rent

s. F

or e

ach

case

, the

spe

cifi

c go

als

and

activ

ities

of

the

inte

rven

tion

prog

ram

was

the

prim

ary

cons

ider

atio

n in

sel

ectin

g as

sess

men

tin

stru

men

ts.

,

Ass

essm

ent i

nstr

umen

ts u

sed

for

fmal

asse

ssm

ent b

atte

ry a

t all

site

s (a

ndco

mpl

emen

ted

by s

ite-s

peci

fic

com

plem

enta

ry m

easu

res)

are

:

Chi

ld M

easu

res:

Bat

telle

Dev

elop

men

tal I

nven

tory

(B

DI)

(New

borg

et a

l., 1

984)

;W

oodc

ock-

John

son

Tes

ts o

f A

chie

vem

ent

(WJ-

RX

Woo

dcoc

k &

Joh

nson

, 198

9);

See

indi

vidu

al s

ite s

tudy

des

crip

tions

2114

77:

'stif

fiV

t::::.

:b41

tAtie

iiiii:

ii::::

::::::

::::::

:::::M

OV

VR

e. ''

: '''

:1.::

::::::

::::::

::::::

::::::

:--:

::::::

::::::

::::::

:i:i:i

:1:ii

:::i:i

iiii::

'W

it114

1' .

::::::

::::::

::::::

::::::

::::::

::::::

:..:

::::::

::::::

::::::

::::::

00T

:::*

mm

ots:

i:im

mE

::::::

::i:::

::::m

in:::

::::::

::::::

::::::

:::si

gt*M

mi:i

ii::::

::::::

iiiiii

:iiii:

iiiN

iiiiii

:i:.::

::::::

::::::

:

Mea

sure

d ef

fect

siz

e by

com

pari

ngth

e di

ffer

ence

of

grou

p m

eans

to th

est

anda

rd d

evia

tion

of th

e co

mpa

riso

ngr

oup

scor

es

Scal

es o

f In

depe

nden

t Beh

avio

r (S

IB)

(Bru

inin

ks e

t al,

1985

);So

cial

Ski

lls R

atin

g Sc

ale

(SSR

SXG

resh

am &

Elli

ott,

1990

);Pi

ctor

ial S

cale

of

Perc

eive

d C

ompe

tenc

ean

d A

ccep

tanc

e (H

arte

r &

Pik

es, 1

983)

Fam

ily M

easu

res:

Pare

ntin

g St

ress

Ind

ex (

PSIX

Abi

din,

1983

);Fa

mily

Sup

port

Sca

le (

FSS)

(Dun

st e

t al.,

1984

);Fa

mily

Res

ourc

e Sc

ale

(FR

S)(

Dun

st &

.

Lee

t, 19

85);

Fam

ily I

nven

tory

of

Lif

e E

vent

s an

dC

hang

es (

FIL

E)(

McC

ubbi

n et

al.,

198

3);

Fam

ily A

dapt

atio

n an

d C

ohes

ion

.

Eva

luat

ion

Scal

e -I

II (

FAC

ESX

Ols

on e

tal

., 19

85);

Chi

ld H

ealth

(W

hite

et a

l., 1

987)

;A

dditi

onal

Ser

vice

s (W

hite

et a

l., 1

987)

;Fa

mily

Inf

orm

atio

n Su

rvey

(W

hite

et a

l.,19

87)

Inno

cent

i, M

.S. (

Ear

ly35

chi

ldre

n 0-

30 m

onth

s, w

ithC

ompa

red

wee

kly

indi

vidu

aliz

edM

easu

res.

incl

uded

thos

e us

ed f

or a

llT

here

wer

e no

con

sist

ent d

iffe

renc

esIn

terv

entio

n R

esea

rch

visi

on im

pair

men

t as

maj

orpa

rent

-chi

ld s

essi

ons

with

par

ent

stud

ies

(see

ove

rvie

w),

and

:be

twee

n th

e ch

ildre

n or

thei

r fa

mili

es th

atIn

stitu

te),

199

6di

sabi

lity,

ran

dom

ly a

ssig

ned

togr

oup

mee

tings

app

roxi

mat

ely

12pa

rtic

ipat

ed in

the

wee

kly

pare

nt-c

hild

two

grou

ps.

times

per

yea

rC

hild

Mea

sure

s:se

ssio

ns a

nd th

ose

that

did

not

.L

ongi

tudi

nal S

tudi

es o

fPl

ay A

sses

smen

t Sca

le V

ideo

tape

dth

e E

ffec

ts o

fA

ttriti

on: f

our

subj

ects

The

inte

rven

tion

emph

asiz

edSc

enar

io o

f E

xplo

ratio

n/Pl

ay;

.

Alte

rnat

ive

Typ

es o

fde

velo

pmen

tal t

hera

py d

irec

ted

Ear

ly I

nter

vent

ion

Dev

elop

men

tal P

rofi

le;

Ear

ly I

nter

vent

ion

for

tow

ard

the

child

, rat

her

than

Vin

elan

d A

dapt

ive

Beh

avio

r Sc

ales

;C

hild

ren

with

prov

idin

g pr

imar

y su

ppor

t and

Car

olin

a R

ecor

d of

Ind

ivid

ual B

ehav

ior;

Dis

abili

ties:

Fol

low

-Up

assi

stan

ce to

the

fam

ily.

Boe

hm T

est o

f B

asic

Con

cept

s;In

stitu

teT

est o

f L

angu

age

Dev

elop

men

t, Pr

imar

y,T

d ed

.;N

ew O

rlea

ns V

isua

lM

cCar

thy

Scal

es o

f C

hild

ren'

s A

bilit

ies;

Impa

irm

ent S

tudy

Soci

al S

kill

Rat

ing

Syst

em;

Forc

ed C

hoic

e Pr

efer

entia

l Loo

king

Tec

hniq

ue;

Hill

Per

form

ance

Sca

le;

WIS

C H

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2315

24

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Fam

ily M

easu

res:

Fam

ily A

dapt

atio

n an

d C

ohes

ion

Scal

es;

Vid

eota

ped

Scen

ario

of

Pare

nt/C

hild

Inte

ract

ion;

Hol

mes

-Rah

e Sc

hedu

le o

f R

ecen

t Eve

nts;

Pare

nt S

elf-

Aw

aren

ess

Scal

e;Fa

mily

Fun

ctio

ning

Sty

le S

urve

y

Inno

cent

i, M

.S. (

Ear

lyIn

terv

entio

n R

esea

rch

Inst

itute

), 1

996

Lon

gitu

dina

l Stu

dies

of

the

Eff

ects

of

Alte

rnat

ive

Typ

es o

fE

arly

Int

erve

ntio

n fo

rC

hild

ren

with

Dis

abili

ties:

Fol

low

-Up

Inst

itute

SMA

/Lak

e M

cHen

rySu

mm

ary

Rep

ort

72 c

hild

ren

serv

ed b

y th

ree

diff

eren

t ear

ly in

terv

entio

npr

ogra

ms,

24

mon

ths

of a

ge o

rle

ss a

t ref

erra

l with

a d

iagn

osed

disa

bilit

y or

fun

ctio

ning

at 6

5%or

less

of

wha

t was

exp

ecte

d of

child

ren

thei

r ag

e ba

sed

on th

eW

isco

nsin

Beh

avio

r R

atin

gSc

ale

(ass

esse

s ba

sic

surv

ival

skill

s). S

ubje

cts

ente

red

asth

ey w

ere

iden

tifie

d. G

roup

sw

ere

stra

tifie

d by

deve

lopm

enta

l sta

tus

and

pare

nt's

leve

l of

stre

ss, a

ndw

ere

high

ly c

ompa

rabl

e w

hen

addi

tiona

l dem

ogra

phic

and

cont

extu

al.d

ata

wer

e ex

amin

ed,

Tes

ting:

one

pre

test

, 7 a

nnua

lre

asse

ssm

ents

Attr

ition

: 24

subj

ects

(gr

oups

rem

aine

d co

mpa

rabl

e)

Eac

h si

te, w

hich

ori

gina

lly s

erve

don

ly o

nce

per

wee

k, a

dded

a th

ree-

times

-per

-wee

k co

mpo

nent

to w

hich

subj

ects

at e

ach

site

wer

e ra

ndom

lyas

sign

ed. P

rogr

ams

focu

sed

onim

prov

ing

child

dev

elop

men

t(p

erso

nal/s

ocia

l, ad

aptiv

e, m

otor

,la

ngua

ge, c

ogni

tive)

and

teac

hing

skill

s to

par

ents

that

wou

ld a

llow

them

to a

ssis

t with

thei

r ch

ild's

deve

lopm

enta

l pro

gres

s du

ring

dai

lyliv

ing

activ

ities

. The

pro

gram

sem

phas

ized

the

impo

rtan

ce o

fad

dres

sing

par

ent-

iden

tifie

d ne

eds

asw

ell a

s st

reng

ths

in a

n ef

fort

toem

pow

er p

aren

ts to

bec

ome

capa

ble

of d

ealin

g w

ith th

e de

man

ds o

f ca

ring

for

a ch

ild w

ith s

peci

al n

eeds

.

Mea

sure

s in

clud

ed th

ose

used

for

all

stud

ies

(see

ove

rvie

w),

and

:

Fam

ily M

easu

res:

Pare

nt S

tres

s In

dex

(PSI

)(A

bidi

n, 1

986)

;

No

evid

ence

that

incr

easi

ng th

e am

ount

of

inte

rven

tion

from

one

to th

ree

times

per

wee

k is

cos

t eff

ectiv

e fo

r ch

ildre

n si

mila

rto

thos

e en

rolle

d. T

here

wer

e no

stat

istic

ally

sig

nifi

cant

dif

fere

nces

betw

een

the

grou

ps r

e ch

ild m

easu

res.

Mot

hers

rep

orte

d hi

gher

leve

ls o

f su

ppor

tdu

ring

the

firs

t thr

ee y

ears

, and

less

str

ess

duri

ng Y

ear

4.

.

Inno

cent

i, M

.S. (

Ear

lyIn

terv

entio

n R

esea

rch

Inst

itute

), 1

996

Lon

gitu

dina

l Stu

dies

of

the

Eff

ects

of

Alte

rnat

ive

Typ

es o

fE

arly

Int

erve

ntio

n fo

r,C

hild

ren

with

Dis

abili

ties:

Fol

low

-Up

Inst

itute

78 c

hild

ren

ages

3 to

48

Mon

ths

rece

ivin

g se

rvic

es b

efor

e 86

/87,

or e

nter

ing

serv

ices

fal

l of

87,

at tw

o si

tes.

Gro

ups

wer

est

ratif

ied

by a

ge a

nd le

vel o

fdi

sabi

lity

and

child

ren

Wer

era

ndom

ly a

ssig

ned

to o

ne o

ftw

o tr

eatm

ent g

roup

s.

Attr

ition

: 27

child

ren

Com

pare

d tw

o le

vels

of

inte

nsity

of

hom

e-ba

sed

earl

y in

terv

entio

nse

rvic

es: o

nce

ever

y ot

her

wee

k,in

crea

sed

to o

nce

per

wee

k in

rd

year

of s

tudy

, com

pare

d to

twic

e pe

r w

eek.

Inte

rven

tion

focu

sed

on d

evel

opin

gfu

nctio

nal s

kills

bas

ed o

n ch

ild's

deve

lopm

enta

l lev

el a

nd f

amily

func

tioni

ng a

s re

pres

ente

d in

the

IEP.

Com

pari

son

test

s in

clud

ing

dem

ogra

phic

s su

gges

t a s

light

pre

test

Mea

sure

s in

clud

ed th

ose

used

for

all

stud

ies

(see

ove

rvie

w),

and

:

Chi

ld M

easu

res:

The

Vin

elan

d A

dapt

ive

Beh

avio

r Sc

ales

Surv

ey E

ditio

n (S

parr

ow e

t al.,

198

4);

Sequ

ence

d In

vent

ory

of C

omm

unic

atio

nD

evel

opm

ent (

SIC

DX

Hed

rick

et a

l., 1

984)

;C

hild

Hea

lth (

E.I

.R.I

.);

Infe

rred

Sel

f-C

once

pt S

mile

(IS

CS)

Res

ults

do

not s

uppo

rt th

e hy

poth

esis

that

mor

e in

tens

e fr

eque

ncy

of h

ome

earl

yin

terv

entio

n vi

sits

fro

m tw

ice

per

wee

kco

mpa

red

with

onc

e pe

r w

eek

will

res

ult

in b

ette

r ou

tcom

es f

or p

artic

ipat

ing

child

ren

or f

amili

es. W

hile

ther

e ar

e a

few

sta

tistic

ally

sig

nifi

cant

res

ults

, the

over

all p

atte

rn is

one

of

nO e

ffec

t.

2616

Ark

ansa

s In

tens

itySt

udy

.

.

diff

eren

ce b

etw

een

grou

ps in

fav

or o

fth

e ex

pand

ed in

terv

entio

n go

up.

Ana

lysi

s of

'cov

aria

nce

proc

edur

esw

ere

used

to a

djus

t for

thes

edi

ffer

ence

s.

Dro

pout

pat

tern

s al

so f

avor

ed th

eex

pand

ed in

terv

entio

n gr

oup.

Pret

est a

nd r

eass

essm

ents

at 8

, 18,

30, 4

2, 6

6, 7

8, 9

0, a

nd 1

02 m

onth

s.

Fam

ily M

easu

res:

Pare

nt S

elf-

Aw

aren

ess

Scal

e(P

SASX

Snyd

er e

t al.,

198

5);

Soci

al R

eadj

ustm

ent R

atin

g Sc

ale

(SR

RSX

Hol

mes

& R

ahe,

196

7);

Tea

cher

Rat

ing

of P

aren

t's P

artic

ipat

ion

in E

duca

tion

Prog

ram

(E

.I.R

.I.)

;Pa

rent

ing

Stre

ss I

ndex

(PS

I) S

hort

For

m(A

bidi

n, 1

990)

;

.

.

Inno

cent

i, M

.S. (

Ear

lyIn

terv

entio

n R

esea

rch

Inst

itute

), 1

996

Lon

gitu

dina

l Stu

dies

of

the

Eff

ects

of

Alte

rnat

ive

Typ

es o

fE

arly

Int

erve

ntio

n fo

rC

hild

ren

with

.

Dis

abili

ties:

Fol

low

-Up

Inst

itute

Jord

an I

nten

sity

Stu

dy

53 c

hild

ren

betw

een

36 a

nd 6

2m

onth

s of

age

, mild

tom

oder

atel

y di

sabl

ed w

ith a

wid

e ar

ray

of d

isab

ilitie

s.St

ratif

ied

by s

ever

ity o

fdi

sabi

lity

and

rand

omly

assi

gned

.

Attr

ition

: 1 s

ubje

ct

Com

pare

d tw

o ye

ar-l

ong

pres

choo

lin

terv

entio

n pr

ogra

ms

in f

our

clas

sroo

ms

at tw

o sc

hool

s. S

tand

ard

prog

ram

2 h

rs, 3

day

s pe

r w

eek.

Mor

e in

tens

ive

prog

ram

dev

elop

edfo

r 2

hrs,

5 d

ays

per

wee

k w

ith h

ighe

rst

aff

ratio

s.

Pret

est a

nd 7

ann

ual r

eass

essm

ents

Gro

ups

com

para

ble

over

all,

sign

ific

ant d

iffe

renc

es e

xist

ed, b

utdi

d no

t fav

or a

par

ticul

ar g

roup

.

.

Mea

sure

s in

clud

ed th

ose

used

for

all

stud

ies

(see

ove

rvie

w),

and

:

Chi

ld M

easu

res:

Jose

ph P

resc

hool

and

Pri

mar

y Se

lf-

Con

cept

Scr

eeni

ng T

est (

JSI)

(Jos

eph,

1979

);D

evel

opm

enta

l SPE

CS

(Sys

teth

to P

lan

Ear

ly C

hild

hood

Ser

vice

s) (

Bag

nato

&N

eisw

orth

, 199

0);

Perc

eive

d co

mpe

tenc

e an

d So

cial

Acc

epta

nce

(Har

ter

& P

ikes

, 198

3);

Coo

per

Farr

an B

ehav

iora

l Rat

ing

Scal

es(C

oope

r &

Far

ran,

198

8)

Fam

ily M

easu

res:

Pare

nt S

tres

s In

dex

(PSI

) Sh

ort F

orm

(Abi

din,

198

6);

Com

preh

ensi

ve E

valu

atio

n of

Fam

ilyFu

nctio

ning

(C

EFF

)(M

cLin

den,

198

9);

Pare

nt S

elf-

Aw

aren

ess

Scal

e(P

SAS)

(Sn

yder

et a

l., 1

985)

Mor

e in

tens

ive

inte

rven

tion

had

a m

ildim

med

iate

and

long

itudi

nal i

mpa

ct o

nch

ild d

evel

opm

enta

l out

com

es, m

ost

.cle

arly

on

mea

sure

s of

chi

ld d

evel

opm

ent

and

adap

tive

beha

vior

. Chi

ldre

n w

ithm

ore

seve

re d

isab

ilitie

s be

nefi

ted

mor

efr

om th

e m

ore

inte

nsiv

e in

terv

entio

n th

anch

ildre

n w

ith le

ss s

ever

e di

sabi

litie

s.

Som

e im

med

iate

and

con

flic

ting

find

ings

wer

e fo

und

follo

win

g in

terv

entio

n, b

ut n

otm

aint

aine

d lo

ngitu

dina

lly.

Giv

en th

e po

ssib

ility

of

subs

tant

ial

impa

cts

in la

ter

life

from

incr

ease

s in

adap

tive

beha

vior

fun

ctio

ning

, iss

ues

arou

nd th

e co

st-b

enef

it of

this

inte

rven

tion

are

still

und

er in

vest

igat

ion.

Inno

cent

i, M

.S. (

Ear

lyIn

terv

entio

n R

esea

rch

Inst

itute

), 1

996

Lon

gitu

dina

l Stu

dies

of

the

Eff

ects

of

Alte

rnat

ive

Typ

es o

fE

arly

Int

erve

ntio

n fo

r.

Chi

ldre

n w

ith

60 in

fant

s fr

om e

ither

of

3te

rtia

ry N

eona

tal I

nten

sive

Car

eU

tnts

(N

ICU

S), r

ecru

ited

1985

-19

88, w

ho h

ad e

xper

ienc

edne

onat

al in

trav

entr

icul

arhe

mor

rhag

e (I

VH

). A

ll bu

t 5w

ere

low

bir

thw

eigh

t. Su

bjec

tsw

ere

stra

tifie

d on

sev

erity

of

hem

orrh

age

and

birt

hwei

ght,

and

rand

omly

ass

igne

d.

Com

pare

d 2

grou

ps o

f m

edic

ally

frag

ile c

hild

ren

begi

nnin

gin

terv

entio

n at

dif

fere

nt a

ges

(3m

onth

s co

rrec

ted

age

vs. 1

8 m

onth

s).

Ear

ly in

terv

entio

n in

volv

edse

nsor

imot

or tr

eatm

ent s

essi

ons

once

per

mon

th, f

or o

ne h

our

(mor

ein

tens

ive

prov

ided

whe

n ne

eded

).Pa

rent

s pa

rtic

ipat

ed a

nd w

ere

give

n

Mea

sure

s in

clud

ed th

ose

used

for

all

stud

ies

(see

ove

rvie

w),

and

:

Stan

fOrd

-Bin

et S

cree

ning

Tes

t (T

horn

dike

et a

l., 1

986)

;C

hild

Beh

avio

r C

heck

list

(CB

CL

XA

chen

bach

, 199

1);

Neo

nata

l med

ical

info

rmat

ion

from

hosp

ital d

isch

arge

sum

mar

ies;

hea

lth a

nd

For

thes

e ch

ildre

n an

d at

this

inte

nsity

of

inte

rven

tion,

beg

inni

ng in

terv

entio

n at

3m

onth

s of

age

did

not

nec

essa

rily

res

ult i

nbe

tter

deve

lopm

enta

l out

com

es th

anbe

ginn

ing

inte

rven

tion

at 1

8 m

onth

s.

As

pres

choo

lers

, the

ear

ly in

terv

entio

ngr

oup

scor

ed b

ette

r th

an th

ose

in th

ede

laye

d in

terv

entio

n gr

oup,

but

the

grou

ps

172

8

1111

):.0

saiA

MW

::::::

::::::

ST

IM:

Inno

cent

i, U

S. (

Ear

ly54

infa

nts

with

med

ical

Com

pare

d tw

o in

tens

ities

of

serv

ice

Mea

sure

s in

clud

ed th

ose

used

for

all

A m

ore

inte

nsiv

e in

terv

entio

n di

d no

t.?

Inte

rven

tion

Res

earc

hco

mpl

icat

ions

, str

atif

ied

byto

med

ical

ly f

ragi

le in

fant

s an

d th

eir

stud

ies

(see

ove

rvie

w),

and

:de

mon

stra

te d

iffe

rent

ial p

ositi

ve e

ffec

tsIn

stitu

te),

199

6pr

imar

y di

agno

sis.

offa

mili

es: r

outin

e m

edic

al s

ervi

ces

for

med

ical

ly f

ragi

le c

hild

ren

but

Bro

ncho

pulm

onar

y D

yspl

asia

prov

ided

aft

er d

isch

arge

by

the

Chi

ld M

easu

res:

som

ewha

t sm

all e

ffec

ts o

n fa

mily

Lon

gitu

dina

l Stu

dies

of

the

Eff

ects

of

(BPD

) or

neu

rolo

gica

l dam

age,

rand

omly

ass

igne

d.ho

spita

l vs.

a c

oord

inat

ed a

ndco

mpr

ehen

sive

sys

tem

of

earl

yB

ayle

y Sc

ales

of

Infa

nt D

evel

opm

ent

(Bay

ley,

196

9);

func

tioni

ng. N

o ev

iden

ce th

at it

was

cos

t-ef

fect

ive.

Alte

rnat

ive

Typ

es o

fin

terv

entio

n se

rvic

es in

itiat

ed b

efor

eV

inel

and

Ada

ptiv

e B

ehav

ior

Scal

esE

arly

Int

erve

ntio

n fo

rN

o si

gnif

ican

t dif

fere

nces

disc

harg

e.(S

parr

ow e

t al.,

198

4);

Chi

ldre

n in

the

low

-int

ensi

ty ig

oup

wer

eC

hild

ren

with

betw

een

grou

ps o

nIn

fant

Neu

rolo

gica

l Int

erna

tiona

l Bat

tery

mor

e lik

ely

to b

e cl

assi

fied

as

diff

icul

tD

isab

ilitie

s: F

ollo

w-U

pde

mog

raph

ic v

aria

bles

Ass

esse

d 2

wks

aft

er d

isch

arge

and

at

(IN

FAN

IB)(

Elli

son

et a

l., 1

985)

;th

an c

hild

ren

in th

e hi

gh-i

nten

sity

gro

up.

Inst

itute

exam

ined

at p

rete

st. S

ome

sig

diff

s du

ring

som

e of

the

late

r6,

12,

18,

24,

36,

48,

60,

and

72

mon

ths

of a

ge.

Car

ey I

nfan

t Tem

pera

men

t Sca

le (

ITQ

)

Col

umbu

s M

edic

ally

asse

ssm

ents

. Cov

aria

nce

Fam

ily M

easu

res:

Frag

ile S

tudy

proc

edur

es u

sed.

Hol

mes

& R

ahe

Maj

or L

ife

Eve

nts

(Hom

es&

Rah

e, 1

967)

;A

ttriti

on: a

ppro

x. 1

4Pa

rent

Pro

tect

ion

Scal

e (P

PS);

Chi

ld V

ulne

rabi

lity

Scal

e (C

VS)

(For

syth

)

Inno

cent

i, M

.S. (

Ear

ly76

chi

ldre

n in

a c

lass

room

-C

ompa

red

EI

serv

ices

with

dif

feri

ngM

easu

res

incl

uded

thos

e us

ed f

or a

llE

vide

nce

for

cost

-eff

ectiv

enes

s of

this

Inte

rven

tion

Res

earc

hba

sed

earl

y in

terv

entio

npa

rent

invo

lvem

ent.

Enh

ance

dst

udie

s (s

ee o

verv

iew

), a

nd:

kind

of

pare

nt c

ompo

nent

is n

ot v

ery

Inst

itute

), 1

996

pres

choo

l pro

gram

(42

grou

ps in

volv

ed p

aren

ts in

pla

nned

com

pelli

ng. T

here

was

a s

mal

l, po

sitiv

ecl

assr

oom

onl

y, 3

4 w

ith a

dded

activ

ities

pri

mar

ily, b

ut n

otC

hild

Mea

sure

s:im

pact

on

child

ren'

s de

velo

pmen

tal

Lon

gitu

dina

l Stu

dies

of

pare

nt in

volv

emen

t), n

otex

clus

ivel

y, f

ocus

ed o

n ch

ild-o

rien

ted

Jose

ph P

resc

hool

and

Pri

mar

y Se

lf-

prog

ress

and

par

enta

l per

cept

ions

of

the

Eff

ects

of

prof

ound

ly d

isab

led,

who

seis

sues

. Par

ent m

eetin

gs o

rgan

ized

Con

cept

Scr

eeni

ng T

est (

JSI)

(Jos

eph,

soci

al s

uppo

rt, b

ut th

ese

wer

e no

tA

ltern

ativ

e T

ypes

of

pare

nts'

sch

edul

es a

llow

edar

ound

the

Pare

nts

Invo

lved

in19

79);

mai

ntai

ned

over

tim

e.E

arly

Int

erve

ntio

n fo

rth

em to

atte

nd th

e pa

rent

Edu

catio

n cu

rric

ula

(chi

ldSt

anfo

rd-B

inet

Int

ellig

ence

Tes

t For

m L

-MC

hild

ren

with

invo

lvem

ent m

eetin

gs. 7

5%de

velo

pmen

t, ob

serv

atio

n an

d(T

erm

an &

Mer

rill,

197

3);

Pare

nts

who

rec

eive

d th

e pa

rent

Dis

abili

ties:

Fol

low

-Up

dem

onst

rate

d de

velo

pmen

tal

reco

rdin

g, ta

rget

ing

inte

rven

tion

Dev

elop

men

tal S

PEC

S (S

yste

m to

Pla

nin

volv

emen

t com

pone

nt w

ere

less

like

lyIn

stitu

tede

lay,

with

dis

abili

ty r

ange

seve

re to

mild

. Str

atif

ied

bybe

havi

ors,

teac

hing

pro

cess

es,

deci

sion

mak

ing,

and

com

mun

icat

ing

Ear

ly C

hild

hood

Ser

vice

s) (

Bag

nato

&N

eisw

orth

, 199

0)th

an o

ther

par

ents

to a

ttrib

ute

thei

r ch

ild's

deve

lopm

enta

l pro

gres

s to

cha

nce.

Mild

Des

Moi

nes

Pare

ntch

rono

logi

cal a

ge b

y te

ache

rw

ith p

rofe

ssio

nals

). P

aren

t sup

port

long

itudi

nal i

mpa

cts

for

enha

nced

gyo

upIn

volv

emen

t Stu

dype

rcep

tion

of p

aren

t mot

ivat

ion,

with

dev

elop

men

tal f

unct

ioni

ngco

mpo

nent

.Fa

mily

Mea

sure

s:,

Pare

ntin

g St

ress

Ind

ex S

hort

For

mw

ere

foun

d on

teac

her

perc

eptio

ns o

fch

ildre

n's

clas

sroo

m b

ehav

iors

.in

form

atio

n.A

ll su

bjec

ts r

ecei

ved

clas

sroo

m-

base

d, h

alf-

day,

5-d

ay-p

er-w

eek

(PSI

)(A

bidi

n, 1

990)

;C

ES-

D D

epre

ssio

n Sc

ale

(Rad

loff

, 197

7);

Attr

ition

: 16

subj

ects

inte

rven

tion

serv

ices

.C

hild

Im

prov

emen

t Que

stio

nnai

re (

CIQ

;D

evel

lis e

t al.,

198

5);

Com

para

bilit

y: s

light

adv

anta

gefo

r en

hanc

ed g

roup

Pret

est,

reas

sess

men

ts a

t end

of

acad

emic

yea

r an

d an

nual

ly th

erea

fter

Pare

nt a

s a

Tea

cher

Sca

le (

PAA

T; S

trom

,19

84);

(8 in

all)

Com

preh

ensi

ve E

valu

atio

n of

Fam

ilyFu

nctio

ning

(C

EFF

)(M

cLin

den,

198

9);

Pare

nt S

elf-

Aw

aren

ess

Scal

e(P

SAS)

(Sny

der

et a

l., 1

985)

;H

olm

es a

nd R

ahe

Maj

or L

ife

Eve

nts

3119

32

.... .

.. ...

... ..

......

.....

......

.....

......

......

. ....

......

.. ...

......

...

......

.....

....

......

.. ...

......

......

......

......

....

(Hol

mes

& R

ahe,

196

7);

Dya

dic

Adj

ustm

ent S

cale

(D

ASX

Span

ier,

1976

);Fa

mily

Fun

ctio

ning

Sty

le S

cale

(FFS

SXD

eal e

t al.,

198

8)In

noce

nti,

MS.

(E

arly

56 p

resc

hool

chi

ldre

n 23

to 6

1E

xplo

red

whe

ther

add

ition

of

pare

nt-

Mea

sure

s in

clud

ed th

ose

used

for

all

A n

umbe

r of

ben

efits

wer

e ga

ined

fro

mIn

terv

entio

n R

esea

rch

mon

ths

of a

ge, w

ith m

oder

ate

toas

-int

erve

ner

focu

s to

cen

ter-

base

dst

udie

s (s

ee o

verv

iew

), a

nd:

this

eas

ily a

dmin

iste

red,

rel

ativ

ely

Inst

itute

), 1

996

seve

re d

isab

ilitie

s, s

trat

ifie

d by

prog

ram

infl

uenc

ed:

inex

pens

ive

prog

ram

of

a sh

ort d

urat

ion.

age,

dev

elop

men

tal l

evel

, and

Chi

ld d

evel

opm

ent

Chi

ld M

easu

res:

Lon

gitu

dina

l Stu

dies

of

thei

r te

ache

r's r

atin

g of

par

ent

Lat

er s

choo

l pla

cem

ent

Dev

elop

men

tal S

PEC

S (S

yste

m to

Pla

n.So

cial

sup

port

and

fam

ily c

ohes

ion

the

Eff

ects

of

mot

ivat

ion,

ran

dom

ly a

ssig

ned

Pare

ntal

inte

ract

ion

beha

vior

sE

arly

Chi

ldho

od S

ervi

ces)

(B

agna

to &

mea

sure

s w

ere

sign

ific

antly

in f

avor

of

Alte

rnat

ive

Typ

es o

fto

2 g

roup

s.w

ith c

hild

Nei

swor

th, 1

990)

;pa

rent

invo

lvem

ent,

but o

nly

duri

ng th

eE

arly

.Int

erve

ntio

n fo

rPa

rent

s' p

erce

ptio

ns o

f so

cial

Min

neso

ta C

hild

Dev

elop

men

t Inv

ento

ryin

volv

emen

t per

iod.

The

invo

lvem

ent

Chi

ldre

n w

ithW

ell-

mat

ched

on

dem

ogra

phic

,su

ppor

t(M

CD

I)(I

reto

n &

Thw

ing,

197

4);

prog

ram

app

ears

to h

ave

had

not e

ffec

t on

Dis

abili

ties:

Fol

low

-Up

child

, and

fam

ily m

easu

res.

Pare

ntin

g st

ress

Chi

ld H

ealth

(E

.I.R

.I.)

pare

nt s

tres

s (w

hich

app

ears

to b

e m

ore

Inst

itute

Gen

eral

fam

ily f

unct

ioni

ngre

late

d to

oth

er c

onte

xtua

l asp

ects

of

the

Attr

ition

: app

rox

3 su

bjec

ts(f

amily

coh

esio

n &

ada

ptab

ility

)Fa

mily

Mea

sure

s:pa

rent

's li

fe).

Par

ents

fro

m th

eU

tah

Pare

ntC

ES-

D D

epre

ssio

n Sc

ale

(Rad

loff

, 197

7);

invo

lvem

ent g

roup

wer

e co

nsis

tent

lyIn

volv

emen

t Stu

dyPr

ogra

m: 3

hr/

day,

5da

ys/w

k at

Chi

ld I

mpr

ovem

ent Q

uest

ionn

aire

cons

ider

ed m

ore

know

ledg

eabl

e an

dce

nter

. Par

ents

fro

m tr

eatm

ent [

coup

Rev

ised

(D

evel

lis e

t al.,

198

5);

mor

e su

ppor

tive

of th

eir

child

ren'

sat

tend

ed 1

5 ni

nety

mM

par

ent

Peab

ody

Pict

ure

Voc

abul

ary

Tes

ted

ucat

ion.

How

ever

, sig

nifi

cant

var

ianc

ein

stru

ctio

n se

ssio

ns o

ver

4 m

onth

s,ba

sed

on th

e Pa

rent

Inv

olve

men

t in

Edu

catio

n (P

IE)

grou

p. P

IE

(PPV

T)(

Dun

n &

Dun

n, 1

981)

;T

est o

f Pa

rent

Kno

wle

dge

(E.I

.R.I

.);

Pare

nt-C

hild

Int

erac

tion

(E.I

.R.I

.);

in te

ache

rs' r

atin

gs o

f pa

rent

s'.

attit

udes

tow

ard,

and

par

ticip

atio

n in

,th

eir

child

's e

duca

tiona

l pro

gram

at

curr

icul

um in

clud

es in

trod

uctio

n an

dPa

rent

Sel

f-A

war

enes

s Sc

ale

(PSA

S);

reas

sess

men

t #4

did

not c

ontin

ue w

ithov

ervi

ew, o

bjec

tive

obse

rvat

ion

ofch

ild b

ehav

ior,

def

inin

g an

dM

ajor

Lif

e E

vent

s Sc

ale

(Hol

mes

& R

ahe,

1967

);la

ter

reas

sess

men

ts. A

mar

ked

incr

ease

inth

e de

velo

pmen

tal s

core

s of

chi

ldre

n in

mea

suri

ng b

ehav

ior,

pri

ncip

les

ofC

ompr

ehen

sive

Eva

luat

ion

of F

amily

the

invo

lvem

ent g

roup

app

ears

to b

e th

ebe

havi

or m

anag

emen

t, an

alyz

ing

Func

tioni

ng (

CE

FFX

McL

inde

n, 1

990)

;re

sult

of th

e in

terv

entio

n (s

tatis

tical

lybe

havi

or c

hain

s, th

eori

es o

f ch

ildFa

mily

APG

AR

(Sm

ilkst

ein,

197

8);

sign

ific

ant d

iffe

renc

e fr

om 2

rld

deve

lopm

ent,

test

ing

and

rete

stin

g,cr

iteri

on-r

efer

ence

d as

sess

men

t,de

velo

ping

lear

ning

obj

ectiv

es, P

.L.

Fam

ily F

unct

ioni

ng S

tyle

Sca

le(F

FSS)

(Dea

l, T

rive

tte, &

Dun

st, 1

988)

;D

yadi

c A

djus

tmen

t Sca

le (

DA

S)(S

pani

er

reas

sess

men

t on)

. Inv

olve

men

t gro

upch

ildre

n sh

owed

few

er p

robl

embe

havi

ors

and

mor

e so

cial

ly a

ppro

pria

te94

-142

and

IE

Ps, i

nter

vent

ion

stra

tegi

es, f

acto

rs r

elat

ed to

teac

hing

succ

ess,

pra

ctic

e te

achi

ng s

essi

ons,

dete

rmin

ing

appr

opri

ate

inte

rven

tions

, com

mun

icat

ing

with

prof

essi

onal

s, s

tres

s m

anag

emen

t,an

d re

view

, com

men

ts, c

once

rns,

and

ques

tions

. lso

ask

ed to

pra

ctic

e

1976

);R

elig

iosi

ty Q

uest

ionn

aire

-

beha

vior

.

Not

e, h

owev

er, t

hat t

wo

repl

icat

ions

of

this

stu

dy r

epor

ted

few

er a

dvan

tage

s.So

me

anal

yses

acr

oss

site

s ha

s be

enun

derw

ay.

3320

34

..1-

..'

trai

ning

act

iviti

es a

t hom

e. N

ote

that

all p

aren

ts w

ere

invo

lved

in I

EP,

teac

her

inte

ract

ion,

occ

asio

nally

pare

nt-h

elpi

ng.

Ass

essm

ents

at s

tart

, aft

er p

aren

tin

stru

ctio

n (7

mo

late

r) a

nd a

nnua

llyth

erea

fter

for

7 y

rs.

.

Mc

Car

ton,

C.M

.,B

rook

s-G

unn,

J.,

Wal

lace

, I.F

., B

auer

,C

.R.,

Ben

nett,

F.C

.,B

ernb

aum

, J.C

.,B

royl

es, R

.S.,

Cas

ey,

P.H

., M

cCor

mic

k,M

.C.,

Scot

t, D

.T.,

Tys

on, J

., T

onas

cia,

J.,

Mei

nert

, C.L

., fo

r th

eIn

fant

Hea

lth a

nd

Dev

elop

men

t Pro

gram

Res

earc

h G

roup

.(1

997)

. Res

ults

at A

ge8

Yea

rs o

f E

arly

Inte

rven

tion

for

Low

-B

irth

-Wei

ght P

rem

atur

eIn

fant

s. J

ourn

al o

f th

eA

mer

ican

Med

ical

Ass

ocia

tion,

277

(2),

126-

132.

874

child

ren

invo

lved

in a

rand

omiz

ed c

linic

al tr

ial o

fsp

ecia

l ser

vice

s fo

r L

BW

prem

atur

e in

fant

s du

ring

the

firs

t 3 y

ears

of

life.

Now

8ye

ars

of a

ge, 3

36 c

hild

ren

wer

eas

sess

ed f

rom

the

inte

rven

tion

grou

p, a

nd 5

38 f

rom

the

follo

w-

up o

nly

grou

p.

Elig

ible

infa

nts.

had

abi

rthw

eigh

t of

2500

g o

r le

ss, a

gest

atio

nal a

ge o

f 37

wee

ks o

rle

ss, r

esid

ed in

the

catc

hmen

tar

ea, a

nd d

id n

ot h

ave

a se

ver

med

ical

illn

ess

or n

euro

logi

cal

impa

irm

ent.

Enr

ollm

ent

occu

rred

10/

84 th

roug

h 8/

85.

Gro

ups

wer

e st

ratif

ied

by 2

birt

hwei

ght g

roup

s (<

200

0 g;

and

from

200

1 to

250

0 g.

)

Infa

nts

wer

e ra

ndom

ly a

ssig

ned

to in

terv

entio

n (n

= 3

77)

and

cont

rol (

n =

608

) gr

oups

.G

roup

s w

ere

bala

nced

for

birt

hwei

ght,

gend

er, m

ater

nal

age,

mat

erna

l edu

catio

n, a

ndm

ater

nal r

ace.

Eig

ht-s

ite, r

ando

miz

ed c

linic

al tr

ial

inve

stig

ated

the

effi

cacy

of

anin

tens

ive,

inte

grat

ed h

ealth

and

educ

atio

n pr

ogra

m f

or lo

wbi

rthw

eigh

t, pr

emat

ure

infa

nts.

The

tria

l inc

lude

d fo

ur m

ain

inte

rven

tion

mod

aliti

es: p

edia

tric

mon

itori

ng a

ndre

ferr

al, w

eekl

y (1

' yea

r) o

r bi

wee

kly

(the

reaf

ter)

hom

e vi

sits

by

a fa

mily

educ

ator

, par

ent s

uppo

rt g

roup

s 4

times

/yr,

and

atte

ndan

ce a

t a f

ull-

day

child

dev

elop

men

t cen

ter

oper

ated

by

earl

y ch

ildho

od e

duca

tors

. The

cont

rol g

roup

rec

eive

d on

ly p

edia

tric

mon

itori

ng a

nd r

efer

ral.

Inte

rven

tion

bega

n im

med

iate

ly a

fter

infa

nt's

disc

harg

e fr

om th

e ho

spita

l and

cont

inue

d un

til a

ge 3

cor

rect

ed f

orpr

e-m

atur

ity.

The

hyp

othe

ses

for

this

stu

dy p

hase

wer

e th

at e

nhan

cem

ents

of

glob

alm

easu

res

of c

ogni

tive

func

tion

that

wer

e fo

und

at 3

yrs

Wou

ld b

e

atte

nuat

ed b

y ag

e 8,

but

that

sign

ific

ant d

iffe

renc

es f

avor

ing

the

inte

rven

tion

grou

p w

ould

be

foun

d in

scho

ol p

erfo

rman

ce m

easu

res

ofre

adin

g an

d m

athe

mat

ics

achi

evem

ent

and

in r

educ

ed r

ates

of

grad

e fa

ilure

.

Cog

nitiv

e fu

nctio

ning

:W

esch

ler

Inte

llige

nce

Scal

e fo

rC

hild

renI

ll;Pe

abod

y Pi

ctur

e V

ocab

ular

y T

est

Rev

ised

;D

evel

opm

enta

l Tes

t of

Vis

ual-

Mot

orIn

tegr

atio

n;R

ey-O

stem

eth

Com

plex

Fig

ure

Mat

rice

s;W

ide-

Ran

ge A

sses

smen

t of

Mem

ory

and

Lea

rnin

g: S

tory

Mem

ory

Aca

dem

ic a

chie

vem

ent

.

odW

ococ

k-Jo

hnso

n T

ests

of

Ach

ieve

men

tRev

ised

;G

rade

ret

entio

n an

d sp

ecia

l edu

catio

n

Beh

avio

r:

Beh

avio

r R

atin

g Pr

ofile

-2;

Psyc

holo

gica

l Exa

min

atio

n B

ehav

ior

Prof

ile;

ld B

hC

hC

hiea

vior

eckl

ist

Hea

lth:

Gro

wth

mea

sure

s;H

ealth

que

stio

nnai

reC

hild

Gen

eral

Hea

lth S

urve

y

At a

ge 3

, chi

ldre

n in

the

inte

rven

tion

grou

p ha

d si

gnif

ican

tly h

ighe

r in

telli

genc

ete

st s

core

s an

d re

cept

ive

voca

bula

ry te

stsc

ores

and

low

er s

core

s on

a p

aren

tal

mea

sure

of

repo

rted

beh

avio

r pr

oble

ms

than

the

child

ren

in th

e fo

llow

-up

grou

p.T

he r

ate

of m

ater

nally

rep

orte

d he

alth

cond

ition

s ov

er th

e fi

rst 3

yea

rs w

as.

grea

ter

for

child

ren

in th

e in

terv

entio

ngr

oup,

alth

ough

they

wer

e no

t hos

pita

lized

to a

gre

ater

ext

ent t

han

thos

e in

the

follo

w-u

p gr

oup.

EI

adva

ntag

es w

ere

mor

e pr

onou

nced

in-t

he h

eavi

er L

BW

stra

tum

than

in th

e lig

hter

str

atum

inte

rms

of I

Q s

core

, rec

eptiv

e vo

cabu

lary

scor

e, a

nd b

ehav

ior

prob

lem

sco

re. R

ate

of m

ater

nally

rep

orte

d he

alth

pro

blem

sw

as g

reat

er in

the

light

er L

BW

EI

grou

pth

an in

the

light

er f

ollo

w-u

p gr

oup;

no

diff

eren

ces

wer

e fo

und

on th

is m

easu

rebe

twee

n gr

oups

in th

e he

avie

r st

ratu

m.

At a

ge 5

, the

re w

ere

no s

igni

fica

nt o

vera

lldi

ffer

ence

s in

IQ

sco

re, r

ecep

tive

voca

bula

ry, r

epor

ted

beha

vior

pro

blem

s,or

hea

lth m

easu

res

betw

een

the

inte

rven

tion

and

follo

w-u

p on

ly c

hild

ren.

How

ever

, with

in th

e he

avie

r L

BW

stra

tum

, the

inte

rven

tion

grou

p ha

d hi

gher

full-

scal

e IQ

sco

res

(4 p

ts)

and

verb

al I

Qsc

ores

(4

pts)

as

wel

l as

high

er r

ecep

tive

voca

bula

ry s

core

s (6

pts

).

3521

36

..

_...

......

. ....

....

....

.

...

.

,

At a

ge 8

:

Cog

nitiv

e:O

vera

ll, th

ere

wer

e no

sta

tistic

aldi

ffer

ence

s be

twee

n th

e in

terv

entio

nan

d fo

llow

up

grou

ps. H

owev

er,

amon

g th

e he

avie

r L

BW

chi

ldre

n, th

ein

terv

entio

n gr

oup

show

edsi

gnif

ican

tly h

ighe

r sc

ores

(no

diff

eren

ce b

etw

een

grou

ps a

mon

glig

hter

LB

W c

hild

ren)

.In

the

entir

e gr

oup,

ther

e w

ere

sign

ific

ant I

Q d

iffe

renc

es b

etw

een

child

ren

as a

fun

ctio

n of

the

mot

her's

leve

l of

educ

atio

n. H

owev

er, t

hedi

ffer

ence

s no

ted

abov

e be

twee

n th

ein

terv

entio

n an

d fo

llow

-up

grou

psw

ere

cons

iste

nt a

cros

s th

e 3

mat

erna

led

ucat

ion

grou

ps.

Scho

ol P

etfo

rman

ce:

The

re w

ere

no o

vera

ll di

ffer

ence

s on

com

posi

te te

sts.

How

ever

, am

ong

the

heav

ier

LB

W c

hild

ren,

the

inte

rven

tion

grou

p ha

d si

gnif

ican

tlyhi

gher

mat

h sc

ores

than

the

follo

w-

up g

roup

. Am

ong

the

light

er L

BW

child

ren,

ther

e w

ere

no d

iffe

renc

es in

read

ing

or m

ath.

Perc

enta

ges

of g

rade

rep

etiti

on a

ndof

chi

ldre

n cl

assi

fied

for

spe

cial

ed

wer

e si

mila

r in

the

over

all

inte

rven

tion

and

follo

w-u

p on

lygr

oups

and

with

in th

e 2

stra

ta.

(Aut

hors

not

e th

at d

iffe

renc

es m

ay b

em

ore

likel

y to

em

erge

)

Beh

avio

r:Sc

ores

wer

e co

mpa

rabl

e be

twee

ngr

oups

and

with

in s

trat

a.

Hea

lth:

'The

gro

ups

had

sim

ilar

ratin

gs o

n

22

38

"WO

O*

AtA

le:::

::::::

::::::

::::::

::::::

:::V

M::"

I'

.

,

serv

ices

, and

will

take

pla

ceup

on e

nrol

lmen

t, an

nual

ly w

hile

still

enr

olle

d, a

t 3, a

nd a

t 5Se

mi-

annu

al r

epor

ts b

y se

rvic

epr

ovid

ers

abou

t ser

vice

sO

ne-t

ime

surv

ey o

f pr

ogra

mdi

rect

ors

abou

t pro

gram

One

-tim

e su

rvey

of

prov

ider

sab

out t

heir

bac

kgro

und,

trai

ning

,an

d w

ays

they

del

iver

ser

vice

sO

ne-t

ime

surv

ey o

f te

ache

rsw

hen

child

ren

are

5, a

bout

the

child

's p

rogr

ess

and

the

serv

ices

bein

g pr

ovid

ed

.

Part

H S

ervi

ceU

tiliz

atio

n R

esea

rch

Inst

itute

(E

CR

LSU

)19

97/ju

st f

inis

hing

Chi

ldre

n w

ith d

isab

ilitie

s an

dth

eir

fam

ilies

, bot

hin

fant

/todd

ler

& p

resc

hool

(no

info

rmat

ion

on s

peci

fics

).

Iden

tify/

com

pare

dif

feri

ng s

ervi

cem

odel

sPe

rcen

t ser

ved,

arr

ay o

f se

rvic

es o

ffer

ed,

degr

ee o

f co

ordi

natio

n an

d na

viga

bilit

y of

the:

syst

em, a

mou

nt o

f se

rvic

es r

ecei

ved,

amou

nt o

f in

divi

dual

izat

ion,

use

of

incl

usiv

e se

tting

s, m

eetin

g se

rvic

e ne

eds

ofch

ildre

n &

fam

ilies

.

The

bes

t out

com

es f

or c

hild

ren

& th

eir

fam

ilies

wer

e fo

und

in th

e m

ost

com

preh

ensi

ve a

nd c

oord

inat

ed s

ervi

cede

liver

y m

odel

for

all

youn

g ch

ildre

n an

dth

eir

fam

ilies

.

Qua

lity

Prac

tices

for

Infa

nts

and

Tod

dler

sw

ith D

isab

ilitie

s an

dth

eir

Fam

ilies

Res

earc

hSt

udy.

Nat

iona

l Cen

ter

for

Ear

ly D

evel

opm

ent

and

Lea

rnin

g, F

rank

Port

er G

raha

m C

hild

Dev

elop

men

t Cen

ter.

Res

earc

h on

the

qual

ity o

f se

rvic

espr

ovid

ed to

infa

nts

& to

ddle

rsw

/dis

abili

ties

and

thei

r fa

mili

es.

Info

rmat

ion

gath

erin

g th

roug

h su

rvey

and

focu

s gr

oups

. Goa

ls in

clud

e:T

o id

entif

y pr

actic

es b

elie

ved

tobe

hig

h qu

ality

Dev

elop

an

inst

rum

ent t

oev

alua

te s

ervi

ce q

ualit

yFi

eld

test

inst

rum

ent

Use

to e

valu

ate

vari

atio

ns in

serv

ice

qual

ityL

ook

at th

e in

flue

nce

ofva

riat

ions

in q

ualit

y on

chi

ld a

ndfa

mily

out

com

es

In p

rogr

ess.

Dev

elop

ing

inst

rum

ent a

ndou

tcom

e m

easu

res.

41

24

42

......

.. ..

......

......

.. .

.....

.....

......

......

......

......

......

......

......

......

......

......

. ....

......

......

......

......

.

Ram

ey, C

.T.,

Bry

ant,

985

LB

W, p

rem

atur

e in

fant

sE

ight

-site

, ran

dom

ized

clin

ical

tria

lC

ogni

tive

deve

lopm

ent (

Stan

ford

-T

he r

esea

rch

prog

ram

was

des

igne

d to

D.M

., W

asik

, B.H

.,an

d th

eir

fam

ilies

fro

min

vest

igat

ed th

e ef

fica

cy o

f an

Bin

et I

ntel

ligen

ce s

cale

, For

m L

-M,

test

the

effi

cacy

of

thre

e co

mbi

ned

Spar

ling,

J.J

., Fe

nclt,

K.H

., an

d L

a V

ange

,.ho

spita

ls in

8 c

ities

.in

tens

ive,

inte

grat

ed h

ealth

and

educ

atio

n pr

ogra

m f

or lo

w

3.1

prog

ram

ele

men

ts in

clud

ing

curr

ently

reco

mm

ende

d pe

diat

ric

prac

tices

, fam

ily

L.M

. (19

92).

Inf

ant

Infa

nts

wer

e ra

ndom

ly a

ssig

ned

prem

atur

e in

fant

s. T

heB

ehav

iora

l coM

pete

nce

(Ach

enba

chsu

ppor

ts, a

nd e

arly

chi

ldho

od e

duca

tion.

Hea

lth a

ndto

inte

rven

tion

(n =

377

) an

d.b

irth

wei

ght,

tria

l inc

lude

d fo

ur m

ain

inte

rven

tion

Chi

ld B

ehav

ior

Che

cklis

t)D

evel

opm

ent P

rogr

am. c

ontr

ol (

n =

608

) gr

oups

.m

odal

ities

: ped

iatr

ic m

onito

ring

and

.C

hild

ren

in th

e in

terv

entio

n gr

oup

for

Low

Bir

th W

eigh

t,G

roup

s w

ere

bala

nced

for

refe

rral

, hom

e vi

sits

by

a fa

mily

Hea

lth s

tatu

s (i

ndex

es s

umm

ariz

ing

dem

onst

rate

d si

gnif

ican

tly h

ighe

r

Prem

atur

e In

fant

s:bi

rthw

eigh

t, ge

nder

, mat

erna

led

ucat

or, p

aren

t sup

port

gro

ups,

and

relio

rted

mor

bidi

ty, t

he F

unct

iona

lSt

anfo

rd-B

inet

IQ

per

form

ance

, and

few

er

Prog

ram

, Ele

men

ts,

age,

mat

erna

l edu

catio

n, a

ndat

tend

ance

at a

ful

l-da

y ch

ildSt

atus

II

( R

) S

cale

, and

Gen

eral

prob

leni

beh

avio

rs, a

nd a

sm

all b

ut

Fam

ily P

artic

ipat

ion,

and

Chi

ld I

ntel

ligen

ce,

Pedi

atri

cs 3

: 454

-465

.

mat

erna

l rac

e.

Stra

tific

atic

in b

y 2

birt

hwei

ght

deve

lopm

ent c

ente

r op

erat

ed b

y ea

rly

child

hood

edu

cato

rs. T

he c

ontr

olgr

oup

rece

ived

onl

y pe

diat

ric

Hea

lth R

atin

gs I

ndex

)

Fam

ily P

artic

ipat

ion

Inde

x =

sign

ific

ant i

ncre

ase

in r

epor

t of

child

's'

mor

bidi

ty (

acut

e no

nser

ious

illn

esse

s fo

rag

es 2

-3).

BW

gro

up <

2001

g a

vera

ged

a

grou

ps w

as in

clud

ed: 2

/3 o

fm

onito

ring

and

ref

erra

l. In

terv

entio

nsu

mm

ativ

e m

easu

re o

f nu

mbe

r of

6.6-

poin

t IQ

adv

anta

ge. B

W g

roup

200

1 -

infa

nts

wei

ghed

< 2

000

g;be

gan

imm

edia

tely

aft

er in

fant

'sho

me

visi

ts, a

ttend

ance

at p

aren

t25

00 g

sco

red

aver

age

of 1

3.2

IQ p

oint

s

rem

aini

ng th

ird

betw

een

2001

disc

harg

e fr

om th

e ho

spita

l and

grou

p m

eetin

gs, a

nd d

ays

atte

nded

at

high

er th

an c

ontr

ols.

The

inte

rven

tion

and

2500

g.

cont

inue

d un

til a

ge 3

cor

rect

ed f

orch

ild d

evel

opm

ent

grou

p pe

rfor

med

sig

nifi

cant

ly b

ette

r th

an

.pr

e-m

atur

ity.

The

des

ign

and

impl

emen

tatio

n of

the

the

cont

rols

and

the

degr

ee o

fpa

rtic

ipat

ion

was

pos

itive

ly r

elat

ed to

cogn

itive

dev

elop

men

t.

IHD

P st

udy

was

gui

ded

by th

e

..

bios

ocia

l sys

tem

s m

odel

for

ear

lyde

velo

pmen

t. A

lthou

gh th

is m

odel

reco

gniz

es m

ultip

le in

flue

nces

fro

mco

ncep

tion

onw

ard,

the

rese

arch

ers

emph

asiz

e th

e ca

regi

ver-

child

inte

ract

ion

as th

e ke

y.

The

stu

dy f

indi

ngs

linke

d in

tens

ity o

fin

terv

entio

n se

rvic

es w

ith d

egre

e of

posi

tive

cogn

itive

out

com

es f

or h

igh

risk

infa

nts.

Res

earc

h In

stitu

te o

nR

easo

ns f

or s

tudy

: 1)

incr

easi

ngT

hey

antic

ipat

e de

velo

ping

a n

atio

nal s

et o

fIn

pro

gres

s; in

ver

y pr

elim

inar

y st

ages

of

Ear

ly C

hild

hood

Gro

wth

dem

ands

for

acc

ount

abili

ty; a

nd 2

) a

deve

lopm

enta

l out

com

es f

or c

hild

ren

atst

udy

deve

lopm

ent.

and

Dev

elop

men

tM

easu

res

(fun

ded

byla

ck o

f co

ncep

tual

link

ages

bet

wee

nea

rly

child

hood

ass

essm

ents

and

late

rag

es 3

, 5, &

8 in

cog

nitiv

e, c

omm

unic

atio

n,so

cial

/em

otio

nal,

adap

tive,

and

mot

or

OSE

P)co

mpe

tenc

ies.

Pur

pose

s/in

tent

:do

mai

ns.

To

iden

tify

and

valid

ate

a se

t of

grow

th/d

evel

opm

ent i

ndic

ator

sto

des

crib

e th

e de

velo

pmen

tal

prog

ress

of

child

ren

with

or

at-

risk

of

disa

bilit

ies,

0-8

, and

thei

rfa

mili

esU

se th

is to

mea

sure

pro

gres

s an

did

entif

y pr

oced

ures

with

pos

itive

impa

cts

4325

44

'I'M

I."

6441

tkft:

::::::

::::::

::::::

::::.:

::::M

ft'':

diiii

tlk

.....

ox:.,

....

.....

. ....

......

....

.)Se

i:ial

No.

230

Vol

. 57

-qT

.o. 6

1)C

hild

ren

with

sei

zure

diso

rder

s

2)Fa

mili

es r

epor

ting

atyp

ical

ly h

igh

stre

ss

3)M

othe

rs w

ith a

hig

h sc

hool

educ

atio

n or

less

4)Fa

mili

es w

here

mot

hers

had

larg

e ga

ins

inin

tera

ctiv

e sk

ills

Purp

ose:

1) T

o as

sess

the

corr

elat

es o

fad

apta

tion

in y

oung

chi

ldre

nw

ith d

isab

ilitie

s an

d th

eir

fam

ilies

ove

r tim

e

2)T

o in

form

soc

ial p

olic

y by

anal

yzin

g th

e in

flue

nces

of

fam

ily e

colo

gy a

nd f

orm

alse

rvic

es o

n ch

ild a

nd f

amily

outc

omes

) T

o ge

nera

te c

once

ptua

l mod

els

to g

uide

fur

ther

inve

stig

atio

n

Stud

y de

sign

:no

n-ex

peri

men

tal,

pre-

vs. p

ost-

inte

rven

tion

anal

ysis

; pos

t per

iod

was

one

yea

r af

ter

entr

y in

to e

arly

inte

rven

tion

prog

ram

Dat

a co

llect

ion:

Dat

a w

ere

colle

cted

dur

ing

two

hom

evi

sits

(w

ithin

6 w

eeks

of

prog

ram

entr

y an

d 1

year

late

r) a

nd in

clud

edfo

rmal

chi

ld a

sses

smen

ts,

obse

rvat

ions

of

mot

her-

child

Mte

ract

ion,

mat

erna

l int

ervi

ews,

and

ques

tionn

aire

s co

mpl

eted

inde

pend

ently

by

both

par

ents

as

wel

las

mon

thly

ser

vice

dat

a co

llect

edfr

om s

ervi

ce p

rovi

ders

.

Stat

istic

al m

etho

ds:

Em

ploy

ed r

esid

ual c

hang

e sc

ores

(dif

fere

nce

betw

een

post

-tes

t sco

rean

d th

e sc

ore

that

wou

ld b

e pr

edic

ted

by a

reg

ress

ion

line

deri

ved

from

the

pre-

test

sco

re)

in o

rder

to s

ingl

e ou

tth

ose

who

hav

e ch

ange

d m

ore

or le

ssth

an e

xpec

ted,

rat

her

than

abs

olut

ech

ange

(si

nce

thos

e w

ith in

itial

low

scor

es te

nd to

cha

nge

mor

e th

an th

ose

with

hig

h in

itial

sco

res)

.

3)So

cial

sup

port

netw

ork

size

help

fuln

ess

4)Fa

mily

ada

ptat

ion

pare

ntin

g st

ress

effe

cts

on f

amily

Inde

pend

ent v

aria

bles

:

1)ch

ild d

emog

raph

ic a

nd h

ealth

char

acte

rist

ics

(age

, typ

e of

dis

abili

ty,

seve

rity

of

psyc

hom

otor

impa

irm

ent,

gend

er, p

re-m

atur

ity s

tatu

s, p

rese

nce

of c

ardi

ac p

robl

em o

r se

izur

edi

sord

er)

2)fa

mily

dem

ogra

phic

cha

ract

eris

tics

(i.e

. mat

erna

l edu

catio

n, m

arita

lst

atus

, em

ploy

men

t, an

d he

alth

sta

tus)

Med

iatin

g va

riab

les:

child

tem

pera

men

t, fa

mily

eco

logy

, ear

lyin

terv

entio

n se

rvic

es (

staf

fing

str

uctu

re,

serv

ice

inte

nsity

, loc

atio

n, a

nd f

orm

at),

and

othe

r se

rvic

es

Inst

rum

ents

use

d:B

ayle

y Sc

ales

of

Infa

nt D

evel

opm

ent,

EIC

SPl

ay S

cale

, Vin

elan

d A

dapt

ive

Beh

avio

rSc

ales

, Nur

sing

Chi

ld A

sses

smen

tT

each

ing

Scal

e, P

aren

ting

Stre

ss I

ndex

,E

ICS

Pare

nt S

uppo

rt S

cale

, Im

pact

-on-

Fam

ily S

cale

, Hom

e O

bser

vatio

n fo

rM

easu

rem

ent o

f th

e E

nvir

onm

ent

(HO

ME

), F

amily

Ada

ptab

ility

and

Coh

esio

n E

valu

atio

n Sc

ales

(FA

CE

S II

),M

onth

ly S

ervi

ce R

ecor

ds.

Fam

ilies

who

se s

ocia

l sup

port

netw

orks

sho

wed

the

grea

test

incr

ease

in s

ize

and

wer

e pe

rcei

ved

as m

ore

help

ful w

ere

thos

e fa

mili

esw

ith c

hild

ren

who

mad

e le

ssde

velo

pmen

tal p

rogr

ess.

4)Fa

mili

es w

ho r

ecei

ved

mos

t of

thei

rse

rvic

es th

roug

h a

sMgl

e pr

ovid

ersh

owed

sig

nifi

cant

dec

reas

es in

pare

ntin

g st

ress

.

)R

educ

ed p

aren

tirig

str

ess

was

asso

ciat

ed w

ith s

ervi

ces

deliv

ered

prim

arily

thro

ugh

a si

ngle

pro

vide

r.

6)G

reat

er g

ains

in c

hild

ren'

s m

enta

lag

e w

ere

asso

ciat

ed w

ithin

divi

dual

ized

ser

vice

s.

Oth

er f

indi

ngs:

Typ

e of

dis

abili

ty is

not

use

ful i

nex

plai

ning

dif

fere

nces

inde

velo

pmen

tal p

atte

rns

of c

hang

e in

eith

er in

fant

s or

thei

r fa

mili

esA

vera

ge d

evel

opm

enta

l cha

nge

inm

enta

l age

, ada

ptiv

e be

havi

or, a

ndpl

ay w

as p

redi

cted

bes

t by

the

seve

rity

of

the

child

's p

sych

omot

orim

pair

men

t at t

he ti

me

of s

tudy

entr

y, a

nd w

as n

ot c

orre

late

d w

ithfa

mily

cha

ract

eris

tics.

Pare

nts

who

exh

ibite

d hi

gh le

vels

of

pare

ntin

g st

ress

wer

e no

tsi

gnif

ican

tly d

iffe

rent

in te

rms

ofth

eir

dem

ogra

phic

s or

the

deve

lopm

enta

l cha

ract

eris

tics

of th

eir

child

ren

tlian

the

rest

of

the

sam

ple

Ove

rall,

fat

hers

exh

ibite

d gr

eate

rle

vels

of

pare

ntin

g st

ress

than

mot

hers

47ST

CO

PYA

UN

LA

DO

2741

8

......

.

Stat

e St

udy,

Con

nect

icut

:

1)So

cial

Com

pete

nce

Re:

sear

ch P

roje

ct(f

unde

d by

Ear

lyE

duca

tion

Prog

ram

for

Chi

ldre

n w

ithD

isab

ilitie

s br

anch

of th

e U

.S.

Dep

artm

ent o

fE

duca

tion)

2) S

tudy

2 (

fund

ed b

yO

SEP)

Occ

urre

d 19

93-1

996;

exam

ple

incl

uded

inSt

ate

Part

H E

valu

ator

s'C

onso

rtiu

m S

ynth

esis

R e

port

.

.

Stud

y 1:

37

child

ren

rece

ivin

gea

rly

inte

rven

tion

serv

ices

in 2

serv

ice

patte

rns.

No

betw

een

grou

p di

ffer

ence

s in

fam

ily, a

geat

ref

erra

l, pr

imar

yde

velo

pmen

tal n

eed.

Stud

y 2:

68

child

ren

rece

ivin

gse

rvic

es in

incl

usiv

e co

mm

unity

setti

ngs

oper

ated

by

the

Stat

eD

epar

tmen

t of

Men

tal

Ret

arda

tion.

Stud

y 1

exam

ined

the

effe

ct o

f tw

oea

rly

inte

rven

tion

setti

ngs

(int

egra

ted

com

mun

ity p

lace

men

ts v

s. s

egre

gate

dce

nter

-bas

ed p

rogr

ams)

on

soci

albe

havi

or a

nd d

evel

opm

ent o

f en

rolle

dC

hild

ren.

Dat

a w

as c

olle

cted

at 6

-m

onth

inte

rval

s be

ginn

ing

whe

nch

ildre

n en

tere

d th

e st

udy

at 2

4 .

mon

ths

of a

ge u

ntil

exit

at 3

6 m

onth

.42

-mon

th f

ollo

w-u

p.

Stud

y 2

exam

ined

the

diff

eren

tial.

effe

cts

of e

arly

inte

rven

tion

ofch

ildre

n w

ho r

ecei

ve, e

arly

inte

rven

tion

in d

ay c

are

prog

ram

s.T

he s

ampl

e w

as d

emog

raph

ical

lydi

vers

e. C

hild

ren

wer

e.fu

nctio

ning

at

half

thei

r ex

pect

ed d

evel

opm

enta

l age

on a

vera

ge. I

FSPs

incl

uded

an

aver

age

of 4

out

com

es, M

ainl

y ch

ildre

late

d. A

ll ch

ildre

n re

ceiv

edsp

ecia

lized

inst

ruct

ion

in th

ecl

assr

oom

. .,

Out

com

es in

clud

e ch

ild s

tatu

s(d

evel

opm

enta

l and

soc

ial c

ompe

tenc

yin

dice

s), f

amily

sta

tus

(mea

sure

s of

soc

ial

supp

ort,

com

mun

ity r

esou

rces

use

,at

titud

es),

ser

vice

cha

ract

eris

tics

(int

erve

ntio

n se

tting

, sta

ffin

g qu

alif

icat

ions

and

patte

rns,

ser

vice

type

and

inte

nsity

),

Stud

y 1: In in

clus

ive

clas

sroo

ms,

mor

ech

ildre

n w

/dis

abili

ties

wer

e be

ing

serv

ed, m

ore

time/

wk

was

spe

nt b

yth

e ch

ildre

n in

the

clas

sroo

m, a

ndin

stru

ctor

s ha

d hi

gher

leve

ls o

fed

ucat

ion.

No

diff

eren

ce f

ound

innu

mbe

r of

sta

ff in

cla

ssro

oms.

Chi

ldre

n in

seg

rega

ted

setti

ngre

ceiv

ed m

ore

nurs

ing,

spe

ech,

PT

and

OT

, whi

le th

ose

in in

clus

ive

setti

ng r

ecei

ved

high

er in

tens

ity o

fsp

ecia

lized

inst

ruct

ion.

No

diff

eren

ces

wer

e fo

und

on I

FSP

outc

omes

or

focu

s of

out

com

es.

At 3

6 m

onth

s, n

o ev

iden

ce w

as f

ound

for

an e

ffec

t of

setti

ng o

nde

velo

pmen

t.

Stud

y 2:

The

ave

rage

num

ber

of c

hild

ren

per

day

care

cla

ssro

om w

as 9

.13,

with

an

aver

age

of 3

.42

adul

ts. A

vera

gele

ngth

/day

. app

rox

3 hr

s. M

ost

freq

uent

ly o

ccur

ring

act

ivity

was

fre

epl

ay (

43%

of

obse

rvat

ions

).G

reat

er 'd

evel

opm

enta

l del

ay w

asre

late

d to

ear

lier

age

of r

efer

ral a

ndhi

gher

fam

ily in

com

e w

as r

elat

ed to

earl

ier

refe

rral

. Chi

ldre

n w

ithgr

eate

r de

velo

pmen

tal d

elay

and

child

ren

with

a g

reat

er f

amily

inco

me

also

rec

eive

d m

ore

serv

ices

..

Stat

e St

udy,

Mic

higa

n:

Ear

ly O

n E

valu

atio

nPr

ojec

t. Fu

nded

by

lead

agen

cy, e

xam

ple

incl

uded

in S

tate

Par

t HE

valu

ator

s' C

onso

rtiu

mSy

nthe

sis

Rep

ort.

Lar

ge-s

cale

sam

plin

g of

thos

ein

volv

ed in

the

stat

e ea

rly

inte

rven

tion

prog

xam

.

..

Eva

luat

es th

e st

ate

earl

y in

terv

entio

npr

ogra

m u

sing

sta

te tr

acki

ng d

ata,

prog

ram

coo

rdin

ator

sur

veys

, fam

ilysu

rvey

s, in

terv

iew

s an

d su

rvey

s w

ithad

min

istr

ator

s &

ser

vice

coo

rdin

ator

s,si

te s

umm

arie

s, v

igne

ttes

of f

amily

expe

rien

ces. 0

The

loca

l im

plem

enta

tion

surv

ey h

as

Incl

ude: Im

prov

ed a

vaila

bilit

y of

and

acc

ess

tose

rvic

es b

y fa

mili

es a

nd th

eir

serv

ice

coor

dina

tors

Impr

ovem

ents

in th

e se

rvic

e de

liver

ypr

oces

s (s

peci

fica

lly, i

ncre

ases

in th

edi

men

sion

s of

fam

ily c

ente

redn

ess,

fam

ily s

atis

fact

ion,

and

fam

ilype

rcep

tions

of

impa

cts)

Ong

oing

. Now

hav

e 3

year

s of

dat

a.

Dat

a sh

ow c

lear

sig

nifi

cant

rel

atio

nshi

psw

hich

bac

k th

e m

odel

:hi

gh im

plem

enta

tion-

) st

rong

er.

perc

eptio

n th

at s

taff

is f

amily

cen

tere

d-)

stro

nger

fam

ily p

erce

ptio

n of

sup

port

and

empo

wer

men

t-)

perc

eptio

n of

dec

reas

ing

stre

ss-)

incr

ease

d em

pow

erm

ent.

r n u

28

j:,0:

Ott:

Am

,:::::

:::11

:::r7

011.

0.to

ttir

os-

,,::::

::::::

.:::::

::::::

::::::

::::::

::::::

::::::

::::::

:::I

sm*

lc1:

::::::

::::::

::::::

::::::

::::::

::::!

::::::

:i::::

::::::

::::::

::::::

::::::

::::

T:1

IMM

O.-

":::

::::::

::::::

::::::

::::::

::::::

::::::

::::::

::::::

MR

::::::

::::::

:"'

SV.L

':::i:

::iiii

i:::::

::::::

::::::

::::::

::::::

::::::

::::::

:i:::

been

dis

trib

uted

ann

ually

to a

ll lo

cal

Part

H c

oord

inat

ors

and

thei

r ag

ency

coun

terp

arts

.

Fam

ily s

urve

y ha

s be

en a

dmin

iste

red

annu

ally

for

the

past

3 y

ears

to 6

00fa

mili

es. T

his

year

, lon

g or

sho

rtve

rsio

ns w

ill g

o to

all

fam

ilies

in th

est

ate

(app

rox.

350

0).

Incr

ease

s in

the

supp

ort f

amili

esre

ceiv

e fr

om b

oth

form

al a

nd in

form

also

urce

sIn

crea

ses

in a

rea

of f

amily

func

tioni

ng, i

nclu

ding

em

pow

erm

ent

and

copi

ngIn

flue

nce

of f

amily

and

chi

ldch

arac

teri

stic

s up

on th

e ab

ove-

men

tione

dou

tcom

esSt

ate

Stud

y, N

ewJe

rsey

:

New

Jer

sey

Ear

lyIn

terv

entio

n Sy

stem

Stud

y. B

arne

tt, W

.S.,

and

Fred

e,E

.C.,

in,

prog

ress

, exa

mpl

ein

clud

ed in

Sta

te P

art H

Eva

luat

ors'

Con

sort

ium

Synt

hesi

s R

epor

t.

Tw

o sa

mpl

es:

1)O

ne-t

ime,

cro

ss-s

ectio

nal

rand

om s

ampl

e of

220

fam

ilies

str

atif

ied

byco

unty

who

had

rece

ived

serV

ices

for

at l

east

12

mon

ths

2) A

long

itudi

nal r

ando

msa

mpl

e of

350

fam

ilies

stra

tifie

d by

cou

nty

who

had

just

qua

lifie

d fo

rse

rvic

es. B

asel

ine

asse

ssm

ents

, fol

low

-up

inte

rvie

ws

ever

y 6

mo

and

at e

xit a

ge 3

).(

Con

tinui

ng.

Des

igne

d to

obt

ain

and

anal

yze

data

on th

e co

st, q

ualit

y, a

nd o

utco

mes

of

EI

in N

ew J

erse

y.

Maj

or q

uest

ions

incl

uded

:

1) W

hat s

ervi

ces

are

prov

ided

?

2) W

ho is

ser

ved'

?3)

How

muc

h do

ser

vice

s co

st?

4) W

hat i

s th

e qu

ality

of

serv

ices

?5)

How

doe

s qu

ality

rel

ate

to c

ost

and

outc

omes

for

chi

ldre

n an

dfa

mili

es?

.

Sam

ple

#1w

as in

terv

iew

ed a

bout

thei

rco

sts,

the

serv

ices

they

wer

e re

ceiv

ing,

and

perc

eptio

ns o

f pr

ogra

m q

ualit

y an

d ef

fect

sof

ser

vice

s on

thei

r ch

ildre

n an

d fa

mili

es.

Sam

ple

#2In

form

atio

n on

erv

ices

was

prep

ared

fro

m p

aren

ts, p

rogr

am s

taff

,re

cord

s, a

nd in

depe

nden

t obs

erva

tion.

Mea

sure

s on

chi

ld a

nd f

amily

ben

efits

are

obta

ined

fro

m p

aren

t sel

f-re

port

and

stan

dard

ass

essm

ents

, inc

ludi

ng c

hild

deve

lopm

ent a

nd b

ehav

ior,

par

entin

gst

ress

, mot

her-

child

inte

ract

ion,

fam

ilych

arac

teri

stic

s. I

n fu

ture

, hop

e to

hav

e da

taon

pre

scho

ol e

d pl

acem

ents

, eva

luat

ions

for

pres

choo

l spe

cial

ed,

and

oth

er in

fo o

nch

ild o

utco

mes

.

In p

rogr

ess.

Uta

h E

arly

Int

erve

ntio

n(B

irth

to 5

) Pr

ojec

t;E

arly

Int

erve

ntio

nR

esea

rch

Inst

itute

150

Part

H15

5 Pa

rt B

volu

ntee

rs s

elec

ted

from

6re

pres

enta

tive

site

s

Thr

ee y

ear

stud

y. Q

uest

ions

incl

ude:

How

hav

e Pa

rts

H &

B f

orch

ildre

n 0-

5 an

d th

eir

fam

ilies

been

impl

emen

ted

in a

ccor

danc

ew

iili f

eder

al &

sta

te p

olic

ies?

Wha

t are

the

effe

cts

of E

Ise

rvic

es?

Wha

t are

the

over

all c

osts

of

EI?

1996

: One

trea

tmen

t ver

ific

atio

n, 1

pare

nt s

urve

y

1997

: up

to 8

trea

tmen

t ver

ific

atio

ns,

2 pa

rent

sur

veys

.

1998

: lik

e 19

97, p

his

surv

ey o

f

Des

ign

incl

udes

:Pa

rent

inte

rvie

ws

usin

g 2

sepa

rate

tool

s (V

inel

and

Ada

ptiv

e B

ehav

ior

Scal

ecom

mun

icat

ion

skill

s, d

aily

livin

g sk

ills,

mot

or s

kills

, and

soci

aliz

atio

n sk

ills)

(Ped

iatr

icE

valu

atio

n of

Dis

abili

ty In

vent

ory

self

-car

e sk

ills,

mob

ility

ski

lls, a

ndso

cial

fun

ctio

ning

)Pa

rent

/Tea

cher

/Int

erve

ntio

nist

Que

stio

nnai

re(S

ocia

l Ski

lls R

atin

gS

cale

ssoc

ial

skill

s &

sch

ool

.

beha

vior

)(T

reat

men

t Ven

ficat

ion

Form

quan

tity

of s

ervi

ces)

Fam

ily Q

uest

ionn

aire

s (P

aren

ts w

ere

paid

$30

for

com

plet

ed q

uest

ionn

aire

s

In p

rogr

ess.

Som

e pr

elim

inar

y re

sults

from

the

tran

sitio

n st

udy

incl

ude

satis

fact

ion

of p

aren

ts, p

rovi

ders

, lev

el o

fim

port

ance

pla

ced

on p

roce

ss, p

rogr

ams

tran

sitio

ned

into

, site

pla

cem

ent

.

diff

eren

ces

(no

sign

ific

ant d

iffe

renc

e).

5129

52

::::::

::::::

:::::1

::::::

::::E

ND

OM

ME

1:M

USt

atW

tran

sitio

n ou

t of

Part

Hre

turn

rat

e w

as h

igh)

: Par

entin

g

Als

o lo

oked

at p

rogr

amim

plem

enta

tion

issu

es s

uch

as s

ervi

cepr

ovis

ion,

eff

ectiv

enes

s of

LIC

Cs,

Stre

ss I

ndex

pare

ntal

str

ess,

inge

nera

l and

spe

cifi

c to

the

child

;Fa

mily

Sup

port

Sca

lepe

rcei

ved

supp

ort r

ecei

ved

by f

amily

; Fam

ilyA

dapt

abili

ty a

nd C

ohes

ion

.

Eva

luat

ion

Scal

efam

ily's

conn

ecte

dnes

s to

eac

h ot

her

and

the

way

s th

e fa

mily

dea

ls w

ith d

iffe

rent

fam

ily s

ituat

ions

; Ear

ly C

opin

gIn

vent

ory-

-par

ent p

erce

ptio

ns r

e th

ew

ay th

eir

child

rea

cts

to d

iffe

rent

even

ts; L

ife

Eve

nts

Inve

ntor

yin

vent

orie

s lif

e ev

ents

that

may

hav

eoc

curr

ed d

urin

g th

e pa

st y

ear;

Dem

ogra

phic

For

m; C

hild

Hea

lthFo

rm; F

amily

Foc

used

Int

erve

ntio

n.

Scal

eask

s ab

out s

ervi

ces

bein

gre

ceiv

ed f

rom

the

scho

ol d

istr

ict/e

arly

inte

rven

tion

prov

ider

, sat

isfa

ctio

nw

ith th

ese

serv

ices

, and

how

impo

rtan

t the

ser

vice

s ar

e co

nsid

ered

to b

e; A

dditi

onal

Ser

vice

s Fo

rm--

desc

ribe

s se

rvic

es f

amili

es'a

nd0

child

ren

rece

ive

outs

ide

of p

rim

ary

serv

ice

prog

ram

.D

irec

t Chi

ld A

sses

smen

ts (

Bat

elle

Dev

elop

men

tal I

nven

tory

--di

rect

mea

sure

of

cogn

itive

ski

lls)

Reg

iona

l pro

gram

cos

ts d

eter

nnne

d

53

30

54

THEORETICAL VIEWPOINTS

55

Bar

nett,

W.S

., an

dD

iscu

sses

con

side

ratio

ns in

taki

ng a

cos

t-be

nefi

t app

roac

h. E

xam

ples

of c

ost-

bene

fit a

naly

ses

pres

ente

d

Esc

obar

, C.M

. (19

90).

incl

ude

the

Perr

y Pr

esch

ool P

roje

ct, t

he a

dditi

on o

f IN

RE

AL

(a

lang

uage

inte

rven

tion

prog

ram

) to

Eco

nom

ic C

osts

and

pres

choo

l and

kin

derg

arte

n pr

ogra

ms,

the

Yal

e Fa

mily

Sup

port

Pro

ject

,an

d po

oled

ana

lyse

s by

the

Ben

efits

of

Ear

lyC

onso

rtiu

m f

or L

ongi

tudi

nal S

tudi

es. O

utco

mes

for

thes

e pr

ojec

tsin

clud

ed m

easu

res

of I

Q, s

choo

l

Inte

rven

tion.

In

S.J.

atte

ndan

ce, g

rade

ret

entio

n, s

peci

al e

duca

tion

plac

emen

t, le

vel o

fedu

catio

n, e

arni

ngs,

red

uced

wel

fare

Mei

sels

and

J.P

.co

sts,

and

cri

me/

delin

quen

cy. S

ome

cost

ben

efits

have

bee

n pr

ojec

ted

over

a li

fetim

e.

Shon

koff

(E

ds.)

,H

andb

ook

of E

arly

Evi

denc

e is

str

ong

that

ear

ly in

terv

entio

n w

ith d

isad

vant

aged

chi

ldre

nin

crea

ses

scho

ol s

ucce

ss, t

here

by

Inte

rven

tion

(pp.

560

-re

duci

ng th

e co

sts

of s

choo

ling.

In

addi

tion,

res

earc

h lin

ks e

duca

tiona

l suc

cess

to k

ey v

aria

bles

for

582)

. New

Yor

k:ec

onom

ic b

enef

its: e

arni

ngs

and

empl

oym

ent,

crim

inal

act

ivity

,ch

ildbe

arin

g, a

nd h

ealth

.

Cam

brid

ge U

nive

rsity

Pres

s.T

he a

utho

r no

tes

that

ther

e is

a s

ubst

antia

l bas

is f

or c

oncl

udin

gth

at E

I ca

n'pr

oduc

e im

med

iate

ben

efits

for

biol

ogic

ally

impa

ired

chi

ldre

n, a

nd th

at th

ese

are

of th

e sa

me

orde

r of

mag

nitu

de a

s in

itial

ben

efits

for

disa

dvan

tage

d ch

ildre

n. T

his

leav

es th

e po

ssib

ility

of

sim

ilar

long

-ter

mbe

nefi

ts f

or b

iolo

gica

lly im

pair

ed

child

ren.

Ben

efits

for

dis

adva

ntag

ed c

hild

ren

and

thei

r pa

rent

s w

ere

foun

d in

the

area

s of

chi

ld c

are,

educ

atio

nal c

osts

, em

ploy

men

t and

ear

ning

s, c

rim

e an

d de

linqu

ency

,an

d w

elfa

re. B

enef

its to

bio

logi

cally

impa

ired

chi

ldre

n an

d th

eir

fam

ilies

see

m p

ossi

ble

in a

ll th

ese

area

s, o

ther

than

cri

me

and

delin

quen

cy, w

hich

the

auth

or a

ssum

es to

be

negl

igib

le f

or p

erso

ns w

ith m

ore

seve

reha

ndic

aps.

Ben

efits

to p

aren

ts w

ould

likel

y di

ffer

. Mod

est d

ecre

ases

in th

e in

tens

ity o

f re

quir

ed s

peci

aled

ucat

ion

mig

ht g

ener

ate

sign

ific

ant c

ost

savi

ngs,

and

incr

ease

s in

cog

nitiv

e an

d so

cial

abi

litie

s, a

nd e

spec

ially

daily

livi

ng s

kills

, mig

ht g

ener

ate

sign

ific

ant b

enef

its to

fam

ilies

of

hand

icap

ped

pers

ons

and

gene

rally

redu

ce c

osts

to s

ocie

ty to

the

exte

nt

that

the

abili

ty f

or in

depe

nden

t liv

ing

is in

crea

sed.

Bla

ir C

. and

Ram

ey C

.T.

The

aut

hors

exa

min

e ra

ndom

ized

con

trol

led

tria

ls o

f ea

rly

inte

rven

tion

for

low

bir

thw

eigh

t inf

ants

(199

7). E

arly

cond

ucte

d si

nce

1986

by

focu

sing

on

seco

nd-g

ener

atio

n re

sear

chis

sues

rel

ated

to g

ener

al p

rogr

am f

acto

rs

Inte

rven

tion

for

Low

-th

at d

eter

min

e ef

fect

iven

ess

of th

e in

terv

entio

n an

d is

sues

rel

ated

toch

ild a

nd f

amily

cha

ract

eris

tics

that

may

Bir

th-W

eigh

t Inf

ants

and

the

Path

to S

econ

d-m

edia

te o

r m

oder

ate

the

earl

y pr

even

tive

inte

rven

tion.

Gen

erat

ion

Res

earc

h..

Und

erly

ing

prog

ram

fac

tors

of

effe

ctiv

e in

terv

entio

n ap

pear

to b

e:in

tens

ity, t

imin

g, d

irec

t ver

sus

In M

.J. G

ural

nick

(E

d.),

inte

rmed

iary

pro

visi

on o

f se

rvic

es, e

nvir

onm

enta

l mai

nten

ance

of

gain

s,co

mpr

ehen

sive

ness

, and

atte

ntio

n

5633

57

58

The

Eff

ectiv

enes

s of

to in

divi

dual

dif

fere

nces

in p

rogr

am d

eliv

ery.

Ear

ly I

nter

vent

ion.

Bal

timor

e: P

aul

Chi

ld f

acto

rs s

uch

as r

espo

nsiti

vity

to e

arly

inte

rven

tion

as a

fun

ctio

n of

the

infa

nt's

bir

thw

eigh

t,H

.Bro

okes

Pub

lishi

ngte

mpe

ram

enta

l, m

otiv

atio

nal a

nd a

ttent

iona

l dif

fere

nces

are

con

side

red

as w

ell a

s fa

mily

cha

ract

eris

tics

such

Co,

pp.

77

- 97

.as

mat

erna

l atti

tude

s, m

ater

nal e

duca

tion

and

soci

al s

uppo

rt.

Sugg

este

d ou

tcom

es n

eedi

ng s

yste

mat

ic a

ttent

ion

incl

ude:

Part

icip

atio

n in

inte

rven

tion

rout

ines

Kno

wle

dge

gain

ed th

roug

h in

terv

entio

nM

ater

nal r

espo

nsiv

enes

sPa

rent

-chi

ld in

tera

ctio

n

In s

umm

ary,

sin

ce 1

986

the

effe

ctiv

enes

s of

ear

ly in

terv

entio

n fo

r lo

w b

irth

wei

ght i

nfan

ts h

as b

een

relia

bly

obse

rved

in a

num

ber

of m

etho

dolo

gica

lly s

ound

stu

dies

. Stu

dy r

esul

ts in

dica

te th

at e

arly

inte

rven

tion

atte

nuat

es th

e de

clin

e in

IQ

that

typi

cally

occ

urs

in lo

w b

irth

wei

ght i

nfan

ts in

con

tras

t to

norm

al b

irth

wei

ght

infa

nts

over

the

firs

t few

yea

rs o

f lif

e. I

nter

vent

ion

grou

p IQ

appe

ars

stab

le o

r de

clin

es s

light

ly o

ver

time.

Con

trol

gro

up in

fant

s sh

ow a

mor

e pr

ecip

itous

dec

line

over

the

firs

t yea

rs o

f lif

e.

Res

earc

h fi

ndin

gs c

once

rnin

g de

term

inan

ts o

f ef

fect

iven

ess

for

low

bir

thw

eigh

t inf

ants

indi

cate

that

com

preh

ensi

ve, i

nten

sive

inte

rven

tions

that

beg

in e

arly

are

mos

t lik

ely

to b

e ef

fect

ive

and

that

mat

erna

led

ucat

ion

leve

l and

bir

thw

eigh

t act

as

mod

erat

ing

infl

uenc

es o

n ef

fect

iven

ess.

Rec

omm

enda

tions

are

mad

e fo

r pa

rent

-foc

used

ser

vice

s (t

o cr

eate

an

envi

ronm

ent i

n w

hich

inte

rven

tion

gain

s ca

n be

mai

ntai

ned)

com

bine

d w

ith a

chi

ld-f

ocus

ed e

duca

tiona

l chi

ld c

are

prog

ram

.

Sugg

este

d in

vest

igat

iona

l are

as in

clud

e: p

aren

t-fo

cuse

d in

terv

entio

ns f

or c

hild

ren

with

bir

thw

eigh

t <1,

500g

and

NIC

U s

timul

atio

n.

Gur

alni

ck, M

..J.

The

re a

ppea

rs to

be

a ge

nera

l con

sens

us th

at th

e br

oad

prin

cipl

es g

uidi

ng s

ucce

ssfu

l ear

ly in

terv

entio

n(1

997)

. Sec

ond-

prog

ram

s in

clud

e pr

ogra

ms

that

cen

ter

on th

e ne

eds

of f

amili

es, a

re b

ased

in lo

cal c

omm

uniti

es, a

re a

ble

toG

ener

atio

n R

esea

rch

thor

ough

ly a

nd e

ffic

ient

ly in

tegr

ate

the

cont

ribu

tions

of

mul

tiple

dis

cipl

ines

, and

hav

e th

e ca

paci

ty to

pla

nin

the

Fiel

d of

Ear

lyan

d co

ordi

nate

sup

port

s an

d se

rvic

es f

rom

num

erou

s ag

enci

es w

ithin

a s

yste

ms

fram

ewor

k.

34

AU

TU

OR

..

fluO

RY

-RE

CO

MM

EN

DA

T1O

NS

,

Inte

rven

tion.

In

M.I

.A

con

cept

ual m

odel

of

deve

lopm

ent i

s pr

esen

ted

that

rep

rese

nts

a lin

kage

bet

wee

n fa

ctor

s in

flue

ncin

g ea

rly

Gur

alni

ck (

Ed.

), T

hech

ildho

od d

evel

opm

ent a

nd th

e co

mpo

nent

s of

ear

ly in

terv

entio

n pr

ogra

ms.

Und

erly

ing

this

link

age

is th

eE

ffec

tiven

ess

of E

arly

conc

eptu

aliz

atio

n of

ris

k an

d di

sabi

lity

stat

us a

s st

ress

ors

capa

ble

of a

dver

sely

aff

ectin

g fa

mily

inte

ract

ion

Inte

rven

tion,

patte

rns

that

gov

ern

the

deve

lopm

enta

l out

com

es o

f ch

ildre

n.B

altim

ore:

Pau

l H.

Bro

okes

Pub

lishi

ngT

he th

ree

prox

imal

fam

ily p

atte

rns

of in

tera

ctio

n th

at h

ave

wel

l-es

tabl

ishe

d as

soci

atio

ns w

ith a

chi

ld's

Co,

pp.

3-

20.

deve

lopm

enta

l out

com

e ar

e:Q

ualit

y of

par

ent-

child

tran

sact

ions

Fam

ily-o

rche

stra

ted

child

exp

erie

nces

Hea

lth a

nd s

afet

y pr

ovid

ed b

y fa

mily

Fam

ily c

hara

cter

istic

s or

con

text

ual f

acto

rs w

hich

aff

ect t

hese

fam

ily p

atte

rns

of in

tera

ctio

n in

clud

e:Pe

rson

al c

hara

cter

istic

s of

par

ents

(e.

g., d

egre

e of

dep

ress

ion,

leve

l of

educ

atio

n, in

terg

ener

atio

nal

pare

ntin

g ex

peri

ence

s in

clud

ing

cultu

ral e

xpec

tatio

ns)

Cha

ract

eris

tics

not r

elat

ed to

chi

ld's

dis

abili

ty o

r bi

olog

ical

ris

k st

atus

(e.

g., s

ocia

l sup

port

, mar

ital

rela

tions

hip,

fin

anci

al r

esou

rces

, chi

ld te

mpe

ram

ent)

In a

dditi

on to

the

pote

ntia

l of

fam

ily c

hara

cter

istic

s ac

ting

as s

tres

sors

to o

ptim

al f

amily

pat

tern

s, th

ere

are

four

cat

egor

ies

of p

oten

tial s

tres

sors

for

fam

ilies

cre

ated

by

child

dis

abili

ty o

r bi

olog

ical

ris

k:In

form

atio

n ne

eds

Inte

rper

sona

l and

fam

ily d

istr

ess

Res

ourc

e ne

eds

Con

fide

nce

thre

ats

Dif

fere

nt a

ppro

ache

s to

ear

ly in

terv

entio

n ar

e ca

lled

for

depe

ndin

g on

the

orig

in a

nd n

atur

e of

str

esso

rs a

ndto

be

effe

ctiv

e, s

ervi

ces

mus

t be

resp

onsi

ve to

fam

ily-i

dent

ifie

d ne

eds.

Com

pone

nts

for

a co

ordi

nate

d ea

rly

inte

rven

tion

prog

ram

whe

re n

eeds

hav

e be

en id

entif

ied

in a

ll fo

ur c

ateg

orie

s of

pot

entia

l str

esso

rs c

reat

ed b

ych

ildre

n w

ith e

stab

lishe

d di

sabi

litie

s or

thos

e at

bio

logi

cal r

isk

incl

ude:

res

ourc

e su

ppor

ts, s

ocia

l sup

port

s,an

d in

form

atio

n an

d se

rvic

es. I

t was

poi

nted

out

that

var

ious

ear

ly in

terv

entio

n pr

ogra

m f

eatu

res

will

be

diff

eren

tially

eff

ectiv

e fo

r ch

ildre

n w

ith d

iffe

rent

type

s of

dis

abili

ties.

6035

61

lail

OR

TH

EO

RY

-RW

OM

ME

ND

AT

ION

SPr

ogra

m c

ompo

nent

s fo

r fa

mili

es a

t hig

h ri

sk m

ay r

equi

re in

tens

ific

atio

n of

the

form

al a

spec

ts o

f ea

rly

inte

rven

tion

prog

ram

s as

soci

ated

with

the

info

rmat

ion

and

serv

ices

com

pone

nt in

clud

ing

exte

nsiv

e ho

me

visi

ts r

egar

ding

chi

ld c

are

to f

acili

tate

the

qual

ity o

f pa

rent

-chi

ld tr

ansa

ctio

ns, e

nrol

lmen

t in

high

-qua

lity,

high

ly in

tens

ive,

inte

rven

tion-

orie

nted

chi

ld c

are

or p

resc

hool

pro

gram

s to

pro

vide

nee

ded

expe

rien

ce n

otfo

und

in th

e ho

me,

and

est

ablis

hmen

t of

clos

e co

nnec

tions

with

loca

l pub

lic h

ealth

cen

ters

to e

nsur

e he

alth

and

safe

ty.

In th

e re

view

of

the

effe

ctiv

enes

s of

ear

ly in

terv

entio

n pr

ogra

ms

for

child

ren

with

dev

elop

men

tal d

isab

ilitie

san

d bi

olog

ical

ris

k, w

hile

ack

now

ledg

ing

met

hodo

logi

cal p

robl

ems

with

fir

st g

ener

atio

n re

sear

ch s

tudi

es,

supp

ort f

or th

e ge

nera

lly h

eld

opin

ion

that

ear

ly in

terv

entio

n pr

ogra

ms

are

effe

ctiv

e w

as n

oted

with

eff

ect

size

s av

erag

ing

betw

een

one-

half

and

thre

e-qu

arte

rs o

f a

stan

dard

dev

iatio

n.

In d

iscu

ssin

g di

rect

ions

for

sec

ond-

gene

ratio

n re

sear

ch, t

he id

entif

icat

ion

of th

ose

spec

ific

pro

gram

fea

ture

sth

at a

re a

ssoc

iate

d w

ith o

ptim

al o

utco

mes

for

chi

ldre

n an

d fa

mili

es w

as n

oted

as

an im

port

ant t

ask.

The

mod

el p

rese

nted

in th

is c

hapt

er li

nkin

g fa

ctor

s th

at a

ffec

t ear

ly c

hild

hood

dev

elop

men

t and

the

com

pone

nts

of e

arly

inte

rven

tion

is s

ugge

sted

as

a fr

amew

ork

for

orga

nizi

ng s

econ

d-ge

nera

tion

rese

arch

que

stio

ns.

Impo

rtan

t fac

tors

to e

xam

ine

in lo

okin

g at

inte

ract

ion

patte

rns

betw

een

prog

ram

fea

ture

s an

d ch

ild a

ndfa

mily

cha

ract

eris

tics

incl

ude

seve

rity

of

the

child

's d

isab

ility

or

risk

sta

tus,

sev

erity

of

fam

ily r

isk,

and

the

type

of

child

-rel

ated

dis

abili

ty o

r ri

sk.

The

exp

ansi

on o

f ou

tcom

e m

easu

res

from

the

prim

ary

dom

ains

of

cogn

itive

, lan

guag

e, a

ffec

tive,

and

mot

orde

velo

pmen

t to

outc

ome

mea

sure

s th

at r

efle

ct a

bro

ader

per

spec

tive

of th

e go

als

of e

arly

inte

rven

tion

such

as th

e in

tegr

ativ

e do

mai

ns o

f ch

ildre

n's

soci

al c

ompe

tenc

e or

impr

ovem

ent o

f ch

ildre

n's

heal

th s

tatu

s is

reco

mm

ende

d.

In s

umm

ary

a m

ultid

imen

sion

al m

odel

is p

rese

nted

not

ing

the

thre

e pr

imar

y el

emen

ts th

at s

houl

d be

cons

ider

ed b

y se

cond

-gen

erat

ion

rese

arch

ers:

the

infl

uenc

e of

pro

gram

fea

ture

s, th

e in

flue

nce

of c

hild

and

fam

ily c

hara

cter

istic

s, a

nd th

e sp

ecif

ic o

utco

mes

or

goal

s of

ear

ly in

terv

entio

n.

62

36

63

AIM

'G

ural

nick

, M.J

. and

In r

elat

ion

to o

utco

me

mea

sure

s, th

e au

thor

s re

com

men

d ex

pans

ion

of m

easu

rem

ent s

yste

ms

beyo

ndB

rick

er, D

. (19

87).

The

prim

arily

cog

nitiv

e m

easu

res

to th

e po

tent

ially

impo

rtan

t fol

low

ing

outc

omes

of

earl

y. in

terv

entio

n:E

ffec

tiven

ess

of E

arly

Soci

al c

ompe

tenc

eIn

terv

entio

n fo

r C

hild

ren

Mot

ivat

ion

with

Cog

nitiv

e an

dFa

mily

fun

ctio

ning

.

Gen

eral

Dev

elop

men

tal

Prob

lem

-sol

ving

ski

llsD

elay

s. I

n M

.J.

Gur

alni

ck a

nd F

.C.

Ben

nett

(Eds

.), T

heE

ffec

tiven

ess

of E

arly

Inte

rven

tion

For

At-

Ris

k.

and

Han

dica

pped

.

Chi

ldre

n. N

ew Y

ork:

Aca

dem

ic P

ress

, pp.

115-

173.

Gur

alni

ck, M

.J. a

ndT

he d

omai

n of

soc

ial c

ompe

tenc

e, a

cen

tral

org

aniz

ing

cons

truc

t in

the

stud

y of

hum

an d

evel

opm

ent,

isN

evill

e, B

. (19

97).

reco

mm

ende

d as

an

impo

rtan

t out

com

e of

ear

ly in

terv

entio

n. S

ocia

l com

pete

nce

is s

een

as a

cen

tral

Des

igni

ng E

arly

mec

hani

sm f

oste

ring

the

goal

of

inde

pend

ence

, whi

ch h

as b

een

a lo

ng e

stab

lishe

d pr

iori

ty.

Inte

rven

tion

Prog

ram

sto

Pro

mot

e C

hild

ren'

sR

esea

rch

in th

e ge

nera

l pop

ulat

ion

has

docu

men

ted

intr

icat

e lin

kage

s th

at e

xist

bet

wee

n fa

mily

and

pee

rSo

cial

Com

pete

nce.

rela

tions

hips

. Fou

r as

pect

s of

fam

ily in

flue

nce

that

app

ear

to h

ave

stro

ng a

ssoc

iatio

ns w

ith c

hild

ren'

s pe

er-

In M

.J. G

ural

nick

rela

ted

soci

al c

ompe

tenc

e in

clud

e:(E

d.),

The

Ear

ly c

areg

iver

-chi

ld r

elat

ions

hips

Eff

ectiv

enes

s of

Ear

lyPa

rent

-chi

ld in

tera

ctio

nsIn

terv

entio

n.C

hild

's p

eer

soci

al n

etw

ork

Bal

timor

e: P

aul H

.Pa

rent

al a

ttitu

des

and

belie

fs r

egar

ding

pee

r re

latio

nshi

ps.

Bro

okes

Pub

lishi

ngC

o, p

p. 5

79 -

610

.So

cial

sup

port

app

ears

to b

e an

impo

rtan

t fac

tor

in f

oste

ring

dev

elop

men

t. T

his

incl

udes

bot

h in

form

also

urce

s of

sup

port

by

fam

ily m

embe

rs a

nd f

rien

ds a

nd f

orm

al s

ourc

es o

f su

ppor

t pro

vide

d by

pro

fess

iona

lsan

d ag

enci

es; e

.g.,

info

rmat

iona

l sup

port

. Soc

ial s

uppo

rt is

rel

ated

to p

eer-

rela

ted

soci

al c

ompe

tenc

e.It

app

ears

to b

e pa

rtic

ular

ly v

alua

ble

in b

uffe

ring

dif

ficu

lt ci

rcum

stan

ces

such

as

thos

e as

soci

ated

with

ach

ild's

cha

ract

eris

tics

(chi

ldre

n w

ith d

iffi

cult

tem

pera

men

ts).

Soc

ial s

uppo

rt h

as b

oth

dire

ct a

nd in

dire

ct

6 4

37

UM

...

__...

::. N

eVir

.

linka

ges

to c

hild

ren'

s pe

er-r

elat

ed s

ocia

l com

pete

nce.

The

nat

ure

of th

is in

flue

nce

is p

resu

med

to o

ccur

prim

arily

thro

ugh

indi

rect

eff

ects

, suc

h as

thro

ugh

faci

litat

ing

secu

re a

ttach

men

ts, h

elpi

ng to

est

ablis

hpo

sitiv

e m

ater

nal p

erce

ptio

ns o

r co

gniti

ons

or r

educ

ing

intr

usiv

e pa

rent

ing

styl

es.

It is

not

ed th

at c

hild

ren

at b

iolo

gica

l ris

k, e

spec

ially

pre

mat

ure,

low

bir

thw

eigh

t chi

ldre

n an

d th

ose

with

esta

blis

hed

disa

bilit

ies

have

unu

sual

dif

ficu

lties

in p

eer-

rela

ted

soci

al c

ompe

tenc

e.

Ris

k fa

ctor

s to

the

deve

lopm

ent o

f a

child

's s

ocia

l com

pete

nce

incl

ude

diff

icul

t chi

ld c

hara

cter

istic

s pa

ired

with

the

abse

nce

of a

dequ

ate

soci

al s

uppo

rts.

Pret

erm

, low

bir

thw

eigh

t inf

ants

with

out i

nter

vent

ion

show

a g

radu

al d

eclin

e ov

er th

e fi

rst t

hree

yea

rs o

flif

e. T

his

can

be a

void

ed w

ith f

amily

7cen

tere

d in

terv

entio

ns, w

hich

res

ult i

n in

crea

sed

cogn

itive

com

pete

nce

and

soci

al c

ompe

tenc

e.

Inte

rven

tion

stra

tegi

es a

re s

ugge

sted

incl

udin

g 10

pri

ncip

les

or p

ract

ices

that

are

rel

ated

to th

e so

cial

com

pete

nce

fram

ewor

k. O

ne o

f th

ese

prin

cipl

es r

ecom

men

ds e

mph

asiz

ing

pare

nt-c

hild

soc

ial a

ndem

otio

nal r

elat

ions

hips

rat

her

than

par

ent-

child

inst

ruct

iona

l or

dida

ctic

type

s of

rel

atio

nshi

ps.

Har

ris,

S. R

. (19

97).

The

exi

stin

g bo

dy o

f re

sear

ch o

ffer

s lit

tle, i

f an

y, s

uppo

rt f

or tr

eatm

ent g

oals

that

are

aim

ed a

tT

he E

ffec

tiven

ess

of"n

orm

aliz

ing"

mus

cle

tone

or

enha

ncin

g th

e "q

ualit

y" o

f m

ovem

ent.

The

cur

rent

tren

d is

to e

xam

ine

Ear

ly I

nter

vent

ion

for

outc

omes

that

are

mor

e fu

nctio

nal i

n na

ture

, aim

ed a

t min

imiz

ing

the

child

's d

isab

ility

, rat

her

than

try

toC

hild

ren

with

chan

ge u

nder

lyin

g im

pair

men

ts. F

unct

iona

l ski

lls:

Cer

ebra

l Pal

sy a

ndA

re im

med

iate

ly u

sefu

lR

elat

ed M

otor

Ena

ble

a ch

ild to

be

mor

e in

depe

nden

tD

isab

ilitie

s. I

n M

.J.

Allo

w a

chi

ld to

lear

n m

ore

com

plex

ski

llsG

ural

nick

(E

d.),

The

.A

llow

a c

hild

to li

ve in

a le

ss r

estr

ictiv

e en

viro

nmen

tE

ffec

tiven

ess

of E

arly

Ena

ble

a ch

ild to

be

care

d fo

r m

ore

easi

ly b

y th

e fa

mily

and

oth

ers.

Inte

rven

tion

(pp.

327

-34

8). B

altim

ore:

Pau

lT

he e

mer

ging

em

phas

is is

on

usin

g ou

tcom

e m

easu

res

that

are

bot

h ev

alua

tive

(use

d to

ass

ess

the

amou

ntH

. Bro

okes

Pub

lishi

ngof

cha

nge

over

tim

e or

as

a di

rect

res

ult o

f in

terv

entio

n) a

nd r

espo

nsiv

e to

cha

nge.

Co.

3867

MY

IBO

R:::

::::::

::::::

::::::

::::::

::::::

:::::

-:.1

:TR

EH

.., -

.....

.: M

IRE

:.:.

..

.,..

...-.

.,::::

::::::

::::::

::::::

::::::

::::::

:::::.

...""

"'":

::::::

:E.

.C

ritic

s ha

ve c

omm

ente

d th

at th

ere

has

been

a m

ism

atch

bet

wee

n th

e go

als

of in

terv

entio

n an

d th

e to

ols

used

to m

easu

re th

e ef

fect

s of

inte

rven

tion.

Stu

dies

hav

e re

lied

on d

iscr

imin

ativ

e te

sts

of m

otor

mile

ston

es o

rsP

ecif

ic m

easu

res

of im

pair

men

t, su

ch a

s ra

nge

of m

otio

n, M

uscl

e st

reng

th, o

r m

uscl

e to

ne. F

utur

e re

sear

chm

ust i

nclu

de o

utco

mes

that

are

fun

ctio

nal,

clin

ical

ly r

elev

ant,

and

resp

onsi

ve to

cha

nge,

and

sho

uld

eval

uate

the

effe

cts

of in

terv

entio

n on

the

child

's c

areg

iver

s. R

esea

rch

shou

ld c

ontin

ue to

exa

min

e th

e re

lativ

eef

fect

s of

dif

fere

nt p

rogr

ams

and

serv

ice

mod

els.

Hau

ser-

Cra

m, P

., an

dSh

onko

ff, J

.P.

(198

8). R

ethi

nkin

gth

e A

sses

smen

t of

Chi

ld-F

ocus

edO

utco

mes

,E

valu

atin

g Fa

mily

Prog

ram

s (p

p. 7

3-94

). N

ew Y

ork:

Ald

ine

de G

ruyt

er.

Des

crib

es c

omm

only

use

d no

rmed

ass

essm

ent s

cale

s/in

stru

men

ts :

Bay

ley

Scal

es o

f In

fant

Dev

elop

men

t are

the

best

sta

ndar

dize

d, m

ost f

requ

ently

use

d. H

owev

er,

cogn

itiV

e as

sess

men

ts a

re s

till h

eavi

ly d

epen

dent

on

mot

or s

kills

..

IQ a

nd a

chie

vem

ent t

ests

are

ref

lect

ive

of p

erso

nalit

y va

riab

les

and

mot

ivat

ion

in a

test

situ

atio

n. T

hey

are

narr

ow in

foc

us, w

hile

pro

gram

s ty

pica

lly a

im to

cha

nge

beha

vior

in m

any

dom

ains

(as

1 o

f se

vera

lou

tcom

e m

easu

tes,

they

can

be

usef

ulas

the

only

mea

sure

of

prog

ram

eff

ectiv

enes

s, th

ey m

ay b

ein

appr

opri

ate

and

mis

lead

ing)

.

Rec

omm

ends

bot

h sh

ort-

and

long

-ter

m o

utco

mes

. Sho

rt: u

sual

ly s

peci

fic

skill

are

as s

uch

as m

otor

ski

lls,

lang

uage

per

form

ance

, cog

nitiv

e ab

ility

. Per

sist

ent l

ong-

term

out

com

es m

ay in

clud

e su

stai

ned

impr

ovem

ent

in s

elf-

este

em a

nd ta

sk m

otiv

atio

n, le

ss s

peci

al e

duca

tion,

bet

ter

high

sch

ool c

ompl

etio

n, a

void

ance

of

delin

quen

cy, s

ucce

ssfu

l em

ploy

men

t in

adul

t lif

e. N

ew d

omai

ns to

con

side

r: S

ocia

l com

pete

nce:

sch

ool-

rela

ted

incl

udes

rat

es o

f ab

sent

eeis

m, c

ompl

etio

n of

hom

ewor

k, te

ache

r &

stu

dent

rat

ings

of

clas

sroo

mbe

havi

or, a

ttitu

des

tow

ard

scho

ol, a

spir

atio

ns f

or th

e fu

ture

; des

crib

es in

stru

men

ts/s

cale

s w

hich

mea

sure

soci

al c

ompe

tenc

e/ p

eer

inte

ract

ions

; Sel

f-re

gula

tory

beh

avio

rs: a

ttent

ion

(mea

sure

d by

Par

ent o

r te

ache

rch

eckl

ists

, dir

ect o

bser

vatio

n m

easu

res,

vig

ilanc

e ta

sksi

nstr

umen

t exa

mpl

es);

mot

ivat

ion

and

curi

osity

.

Hau

ser-

Cra

m, P

enny

.(1

990)

. Des

igni

ngm

eani

ngfu

lev

alua

tions

of

earl

yin

terv

entio

n se

rvic

es,

In S

.J. M

eise

ls a

ndJ.

P. S

honk

off

(Eds

.),

Han

dboo

k of

Ear

lyIn

terv

entio

n (p

p. 5

83-

Prog

ram

:W

hile

ther

e m

ay b

e a

need

for

bro

ad-b

ased

fin

ding

s in

eva

luat

ion,

pro

gram

s m

ay d

iffe

r su

bsta

ntia

llyfr

om o

ne a

noth

er. S

uita

ble

and

effi

cien

t way

s of

doc

umen

ting

such

var

iatio

n ne

ed to

be

foun

d.C

onSi

der

serv

ices

act

ually

impl

eine

nted

. Ser

vice

s pl

anne

d fo

r a

child

and

fam

ily a

re o

ften

qui

te d

iffe

rent

from

thos

e re

ceiv

ed. A

spec

ts o

f im

plem

enta

tion

whi

ch r

equi

re a

ttent

ion

incl

ude:

1) w

heth

er th

ere

has

been

suf

fici

ent q

uant

ity o

f se

rvic

e fo

r an

impa

ct; 2

) ho

w th

e pr

ogra

m p

rodu

ces

its r

esul

ts; a

nd 3

)m

easu

rabl

e sp

ecif

icat

ion

and

iden

tific

atio

n of

ser

vice

s.

?

6839

69

MI

IBE

OR

Y-R

EC

OM

ME

ND

AT

ION

S60

2). N

ew Y

ork:

Succ

ess:

Cam

brid

ge U

nive

rsity

Mos

t eva

luat

ions

hav

e de

fine

d su

cces

s as

chi

ld c

ogni

tive

gain

. Yet

con

vent

iona

l mea

sure

s of

IQ

and

Pres

s.D

Q f

or in

fant

s an

d to

ddle

rs h

ave

poor

pre

dict

ive

valid

ity. C

ritic

ism

of

thes

e m

easu

res

incl

udes

:In

abili

ty to

dis

tingu

ish

betw

een

norm

al a

nd d

isab

led

child

ren

with

in th

e yo

unge

st a

ge g

roup

sSt

eep

grad

ient

of

cert

ain

test

s, s

uch

that

sm

all d

iffe

renc

es y

ield

larg

e sc

ore

chan

ges

Lac

k of

an

appr

opri

ate

(dis

able

d) r

efer

ence

pop

ulat

ion

Hea

vy d

epen

denc

e on

mot

or a

nd p

erce

ptua

l-m

otor

ski

lls, h

ence

mis

lead

ing

resu

lts f

or c

hild

ren

with

mot

or im

pair

men

tsG

loba

l nat

ureo

ften

inse

nsiti

ve to

type

s of

spe

cifi

c ch

ange

s in

dev

elop

men

t (ta

rget

cha

nges

may

be

obsc

ured

by

lack

of

chan

ges

in o

ther

are

as, s

uch

as m

otor

ski

lls)

,

EI

prog

ram

s se

ek to

aff

ect a

bro

ad r

ange

of

deve

lopm

enta

l dom

ains

, suc

h as

fun

ctio

nal s

kills

, soc

ial

com

pete

nce,

sel

f-re

gula

tory

beh

avio

rs, m

otiv

atio

n, a

nd c

urio

sity

. An

arra

y of

chi

ld o

utco

mes

is o

ften

requ

ired

to u

nder

stan

d pr

ogra

m e

ffec

ts. N

ew in

stru

men

ts h

ave

been

rep

orte

d w

hich

are

dir

ecte

d at

dom

ains

for

whi

ch th

ere

are

no s

tand

ardi

zed

mea

sure

s. T

rian

gula

tion

of m

easu

rem

ent c

an d

imin

ish

risk

invo

lved

in u

sing

inst

rum

ents

whi

ch m

ay la

ck s

uffi

cien

t doc

umen

tatio

n of

psy

chom

etri

c pr

oper

ties

and

stan

dard

izat

ion

for

atyp

ical

pop

ulat

ions

.C

onsi

der

both

sho

rt-

and

long

-ter

m e

ffec

ts, s

uch

as la

ter

scho

ol a

djus

tmen

t, pe

er in

tera

ctio

n, a

mou

ntan

d ty

pe o

f ad

ditio

nal s

ervi

ces,

pla

cem

ent i

n an

inte

grat

ed o

r se

greg

ated

set

ting,

par

enta

l adv

ocac

y, a

ndpa

rent

-sch

ool r

elat

ions

hips

.E

I pr

ogra

ms

serv

e a

wid

e ra

nge

of c

hild

ren

and

fam

ilies

. Con

side

r su

bgro

up c

lass

ific

atio

ns. P

ast

eval

uatio

ns h

ave

gene

rally

bee

n ba

sed

on d

iagn

ostic

gro

ups.

Oth

er r

ecom

men

datio

ns h

ave

incl

uded

focu

sing

on

diff

eren

ces

in f

unct

iona

l sta

tus,

and

by

seve

rity

of

disa

bilit

y ra

ther

than

by

type

of

disa

bilit

y.In

mos

t pro

gram

s, p

aren

ts a

re a

lso

part

icip

ants

. Sel

ectio

n of

out

com

e m

easu

res

of f

amily

impa

ct s

houl

dbe

gui

ded

by p

rogr

am m

odel

. Mod

el e

xam

ples

incl

ude

the

pare

nt th

erap

y m

odel

(as

sist

ed th

roug

hco

unse

ling

or s

uppo

rt g

roup

s to

hel

p re

solv

e st

ress

rel

ated

to r

aisi

ng a

chi

ld w

ith d

isab

ilitie

s), t

he p

aren

ttr

aini

ng m

odel

(em

phas

izes

rol

e of

par

ent b

ehav

ior

in te

achi

ng s

kill

to a

chi

ld),

and

the

pare

nt-c

hild

inte

ract

ion

mod

el (

assi

stin

g th

e pa

rent

in le

arni

ng to

rea

d th

e ch

ild's

cue

s an

d in

bei

ng s

ensi

tive

to th

ech

ild's

nee

ds).

The

se m

odel

s re

ly o

n th

eeco

logi

cal v

iew

of

child

and

fam

ily a

nd o

n th

e tr

ansa

ctio

nal

natu

re o

f de

velo

pmen

t.M

ore

prec

ise

and

accu

rate

fin

ding

s ca

n be

gen

erat

ed if

dat

a ar

e an

alyz

ed in

term

s of

sub

grou

ps o

ffa

mili

es. S

trat

egie

s in

clud

e de

mog

raph

ic g

roup

ing

(inc

ome

or e

duca

tiona

l atta

inm

ent)

, gro

upin

g by

diff

eren

ces

alon

g a

dim

ensi

on th

ough

t to

be th

eore

tical

ly im

port

ant (

such

as

exte

nt a

nd s

atis

fact

ion

with

40'7

1

011

a su

ppor

t net

wor

k), a

nd c

lust

eran

alys

is o

n a

num

ber

of th

eore

tical

ly im

port

ant v

aria

bles

. Suc

hdi

ffer

ence

s m

ay h

elp

expl

ain

how

fam

ilies

dif

fer

in th

eir

resp

onse

to E

I.

Res

earc

h D

esig

nA

num

ber

of is

sues

com

plic

ate

atte

mpt

s at

true

exp

erim

enta

l des

ign.

The

aut

hor

disc

usse

s 4

quas

i-ex

peri

men

tal d

esig

ns:

The

unt

reat

ed c

ontr

ol g

roup

des

ign

utili

zes

pre-

and

pos

t-te

st c

ompa

riso

ns (

exam

ple

is f

or a

par

ent

com

pone

nt w

hen

ther

e is

lim

ited

staf

f an

d a

wai

ting

list)

. Thr

eats

tova

lidity

incl

ude

regr

essi

on to

the

mea

n an

d se

lect

ion-

mat

urat

ion.

Coh

ort d

esig

n ga

ther

s da

ta f

rom

one

coh

ort,

adds

a c

ompo

nent

, and

gat

hers

com

pari

son

data

fro

mth

e

next

coh

ort.

His

tory

is a

maj

or th

reat

to v

alid

ity.

A n

oneq

uiva

lent

dep

ende

nt v

aria

bles

des

ign

invo

lves

one

gro

up, w

ith c

ompa

riso

ns o

fcha

nge

ondi

ffer

ent o

utco

me

mea

sure

s. A

dif

ficu

lty in

this

des

ign

is in

the

dete

rmin

atio

n of

one

set

of

outc

omes

assu

med

to b

e af

fect

ed a

nd a

noth

er a

ssum

ed n

ot to

be

affe

cted

by

EI.

Plan

ned

vari

atio

n de

sign

ana

lyze

s gr

oups

that

rec

eive

dif

fere

nt le

vels

of

serv

ice.

Ide

ally

, ass

ignm

ent i

sra

ndom

.E

ach

desi

gn (

incl

udin

g ra

ndom

ized

stu

dy)

has

pote

ntia

l wea

knes

ses.

The

se s

houl

d be

ant

icip

ated

and

evid

ence

col

lect

ed to

cou

nter

alte

rnat

ive

expl

anat

ions

for

fin

ding

s.

Prob

lem

s of

Sta

tistic

al P

ower

are

com

mon

. Sam

ples

of

at le

ast 7

0 su

bjec

ts p

er g

roup

are

nee

ded

to d

etec

tdi

ffer

ence

s on

'/2

stan

dard

dev

iatio

n 90

% o

f th

e tim

e, b

ut f

ew E

I st

udie

s ha

ve s

uch

larg

e sa

mpl

es. T

his

may

requ

ire

sum

mat

ive

eval

uatio

ns a

cros

s pr

ogra

ms.

Mea

suri

ng C

hang

eA

gre

at d

ilem

ma

in E

I ev

alua

tion

is h

ow to

mea

sure

the

effe

cts

of s

ervi

ces

in th

e ab

senc

e of

ran

dom

ized

or

rigo

rous

ly s

elec

ted

cont

rol g

roup

s. A

ppro

ache

seac

h w

ith p

ros

and

cons

have

incl

uded

:N

orm

-ref

eren

ced

mod

els

(see

dis

cuss

ion

abov

e)In

dexe

s of

cha

nge

look

at t

he r

ate

of d

evel

opm

enta

l gai

n ov

er ti

me,

and

may

com

pare

thes

e to

the

rate

of d

evel

opm

ent b

efor

e E

I. H

owev

er, t

hese

are

onl

y us

eful

with

sta

ndar

d m

easu

res

of d

evel

opm

enta

lag

e, a

nd a

re b

ased

on

the

assu

mpt

ion

(with

outs

uppo

rtin

g em

piri

cal e

vide

nce)

that

the

ratio

of

deve

lopm

enta

l age

to c

hron

olog

ical

age

wou

ld b

e st

able

in th

e ab

senc

e of

inte

rven

tion.

7241

73

74

MJT

RO

RT

hEO

RY

-RE

CO

MM

EN

DA

TIO

NS

Dif

fere

nce,

or

gain

, sco

res

are

the

diff

eren

ce b

etw

een

pre-

and

post

-tes

t sco

res.

The

se s

core

s ar

ecr

itici

zed

for

lack

of

relia

bilit

y. C

urre

nt s

tand

ard

appr

oach

has

mov

ed to

the

use

of r

esid

ual c

hang

esc

ores

, in

whi

ch a

reg

ress

ion

equa

tion

is d

evel

oped

that

des

crib

es th

e re

latio

n be

twee

n po

stte

st s

core

san

d pr

etes

t sco

res

for

the

entir

e sa

mpl

e. T

hen

indi

vidu

al s

core

s ar

e ca

lcul

ated

rep

rese

ntin

g th

e di

ffer

ence

("re

sidu

al")

bet

wee

n th

e ac

tual

pos

ttest

sco

re a

nd th

e sc

ore

that

wou

ld b

e pr

edic

ted

by in

sert

ing

pret

est

scor

e in

to th

e re

gres

sion

equ

atio

n. T

he r

elat

ions

hip

betw

een

aspe

cts

of e

arly

inte

rven

tion

and

size

of

resi

dual

s is

ana

lyze

d. S

ome

spec

ific

lim

itatio

ns: 1

) te

lls li

ttle

abou

t how

an

indi

vidu

al a

ctua

lly c

hang

es;

and

2) r

elie

s he

avily

on

grou

p da

ta a

nd la

rge

sam

ples

and

is r

elat

ivel

y in

sens

itive

to th

e in

divi

dual

ized

natu

re o

f se

rvic

es p

rovi

ded

in m

ost E

I pr

ogra

ms.

Goa

l atta

inm

ent s

calin

g (G

AS)

off

ers

a qu

antit

ativ

e m

easu

re o

f pr

ogre

ss to

war

d go

als,

whi

ch c

an b

est

anda

rdiz

ed. S

hort

com

ings

: 1)

the

ques

tion

of th

e va

lidity

of

the

goal

s; a

nd2)

the

mea

ning

of

the

prog

ram

leve

l out

com

e m

easu

re (

mea

n go

al a

ttain

men

t) is

obs

cure

.A

lthou

gh n

ot y

et a

pplie

d to

EI

eval

uatio

ns, g

row

th m

odel

ing

high

light

s di

ffer

ent r

ates

of

grow

th o

fdi

ffer

ent i

ndiv

idua

ls. T

his

allo

ws

exam

inat

ion

of w

heth

er d

iffe

renc

es in

cha

nge

are

a fu

nctio

n of

char

acte

rist

ics

of c

hild

, fam

ily, o

r se

rvic

es. I

t doe

s no

t req

uire

a li

near

mod

el o

f de

velo

pmen

t.St

ruct

ural

equ

atio

n m

odel

ing

(SE

M, s

omet

imes

ref

erre

d to

as

path

ana

lysi

s) in

volv

es th

e de

velo

pmen

t of

a se

ries

of

hier

arch

ical

reg

ress

ion

equa

tions

to te

st p

redi

cted

rel

atio

ns in

a m

odel

of

hypo

thes

ized

rela

tions

hips

. Lim

itatio

ns in

clud

e th

e la

rge

num

ber

of c

ases

req

uire

d (t

he m

ore

vari

able

s sp

ecif

ied,

the

larg

er th

e sa

mpl

e si

ze r

equi

red)

, the

con

tent

ion

that

con

firm

atio

n of

a m

odel

doe

s no

t im

ply

proo

f of

the

mod

el's

val

idity

, and

the

conc

ern

that

SE

M w

ill r

epla

ce th

e th

eore

tical

dev

elop

men

t of

mod

els.

Kra

uss,

M.W

.T

he m

anda

tes

of th

e E

duca

tion

of th

e H

andi

capp

ed A

ct A

men

dmen

ts o

f1986

(PL

99-457)

redi

rect

ed th

e(1997). Two

focu

s of

ser

vice

pla

nnin

g in

ear

ly in

terv

entio

n pr

ogra

ms

from

a c

hild

-ori

ente

d m

odel

to a

fam

ily-o

rien

ted

Gen

erat

ions

of

Fam

ilym

odel

. It i

s no

w a

ssum

ed th

at th

e be

st w

ay to

ens

ure

posi

tive

effe

cts

on f

amili

es is

to h

ave

the

indi

vidu

alR

esea

rch

in E

arly

fam

ilies

dri

ve th

e se

rvic

e sy

stem

acc

ordi

ng to

thei

r un

ique

goa

ls a

nd n

eeds

.In

terv

entio

n. I

n M

.J.

The

re h

as b

een

a co

rres

pond

ing

shif

t in

the

basi

c qu

estio

ns th

at u

nder

lie in

vest

igat

ions

of

the

impa

ct o

f ea

rly

Gur

alni

ck (

Ed.

), T

hein

terV

entio

n pr

ogra

ms

on f

amili

es to

:E

ffec

tiven

ess

of E

arly

The

sup

port

ive

role

of

earl

y in

terv

entio

n pr

ogra

ms

for

fam

ilies

Inte

rven

tion.

The

mec

hani

sms

by w

hich

fam

ily g

oals

and

str

engt

hs a

re a

rtic

ulat

ed f

or p

rogr

am p

lann

ing

purp

oses

Bal

timor

e: P

aul H

.T

he p

rovi

sion

of

cultu

rally

res

pons

ive

serv

ices

to a

n in

crea

sing

ly d

iver

se p

opul

atio

n of

ser

vice

rec

ipie

nts

Bro

okes

Pub

lishi

ngC

o, p

p.611

-624.

42

75

Firs

t gen

erat

ion

rese

arch

on

fam

ily e

ffec

ts w

as f

ocus

ed o

n id

entif

ying

how

fam

ilies

fun

ctio

n, th

e ef

fect

of

earl

y in

terv

entio

n se

rvic

es o

n di

ffer

ent a

spec

ts o

f pa

rent

al o

r fa

mily

fun

ctio

ning

, and

det

erm

inat

ion

of f

acto

rsth

at a

re s

ourc

e§ o

f va

riab

ility

.

In r

elat

ion

to f

utur

e re

sear

ch, o

ne im

port

ant d

irec

tion

note

d is

und

erst

andi

ng th

e co

mpl

ex in

tera

ctio

nsre

gard

ing

fam

ily g

oals

and

out

com

es in

rel

atio

n to

fam

ily (

e.g.

, nee

d fo

r su

ppor

t) a

nd c

hild

(e.

g., s

ever

ity o

fdi

sabi

lity)

cha

ract

eris

tics

and

prog

ram

fea

ture

s.

New

dir

ectio

ns o

f re

sear

ch p

oint

to s

econ

d ge

nera

tion

ques

tions

of

how

and

how

wel

l ear

ly in

terv

entio

npr

ogra

ms

prom

ote

posi

tive

fam

ily f

unct

ioni

ng a

nd e

nhan

ced

child

dev

elop

men

t.

Lee

Sny

der-

McL

ean.

Inst

rum

ents

that

yie

ld I

Q s

core

s ar

e am

ong

the

mos

t wid

ely

used

. Mos

t tes

ts o

f th

is ty

pe r

esul

t in

a(1

987)

. Rep

ortin

gde

velo

pmen

tal a

ge (

DA

) an

d a

deve

lopm

enta

l quo

tient

(D

Q)

for

each

dom

ain

test

ed a

s w

ell a

s fo

r ov

eral

lN

orm

-Ref

eren

ced

perf

orm

ance

. DQ

is th

e ra

tio o

f cu

rren

t DA

to c

urre

nt c

hron

olog

ical

age

(C

A).

Prog

ram

Eva

luat

ion

:D

ata

Som

ePr

etes

t/Pos

ttest

com

pari

son

of D

A d

oes

not f

acto

r ou

t or

cont

rol f

or th

e ef

fect

s of

mat

urat

ion

and

Con

side

ratio

ns.

incr

easi

ng C

A. A

ttem

pts

to a

ddre

ss th

is in

clud

e:

Jour

nal o

f th

eD

Q c

ompa

riso

ns a

ssum

e th

at th

e ch

ild's

pre

inte

rven

tion

rate

of

deve

lopm

ent i

s a

stab

le a

nd c

hara

cter

istic

Div

isio

n fo

r E

arly

lear

ning

rat

e fo

r th

e ch

ild. B

ecau

se D

Q is

cal

cula

ted

on th

e ba

sis

of a

chi

ld's

cur

rent

, cum

ulat

ive

DA

and

Chi

ldho

od, 1

1(3)

,C

A, i

t ten

ds to

min

imiz

e in

terv

entio

n ef

fect

s. T

he o

lder

the

cliil

d pr

ior

to in

terv

entio

n, th

e le

ss s

ensi

tive

DQ

254-

264.

will

be

to r

elat

ive

chan

ges

in th

e de

velo

pmen

tal s

tatu

s. I

t is

not u

ncom

mon

to f

ind

that

sta

tistic

al a

naly

ses

cond

ucte

d on

DQ

cha

nge

scor

es y

ield

non

sign

ific

ant r

esul

ts, e

ven

whe

n th

e ac

tual

gai

ns b

y ch

ildre

n se

emed

ucat

iona

lly s

igni

fica

nt.

Com

pari

sons

of

pred

icte

d ch

ange

to a

ctua

l cha

nge

use

prei

nter

vent

ion

DQ

to p

redi

ct th

e de

velo

pmen

tal

gain

s th

at m

ight

be

expe

cted

with

out i

nter

vent

ion,

The

ass

umpt

ion

that

ent

ry D

Q r

epre

sent

s a

valid

and

stab

le r

ate

of d

evel

opm

ent i

s pr

oble

mat

ic, a

s de

velo

pmen

t pat

tern

s ar

e m

ore

typi

cally

rep

rese

nted

as

a se

ries

of p

eaks

and

pla

teau

s.E

ffic

ienc

y an

d ch

ange

indi

ces:

Eff

icie

ncy

inde

x (E

I) is

cal

cula

ted

by d

ivid

ing

the

child

's a

ctua

l gai

n by

an

"ide

al g

ain"

(1

mon

th p

erch

rono

logi

cal m

onth

), th

en d

ivid

ing

by c

hild

's p

rete

st D

Q, w

hich

in tu

rn h

as b

een

divi

ded

by 1

00. T

his

give

s a

larg

e sc

ore

whi

ch a

llow

s co

mpa

riso

n ac

ross

chi

ldre

n of

dif

fere

nt a

ges

and

deve

lopm

enta

l lev

els.

Prop

ortio

nal c

hang

e in

dex

(PC

I) d

ivid

es d

evel

opm

enta

l gai

n by

tim

e in

inte

rven

tion,

whi

ch is

then

divi

ded

by p

rete

st D

Q (

i.e. D

A/C

A).

Hen

ce, d

iffe

rs f

rom

EI

only

by

deci

mal

poi

nt.

7643

77

78

UM

..

...

.

Inte

rven

tion

effi

cien

cy in

dex

(EI)

is c

alcu

late

d by

div

idin

g de

velo

pmen

tal g

ain

by a

mou

nt o

f tim

ebe

twee

n pr

e- a

nd p

ostte

st. T

his

has

been

cri

ticiz

ed f

or n

ot f

acto

ring

in p

rete

st D

A o

r D

Q.

The

aut

hor

reco

mm

ends

for

con

side

ratio

n th

e co

ncep

t of

"Int

erve

ntio

n D

Q"

(EI

with

a c

lear

er n

ame)

,ca

lcul

ated

by

divi

ding

the

mon

ths

(or

wee

ks)

of m

easu

red

chan

ge in

chi

ld's

DA

bet

wee

n pr

e- a

nd p

ost-

test

ing

by th

e nu

mbe

r of

mon

ths

(or

wee

ks)

that

laps

ed b

etw

een

pre-

and

pos

t-te

st. T

his

refl

ects

the

child

'sra

te o

f de

velo

pmen

t dur

ing

inte

rven

tion,

whi

ch c

an b

e co

mpa

red

to th

e pr

eint

erve

ntio

n D

Q.

Mar

fo, K

., an

dW

eakn

esse

s/re

com

men

datio

ns f

or f

utur

e re

sear

ch in

clud

e:D

iner

o, T

.E. (

1991

).C

lear

er s

peci

fica

tion

of in

terv

entio

n pr

oced

ures

, clie

nt c

hara

cter

istic

sA

sses

sing

Ear

lyA

ddre

ss b

enef

its b

eyon

d ch

ild c

ogni

tive

deve

lopm

enta

l gai

n (i

.e. b

enef

its to

par

ents

& f

amily

; kno

wle

dge

Inte

rven

tion

& s

kills

per

tain

ing

to c

hild

's d

evel

opm

ent.)

Out

com

es: B

eyon

dA

sses

s ou

tcom

es in

rel

atio

n to

spe

cifi

c in

puts

Prog

ram

Var

iabl

es.

Gm

ater

pro

gram

and

pop

ulat

ion

spec

ific

ity in

out

com

e as

sess

men

tIn

tern

atio

nal J

ourn

alof

Dis

abili

ty,

Dev

elop

men

t and

Add

ress

fac

tors

ass

ocia

ted

with

dif

fere

ntia

l int

erve

ntio

n ou

tcom

es

Too

ls to

ass

ess

EI

dete

rmin

ants

with

out t

he n

eed

for

cont

rol g

roup

s:E

duca

tion,

38(

3),

289-

303.

Mul

tiple

reg

ress

ion

to d

isce

rn b

oth

the

mai

n an

d in

tera

ctiv

e ef

fect

s of

dif

fere

nt c

lass

es o

f in

depe

nden

tva

riab

les

on a

giv

en o

utco

me

vari

able

Path

ana

lysi

s us

es r

egre

ssio

n pr

oced

ures

in th

e es

timat

ion

of p

ath

coef

fici

ents

as

a pr

oced

ure

for

stud

ying

a p

atte

rn o

f hy

poth

esiz

ed c

ausa

l rel

atio

nshi

ps w

ithin

a s

et o

f va

riab

les.

Pat

h an

alys

is c

an"d

ecom

pose

" a

rela

tions

hip

betw

een

2 va

riab

les

into

the

dire

ct e

ffec

ts, t

he in

dire

ct e

ffec

ts, s

puri

ous

effe

cts,

any

par

ts u

nana

lyze

d by

the

rese

arch

ers

as a

mat

ter

of c

hoic

e (o

r ne

glec

t) a

nd r

esid

ual e

ffec

ts.

Var

iabl

e cl

asse

s in

a f

ram

ewor

k fo

r as

sess

ing

outc

omes

dep

end

on E

I de

fini

tion

and

unde

rlyi

ng a

ssum

ptio

ns.

Pres

ents

an

exam

ple

for

trad

ition

al E

I co

ncep

tual

izat

ion

in w

hich

inde

pend

ent v

aria

bles

mig

ht in

clud

epr

ogra

m c

hara

cter

istic

s in

tens

ity, d

urat

ion,

par

ent/f

amily

com

mitm

ent,

wor

ker

com

pete

nce,

mat

ch b

etw

een

prog

ram

as

inte

nded

and

as

impl

emen

ted.

..), c

hild

cha

ract

eris

tics

(chr

onol

ogic

al a

ge, d

evel

opm

enta

lco

mpe

tenc

e, n

atur

e &

sev

erity

of

disa

bilit

y...)

, fam

ily d

emog

raph

y (S

ES,

par

ent a

ge a

nd e

d le

vel..

.), f

amily

ecol

ogy

(qua

lity

of h

ome

envi

ronm

ent,

pare

ntal

exp

ecta

tions

, fam

ily r

esou

rces

, qua

lity

of p

aren

t-ch

ildin

tera

ctio

n...)

, and

non

-pro

gram

aux

iliar

y se

rvic

es (

vari

ety,

fre

quen

cy...

). O

utco

me

vari

able

s m

ight

incl

ude

4479

.M

JTU

OR

. .T

EIV

ON

IME

child

out

com

es (

impr

ovem

ent i

n de

velo

pmen

tal c

ompe

tenc

e in

targ

eted

dom

ains

, cha

nges

in in

tera

ctio

nal

skill

s, e

.g.,

incr

ease

d re

spon

sive

ness

, beh

avio

r en

gage

men

t [tim

e in

tera

ctin

g in

dev

elop

men

tally

app

ropr

iate

fash

ion]

...)

and

pare

nt/f

amily

out

com

es (

pare

ntal

sat

isfa

ctio

n w

ith th

e pr

ogra

m, p

aren

tal i

nter

actio

nal s

tyle

,pa

rent

al c

opin

g st

rate

gies

, fam

ily w

ell-

bein

g...)

McL

ean,

L.K

. and

Cri

pe,

Ear

ly in

terv

entio

n fo

r a

broa

d sp

ectr

um o

f co

mm

unic

atio

n di

sord

ers

affe

ctin

g yo

ung

child

ren

can

be v

ery

J.W

. (19

97).

The

effe

ctiv

e in

elim

inat

ing

thos

e di

sord

ers

or a

t lea

st m

itiga

ting

thei

r im

pact

on

a ch

ild's

late

r sp

eech

and

Eff

ectiv

enes

s of

Ear

lyla

ngua

ge d

evel

opm

ent.

Inte

rven

tion

for

Chi

ldre

nw

ith C

omm

unic

atio

nM

easu

res

used

in m

ost o

f th

e st

udie

s re

view

ed w

ere

dire

ct m

easu

res

of th

e ta

rget

com

mun

icat

ion

abili

ty o

rD

isor

ders

. In

M.J

.di

sord

er (

e.g.

, mea

n le

ngth

-of

utte

ranc

e, %

syl

labl

es s

tutte

red.

..). M

any

also

rep

orte

d pr

e- a

nd p

ost-

Gur

alni

ck (

Ed.

), T

hetr

eatm

ent s

core

s on

one

or

mor

e st

anda

rdiz

ed, n

orm

-ref

eren

ced

mea

sure

s of

com

mun

icat

ion

deve

lopm

ent

Eff

ectiv

enes

s of

Ear

ly(s

uch

as S

eque

nced

Inv

ento

ry o

f C

omm

unic

atio

n D

evel

opm

ent (

Hed

rick

et a

l., 1

975)

, Com

mun

icat

ion

and

Inte

rven

tion

(pp.

271

-Sy

mbo

lic B

ehav

ior

Scal

es (

Wet

herb

y &

Pri

zant

, 199

0), a

nd P

eabo

dy P

ictu

re V

ocab

ular

y T

estR

evis

ed30

6). B

altim

ore:

Pau

l H.

(Dun

n &

Dun

n, 1

981)

). S

ome

incl

uded

mea

sure

s of

gen

eral

dev

elop

men

t or

cogn

itive

fun

ctio

ning

(su

ch a

sB

rook

es P

ublis

hing

Co.

Bay

ley

Scal

es o

f In

fant

Dev

elop

men

t (B

ayle

y, 1

993)

, and

Lei

ter

Inte

rnat

iona

l Per

form

ance

Sca

le (

Lei

ter

&A

rthu

r, 1

950)

).

The

aut

hors

enc

oura

ge u

se o

f so

cial

val

idity

mea

sure

s of

com

mun

icat

ion

func

tioni

ng w

ith p

eers

and

fam

ilym

embe

rs, e

vide

nce

for

cost

-eff

ectiv

enes

s in

term

s of

ulti

mat

e im

pact

on

child

's la

ter

scho

ol s

ucce

ss a

ndsu

ppor

t nee

ds, f

urth

er c

ompa

riso

n st

udie

s an

d se

cond

-gen

erat

ion

rese

arch

(cl

eart

hat n

o si

ngle

inte

rven

tion

appr

oach

is m

ost e

ffec

tive

for

all y

oung

chi

ldre

n w

ith c

omm

unic

atio

n di

sord

ers)

, spe

cifi

catio

n of

chi

ld a

ndpr

ogra

m v

aria

bles

ass

ocia

ted

with

dif

fere

ntia

l out

com

es f

ordi

ffer

ent t

reat

men

t app

roac

hes.

Spec

ific

topi

cs f

or f

utur

e re

sear

ch in

clud

e:O

ptim

al ti

min

g fo

r E

IM

axim

um c

ost-

effi

cien

cyL

engt

h &

fre

quen

cy o

f tr

eatm

ent

.

Whe

n is

a c

ycle

s ap

proa

ch m

ore

effi

cien

t tha

n a

trea

tmen

t-to

-cri

teri

on a

ppro

ach

Whe

n is

eff

ectiv

enes

s be

tter

for

grou

p or

1-t

o-1

or h

ome-

base

d m

odel

sIn

tegr

ated

vs.

spe

cial

cla

sses

8045

81

82

UU

OR

YR

EC

OM

ME

ND

AT

iON

SPa

kula

, A.L

. and

Pal

mer

,C

oncl

usiv

e da

ta o

n ef

fect

iven

ess

of e

ither

bro

ad-b

ased

or

focu

sed

inte

rven

tions

for

chi

ldre

n "a

t-ri

sk"

for

F.B

. (19

97).

Ear

lyne

urom

otor

dis

abili

ties

and

crite

ria

for

dete

rmin

ing

whe

ther

a s

peci

fic

serv

ice

mod

el w

ill m

eet t

he in

divi

dual

Inte

rven

tion

for

Chi

ldre

nat

Ris

k fo

r N

euro

mot

orne

eds

of a

spe

cifi

c ch

ild o

r fa

mily

are

not

ava

ilabl

e.

Prob

lem

s. I

n M

.J.

Rec

omm

ends

out

com

es th

at a

re c

linic

ally

and

eco

logi

cally

rel

evan

t, an

d w

hich

mea

sure

cha

nges

that

are

Gur

alni

ck (

Ed.

), T

helik

ely

to b

e si

gnif

ican

t in

the

child

and

fam

ily's

nat

ural

set

ting.

In

addi

tion

to I

Q/D

Q, s

houl

d em

phas

ize

play

Eff

ectiv

enes

s of

Ear

lysk

ills,

par

ent-

infa

nt in

tera

ctio

ns, f

amily

str

ess,

infa

nt a

dapt

ive

skill

s, a

nd th

e fa

mily

's f

unct

iona

l cap

acity

toIn

terv

entio

n (p

p. 2

71-

adap

t to

thei

r ch

ild. O

utco

mes

mus

t be

asse

ssed

in b

oth

the

shor

t- a

nd lo

ng-t

erm

.30

6). B

altim

ore:

Pau

l H.

Bro

okes

Pub

lishi

ng C

o.A

ckno

wle

dges

the

diff

icul

ty o

f co

mpl

ianc

e w

ith tr

eatm

ent o

r di

lutin

g of

con

trol

or

cont

rast

gro

ups,

but

war

ns th

at s

mal

l stu

dies

with

inad

equa

te s

ampl

e si

ze to

det

ect t

he d

esir

ed c

hang

es o

r in

adeq

uate

con

trol

of

conf

ound

ing

vari

able

s ar

e lik

ely

to b

e m

isle

adin

g.

Rob

erts

, R.N

., In

noce

nti,

The

aut

hors

not

e th

at m

ost o

f th

e cu

rren

tly f

unde

d ev

alua

tions

use

a m

ixed

met

hodo

logy

that

incl

ude

M.S

., an

d G

oetz

e,L

.D.

inte

rvie

ws,

que

stio

nnai

res,

and

rec

ord

revi

ews.

Dir

ect a

sses

smen

t tec

hniq

ues

are

mor

e ex

pens

ive.

(199

7)B

y W

hat O

utco

mes

Com

mon

mea

sure

men

t con

cern

s in

clud

e th

e re

liabi

lity

of r

epor

ts f

rom

pro

vide

r an

d pa

rent

, ina

dequ

acy

ofSh

ould

Par

t H b

em

ost s

tate

dat

a ba

ses

for

rese

arch

pur

pose

s, a

nd s

elec

tivity

of

adm

inis

trat

ion

of m

easu

res

whe

n co

ntro

l is

inE

valu

ated

at t

he S

tate

the

hand

s of

the

com

mun

ity (

i.e. s

urve

ys th

ose

who

are

fav

orab

ly p

redi

spos

ed).

Lev

el?

Proc

eedi

ngs

of th

e Pa

rt H

One

que

stio

n of

inte

rest

is w

heth

er e

ligib

ility

req

uire

men

ts a

cros

s ag

enci

es a

ct to

fac

ilita

te o

r lim

it se

rvic

esE

valu

ator

s'fa

mili

es c

an a

cces

s.C

Ons

ortiu

m. E

IRI.

Des

crib

es s

tate

eva

luat

ions

for

: CA

, CO

, CT

, FL

, HA

, MI,

NJ,

NC

, PA

, UT

Dis

cuss

es s

yste

m &

com

mun

ity m

easu

res:

Fam

ily: c

hoic

e, c

ontr

ol (

satis

fact

ion

conc

ern:

res

earc

h sh

ows

fam

ilies

rep

ort h

igh

satis

fact

ion

rega

rdle

ss o

fty

pes

of s

ervi

ces)

, im

prov

ed q

ualit

y of

life

(ch

ild c

are

acce

ss, p

aren

ts a

ble

to r

esum

e w

ork,

abl

e to

part

icip

ate

in c

omm

unity

act

iviti

es, a

ble

to e

ngag

e in

life

act

iviti

es th

at s

uppo

rt b

ette

r m

enta

l hea

lth, c

hild

's.

need

s m

ore

man

agea

ble

for

fam

ily--

- ca

n re

late

to im

prov

ed a

dapt

ive

beha

vior

s, in

crea

ses

in m

edic

alou

tcom

es, i

ncre

ases

in a

ppro

pria

te s

ocia

l beh

avio

rs...

)C

hild

: con

sens

us th

at o

utco

mes

nee

d to

be.

mea

sure

d no

t bro

adly

but

mor

e sp

ecif

ical

ly, i

n ar

eas

whe

re o

ne

4683

'O

n O

RT

HE

OR

Y-R

EC

OM

ME

ND

AT

ION

Sca

n re

ason

ably

exp

ect P

art H

ser

vice

s to

mak

e a

diff

eren

ce. A

dditi

onal

out

com

es: c

hild

eng

agem

ent w

ithth

e en

viro

nmen

t, ch

ild p

ersi

sten

ce, c

hild

tem

pera

men

t, po

sitiv

e ch

ange

s in

par

ent/c

hild

inte

ract

ions

(a

poss

ible

thou

gh p

robl

emat

ic o

utco

me)

, im

prov

ed q

ualit

y of

life

(ri

sk s

tatu

s fo

r ab

use,

mor

e po

sitiv

e ho

me

envi

ronm

ent)

, hea

lth a

nd m

edic

al o

utco

nies

(im

prov

ed h

ealth

, app

ropr

iate

imm

uniz

atio

ns, a

ppro

pria

tem

edic

al c

are

for

disa

bilit

y-sp

ecif

ic c

once

rns,

app

ropr

iate

wel

l chi

ld c

are,

evi

denc

e of

a m

edic

al h

ome)

.

Shon

koff

, J.P

.(1

993)

.D

evel

opm

enta

lV

ulne

rabi

lity:

New

Cha

lleng

es f

orR

esea

rch

and

Serv

ice

Del

iver

y. I

n N

.J.

Ana

stas

iow

& S

.H

arel

, (E

ds.)

, At-

Ris

kIn

fant

s: I

nter

vent

ions

,Fa

mili

es, a

ndR

esea

rch

(pp.

47-

54).

Bal

timor

e: P

aul H

.B

rook

s Pu

blis

hing

Co.

Rec

omm

ends

that

res

earc

h:Se

ek e

mpi

rica

l ver

ific

atio

n of

the

tran

sact

iona

l/eco

logi

cal m

odel

s th

at in

flue

nce

EI

deci

sion

-mak

ing

Add

ress

a b

road

er a

nd r

iche

r ou

tcom

e va

riab

le d

omai

nId

entif

yso

urce

s of

res

ilien

ce a

nd p

rote

ctiv

e fa

ctor

s (r

athe

r th

an ju

st p

redi

ctor

s of

poo

r ou

tcom

es)

Exp

lore

dif

fere

nces

am

ong

subg

roup

sPu

rsue

long

itudi

nal a

sses

smen

ts o

f th

e in

flue

nce

of e

arly

exp

erie

nces

on

the

emer

ging

com

pete

nce

ofyo

ung

child

ren

and

on th

e on

goin

g ad

apta

tion

of th

eir

fam

ilies

Dis

cuss

es th

e E

arly

Int

erve

ntio

n C

olla

bora

tive

Stud

y (d

escr

ibed

els

ewhe

re in

tabl

e) a

nd d

raw

s th

ree

gene

raliz

atio

ns:

1.T

he r

ecei

pt o

f ea

rly

inte

rven

tion

serv

ices

impl

ies

a m

ultid

imen

sion

al e

xper

ienc

e.2.

The

det

erm

inan

ts o

f ch

ange

in c

hild

ren

and

fam

ilies

are

mul

tivar

iate

and

com

plex

.3.

Subg

roup

s of

chi

ldre

n an

d fa

mili

es w

ithin

an

earl

y in

terv

entio

n sy

stem

dem

onst

rate

dif

fere

ntia

lvu

lner

abili

ty a

nd r

esili

ence

.

Shon

koff

, J.P

.,H

ause

r-C

ram

, P.,

Kra

uss,

M.W

., an

dU

pshu

r, C

. (19

88).

Ear

ly I

nter

vent

ion

Eff

icac

y R

esea

rch:

Wha

t Hav

e W

eL

earn

ed a

nd W

here

Do

We

Go

From

Her

e? T

opic

s in

Ear

ly C

hild

hood

Spec

ial E

duca

tthn,

8(1)

, 81-

93.

Shor

tcom

ings

of

man

y pa

st s

tudi

es in

clud

e m

etho

dolo

gica

l fla

ws,

line

ar m

odel

s, r

elia

nce

on c

hild

-rel

ated

cogn

itive

out

com

es o

nly,

inad

equa

te s

peci

fica

tion

of in

depe

nden

t var

iabl

es, l

ack

of b

lind

data

col

lect

ion,

and

failu

re to

min

imiz

e th

reat

s to

val

idity

fro

m s

uch

effe

cts

as h

isto

ry, t

estin

g, a

nd m

atur

atio

n.c

Rec

omm

enda

tions

incl

ude

expl

orin

g in

flue

nces

with

in th

e ec

olog

y of

chi

ld a

nd f

amily

life

, gre

ater

spe

cifi

city

in th

e de

fini

tion

of in

depe

nden

t var

iabl

es, d

elin

eatio

n of

chi

ld a

nd f

amily

cha

ract

eris

tics

(suc

h as

dia

gnos

isdi

ffer

ence

s, s

ever

ity o

f di

sabi

lity,

age

at e

ntry

, hea

lth s

tatu

s, te

mpe

ram

ent,

beha

vior

al c

hara

cter

istic

s,pr

eint

erve

ntio

n di

ffer

ence

s in

soc

iode

mog

raph

ic c

hara

cter

istic

s, p

aren

tal l

ocus

of

cont

rol,

reso

urce

s w

ithin

the.

fam

ilSr,

ext

erna

l soc

ial s

uppo

rts,

and

par

enta

l hea

lth)

whi

ch c

an f

acili

tate

or

inhi

bit p

rogr

am e

ffec

tiven

ess,

defi

ning

ser

vice

var

iabl

es a

nd ty

pes

of s

ervi

ces

(int

ensi

ty, d

urat

ion,

loca

tion,

info

abo

ut p

rovi

ders

).D

eter

min

e fa

mily

eff

ects

by

the

goal

s an

d ob

ject

ives

of

serv

ices

bei

ng e

valu

ated

; var

iabl

es m

ay in

clud

epa

rent

ing

stre

ss, f

amily

rel

atio

nshi

ps, o

ther

soc

ial r

elat

ions

hips

, par

ent-

child

inte

ract

ion,

phy

sica

l and

emot

iona

l hea

lth o

f pa

rent

s an

d si

blin

gs. C

hild

impa

cts

beyo

nd c

ogni

tive

mig

ht in

clud

e ex

plor

ator

y

8447

85

tut

.Is

mbe

havi

or/m

otiv

atio

n, s

ocia

l com

pete

nce,

inte

rper

sona

l rel

atio

nshi

ps w

ith a

dults

, pre

scho

ol a

djus

tmen

t, an

dem

ergi

ng p

eer

inte

ract

ions

.

Supp

orts

dev

elop

ing

new

mea

sure

s an

d ex

peri

men

ting

with

new

ana

lytic

str

ateg

ies.

Pro

mot

es d

eem

phas

ison

sig

nifi

canc

e of

mea

n di

ffer

ence

s be

twee

n gr

oups

and

gre

ater

atte

ntio

n to

sub

grou

p an

alys

es.

Rec

omm

ends

exp

lori

ng lo

ng-t

erm

impa

cts.

Spik

er, D

., an

dH

opm

ann,

M.R

.(1

997)

. The

Eff

ectiv

enes

s of

Ear

lyIn

terv

entio

n fo

rC

hild

ren

with

Dow

nSy

ndro

me.

In

M.J

.G

ural

nick

(E

d.),

The

Eff

ectiv

enes

s of

Ear

lyIn

terv

entio

n (p

p. 2

71-

306)

. Bal

timor

e: P

aul

H. B

rook

es P

ublis

hing

Co.

Rev

iew

s sh

ow s

hort

-ter

m b

enef

its o

n de

velo

pmen

tal r

ates

, esp

ecia

lly f

ine

mot

or a

nd a

dapt

ive

skill

s, a

nd o

nov

eral

l DQ

/IQ

, with

few

er a

nd le

ss c

onsi

sten

t im

prov

emen

ts in

ling

uist

ic, c

ogni

tive,

and

gro

ss m

otor

ski

lls.

No

stro

ng e

vide

nce

to s

uppo

rt lo

ngev

ity o

f ga

ins.

Rec

omm

enda

tions

for

fut

ure

stud

y fo

ci in

clud

e:H

ow p

relin

guis

tic c

omm

unic

atio

n is

bei

ng a

ddre

ssed

in E

I pr

ogra

ms

Dif

fere

ntia

ted

ques

tions

con

side

ring

fam

ily c

hara

cter

istic

s an

d ch

ild f

acto

rs (

e.g.

, hyp

oton

ia, c

ardi

acpr

oble

ms)

, as

wel

l as

prog

ram

inte

nsity

and

par

ent i

nvol

vem

ent

Posi

tive

fam

ily s

uppo

rtC

ompa

riso

ns o

f tr

eatm

ent m

odel

s (a

nd c

onte

xt s

uch

as in

clus

ion,

cur

ricu

la, n

atur

e an

d ex

tent

of

pare

ntin

volv

emen

t, ap

titud

e-tr

eatm

ent i

nter

actio

n ef

fect

s)

The

Acc

redi

tatio

nC

ounc

il on

Ser

vice

sfo

r Pe

ople

with

Dis

abili

ties.

(19

95).

Out

com

e M

easu

res

for

Ear

ly C

hild

hood

Inte

rven

tion

Serv

ices

.T

owso

n, M

D: T

heA

ccre

dita

tion

Cou

ncil.

The

Cou

ncil

defi

nes

qual

ity in

term

s of

fam

ily a

nd c

hild

out

com

es r

athe

r th

an p

roce

dura

l com

plia

nce.

Spec

ifie

s va

lues

in th

e do

mai

ns o

f ch

oice

, goa

ls, r

ight

s, r

espe

ct, h

ealth

and

saf

ety,

rel

atio

nshi

ps, s

ecur

ity,

and

satis

fact

ion.

In

this

con

text

, rec

omm

ends

spe

cifi

c qu

estio

ns f

or f

amily

and

sta

ff, p

rogr

amdo

cum

enta

tion,

and

pro

cess

issu

es r

elat

ed to

the

follo

win

g ou

tcom

es:

Cho

ice

(fam

ilies

are

info

rmed

, fam

ilies

cho

ose

serv

ices

and

sup

port

s)

Goa

ls (

fam

ilies

cho

ose

thei

r go

als,

fam

ilies

cho

ose

child

dev

elop

men

t goa

ls, f

amili

es a

ttain

thei

r go

als,

child

ren

atta

in d

evel

opm

enta

l mile

ston

es)

.

Rig

hts

(fam

ilies

exe

rcis

e th

eir

righ

ts, c

hild

ren

are

free

fro

m a

buse

and

neg

lect

)

8648

87

YR

EC

OM

ME

ND

AflO

NS

Res

pect

(fa

mili

es a

re r

espe

cted

, fam

ilies

dec

ide

whe

n to

sha

re p

erso

nal i

nfor

mat

ion)

Hea

lth a

nd S

afet

y (c

hild

ren

have

the

best

pos

sibl

e he

alth

, chi

ldre

n ar

e sa

fe)

Rel

atio

nshi

ps (

fam

ilies

rem

ain

toge

ther

, chi

ldre

n sp

end

time

in in

clus

ive

envi

ronm

ents

, chi

ldre

n de

velo

pre

latio

nshi

ps, f

amili

es r

emai

n co

nnec

ted

to n

atur

al s

uppo

rts,

fam

ilies

are

a p

art o

f th

eir

com

mun

ities

)

Secu

rity

(fa

mili

es h

ave

econ

omic

res

ourc

es, f

amili

es e

xper

ienc

e co

ntin

uity

and

sec

urity

)

Satis

fact

ion

(fam

ilies

are

sat

isfi

ed w

ith th

eir

serv

ices

, fam

ilies

are

sat

isfi

ed w

ith th

eir

life

situ

atio

ns)

88

49

89

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