DSAW Family Services, Inc.

DSAW Leadership Norms• DSAW Team Leadership Norms

• Everyone does and should bring enthusiasm to the work we do.• We must all be open-minded. Everyone must have the opportunity to share their

opinion.• If we have a standstill/non-agreement, we move to the standard of “What is best for

DSAW and the people we serve?”• When an individual is an outlier, he/she needs to go into an active listening mode; do

not “hunker down.”• When disagreeing or challenging, don’t make it personal; keep it professional.• After all shared opinions and engaged in discussion, the final decision is made by the

majority (or where required the supermajority) of the Board.• No one can have a hidden agenda—we all engage in our efforts on the Board

truthfully and honestly.• To get to the end-point, stay together as a team. We must stay disciplined and stay

on point. • Revere similarities—trivialize differences. Our goal is to identify and leverage

similarities to take and create advantage. • Hold yourself accountable to the decisions of the team; outliers in debate must be

leaders in action.

Down Syndrome Association of WisconsinBest Supported State For Those With Down Syndrome In America

DSAW Inc.State Wide Programs• Employment• Medical Outreach• School OutreachAdministration/FundraisingFiduciary

DSAW Chapter, Inc. Geographic Support Advisory• Events• Local Programming• Walks

•Milwaukee•Green Bay•Sheboygan•Fox Cities•Chippewa Valley•La Crosse•TBD

DSAW Family Services , Inc.Statewide Service OfferingsAdministrationFundraising

Geographic SupportAdvisory• Waukesha County• TBD County• TBD County

DSAW Family Services, Inc Timeline (Proposed)

• 10-29-13 Board Orientation• 11-8-13 Annual Strategic Retreat• 11-9-13 Election of Officers• 11-9-13 Draft 2014 Annual Plan, Draft 2014 Budget• 11-16-13 Publish 2014 Board Meeting Dates• 12-10-13 Approve 2014 Budget• 1-14-14 DSAW Family Services, Inc Annual Meeting• 1-31-14 Submit Articles of Incorporation State of WI• 2-14-14 Publish 2014 SMART Goals• 2-14-14 Start Providing Family Governed

Coordinator Services

DSAW Vision (what we want to happen)

– Full Access– Full Acceptance– Full Life in the Community– Full Potential

DSAW Mission (what we do)

• Our mission at the Down Syndrome Association of Wisconsin (DSAW) is simple. • We are here to provide support to families

and individuals with Down syndrome through –Education– Information–and the exchange of ideas & experiences

Why Do Our Families Need DSAW To Be A Service Provider?

• Expansion of Self Direction In Wisconsin Occurred in 2008 (IRIS – Include Respect I Self Direct)

• The Program Now Serves 9,000 Adults With Disabilities In Wisconsin Who Want To Self Direct Their Services– About 20% of Those Eligible for Long Term

Supports In Wisconsin Choose IRIS

IRIS is a Wisconsin program where you self-direct your publicly funded, community-based, long-term care supports and services. IRIS can help you get the life you want with the support you need. In IRIS you use your own natural supports and creativity with your budget to achieve your hopes and dreams.

Goals of IRIS:• INCLUDE – Wisconsin elders, adults with physical disabilities and adults with

developmental disabilities who are Medicaid eligible are included in communities across Wisconsin just like everyone else. IRIS can help participants remain connected to others.

• RESPECT – You choose where you live, what relationships you build, where you work, and how actively you participate in your community.

• I SELF-DIRECT – IRIS is a self-directed option in which you creatively use your monthly budget allocation to help meet your individual long-term care needs. You decide what is important to you.

Common IRIS Services• Supportive Home Care –Shopping–Cooking–Cleaning–Supervision

• Transportation• Daily Life Skills Training• Supported Employment• Day Program• Respite (Break for Primary Caregiver)

Why Do Our Families Need DSAW To Be A Service Provider?

• A Value Gap Exists Between What IRIS Consultants Can Do and What Parents Can Do With Regard To Helping Individuals With Down Syndrome Have Full Lives In The Community – Apartment in Their Community– Job in Their Community– Social Life in Their Community

• Future Value Gap When Primary Caregivers Die• Roadmap Sessions (Cost Recovery)• 2013 Support Broker Pilot

Why 501(C)(3) Status Is Important?

1. Medicaid Reimbursement Rates

2. Medicaid Reimbursement Rates

3. Medicaid Reimbursement Rates

• Charitable Donations• Grants• Raffles

Support Broker Job Description/Service Code

• See Handout• DSAW Only Offer To Individuals With Down

Syndrome

Support Broker Current ProvidersSoutheastern Wisconsin

• UCP• Avenues to Community (From Dane County)• Small Independent Providers

Support Broker Future Providers

• IRIS Consulting Agency Independent Subsidiaries

Family Governed Coordinator Job Description/Service Code

• See Handout• DSAW Offer To Groups Of Families Where At

Least One Member Has Down Syndrome

Family Governed Coordinator Current Providers

• None

Family Governed Coordinator Future Providers

• ?????

Other Services

• As Needed