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Educating & Preparing Dialysis Patients for
TransplantationNicole M. Pinkerton, MA, MFT
Consultant, Development & Education
Advantages of Transplantation Better quality of life - freedom from
dialysis
Avoid long-term complications of dialysis
Higher energy levels
Less dietary and fluid restrictions
Research has shown…
…the less time on dialysis the better the transplant results
Difficulty Accessing
Some have difficulty accessing transplantation
Lack of information about transplantation Not referred to transplant center Common to emotions
Denial Anger Fear Depression Anxiety
Transplant Process
The Transplant Process can be overwhelming Evaluation requires doctor’s visits and follow-up
Long wait time for an organ
A transplanted organ requires constant self-care
Often patients struggle going through the process, however, education and support can help.
The Reality
Takes time to adjust
Adjustment period can be difficult
Knowing what to expect can help
Being prepared can make the adjustment easier
Comprehensive Education is Needed to:
Help patients gain access to transplantation
Allow patients to make an informed decision about what is best for them
Help patients navigate through the process
Be prepared in what to expect and how to care for a transplant
One-on-One Kidney Transplant Education Program
Designed to meet the needs of the individual
Provided at dialysis center during dialysis
For patients, by recipients – shared experience
Listen and provide support
Education given a little each time over a couple of months
Evaluations show success
Increase access to transplantation
Inform about all aspects of transplantation
Increase in being proactive in caring for health
Consideration of living donation
Better understanding of what to expect
More hopeful about future
How To Learn More
Transplant Evaluation and Doctor’s Appointments
Educational Materials
Seminars, Conferences, and Support Groups
Nonprofit Organizations
Internet How to Learn More about Transplantation and Resource Handouts are
available after presentation
In Summary
Dialysis Patients benefit from:
Education about treatment options
Getting Support
Communicating with healthcare professionals and peers
Being Motivated to care for self
Sincere Thanks!Sincere Thanks!
For more information about transplantation, contact:
Nicole Pinkerton, MA, MFTMendez National Institute of
Transplantation213.413.2779 ext 170nicole.pinkerton@transplantation.
com