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7/27/2019 ESC Module 5
1/26
Page
The Ten Essential Shared Capabilities
Module5:
Raceequalityandculturalcapability
Author:PeterFernsOriginalAuthors:ErrolFranciswithIanGittens
Itisestimatedthatthereareover6millionpeopleinEnglandwhoaredesignatedas
fromblackandminorityethnicgroups.Black,Irishandotherminorityethnicgroups
experiencehighlevelsofsocialandmaterialdeprivationwhencomparedwiththe
majoritywhitepopulation.
(InsideOutside,2003,DepartmentofHealth,page9)
WelcometoModule5.ItisdesignedtohelpyouexplorethelinksbetweentheTen
EssentialSharedCapabilitiesandraceequalityandculturalcapability.
KeyESCElements:RespectingDiversity,ChallengingInequality,ProvidingServiceUser
CentredCare,MakingaDifference.
Aftercompletingthismoduleyouwill:
BeawareofthehistoryandbackgroundtotheexperienceofBlackandMinority
Ethnic(BME)mentalhealthserviceusers
Understandtheconnectionsbetweenthebroadthemesrelatingtorace,culture,
oppression,mentalhealth,theTenEssentialSharedCapabilitiesandyour
personalpractice
Understandandbeabletoapplyanumberofkeytermsandconceptswithinthe
race,cultureandmentalhealthdebate
Understandtheimportanceoforganisationalaswellasindividualchangein
relationtodeliveringraceequality
Contents
.ApproachestoRaceEqualityandCulturalCapability(RECC)...................2
2. Dening some fundamental ideas in RECC................................................ 7
3.KeyfactorsinBlackandMinorityEthnic(BME)mentalhealth..................
4.BreakingtheCirclesofFear.......................................................................20
5.DeliveringRaceEquality.......................................................22
6.Linkstofurtherlearning...............................................................................24
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.ApproachestoRaceEquality&CulturalCapability
The rst step towards achieving race equality is to become more aware of problems that
existforBMEpeopleinyourservice.Ifyoudonotrecogniseaproblemitwillneverget
addressed. Awareness depends on how reective practitioners are and how well a critical
analysisofserviceprovisionisconducted.
Activity5.
Lookingatwhereindividualsarecomingfrom
Howwouldyouanalysethesecommonstatements?
Writeyourresponsesintheright-handcolumn.
.WedonthaveanyBlack
peoplearoundheresoitsnot
aproblem.
.
2. BME people should t into
ourcultureandthentheywould
have fewer difculties with
services.
2.
3.Wejustneedtolearnmore
aboutandrespectother
peoplesculturesandwewill
thentackleracismeffectively.
3.
4.Itdoesntmattertomewhat
colourpeopleareItreat
everybodythesame.
4.
5.IfyougetmoreBMEworkers
intheservicewewillbeableto
meettheneedsofBMEservice
users.
5.
6.Institutionalracismissucha
bigproblemthereisverylittle
thatIcandoaboutit.
6.
7. We just dont have enough
resourcestoprovideaspecialistservicetoBME
people.
7.
Ifyouaredoingthisactivityinagroupdiscussyouranswerswithtwootherpeople.Compare
whatyouhavewrittenwithourgridonthefollowingpage.
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Ourgrid
.Wedonthaveany
Blackpeoplearoundhere
soitsnotaproblem.
Thisstatementmakesanassumptionthatracismexistsonly
ifBlackpeoplearepresentthisisnottrue.Itcouldbethat
racismisabiggerproblemwherethereareonlyaveryfewBMEpeople.Racism,aswithotherformsofdiscrimination,
merelythrowsaspotlightontogeneralproblemsand
weaknesseswithinaservicesoraceequalityisaboutgood
practiceforallserviceusers.
2.BMEpeopleshould
t into our culture and
theywouldhavefewer
difculties with services.
This statement begs the question about who denes our
culture and whether it can be dened in such a way. All
culturesarecomplexandcomprisedofmanydifferentcultural
inuences, there has always been mixing and combining of
culturesthroughouttheages.Furthermore,mostBlackpeople
havebeenbornhereandarefullypartofBritishculturebut
stillexperiencediscriminationonthebasisofskincolourand
appearance.Furthermore,theapproachheredisplaysa
degreeofculturalarroganceinassumingthatthedominant
culturehasnothingtolearnfromotherculturesandsothisis
anassimilationapproach.
3.Wejustneedtolearn
moreaboutandrespect
otherpeoplescultures
andwewillthentackle
racismeffectively.
Thisstatementisessentiallyamulticulturalapproach.It
assumesthateducationandarationalapproachwillbe
sufcient in tackling racism but many aspects of prejudice
anddiscriminationarenotrational.Italsoassumesthat
knowledgegainedbytheindividualwillbeusedtoreduce
discriminationjustknowingaboutcultureisnotenoughtotackleracism.Knowledgeaboutthevarietiesofwaysinwhich
racismismanifestedcouldhelpbutknowledgealonedoes
notnecessarilychangebehaviourorimpactondiscrimination,
powerandstructuralinequalitiesinsocietymustalsobetaken
intoaccount.
4.Itdoesntmattertome
whatcolourpeopleare
Itreateverybodythe
same.
Thisapproachiscolour-blindandassumesthatequalityis
abouttreatingeverybodythesamebutwearealldifferent
withdifferentneeds.Equalityisaboutequalrespectbutnot
necessarilythesametreatment.Apersonsskincolourmay
wellbeanimportantaspectofthatpersonsidentityandlife
experience and denial of its signicance devalues the persons
viewoftheirrealityinsociety.
5.IfyougetmoreBME
workersintheservicewe
willbeabletomeetthe
needsofBMEservice
users.
ThestatementdisplaysanassumptionthatanyBMEworkers
willbeabletomeettheneedsofBMEserviceusersmerely
becauseoftheirraceorethnicitythisistoosimplistic.The
needsofBMEserviceusersmaynotbemetbyBMEworkersif
theydonothavethenecessaryknowledgeorskills.
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6.Institutionalracismis
suchabigproblemthere
isverylittlethatIcando
aboutit.
Thisstatementsuggeststhatindividualpractitionersare
powerlessandcandolittletochallengeinstitutionalracism.
Raceequalitystartswiththeindividualcommitmentof
practitionersandwiththemtakingaccountabilityfortheirown
practice.TheexperiencesofservicequalityofBMEserviceusersareoftendeterminedbythepracticeoftheindividual
practitionersdealingwiththem.
7. We just dont have
enoughresourcesto
provideaspecialist
servicetoBMEpeople.
ThestatementexcludesBMEserviceusersfromthe
mainstreamofmentalhealthservices,marginalisesthem
anddeniespeopleafairshareofresources.BMEpeopleare
taxpayersandcontributorstosocietyasmuchasanyother
groupofcitizens.ThereisalsoasuggestionherethatBME
peopleareextremelydifferentintheirbasicneedscomparedto
otherserviceuserswhichisnottrue.
Nowanswerthefollowingquestions:
WhatkindofthingshaveyousaidaboutRECCissuesinthepast?
Doyoustillbelieveinwhatyousaid?
Ifyouhavealteredyourviewswhathelpedyoutoshiftyourthinking?
Activity5.2
Lookingatwhereyourserviceiscomingfrom?
Lookatthefollowingstatementsandputatickagainsttheone(s)youfeelmostrepresent
yourservicesapproachtoissuesofRaceEqualityandCulturalCapability.
.Institutionalracismisnotseenasseriousorwidespreadasthe
Governmentmakesoutanditseemsthatmostpeopleintheorganisation
feelthattoobigafussismadeaboutit.
2.Peopleacceptthatinstitutionalracismexistsinmanymentalhealth
servicesbutmostpeoplesaythattheyhavenotreallycomeacrossitatall
intheirservices.
3.Peopleknowinstitutionalracismisawidespreadprobleminmental
healthservicesbutitisfeltthatservicesaredoingthebesttheycangiven
theresources.
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4.Itisgenerallyfeltthatinstitutionalracismisaproblemineverymental
healthservicebutmostpeoplefeelthattheyhaveaddresseditintheir
serviceandsoitsnotabigproblemanymore.
5. People feel that it is ne to look at BME issues in mental health but itisfeltthatsomeperspectivehasbeenlostasthereareotherissuesof
equalitywhicharethoughttobeevenmoreimportant,suchasgender
issuesorpoverty.
6.Peoplecanseethatinstitutionalracismisabigprobleminmentalhealth
servicesandthattheyneedtoimprovethingsbuttheycannotseehow
they can directly inuence change.
7. The service has found out about BME peoples experiences of services
andhastalkedtoserviceusersandfamiliesdirectly.Institutionalracismis
alsodiscussedamongstcolleaguesbutitisfelttobesuchabigproblem
thatpeopledontknowwheretostart.
8. Most people have been careful to reect on their practice and look out
forinstancesofracialdiscriminationinservices.Peoplehaverecorded
things,gatheredevidenceofproblemsandfeditthroughtomanagement
butnothingseemstohavecomeofit.
9.Someteamshaveformulatedactionplanstopromoteraceequality
andtheyhavesettaskstotackleproblemsandgapsforBMEpeoplein
theservice.Theyfeelthatoncetheyachievetheirgoalstheywillhave
improvedtheservice.
0.TeamactionplanstoimproveservicesforBMEpeoplearepartof
awiderRaceEqualitystrategythateveryonehascontributedtointhe
organisation.Thereareregularreviewsandmonitoringaboutwhatisbeing
doneintheorganisationtoachievecontinualimprovementsoverthelong
haul.
Once you have nished ticking the statement(s) to record where your service is, read about
theRaceEqualityScaleonthenextpage.
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TheRaceEqualityScale
Hostility Sometimespeoplemaybehostileduetoangeratbeing
accusedofbeingracistasitisperceivedbythem.More
often,itsuggestsafailuretorecogniseinstitutionalracismasaproblematall.Trainerswhotrytohighlightinstitutionalracism
arepresumedtohaveahiddenpoliticalagendaandWhite
trainerswhodothisaresomehowbetrayingtheirownpeople.
2 Denial Thisresponsemayrecognisethatinstitutionalracismexists
elsewherebutnothere.Peoplewillclaimthatthereareno
problemswiththeirservicesinrelationtoBMEpeopleeven
whenpresentedwithevidencetothecontrary.Ifpeoplein
denialarepressedhardertheymayenterintoahostile
responseinstead.
3 Apathy Thisresponseessentiallydoesnotviewinstitutionalracismas
beingallthatbadanddiscriminationisseenasunavoidable.
Individualswhoexperienceracismareexpectedtoaccept
itandmakethebestoftheirsituation.Servicechangeis
seenasbeingtoohardorunrealistic.Apathyisarguably
themosteffectivedriverofinstitutionalracismaspeoplewith
power and inuence in services need only be apathetic and
notquestiondiscriminatorysystems,policies,proceduresand
organisationalculturesforinstitutionalracismtothrive.Inother
words,practitionersdonothavetobeactivelyracisttoracially
discriminatetheyjusthavetobeapatheticandthesystem
discriminates.4 Pretence Inthisresponsepeoplerecognisethereisaproblemwith
racismbutdealwithcriticismbyclaimingthatproblemshave
beenaddressedwhentheyhavenot.Peoplemayexaggerate
smallstepstowardsprogressortakecreditforafewexcellent
agenciesintheirareawhilstnottacklingseriousproblems
withinthemajorityoflocalservices.Theneteffectofthis
responseistoincreasethehiddennatureofinstitutionalracism
leadingtotokenismandthecreationoffurtherbarriersto
progress.
5 Avoidance Peopleengaginginthisresponserecognisethatinstitutional
racism is a problem in services but they will deect criticism
aboutracismbyclaimingthatotherformsofdiscrimination
areworsesuchassexismordiscriminationagainstdisabled
people.Ahierarchyofoppressionisconstructedinpeoples
mindswhichisbothdivisiveanddoesnotleadtoacoherent
value-baseforequalityasawhole.
6 Puzzlement Anotherresponsefollowingrecognitionoftheproblemofracism
couldbeoneofpuzzlementatwhattodoaboutit.People
may express feelings of being deskilled and uncondent
aboutdealingwithBMEpeople.Theremaywellbeadesireto
improvepracticebutlackofclarityabouthowtodothis.
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7 Acknowledge-
ment
ThisresponsedemonstratesadegreeofempathyforBME
peopleonthereceivingendofdiscrimination.Itactively
communicates awareness of institutional racism and afrms the
experiencesofBMEpeople.However,acknowledgementdoes
notnecessarilyleadtoactualimprovements.
8 Analysis Practitionersactivelymonitorfordiscrimination,record
experiencesofBMEpeopleandgatherevidencetoanalyse
thepatternsofdiscriminationoccurringinservices.However,
analysisdoesnotguaranteethatchangeswillhappen.
9 Action Inthisresponsepractitionersandmanagersactontheir
analysis,formulateactionplanstoaddressproblemsandgaps
inservicesforBMEpeopleandcarryouttheirplantoachieve
thetargets/goalsset.
0 SustainedImprovement
Hereactionplansarecoordinatedthroughawiderraceequalitystrategyacrossthewholeorganisationandlocal
communityandtheyareregularlymonitored.Aseriesofaction
plansarecarriedoutoveraperiodoftimetoachieveongoing
improvements.
TickwhereyourService/Teamisasawholeonthisscale.
2 3 4 5 6 7 8 9 0
Nowanswerthefollowingquestion:
WhatwouldyourService/Teamhavetodotoimproveitspositionontheraceequality
scalebyatleastonestep?
Ifyouaredoingthisactivityinagroupcompareyourratingswithyourcolleagues.Discuss
anydifferencesinyourratingsandwhatyourevidenceisforyourjudgements.
2. Dening some fundamental ideas in RECC
They didnt really take my culture into account One nurse told me to think of Rama and
line up for my medication. (Asian Woman service user, Ferns, 2003)
Theconceptofcultureisveryimportantbutitisalsoquitecomplex.Herewewilllookat
howcultureandpowercancombinetocreateoppressionanddiscrimination(seediagram
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below).Ineverysocietypeoplearebornwithoracquiredifferencesintheirlivesandtheway
power is used in that society inuences the meanings given to differences. So, people can
bebornwithdifferencessuchasaparticularappearance,skincolourorphysicalimpairment
butmayacquiredifferencesinbeliefsorvaluesthroughtheirculturalcontextortheymay
acquireaphysicaldisabilitythroughillnessoraccident.Thebeliefsandassumptionscanbepositiveornegativeandquiteoftenpeopledonotrequireanyevidencetoholdthemthese
are prejudices that inuence the values assigned to individuals and the social groups they
belongto.
Oncedifferentvaluesareassignedregularlytocertainsocialgroupsovertimetheybegin
togeneratepositiveornegativestereotypesaboutthesegroups.Forinstance,peoplewho
attenduniversityatOxfordorCambridgemayhaveapositiveassumptionmadeaboutthem
thattheywillbegoodleadersorpeoplewhoarehomelessmayhaveanegativeassumption
madeaboutthemthattheyhavebroughttheirsituationuponthemselves.Thepower
structureswithinsocietywhichhelpcreateprejudicesandstereotypesthenincorporate
themintothestructuresandsystemsoforganisationsandservicesthataffectpeopleslifeopportunities;suchaseducation,health,employmentandmentalhealth.Theprocess
leadstoeasyaccessforthosepositivelystereotypedandunfairbarriersforthosenegatively
stereotyped.Ultimatelysomesocialgroupsenjoyprivilegewhilstothersaresubjectedto
oppressionneitheroutcomeisdesirableastheyarebothbasedonunfairnessandsocial
injustice.
Racismasaformofoppressionthenoperatesatanindividuallevelwithprejudicesand
stereotyping inuencing relationships and communication between practitioners and
service users. Racism at an organisational level inuences services through stereotypes
andreinforcesthemthroughpolicies,proceduresandsystemscontributingtoinstitutional
discrimination.Racismatthesocietallevelcreatesdiscriminatorypowerstructures
andmaintainsstereotypes;itsupportsdiscriminatoryorganisationsthroughpoorpolicy
implementationandfurtherstrengthensinstitutionaldiscrimination.
So, it
People born wi th or ac u ire
Posit ive
ValuesNegativeValues
Easy
accessUnfair
barr iers
Unfair
advantages
Prejudices
Stereotypes
Insti tut ionaldiscrimination
Posit ive
Beliefs
Negative
Beliefs
People born wi th or ac u ire
Posit ive
ValuesNegativeValues
Easy
accessUnfair
barr iers
Unfair
advantages
Prejudices
Stereotypes
Insti tut ionaldiscrimination
Posit ive
Beliefs
Negative
Beliefs
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canbeseenfromthediagramthatinstitutionalracismisjustoneelementofanoveralllife
experienceofoppressioninsociety.Racismasaformofoppressionhastobetackledatall
ofthelevelsthatitoperatesindividuals,groups,organisations,communitiesandinsociety
atlarge.However,institutionalracismisaverycomplexproblemtoaddressandthisis
reected in the following denition:
Institutionalracismisthecollectivefailureofanorganisationtoprovideanappropriate
andprofessionalservicetopeoplebecauseoftheircolour,cultureorethnicorigin.Itcan
beseenordetectedinprocesses,attitudesandbehaviourwhichamounttodiscrimination
throughunwittingprejudice,ignoranceorthoughtlessnessandraciststereotypingwhich
disadvantagesminorityethnicpeople.
SirWilliamMacpherson,ChairoftheStephenLawrenceInquiry(999)
Tobeeffective,effortstotackleracismateachlevelhavetobecoordinatedandshouldbe
partofwiderstrategytopromoteequalityinaserviceorganisationandthecommunityit
serves.
Activity5.3
KeywordsinRECCLook at the following denitions of some key words that are commonly used in RECC
approachesmanyofwhichhavealreadyappearedinthismodule.
Can you guess the word or phrase that is being dened?
KeyWordsinRECC. Sharedbehaviours,traditions,valuesandnormsamongstagroupofpeople
characterisedbysharedlanguage,food,dress,symbols,myths,artandhistory.
Youhaveadegreeofchoiceastowhetheryoutakeitonornot.
2. Agroupofpeoplewhosharetraditions,heritageandhistoryoveralongperiod
of time and come to identify closely with one another. It is often tied to a specic
geographiclocationandusuallyinvolvessharedlanguageandreligions.
3. ApoliticaltermofsolidaritybetweenpeoplewhoarevulnerabletoWhiteracismas
aresultoftheirskincolourandphysicalappearance.
4. Categorisation of people dened by colour of skin and physical appearance,
which has developed from a falsely scientic way of thinking about human beingsasarisingfromdifferentspecies.Ithasnowbecomeasocialconceptwith
negligible importance attached to its biological and scientic connotations but is
still inuential in community relationships, the way we organise our institutions and
powerstructureswithinsociety.
5. Attitudesorbeliefsthatarenegativetowardscertaingroupsofpeopleandwhich
arenotfoundedonrationalthinkingorfactualinformation.
6. Commonlyheldassumptionsandbeliefsaboutparticularracialandethnic
groups of people where everyone from that group is assumed to have specic
personalcharacteristicsbecausetheybelongtothatgroup.Ineffectpeopleare
deniedtheirindividuality.
7. Treatingpeopledifferentlywhichhascometomeanunfairtreatmentofcertain
groupsofpeople.
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Theanswers:
KeyWordsinRECC
. Culture 9. Holistic
2. EthnicGroup 0. Empowerment3. Black . Assimilation
4. Race 2. Multicultural
5. Prejudice 3. Colour-blind
6. Stereotyping 4. Oppression
7. Discrimination 5. Privilege
8. Diagnosis 6. RaceEquality
3.KeyfactorsinBMEmentalhealth
The Government has acknowledged that racism and discrimination play a signicant role in
ourmentalhealthservices.Forexample,RosieWinterton,theMinisterofStateforHealth
said:
There are signicant and unacceptable inequalities in the access to mental
healthservicesthatblackandminorityethnicpatientshave,intheirexperience
ofthoseservicesandintheoutcomeofthoseservices.Ratesofcompulsory
admission are signicantly higher for black and minority ethnic groups. Average
lengthsofstayinhospitalarelonger.BMEpatientsaremorelikelythanwhite
peopletobeprescribeddrugsorECTratherthanpsychotherapyorcounselling.
AllthisfuelsthecircleoffearthatcandeterBMEpatientsfromseekingearly
treatmentfortheirillness.(Jan2005)
The use of the term signicant and unacceptable to describe the extent of the
inequalitiesthatBMEserviceusersfaceinourmentalhealthserviceshighlightstheneedfor
clearly dened actions to address such marked differences in experiences and outcomes.
Pooroutcomesareacknowledgedtobesystemicratherthanduetoindividualdifferences
betweenserviceusersbutthisdoesnotmeanthatweunderstandhowtheyarise.Mental
healthservicemanagersandpractitionersarenowbeingaskedexplicitlytolookatwhatthey
candodifferentlytoimproveexperiencesandoutcomesforBMEserviceusersandtheir
families.Thisincludesanyethnicgroupwhomayhavedifferentculturalnormsandvaluesfromthemajoritycultureandarevulnerabletodiscrimination,suchasTravellers:
Ofthe200,000to300,000TravellersinEngland,byfarthelargestgroupareRomany
Gypsies,whohavebeeninEnglandsincetheearly6thcentury.RomanyGypsieshave
beenrecognisedinlawasaracialgroupsince988(seedetailsofthe989testcase
CREvDutton).IrishTravellers,whohavebeentravellinginEnglandasadistinctsocial
groupsincethe800s,receivedlegalrecognitionasaracialgroupinEnglandandWales
in2000(OLearyvAlliedDomecq).
(CommissionforRacialEquality,2006)
WewilloutlinethefollowingsixkeyfactorsinBMEmentalhealththatshouldbetakeninto
considerationinanexaminationofanyservices:
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Compulsion-TheincreasedlikelihoodofBlackpeoplecominginto
thepsychiatricsystemthroughacompulsoryroute.
Prevention-Thelackofpreventativeandafter-carementalhealthserviceswhichareappropriateforBMEcommunities.
Diagnosis-Theincreasedincidenceofdiagnosesofseriousmental
healthproblemsforBlackpeople(particularlyschizophrenia)
Treatment-Theover-useofdrugsandphysicaltreatmentswithBME
serviceusersratherthantalkingtherapies
Stereotyping-TheincreasedlikelihoodofBlackpeoplebeingracially
stereotypedbyprofessionalsindecisionsaboutdangerousness
Migration-Thelackofresponsetorefugeesandasylumseekers.
1.
2.
3.
4.
5.
6.
Key factor 1: Compulsion-TheincreasedlikelihoodofBlackpeoplecomingintothe
psychiatricsystemthroughacompulsoryroute
WhenIgotcaughtbythepolice,thedoctortoldmethatImnotallowedtostayinthis
country. He phoned the Home Ofce saying that I had committed a crime and that I was
mentallyill.
(Africanmaleserviceuser,Ferns,2003)
StudiesshowthatnotonlyareAfrican-Caribbeanpeopleover-representedwithinthemental
healthsystembuttheyarealsomorelikelytobeadmittedunderacompulsoryorder.Most
studiessuggestthatthisisparticularlysoforBlackyoungmenbutthereisevidencetosuggestthatthesituationisjustasbadifnotworseforBlackwomen.Furthermore,thereis
astrongperceptionamongthoseworkinginIrishmentalhealththatIrishmenandwomen
arealsoover-representedamongthosereceivingECT,beingcompulsorilydetainedandin
secureunits.
Withinpsychiatricsettings,blackandminoritypatientsaremorelikelythanwhitepeople
tobeassessedasrequiringgreaterdegreesofsupervision,controlandsecurityand,
partlyasaresult,morelikelythanmajoritywhitepeopletobeadmittedtosecurecare
environments.Thereisaverystrongassociationbetweenethnicityandtransfer/admission
tosecureunits,particularlyMediumSecurefacilities.Over-representationofblackpeople
inhighsecuresettingshasalsobeenanenduringfeatureofBritishpsychiatriccare.
..EvidencesuggeststhatIrishpeoplearealsoover-representedinallareasofthecriminal
justicesystem.
(InsideOutside,DepartmentofHealth,2003,page4)
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Key factor 2: Prevention-Thelackofpreventativeandafter-carementalhealthservices
whichareappropriateforBMEcommunities
IwantmoreinformationIvebeeninthiscountryfor2yearsandIvejustfoundoutabout
Meals-on-Wheels.(BMEserviceuser,Ferns,2003)
Thetake-upofcommunitymentalhealthservicesbyWhitepeoplebutnotBlackpeopleis
anotherthemerunningthroughtheresearch.Itisimportanttorecognise,however,thatwhen
servicesareappropriateandavailable,thereisevidencetosuggestthatBlackpeoplewill
use those services and benet (Wilson & Francis,1997).
Manyindividualsfromminorityethnicgroupsencounterbarrierswhenseekinghelp
includinglanguage,thediscrepancybetweenthepatientsanddoctorsviewsastothe
natureofthepresentingsymptoms,culturalbarrierstoassessmentproducedbythe
relianceonanarrowbiomedicalapproach,lackofknowledgeaboutstatutoryservices,and
lackofaccesstobilingualhealthprofessionals.
(InsideOutside,DepartmentofHealth,2003)
Key factor 3: Diagnosis-Theincreasedincidenceofdiagnosesofseriousmentalhealth
problemsforBlackpeople(particularlyschizophrenia)
Mydiagnosisisnotcorrect.Mymentalhealthproblemsareasideeffectofspiritual
transformationItakenotablets.
(BMEserviceuser,Ferns,2003)
Overthelasttwodecades,themainstudiesintomentalhealthandracehaveconsistently
reportedhighratesofseverementalillness(particularlyschizophrenia)amongAfrican-
CaribbeanpeopleincomparisonwithratesamongWhitepeople.Ithasbeenestimated
thatAfricanCaribbeanpeopleareuptotentimesmorelikelytoreceiveadiagnosisof
schizophreniaorpsychosis.Ontheotherhand,AfricanCaribbeanpeople,especiallymen,
areunder-representedinthediagnosisofneurosessuchasdepressionandanxiety-related
mentalhealthproblems.Ithasbeennotedthatthereisalsoanover-representationofIrish
peopleinthisareaofseverementalillness.Incontrast,however,peopleofAsiandescent
tendtobeunder-representedinthediagnosisofschizophreniaandover-representedin
areassuchassuicideanddepression,particularlyforAsianwomen.
Key factor 4: Treatment-Theover-useofdrugsandphysicaltreatmentswithBME
serviceusersratherthantalkingtherapies
If I nd that Karaoke helps me with my mental distress then it should be provided on the
NHS.Itwouldprobablybecheaperthandrugs.
(BMEserviceuser,Ferns,2003)
ResearchevidencehassuggestedthatbothAsianandAfrican-Caribbeanpeopleare
morelikelytoreceivephysicaltreatmentssuchasdrugsandECTratherthantherapeutic
talkingservices.ThismostlyarosefromprofessionalsviewingBlackpatientsbeingmoredangerousorpresentinggreaterrisks.
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Key factor 5: Stereotyping-TheincreasedlikelihoodofBlackpeoplebeingracially
stereotypedbyprofessionalsindecisionsaboutdangerousness
Culturalandracialstereotypingisacommonexperienceinthecontextofassessmentand decisions concerning treatment. This may well inuence the types of services and
diagnosisindividualsfromminoritybackgroundsseekandreceive.Thereisevidencethat
stereotypingofIrishpeopleasalcoholicsobstructstreatmentformentalhealthproblems.
Interpretingservicesareoftenunavailable,whichmakesthediagnosisorassessment
procedurebothunreliableandhighlystressful.
(InsideOutside,DepartmentofHealth,page2)
Someevidencealsosuggeststhatpsychiatristsandothersaremorelikelytoconsider
African-Caribbeanmenaspotentiallydangerouscomparedtoothers.Itisthereforepossible
thatthisgroupismorelikelytobediagnosedwithpsychosisbecauseofbiasamongthose
whotreatthem(Nazroo&King,2002).
Key factor 6: Migration-Thelackofresponsetorefugeesandasylumseekers
TheAsylumTeamhaveputmeintoasmallroom,milesfrommydaughterand
grandchildren.Ihavenoprivacy,noTVandImverydistressed.
(WomanRefugee,Ferns,2003)
Refugeesandasylumseekersfacemanybarriersinaccessinghealthservicesincluding
mentalhealthservices.Theyoftenhaveneedsduetoexperiencesoftraumafromwarsuchasimprisonment,tortureandoppression.Comingtoanewcountrywithoutanyfamilyor
socialnetworksleadstofurtherisolationespeciallyifthereishostilityandracismtocontend
with.
Refugeewomenaresubjecttoarangeofphysicalandmentalhealthproblems,including
gender-related difculties, domestic and sexual violence, and sexual and reproductive
healthproblems.Thepsychologicalstresstheysufferisfurthercompoundedwhentheyare
separatedfromtheirchildrenorfacedwiththelossoffamilymembers.Asaconsequence,
anxiety,depressionandpost-traumaticstressdisorderarecommonlyoccurringamong
refugeewomen,alongwithwidespreadmentalhealthproblems.Attentionalsoneedstobe
given to the activities of organised criminal gangs in the trafcking of women and children
forsexualexploitation(prostitution)andforcedlabour.(Demir2003).
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Activity5.4.KeyFactorsinBMEMentalHealth:DangersforBMEserviceusers
Lookatthefollowinggridwiththesixkeyfactorsandwritedownwhatyouthinkarethemain dangers for BME service usersandthemain challenges for mental health
services intheright-handcolumns.
Key Factors Dangers for BME for
service users
Challenges for MH
Services
.Compulsion
2.Prevention
3.Diagnosis
4.Treatment
5.Stereotyping
6.Migration
Onceyouhavecompletedthegridlookatourgridonthefollowingpage.Youmayhave
somedifferentpointstomakeinrelationtoyourlocalpracticebutcompareyouranswersto
someofthepointswehavemade.WehavealsomappedtwoimportantESCstoeachkey
factor.
OurgridKey Factors Dangers for BME service users Challenges for MH
services
1. Compulsion BMEpeoplefeelforcedtouseMH
servicesarelikelytoexperience
servicesarecontrollingratherthan
genuinelyhelpingthem.Inthis
situationofcontrolpeoplemay
becomeresentfulandsuspicious
ofserviceseventuallyavoiding
themaltogether.
How to offer services
to BME service users
in a way that they fnd
acceptable?
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2. Prevention Lackofaccesstopreventative
servicesmeansthatpeopleare
morelikelytoenterMHservices
incrisisandmoredamageis
donetoBMEindividuals,familiesandcommunities.IfBMEpeople
arenotproperlysupportedafter
acrisisitislikelythattheywill
quicklyre-enteracuteservices
becomingrevolvingdoorpatients.
How to reach out to BME
people in mental distress
who may need assistance
before they go into a
crisis?
How to reduce stigma
about mental health in
BME communities?
3. Diagnosis BMEpeoplearemorelikelytobe
misdiagnosedandstereotyped
ratherthanhavingtheirrealmental
healthneedsassessedaccurately.
How to assess BME
service users needs in a
culturally appropriate and
holistic way?
4. Treatment BMEpeoplearemorelikelytobeofferedinappropriatetreatment
withpooreroutcomesthereby
reinforcingthenegativeviewof
mentalhealthservicesinBME
communities.
How to create culturallyappropriate alternatives
to drugs and ECT for BME
service users?
5. Stereotyping BMEpeoplewillfeelthat
mentalhealthservicesare
notintouchwiththereality
oftheirlivesorinterestedin
themasuniqueindividualsand
theywillfeeldepersonalisedanddisempowered.Negative
assumptionsaboutpeoplewilllead
topoorpredictiveassessmentsin
riskmanagement,labellingand
increasedfeelingsofsocialcontrol.
How to ensure anti-
discriminatory risk
assessment and
management in work with
BME people?
6. Migration Ifthementalhealthneedsof
refugeesandasylumseekers
arenotproperlyassessedand
assistanceofferedtherewillbe
damagingsocialconsequences
notonlyfortheindividualsand
familiesconcernedbutalsothe
communitiestheylivein.Issues
suchasmentaldistress,family
breakdown,drugandalcohol
abuse,domesticviolenceand
criminalitywillbecomemajor
challengesinthesecommunities.
How to provide early
detection and effective
intervention with respect
to mental health needs
of refugees and asylum
seekers?
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WhichoftheEssentialSharedCapabilitieswouldbemosteffectivedealingwiththedangers
forBMEserviceusers?NowwewilllinkeachofthekeyfactorswithtwoofthemainESCs.
Key Factors Analysis of dangers for BME service
users
Essential Shared
Capabilities1. Compulsion Peopleoftenenterintothemental
healthsystemcompulsorilyinacrisis
duetoabreakdowninthepersons
supportnetworksorlackofassistance.
Strengtheningthepersonsfamily,
carerandothersupportnetworksis
crucial.Compulsioninvolvestheuseof
mentalhealthlegislationandattention
tothepersonsrightsinthesituationis
necessary.
ESC 1 - Working in
partnership
ESC 3 - Practising
Ethically
2. Prevention Greatereffortshavetobemadeto
preventBMEpeoplefromentering
acuteservices,whichmeansthat
workhastobedonewithpeoplein
theircommunitiestodevelopvalued
and fullling roles. On discharge from
hospitalBMEpeoplewillneedhelpin
overcominganydiscriminatorybarriers
andstigmatheymayfaceintheir
communities.
ESC 4 - Challenging
Inequality
ESC 5 - Promoting
Recovery
3. Diagnosis Anarrowapproachtodiagnosisandassessmentofmentalhealthneedshas
provedtobedamagingtoBMEpeople
andinformationhastobecollectedin
aholisticway.Theculturalmeaningsof
mental distress must be identied and
respectedinordertounderstandthe
needsofBMEpeopleproperly.
ESC 2 - RespectingDiversity
ESC 6 - Identifying
Peoples Needs &
Strengths
4. Treatment GoalsforinterventionwithBMEpeople
andtheirfamiliesmustaddresstheir
concernsandbemeaningfultothem.
Serviceusersshouldbegivenaccess
toculturallyappropriateservicesthat
are designed around the specic needs
oftheperson.
ESC 7 - Providing Service
User Centred Care
ESC 8 - Making a
Difference
5. Stereotyping Practitionershavetoactivelychallenge
stereotypesthatBMEserviceusers
maybevulnerableto.Inriskwork,BME
serviceusersshouldbeenabledto
makedecisionsaboutrisksintheirlives
andpractitionersshoulddemonstrate
theirconcernforthesafetyandwellbeingofserviceusers.
ESC 4 - Challenging
Inequality
ESC 9 - Promoting Safety
& Positive Risk Taking
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6. Migration Giventheextremelypooraccessto
mentalhealthservices,thereisan
urgentneedforpractitionerstowork
closelywithrefugeeandasylum
seekergroupstoimproveaccess.Constructivepartnershipsneedtobe
builtbetweennewlyarrivedgroups
andlocalcommunitiesandmental
healthserviceshaveanimportant
roletoplayinthistask.Thisareaof
mentalhealthworkisinvolvesrapidly
changing practice due to conicts and
worldwideeconomicfactorswhichwill
requirepractitionerstokeepabreast
ofresearchandnewmentalhealth
approachesinmigration.
ESC 1 - Working in
Partnership
ESC 10 - Personal
Development & Learning
Ifyouareinclinicalwork-thinkofarealBMEserviceuseryouhaveworkedwithorknow
aboutandanswerthefollowingsixquestionswhichcorrespondtothesixkeyfactors.Once
youhaveansweredthequestionsaboutthepersontickoneortwoofthemostimportantkey
factorsforthatpersononthegrid.
Key Factors A BME service user tick
.Compulsion
Howdidtheserviceuser
enterintomentalhealthservices?
2. Prevention
Whatkindofhelpinthe
communitymayhave
preventedthepersonfrom
enteringacutementalhealth
services?
3.Diagnosis
Doesthepersonagreewith
theirdiagnosisandhowdoess/hedescribetheir
mentaldistress?
4.Treatment
Whatkindoftreatmentshas
thepersonbeenofferedand
usedmainly?
5.Stereotyping
Doyoufeelthattheperson
hasbeensubjectedtoany
stereotypes?Ifsowhat?
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6.Migration
Hasthepersonortheir
familybeenaffectedbythe
experienceofmigration?If
sohow?
Whatcouldhavebeendonedifferentlytoimprovetheexperienceofthatpersoninmental
healthservices?
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4.Breakingthecirclesoffear
Therearemanyreasonsfortheover-representationofBMEpeopleinmentalhealthservices
andtheirexperienceofdifferentstandardsandoutcomesinservicedelivery.Socialand
politicalfactorsplaytheirpartasdoissuesconcerningpower,economicdisadvantageandsocialexclusion.
Thedegreeoftheproblemfacingmentalhealthservicesischaracterisedbyarecentstudy
abouttheexperienceofAfrican-CaribbeanpeoplebytheSainsburyCentreforMentalHealth
(SCMH2002,BreakingtheCirclesofFear).
WhattheSCMHhastermedcirclesoffearhavebeencreatedsothat:
manypeople,particularlyintheBlackAfricanandCaribbeancommunities,donotbelieve
thatmainstreammentalhealthservicescanofferpositivehelp,sotheydelayseekinghelp;
theythereforearenotengagingwithservicesatanearlypointinthecyclewhenthey
couldreceivelesscoerciveandmoreappropriateservices,cominginsteadtoservicesin
crisiswhentheyfacearangeofrisksincludingoverandmisdiagnosis,policeintervention
anduseoftheMentalHealthAct;
these aversive care pathways further inuence both the nature and outcome of treatment
andthewillingnessofcommunitiestoengagewithmainstreamservices.
(DeliveringRaceEquality:AFrameworkforAction,DoH,October2003,page8)
We must all try to break these circles of fear if we are to ensure that BME people in
mental distress get a fair deal from mental health services.
ThethreekeythemesthatemergedfromtheCirclesofFear(SCMH2002)researchwere:
TherearecirclesoffearthatstopBlackpeoplefromengagingwithservices
Mainstreamservicesareexperiencedasinhuman,unhelpfulandinappropriate
Problematic care pathways of Black people inuence the type and outcome of
treatmentandthewillingnessofthesecommunitiestoengagewithmainstream
services
Asmentalhealthpractitioners,weneedtothinkaboutourassumptionsaboutpeoplewe
considertobedifferentbecauseoftheirracialorculturalbackgrounds.Thisincludesthe
wayweunderstandwhatismeantbyraceandculture.Weneedtobeawareofhowthese
understandingscanleadustohavenegativeviewsofsomepeoplewecomeintocontact
with. We also need to understand how these views inuence the way we deal with a diverse
rangeofpeople.Beingawareofthesethingshelpsustounderstand,respectanddealwith
serviceusers,theirfamiliesandcarersinafairmanner.
Activity5.5.
Consider how fear may inuence decisions relating to the following procedures:
Riskassessment(relatestoESC9)
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Useofmedication
Controlandrestraint
Referralstoseclusion,psychiatricintensivecare,orSpecialHospitals
(forfurtherreadingsee:Keating,FrankandRobertson,David(2004)Fear,blackpeopleandmentalillness:aviciouscircle?Health and Social Care in the Community; 12 (5): 439-447)
Activity5.6.
ReadthroughthefollowingandconsiderwhichoftheESCsthesestatementsrelateto:
AfricanCaribbeanserviceusersandcarersrepeatedlyasktobetreated
withrespectanddignity.Theydemandbetterinformationaboutserviceswith
lesscoercion,lessrelianceuponmedicationandotherphysicaltreatmentsandmorechoice.Inthistheyconcurwiththeviewsofmanyotherservice
usersandcarerswhohavecommentedontheirexperienceofmentalhealth
services.Theywishtobetreatedandrespectedasindividuals.From
BreakingtheCirclesofFear,SainsburyCentreforMentalHealth,2002
African Caribbean service users and carers repeatedly ask to be treated with respect and
dignityrelatestoESCnumber/s:
They demand better information about services with less coercion, less reliance upon medi-
cation and other physical treatments and more choice.relatestoESCnumber/s:
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5.DeliveringRaceEquality
Inside Outside(DepartmentofHealth2003)signalledreformofmentalhealthcareforBME
communities.
It was prepared by some of the leading people in the eld and was supported bywidespread public consultation. It identied three key objectives:
toreduceandeliminateethnicinequalitiesinmentalhealthserviceexperience
andoutcome;
todeveloptheculturalcapabilityofmentalhealthservices;and
toengagethecommunityandbuildcapacitythroughcommunitydevelopment
workers.
Delivering Race Equality(DepartmentofHealth2003)proposedkeystrategic,whole
systemresponsestoInsideOutsidetoimplementthereformitsignalled.Itdescribedthree
mainbuildingblocks,closelyrelatedtotheobjectivesofInside Outside,whichnowformthe
foundationsofanactionplan:
thedevelopmentofappropriate,sensitiveandresponsiveservices;
theengagementofBMEcommunitieswithserviceproviders;and
good quality, intelligently used information on the ethnic prole of local
populationsandofserviceusers.
TheGovernmentsFiveYearPlanforachievingraceequalityandtacklingdiscriminationin
mentalhealthservicesinEnglandisthemostimportantpolicystatementonBMEmental
health.
Itaimstoachieve:
LessfearofmentalhealthservicesamongBMEcommunitiesandserviceusers
Increasedsatisfactionwithservices
AreductionintherateofadmissionofpeoplefromBMEcommunitiesto
psychiatricinpatientunits
AreductioninthedisproportionateratesofcompulsorydetentionofBMEservice
usersininpatientunits
Fewerviolentincidentsthataresecondarytoinadequatetreatmentofmental
illness
AreductionintheuseofseclusioninBMEgroups
ThepreventionofdeathsinmentalhealthservicesfollowingphysicalinterventionMoreBMEserviceusersreachingself-reportedstatesofrecovery;
Areductionintheethnicdisparitiesfoundinprisonpopulations;
Amorebalancedrangeofeffectivetherapies,suchaspeersupportservices
andpsychotherapeuticandcounsellingtreatments,aswellaspharmacological
interventionsthatareculturallyappropriateandeffective;
AmoreactiveroleforBMEcommunitiesandBMEserviceusersinthetrainingof
professionals,inthedevelopmentofmentalhealthpolicy,andintheplanningand
provisionofservices
Aworkforceandorganisationcapableofdeliveringappropriateandresponsive
mentalhealthservicestoBMEcommunities.
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Activity 5.7.
BecominganallytoBMEserviceusers
ThelistofDREaimsprovidesausefulframeworktojudgehowwellservicesaredoinginrelationtoBMEpeople.Practitionerswhoincreasetheirknowledgeoftheseindicatorsfor
BMEmentalhealthcanbecomepowerfulalliesforBMEserviceusersintheirareaandact
tosafeguardtherightsoflocalBMEpeopleinthementalhealthsystem.Knowledgereallyis
powerandthechecklistbelowisareminderofsomekeyquestionsthatpractitionersshould
beaddressingiftheywishtogainsomepowerinchallenginginstitutionalracismintheir
area.
Answerasmanyofthefollowingquestionsasyoucanandworkouthowyouwillgetthe
informationrequiredtoanswerallofthem.
Supporting Delivering Race Equality Where will you get this
information?
. WhatdoBMEserviceusersthinkabout
yourservice?
2. WhatistherateofadmissionofBME
peopletoyourlocalpsychiatricin-patient
units?
3. Whataretheratesofcompulsorydetention
ofBMEserviceusersinyourlocalin-
patientunits?4. Whatisthenumberofrecordedviolent
incidentsinvolvingBMEpeopleinmental
healthfacilitiesinyourarea?
5. HowoftenisseclusionusedwithBME
serviceuserswithinin-patientfacilities?
6. Whatisthenumberofdeathsinmental
healthservicesfollowingphysical
interventionoverthepasttenyears?
7. WhataretheviewsofBMEserviceusers
abouttheirrecoveryfrommentaldistressandhowserviceshavehelpedthem?
8. Whatistheethnicbreakdownofthemost
localprisoninyourarea?
9. Whatculturallyappropriateandalternative
therapyservicesarethereinyourarea,
includingtalkingtherapies,whichare
availableandaccessibletoBMEpeople?
0. HowoftenandinwhatwaysareBME
serviceusersandcarersinvolvedinthe
trainingofmentalhealthpractitionersin
yourarea?
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. Whattraininganddevelopment
opportunitiesarethereforpractitioners
inrelationtoRaceEqualityandCultural
Capability?
Howcanyoumosteffectivelyuseyournewly-foundknowledgeofBMEmentalhealthissues
tobringaboutchangeinyourservice?
Thismodulewillprovideyouwithagoodunderstandingofsomefundamentalissuesand
prepareyoufortheRaceEqualityandCulturalCapabilityfoundationtrainingmaterials
whichextendandexamineingreaterdepthmanyoftheissuescoveredinthisESCmodule.
5.Linkstofurtherlearning
ReferencesCommissionforRacialEquality(2006),Common Ground: Equality, good race relations
and sites for Gypsies and Irish Travellers - Report of a CRE inquiry in England and Wales,
London,CommissionforRacialEquality.
DemirJ.,(2003)quotedinKeatingF,RobertsonD&KotechaN(2003) Ethnic Diversity and
Mental Health in London - Recent developments.KingsFund.
DepartmentofHealth(2003)DeliveringRaceEquality:AFrameworkforAction.Mental
HealthServicesconsultationdocument,London,DepartmentofHealth.
DepartmentofHealth(2005)Deliveringraceequalityinmentalhealthcare:AnactionplanforreforminsideandoutsideservicesandtheGovernmentsresponsetotheIndependent
inquiryintothedeathofDavidBennett,London:DepartmentofHealth.
Note: David Bennettwas a 38-year-old African-Caribbean patient who died on 30 October
1998 in a medium secure psychiatric unit after being restrained by staff. The report of the
independent inquiry into the death of David Bennett made important recommendations
about the way that mental health care is delivered to service users, especially those from
BME communities. The recommendations also address wider issues such as the safe use of
physical intervention in mental health settings. The report of the independent inquiry into his
death was published on 12 February 2004.
DepartmentofHealth,June2003,Caring for Dispersed Asylum Seekers: A Resource Pack
London,DepartmentofHealth.
DepartmentofHealth(2003)InsideOutside:ImposingMentalHealthServicesforBlackand
MinorityEthniccommunitiesinEngland,London,DepartmentofHealth.
FernsP.(2003)Letting Through Light A service user-led Audit in Ealing,publishedby
LitTleProject.WestLondonMentalHealthNHSTrustandEalingSocialServices
FernsP.(2000)inRace&MentalHealth,inBaileyD.(ed), At the Core of Mental Health,Brighton,Pavilion
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Keating,Robertson&Kotecha(2003), Ethnic Diversity and Mental Health in London -
Recent developments,KingsFund
Macpherson,W.(999)The Stephen Lawrence Inquiry:ReportofanInquirybySir
WilliamMacphersonofClunyadvisedbyTomCook,TheRightReverendDrJohnSentamu, Dr Richard Stone. London, The Stationery Ofce
NazrooJ.&KingM.(2002)Psychosissymptomsandestimatedrates.InKSproston
andJ.Nazroo(Ed.) Ethnic Minority Psychiatric Illness Rates in the Community (Empiric).
NationalCentreforSocialResearch,TSO
SainsburyCentreforMentalHealth(2002) Breaking the circles of fear. a review of the
relationship between mental health services and African and Caribbean communities.
London:SainsburyCentreforMentalHealth
Wilson M. and Francis J. (1997), Raised Voices: African Caribbean and African Users Viewsand Experiences of Mental Health Services in England and Wales,MIND
N.B. TofollowfromthismoduleNIMHE/CSIPandCCAWIwillbepublishingsubstantial
learning materials on Race Equality and Cultural Capability in 2007.
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