Embed Size (px)
Citation preview
Ethics in Research: A Science
Lifecycle Approach
800-266-1832 | www.ktddr.org
Copyright ©2014 by SEDL. All rights reserved.
Funded by NIDRR, US Department of Education, PR# H133A120012. No part of this presentation may be reproduced or transmitted in any form or by any means, electronic or mechanical, including photocopy, recording, or any information storage and retrieval system, without permission in writing from SEDL (4700
Mueller Blvd., Austin, TX 78723), or by submitting an online copyright request form at www.sedl.org/about/copyright_request.html. Users may need to secure additional permissions from copyright holders whose work SEDL included after obtaining permission as noted to reproduce or adapt for this presentation.
Jaime Flamenbaum Canadian Institutes of Health Research
Innovative KT Strategies from the Canadian Institutes of Health Research
Ethics in Research: A Science Lifecycle Approach
1
Canadian Ins9tutes of Health Research
• Created in 2000, CIHR is the Government of Canada's health research investment agency.
• Its mission is to create new scien>fic knowledge and to enable its transla>on into improved health, more effec>ve health services and products, and a strengthened Canadian health care system.
• Composed of 13 Ins>tutes, CIHR provides leadership and support to health researchers and trainees across Canada.
2
Knowledge Transla9on at CIHR (1)
Knowledge transla>on is a dynamic and itera>ve process that includes synthesis, dissemina>on, exchange and ethically sound applica>on of knowledge to improve the health of Canadians, provide more effec>ve health services and products and strengthen the health care system.
3
Knowledge Transla9on at CIHR (2)
This process takes place within a complex system of interac>ons between researchers and knowledge users that may vary in intensity, complexity and level of engagement depending on the nature of the research and the findings as well as the needs of the par>cular knowledge user.
4
5
In February 2013, the Journal of the American Medical Associa>on published an ar>cle (February 11, 2013. doi:10.1001/jamainternmed.2013.465) where the author describes his findings while searching for the best “deal” for a rela>ve’s hip replacement. The survey, mo>vated by real reasons, extended beyond the necessary range of ins>tu>ons and ended up demonstra>ng the enormous variability in prices and services for the procedure in USA. The researcher used phone interviews to gather his data, and apparently, never disclosed to the interviewees (at service of the ins>tu>ons) his inten>ons.
Iden>fy problem (whether from research or KT perspec>ve)
Knowledge Crea9on
Knowledge Transla9on
Influence of disciplinary and epistemological lens; influence of socio-‐poli>cal context; priority-‐se^ng; agenda-‐se^ng; stakeholder engagement; power; voice; agency; assessment of evidence; social responsibility to research...
6
6. Recruit par-cipants (if necessary)
3. Design project
11b. Further research
10. Publish results 9. Draw conclusions
2. Form research ques>on
7. Collect data
8. Analyse data
5. REB submission
4. Seek funding
11. Toward KT of results
Knowledge Crea9on
2) Stakeholders; influencing contexts; framing; theory
3) Resources/capacity; theory; methodology (scien>fic validity)
4) Choice of funder; obliga>ons; public/private
8) Methodological choices (ex: analy>cal framework); role of collaborators in data interpreta>on
9) Implica>ons for individuals, groups and popula>ons (including equity issues); COI
10) Authorship; choice of venue; publica>on bias; nega>ve results (blind spot)
11.b) Jus>fica>on; influences; framing
11) Selec>on of evidence
1. Establish partnerships 1) Choice of collaborators; equity; agency; influence
5, 6, 7) Protec>on of subjects; privacy; informed consent; data stewardship COI; etc.
7
6. Evaluate applica>on of Knowledge (interven>on)
2. Adapt knowledge to context
8b.Toward con>nued KT
1. Review and select knowledge
5. Monitor knowledge use
7. Sustain knowledge use
4. Apply knowledge (interven>on)
3. Access, barriers to use
8. Toward next genera>on research (based on KT experience) Knowledge Transla9on
(based on Graham et al., 2006)
1) KT theory; publica>on bias; data access; intellectual property; neg. results (blind spot)
2) local knowledge; voice; power; agency
3) Equity; access issues
4) Resource alloca>on; equity; opportunity costs; intellectual property
6) Criteria-‐se^ng; poten>al COI
5) Poten>al COI; roles, responsibili>es
7) ‘Ethics of sustainability’ concerns: capacity-‐building; robustness; opportunity costs…
8) Jus>fica>on; resource alloca>on
8
Contact Informa>on
Jaime Flamenbaum
Senior Ethics Policy Advisor jaime.flamenbaum@cihr-‐irsc.gc.ca
9
SEDL’s Center on Knowledge Translation for Disability and Rehabilitation Research (KTDRR)
Web: http://www.ktdrr.org Email: [email protected]
Please complete the brief evaluation form: http://www.surveygizmo.com/s3/1686113/CIHR-Ethics
Thank you!
10
This webcast is part of a series produced in cooperation with our colleagues at the Canadian Institutes of Health Research - CIHR
Disclaimer
This presentation was developed for grant number H133A120012 from the National Institute on Disability and Rehabilitation Research (NIDRR), Office of Special Education and Rehabilitative Services (OSERS), U.S. Department of Education. However, the contents do not necessarily represent the policy of the Department of Education, and you should not assume endorsement by the federal government.
11
