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UW Green Bay | Center for Public Affairs 2420 NICOLET DRIVE, GREEN BAY, WI 54311 Evaluation of the AT Home with Dementia Program September 15, 2016 Dr. Lora Warner

Evaluation of the AT Home with Dementia Program

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Page 1: Evaluation of the AT Home with Dementia Program

UWGreenBay|CenterforPublicAffairs2420NICOLETDRIVE,GREENBAY,WI54311

EvaluationoftheATHomewithDementiaProgram

September15,2016Dr.LoraWarner

Page 2: Evaluation of the AT Home with Dementia Program

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PROGRAMDESCRIPTION

TheATHomewithDementiaprogramfocusesonincreasingthequalityoflifeforclientswithdementia.Throughanin-homeconsultationwithspecialists,theprogramaddressesthehomesafetyneedsoftheclientandprovidesassistivetechnologysupportitemsandrecommendationsfordailyliving.Assistivetechnologyitemscansupportand enable clients with dementia to live more independently, while also providing caregivers with necessaryreassurance. Such itemscanaddressconcernsrelatedtohomesafety,medicationmanagement,memoryaids,communicationdevices,anditemstosupportleisureactivitiesandcomfort.

Thegoalsoftheprogramfocusonthephysicalandemotionalhealthofbothclientandcaregiver.Theprogramaimstoincreasethewell-beingandsafetyoftheclientthroughemphasizingtheclient’sindependenceinordertolengthenthetimetheycanremainathome.Theprogramworkstoincreaseapositiveexperienceforcaregiversbyprovidingthetoolsnecessarytoreducestress,maintainsafety,andofferpeaceofmind.

At Home with Dementia is a collaborative project involving partners from NEW Curative Rehabilitation, Inc,OptionsforIndependentLiving,andtheAging&DisabilityResourceCenterofBrownCounty(ADRC).Eachagencybrings experience and expertise to form this dynamic program. The team meets regularly and sharesresponsibilitiesofthemanagementandimplementationoftheprogram.Alongwithagencyfunds,AtHomewithDementiaissupportedbyfundingthroughtheGreaterGreenBayCommunityFoundation.

PURPOSEANDMETHODS

In thissection,weoutlinethecharacteristicsof thesampleandthemeasuresemployed intheevaluation.Thisprogramintendedtoachievethefollowingoutcomesforcaregiversandtheclientintheircare:

• Clientmaintainsfunctionalabilities.• Clientincreasesindependence.• Safetyinthehomeisimproved.• Client/Caregiverutilizeadaptivetechnology(AT)equipmentasrecommended.• Caregiverisself-assuredincaregivingrole.• Caregiverincreasespeaceofmindinthecaregivingrole(reducesstress).• Caregiverreducesburdenofcaregiving.• Caregiverhasopportunitiestopursuedesiredactivities.

ThepurposeofthisevaluationistoassesstheeffectivenessoftheATHomewithDementiaprogramrelativetotheseoutcomes.Weemployedabasicpretest-posttestdesign,whereweobtainedbaselineinformationfromcaregiversbeforetheyparticipatedintheprogramandagainafteronetotwomonths.

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SAMPLEOnehundredcaregiversofclientsreferredtotheATHomeWithDementiaprogamweresurveyedatbaseline.Then,onetotwomonthsafterthehomevisit,75caregiverscompletedthefollowupsurvey.Seventy-twopercentofparticipatingcaregiverswerefemale,and53%wereinthe51to64agecategory.Another29%wereinthe65to74yearagegroup.ClientsintheAtHomewithDementiaprogramcanbediagnosedwithdementiaalongwithotherdualdiagnosesincludingdepression,anxietyandmore.Clientswereclassifiedintoseparateseverityratingscores,followingthe3stagemodelofAlzheimer’sDisease: Stage1: (Mild)characterizedbymemory loss, impaired logic, inappropriateuseofwordsordress,broadmoodswings, repetition of questions, getting lost in familiar places, decreased motivation and attention. This istypicallywhentheclientandfamilyfirststarttoidentifyaproblembeyondjustforgetfulnessStage2:(Moderate)existingsymptomscontinuetobecomemoresevereandprofessionalandsocialfunctioningare further deteriorating. More pronounced memory loss is experienced, including forgetting names orrecognizinglovedones.Safetybecomesanimportantissueduringthisstage.Stage 3: (Severe) almost complete memory loss is experienced and assistance is often required for all basicactivitiesfordailyliving.Abilitytocommunicateislostalmostentirely,thebrainbeginstoloseabilitiestocarryoutthenormalbiologicalfunctionsnecessarytosustainlife.Program staff scored the severityof illness for eachof the clients they assessed.Unfortunately, ourdata areincomplete for 53% of clients at intake, where no severity score was assigned, and another 28% were notassessedforseveritywhensurveyedafterthehomevisit.

MEASURESThe baseline and follow up surveys were conducted by agency staff and caseworkers through a structuredtelephone interview with a caregiver. The baseline contained two survey scales measuring 1) the caregiver’ssenseofthepersonwithdementia’sleveloffunctioningrelativetotheactivitiesofdailylivingand2)thelevelofconcern the caregiver currently experienced regarding the person with dementia. Demographic data, referralsource,andlivingsituationweregatheredatintake,andcaseworkerscodedtheseverityoftheclient.The delayed treatment group completed the two survey scales again after approximately 30 days (no otherquestionswereadministered),andthenreceivedtheAThomevisit.AfterreceivingAThomevisits,allcaregiversrepeated the two survey scales alongwith several additional questions (approximately 30 days following theirvisit).Weemployedtheretrospectivepre-postsurveyquestionformat,wherethecaregiverwasaskedtoreflecton1)theclient’sindependenceand2)thecaregiver’sself-assurancelevelbeforeandnow(afterthehomevisit).This type of questioning accounts for frame of reference changes in the person providing care. A series ofquestionsrelatedtosatisfactionwiththehomevisitwerealsoasked.

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REFERRALSOURCESAt Home with Dementia relies on its ownoutreachalongwithagency referrals todriveprogramparticipation. Consideringthethreemain agency partners as possible referralsources: Curative is the largest source ofreferral for the program (32%), followed bytheADRC(29%)andOptionsforIndependentLiving(12%).Additional outside sources, perhaps familymembers, friends, or other communityorganizationsaccount for26%of the referralsources. This is a growth in the amount ofoutside referrals compared to the datacollectedfromtheformativestudy(9%).

RESULTSWepresentsurveyresultstodeterminewhethercaregiversreportedchangesbetweenthebaselineassessmentandthehomevisit.

CHANGEINLIVINGSITUATION

Caregivers were asked whether there was achangeintheindividual’slivingsituationsincethebaselinesurveytookplace.A majority of clients had remained in theirhomes (74%), while a quarter of caregiverrespondents reported a change in clientlocation of residence (26%). Of those, thirty-two percent of respondents reported theclient hadmoved to amore supportive livingsituation (assisted living or specialized care),26%ofclientshadmovedintoanursinghomeorhospice,16%weredeceased,and26%didnotspecify.

26%

74%

ChangeinClient'sLivingSituation(n=72)

Yes

No

Source:CaregiverSurvey,2015-2016

32%29%

12%

26%

0%

10%

20%

30%

40%

50%

60%

70%

80%

90%

100%

Curative ADRC Options Other

ReferralSources(n=95)

Source:AtHomewithDementia, programrecords

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SATISFACTIONWITHAT-HOMEPROGRAMCaregivers who completed the posttest wereaskedabouttheirgeneralsatisfactionwiththeATHomewithDementiaprogram.Overwhelmingly, caregivers responded theywere satisfied with the program and theybelieved the home visit and AT items hadimprovedtheirenvironmentintermsofsafetyandsupportforthepersonincare.Eighty-onepercentofcaregiversagreedhomesafetyhadimprovedafterthevisit,despitethelikelyhesitationtheymighthavefelt toadmitsafety had not been adequate prior to thehome visit. Appendix 2 shows the detailedresonsepatternsforthesequestions.

USEOFASSISTIVETECHNOLOGYResponding caregivers reported satisfactionwiththeassistivetechnologiesitemsprovidedbythespecialistsatthehomevisit.Eighty-twopercent of respondents reported using theassistiveitems.Ninety-twopercentsaidtheyunderstoodhowtouse the recommendedsupport items,77%of caregivers felt theAT items had helped toimprove theclients’homesituation,and88%indicated the technologies enabled theindividualtofunctionbetterathome.Onlyasmallfractionofrespondentsdisagreedwhen asked about the helpfulness of theitems.Thosewhoofferednoopinionarelikelyfamilies who either did not utilize any ATsupportitems,orhadnoitemsrecommendedfortheiruse.

0%10%20%30%40%50%60%70%80%90%100%

Specialistlistenedtomyconcerns

Developedsaferenvironment

Homesafetyimproved

Overall,programisexcellent

PercentageofRespondentsIndicatingSatisfactionwithHomeAssessment(n=64)

Source:CaregiverSurvey,2015-2016

0%

10%

20%

30%

40%

50%

60%

70%

80%

90%

100%

Currentlyusingrecommendeditems

Understandhowtouseitems

Itemshavehelpedhomeenvironment

Itemsincreasefunctioning

SatisfactionwithATSupportItems(n=64)

Source:CaregiverSurvey,2015-2016

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CAREGIVERCONCERNSABOUTASPECTSOFCAREGIVING Atbaselineandagain30ormoredaysafterhavingreceivedtheassistivetechnologyandinstructions,caregiversrespondedtotenstatementsaboutthethingsthatmayconcernthem(Appendix3providesthemeanresponses).Theyindicatedwhethertheywere“notconcerned,slightly,moderately,orveryconcerned”abouttheaspectofcaregivingitdescribed.Afterreceivingtheassistivetechnology,caregiversshowedmuchlessconcernaboutthefollowing:

o Theindividual’swell-beingwhencaregiverwasnothomeo Thegeneralwell-beingoftheindividualo Knowingwhattodotomeettheindividual’sneedso Hisorherownfeelingsofdailystress

1 2 3 4

Generalwell-beingoftheindividual

Theindividualwillwander

Individual'slackofindependence

Theneedtocloselymonitorthem

Theindividualmaybeunsafe

Yourknowingwhattodo

Yourownfeelingsofdailystress

Yourowndailyneeds

Individual’swell-beingwhenalone

Individual’slackofindependence

Notconcerned..............................................................Very concerned

CaregiverLevelofConcernAboutAspectsofCaregiving(n=64)

Baseline Posttest

Source:CaregiverSurvey,2015-2016

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INDIVIDUALS’INDEPENDENCEANDACTIVITIESOFDAILYLIVINGAtbaselineandonetotwomonthsafterthehomevisit,caregiversassessedthestatusoftheindividualintheircarewithregardtoactivitiesofdailylivingthataresometimesimpactedbydementia,suchasgettingsomethingtoeat,knowingthedayandtime,knowingwhereyouare,usingthebathroom,andothereverydaytasks.Afterthehomevisitwherethecaseworkerdistributedassistivetechnology,severaldailylivingactivitiesshowedimprovement:

o Lessoftenneededreminderstoperformfamiliartaskso Lessoftenneededreminderstotrackthedayandtimeo Lessoftenneededagreatdealofcaregiverattentiontostaysafeo Lesslikelytogetlostinfamiliarsurroundings

Thefollowingitemsshowedminorimprovementbetweenbaselineandposttest:

o Functionsindependentlyinthebathroomo Cangetsomethingtoeatwithoutassistance

1 2 3 4

Groomshim/herself

Takesmedicationswithoutpromp

Leavesthehouse

Needsclosemonitoring

Eatswithoutassistance

Independent inbathroom

Getslostinfamiliarsurroundings

Needsmyattentiontostaysafe

Needsremindersofday/time

Needsremindersforfamiliartasks

Always.........................................................................................Never

LevelofIndependenceofIndividualinCare(n=64)

Baseline Posttest

Source:CaregiverSurvey,2015-2016

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CAREGIVERSELF-ASSURANCEANDPERCEPTIONSOFINDIVIDUAL’SINDEPENDENCEOn the posttest, caregivers were asked tothinkbacktobeforetheyreceivedthehomevisit or assistive technology support itemsand rate the individual in care’sindependence and their own self-assurancefrom the vantage point of all they havelearnedsincethattime.Before the AT Home program, 30% ofcaregivers reported the individual in theircarewasmostlyor completely independent.After the home visit and receipt oftechnologies, 37% rated the individualindependent. Twenty-eight percent ofcaregivers rated themselves mostly orcompletely self-assured before the homevisit. A remarkable 91% reported beingmostly or very self-assured followingparticipationwiththeprogram.

CONCLUSIONSABOUTTHEEFFECTIVENESSOFTHEPROGRAMSurvey results indicate the AT Home with Dementia program achieved most of the outcomes which wereintended for persons with dementia and their caregivers (outlined on page 2). Ninety percent of caregiversreported theprogramcontributed to a safer environment andevenmore, 94%agreedoverall, theprogram isexcellent.Herewesummarizethefindingsrelativetotheintendedoutcomes.

ê CLIENT MAINTAINS FUNCTIONAL ABILITIES AND INCREASES INDEPENDENCE. Based onsurvey results, caregivers reported improvement among individuals in their level of independence infunctioningathomedaily.Thisincludedlessneedforremindersforfamiliartasksorday/time,lessneedfor constant caregiver attention to keep them safe, and less likelihood of getting lost in familiarsurroundings. The percentage of caregivers who assessed the individual as mostly or completelyindependentincreasedfrom30%beforetheATHomeprogramto37%afterithadbeendelivered.

30% 28%37%

91%

0%

20%

40%

60%

80%

100%

Levelofindependenceofindividual incare Caregiverself-assurance

%M

ostly

orCom

pletely

ChangesinLevelofIndependenceandCaregiverSelf-Assurance

(n=64)

Baseline AfterATHomeVisit

Source:CaregiverSurvey,2015-2016

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ê SAFETY INTHEHOME IS IMPROVED.Wehavelittledirectinformationaboutthisoutcome,asourhome assessment data collection procedures proved too unwieldy a practical level. However, afterreceivingtheassistivetechnologyandhomevisit,81%ofcaregiversagreedwiththestatement“safetyofthe individual inmy care improved since the home assessment. Caregivers showed slight reduction intheir level of concern for clients doing things thatmay be unsafe orwandering, and reduced concernabouttheneedtomonitorthepersonintheircareatalltimes.

ê CLIENT AND CAREGIVER UTILIZE ADAPTIVE TECHNOLOGY (AT) EQUIPMENT AS

RECOMMENDED.Surveyresults indicatetheachievementofthisoutcome.Onthefollowupsurvey,eightintenormoreofthecaregiversagreedorstronglyagreedtheywereusingtheATitemscurrentlyandknewhowtousethem.

ê CAREGIVER IS SELF-ASSURED IN CAREGIVING ROLE. The major increase in caregiver self-assurance is one of the most compelling findings of the evaluation of the AT Home with Dementiaprogram.CaregiversdramaticallyincreasedtheirfeelingsofselfassuranceafterreceivingthehomevisitandATitems.Afull91%ofcaregiversreportedbeingmostlyorcompletelyself-assuredinprovidingcareto the individualafter theAThomevisit, compared toonly28%before receiving thecare.Onanotherquestion,caregiversshowedgainsafter thehomevisit in“knowingwhattodotomeetthe individual’sneeds.”

ê CAREGIVER INCREASES PEACE OF MIND IN THE CAREGIVING ROLE (REDUCES STRESS),

AND REDUCES BURDEN OF CAREGIVING. Some evidence shows this outcome was achieved.Several survey questions asked about the stress associated with caregiving and the impact of the ATHomewithDementiaprogram.Atbaseline,44%ofcaregiversreportedslightornoconcernwith“yourownfeelingsofdailystress,”risingto54%ontheposttest.

ê CAREGIVERHASOPPORTUNITIES TO PURSUE DESIRED ACTIVITIES.Results for thisoutcome

are unclear; only one survey item asked caregivers about their concerns of not having enoughopportunities to “do the things you need to do in your daily life.” At baseline, caregivers expressedgenerallylowlevelofconcernaboutthisaspectofcaregiving,andontheposttest,thelevelremainedatthesamelowlevel.

Basedonthisevaluation,theATHomewithDementiaprogramappearstohavedirectlyhelpedindividualswithdementia in aspects of their daily lives—aspectswhere technology can directly assist, such as reminder tools,safety devices, and aids for daily living. The program clearly provides support and reassurance for caregivers,bringingmoreconfidenceandlessconcernintotheireverydaylives.

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APPENDIX1CAREGIVERSURVEY–POSTTESTVERSION 1.Pleaseindicateiftherehavebeenanychangesinyourlovedone’slivingsituationsincethehomeassessment:Yes/No

Ifso-whatwasthechange?o MovedtoaNursingHomeo Movedinwithanotherfamilymember/caregivero Deceasedo Other,pleasespecify:____________________o Nochange

Pleasesharemoreinformationaboutyourhomeassessmentvisitexperience.

Comments(optional):PleaseshareinformationaboutyourAssistiveTechnology(AT)supportitems:

Comments(optional):

StronglyAgree

Agree Disagree StronglyDisagree

NoOpinion

Thepersoncompletingthehomeassessmentlistenedtomyconcernsandneeds

Thehomeassessmenthelpedustodevelopasaferenvironmentforourhome

Safetyofmylovedonehasimprovedinthehomesincethehomeassessment

Overall,Ifoundthisservicetobeexcellent

StronglyAgree

Agree Disagree StronglyDisagree

NoOpinion

Wearecurrentlyusingmostoftheassistivetechnology(orAT)supportitemsinourhomeinthewaysthatwererecommended.

WeunderstandhowtousealloftheATsupportitemsthatwereceived.

TheATsupportitemshaveimprovedourhomesituation.

TheATsupportitemsenablemylovedonetofunctionbetterathome.

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Pleaseshareinformationaboutyourlovedoneandhowthisprogrammayhaveaffectedtheirlife.ThinkbacktobeforeyoureceivedthehomeassessmentorATsupportitems.Beforereceivingthesupportitems,howwouldyouhaveratedyourlovedonessafetyathome?

o NotatallConcernedo SlightlyConcernedo ModeratelyConcernedo VeryConcernedo ExtremelyConcerned

Andwhataboutnow-currentlywhatisyourlevelofconcernforyourlovedonessafetyathome?

o NotatallConcernedo SlightlyConcernedo ModeratelyConcernedo VeryConcernedo ExtremelyConcerned

Nextconsideryourlovedone’sleveloffunctioninginregardtotheirabilitytodothingsindependentlyforthemselves.ThinkbacktobeforeyoureceivedthehomeassessmentorATsupportitems-howwouldyouhaveratedyourlovedonesleveloffunctioningathome.

o 4-VeryWellFunctioningIndependentlyo 3o 2o 1-NotFunctioningWellIndependentlyo NoOpinion

Andwhataboutnow-currentlywherewouldyourateyourlovedonesleveloffunctioningindependentlyathomesincethehomeassessment?

o 4-VeryWellFunctioningIndependentlyo 3o 2o 1-NotFunctioningWellIndependentlyo NoOpinion

Pleaseindicateinwhatways,ifany,didthehomeassessmentandATsupportitemsaffecttheoverallqualityoflifeforyourlovedone:

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Pleaseshareinformationaboutyourroleasacaregiver.ThinkbacktobeforeyoureceivedthehomeassessmentvisitorATsupportitems-pleaseindicatehowassuredyoufeltinyourcaregivingrole

o Notassuredatallo Slightlyassuredo Quiteassuredo Extremelyassured

Andwhataboutnow-currently,howassureddoyoufeelincaringforyourlovedone.

o Notassuredatallo Slightlyassuredo Quiteassuredo Extremelyassured

Asacaregiver,pleaseindicatehowthefollowingitemsaffectedyourhomelife,ifatall,afterthehomeassessmentandATsupportitemswereplacedinyourhome.

StronglyAgree

Agree Disagree StronglyDisagree

Noopinion

SincereceivingtheATsupportitems,Ihaveagreaterpeaceofmindintakingcareofmylovedone.

ManyofmysafetyconcernsinthehomehavenotchangedsincereceivingtheATitems(reversecoded)

IcanrestassuredwhenIamawayfromthehomewhilemylovedoneisthere.

MytimetoengageinleisureactivitieshasincreasedsincereceivingtheATsupportitems.

Ihaveutilizedoneormoreoftheresourcesrecommendedtomeduringmyhomeassessment

IfeelIhavegreatersupportinmyroleasacaregiver

Comments(optional):Nowthattimehaspassedsinceyourhomeassessment,ifitwasavailable,wouldbeinterestedinhavingafollowupvisitinyourhome?

Yes/Maybe/No

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Pleasesharewhat,ifanything,aboutthisprogramhasbeenthemosthelpfulincaringforyourlovedone:

Pleasefeelfreetoleaveanyadditionalcommentsorsuggestionsabouttheservicesofthisprogram(optional):

Thankyousomuchforyourfeedback,youandyoursatisfactionwithourprogramisveryimportanttous.

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APPENDIX2DETAILEDRESPONSEPATTERNSTOSCALEITEMS

SatisfactionWithHomeAssessment&ATItems(n=64)

StronglyAgree

Agree Disagree

StronglyDisagree

NoOpinion

a. Thepersoncompletingthehomeassessmentlistenedtomyconcernsandneeds 81% 16% 0% 0% 3%

b. Sincetheassessment,wehaveasaferenvironmentforourhome 45% 45% 0% 2% 8%

c. Safetyofmylovedonehasimprovedinthehomesincethehomeassessment 45% 36% 2% 5% 13%

d. Overall,Ifoundthisservicetobeexcellent 72% 22% 2% 2% 3%

e. WearecurrentlyusingmostoftheATsupportitemsinourhomeinthewaysthatwererecommended. 50% 31% 3% 2% 14%

f. WeunderstandhowtousealloftheATsupportitemsthatwereceived. 67% 25% 0% 0% 8%

g. TheATsupportitemshaveNOTimprovedourhomesituation. 9% 5% 19% 58% 9%

h. TheATsupportitemsenablemylovedonetofunctionbetterathome. 44% 44% 2% 2% 9%

ClientIndependentFunctioningFrequenciesPretestn=100,Post30n=64Validpercent(missingexcluded)

Always Mostly Sometime Never Noopinion

a. Isabletogetsomethingtoeatwithoutassistance 18%24% 25%20% 31%27% 26%25% -5%

b. Functionsindependentlyinthebathroom. 41%39% 28%36% 19%14% 12%6% -5%

c. Needstobecloselymonitoredtopreventwandering. 13%11% 4%8% 22%14% 53%52% 8%16%

d. Needsreminderstotracktheday/time. 31%41% 26%27% 34%22% 9%3% -8%

e. Groomshim/herselfontheirown. 34%23% 21%27% 27%27% 17%17% 1%6%

f. Takesmedicationsasprescribedwithlittleprompting. 23%19% 14%17% 23%14% 39%45% 1%5%

g. Needsagreatdealofmyattentioninordertostaysafe. 24%28% 13%20% 34%23% 24%17% 5%11%

h. Needsreminderstoperformfamiliartasks. 17%30% 22%27% 43%28% 14%8% 3%8%

i. Leavesthehousewithoutmyknowledge. 5%5% 3%2% 23%19% 62%61% 7%14%

j. Getslostinfamiliarsurroundings 11%13% 12%11% 20%28% 47%28% 10%20%

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CaregiverLevelofConcernFrequenciesPretestn=100,Post30n=64

Notconcerned

SlightlyConcerned

Moderateconcerned

Veryconcerned

Noopinion

a. Thegeneralwell-beingoftheindividual. 7%5% 18%33% 33%36% 42%22% -5%

b. Thechancetheindividualwillwanderoutsidethehome. 57%52% 14%16% 7%14% 14%3% 8%16%

c. Theinabilityoftheindividualtodothingsforhim/herself. 14%16% 34%33% 25%23% 26%23% 1%5%

d. Theneedtocloselymonitortheindividual. 21%13% 29%31% 21%31% 26%19% 3%6%

e. Theindividualmaytrytodothingsthatarenotsafe. 23%23% 35%36% 21%22% 21%14% -5%

f. Yourknowingwhattodotomeettheindividual’sneeds. 15%28% 39%38% 29%13% 14%14% 2%8%

g. Yourownfeelingsofdailystress. 11%16% 33%38% 30%28% 26%14% -5%

h. Yourhavingenoughopportunitiestodothethingsyouneedtodoinyourdailylife. 28%25% 21%30% 32%23% 13%14% 6%8%

i. Theindividual’swell-beingwhenIamawayfromhome. 22%30% 23%30% 20%9% 27%19% 8%13%

j. Theindividual’slackofindependenceindailylife. 20%16% 31%31% 20%25% 26%20% 2%8%

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APPENDIX3MEANRESPONSESTOSCALEITEMS

ClientIndependentFunctioningMeans“noopinion”responsesnotincluded1=Always,4=Never

MeanatIntake(standarddev.)

n=100

MeanatPost30(standarddev.)

n=61

a. Isabletogetsomethingtoeatwithoutassistance 2.65(1.06) 2.56(1.13)

b. Functionsindependentlyinthebathroom. 2.02(1.04) 1.87(0.90)

c. Needstobecloselymonitoredtopreventwandering. 3.25(1.07) 3.26(1.09)

d. Needsreminderstotracktheday/time. 2.21(1.00) 1.86(0.90)

e. Groomshim/herselfontheirown. 2.27(1.11) 2.40(1.06)

f. Takesmedicationsasprescribedwithlittleprompting. 2.79(1.20) 2.90(1.21)

g. Needsagreatdealofmyattentioninordertostaysafe. 2.61(1.12) 2.33(1.12)

h. Needsreminderstoperformfamiliartasks. 2.56(0.95) 2.15(0.98)

i. Leavesthehousewithoutmyknowledge. 3.53(0.80) 3.58(0.79)

j. Getslostinfamiliarsurroundings 3.14(1.07) 2.90(1.06)

CaregiverLevelofConcernMeans“noopinion”responsesnotincluded1=NotConcerned,4=VeryConcerned

MeanatIntake(standarddev.)

n=100

MeanatPost30(standarddev.)

n=64

a. Thegeneralwell-beingoftheindividual. 3.10(0.94) 2.79(.86)

b. Thechancethattheindividualwillwanderoutsidethehome. 1.76(1.12) 1.63(.90)

c. Theinabilityoftheindividualtodothingsforhim/herself. 2.68(1.03) 2.57(1.04)

d. Theneedtocloselymonitortheindividual. 2.64(1.03) 2.60(0.96)

e. Theindividualmaytrytodothingsthatarenotsafe. 2.40(1.06) 2.28(1.00)

f. Yourknowingwhattodotomeettheindividual’sneeds. 2.43(0.92) 2.14(1.03)

g. Yourownfeelingsofdailystress. 2.71(0.98) 2.43(0.94)

h. Yourhavingenoughopportunitiestodothethingsinyourdailylife. 2.32(1.05) 2.29(1.04)

i. Theindividual’swell-beingwhenIamawayfromhome. 2.57(1.15) 2.20(1.14)

j. Theindividual’slackofindependenceinhis/herdailylife. 2.54(1.10) 2.54(1.02)