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Legislative Brief I t is estimated that more than 20 million Americans suffer from chronic kidney disease (CKD), including 400,000 individuals with end-stage renal disease (ESRD), or kidney failure who must undergo kidney replacement therapy, known as dialysis, to sustain life. Most commonly caused by diabetes or high blood pressure, kidney failure is expected to claim more than 2 million lives by 2030. Without dialysis or a kidney transplant, patients suffering from kidney failure will not survive. Since transplant organs are in short supply, most patients undergo dialysis which mechanically filters body wastes and excess fluids from the bloodstream three to four times per week,but does not provide the physiologic equivalent of the native kidneys. The Chronic Kidney Disease Improvement in Research and Treatment Act (S. 1890, H.R. 2644). supports improvements in the research, treatment and care for all patients with chronic kidney disease, including those on dialysis, through the following provisions. Expand Kidney Disease Research by (1) requiring HHS to issue a report identifying barriers or payment disincentives for kidney transplantation and best practices for improving organ donation rates; (2) requiring the GAO to assess the utilization of palliative care on the quality of life and treatment outcomes of individuals with ESRD; and (3) requiring the Secretary to conduct a study to better understand the progression of kidney disease and treatment of kidney failure in minority populations. Empower Patient Decision making and Choice by (1) allowing individuals who have commercial insurance through an employer to retain that insurance for an additional 12 months, giving them the ability to decide whether to keep their existing insurance for up to 42 months; (2) guaranteeing access to Medigap policies to all ESRD Medicare beneficiaries, regardless of age; and (3) preserving and promoting the use of charitable assistance programs for patients with ESRD. Improve Patient care and Ensure Quality Outcomes by (1) implementing a series of technical changes to better align the payment rates with the cost of providing care through the ESRD Prospective Payment System (PPS); (2) improving patient decision making and transparency by consolidating and modernizing quality programs; (3) increasing access to the Medicare kidney disease education (KDE) benefit; and (4) clarifying that nephrologists and non-physician practitioners providing renal dialysis services in underserved rural and/or urban areas may participate in the National Health Service Corp loan forgiveness program. The Renal Physicians Association (RPA) is the professional organization of nephrologists whose goal is to ensure quality care under the highest standards of medical practice for patients with kidney disease and related disorders. For further information, please contact Robert Blaser, RPA’s Director of Public Policy, at 301-468-3515 or [email protected] RPA urges Congress to enact The Chronic Kidney Disease Improvement in Research and Treatment Act (S. 1890, H.R. 2644), legislation designed to expand kidney-related research and promote the delivery of high quality care for people with kidney disease. Renal Physicians Association | 1700 Rockville Pike, Suite 220, Rockville, MD 20852 | P: 301.468.3515 | F: 301.468.3511 | www.renalmd.org Recommendation: To improve the quality of life for kidney disease patients and the efficiency of Medicare spending, Congress should enact S. 1890/H.R. 2644, The Chronic Kidney Disease Improvement in Research and Treatment Act. Expand Kidney-Related Research and Improve Care for People with Kidney Disease CKD-Bill-2018.indd 1 2/22/2018 7:10:14 PM

Expand Kidney-Related Research and Improve Care for People ......Legislative Brief It is estimated that more than 20 million Americans suffer from chronic kidney disease (CKD), including

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  • Legislative Brief

    It is estimated that more than 20 million Americans suffer from chronic kidney disease (CKD), including 400,000 individuals with end-stage renal disease (ESRD), or kidney failure who must undergo kidney replacement therapy, known as dialysis, to sustain life. Most commonly caused by diabetes or high blood pressure, kidney failure is expected to claim more than 2 million lives by 2030. Without dialysis or a kidney transplant, patients suffering from kidney failure will not survive. Since transplant organs are in short supply, most patients undergo dialysis which mechanically fi lters body wastes and excess fl uids from the bloodstream three to four times per week,but does not provide the physiologic equivalent of the native kidneys.

    The Chronic Kidney Disease Improvement in Research and Treatment Act (S. 1890, H.R. 2644). supports improvements in the research, treatment and care for all patients with chronic kidney disease, including those on dialysis, through the following provisions.

    Expand Kidney Disease Research by (1) requiring HHS to issue a report identifying barriers or payment disincentives for kidney transplantation and best practices for improving organ donation rates; (2) requiring the GAO to assess the utilization of palliative care on the quality of life and treatment outcomes of individuals with ESRD; and (3) requiring the Secretary to conduct a study to better understand the progression of kidney disease and treatment of kidney failure in minority populations.

    Empower Patient Decision making and Choice by (1) allowing individuals who have commercial insurance through an employer to retain that insurance for an additional 12 months, giving them the ability to decide whether to keep their existing insurance for up to 42 months; (2) guaranteeing access to Medigap policies to all ESRD Medicare benefi ciaries, regardless of age; and (3) preserving and promoting the use of charitable assistance programs for patients with ESRD.

    Improve Patient care and Ensure Quality Outcomes by (1) implementing a series of technical changes to better align the payment rates with the cost of providing care through the ESRD Prospective Payment System (PPS); (2) improving patient decision making and transparency by consolidating and modernizing quality programs; (3) increasing access to the Medicare kidney disease education (KDE) benefi t; and (4) clarifying that nephrologists and non-physician practitioners providing renal dialysis services in underserved rural and/or urban areas may participate in the National Health Service Corp loan forgiveness program.

    The Renal Physicians Association (RPA) is the professional organization of nephrologists whose goal is to ensure quality careunder the highest standards of medical practice for patients with kidney disease and related disorders.For further information, please contact Robert Blaser, RPA’s Director of Public Policy, at 301-468-3515 or [email protected]

    RPA urges Congress to enact The Chronic Kidney Disease Improvement in Research and Treatment Act (S. 1890, H.R. 2644), legislation designed to expand kidney-related research

    and promote the delivery of high quality care for people with kidney disease.

    Renal Physicians Association | 1700 Rockville Pike, Suite 220, Rockville, MD 20852 | P: 301.468.3515 | F: 301.468.3511 | www.renalmd.org

    Recommendation:To improve the quality of life for kidney disease patients and the effi ciency of Medicare spending, Congress should enact S. 1890/H.R. 2644, The Chronic Kidney Disease Improvement in Research and Treatment Act.

    RPA urges Congress to enact The Chronic Kidney Disease Improvement in Research and

    Expand Kidney-Related Research and Improve Care for People with Kidney Disease

    To improve the quality of life for kidney disease patients and the effi ciency of Medicare

    CKD-Bill-2018.indd 1 2/22/2018 7:10:14 PM