EXPERIENCES AND THE NEED OF HELP OF JUST DIAGNOSED MEMORY PATIENTS AND THEIR

CAREGIVERS

Kati JuvaKati Juva

MD,PhD, University lecturerMD,PhD, University lecturer

Specialist in NeurologySpecialist in Neurology

Repeat – Regular and structural support of memory patient

• 290 memory patient – caregiver pairs recruited at the time of the diagnosis by 60 geriatricians from all over Finland

• Questionnaires for the patient and the caregiver was sent 1,3,6 and 12 months after the diagnosis

• The aim of the study was to examine– Experiences of the diagnosis– Need and availability of support and rehabilitation– How the disease influences the everyday life of the

family• Novartis Finland Oy has sponsored the collection and

the analysis of data of this study

Conflicts of interest

• Novartis Finland has sponsored the collection and the analysis of the data of this study

• The researchers have not got any personal grants

• No other conflicts of interest

Characteristics of the study subjects

5

6

7

8

First feelings

10

11REPEAT-SEURANTATUTKIMUS

12

13

Everyday life and feelings and need and receiving of

help and support

15

16

17

18

19

20

PEOPLE WITH MEMORY ILLNESS:

21

Acknowledgements

• Alzheimer Society on Finland– Sirpa Granö– Henna Nikumaa

• Novartis Finland Oy

Thank you Thank you for your attention !for your attention !