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Disclaimers Disclaimers Currently a research Currently a research fellow at the Centers fellow at the Centers for Disease Control for Disease Control Will Will attend medical attend medical school Fall 2006 school Fall 2006 I am not a medical or I am not a medical or public health expert public health expert Volunteer music Volunteer music therapist (in my therapist (in my spare time) spare time)

Finding Root Promoting interdisicplinary approaches to health disparities Margret Chang, Research Fellow Centers for Disease Control and Prevention National

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Page 1: Finding Root Promoting interdisicplinary approaches to health disparities Margret Chang, Research Fellow Centers for Disease Control and Prevention National

DisclaimersDisclaimers

Currently a research Currently a research fellow at the Centers for fellow at the Centers for Disease ControlDisease Control

WillWill attend medical attend medical school Fall 2006school Fall 2006

I am not a medical or I am not a medical or public health expertpublic health expert

Volunteer music Volunteer music therapist (in my spare therapist (in my spare time)time)

Page 2: Finding Root Promoting interdisicplinary approaches to health disparities Margret Chang, Research Fellow Centers for Disease Control and Prevention National

Interdisciplinary Approach to Interdisciplinary Approach to HealthHealth

““Health is a state of complete physical, Health is a state of complete physical, mental and social well-being and not mental and social well-being and not merely the absence of disease or merely the absence of disease or infirmity.”infirmity.”

- World Health Organization- World Health Organization

Page 3: Finding Root Promoting interdisicplinary approaches to health disparities Margret Chang, Research Fellow Centers for Disease Control and Prevention National

Law and Medicine: Intersecting Law and Medicine: Intersecting PathsPaths

Medical Ethics

Public HealthSocial JusticePublic Policy

Human Rights

Page 4: Finding Root Promoting interdisicplinary approaches to health disparities Margret Chang, Research Fellow Centers for Disease Control and Prevention National

Health DisparitiesHealth Disparities“Differences in health status that occur by gender, race or ethnicity, education or income, disability, geographic location, or sexual orientation.”

- Healthy People 2010

Source: Black Student Fund

http://translocal-flows.ssrc.org/english/baja09/

Source: California Endowment

Page 5: Finding Root Promoting interdisicplinary approaches to health disparities Margret Chang, Research Fellow Centers for Disease Control and Prevention National

When HIPAA Meets When HIPAA Meets CambodiansCambodians

The Health Insurance Portability and The Health Insurance Portability and Accountability Act (HIPAA) was passed Accountability Act (HIPAA) was passed in 1996 to protect privacy of health in 1996 to protect privacy of health informationinformation

““Though HIPAA’s objective is to protect Though HIPAA’s objective is to protect patient privacy,patient privacy, it also prevents those it also prevents those trying to assist them from receiving trying to assist them from receiving information information on behalf of their limited on behalf of their limited English-speaking client.”English-speaking client.”

- Cambodian Health Worker- Cambodian Health Worker

Page 6: Finding Root Promoting interdisicplinary approaches to health disparities Margret Chang, Research Fellow Centers for Disease Control and Prevention National

NY Times: The Faces of NY Times: The Faces of DiabetesDiabetes

‘Living at an Epicenter of Diabetes, Defiance and Despair’

‘East Meets West: Adding Pounds and Peril’

‘The Stealth Epidemic’

Page 7: Finding Root Promoting interdisicplinary approaches to health disparities Margret Chang, Research Fellow Centers for Disease Control and Prevention National

Voices from the CommunityVoices from the Community

“Back in Africa, we used to walk so much. But here, there are so many cars and too much noise. It is even more dangerous than our home country,

- Ethiopian immigrant

“I don’t have a car, so I need to ask my friend for rides. But I feel too bad for giving him trouble, so I only ask to go to doctor when I get very, very sick.”

- Cambodian refugee“I’m homeless, and I rely on the soup kitchens for meals. My diabetes is always out of control, because all they give me to eat are mashed potatoes with gravy and donated sweet breads from the bakery.”

- Homeless man, metro Atlanta

Page 8: Finding Root Promoting interdisicplinary approaches to health disparities Margret Chang, Research Fellow Centers for Disease Control and Prevention National

Brazil: Land of DisparityBrazil: Land of Disparity

Photo by: J. R. Ripper/SocialPhotos

Source: galerie.kiwi-maracuja.de/ albums/rio/Blick_auf

Page 9: Finding Root Promoting interdisicplinary approaches to health disparities Margret Chang, Research Fellow Centers for Disease Control and Prevention National

Mangueira Favela, Rio de Janeiro

Photo by: Erling Söderström Mangueira’s Samba School in Carnival

Source: liesa.globo.com

“Favelados say proudly, ‘I am root,’ meaning, ‘I belong to my

past.’”

- Alma Guillermoprieto

Page 10: Finding Root Promoting interdisicplinary approaches to health disparities Margret Chang, Research Fellow Centers for Disease Control and Prevention National

Missing the boat…Missing the boat…

““Whereas many providers perceive the Whereas many providers perceive the barriers to their patients’ self-barriers to their patients’ self-management as individual factors such management as individual factors such as . . . as . . . lifestyle behaviorslifestyle behaviors, many , many people with diabetes cite people with diabetes cite environmental barriersenvironmental barriers to their own to their own disease management.”disease management.”

- California Endowment, - California Endowment, The Social and The Social and Environmental Experience of DiabetesEnvironmental Experience of Diabetes

Page 11: Finding Root Promoting interdisicplinary approaches to health disparities Margret Chang, Research Fellow Centers for Disease Control and Prevention National

Focus on Land: The Urban Focus on Land: The Urban Archipelago AnalogyArchipelago Analogy

“Unfortunately, in many cases there is more contact, understanding, complicity between citizens of “islands” of different countries than between islanders and floaters (the excluded) of the same country.”

- Jorge Wilhelm, former City Planner; Sao Paulo, Brazil

Page 12: Finding Root Promoting interdisicplinary approaches to health disparities Margret Chang, Research Fellow Centers for Disease Control and Prevention National

Our Country is also Our Country is also Affected…Affected…

Images from the Alaskan Yukon-Kuskokwim Delta

Page 13: Finding Root Promoting interdisicplinary approaches to health disparities Margret Chang, Research Fellow Centers for Disease Control and Prevention National

Katrina EvacueesKatrina Evacuees

Source: www.katrinahelp.com Source: www.katrinahelp.com

Page 14: Finding Root Promoting interdisicplinary approaches to health disparities Margret Chang, Research Fellow Centers for Disease Control and Prevention National

Southeast AsiansSoutheast Asians

Source: U.C. Irvine Archives

Page 15: Finding Root Promoting interdisicplinary approaches to health disparities Margret Chang, Research Fellow Centers for Disease Control and Prevention National

Indian CountryIndian Country

Source: www.ed.gov

Page 16: Finding Root Promoting interdisicplinary approaches to health disparities Margret Chang, Research Fellow Centers for Disease Control and Prevention National

AppalachiaAppalachia

Source: http://www.bigstonegap.org/pictures/appalachia%20depot.jpg

Page 17: Finding Root Promoting interdisicplinary approaches to health disparities Margret Chang, Research Fellow Centers for Disease Control and Prevention National

Promising Policies for Urban Promising Policies for Urban Design and HealthDesign and Health

United StatesUnited States Superfund ActSuperfund Act

Enacted in 1980 to Enacted in 1980 to address the cleanup address the cleanup of sites containing of sites containing hazardous hazardous substancessubstances

These lands have These lands have potential for being potential for being developed into developed into “smart growth” “smart growth” areasareas

Brazil (Sao Paulo)Brazil (Sao Paulo) Building Rights CodeBuilding Rights Code

After a certain amount After a certain amount of space, additional of space, additional land will require the land will require the purchase of additional purchase of additional building rights. building rights.

Income from this Income from this purchase goes to a purchase goes to a fund to be spent only fund to be spent only on land for public use.on land for public use.

Page 18: Finding Root Promoting interdisicplinary approaches to health disparities Margret Chang, Research Fellow Centers for Disease Control and Prevention National

What Can Doctors and Lawyers What Can Doctors and Lawyers Do to Tackle Health Disparities?Do to Tackle Health Disparities?

Surveillance (how to obtain data Surveillance (how to obtain data without stepping on privacy rights)without stepping on privacy rights)

Health InsuranceHealth Insurance Building RegulationBuilding Regulation Federal welfare and nutrition Federal welfare and nutrition

Taken from: Richards, Edward et al (2004). Legislative Strategies to Reduce Obesity.

Page 19: Finding Root Promoting interdisicplinary approaches to health disparities Margret Chang, Research Fellow Centers for Disease Control and Prevention National

More LessonsMore Lessons

The importance of interdisciplinary The importance of interdisciplinary thinkingthinking

The importance of education (to The importance of education (to communities and other professions)communities and other professions)

The importance of outreach—art, The importance of outreach—art, music, and stories are always keys to music, and stories are always keys to the heart of a person or their the heart of a person or their communitycommunity

Page 20: Finding Root Promoting interdisicplinary approaches to health disparities Margret Chang, Research Fellow Centers for Disease Control and Prevention National

Like what you heard?Like what you heard?

Come to my Concert!

Page 21: Finding Root Promoting interdisicplinary approaches to health disparities Margret Chang, Research Fellow Centers for Disease Control and Prevention National

Projeto QuixoteProjeto Quixote

Source: Projeto Quixote

“Decency and

beauty walk

hand in hand.”

- Paulo Freire, Brazilian educator and advocate

for social justice; inspiration for the vision

of Projeto Quixote

Page 22: Finding Root Promoting interdisicplinary approaches to health disparities Margret Chang, Research Fellow Centers for Disease Control and Prevention National

Thanks, and some concert Thanks, and some concert info…info…

Visit my website: http://www.geocities.com/finding_root

When: Sunday, April 30 at 7:30 p.m.

Where: Our Lady of Assumption Church

Cost: $10 per person--pay at door

For directions and maps, visit:

http://www.olachurch.org/

My email: [email protected]