WINTER 2017

GATEWAY

CONNECTION

CALENDAR OF UPCOMING EVENTS

March 31 GHA College Scholarship Applications due

April 17 World Hemophilia Day 20 SIPPET Study-Maggiano’s Richmond Heights, MO 23 Camp Open House Imperial, MO

May 6 Hemophilia Walk Forest Park

June 7-10 Camp Notaclotamungus Imperial, MO

July 21-23 FEW @ the Double Tree Chesterfield, MO

August 17 Wine Tasting Fundraiser Farotto’s Italian Restaurant and Pizzaria–Rock Hill, MO 24-26 NHF’s 69th Annual Meeting Chicago, IL

September 25 Tee Off for Hemophilia The Legends-Eureka, MO

October 1 Membership Meeting and Cardinals Baseball game

Mark your calendar for GHA’s annual

Hemophilia Walk & 5K Fundraiser!

DATE: Saturday May 6, 2017

TIME: Registration starts at 8:00 a.m.

Walk/5K begins at 9:00 a.m.

LOCATION: Forest Park

Whether you wish to walk, run, or simply register to be a

fundraiser, collecting donations from family, friends and

co-workers, your efforts will help improve the quality of life of

those individuals and families affected by bleeding disorders!

The money raised at the walk will be used to assist our overall mission to find better treatments and cures for bleeding disorders and to prevent the complications of these disorders through education, awareness, advocacy and research. Join us May 6, as we raise funds and awareness for bleeding disorders.

WWW.GATEWAYHEMOPHILA.ORG

Gateway Connection

is published by

Gateway Hemophilia Association

4976 Eichelberger St. St. Louis, MO 63109

314-482-5973 gatewayhemophilia.org

Email us at info@gatewayhemophilia.org

BOARD OF DIRECTORS

President Dave Decker

Vice President Anne Parrott

Treasurer Andrea Metcalf

Secretary Kelly Wiest

Stephanie Bauman

John Carney Liz LaFlamme Brent Miller

Kari Moellenhoff Scott Putnam

Chris Schneider Darlene Shelton

Steven Staats

INDUSTRY ADVISORY CHAIRS

John Carleton Jessica Hurtig

EXECUTIVE DIRECTOR

Bridget Tyrey

COMMUNICATIONS AND PROGRAM MANAGER

Jennifer McNamee

A Letter from the Executive Director

Greetings Friends, We had a very busy, but successful 2016! The year started with a move into an office located just 10 minutes from the HTCs! We kicked off the year with the Win-ter Membership Meeting at Brunswick Lanes in February, headed to Capitol Hill in D.C. for Washington Days, then to Jefferson City in March for Bleeding Disorders Awareness Month. A total of 11 families attended Missouri Advocacy Day to meet with their Representatives about their bleeding disorder and asked for support of HB2029,

In April, GHA held their first teen retreat at Living Well Village with 14 teens. Joe Torrey of Gut Monkey facilitated the weekend retreat, which included camp activi-ties, team-building and leadership development. May found us starting our junior golf program for children ages 5-17 with a bleed-ing disorder and their siblings. Golf equipment is not required nor is previous expe-rience with golf. Check the website for the kick off BBQ this May.

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Thank you for your support in GHA’s 7th annual hemophilia walk and especially those that came out to the event in spite of the rain. Because of your support, the Hemophilia Walk raised $48,000. In June, we had our largest group of Leaders In Training (LITs) age 16-18 participate in a junior counselor role at camp with our largest camp attendance yet. A total of 74 people participated in camp last year including, campers, LITs, counselors, medical staff, and day volunteers. Thank you for all who participated.

One of our most popular programs is Family Education

Weekend (FEW), the only program of its kind in the

Greater St. Louis area. In June, GHA celebrated its 20th

FEW. FEW provides those affected by bleeding disor-

ders an opportunity to catch up on the latest trends in

the bleeding disorders community while meeting oth-

er local families that are experiencing some of the

same health issues. It helps them to become more

knowledgeable about the disease and to develop a

stronger support system that benefits the emotional

health of individuals within a family unit.

WINTER 2017 GATEWAY CONNECTIONS 3

In July GHA partnered with Cardinal Glennon for the My Life, Our Future campaign for progress in hemophilia. 22 Members in our community came together for a free genotyping test, so that our community can gain a deeper un-derstanding of our hemophilia today, while helping to advance the breakthrough treatments of tomorrow.

Also, in July I was honored to have Chaired NHF’s 68th Annual Meeting in Orlando, FL. NHF’s Annual Meeting enables our community to come together and exchange information on a wide variety of topics, from the basics of diagnosis to the most recent and relevant developments in treatment and technology. It is the premier opportunity for net-working and support for individuals and families affected by bleeding disorders. In August GHA held its 4th annual Wine Tasting Fundraiser at Farotto’s Restaurant. In 2016 GHA awarded $9,500 in schol-arships for members in our local community with a bleeding disorder furthering their education. In September GHA held their largest golf tournament, almost selling out with 34 teams. Thank you to all of our sponsors and volunteers for making this a success. We had great weather in October for the Fall Membership Meeting at Kilroy’s where we gathered

for a short meeting and breakfast before heading over to watch the Pirates vs. the Cardinals baseball game. GHA’s annual trivia night was another success with “America” as the theme. Since we have grown the 2017 Trivia will be in a larger venue located at the Pavilion at Lemay in south county. Several members volunteered in December at Operation Food Search. We stuffed 1,576 bags of food for children in need. We closed the year with a Holiday Party celebrating at the Magic House.

GHA is a non-profit organization that relies on fundraising revenues to offer the programs and services they provide. Many assume that all programs and services GHA provides are funded by pharmaceutical companies and specialty pharmacies. While we do have a strong partnership with these companies and they have been generous to the bleeding disorders community, their contributions are not enough to sustain our organization. We believe it’s criti-cal to the long-term sustainability of GHA that we diversify our fundraising sources. Our walk, wine tasting, trivia, and golf fundraising events need new sponsorships to sustain GHA and create greater awareness about bleeding disorders to the general public. This is an opportunity for the bleeding disorders community to come together and become stronger.

In the newsletter, you will see several ways to get involved. You can attend our many educational programs, volun-teer at our events, or give back through donations, many companies have matching contributions. Our women, men and teen groups provide opportunities to make connections with others who are also coping with life with a bleed-ing disorder.

I hope to see you at GHA’s Hemophilia Walk & 5K Fundraiser on May 6 in Forest Park. Stop by our teen booth who will take your team photo for you. Our teens are an exceptional part of GHA and our are future leaders. We expect over 300 attendees who will be out is support of bleeding disorders. In whatever way, you can, I hope to see more of you! GHA is a community of sharing, whether it’s providing help when you or your bleeding disorder’s family need it, or you helping others in need. GHA is here to serve you, this is our organization. We hope you will build a strong bond among those coping with a bleeding disorder.

Bridget Tyrey Executive Director

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Congratulations 2016 Scholarship Recipients!

Ms. Rieley Schneider Freshman at Bradley University in Peoria, IL

Major-Engineering Ms. Jordan Sampson

Freshman at Fontbonne University in Clayton, MO Major Secondary Education

Mr. Austin Hanse

Senior at Bradley University in Peoria, IL Major Mechanical Engineering

Mr. Matthew Buske

Freshman at University of Missouri in Columbia, MO Major Business Non-Profit Management

WINTER 2017 GATEWAY CONNECTIONS 5

MY LIFE, OUR FUTURE OPENS WORLD’S LARGEST GENETIC HEMOPHILIA REPOSITORY TO SCIENTISTS

Recently, Rare Disease Day marked the opening of the My Life, Our Future Research Repository to scientists. Thanks to your participation, our community has created the world’s largest genetic hemophilia repository, a collection of samples and data from more than 5,000 participants, enabling researchers to further understanding about the disorder. Together, we are one step closer to scientific breakthroughs for our community that will impact generations to come. For more information about the program and its founding partners, visit www.MyLifeOurFuture.org.

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Liam Decker Renee Funk Kristina Klein Liz LaFlamme Bridget Tyrey Robert Eschbacher Andrea Metcalf Barb Love Stephanie Bauman L.A. Aguayo Anne Parrott Brandy Stafford Danielle Flores Darlene Shelton Makenzie Sledd Chris Schneider Steve Staats Lacie Smith Kelly Wiest Cecilia George Kari Moellenhoff Rachel Fustini Katie Fischer Sara Fahey Cheryl Scott Judy Bagato Nicholas Fahey

GHA FUNDRAISER! WHERE: Queen of All Saints Gym 6603 Christopher Dr., Oakville, MO 63129 WHEN: April 28th @ 7:30pm COST: $25 per person ($20 of which goes to GHA!)

Here's a great way to support GHA, make fun of one of it's members (Trudy Stringer), and have a lot of fun doing it! Come on out to the 35th Annual Queen of All Saints Variety Guild show, "The Jukebox." The magic juke takes us back through the years of song, dance, movies, and clowning around. Where else can you see Elvis, Marilyn Monroe, and Johnny Depp on stage? Although the Guild will perform five shows, one has been designated for various charities, including GHA! Beer, wine, snacks, and drinks will be pro-vided. You may bring in food, just like a Trivia night, and of course, there will be raffles, giant baskets of attendance prizes, and a sur-prise walk on. Please call Trudy Stringer at 314-293-9920 or email trufanofabd@yahoo.com if you are interested in tickets. You may also call GHA for more information. See you there!

To our 2016 Walk Team Captains!

WINTER 2017 GATEWAY CONNECTIONS 7

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In a recently published paper in the journal Blood, a team of researchers from the University of North Carolina (UNC) and The Children’s Hospital of Philadelphia (CHOP) reported the successful application of gene therapy in dogs with factor VII (FVII) deficiency. This represents a significant advance, demonstrating the safety and efficacy of a novel therapy in large animal studies is a standard

precursor to eventual clinical trials in humans. FVII deficiency is a rare bleeding disorder with an incidence of 1 in 300,000 to 500,000, as both parents need to carry the gene in order to pass it on to their children. The condition, which affects men and women equally, is characterized by inadequate production of the FVII clotting protein. Babies are often diagnosed within the first six months of life after sustaining an intracranial hemorrhage or bleeding in the gastrointestinal tract. People with the more severe form of FVII deficiency often experience joint and muscle bleeds, easy bruising and bleeds after surgery. Bleeding can also occur in the skin, mouth, nose and genitourinary tract, while women often experience severe menorrhagia (prolonged, heavy periods). The primary treatment for FVII deficiency is recombinant factor VIIa. The study, “Sustained Correction of FVII Deficiency in Dogs Using AAV-Mediated Expression of Zymogen FVII,” was published in the February 4, 2016 issue of Blood. The senior investigator was Paris Margaritis, D.Phil., head researcher at CHOP and Penn’s Perelman School of Medicine. Leading the UNC team was Tim Nichols, MD, professor of medicine and pathology at the UNC School of Medicine. For the study, Margaritis cloned the canine factor VII gene and enclosed that genetic material inside adeno-associated viruses (AAVs). These viruses act as delivery vehicles, or vectors, to carry the genetic material into living cells to sustain therapeutic effect without causing disease or triggering significant immune responses. In this case, the AAVs are designed to elicit the production of the FVII. Nichols and his colleagues then treated four FVII deficient dogs with a single injection of the therapy, administering different

Researchers Make Gene Therapy Breakthrough in Dogs with Factor VII Deficiency

amounts of AAVs in each of the animals. They found that the amount of factor VII generated was directly proportional to the amount of AAVs given to the individual dogs. Nichols’s team also monitored the dogs’ progress over a period of three years and found that they all produced FVII levels that were sufficiently therapeutic – this is particularly encouraging for investigators as the amount of FVII necessary to achieve a sustained therapeutic effect in dogs correlates closely to that for humans. “This work is very exciting and promising,” said Nichols. “The FVII-deficient dogs tolerated the initial gene therapy infusions very well and have had no adverse side effects over several years of follow up. In other related studies in dogs with hemophilia B (FIX), similar positive findings have translated to people with hemophilia B.” In addition, blood, kidney and liver function tests all showed that therapy was safe and did not trigger an unwanted immune response. The next step will be to conduct clinical trials in humans. “The table is now set to propose clinical trials that would treat people who suffer from FVII deficiency,” concluded Nichols. Source: UNC Health Care news release dated January 20, 2016

WINTER 2017 GATEWAY CONNECTIONS 9

On Wednesday, March 1, 2017, the Missouri Bleeding Disorders Coalition gathered in Jefferson City for Bleed-ing Disorders Advocacy Day and to promote the Red Tie Challenge. The Coalition is a joint effort between Gate-way Hemophilia Association and Midwest Hemophilia Association to spread awareness and advo-cate for families affected by bleeding disorders in the State of Missouri.

That morning, our group of nearly 50 marched to the Capitol proudly wearing our red ties. We gathered on the 3rd floor Rotunda, where an information booth and free coffee were set up to spread awareness. We were greeted by newly elected Representative Greg Razer of the 25th District. Representative Razer thanked us for being there and discussed some of the challenges facing the State of Missouri. Bridget Tyrey, Executive Director of GHA presented the group with a Proclamation from Governor Eric Greitens declaring March Hemophilia and Bleeding Disorder Awareness Month in Missouri. The group then departed for appointments with 35 repre-sentatives and senators, where they shared their stories and encouraged our government leaders to take the Red Tie Challenge. At the beginning of the House of Representatives ses-sion, several of our members were introduced to the

Missouri Bleeding Disorder Coalition Takes the Red Tie Challenge in Jefferson City...

chamber and recognized by the House. Most notably was when members Jack P. (age 5) and Rose P. (age 6) where introduced and recognized as honorary “Pages for a Day.” A special thank you to everyone who helped make this day a success, including: Shire, who sponsored dinner and presentation the

previous night for our families. Brendan Hayes from NHF, who worked with our

teens and spoke to them about, “Personal Advocacy: Making a Positive Impression.”

Valerie Akerson, St. Louis Fetal Care Institute Social Worker, and Lydia Johnson RN, BSN, both of Cardi-nal Glennon Children’s Hospital, who worked our information table at the Capitol

The Red Tie symbolizes the blood that ties over 3 million Americans to our community. Red also conveys strength, leadership, courage, determination, empathy and love.

“These are the qualities and emotions that define our community,” Val Bias, CEO National Hemophilia Foundation

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...Then on to Washington D.C. for Washington Days Advocacy!

On March 9, 2017 more than 500 members of the bleeding disorder community met with lawmakers in Washington, D.C. to advocate for access to healthcare. This was the largest gathering of our community partici-pating in national advocacy.

In an online article promoting this event and involve-ment from all members of our community, not just those that attended Washington Days, NHF stated that: “As Congress considers legislation to repeal and replace the Affordable Care Act (ACA), NHF has identified key provisions that are critical to the bleeding disorders community. These policies work together to ensure that people with bleeding disorders and many others with high-cost chronic conditions have access to adequate health insurance coverage.

Here is how to call your member of Congress. Call the Capitol Switchboard: 202-224-3121 and give your state or address. Then you will be connected with your representative’s and senators’ offices. Once you reach a staff person or voicemail system, use the follow-ing talking points to tell your story. As a member of the bleeding disorder community, it is critical that any replacement plan; • Maintain the elimination of lifetime and annual lim-

its or caps on essential health benefits and other consumer protections such as pre-existing condition exclusions, network adequacy and limits on out-of-pocket expenses.

• Maintain federally defined minimum essential health benefits for private insurance.

• Maintain the Medicaid expansion to ensure that Medicaid eligibility is preserved for single men and women meeting the poverty standards.”

Source: https://www.hemophilia.org/Newsroom/Advocacy-Legislative-News/This-Could-Be-the-Biggest-Washington-Days-in-Our-History

Remember, advocacy is not a one-time-then-done event! Get to know your representatives,

and more importantly, let them get to know you! We can all make a difference if we are

engaged and persistent!

WINTER 2017 GATEWAY CONNECTIONS 11

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GHA’s ninth annual Camp Notaclotamongus will be held June 7-10, at Living Well Village, Imperial, MO. In order to attend, children must between the ages of 7 and 17 and meet one of the following criteria: • Diagnosed with hemophilia or a bleeding disorder

• Diagnosed as a carrier of hemophilia or another bleeding disorder The purpose of camp is to learn about bleeding disorders, develop skills to care for bleeding disorders and to have fun! Campers will have the opportunity to meet new friends and participate in a variety of traditional camp activities. There will be a joint effort between staff at the John Bouhasin Center for Bleeding Disorders and St Louis Children’s Hospital Hematology/Oncology Clinic to provide qualified medical staff to address any medical issues that arise during camp. Dr. John Puetz serves as GHA's Camp Medical Director. Leaders in Training (LIT) are an important part of life at Camp Notaclotamongus. Future leaders exhibiting strong leadership skills ages 16-18 can apply for the specially designed training program which acts as a stepping stone to a counselor position. LITs learn about positive behavior management, relating with other counselors on a professional level and maintaining a safe and happy environment for campers.

Camper (7-15) applications are due April 30 and LIT applications are due April 1.

We at GHA feel that education is a very important aspect of camp and have included educational components with the goals of building self-confidence, disease treatment and management, positive attitudes, appropriate decision making skills and independence. We are proud to announce the success of many children learning to self-infuse and making lifelong friendships during camp week.

Registration is available online at www.GatewayHemophilia.org.

GHA’S 9th Annual Camp Notaclotamongus!

WINTER 2017 GATEWAY CONNECTIONS 13

Our 2017 Theme is “Fairy Tales!!”

DONATIONS, HONORARIUMS, AND MEMORIALS GHA gratefully acknowledges our donors who so generously contributed to the Chapter in 2016 with general donations,

Honorariums, and Memorials.

$15,000 - $17,999 CSL Behring Novo Nordisk Shire

$10,000 - $14,999 Bayer Healthcare Biogen

$7,000 - $9,999 100 Women Who Care ARJ Infusion Services, Inc. CVS/Caremark Hemophilia Alliance Pfizer

$4,000 - $6,999 Accredo/Hemophilia Health Services Accurate Rx Pharmacy Aptevo Carney’s Kids Foundation Cotrill’s Pharmacy, Inc. Grifols National Cornerstone Healthcare Services Octapharma Superior Biologics

$1,000 - $3,999 Bio Ethics Advantage Colburn-Keenan Foundation Flores, Anthony & Danielle Guignon, Tom Hemophilia Federation of America Hemophilia Preferred Care (HPC) Kleppe, Kory Kohl’s MIDSCI Miller, William & Marian Option Care Scottrade Smith Law Offices, LLC SSM Cardinal Glennon Swink, Fiehler, & Company Washington University

$500 - $999 Advance America Bauman, Stephanie and Jacob

Chase Park Plaza Grandma’s Cookies Klein, Michael, Kristina & Jackson Kurlowski, Paula Metcalf, Andrea Midland Optical Miller, Brent W. Parmentier, Michelle Stringer, Dirk & Trudy Technicote INC Winter Technologies

$100 - $499 2 Boyz Blasting Addies, James & Sandy Affordable Auto Credit Anzilotti, Craig E. Bagato, Judy Barket, Kenneth Beatman, Jason Bischel Jewelry Boyer, Joan Brown, Chad Burke, John Buske, Jill Casey, Kristin Chambless, Susan Coplen, Ken Daube, Todd Decker, Dave & Nicole Derbins, Bill Dillips, Phrew Edler, Tracey Ellebrecht, Kevin Eschbacher, Robert Eskra, Ean Evers, Lynda Fahey, Mary Federal Employees First Alliance Fischer, Katie Gannon Gassiraro, Joe & Diane Geno, Kirk Hertz, C.J. Hurster, James Ines, Dr. Denzel D. II Johannes, Cyril & Charla Johannes, Donald Johannes, Stephen & Charla

Kilcauski, Charles & Kimberly Kiehl, Bob & Genise Klein, Betty Jane Klein, Dwayn LaFlamme, Liz Law, Mimi Littrell, April Lucier Majerus, Elaine Marema, Kristin Mayhan, Tabitha McKain, Rita McKee, Charles MVP Attorneys at Law Nassif, Patricia Oberkrom, Vicki Parrish, Larry Parrott, Anne & Jeff Parrott, Linda Power, Victoria Promotions Pronto PRP Wine International Pustinger, Kim Putnam, Scott Rodgers, Brian Sabic, Sumejja Sampson, Sheri Schneider, Abby & Chris Schreiber, Ryan Shelton, Darlene & Dan Sirko-Carney, John & Suzanne Sledd, Makenzie & Mike Sloan, Ryan Smith, Lacie Smith, Mary Staats, Steven Thrower, David Thrower, Marykay Tinsley, Cindy Tyrey, Bridget A. Wartman, Amy Waxelman, Roger Wilson, James Winter, Patrick

$50 - $99 Aguayo, L.A. Anderson, Bonnie Anderson, Chad Anderson, Connie

Archer, Cindy Baxendale, Patricia Berger, William Brueggeman, Amanda Calm Enterprises Crider, Vicki Copilevitz, Debbie Davis, Janelle Designs By Linda Desloge, Daniel & Christine Desloge, Nancy Deveney, Carol Doell, Dustin Earhardt, Kent Fahey, Nic & Sara Finck, Christine Fustini, Rachel Grus Appliance LLC Gulledge, Joshua Helmcanp, Daniel Hoffman, Dan & Linda Hunn, Donna Ift, Mike Juergens, Robert & Deborah Kaminski, Aaron & Rachel Klein, Jeffrey & Alexandra Kloeppel, Karen Korner, Jason & Mary Kraemer, Marshall & LeRoy Krause, Max Lapidus, Jeff Lane, Lane Lawrence, Dan Lewis, Mike Liebscher, Stacie Love, Barb & Jim Love, Judith Looney, Craig MacDonald, Anna Masters, Bobbie McGovern, Chris Meile, Dennis & Denise Milhauser, Carl Milhauser, Ruth Niemeyer, Mark Olson, Angela Pearman, Matt Price, Mike & Karen Pruitt, Don & Cheryl Rennie, Michelle Sellers, Caleb Shasteen, Chandra

14 GATEWAY CONNECTIONS WINTER 2017

DONATIONS, HONORARIUMS, AND MEMORIALS continued GHA gratefully acknowledges our donors who so generously contributed to the Chapter in 2016 with general donations,

Honorariums, and Memorials.

Shelton, Kristin & Daniel Sims, Janet & Brian Sirko, James & Ruth Stifel Financial Talley, Damon Thrivent Troutt-Ervin, Eileen Wiberg, Gina Wiest, Kelly Wigge, Mary & Joe Wild Heart Boutique Wilson, Shelby Wyatt, Scott Ye, Meihua

$1 - $49 Agne, Chad Agne, Hunter Agne, Keith Agne, Marnie Agne, Matthew Akers, Alyssa Ailor, Carol Androbus, Denise Arnold, Ashley Ax, Bill Bartley, Sara Baughman, Vanessa Bauman, Jane Becker, Gina Becker, Kristin Berner, Paula Bey, Alana Bitzer, Jennifer Bitzer, Josh Boerner, Becky Bouyoukos, Nick Brinker, Lisa Brockmeyer, Carol Brown, Robert Burke, Jack Carpenter, Janet Carpenter, Paige Caton, Sue Cole, Tim Conrad, Ken Conway, George Conway, Levert Cook, Christine Cosmano, Leslie Cox, Katherine Crews, Janet

Daley, Sarah Dalton, Jo Ann Davies, Judith Davis, Corey Dinger Duckworth, Billy Fahey, Clarence Fischer, Adam Fischer, Drew Fischer, Halle Flax, L. Flores, Gabrielle Frese, Jan Frese, Rod Frese, Ryan Funk, Garrett Funk, Josh Funk, Kathy Funk, Katie Funk, Renee Gant, Shelley Gassiraro, Diane George, Cecilia Geronsin, Ruth Golec, Lynn Grus, Barry Harrison, Nikki Helfrich, Tina Hentschel, Richard Hildebrand, Brandy Hoffman, Douglas & Ashley

Holland, Courtney Holland, Tammy Hovis, Lindsay Huff, John & Carol Hunn, John Hurd, Kathryn Innovative Logistics Solutions Jones-Helmkamp, Ashly Karanovich, Wayne & Frances Kellermeyer, Jim Kempf, Kristine Kendall, Lori Kilcoyne, Matthew Klein, Ali Klein, Caroline Kohler, Shannon Kurian, Neesha Larrew, Justin Laughlin, Charlene Laughlin, Patrick Leese, Kathy Lusso, LLC Mahoney, Ann McKibben, Jane Metcalf, Jenna Metcalf, Kathryn Miller, Karen Mitchell, Sharon Moellenhoff, Scott Mokriakow, George Muligan, F.A.

Murphy, Vicky Niemeyer, Bonnie Nierdieck, Melvin Pardeshi, Susan Peterson, Pete Pointer, Ben Quinlan, Mary Riordan, Joseph Rodriguez-Frias, Jenni Rose, Amanda Sabic, Belma Scott, Cheryl Shipley, Amy Shippey, Dean Smith, Deb Smith, Lauren Snow Companies, Inc. Snyder, Laura Stephens, Marilyn Stover, Katlyn Stringer, Drew Talbot, Jeanine Talley, Tracey Uxa, Judy Varel, Sharon Walker, Kimberly Werner, Jim Wofford, Tiffany Yemm, Kate Zeger, Jordana

WINTER 2017 GATEWAY CONNECTIONS 15

HFA's Annual Symposium is a community-centered educational event that draws hundreds of members from the bleeding disorders community together to share information, learn new advancements, and build a network of support! Each year, we offer travel scholarships to first time attendees who need financial assistance. We sincerely look for-ward to seeing you in Providence, Rhode Island this April to help us show the world that “Hope Ignites!”

April 6 – 9, 2017

Rhode Island Convention Center 1 Sabin Street, Providence, Rhode Island

4976 Eichelberger Street St. Louis, Missouri 63109 314.482.5973 www.gatewayhemophilia.org

Presort Standard US Postage

PAID St. Louis, MO

Permit No. 221

Email us at: info@gatewayhemophilia.org