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G S H CONFERENCE 2018 Friday 23 November 2018 09:00 - 17:00 British Library Knowledge Centre, 96 Euston Road, London, NW1 2DB Great Ormond Street Hospital for Children NHS Foundation Trust Aims: To disseminate and educate around the latest innovations, research, quality improvement and changes in practice being developed and delivered at Great Ormond Street Hospital. Audience: Consultants in paediatric specialities (including paediatrics, paediatric subspecialities, paediatric anaesthesia, surgery, psychiatry, and radiology), junior doctors, nurses, allied health professionals, healthcare scientists, play specialists, quality improvement staff, children’s hospitals employees. 08:30 - 09:00 REGISTRATION WITH REFRESHMENTS Foyer 09:00 - 09:20 Peter Steer - Reflections on Great Ormond Street Hospital Theatre 09:20 - 09:30 Welcome from Mr. Matthew Shaw (Medical Director) & Alison Robertson (Chief Nurse) 09:30 - 09:45 Hannah Hardy - Family perspective 09:45 - 10:15 Professor Russell Viner - President, Royal College of Paediatrics and Child Health Dr. Liam Brennan - Immediate Past President, Royal College of Anaesthetists 10:15 - 10:45 Kath Evans - Lead, Patient Experience, NHS England 10:45 - 11:00 REFRESHMENT BREAK Foyer 11:00 - 12:30 11:00 A1. Chair: Dr. Daljit Hothi Keynote Speaker: Dr. Stephen Marks Theme: Transition to adult services Theatre 11:30 Rituximab in, frequently relapsing/steroid dependent nephrotic syndrome: does the dose matter? Kjell Tullus 11:45 Influence of a renal biopsy result on treatment and management of steroid resistant, idiopathic nephrotic syndrome in children. Hazel Webb 12:00 Improving Patient and Family Education: Development of a Mobile Application (App) to provide personalised physiotherapy instruction Junior Research Team 12:15 A Smart (phone) Solution for Journal Club Sally Wilmshurst 11:00 B1. Chair: Dr. Jonathan Smith Keynote Speakers: Dr. Isabeau Walker and Dr. Michelle White Theme: Working across boundaries - International care Brontë Room 11:30 Delivering hospital care and services to children and young people with learning disabilities: the national picture Kate Oulton 11:45 Exploring perceptions of consanguinity in women from an East London community: analysis of discussion groups Michelle Heys 12:00 Acute retinal detachment in retinopathy of prematurity (ROP-RD): UK national outcomes of endoscopic vitrectomy in 51 consecutive cases. Chien Wong 12:15 Partners in Care Sandra Subtil 11:00 C1. Chair: Phillipa Wright Keynote Speakers: Cystic Fibrosis Team Theme: A lifetime at GOSH Dickens Room 11:30 Involving children and young people in identifying ways to improve epilepsy care Amit Bali 11:45 Improving the Developmental Outcomes for Long-Term Inpatients. Eleanor Conway 12:00 The British Childhood Visual Impairment and Blindness study (BCVIS2): 1 year outcomes Lucinda Teoh 12:15 Morphine requirements in paediatric live related renal transplant recipients receiving continuous transversus abdominis plane catheter Helen Hume-Smith AM SESSIONS

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Page 1: Great Ormond Street Hospital for Children NHS Foundation ... · Aims: To disseminate and educate around the latest innovations, research, quality improvement and changes in practice

G SHCONFERENCE 2018

Friday 23 November 201809:00 - 17:00

British Library Knowledge Centre, 96 Euston Road, London, NW1 2DB

Great Ormond StreetHospital for Children

NHS Foundation Trust

Aims: To disseminate and educate around the latest innovations, research, quality improvement and changes in practice being developed and delivered

at Great Ormond Street Hospital.

Audience: Consultants in paediatric specialities (including paediatrics, paediatric subspecialities, paediatric anaesthesia, surgery, psychiatry, and radiology),

junior doctors, nurses, allied health professionals, healthcare scientists, play specialists, quality improvement staff, children’s hospitals employees.

08:30 - 09:00 REGISTRATION WITH REFRESHMENTS Foyer

09:00 - 09:20 Peter Steer - Reflections on Great Ormond Street Hospital

Theatre

09:20 - 09:30 Welcome from Mr. Matthew Shaw (Medical Director) & Alison Robertson (Chief Nurse)

09:30 - 09:45 Hannah Hardy - Family perspective

09:45 - 10:15 Professor Russell Viner - President, Royal College of Paediatrics and Child HealthDr. Liam Brennan - Immediate Past President, Royal College of Anaesthetists

10:15 - 10:45 Kath Evans - Lead, Patient Experience, NHS England

10:45 - 11:00 REFRESHMENT BREAK Foyer

11:0

0 - 1

2:30

11:00A1. Chair: Dr. Daljit HothiKeynote Speaker: Dr. Stephen MarksTheme: Transition to adult services

Theatre11:30 Rituximab in, frequently relapsing/steroid dependent nephrotic syndrome: does the dose matter? Kjell Tullus

11:45 Influence of a renal biopsy result on treatment and management of steroid resistant, idiopathic nephrotic syndrome in children.

Hazel Webb

12:00 Improving Patient and Family Education: Development of a Mobile Application (App) to provide personalised physiotherapy instruction

Junior Research Team

12:15 A Smart (phone) Solution for Journal Club Sally Wilmshurst

11:00B1. Chair: Dr. Jonathan SmithKeynote Speakers: Dr. Isabeau Walker and Dr. Michelle WhiteTheme: Working across boundaries - International care

BrontëRoom

11:30 Delivering hospital care and services to children and young people with learning disabilities: the national picture

Kate Oulton

11:45 Exploring perceptions of consanguinity in women from an East London community: analysis of discussion groups

Michelle Heys

12:00 Acute retinal detachment in retinopathy of prematurity (ROP-RD): UK national outcomes of endoscopic vitrectomy in 51 consecutive cases.

Chien Wong

12:15 Partners in Care Sandra Subtil

11:00C1. Chair: Phillipa WrightKeynote Speakers: Cystic Fibrosis TeamTheme: A lifetime at GOSH

DickensRoom

11:30 Involving children and young people in identifying ways to improve epilepsy care Amit Bali

11:45 Improving the Developmental Outcomes for Long-Term Inpatients. Eleanor Conway

12:00 The British Childhood Visual Impairment and Blindness study (BCVIS2): 1 year outcomes Lucinda Teoh

12:15 Morphine requirements in paediatric live related renal transplant recipients receiving continuous transversus abdominis plane catheter

Helen Hume-Smith

AM SESSIONS

Page 2: Great Ormond Street Hospital for Children NHS Foundation ... · Aims: To disseminate and educate around the latest innovations, research, quality improvement and changes in practice

Great Ormond StreetHospital for Children

NHS Foundation Trust

G SHCONFERENCE 2018

Friday 23 November 201809:00 - 17:00

British Library Knowledge Centre, 96 Euston Road, London, NW1 2DB

12:30 - 14:00 LUNCH Foyer

13:00 - 13:45

Lunchtime sessions• Guided poster sessions• NHS @ 70, GOSH @ 130 • SIM Igloo

Chaucer Room

12:45 - 13:15 Lunchtime Plenary parallel session Great Ormond Street – Research Hospital of the Future Theatre

14:0

0 - 1

5:30

14:00A2. Chair: Mr. Simon BlackburnKeynote Speaker: Mr. Dominic ThompsonTheme: Spina bifida surgery before birth - concept to reality

Theatre14:30 Healthcare Computing Development: GOSH Project Experience working with UCL Computer Science

(CS) Industry Exchange Network (IXN).Neil Sebire

14:45 Caudals and Complications in Hypospadias Repairs: Correlation or Causation? Dominic Nielsen

15:00 Using middle finger length to determine the internal diameter of un-cuffed tracheal tubes in paediatrics. Mark Thomas

15:15 Driving diagnostic change; Microchimerism in thymus transplant patientsEleanor Watt & Susanne Kricke

14:00B2. Chair: Vicky NashKeynote Speakers: Family Liason TeamTheme: Family Centred Communication

BrontëRoom

14:30 Talking to families when death becomes a likely outcome - a pilot simulation programme to improve end of life conversations during and around PICU admission

Tara Kerr-Elliot

14:45 Talking to parents about their preferences for their child’s place of death: a prospective study. Ellen M Henderson

15:00A program of research to increase research access and participation for children and young people with life-limiting conditions and life-threatening illnesses: "Barriers to Research Access: Voices, Experiences, and Solutions- The BRAVES project"

Katherine Vincent

15:15 Preoperative clear fluid fasting for children undergoing general anaesthesia Christa Morrison

14:00C2. Chair: Dr. Stuart AdamsKeynote Speakers: Metabolic Medicine TeamTheme: One team, One patient

DickensRoom

14:30 The effectiveness of dexmedetomidine for paediatric sedation in a Radiology setting Amanda Cerullo

14:45 Genetic investigations in renal tubulopathies. Detlef Bockenhauer

15:00 Evaluation of an innovative clinical syllabus to support university curricula Gabrielle Simpson

15:15 A, B, C what about me- Training staff to cope with non-clinical emergencies on transfer Cathy Roberts

15:30 - 15:50 Rozzy Amos - London and South East Director, Princes Trust Foyer

15:50 - 16:15 Anthony Bennett - Former GOSH patient and multiple cardiac arrest survivorChaucer

Room

16:15 - 16:30 Sanjiv Sharma & Lynn Shields - Prize giving and Close Theatre

PM SESSIONS