Registration Packet

“The conference could not have been a more positive

experience for us. We are so grateful for the

opportunity to attend!”

“This is the most important, life-changing

conference.... [It] has made me a better

clinician.” “A whole new world opened up to me when

I attended my fi rst Oley conference.”

Help along the way

June 24–27, 2018The Peabody Memphis

Memphis, TNwww.oley.org • (518) 262-5079

bWhy Should I Attend?

Proven Benefits to Patients in Contact with Oley• Lowers the incidence of catheter-related sepsis1

• Reduces reactive depression1

• Significantly improves quality of life1

• Gives members the tools and confidence they need to manage their therapy2

• Enables members to achieve normalcy in their lives2

More Reasons ...• Learn to communicate your health care

needs with more self-assurance• Get access to the latest information on nutrition support

• Meet others on home tube feeding and/or IV nutrition• Clinicians—learn and become better resources

Plus! Oley Provides a “Safe Harbor” • Local emergency room information will be identified.

• Nursing/pharmacy backup support has been arranged. • Hotel is aware of your supplies and shipping needs.

• Refrigerators available upon request.

More Information/RegistrationFor the latest updates or to register, go to oley.org/AnnualConference; call the Oley Foundation at (518) 262-5079; or e-mail harrinc@amc.edu. Registration is free for consumers/families; there is a minimal fee for professionals ($100) and members of industry ($200) to help cover the cost of meals, etc. Registrants are responsible for their own hotel and trans-portation arrangements.

Conference Headquarters & HousingThe Peabody MemphisFor reservations: https://reservations.travelclick.com/95096?groupID=2119665#/guestsandroomsOr Call: (800) 732-2639The rate for consumers is $164/night for single/double, is open through June 1, and will be honored three days pre and post conference, based on availability. The hotel service fee of $12.95/day is waived for Oley guests. Note: to secure this rate, use the link above or mention you are with the Oley meeting when calling. Oley discounted self-parking fee is $10/day. Book early; we’ve sold out in past years. Refrigerators are available for consumers; indicate this need in the “additional request” section of the online hotel reservation form or when calling.

Medical Support—Keeping You Safe!The local hospitals will be alerted. Let your homecare company know you are traveling. If your homecare company is unable to assist you in the case of an infusion emergency during the conference (if you forget something, have a bag break, etc.), emergency infusion backup support and telephonic nursing/pharmacy support will be available courtesy of the Memphis branch of Coram CVS/specialty infusion services.

Shipping HomePEN SuppliesSeparate items that need refrigeration and mark these boxes accordingly. All deliveries should be labeled as shown below. Storage is limited, so please arrange to have your supplies arrive no earlier than Thursday, June 21. There are no hotel fees for patient shipments of medical supplies.

Peabody Hotel MemphisAttn: Your Name, Guest Hold for Arrival 6/___/18 149 Union Ave. Memphis, TN 38103 Re: Personal Medical Supplies, Oley Conference Needs Refrigeration (if applicable) Box ___ of ___

Main Sessions, Breakout Sessions & Tube Feeding Workshop—Learning Opportunities Abound!Presentations are coordinated to boost your understanding of the therapies that sustain you or your loved one. Formal morning sessions are followed by informal afternoon breakout sessions and the interactive Tube Feeding Workshop. See the Program-At-A-Glance (next page) for a tentative list of topics to be covered. Stay tuned to www.oley.org/AnnualConference for updates on topics and speakers.

Kidz Club—New This Year!Kidz Club is designed to provide supervised entertainment for kids while parents attend educational sessions. Age-appropriate activities will be of-fered in the Playschool Room (infants to 8 years old), and Tween Room (9 to 14 years old). Morning and afternoon sessions will be provided. Kids must be registered online by June 14 to participate. Tweens are welcome to “hang out,” enjoy video games, and chat with their peers in the Tween Room Monday and Tuesday morning, and Tuesday afternoon. Monday afternoon, there will be a Tween breakout session, where youth will come together with a moderator to discuss is-sues of importance to them, centering on things connected to HPEN. Limited supervision will be provided; parental permission is required. Note that we cannot provide medical care; hook up, disconnect, or troubleshoot infusions or tube feeding; change ostomy bags; administer medications; and so on.

“Whether it was ways to reduce line infections or

learning about portable pumps to improve our quality of life,

Oley provided us hope.”

1 Home Parenteral Nutrition: Does Affiliation with a National Support and Educa-tion Organization Affect Outcomes? Smith, et. al., JPEN 2002;26(3):159-163.

2A Qualitative Study of the Perceived Value of Membership in The Oley Founda-tion by Home Parenteral and Enteral Nutrition Consumers. Chopy, et al. JPEN 2014; online 17 March 2014, DOI: 10.1177/0148607114527134.

Sunday, June 2412:00 pm – 5:00 pm Early Registration1:00 pm – 4:00 pm Ambassador Workshop/Volunteer Info Session6:00 pm – 7:00 pm First-Time Conference Attendee Orientation7:30 pm – 9:30 pm Welcome Reception/Awards Ceremony

Monday, June 258:00 am – 4:30 pm Registration/Information8:45 am – 12:00 pm Main Session* 12:00 pm – 2:30 pm Exhibits with Lunch2:45 pm – 5:00 pm Tube Feeding Workshop*2:45 pm – 3:45 pm & 4:00 pm – 5:00 pm Breakout Sessions (attend two groups)*7:30 pm – 9:00 pm Oley Silent Auction

Tuesday, June 268:00 am – 4:30 pm Registration/Information9:00 am – 11:45 am Main Session*11:45 am – 12:00 pm In Loving Memory12:00 pm – 2:30 pm Exhibits Raffle Day with Lunch2:45 pm – 3:45 pm & 4:00 pm – 5:00 pm Breakout Sessions (attend two groups)*8:00 pm – 10:00 pm Jammin’ Jammies

Wednesday, June 279:00/10:00–11:00 am Oley Walkathon Registration/Walk11:00 am – 2:00 pm Breakfast and Brainstorming*

Program-At-A-Glance (Tentative)

Ambassador Workshop/Volunteer Info SessionPlanned for “official” Oley volunteers, but open to anyone interested in serving Oley through outreach, social networking, etc. Learn how to share your time and talents to advance the Oley mission. For more information contact Lisa at metzgel@amc.edu. Indicate your interest when registering.

Jammin’ JammiesA chaperoned activity is planned for children ages 7+ on Tuesday, June 26 in the evening! A choice of G or PG movie will be shown, and kids can create fun memories with friends in our photo booth! Parents are welcome to join in the festivities.

Walkathon Raises Funds, AwarenessAnnual Walkathon registration sheets are posted at www.oley.org/ 2018walkathon.pdf. T-shirts will be provided to all walkers with a sug-gested minimum donation of $20. Start getting pledges today! Funds raised help support all Oley programs and are tax-deductible.

Breakfast and Brainstorming—Bring Your QuestionsBreakfast and Brainstorming will be filled with expertise, experience, opportunities to ask questions—and breakfast! Interact with premier clini-cians in the field of home nutrition support and experienced consumers… all eager to help you with information, support, and hope. At the conclu-sion we’ll capture photos, share on social media, and bid our farewells.

* Topics Covered in the Sessions...will include, but are not limited to the following. Stay tuned to oley.org/AnnualConference for updates!

• Living well while dependent on nutrition support

• Managing intestinal failure

• Transitioning to independence

• Avoiding complications

• The role of the dietitian

• Insurance reimbursement

• Blenderized tube feeding

• Skin and wound care

• Vascular access

• Advance directives

• Lab reports

• Self-care for consumers and caregivers

... and more!

Market ResearchShare your experience with tube feeding and/or IV nutrition to help improve the next generation of products. Be sure your membership profile and email address on www.oley.org are up-to-date! We issue invitations based on the information you’ve provided. Contact Cathy at (518) 262-5079 or harrinc@amc.edu if you have questions about updating your profile. Opportunities are available to qualified participants on a first-come, first-served basis.

Silent Auction Items Needed Let’s make this event the best ever! Popular items include: small electronics; jewelry; hand knit or quilted pieces; games/toys; and gift certificates. Bring your contributions with you or email marywootten.oley@gmail.com to make arrangements to ship.

Can’t Make the Meeting? Main Sessions will be streamed live

and recorded for future viewing. Watch www.oley.org for details.

Travel Grants for Conference Attendees! Thanks to generous donors there are a limited number of $600 travel scholarships available for consumers or family members who cares for them (one per family). Priority will be given to applicants who will be attending the Oley annual conference for the first time, and Oley Ambassadors. Qualified conference registrants should write two paragraphs describ-ing how they believe attending the conference will affect their life and submit them to harrinc@amc.edu or The Oley Foundation, Albany Medical Center MC-28, 99 Delaware Avenue, Delmar, NY 12054. The ideal candidate will also describe their plans to share information learned at the conference with consumers and/or clinicians back home. If there are still grants available on May 24, we will consider applications from consumers and caregivers who have attended a conference before. You can be placed on this waiting list by submitting your paragraphs as outlined above. Please indicate (in the subject line, if sent by email), that you’d like to be placed on the list. Applicants should not be receiving any other financial assistance for travel and/or lodging expenses related to attending the conference. Travel grants are limited to one per family/household. Travel must be completed and receipts received by Oley before reimbursement can be made. Details at www.oley.org/SupportForConfTravel or contact Cathy at harrinc@amc.edu.

Other Ideas to Help with Travel• Compassion flights from Air Charity Network or similar group (https://oley.site-ym.com/general/recommended_links.asp?cc=42333).

• Financial help from United Way, Altrusa International, Kiwanis, Rotary or Lions clubs, churches or synagogues, disease-specific and wish-granting organizations (www.oley.org/WishGrantOrgs_kids and www.oley.org/Wish-GrantOrgs_Adult).

• Travel tips and planning (www.oley.org/TravelTipsHomePEN).

• Tax deduction for conference-related expenses (consult your tax advisor; and IRS Publication 502 Medical and Dental Expenses at www.irs.gov/pub/irs-pdf/p502.pdf ).

• PLUS! Some of your meals are covered at the conference... making it more affordable for you and your family!

Getting to the HotelMemphis International Airport (MEM)15-minute, 10-mile drive to The Peabody Memphis. These are estimates, be sure to call to confirm pricing and details.

• Bus line $2 (takes >1 hour)• Yellow and Checker taxi (901) 577-7777, $24-27 up to 4 passengers• Shuttles:

Cooper Express (901) 340-4496. $30 one way, $50 round tripTrue Concierge (901) 409-9973. $86.80 sedan, $90 SUV

• Uber/Lyft $9-$13• Peabody private van or towncar service, reserve through the concierge

(901) 529-4000 Peabody SUV: $90 airport transfer, up to 6 passengers Peabody Van: $90 airport transfer, up to 11 passengers

oley.org/AnnualConferenceor (518) 262-5079

Albany Medical Center, MC-2899 Delaware Avenue

Delmar, NY 12054

Help along the way

“I learned things and metpeople that changed my life.”

NON-PROFIT ORG.U.S. POSTAGE

PAIDPERMIT NO. 687

ALBANY, N.Y.