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Helping Tools for Older Pennsylvanians and
Their Caregivers
A Train-the-Trainer Workshop
Educating older Pennsylvanians, their caregivers and others about
Assistive Technology
Pennsylvania’s Initiative on Assistive Technology (PIAT)
The Commonwealth’s
Assistive Technology Act Program
Presenters
Amy S. Goldman
Associate Director
800-204-7428 – voice
215-204-3862 – voice
866-268-0579 – TTY
Ann E. Dolloff
Assistant Director
800-204-7428 – voice
215-204-0452 – voice
866-268-0579 – TTY
What is this?
Meet someone new and start thinking!
What we ask of you today…
• Share YOUR expertise, knowledge and experiences
• Be fully present and participate
• Take care of yourself as needed
• Think creatively
• Have fun!
What we ask of you after today…
• Train at least six older adults, caregivers, or people who support them
• Let us know of your training efforts and any outcomes you have
• Call us with questions, for additional help or more information!
Pennsylvania’s Initiative on Assistive Technology (PIAT)
• 800-204-7428(voice) 866-268-0579(TTY)
• http://disabilities.temple.edu
• Institute on Disabilities, 423 Ritter Hall Annex, 1301 Cecil B. Moore Avenue, Philadelphia, PA 19122
• Statewide Assistive Technology Resource Centers (ATRC)
Pennsylvania’s Initiative on Assistive Technology
Accessing AT
Acquiring AT
Training and Technical Assistance
Public Awareness and Information and Referral
Coordination and Collaboration
Transition
ACCESSING Assistive Technology
How do I know what I need?
• Try before you buy – Pennsylvania’s Assistive Technology LENDING LIBRARY
• Learn about different devices and how they can help you - DEMONSTRATIONS
Device Demonstrations
• Consumer responsive – primary audience• “Guided Discovery” of a device or group of
devices to help make informed decisions about assistive technology
• Learn about how device(s) can help at home, work, or community
• Demonstrations are NOT meant to evaluate a person’s abilities, provide in-depth instruction, or replace the expertise of other specialists
ACQUIRING Assistive Technology How do I get what I
need?
• Individualized Assistance to Obtain Funding for Assistive Technology
• Device Exchange and Recycling
Individualized Assistance to Obtain Funding for Assistive Technology
• 1:1 assistance to help consumers understand their funding options in order to obtain needed assistive technology
• PIAT doesn’t purchase devices for consumers, but collaborates with the Pennsylvania Assistive Technology Foundation (PATF) to help consumers
Device Exchange and Recycling
• Used (sometimes new!) devices for sale (sometimes free!) directly from and to individuals with disabilities and their families
• Classified Listing – Recycled Equipment Exchange Program (REEP)
• Online Auction – www.ATMATCH.com• Refurbishing Program – Into New Hands
http://www.trcil.org/intonewhands.htm
Other PIAT Activities
• Information and Referral: Phone and email requests for help about different devices and services
• Training and Technical Assistance: Helping professionals and agencies increase their knowledge and skills to better provide AT services
• Public Awareness: General information, presentations, brochures, posters, exhibits and other outreach activities
Assistive Technology Act of 1998, as amended
• Authorizing federal statute that funds Pennsylvania’s Initiative on Assistive Technology
• Reauthorized and signed into law October 25, 2004
• “AT Act” or “AT Act of 2004”
What is Assistive Technology?
Devices – “Things”
and
Services and Support
Assistive Technology Device
“any item, piece of equipment, or product system, whether acquired commercially, modified, or customized, that is used to increase, maintain, or improve the functional capacities of individuals with disabilities.”
From the Assistive Technology Act (AT Act) of 1998, Older Americans Act and the American with Disabilities Act
The Scope of Assistive Technology
• Communication• Seating and
Positioning• Power Mobility• Manual Mobility• Mobility Aids• Assistive Listening• Vehicle Modification
• Leisure and Recreation• Worksite Modification• Home Modification• Learning Aids• Environmental Controls• Vision Aids• Self Care/Activities of
Daily Living
Low, Mid and High Assistive Technology Devices
• Low: Inexpensive, easily made, easy to learn, readily available, easy to replace/maintain
• Mid: May cost more, require some training, have special design, need power source or other support
• High: Higher cost, need specific training to learn, often customized
Assistive Technology Services
• Evaluation• Acquisition• Adapting/Modification• Coordination of Therapies• Training: Consumer – Family – Professionals• Maintenance, Repair & Replacement• Providing Accessible Information Technology
Any service that directly assists an older adult or individual with a disability in the selection, acquisition, or use of an assistive technology device.
How do I decide what assistive technology is needed?
Requires consideration of the:
PERSON + ENVIRONMENT + TASKWhat activity does the person want to do?
What skills are needed to do the activity?
What skills does the person have to do activity?
What supports exist to help learn a new way?
Where is this activity done and under what conditions?
How do I decide what assistive technology is needed?
Need to know:
Activities
Assistive Technology Devices and Services
Environments
AND
Older Adults and Their General Characteristics
Who Are Older Pennsylvanians?
Who Are Older Pennsylvanians?
• Baby boomers turn 60 in 2006
• Those 85 years and older are predicted to increase in number by 33%
• Increase in diversity of aging population
Pennsylvania State Plan on Aging 2004-08
Who Are Older Pennsylvanians?
• Estimate 19.8% of population is age 60+
• Number of households with individuals 65+ is 1.3 million
• % of persons 65+ living alone is 30.7%
Family Caregiver Alliance. The State of the States in Family Caregiver Support: A 50-State Study,
Pennsylvania Profile http://www.caregiver.org/caregiver/jsp/content/pdfs/state_profile_pa.pdf
Who Are Older Pennsylvanians?
• Highest increase in the 60-74 age group– South central, Southeast and Northeast PA
• Highest increase in 85+ age group– Counties near Philadelphia and Pittsburgh,
Pike, Monroe, Perry, Montour and Potter counties
Pennsylvania State Plan on Aging 2004-08
Normal Effects of Aging
• Hearing• Vision• Neuro-sensory system• Skeleto-muscular• Intellectual functioning• Social supports
• Influenced by genetics, lifestyle and environment
Hearing
• Natural deterioration
• Tinnitus
• Conversation, socialization, and communication impacted
• Ability may vary place to place
• Hearing aids often problematic
Vision
• Natural deterioration which increases at 65 years
• Driving – peripheral, night, road signs
• Leisure – reading, sewing, woodworking
• Movement and mobility
Neuro-sensory and Skeloto-muscular Systems
Changes in
• Strength
• Balance
• Endurance
• Range of motion
• Sensitivity to temperature changes
• Sensitivity to pain and trauma
Intellectual Functioning
• Processing may take longer
• Long-term memory often better than short-term memory
• Motivation varies to learn and do things differently
Social Supports
• Social isolation and changes in community
• Friends living in alternative settings (with family, long-term care, etc.)
• Changes in personal mobility and transportation
• Rural and urban settings
• Proximity of family
Who Are Caregivers for Older Pennsylvanians?
Who Are Caregivers?• Nationally:
– 34 million adults (16% of population) provide care to adults 50+ years
– 8.9 million caregivers (20% of adult caregivers) care for someone 50+ years who have dementia
– 5.8 7 - 7 8 million people (family, friends and neighbors) provide care to persons 65+ who need assistance with everyday activities
– Unpaid family caregivers will likely continue to be the largest source of long-term care services in the U.S. and are estimated to reach 37 million caregivers by 2050, an increase of 85% from 2000
Family Caregiver Alliance. Retrieved 4/18/06 from: http://www.caregiver.org/caregiver/jsp/content_node.jsp?nodeid=439
Who Are Caregivers?
• Caregivers are present in 21% of US households• There are an estimated 44.4 million caregivers age 18
and older who provide unpaid care to an adult family member or friend over 18 years of age.
• Fifty-eight percent of caregivers are between ages 18 and 49 and 42% are over the age of 50.
• An estimated 59% of caregivers are working full or part-time
• On average caregivers provide 21 hours of care per week
National Alliance for Caregiving and AARP (2005), Caregiving in the U.S., Bethesda, Maryland, http://www.caregiving.org/data/04execsumm.pdf
Who Are Caregivers?• 61% are female• 83% are relatives of the care recipient• 62% of caregivers are married or living with a partner• Between 20 and 40% have children under 18• The average length of caregiving is 4.3 years• While half of caregivers report performing at least
one daily living activity for an older adult, less than one in five received formal training on how to care (unskilled)
National Alliance for Caregiving and AARP (2005), Caregiving in the U.S., Bethesda, Maryland, http://www.caregiving.org/data/04execsumm.pdf
Pennsylvania Caregivers• Estimated 1.2 million caregivers in Pennsylvania
• Estimated 1,316.7 million hours caregiving
• Estimated value of care in excess of $11,600.5 million
• Pennsylvania caregivers care for adults, age 65+ years, who have wide range of physical, mobility, sensory, cognitive and self-care needs, with 26% identifying a physical disability and 20% expressing difficulty going outside their home.
Family Caregiver Alliance. The State of the States in Family Caregiver Support: A 50-State Study, Pennsylvania Profile http://www.caregiver.org/caregiver/jsp/content/pdfs/state_profile_pa.pdf
Progression of Care for Caregivers• Begin with supporting of basic activities of daily living,
such as cooking, cleaning, shopping
• Expands to include personal care activities(bathing, dressing, eating)
• Decision to seek supportive living environment
• Health decline and death
Schulz, Richard, PhD, University of Pittsburgh, Health Effects of Caregiving. Looking in to the Future of Family Caregiving in the U.S., Proceedings from the White House Conference on Aging Mini Conference, June 15, 2005
Personal Cost to Caregivers• 16% of caregivers indicate their health has worsened
since becoming a caregiver• Up to half of primary caregivers caring for someone
with Alzheimer’s Disease develop significant psychological distress
• 40% of caregivers incur additional financial expenses for care related products services and activities
• About one-half of primary caregivers provide care without outside assistance whatsoever
Family Caregiver Alliance,1999
Health Impact on Caregivers
• Level of caregiver depression increases as care recipient requires more support
• Increases in health risk behaviors– not enough time to exercise– decreased sleep– neglecting personal medication regimes– not seeing own physician
Schulz, Richard, PhD, University of Pittsburgh, Health Effects of Caregiving. Looking in to the Future of Family Caregiving in the U.S., Proceedings from the White House Conference on Aging Mini Conference, June 15, 2005
Economic Costs to Caregivers
• The cost of nursing home care is beyond the means of most people
• Middle income families are the hardest hit.
• Families of people with dementing illness face a particularly severe financial burden
Lynn Friss Feinberg, Shaping Legislative Policy: The Legislative and Advocacy Agenda, Family Caregiver Alliance
Caring for Older Pennsylvanians
Caring for an Older Adult
• Household Activities– Using the telephone– Getting around the house – Preparing meals– Housework and yard work– Laundry– Taking medications– Managing money
Full Circle of Care Caregiver Website www.fullcirclecare.org
Caring for an Older Adult
• Community activities– Visiting family, friends and neighbors– Transportation and travel– Shopping and banking– Church– Employment– Volunteer work– Recreation and leisureFull Circle of Care Caregiver Website www.fullcirclecare.org
Caring for an Older Adult
• Daily Living Activities– Eating– Dressing– Bathing, toileting and personal hygiene– Transferring– Grooming– Walking - Moving
Full Circle of Care Caregiver Website-www.fullcirclecare.org
Caring for an Older Adult
It can be difficult for a new caregiver to undertake these tasks for a loved one. Finding help through the use of assistive technology devices and services, as well as services such as occupational therapy, physical therapy, social work, in-home attendant care can make caregiving easier for both the adult and the caregiver.
Caring for an Older Adult
Forty percent of caregivers report obtaining an assistive device to make it easier to care for the person they help
National Alliance for Caregivers and AARP (2006). Caregiving in the U.S., Bethesda, Maryland
How AT Can Help
The obvious, not-so-obvious and the downright creative use of
devices!
Helping Tools for Older Pennsylvanians
Demonstration Kit
Open and Explore
What is this? How does it work?
LunchOver lunch, please discuss the following:
Video: Case Study – MarieWhat AT would benefit Marie? Discuss in small groups and plan to share your
thoughts at the end of lunch!
Pennsylvania’s Assistive Technology Lending Library
FREE program available to older adults and Pennsylvanians with disabilities, regardless of age or disability, who would like to try assistive technology devices prior to obtaining them.
You can borrow devices that help you:• Communicate with others• Talk on the phone• Control your environment• Hear what others are saying• Do everyday activities• Access computers• See things better and read printed materials• Learn and remember• Work and volunteer• Participate in recreation and leisure activities
Daily Assistance / Household
CCTVs
Telephones / TTYs
Assistive Listening
How does Pennsylvania’s Assistive Technology Lending Library Work?
• Obtain a loan application at http://disabilitis.temple.edu/atlend
• Fill out application completely, with signatures
• Fax and Mail application to your ATRC• Item is shipped to you via UPS• At end of loan period (2-8 weeks), item is
picked up by UPS
Training Resources
• Manual
• Handouts
• CD
• Mini-kits
• Lending Library Demonstration Kits
• Catalogues and other Resources
Ordering the Helping Tools Demonstration Kit
• Name of Item: Helping Tools for Seniors• Inventory Number: HP-AGING-NCOA• Value: $800.00• Loan Period: 2 weeks
• You can also borrow a laptop and LCD projector for presentations
• You can include other devices on the same Device Loan Request Form
AT in Everyday Junk Mail!
AT is in the eye of the beholder!Or
How to find AT at home, work or wherever…
Developing Your Training
• Action Plan
• Sample Announcement and Registration Form
• Presentation Considerations and Needs
• Accessibility
• Evaluation
Additional Resources
• Pennsylvania Assistive Technology Foundation (PATF)
• Telecommunication Device Distribution Program (TDDP)
• State and National Programs and Organizations which Support Older Adults
Pennsylvania Assistive Technology Foundation (PATF)
• PATF is a non-profit organization that provides low-interest loans and mini-grants/mini-loans to older adults and people with disabilities to buy needed assistive technology devices and services
• http://www.patf.us/
• 888-744-1938(voice) 877-693-7271(TTY)
Other Funding Sources• Public and Private Health Insurances• Office of Vocational Rehabilitation• Area Agencies on Aging• Employers• Private Agencies• Civic Organizations• Telecommunications Device Distribution
Program (TDDP)
Pennsylvanian Telecommunications Device Distribution Program - TDDP
• Provides free telecommunication devices to Pennsylvanians who have disabilities which impede independent telephone access
• A licensed physician, audiologist, speech pathologist or representative of a qualified State agency must certify the disability
• Must be 6 years or older• Individual gross income of 200% of Federal
Poverty level or less• Must have telephone service and the ability to
learn to use the telecommunications device
To Locate an AT Act Program in Another State
• AT Act Programs in every state
• Association of Assistive Technology Programs (ATAP) http://www.ataporg.org/atprojects.asp
