How Telling Your Story Can Make an Impact - NAMI Presentation

7/28/2019 How Telling Your Story Can Make an Impact - NAMI Presentation

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June 22, 2012 Randye Kaye/Susan InmanNAMI Convention

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HOW TELLING YOUR STORY

CAN MAKE AN IMPACT ANDHELP CREATE CHANGE

Susan Inman,

author, A fter Her Brain Bro keVancouver, Canada

Randye Kaye,

author, Ben Behind His Voices

Trumbull, Conn.


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STORIES


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Agenda

Sharing:Susan and Randyes Stories

Clarifying: Your Story and Why Tell it?

Brainstorming: Small Group Feedback Combining: Tell us your group findings

What Issues?

Who needs to hear the messages? Storytelling Basics

In print, in person, in media, online


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Susans StorySelected Advocacy Issues:

Need for science based public

education about psychoticdisorders


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Advocacy Issues, cont.

Need for science based education about

psychotic disorders for all programs

training mental health professionalsaddress history of unjustified parent blaming

Need for appropriate education for

consumers about psychotic disorders

address dangers to consumers about unjustified

family blaming


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Using an Incident for Advocacy

my daughters story told in WRAP program

that participants had suffered childhood

trauma and abuse from parents who were

never there for them

wrote description of her experience and

sent to senior management of mental health

services


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Incident for Advocacy, cont.

wrote Huffington Post Canada article:

How Peer Workers Can Hurt People with MentalIllnesses

Advocacy Issues:

appropriate training and supervision of peersupport workers

need for expensive programs for people withpsychotic illnesses (ex. CBT and Cognitive

Remediation Programs)


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Randyes Story

Ben Behind His

Voices:

One Familys Journey

from the Chaos of

Schizophrenia to

Hope


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Once upon atime, a hug

was all it

took

Stage One


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Diagnosis and Reality

Stage Two


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Support, Education


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Recovery:

the Rocky

RoadIncident

Stage Three


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Recovery Village


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Possible Advocacy Issues

Listen to the Family/Long-Term Caregivers

Need for Treatment Changes in Gradual

Steps

Necessity for Community for Recovery

Assisted Outpatient Treatment (Treatment

Advocacy Center) Role of Clear Structure for Success

Loneliness and Mental Illness


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SEARCH: What Families Need

When Mental Illness Strikes

Support

Education Acceptance

Resilience

Communication skills

Hope and Humor


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Randyes Responses

NAMI Family-to-Family

Book

Blogs: BBHV and Mental Illness in theFamily

Letters to Editor, comments online

Theatre: Momoirs

Speaking: APA, APNA, US PsychCongress, Nursing/Psych/Counselingstudents, Hospital Staffs, Police, etc.


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Whats YourStory?

(Personal or Agency)


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Thinking

What?: Overall storyor specific incident?

Why tell this story?

(Purpose) To Whom? (PotentialAudience)

Whats in it for my

Audience? (KeyPoints, Call to

Action?)


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Where to Start? Write it Down!

Overall Situation

One Incident to Focus On Today

Some Details

Who, What, When, Where

Feelings/Emotions

Discovering its Meaning/Impact

What could have been done differently?(Need for Change/Solution-Oriented)

Supporting Facts, Statistics?


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Group Brainstorm!

Pick Facilitator

Notes common threads

Story Share (1 minute)

Feedback (1 minute)

Other meanings/issues

Ideas where/how to tell it

Clarify Common Threads


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June 22, 2012 Randye Kaye/Susan InmanNAMI Convention 23

Group Summaries


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Where to Tell Your Story

Public Speaking: support groups

programs training mental healthprofessionals

staff professional development

religious organizations radio and television

conferences: submit proposals


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Where to Tell Your Story

In Writing:

letters to the editor

letters to politicians op-ed pieces

comments on online articles and blogs

Use Hyperlinks to Educate:

ex. www.treatmentadvocacycenter.org

ex. www.nimh.nih.gov
http://www.treatmentadvocacycenter.org/http://www.treatmentadvocacycenter.org/


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Some Resources

Toastmasters (toastmasters.org)

Keep The Promise Coalition

NAMI (nami.org) Healthy Place (healthyplace.com)

After Her Brain B rokeresource list

Ben Behind His Voicesresource list Randye and Susans mailing lists


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[email protected]@gmail.com

Tell Your Story.

Make an Impact.

Create Change!
mailto:[email protected]:[email protected]:[email protected]:[email protected]

Documents

How Telling Your Story Can Make an Impact - NAMI Presentation