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2009/10 Improving the lives of children and young people with cancer

Impact Review 2009/10

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Improving the lives of children and young peoplewith cancer

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Page 1: Impact Review 2009/10

2009/10

Improving the lives of children and young people with cancer

Page 2: Impact Review 2009/10

Hello, my name is Lucas and I am 11. I was

diagnosed with cancer last year. CLIC Sargent has been great for me, from the very beginning.

Cancer is not nice and there are lots of different types and it can be different for everyone. I like CLIC Sargent because they talk to you and fi nd out the best way to help you and your family.

I have met other children with cancer at the hospital and also at a group that CLIC Sargent runs – they call it the Children and Young People’s Advisory Group.

CLIC Sargent asks the group how they can help improve things. They put forward new things they are doing and we

are given a chance to say what we think of them.

I think that’s great because the ideas will help other children who get cancer in the future.

things. They put forward new things they are doing and we

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Every day, ten families hear the news that their child has cancer.

At CLIC Sargent we believe that every child and young person with cancer deserves the best support and opportunities; to help them through cancer and to reach their full potential in the future.

Every child and young person with cancer we support is an individual. That’s why it is so important that we offer a wide range of different services that we can tailor to meet their particular needs, and those of their families too.

In 2009/10 our care teams gave in-depth support to more than 5,500 children and young people with cancer, and their families. Additional support was provided through our other services such as our Homes from Home and holidays. We also reached thousands more children, young people, families and the public through our information service and helpline.

We looked at the needs of children and young people in key pieces of work: our second report in the More Than My Illness series, a consultation with children and young people aged 7 to 13 years old and our continued involvement in the children and young people’s workstream of the National Cancer Survivorship Initiative (NCSI). You can read about the significance of these in this review.

Spearheading all this work is Lorraine Clifton, who I was delighted to welcome as our new Chief Executive last August. Lorraine is ideally placed to take us forward, previously holding Chief Executive posts in the NHS and charity sector.

I’m pleased too that my introduction to this review sits next to a message from Lucas. Children and young people work alongside us in everything we do, as you will read throughout this review.

On behalf of the charity I would like to thank everyone who has given time, expertise and financial support to CLIC Sargent this year. Without our supporters and volunteers none of this work would be possible, and we offer our heartfelt appreciation.

I hope you enjoy reading this review, and seeing the impact you’ve made.

Daphne Pullen Chair of Trustees

CLIC Sargent Impact Review 2009/2010 3

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Harri is seven years old, and was diagnosed with a brain tumour in November 2008. At first Harri had surgery to remove the tumour, and then radiotherapy for eight weeks. After this came a cycle of chemotherapy, three weeks on treatment and three weeks off.

It was a very tough time for the whole family. Yet – when home after the radiotherapy – Harri only went back to hospital once. That’s because Jane, his CLIC Sargent Nurse, came to his house to give chemotherapy.

“It’s so hard to care for a sick child and to try to keep life as normal as possible for the

rest of the family. At times I felt completely drained, physically and emotionally. Having Jane coming to our home helped the whole family, in lots of ways,” said Harri’s mum, Joanna.

Harri added “Jane is very nice to everyone, she did lots to help me.”

“Harri was scared” Joanna continued ”and Jane explained everything, which was a great comfort. She also went to his school to discuss his illness with his classmates and his headteacher, and helped us organise the home tutoring that Harri needed.”

Harri, 7

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Josh, 21

Families tell us that it’s really important for them to spend as much time at home as possible during treatment. This was the finding in our first More Than My Illness report, which recommended that one person (a key worker) should coordinate all the care a child needs.

CLIC Sargent Impact Review 2009/20106

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We don’t plan to stop there. In March 2010 we completed the research phase of the second More Than My Illness report, about the needs of 16 to 24 year-olds.

Why more research? Because the needs of young people are different.Imagine getting cancer when you’re taking exams, leaving school, getting a job. It could have a huge impact on someone’s future. Josh, now 21, was diagnosed with leukaemia at 19. He was one of the young people who contributed to our report: “Having cancer isn’t only about getting medical care. You need lots of other kinds of support and you just don’t know what’s out there. So it was a bonus having my CLIC Sargent Social Worker who – second only to my family – was my biggest help. She got me what I needed or pointed me in the right direction – for benefits, support groups and stuff like that.”

Young people need a wide range of support and our research found that better co-ordination of all this care is vital to help them keep up with everyday life and unlock their future potential.

Our report recommends that a key worker should be responsible for the co-ordination of care and support.

88% of young people we consulted said emotional support was important, 94% said a social life was important during treatment.

CLIC Sargent is Tesco Charity of the Year 2010/11, and the partnership aims to raise £5 million – to make this support at home possible for more families. See more at www.clicsargent-tesco.co.uk

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Why should a child or young person with cancer have fewer opportunities now and face barriers later? CLIC Sargent is here to make sure every child and young person can have the best chance in life.

Childhood cancer survival rates are more than 70%, so there are many young survivors with a big future ahead of them.

That’s why we offer clinical, emotional and practical support. We work with children and young people and those around them – parents, siblings, grandparents – because the cancer diagnosis can affect them too.

Most importantly, because everyone has a different experience of cancer, our contact with families starts with an assessment of their individual needs. That means our services fi t around them.

Important pieces of work – like the More Than My Illness reports – help us shape our services to meet needs now and in the future.

CLIC Sargent Impact Review 2009/20108

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“I was diagnosed at 20 with Hodgkin’s Lymphoma as I was just about to complete my fi nal exams at university. 18 months on – after two sets of chemotherapy, getting through pneumonia, losing loads of weight, having intensive chemotherapy and a stem cell transplant – I got the news I was waiting on, that I am in remission.

“Now I want to help CLIC Sargent, because I’m so thankful for the support they gave me throughout.

“I decided to do some fundraising and had a coffee morning in my church hall, you literally couldn’t get a seat and we had to put up more tables! I had the great honour of being the guest speaker at the CLIC Sargent Northern Ireland Ball, where I spoke about my experiences and how CLIC Sargent helped me. As a fi lmmaker I showed this in a short fi lm too, which moved the room to silence.

“I don’t know quite what lies ahead for me, but want to stay involved with CLIC Sargent and also jimmyteens TV – where you can watch my fi lms – http://www.jimmyteens.tv/author/claire-henderson/ ”

Claire, 23

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From cake sales to abseils… dipping into icy water to diving out of planes… people in communities all over the UK are going to great lengths to help children with cancer, and having great fun doing it.

Some people join events organised by our local fundraising teams. This year head shaves were a very popular event, alongside favourites like ‘dip n nips’, abseils and walks. Around the UK, our committed volunteer groups also set up their own events.

Last year all these fundraising heroes raised over £4 million! So we would like to thank everyone… together everything you do adds up to make a big difference.

groups also set up their own events.

CLIC Sargent Impact Review 2009/201010

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We undertook and completed research for the next phase of our More Than My Illness report which focussed on the needs of an older age group (16 to 24 years)

We supported an additional 752 16 to 24 year-olds across the UK, offering each young person a greater range of services to meet their individual needs

We investigated what support is available in the community for children and young people with cancer.

Lead the development of the key worker role across the UK, supported by Tesco Charity of the Year partnership

Further develop the key worker role by piloting the model for young people at the Royal Marsden (made possible by a successful bid to the Department of Health’s Third Sector Investment Programme)

Work with our partners to ensure that we’re moving towards our goal of reaching and supporting all children and young people who need us.

Aims for 2010/11

Achievements for 2009/10

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Charlie, 14

“I noticed a lump in my neck, which got bigger. It was cancer,” said Charlie.

Carly, his mum added: “It was devastating. Really, really terrible. One of the biggest things was the distance we lived from the treatment centre – a three-hour round trip by car and train.

“During Charlie’s first round of chemotherapy, I slept on the ward for 10 days. My husband Stephen and daughter Laura visited every day, which was really expensive. It was also hard on Laura to have me away from her.”

Charlie said, “During my second round of chemotherapy we didn’t stay in the treatment centre so I had to make the three-hour round trip too, every day for 15 days.

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“It would’ve been better if there had been somewhere where the family could’ve stayed.”

For families like Charlie’s there is good news. We will open our ninth Home from Home – Paul’s House – right next to University College Hospital in London, in late summer 2010. “I think Paul’s House is a really good idea as it gives family the opportunity to stay together during a really hard time,” said Charlie.

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Charlie was one of a group of young people who took part in a ‘time capsule’ event – marking the mid-way point of building work on Paul’s House.

The items in the capsule summed up the children’s feelings about having cancer and gave an idea of what it’s like to live with cancer in the 21st century.

CLIC Sargent Patron Marie Jordan set up a major fundraising appeal that raised nearly £7 million for the new home. At the ‘time capsule’ event, she was joined by her husband Eddie, Patron and Formula One pundit.

Eddie said: “There are so many people to thank for supporting the appeal to make this dream a reality.

“It will be life changing for so many people like Charlie and his family.” Find out more www.clicsargent.org.uk/paulshouse

raised nearly £7 million for the new home. At the ‘time capsule’ event, she was joined by her husband Eddie, Patron and Formula One pundit.

“It will be life changing for so many people like Charlie and his family.” Find out more www.clicsargent.org.uk/paulshouse

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Marie Jordan and her husband Eddie, both CLIC Sargent Patrons, chaired a major fundraising appeal that raised nearly £7 million. An example of just how important Patrons are to our work.

We really appreciate the support of our Patrons, celebrity supporters, major donors and committees. From raising awareness of childhood cancer to making

our major fundraising events a success, we recognise their tireless work and commitment.

We’d like to thank each and every one of them – it’s impossible to thank everyone

by name in this review, but we’ve thanked as many as we can on pages 42 to 47.

We really appreciate the support of our Patrons, celebrity supporters, major donors and committees. From raising awareness of childhood cancer to making

of them – it’s impossible to thank everyone by name in this review, but we’ve thanked

as many as we can on pages 42 to 47.

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People often say that a cancer diagnosis turns their world upside down. As well as coping with treatment, there’s everyday life to deal with too – siblings to look after, the need to explain absences to school, college or employers, mortgages and bills to pay.

CLIC Sargent social workers are specialists in helping everyone cope with the financial, emotional and practical issues a cancer diagnosis brings.

For example, 68% of families say they experience worrying financial difficulties due to extra costs and reduced working hours.

For immediate help, we offer CLIC Sargent Grants, usually payable in 72 hours or less. Specialist benefits advisors work with our social workers to help families through the maze of benefits applications, plus printed and downloadable financial information.

As the Government develops its thinking around benefits and welfare reform, CLIC Sargent will be seeking to ensure that children and young people with cancer and their families are not further disadvantaged by any changes to the system.

CLIC Sargent Impact Review 2009/201016

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We have highlighted the need for a full package of rights to time off and paid leave, carers’ policies and flexible working, for parents of children with cancer, and young adults with cancer.

Read more at www.clicsargent.org.uk/cuttheredtape

Imagery - people being helped, interacting, whole family maybe. Collage - sort of - different size boxes.

CLIC Sargent Impact Review 2009/2010 17

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“My godson William was diagnosed with leukaemia in 2007,” said Sarah. “His treatment would last up to three years. It’s a long time and a huge strain on the family. But CLIC Sargent has been there from the start.

“That’s why I thought the best way to support CLIC Sargent would be with a regular gift. Gifts like mine provide steady income… to help children through the long years of treatment.”

You can’t buy much for £10 a month… but we can: over a year that’s 80 sets of storybooks to explain childhood cancer, six sessions with a CLIC Sargent play specialist or a CLIC Sargent social worker to meet three families after diagnosis.

Even a small sum every month adds up. Last year the money raised from direct debits, payroll giving, standing orders and Especially For You funds was an incredible £1.75 million.

You can’t buy much for £10 a month… but we can:

play specialist or a CLIC Sargent social worker to meet

Sarah, supporter

CLIC Sargent Impact Review 2009/201018

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We gave 4,955 grants last year, totalling £753,380

Over 340 people contacted us via the helpline for benefits advice and many more via our care professionals face to face

We opened Billy’s House, our eighth Home from Home, to families in summer 2009

We provided accommodation for an average of 100 families per month at our Homes from Home.

Open Paul’s House, our London Home from Home, to families

Strengthen our Home from Home network so that we continue to provide high quality free accommodation to families in need

Move forward with our plans to develop our tenth Home from Home

Review our helpline to ensure we’re using the right methods of communication to support families.

Aims for 2010/11

Achievements for 2009/10

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hmv raised £524,000 – of which £204,000 came from fundraising events and selling products. Plus £320,000 was raised by allowing CLIC Sargent to sell hmv obsolete stock

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“When I was 11, I was diagnosed with cancer in my salivary glands. The cancer came back when I was 15. It’s been hard, and not just on my body. Cancer has a major knock-on effect on everything you previously took for granted – even getting a part time job or any work experience.

“So when I took part in this work placement, I had a chance to explore my options, use my skills and improve my confidence,” said Raina.

Raina worked with hmv, gaining first-hand experience of how a retail office works, along with HR and admin tasks, as well as writing an article about cancer for hmv’s magazine The Voice – see www.clicsargent.org.uk/workplacement

The hmv work placement pilot project was a great success and participants who took part agreed that the placement helped build confidence, develop skills – and gave them valuable experience to include on university and job applications.

hmv staff found it gave them a real understanding of how cancer affected young lives, and just how much their financial support helped the charity.

Raina, 19

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Huge thanks to JD Wetherspoon who – having already raised £3 million – have pledged to support us for another fi ve years and raise a further £5 million. Staff raised just under £200,000 at their 5-a-side football tournament and in-pub fundraising.

In May 2009 Virgin Trains pledged to raise £200,000 in twelve months. They got off to a fl ying start, auctioning old train nameplates for £100,000 and giving a new nameplate ‘CLIC Sargent’ to one of their trains.

Long term support is vital to help us plan our services and JD Wetherspoon, hmv and Virgin Trains have all extended their partnerships.

In 2009/10, corporate partners raised a total of £1,180,000. And we say thank you to each one on page 45. Find out more at www.clicsargent.org.uk/corporatepartners

CLIC Sargent Impact Review 2009/201022

CLIC_Sargent The CLIC Sargent Virgin Train (Pendolino 390047) is heading Glasgow – London – Glasgow today! Are you on it? Have you seen it?5:16 PM Apr 16th via web

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The hub of support for many young people with cancer comes from CLIC Sargent Social Workers, who are based in treatment centres around the UK. Their skills – a balance of social care, youth expertise and knowledge of oncology – mean young people have someone who ‘gets’ it all.

For example, CLIC Sargent Social Worker James George supports young people like Ollie, who was diagnosed with Ewing’s sarcoma (soft tissue tumour) in her spine last year.

Ollie, 17

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During 2009/10 Ollie made a ‘webumentary’: a document about her treatment, posted in ‘webisodes’ on our website – www.clicsargent.org.uk/olliesstory. “My webumentary shows what my life is like and introduces you to people who have helped me including James, my CLIC Sargent Young People’s Social Worker and my big sister Georgie” Ollie said. You can watch Ollie ‘interviewing’ James in webisode 3.

“Georgie ran the Virgin London Marathon for CLIC Sargent – so you can follow her training too!” Ollie added.

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As the official Virgin London Marathon charity, more than 600 runners – including a 20-strong team from JD Wetherspoon – wore a CLIC Sargent vest, or dressed as a nurse, our team’s theme. They should boost funds by around £1.8 million next financial year.

In 2009/10 our runners raised over £1 million, in 5Ks to marathons.

Other challenges included motorbiking around Europe, climbing Mount Kilimanjaro, cycling from London to Paris and more.

There were sponsored music, dance and reading events, plus Yummy Mummy Week. Altogether supporters raised over £1 million through

challenges and national events.

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How do you ask young children to explain how having cancer has affected them?As you can see here, we helped children unlock their feelings and talk about having cancer – in a recent piece of research for the National Cancer Survivorship Initiative (NSCI).

CLIC Sargent is delighted to be a part of the NCSI’s children and young people workstream. That means we can represent the views and experiences of the 7–13 year-old age group – putting childhood cancer firmly on the agenda, nationally. And final recommendations will include those that benefit children, not only adults.

So how did we go about working with young people in the research?One activity in the study asked children to draw or write about what was good about family, home, school and friendships. They then thought about how their cancer had changed this, and how things might be improved.

Josh, 12

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The report will be presented to NSCI in the autumn, the findings shared and recommendations made. Please check

our website later in the year for more details.

“People like your

family don’t treat you the same. Like

sometimes they wrap you up in cotton

wool.” Sally, 11

“I think that at night I will relapse and die. I don’t know what will happen to

me, I hope I won’t die.”

Jodie, 9

“Even though I am

in remission from my cancer I am still not well because of the side-effects

from the bone marrow transplant.” Joe, 11

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“Even before Nathan was diagnosed I read a few books about leukaemia. But it would have been brilliant if there had been one place where I could have found the exact information I wanted. I could even have shown my friends if they had any questions I didn’t know the answer to,” said Caitlin.

CLIC Sargent has been applauded for our information service – from our storybooks for young children to our practical factsheets for young adults. Last year over 26,000 pieces of information were distributed by our care teams, sent out from our helpline and downloaded from our website.

So when the Department of Health was looking to expand its Information Prescription initiative to childhood cancers, they consulted us.

Information Prescriptions point people to different types of information about their condition on the NHS Choices website (see www.nhs.uk).

We mapped out all the information people would need, and when, and gained feedback from children like Caitlin, families and care professionals.

The next stage will see information being uploaded to the NHS Choices website, giving everyone affected by childhood cancer another source of valuable information to help them cope at every step.

Caitlin, 14

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We undertook research with children aged 7 to 13 into their experience of living with and beyond cancer

We created a Participation Steering Group to ensure that the views of children and young people remain at the forefront of our decision making

We piloted a work experience project with hmv to give young people opportunities they’ve missed due to long spells of treatment.

As part of a three to five year plan to achieve Hear by Right standards – see http://hbr.nya.org.uk – we aim to deliver our participation plan (to make sure that children and young people have a strong voice in everything we do)

Make sure that we campaign effectively for children and young people with cancer and their families – on the issues that matter to them

Develop work experience, volunteering and intern programmes, in consultation with children and young people with cancer.

Aims for 2010/11

Achievements for 2009/10

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“I was diagnosed with a rhabdoid tumour in 2006. I had surgery, chemotherapy and radiotherapy. I was looked after by two CLIC Sargent nurses. I’m now in remission,” said Ayesha.

“In 2009 CLIC Sargent asked me to join their Young People’s Advisory Group. I was happy to say ‘yes’. It means

I can meet other people who had been through the same thing, and also help CLIC Sargent improve their services.

“For instance, in September 2009 I was asked to present to CLIC Sargent’s Board of Trustees. It’s given me a huge confidence boost! When I was having my treatment I missed out on developing skills like presentation and public speaking in school. CLIC Sargent has given me the opportunity to gain and build on these skills. I’d say that CLIC Sargent has helped me get my life back and get back to normal.”

The views and experiences of children and young people with cancer help us make our services as effective as possible. By working with us, young people like Ayesha broaden their experience – and get the chance to change things for themselves and others affected by childhood cancer.

Ayesha, 18

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Our care professionals are based where children, young people and families need them. For example in hospital, in the community, at Malcolm Sargent House (our holiday home in Ayrshire) and in our Homes from Home.

Our health and social care professionals already work very closely with each other, but to make this easier we have introduced a new computer system called CARE. It will help us to deliver a seamless service, because we’ll have quick access to information about what children, young people and families need and the support they are receiving. It’s especially useful because often more than one CLIC Sargent care professional supports one family. And sometimes families receive support in different places, for example in a hospital a long way from home and at home too.

In 2009/10 CARE was piloted in three hospitals. Though it may sound a little technical to report here, it’s the key to having better data to plan and improve our services. We plan to roll CARE out to all hospitals in 2010/11.

because often more than one CLIC Sargent care professional supports one family. And sometimes families receive support in different places, for example in a hospital a long way

three hospitals. Though it may sound a little technical to report here, it’s the key to having better data to plan and improve our services. We plan to roll CARE out to all hospitals in 2010/11.

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Our commitment to quality and standards can be seen right across the charity.

For example our eBay shop has won awards for its service levels, and had a high positive feedback rating (99.6%) in 2009/10. Last year the global reach was phenomenal, with customers as far away as Australia buying goods to help children and young people with cancer.

The top selling items at over 1,000 per month were new CDs. And the most unusual item was an old clock from Weston-Super-Mare train station, valued by an auction house at £300, sold on our eBay shop for £879.

All good – rapidly becoming a favourite seller!

Envio perfecto a España, Un place colaborar con vosotros, muchas gracias!! +++++

Superb fast delivery and good communication. A1 and for a good cause. Thanks

As well as our eBay Shop, our online shop at www.clicsargent.org.uk/shop extended its range of products, and our network of high street shops grew too. Along with our recycling scheme, our trading team and customers raised over £2.5 million. Thank you for doing business with us!

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Another way we make sure that our services are answering people’s needs, is to ask them. We sent a user satisfaction survey to everyone who received a service from us between 1 January and 31 December 2010. 650 young people and families of younger children responded:

Of the 650 respondents:

93% said their CLIC Sargent Support Worker was good or excellent.

87% said the overall service they received was good or excellent.

570 respondents made comments about the positive impact our services had made on them and their families.

35% of young people and young adults requested more information on our Children’s and Young People’s Advisory Group and how they could become more involved in the organisation.

Respondents identifi ed their main areas of priority support as:

Financial – grants, benefi ts and advice

Social and Emotional Support – “being there”

Care at home or close to home.

We also received positive feedback from those who had stayed in our Homes from Home, had been provided with a holiday or received specialist information.

35CLIC Sargent Impact Review 2009/2010

“We didn’t know about the fi nancial support available to us until we met our CLIC Sargent social worker. She has been a great support to the whole family making contact with us regularly and arranging days out. Our lives were changed but CLIC Sargent helped us fi nd the positive again”.

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Helping families cope with losing a child is a vital part of our service. Having set up our Bereavement Advisory Group, we’ve taken the next step: focused training on bereavement skills for more of our care professionals.

Last year, the group also ran a weekend at Malcolm Sargent House – our holiday home in Ayrshire – for parents who have lost their only child to cancer. This was in addition to the weekends for parents and siblings.

Eight couples and a single parent attended, sharing experiences and taking part in activities, to help them find ways to cope with their loss. We shall be running two more weekends in May and November.

Specialist fundraising support We appreciate the support of many grant-making organisations, who take a deep and special interest in our work. Their on-going support is vital to CLIC Sargent’s work and future development. In 2009/10 over £1 million was raised from charitable trusts and foundations. We would like to sincerely thank all those who supported us during the year – and have listed as many major donors and supporters as possible on pages 43 and 44 of this review.

Malcolm Sargent House

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We began to measure ourselves systematically against agreed standards in care services, to report back in a way that can be measured

We moved from a manual to computerised information system, to improve the robustness of our services data

We piloted a new bereavement weekend for parents who have lost their only child to cancer, as well as continuing with support for families.

Look strategically at our key services to ensure they are working in the best way for children, young people and their families

Make the CARE database available to all of our care professionals. This way we can streamline operating processes and manage our services as effectively as possible

Be able to show concrete examples of how we’re improving our services, backed by new audit and peer review processes

Implement a new and more consistent approach to assessment and care planning, supporting CLIC Sargent to deliver a more equitable service across the 0 to 24 age range.

Aims for 2010/11

Achievements for 2009/10

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* Carol Goldstone Associates questioned 1,003 charities in England

and Wales in February 09 for the Charity Commission survey.

When I joined CLIC Sargent in August last year, I was of course aware of the financial challenges that charities faced

due to the economic downturn and that CLIC Sargent had been no exception.

Indeed a Charity Commission report in February 2009 showed that around 52 per cent of charities in England and Wales said they had been affected, up from 38 per cent when similar research was carried out in the previous year*.

I know that the Trustees reacted quickly – as was needed – taking difficult and painful decisions to ensure the charity’s future financial health. Those difficult decisions mean that we are now on course to meet future challenges and take advantage of opportunities.

Throughout 2009/10, our priority has been to continue to deliver the services children and young people with cancer and their families need. In doing so, like many charities, we have put pressure on our reserves. And to rebuild them will be a priority for us.

During this year, and looking ahead, our supporters are crucial for us to succeed – as over 99% of our income comes from voluntary sources.

We recognise that it has been a hard year for many of our supporters too, and so we are particularly grateful for your continued help. As well as the fantastic work of individual supporters, corporate partners have been key to our delivering our vital services.

For instance JD Wetherspoon, having raised £3 million, have committed to support the charity for a further five years. Thanks to the Tesco Charity of the Year partnership for 2010/11, our ambitions to further develop our services have a firm footing too.

Though financially it has been a challenging year, our strategy is to build on our strengths and to take the charity forward, working alongside those we support and those who support us.

I very much look forward to leading the charity into a successful 2010/11 and beyond. I’m sure that next year I’ll be reporting back on how – with your support – we’ve been able to reach more of the children and young people with cancer and their families who need us.

Lorraine Clifton Chief Executive

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How did we spend our income

to help children and young people with

cancer and their families?

4%7%

36%

27%

26%

Investing in the development and improvements of services

Researching for better futures

Building support and understanding and reducing isolation

Reducing the practical and financial burden of cancer

Improving health outcomes and wellbeing

Individual Donors

Trading

Legacies

Corporates and Trusts

Regional

EventsWhere did our

income come from?

£2.2m£2.7m

£2.9m

£2.9m

£4.9m

£2.6m

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I am delighted to introduce this message of thanks. As CLIC Sargent Ambassador I have worked alongside many of the people mentioned in the following pages, seeing first hand the time, energy and enterprise they put into helping this fantastic cause.

Over the years I have had the privilege of meeting many children and young people with cancer and their families too. So I know that every pound raised really does make a difference to the people living with the challenges of childhood cancer.

I am sure that with our continued support, CLIC Sargent can look forward to achieving the goals it has set out in this review.

With all good wishes

Lady Helen Taylor CLIC Sargent Ambassador

CLIC Sargent Impact Review 2009/2010 41

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Thanks to CLIC Sargent TrusteesDaphne Pullen, Chair

Rachel Billsberry-Grass

Jim Currie

Tim Holley

Dr Meriel Jenney

Dan Kendall

Henry Kenyon, Treasurer

Jonathan Plumtree

Sally Ramsay

Dr W Hamish Wallace

Chris Wathen

Thanks to our patrons and celebrity supportersLady Helen Taylor CLIC Sargent Ambassador

Lucy Alexander

James Allen

Lord Richard Attenborough CLIC Sargent Legacies Ambassador

Alice Beer

Angellica Bell

Nicola Benedetti

Cherie Booth

Sara Carello

Mark Chapman

Sir James Galway

Laura and Johnny Greenall (Billy’s House)

Tim Henman

Chris Hollins

Emma Johnson

Eddie and Marie Jordan

Gary Lineker

Laurence and Jackie Llewelyn-Bowen

Julian Lloyd Webber

Sally Magnusson

Barry and Sandra McGuigan

Kai Owen

Patsy Palmer

Duncan Pow

Steve Rider

Gaby Roslin

Michelle Ryan

Sharleen Spiteri

Joanna Taylor

The Archbishop of Canterbury Dr Rowan Williams

Richard Young

“I’ve grown my skills and confidence.”

“Jane helps people and she’s very nice.”

CLIC Sargent Impact Review 2009/201042

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We would like to thank everyone who helped our work in 2009/10 – but we’re a little squeezed on space. If your name isn’t listed here, we’d like you to know that we really do appreciate your support too.

Thanks to our major fundraising committeesWe would like to thank the following who chair the different committees that organise our very full and varied events programme. They and the committee members who work tirelessly and enthusiastically with them continue to raise amazing sums of money to help children with cancer and their families.

The London CommitteeJoint Chairs: Rola Grant-Gordon & Nadja Swarovski

The St. Nicholas CommitteeJoint Chairs: Andréa Dreesmann & Diana D’Hendecourt

The Fantasy Ball CommitteeChair: Susan Young

The Windsor Race Night CommitteeChair: Marie Jordan

Billy’s House AppealChair: Laura Greenall

Thank you to the many donors and supporters who contribute to major fundraising and our major events programme. Notably we would like to thank Eddie O’Gorman and family.

Thanks to our charitable foundations and trustsBBC Children in Need

Big Lottery Fund – Young People’s Fund Northern Ireland

Big Lottery Fund – Young People’s Fund Scotland

C B Richard Ellis Charitable Trust

Children’s Aid (Scotland) Limited

Chiltern Charitable Trust

Colonel JD Sherwood Charitable Trust

Edith Murphy Foundation

Ewan & Christine Brown’s Charitable Trust

Fidelity UK Foundation

Football Aid

Health and Social Care Board (NI)

Lloyds TSB Foundation For Scotland

Lord Barnby’s Foundation

Margaret Murdoch Charitable Trust

Memsahib Trust

Miss Agnes H Hunter’s Trust

Nottingham University Hospitals Charity

P E Brooks Charitable Trust

Radio Clyde Cash for Kids

Sovereign Health Care Charitable Trust

The Albert Hunt Trust

The Albion Trust

The Alison Hillman Charitable Trust

The Anson Charitable Trust

The Band Trust

The Bernard Sunley Charitable Foundation

CLIC Sargent Impact Review 2009/2010 43

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Thanks to our charitable foundations and trusts (cont.)

The Charles S French Charitable Trust

The Childwick Trust

The Coutts & Co Charitable Trust

The Coward Trust

The Dandia Charitable Trust

The Dinning Charitable Trust

The D’Oyly Carte Charitable Trust

The Dr A & Mrs G P Darlington Charitable Trust

The Dr L H A Pilkington’s Charitable Trust

The Elizabeth And Prince Zaiger Trust

The Gerald Micklem Charitable Trust

The Gerald Palmer Eling Trust Company

The Gibbons Family Trust

The Gloag Foundation

The Gwendoline & Margaret Davies Charity

The Henry Smith Charitable Trust

The Hudson Foundation

The Ian Mactaggart Trust

The J Davy Foundation

The J R Corah Foundation Fund

The James Weir Foundation

The Jones 1986 Charitable Trust

The Joseph Strong Frazer Trust

The Kathleen Laurence Trust

The Kathleen Smith Foundation

The Lady Hind Trust

The Langdale Trust

The Manoukian Charitable Foundation

The Mary Potter Convent Hospital Trust

The Michael Bishop Foundation

The Miss I F Harvey’s Charitable Trust

The Morton Charitable Trust

The Norman Family Charitable Trust

The Olive Herbert Charitable Trust

The Rank Foundation

The Saints and Sinners Club of London

The ScottishPower Energy People Trust

The Sheffield Town Trust

The Simply Health Charitable Committee

The Sir James Knott Trust

The Sir James Reckitt Charity

The Sir Jules Thorn Charitable Trust

The Spielman Charitable Trust

The Trades House of Glasgow Drapers’ Fund

The Wixamtree Trust

Tollemache (Buckminster) Charitable Trust

CLIC Sargent Impact Review 2009/201044

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Thanks to our corporate supporters

Alliance Healthcare

Allianz Insurance staff Northern Ireland

Anton Printers

Arts Council England

Aspen Insurance

AugustaWestland Apprentices

Benchmarx Ltd

Boots

CMS Cameron McKenna

Cath Kidston

Charity Challenge

Chelsea FC

Conran and Partners

Deloitte

EA Sports

Electronic Arts

Emma Bridgwater

Experian

Fly BMI

Football Nights

For Goodness Shakes

Grass Roots

Greggs

Hallmark

Harlequin

Hasbro

hmv plc

JD Wetherspoon

Marks & Spencer

Marsh & McLennan Companies Inc

Marsh •Guy Carpenter •Mercer •Oliver Wyman •Kroll•

MITIE (South West)

Next

Nintendo

Orange

Paramount

Partylite UK Ltd

Rolls Royce Apprentices

Rosemount Financial Solutions

Sainsbury’s (Region 43)

Scumrun

Suffolk Gates Co

Sweatshop

Tesco

Total Butler

TOTAL UK Ltd

Touchstone Asset Management

Trent FM

Vie at home

Virgin Marathon

Virgin Money

Virgin Trains

Virgin Unite

Witham Oil Co

WRP

XBox

“I don’t know what lies ahead for me, but want to stay

involved with CLIC Sargent.”

CLIC Sargent Impact Review 2009/2010 45

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Thanks to our partners across the UK

“I like CLIC Sargent. They talk to you about the best way to help you and your family.”

It is impossible for us to list all the people who support us in every corner of the UK. We couldn’t deliver our work without you and we thank you all. Here are just a few of the many supporters we worked closely with last year…

Our Branches and fundraising groups in North Devon, Cornwall & Isles of Scilly, Mid Devon, Hamble, Guernsey, South Somerset, Bath, Gloucester, Wealden, Ashford, South Hampshire, Oldbury, Mid Somerset, South Wales, Coventry, Castlewellan, Colchester & Tendring, Suffolk & Norfolk Borders, Ayr, Dumfries, SACCT, Rothesay, Tain, Prestwick, Wick, Aberdeen, Orkeny and St Andrews

Our Carol Concert Committees and Choirs across the UK; Manchester, Midlands, Newcastle, Cambridge, Aberdeen, Dundee, Edinburgh, Elgin, Glasgow, Inverness and the Welsh Hospitals Choir

Our Especially For You Funds; Charlie White, Bea Brookes, Caitlin Barnard and many others

All of our support groups and supporters including EMBO group, Billings group, The Retros, Haywards Heath Lions, Kathy & Mick Leach, RSA Manchester, The Logue family, Denise McCabe and the Newry Support group, Eleanor Keenan and the new Foyle Area support group and HMP Northallerton,

CLIC Sargent Impact Review 2009/201046

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East Anglia and Lincolnshire

PartyLite UK Ltd

Colchester & Tendring Supporter Group

Suffolk & Norfolk Borders Supporter Group

Cambridge Joint Hospitals Choir

All Especially for You Fund holders in the area

Scotland

Committee / Group support across Scotland: Ayr, Dumfries, SACCT, Rothesay, Louise Tough, Tain, Prestwick, Wick, Aberdeen, Orkney, St. Andrews

Carol Concert Committees: Aberdeen, Dundee, Edinburgh, Elgin, Glasgow, Inverness

South

North Devon Branch

Cornwall & Isles of Scilly Branch

Mid Devon Branch

Charlie White Especially For You Fund

Bea Brooks Especially For You Fund

Caitlin Barnard Especially For You Fund

Hamble Branch

Guernsey Branch

South Somerset

Bath

Gloucester Branch

Welsh Hospitals Choir

Wealden Fundraising Committee

EMBO Fundraising Group

Ashford Fundraising Branch

Billings Group

The Retros

Haywards Heath Lions

Kathy & Mick Leach

South Hampshire Branch

Oldbury Fun Run Committee

South Wales Supporter Group

Mid Somerset Branch

North West, North Wales and West Midlands

RSA Manchester Manchester and Midlands choirs

Coventry Cancer Support Group

Northern Ireland

The Logue family

Denise McCabe and the Newry Support Group

Eleanor Keenan and the new Foyle Area Support Group

Castlewellan Group for organising another fantastic St Baldrick’s event

East Midlands and North

HMP Northallerton

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10R

P118

www.clicsargent.org.uk

Printed on chlorine free and environmentally friendly paper, manufactured with pulp supplied from sustainable managed forests.

Improving the lives of children and young people with cancer

2009/10

Registered charity number 1107328 and registered in Scotland (SC039857)