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Insight & Knowledge: Improving The Breast Cancer Journey 20 August 2018

Insight & Knowledge: Improving The Breast Cancer Journey · mobile phone or silent. During presentations, telephone calls can be made or received from the foyer of ... o with breast

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Page 1: Insight & Knowledge: Improving The Breast Cancer Journey · mobile phone or silent. During presentations, telephone calls can be made or received from the foyer of ... o with breast

Insight & Knowledge: Improving The Breast Cancer

Journey

20 August 2018

Page 2: Insight & Knowledge: Improving The Breast Cancer Journey · mobile phone or silent. During presentations, telephone calls can be made or received from the foyer of ... o with breast

Insight & Knowledge: Improving The Breast Cancer Journey Be Uplifted Inc Breast Cancer Charity

www.beuplifted.org.au

2

Index 1. Welcome . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .

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2. Things To Know . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .

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3. About Be Uplifted Inc . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .

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4. Symposium Speakers . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .

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5. Information Booths . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .

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6. FAQ . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .

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7. Get Involved . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .

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8. Directory . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .

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9. Our Sponsors . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .

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Page 3: Insight & Knowledge: Improving The Breast Cancer Journey · mobile phone or silent. During presentations, telephone calls can be made or received from the foyer of ... o with breast

Insight & Knowledge: Improving The Breast Cancer Journey Be Uplifted Inc Breast Cancer Charity

www.beuplifted.org.au

3

Wendy’s Welcome

Hello and welcome to the 2018 Symposium, Insight & Knowledge: Improving The Breast Cancer Journey. I started Be Uplifted Inc with my best friend Barb after we both struggling financially through our breast cancer treatments. We both felt isolated and just didn’t have any understanding of the process or the realities of what breast cancer entailed. I was a single mum at the time and was not financially or emotionally prepared for the journey I was about to go on. I understand firsthand just how difficult it is to get the right information and advice about treatment options. Holding this event has been a long-held dream of mine. I believe it is especially important that information about care and wellbeing is shared in the community, so that every person on a breast cancer journey has the best possible treatment outcome. And this includes not just understanding the medical treatment choices available to them, but also options for enhancing physical and emotional wellbeing during this difficult time. I encourage everyone here today to soak up the resources in the room. Take notes; don’t be afraid to ask questions and above all don’t forget to have a bit of fun. Finally, there are so many people I would like to thank. I would like to thank all of the hard-working volunteers who have given up their time to make today happen, and especially Cr Fiona King, Kedron Wavell Services Club, Westpac Bank and CommBank, plus the speakers and guests who offered their time to provide information and resources today.

Wendy Paterson Co-Founder & President Be Uplifted Inc

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Insight & Knowledge: Improving The Breast Cancer Journey Be Uplifted Inc Breast Cancer Charity

www.beuplifted.org.au

4

Things To Know

Symposium Running Times Our speakers will start at 10am and will conclude by 4pm. The doors will open at 9am to allow guests time to visit our information booths and mingle. There will also be time to explore the information booths after the speakers have finished and during our break periods.

Symposium Schedule 10.00am Opening remarks, Cr Fiona King, Councillor For Marchant 10.15am Wendy Paterson, Co-Founder & President, Be Uplifted Inc 10.30am Tim Brown, Regional Health Care Group 11.00am Lorna Golombick Lime Physical Therapy 11.00am Morning Tea 11.30am Alan Mills, Healthy Connections Plus, Burnie Brae 12.00pm Bobbie Lee Dionysious,

Breast Cancer Documentary Filmmaker 12.30pm Lunch 1.40pm Dr Ben Green, Surgeon, MBBBS FRACS 2.15pm Dr Janet Schloss, Naturopath & Clinical Nutritionist 2.30pm Afternoon Tea 2.45pm Lorna Golombick Lime Physical Therapy 3.15pm Karen Gray, North West Counselling 3.45pm Closing remarks and Thank You by Wendy Paterson

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Insight & Knowledge: Improving The Breast Cancer Journey Be Uplifted Inc Breast Cancer Charity

www.beuplifted.org.au

5

Break Times

Morning tea will be available from 11am. Afternoon tea will be at 2.30pm Please help yourself to tea, coffee and biscuits served.

Toilets All toilets, including disabled toilets, are located at the back of the room.

Mobile Phones We understand that many of our guests may need to make or receive telephone calls. We ask that as a courtesy to others attending the Symposium you leave your mobile phone or silent. During presentations, telephone calls can be made or received from the foyer of the building. Thank you for your understanding.

Need Help? If at any stage during the Symposium you need help or guidance, please contact a Be Uplifted Inc volunteer. Don’t be shy, we are here to ensure everyone enjoys their day.

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Insight & Knowledge: Improving The Breast Cancer Journey Be Uplifted Inc Breast Cancer Charity

www.beuplifted.org.au

6

About Be Uplifted Inc Be Uplifted Inc is a unique Brisbane breast cancer charity. With the motto “People not Research”, Be Uplifted Inc’s focus is on improving the lives of the women, men and their families who are disadvantaged because of a breast cancer diagnosis. Be Uplifted Inc is run by a dedicated team of volunteers and operates with very limited overheads. The charity relies on public grants and donations to provide its services. All donations go directly to support breast cancer patients. Examples of the free support services Be Uplifted Inc offers:

• Counselling services • Hairdressing services • House cleaning • “We Care” Hampers to patients undergoing treatment • Food deliveries • Delivering Christmas Hampers to oncology wards at Christmas • Providing drain bags • Free Crocheted Knockers (soft breast prosthesis) • Arranging transport to chemotherapy and radiation

Every year in Br isbane, over 1307 women

are d iagnosed wi th breas t cancer.

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Insight & Knowledge: Improving The Breast Cancer Journey Be Uplifted Inc Breast Cancer Charity

www.beuplifted.org.au

7

Be Upl i f t ed Inc i s a reg is tered char i ty that focuses on o f fer ing prac t i cal

suppor t and f inanc ial ass i s tance to breas t cancer pat ien ts and surv i vors .

Be Uplifted Inc provides individual financial assistance on an “as needs” basis to local breast cancer patients:

• Helping to pay for medical costs associated with breast cancer treatment such as medications, medical tests, equipment and hospital parking

• Providing for practical living costs such as food, electricity and phone bills

• Helping families living across distances in Queensland or Australia remain in close during treatment

People Not Research Be Uplifted Inc focuses its support services on Brisbane’s Northside, and the following Brisbane hospitals:

• Holy Spirit Hospital Northside • North West Private Hospital • Redcliffe Hospital • Caboolture Private • North Lakes Day Hospital • Prince Charles Hospital

”“

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Insight & Knowledge: Improving The Breast Cancer Journey Be Uplifted Inc Breast Cancer Charity

www.beuplifted.org.au

8

Symposium Speakers

Be Uplifted Inc’s 2018 Symposium is all about making life

easier for breast cancer patients and helping them to achieve better outcomes through insight and knowledge.

Each of the Guest Speakers will offer their own perspective on how breast cancer patients and breast cancer survivors

can achieve healthier outcomes.

Dr Green is a highly regarded breast and endocrine surgeon working in Brisbane. His area of speciality is high-risk breast cancer patients, and is currently undertaking studies in this area in conjunction with the Royal Brisbane Women’s Hospital and the UQ Centre for Clinical Research. His areas of interest include:

• Breast cancer surgery • Familial breast cancer and high-risk patients • Oncoplastic breast techniques and breast reconstruction • Benign breast disease.

Dr Ben Green MBBS FRACS

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Insight & Knowledge: Improving The Breast Cancer Journey Be Uplifted Inc Breast Cancer Charity

www.beuplifted.org.au

9

Tim will be demonstrating the benefits of the Paxman machine, which provides for scalp cooling during chemotherapy. Scalp cooling is clinically proven to reduce damage to the hair follicles, and prevent hair loss during chemotherapy treatment for breast cancer. The machine is a lightweight device that is comfortable to use and requires minimal supervision. Tim will be discussing how these products can assist to improve breast cancer patients’ quality of life.

Karen is fully qualified Counsellor and experienced Oncology Nurse who provides counselling services to help breast cancer patients navigate the challenges a breast cancer diagnosis. Karen provides breast cancer patients with support and understanding, having seen first hand the real life effects a breast cancer diagnosis has on a patient’s day-to-day life. Karen will be discussing the psychosocial and emotional benefits of patients talking confidentially about their feelings and thoughts to a breast cancer counsellor. She will be explaining those valuable techniques and strategies, for example strategies for coping with stress and achieving better wellbeing, counsellor can assist breast cancer patients with.

Tim Brown, Regional Health Care Group

Karen Gray

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Insight & Knowledge: Improving The Breast Cancer Journey Be Uplifted Inc Breast Cancer Charity

www.beuplifted.org.au

10

Dr Schloss is an experienced and dedicated practitioner specializing in naturopathy and people who have cancer and chronic diseases. She has worked private practice for over 15 years and completed her doctorate at the School of Medicine in the University of Queensland. With her understanding of the effects of chemotherapy and radiation on the body, she works with her clients to reduce the likelihood of metastasis and tumour growth She helps her cleints maintain their health using a combination of nutrition, dietary counselling, herbal medicine and safe, effective and gentle natural treatments.

Lorna is the founder of Lime Physical Therapy and a fully qualified and very experienced Physiotherapist and Lymphoedema Practitioner. Lorna offers professional Cancer Rehabilitation and Lymphoedema Management services. She is a committed clinician who works with cancer patients to maximise recovery and regain physical strength. Her rehabilitative techniques allow breast cancer patients to recover movement, fight fatigue and regain body confidence as they learn to incorporate exercise back into their daily lives.

Dr Janet Schloss, Naturopath & Clinical Nutritionist

Lorna Golombick, Lime Physical Therapy

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Insight & Knowledge: Improving The Breast Cancer Journey Be Uplifted Inc Breast Cancer Charity

www.beuplifted.org.au

11

Information Booths

As well as our Guest Speakers, Information Booths will be

available for guests to obtain more information about assistance and support services available to breast cancer

patients and breast cancer survivors.

Be Uplifted Inc Breast Cancer Charity

• Talk to volunteers from our charity • Purchase merchandise

• Learn more about how we help breast cancer patients

• Find out how you can get involved

Pear Physiology

• Exercise physiologists specialising in women’s’ health

• Services to help manage the side effects of chemotherapy

• Group training classes to get you back moving after

treatment • Learn how exercise can increase strength, reduce your

fatigue and help improve your range of motion and

function after treatments.

• Strategies to improve chemotherapy completion rates

Ferny Hills Massage

• Talk to oncology massage specialists • Get treatment to see firsthand how oncology massage

can relieve the side effects of breast cancer

• Experience the emotional and physical benefits of oncology massage as part of an effective treatment plan

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Insight & Knowledge: Improving The Breast Cancer Journey Be Uplifted Inc Breast Cancer Charity

www.beuplifted.org.au

12

Burnie Brae • Burnie Brae is a not for profit organization that provides

a wide range of services to members and the wider

community.

• Burnie Brae have centres at Chermside and Bracken Ridge.

• The services offered by Burnie Brae include help with

transport, home care packages and Allied Health

services such as gym facilities, physiotherapists, podiatry, exercise physiologists and occupational

therapists.

• Via their Healthy Connections Exercise Clinics breast cancer patients can access affordable high quality

exercise programs that have been designed specially for

their needs and consider their individual cancer diagnosis, surgery, treatment and medication.

Lime Physical Therapy

• Lime Physical Therapy is a North Lakes clinic with a focus on cancer rehabilitation and lymphoedema management

• Learn about the benefits of the Pinc Cancer

Rehabilitation Program

• Discuss strategies for improving physical and mental health after breast cancer treatment

• Find out options for treating Breast Cancer–Related

Lymphoedema

Love Essence

• Discover natural remedies and self-healing techniques

• Wellness & Wellbeing Workshops from Love Essence

help to bring balance back into your life.

• See how holistic therapies and natural solutions such as certified pure essential oils, reflexology and nutrition

can create emotional change and improve lifestyle for

the better.

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Insight & Knowledge: Improving The Breast Cancer Journey Be Uplifted Inc Breast Cancer Charity

www.beuplifted.org.au

13

Green Door Bowen Therapy

• Certified Bowen Therapist Gillian Morandy will

discuss how the Bowtech Bowen treatment

technique can help improve post operative recovery

from breast cancer surgery. • This is a holistic treatment that improves the body’s

immune system and encourages self-healing

• Bowen therapy is especially effective for relieving post surgical pain, tightness and scarring

• For those undergoing chemotherapy and radiation,

this gentle treatment helps to relieve tension, promote relaxation and can reduce nausea, physical

discomfort and anxiety.

Zonta Brisbane Metro Breakfast Club

• This group started in 1998 and is committed to

making a difference to local women in the community

• Over monthly breakfast meetings, they commit to

fundraising and supporting local and international projects that benefit woman.

• As well as supporting globally projects for women in

need, this community groups holds sewing bees

throughout the year to sew breast care cushions that are donated to hospitals for post-operative use by

breast cancer patients.

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14

Your Questions Answered 1. Why do I need to register for a ticket if the event requires

me to make a donation at entry?

Registration is for administrative and catering purposes – we need to know how many guests to expect.

2. How do I make my gold coin donation at entry?

Volunteers will be at the entrance to the Symposium provide information. Guests can offer their donation to our breast cancer charity at that point.

3. Where do I go in Kedron Wavell Services Club?

The Symposium is being held in the Kitty Hawk Room. Guests will find this room on the ground floor of the building.

4. Do those with wheelchairs / disabled need to call in

advance?

No. The venue is easily accessible for those with a disability. Disabled parking is available directly in front of the main entrance to the venue. The venue for the Symposium is on the ground floor of the building and wheelchair accessible.

5. Is there allocated seating?

The symposium will take place in theatre style seating. There will be no allocated seating.

6. Will I be able to park if I drive?

Yes. Kedron Wavell Services Club has ample off-street parking available.

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Insight & Knowledge: Improving The Breast Cancer Journey Be Uplifted Inc Breast Cancer Charity

www.beuplifted.org.au

15

7. Does the event start at 9am or later?

The doors will open at 9am to allow guests time to visit our information booths and mingle. Seating is also not allocated, so the hour is time to find a seat. Our guest speakers will start from 10am.

8. If I did not register, can I still come to the Symposium? We prefer that guests do pre-register. If you choose not to rebook you cannot guarantee you will receive entry if the event books out. There is no cost involved in registering, so please consider taking a minute to do so: https://www.beuplifted.org.au/product/2018-symposium-ticket/

9. What time do you expect the event to finish?

We expect our speakers will end by 4pm, giving our guests time to explores the Information Booths and obtain more information and advice on health and wellbeing during and after breast cancer.

10. What if I change my mind or for another reason cannot come?

For the same reasons we ask guests to register, we ask that you email and advise that will not be attending. We may be able to reallocate your ticket. Please email [email protected] to cancel your attendance.

11. Who can I contact with any further questions?

Please contact Be Uplifted Inc. email us on [email protected] or telephone Wendy on 0408 751 577

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Insight & Knowledge: Improving The Breast Cancer Journey Be Uplifted Inc Breast Cancer Charity

www.beuplifted.org.au

16

Get Involved

Does the work of Be Uplifted Inc interest you? Would you like to help others who are experiencing disadvantage as a result of a breast cancer diagnosis? If you would like to use your skills and work together with like-minded people then get involved! Visit Be Uplifted Inc’s Website and complete our Volunteer Form. https://www.beuplifted.org.au/volunteer-form/

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Insight & Knowledge: Improving The Breast Cancer Journey Be Uplifted Inc Breast Cancer Charity

www.beuplifted.org.au

17

Information Directory

Be Uplifted Inc www.beuplifted.org.au Wendy Paterson 0408 751 577 Zillmere Op Shop B1/194 Zillmere Rd Zillmere Q 4034 Telephone (07) 3633 0752 Aspley Op Shop 5/611 Robinson Rd Aspley Telephone: 0403 019 289

Cr Fiona King www.fionaking.org.au North Regional Business Centre 960 Gympie Road Chermside QLD 4032 3407 0707 [email protected]

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Insight & Knowledge: Improving The Breast Cancer Journey Be Uplifted Inc Breast Cancer Charity

www.beuplifted.org.au

18

Medical Dr Ben Green, MBBS FRACS http://www.breastendocrinebrisbane.com.au/

Dr Green consults from his rooms at St Andrews War Memorial Hospital Holy Spirt Northside Private Hospital Dr Green visits the following hospitals St Andrews War Memorial Hospital Holy Spirit Northside Hospital Wesley Hospital Royal Brisbane and Women's Hospital 07 3226 3800

Tim Brown www.rhcg.com.au Regional Health Care Group 3-11 Primrose Avenue Roseberry NSW 2018 0406 383 177 [email protected]

Karen Gray North West Counselling North West Private Hospital 137 Flockton St Everton Park QLD 4053

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Insight & Knowledge: Improving The Breast Cancer Journey Be Uplifted Inc Breast Cancer Charity

www.beuplifted.org.au

19

Dr Janet Schloss Naturopath and Clinical Nutritionist https://www.janetschloss.com/ Pilates and Healing Centre 16 Eikin Road Annerley Qld 4103 [email protected] 0419 656 108

Allied Health Green Door Bowen Therapy http://www.greendoorbowentherapy.com.au/ Beachmere 0438 269 529

Pear Physiology https://www.pearexercisephysiology.com.au/ 14 Bramcote Street Chermside West QLD 4032 [email protected] 0478 116 700

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Insight & Knowledge: Improving The Breast Cancer Journey Be Uplifted Inc Breast Cancer Charity

www.beuplifted.org.au

20

Lime Physical Therapy https://limetherapy.com.au/ 2B Lakes Vista Office Park 2 Flinders Pde North Lakes QLD 4509 [email protected] (07) 3188 9308

Wellbeing

Burnie Brae 60 Kuran St Chermside Qld 4032 [email protected] (07) 3624 2121

Love Essence https://www.facebook.com/loveessencewellness Petra Tezak [email protected] 0400 122 291

Ferny Hills Massage www.fernyhillsmassage.com.au Ferny Hills Qld 4055 0408 703 470

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Insight & Knowledge: Improving The Breast Cancer Journey Be Uplifted Inc Breast Cancer Charity

www.beuplifted.org.au

21

Zonta Brisbane Metro Breakfast Club http://brisbanemetrobreakfast.zontadistrict22.org/ PO Box 15524 City East Qld 4002 [email protected]

Australia has one of the highest incidence rates of breast cancer in the world.

The Australian Institute of Health and Welfare

estimates that in 2018,

18,225 Australian women

and 148 Australian men

will be diagnosed with breast cancer.

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www.beuplifted.org.au

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Thank You

Be Uplifted Inc is grateful for the support of the following organizations that worked tirelessly to ensure Be Uplifted

Inc’s 2018 Symposium took place.

Kedron Wavell Services Club CommBank Westpac Bank – Aspley Branch

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23

Be Uplifted Inc Breast Cancer Charity B1/194 Zillmere Rd

Zillmere Q 4034 PH: (07) 3633 0752

Be Uplifted Inc is registered as a charity with the Australian Charities and

Not-for-profits Commission ABN 49 270 645 534.