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www.ostomygroupsnj.org SERVING OSTOMATES IN SOUTH JERSEY SINCE 1977 December 2015
INSIGHTS
The Newsletter of the
OSTOMY ASSOCIATION OF SOUTHERN NEW JERSEY
WELCOME!
The Ostomy Association of Southern New Jersey (OASNJ) is dedicated to providing information, advocacy and peer support to our members, their family and caregivers, and to the area’s intestinal and urinary diversion community at large.
We meet regularly to share experiences, provide mutual support and learn about the latest products and information for colostomy, ileostomy, urostomy and con-tinent diversions.
Meetings are held at the Virtua-Memorial Hospital Burlington County, located at 175 Madison Ave-nue, Mt. Holly, NJ 08060 in the 1st floor Conference Center. We meet on the 3rd Monday of each month with the ex-ception of July and August. The June meeting is traditionally held in an area restaurant. Meetings begin at 7:00 pm and adjourn by 9:00 pm. Fam i-lies and friends of ostomy patients are al-ways welcome to attend. There is no fee to attend and refreshments are served.
For more information about the OASNJ, contact us at our NEW web-site... www.ostomygroupsnj.org
AFFILIATION:
OASNJ is an affiliate of UOAA, the United Ostomy Associations of America. It has IRS 501(c)(3) Chari-ty Status and 360 affiliates nationwide. Contact UOAA at 800 –826 –0826 or www.ostomy.org For more info sign on to Twitter.com/UOAA or Facebook.com/UOAAinc.
_________ SCHEDULE______________
DECEMBER 21: Our traditional Holiday m eeting with our ConvaTec Rep, Kristina Klein. Hoagies will be served.
JANUARY 18, 2016: Program to be announced at a later date. FEBRUARY 15, 2016: Program to be announced at a later date.
OASNJ Satellite Support Group . Where: Virtua Health Wellness Center, 401 Young Avenue, Moorestown, NJ When: The 1st Wednesday of the month, from Noon to 2:00 PM .. Upcoming meeting December 3rd Contact: Lois Moskowitz, 609-707-4368 or e-mail: [email protected] for details.
Attention Gloucester County Ostomates and any-one else that is interested! The Woodbury Ostomy Sup-port Group meets the 3rd Wednesday of each month at the Inspira Medical Center Woodbury (Underwood Hos-pital’s new name) , Medical Arts Building, Suite #14 Next meeting December 16th at 6:00pm. Contact Kathy Pfleger at [email protected] for details.
VISITING PROGRAM ... Please Note ... We Have a New “Help Line” Tel # ... 856-983-1433 If you, or someone you know is in need of a trained osto-my patient visitor, call Sandy Ritter at 856-983-1433 to arrange for an in-person or telephone visit.
Production and distribution of this INSIGHTS
newsletter is made possible thanks to the generosity of the:
AMERICAN CANCER SOCIETY.
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EXECUTIVE TEAM OF THE OSTOMY ASSOCIATION OF SOUTHERN NEWJERSEY
Ken Aukett .. Chair, Newsletter Editor, Treasurer George Bishop ... Board Member 609-315-8115 ... [email protected] 609-871-6920 ... [email protected]
Cos Contento ... Board Member Vikki Brisko ... Board Member 856-235-1899 ... [email protected] 856-336-2646 ... [email protected]
Sandy Ritter ... Visiting Program Coordinator 856-983-1433 ... [email protected] Medical Advisors
Kathleen Schuler ... Board Member Stephen Pilipshen, MD. Colon & Rectal Surgeon 856-813-5930 ... [email protected] 856-234-3322 www.pilipshencolonandrectal.com
Lois Moskowitz ... Patient Advocate Jane N. Johnson, CWOCN, MSN, APRN, ANP-C 856-273-1493 ... [email protected] [email protected] [email protected] DISCLAIMER : No suggestions made, or any products named in any article or advertisement in this news-letter, at our meetings or recommended by a member of our organization is to be considered as an endorse-ment by the Ostomy Association of Southern New Jersey or the United Ostomy Associations of America, Inc.. Always consult your doctor and/or WOCNurse before using any products of ostomy management procedures published in this newsletter.
OSTOMY PRODUCT DISTRIBUTORS OSTOMY PRODUCT MANUFACTURERS American Ostomy Supply .... (800) 858-5858 Coloplast .......................... (888) 726-7872 Bruce Medical Supply ....... .. (800) 225-8446 ConvaTec .......................... (800) 422-8811 Byram Healthcare .................(877) 90-BYRAM Cymed ............................... (800) 582-0707 Edgepark Surgical .................(800) 321-0591 Dansac .............................. (800) 538-0890 Express Medical Supply ........(800) 633-2139 Securi-T USA........................ (877) 726-4400 Liberty Medical Supply ..........(866) 486-2379 Hollister Incorporated ...... (888) 740-8999 Medical Care Products ..........(800) 741-0110 Marlen Manufacturing .... (216) 292-7060 Ostomy Care Supply ..............(866) 207-5909 New Hope Laboratories ... (800) 899-5017 Parthenon ..............................(800) 453-8898 Ostaway x-Bag ................. (800) 774-6097 SGV .......................................(800) 395-6099 Ostomy Secrets ................ (800) 518-8515 Shield Healthcare ..................(800)-675-8847 Torbot .............................. (800) 545-4254 Sterling Medical Services ......(877)-856-1286 TOTAL eMEDICAL ............... (800)-809-9806
WOUND, OSTOMY and CONTINENCE NURSES SOCIETY ... www.wocn.org
Area WOCNurses: Arlene Peahota (856) 764-6634 Diane Wagner (215) 707-3092 Kathy Pfleger (856) 845-0100 x 3725__________ Gillian Reeve_______ (856) 566-2059
Nancy Fonte, WOCN ... (609)-484-7300 ext 185 ... [email protected] Ostomy Support Group meets 2nd Wed of each month at 4:00 PM at the Atlanticare Center,
2500 English Creek Avenue, Bldg 400, Egg Harbor Township, NJ
WHEN TO CALL A DOCTOR OR WOC NURSE 1. If cramps last more than two or three hours. 2. If you get a deep cut in your stoma or bleeding at the juncture of the skin and stoma. 3. If you have excessive bleeding from the stoma opening or a moderate amount in the
pouch after several emptying. 4. If you have a strong odor lasting more than a week. 5. If you have severe skin irritation or deep ulcers. 6. If you have severe watery discharge lasting more than five or six hours. 7. If you have an unusual change in the size or appearance of your stoma.
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Happy Holidays to All!
Christmas, Chanukah or Kwanza,
May you and your families find Peace, Health, and Prosperity!
Happy Holidays dear Ostomates, We wish you good cheer,
May your health-cares lessen, In the coming New Year. We carry extra baggage, But we do it with Grace,
Even embarrassing accidents, Won’t make us lose face.
With the support of our friends, Whose similar problems we share,
We’re there for each other, We know that you care.
Never give up! Keep a prayer in your heart,
We’re tough – we’re survivors! And the New Year’s a fresh start!
2016
2016
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Health Rules That Doctors Never Break
The Dentist Says: Floss Before Bed
“I always floss once a day, at night."
Byron Wall, DDS, a cosmetic dentist and past president of the Albuquerque District Dental Society
Why I Follow It: "Saliva flow slows at night while you sleep, which increases the risk of gum and tooth decay. That’s why it’s especially important to floss — and then brush — before bed, after you've finished eating for the day. The state of your gums can impact your body on many levels, contributing to everything from lung disease to diabetes. I ask my patients to floss once a day, and I abide by that as well."
The Cardiologist Says: Exercise Daily
“I exercise every day, even on vacation.”
Larry Santora, MD, interventional and preventive cardiology medical director at the Heart and Vascu-lar Wellness Center at St. Joseph Hospital in Orange County, Calif.
Why I Follow It: “From a total health perspective, exercise is the single most important thing you can do, with more health benefits than any medicine. It relaxes the arteries; lowers levels of stress hor-mones like adrenaline and cortisone; reduces blood sugar; raises good HDL cholesterol; helps prevent abnormal heart rhythms, heart attacks and strokes; lowers risk of obesity and related cancers; im-proves bone density; and boosts testosterone levels in men. I do aerobic exercise (usually a treadmill, stair stepper, or revolving stair machine) seven days a week for about 45 minutes each day, and weight training five days a week. If I miss exercise, I feel tired and sluggish, have more aches and pains and emotionally feel less energized about life in general.”
The Chiropractor Says: Eat Breakfast
“I eat breakfast every morning, specifically, eggs with baked vegetables.”
William Barrett, DC, chief clinical officer of ChiroCare in Shoreview, Minn.
Why I Follow It: “Research shows that breakfast eaters have an easier time losing weight and main-taining a healthy weight. Carrying excess weight can contribute to chronic lower back pain and neck and shoulder pain. Excess weight around the middle is especially bad because it can affect your pos-ture and lead to pain. In addition to chiropractic treatment, I always advise patients to eat a healthy breakfast to help lose weight. I personally swear by a breakfast that includes protein and vegetables — no processed foods.”
The Neurologist Says: Keep Tabs on Your Meds
“I keep a current list of all my medications, supplements, over-the-counter drugs and allergies on a laminated index card.”
Orly Avitzur, MD, MBA, editor-in-chief of the American Academy of Neurology Web site,AAN.com.
Why I Follow It: “It's important to have an accurate list in the event of an emergency so hospital staff can help treat you optimally. A written list helps doctors take care of you better and reduces er-rors. More than half of my patients forget something about their medication, especially the correct milligram dosage. Having a list handy for all the doctors involved in your medical care will better al-low them to avoid medication duplication and drug interactions.”
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The Ob-Gyn Says: Get Busy!
“I have plenty of sex — at least three to four times a week.”
Andrew Scheinfeld, MD, clinical instructor at NYU Langone Medical Center in New York City
Why I Follow It: “The benefits of sex are similar to those of eating well and working out frequently. A fulfilling sex life can bolster your immune system, improve blood flow, help with sleep problems, and even decrease migraine headaches. A noted study found that we should all have 200 orgasms a year in order to reap the best health benefits. That’s about three to four times a week.”
The ER Doctor Says: Buckle Up
“I always wear a three-point seatbelt in the car, even when I’m only changing parking spaces.”
Richard O’Brien, MD, spokesperson for American College of Emergency Physicians
Why I Follow It: “As an emergency physician, I’ve seen what happens when people do face-plants on their windshields going 50 miles per hour, and it isn't pretty. Even when you just pull out of a parking space, it’s possible to lose control and hit a pole or collide with unexpected traffic. Airbags don’t inflate when you’re hit from behind, so you can be thrown into the steering wheel or windshield. And you’re better off strapped into your seat in a rollover — SUVs can roll over while going as slowly as 35 miles an hour during the winter. Seatbelts save lives and can prevent serious injuries.”
The Psychologist Says: Think Positive Thoughts
“I think of three good things that I’m grateful for every day.”
Marian Stuart, PhD, author of The Fifteen Minute Hour: Therapeutic Talk in Primary Care
Why I Follow It: “One of the rules I live by is that if I don’t take care of myself, I can’t take care of anyone else. You’d be surprised to see how many people don’t realize that. Stress hormones can do very bad things to your mental and physical state, and take away your ability to cope. There are all kinds of stress management techniques that work wonders — eat healthy, remember to breathe, get enough sleep, exercise. But for me, it makes a difference to think of three good things that happen to me each day. Focusing on small, happy things helps cultivate positive thoughts, which release stress-lowering chemicals, such as dopamine, into your brain.”
The Dermatologist Says: Check for Moles
“I check my skin for moles on the first of every month.”
Elizabeth Tanzi, MD, clinical instructor of dermatology at Johns Hopkins Hospital in Washington, D.C.
Why I Follow It: “I take self exams seriously since I’m a melanoma survivor. When I was pregnant with my second child, I noticed a mole on my lower leg looked a bit darker. But since it didn’t look alarming, I ignored it for six months. Several colleagues also thought it looked benign. But the derma-tologist in me knew that if it was changing, even though it wasn’t very big, it had to be removed. I was shocked to find out it was melanoma! Thankfully, it was caught in the earliest stage and removed completely. I still keep a close eye on my skin and remove any even remotely suspicious-looking moles. Do a fullself-skin exam monthly and report any changes to your doctor right away. Although one American dies of melanoma every hour, it’s almost 100 percent curable when detected early.”
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Virtua Ostomy Outpatient Clinics
Jane N. Johnson, CWOCN, MSN, APRN, ANP-C and Kathy K. Judge ACNS-BC, NP-C, NEA-BC, CWON-AP, have advised that Virtua has two ostomy outpatient clinics, one in Virtua, 175 Madison Avenue, Mt. Holly headed up by Jane, and one in the Virtua Berlin Wound Healing Center, 100 Townsend Avenue, Berlin headed up by Kathy . These medical professionals are available to help pa-tients that have problems with their ostomy appliances or other related medical issues. Jane , at the surgeons request can also stoma site pre-op patients. Appointment to see either Jane or Kathy can be obtained by calling 856-322-3222. :
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Hospitalization Guidelines for Ostomy Patients by Dr. Lindsay Bard; via North Central Oklahoma Ostomy Outlook
It is important for a person with an ostomy to know how he/she should be handled differently than someone without an ostomy when you need to be hospitalized. It’s up to you. It is very important to communicate to medical personnel who take care of you, including every physician that treats you, that you have an ostomy, and what type of ostomy you have. Here are some rules to help you cover the details:
Rule 1 – The Cardinal Rule! If you feel something is being done or going to be done to you that might be harmful, refuse the pro-cedure. Then explain why to the medical personnel, especially your physician. They will then decide with you if the procedure will actually be in your best interests.
Rule 2 – Supplies Bring your own supplies to the hospital. Never assume the hospital will have the exact pouching sys-tem or irrigation system you use. Most hospitals have some supplies available. These are used for emergency situations.
Rule 3 – Laxatives & Irrigations Follow the points below concerning laxatives or irrigation practices, according to which type of osto-my you have. Medical personnel often assume all stomas are colostomies. But, of course, practices vary among the various types of ostomies.
A transverse colostomy cannot be managed by daily irrigations. The only colostomy that can be managed by irrigations is the descending or sigmoid colostomy. However, sigmoid or low colosto-mies do not have to be irrigated in order for them to function; many people with sigmoid colosto-mies prefer letting the stoma work as nature dictates. If you do not irrigate your colostomy, let the fact be known to your caregivers. If your physician orders your bowel cleared, irrigate your own co-lostomy and do not rely on others to do this procedure since there is a strong possibility that those caring for you will not know how to do it … and to be on the safe side, bring your own irrigation set to the hospital.
If you have an ileostomy or urinary diversion ostomy, never allow a stomal irrigation as a surgical or x-ray preparation. Remember that laxatives or cathartics by mouth can be troublesome for people with colostomies. For people with ileostomies, they can be disastrous—people with ileostomies should always refuse them. A person with an ileostomy will have diarrhea, may become dehydrated and go into electro-lyte imbalance. The only prep needed is to stop eating and drinking by midnight the night before surgery. An IV should be started the night before surgery to prevent dehydration.
Rule 4 – X-rays X-rays present special problems for people with ostomies, again, differently managed according to ostomy type: A person with a colostomy must never allow radiology technicians to introduce barium into your stoma with a rectal tube. It is too large and rigid. Take your irrigation set with you to x-ray and explain to the technicians that a soft rubber or plastic catheter F#26 or 28 should be used to en-ter the stoma. Put a transparent pouch on before going to x-ray. Have the technician or yourself place the rubber or plastic catheter into your stoma through the clear plastic pouch. When enough barium is in your large bowel for the x-ray, the rubber or plastic catheter can be withdrawn and the open end of the pouch closed. The pouch will then collect the barium as it is expelled and can be emptied neatly after the procedure. Once the x-rays are completed, irrigate normally to clean the remaining barium from your colon. This will prevent having to take laxatives by mouth after the procedure. (Article continued on page 9)
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2016 UOAA Mid-Atlantic Regional Conference
PAINT YOUR FUTURE April 29, 30 and May 1, 2016
Holiday Inn Washington Dulles 45425 Holiday Drive, Sterling, VA 20166
Hosted by the Ostomy Support Group of Northern Virginia Bill Hawes contact .... [email protected]
Notice: It is expected that REGISTRATION will be open on our website (www.osgnv.org) in the November-December timeframe. As soon as we get more information we will pass it along.
RATES FOR THE HOTEL:
$79.00 (+13% tax) per night for a king bed; $85.00 (+ 13% tax) for two double beds
(these rates are good for the nights of April 27 through May 2).
REGULAR REGISTRATION
$40 per person Spouse/Companion OSGNV Member $35 per person
Banquet $40 per person
TENTATIVE SCHEDULE Friday, April 29, 2016
4:00 PM - 7:00 PM Stoma Clinic 4:00 PM - 9:00 PM Registration 6:30 PM - 9:00 PM Informal Reception
Sunday, May 1, 2016
7:30 AM - 8:45 AM Breakfast 9:00 AM -12:00 Half Day Beverages 9:00 AM - Noon ASG'S in Action
Saturday, April 30, 2016 6:30 AM - Noon Registration 7:00 AM - 8:15 AM Breakfast Buffet 8:00 AM - 9:00 AM Exhibit Set-Up 9:00 AM - 5:00 PM All Day Beverages 9:00 AM - 5:00 PM Stoma Clinic 9:00 AM - 4:00 PM Exhibits 8:30 AM - 9:30 AM Opening Session/Program/Speaker 9:30 AM - 10:15 AM Morning Break/Exhibits 10:30 AM -11:30 AM Workshops 1-3, Titles TBD 11:45 AM -1:30 PM Lunch/Speakers/Exhibits 1:45 PM - 2:45 PM Workshops 4-6, Titles TBD 2:45 PM - 3:30 PM Afternoon Break/Exhibits 3:30 PM - 4:30 PM Workshops 7-9, Titles TBD 4:45 PM - 5:45 PM Workshops 10-12/Breakout Groups-Rap Sessions 7:00 PM - 10:00 PM Banquet (Dinner Dance with a DJ)
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A person with an ileostomy may drink barium for an x-ray procedure, but never allow anyone to put barium into your stoma.
A person with a urostomy can have normal GI x-rays without any problems. Never allow anyone to put barium in your stoma. At times, dye may be injected through a soft plastic catheter into a urostomy for retrograde ureter and renal studies, often called an ileo-loop study. The same study may be per-formed on a urostomy patient with a Kock pouch. The dye will be injected via a large syringe; this can be a very painful procedure if the dye is not injected very slowly. Even 50 ml will create a great deal of pressure in the ureters and kidneys, if injected rapidly. Remember to request that the injection be done slowly.
For anyone who wears a two-piece pouching system: you may remove the pouch just prior to the insertion of the catheter, and replace the pouch after the procedure is completed. If you wear a one-piece pouching system, bring another with you to the x-ray department to replace the one removed for the procedure. In the event you are incapacitated, and cannot use your hands to replace your pouching system, request that a WOC nurse in the hospital be available to assist you. The WOC nurse will be able to replace the skin barrier and pouch for you before you leave the x-ray department.
Rule 5 – Instructions Bring with you to the hospital two copies of instructions for changing your pouching system and/or ir-rigating your colostomy. Provide one to your nurse for your chart and keep one with your supplies at bedside. If you bring supplies that are not disposable, mark them “do not discard.” Otherwise, you may lose them.
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A Holiday Idea Ken Aukett, INSIGHTS Editor in conjunction with Irma (aka “Wild Woman”)
This past month I received an email from one of our members who suggested an off-beat way for us to show our Holiday spirit. Just take one of your ostomy appliances and other ostomy related items you need and make a Holiday decoration out of them. Give your work of art a name, or even write a short story about it. Show your originality … the sky is the limit. Bring your creations to our December 21st meeting where they will be put on display. A picture will be taken of these creations that will be placed on our website and featured in the January 2016 issue of INSIGHTS. And who knows, Santa may even have a prize or two in his bag for the ones our group likes the best! @@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@
Have You Checked Out the OASNJ New Website ??? Ken Aukett, Insights Editor
www.ostomygroupsnj.org
Just checking to see if you have visited OASNJ’s new website yet?: www.ostomygroupsnj.org This has been made possible through the outstanding work of our “webmaster”, Stephanie Urzi, and her husband Chris. Take a bow folks!!
Stephanie wants us to know that adding information to our website and keeping it updated is an on-going under-taking and she needs your help. She has the capability of linking to any social media sites you think would be of interest to our members that we should be promoting ... All we have to do is identify them for her. Stephanie’s email address is [email protected] She is also interested in having e-copies of pictures of the group or other shots of you, as an ostomate, in action, doing fun things! Any testimonials or stories that you would like to add are also most welcome along with any videos that will help people who come to our site learn how to live life to the fullest with their new red, squishy, abdominal friend. Our website will also have an advertising page that will include information about the full assortment of products and distributors out there who are working to make our lives better.
So don’t be shy, contact Stephanie with your ideas or information to make this work in progress a little more beneficial to our ostomy community. This is a joint effort, lets make it a good one.
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~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ TO BECOME A MEMBER OF THE ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ OSTOMY ASSOCIATION OF SOUTHERN NEW JERSEY
Membership in the Ostomy Association of Southern New Jersey is open to all persons in-terested in ostomy rehabilitation. Membership dues are only $10.00 per year.
PLEASE PRINT THIS INFORMATION:
NAME: ________________________________________________ PHONE: ____-_____-_______
ADDRESS: ________________________________________ EMAIL: ________________________
CITY: _________________________________ STATE: _______ ZIPCODE: ____________________
To help us complete our records, please answer the following:
Please check if you have/are: ____ Colostomy ____ Continent Ileostomy ____ Other: ___________________________ ____ Ileostomy ____ Continent Urostomy ____ Spouse/partner/family member ____ Urostomy ____ Ileo-anal Pull Thru ____ Friend
Date(s) of Ostomy Surgery: ________________________________ Date of Birth: ____________
Make check payable to “OASNJ” and mail to: Ken Aukett, P.O. Box 318, Collingswood, NJ 08108
