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IPRO ESRD Network of the
South Atlantic Patient Advisory Committee
(PAC) Facility Representative
Orientation Call
• The webinar will begin momentarily!
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Patient Advisory Committee (PAC)
Facility Representative Orientation
Monday, March 21st 2019
Housekeeping Rules
p. 3
All lines are currently muted except for the presenter.
There will be breaks and lines will be unmuted for open discussion and questions:
• Mute your own phone if you are not speaking to eliminate background noise
• Be prepared for sharing and actively participating in the open discussion
• Be mindful of others and allow one person at a time to speak.
• Be forthcoming in discussing obstacles and barriers in achieving PAC goals
• Stay open-minded to strategizing new ideas or recommendations
• Share your thoughts and suggestions!
Housekeeping Rules
p. 4
You can submit questions and comments via chat or Q&A at any time
Let’s Practice!
What are you doing for national kidney month?
Agenda Topics
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• Network Overview
• Patient Advisory Committee (PAC) Overview
• Quality Improvement – Why is it important?
• How YOU can be the difference!
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Network
Background
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ESRD Networks
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ESRD Network Structure
Centers for Medicare & Medicaid Services (CMS)
• Sets goals to improve the care of patients in ESRD
18 ESRD Networks
• Works with facilities and patients in their region to
design programs to help reach regional and
national improvement goals
ESRD National Coordinating Center
• Works with ESRD Networks, CMS, and Patient
Subject Matter experts to support the goals and
share information on a national level
Centers for Medicare & Medicaid Services
18 ESRD Networks
ESRD National Coordinating Center
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233 Facilities
18,310 Patients
5 Transplant Ctrs
155 Facilities
10,219 Patients
1 Transplant Ctrs
368 Facilities
21,403 Patients
4 Transplant Ctrs
IPRO ESRD Network 6 Service Area
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Role of the Network
• Improve quality of care for ESRD patients
• Provide assistance to ESRD patients and providers
• Encourage patient engagement
• Evaluate and resolve patient grievances
• Collect data to measure quality of care
• Support emergency preparedness and disaster
response
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Network Staff Patient Services Department
Chanell McCain
Patient Services Director
Jenna Huff
Community Outreach
Coordinator
Network Staff Quality Improvement Department
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Alexandra Cruz
Quality
Improvement
Coordinator
Loretta Ezell
Quality
Improvement
Director
Michelle Lewis
Quality
Improvement
Coordinator
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Patient Advisory
Committee (PAC)
Chanell McCain
Patient Services Director
Jenna Huff
Community Outreach Coordinator
Patient Advisory Committee (PAC)
The PAC is an organized group of patients and/or family members
who volunteer their time to represent the Network in their dialysis or
transplant facility, and also represent their facility to the Network
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Tier 1 PAC Member Roles and
Responsibilities
Individuals who are interested in learning about
becoming better advocates for their care.
Ideal for those who are interested in learning more
about ESRD and the ESRD Network.
They will be encouraged to:
• Take an active role as a member of their healthcare team
• Educate themselves about renal disease and treatment options
• Take advantage of additional training to increase their level of
involvement with the Network.
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Tier 2: PAC Facility Representatives
Roles and Responsibilities
Works with their facility and the Network to focus on key areas
that are important to improve the health and safety of kidney
patients at their facility.
Provides a link between patients and facility staff to encourage
other patients to take an active role in their healthcare by:
• Share information provided by the Network or facility with other patients
• Provide the patient perspective by participating in quality improvement
activities and share your feedback with facility leadership
• Collect ideas from other patients on ways to educate and support
patients, providing this information to the facility and the Network
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Tier 3: PAC Advisors Roles and
Responsibilities:
Support PAC Facility Representatives and are available
to answer questions and give advice as needed.
They may also function as Network board
representatives or members of national patient groups to:
• Provide the patient perspective in local and national QI projects
• Coordinate social or educational functions aimed at increasing
awareness of ESRD
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Quality Improvement
Why is it important?
Loretta Ezell
Quality Improvement Director
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What are quality measures and why are
they important?
CMS defines Quality Measures as:
Tools that help us measure or quantify healthcare processes,
outcomes, patient perceptions, and organizational structure and/or
systems that are associated with the ability to provide high-quality
health care and/or that relate to one or more quality goals for health
care.
Simply put, this means that systems are put in place to ensure:
The Right Care for Every Patient Every Time.
p. 20
• Reducing the number of patients who have a blood stream
infections
• Reduce the number of patients using a long term catheter access
• Increase patient awareness about home treatment options
• Increase patient awareness of transplant treatment options
• Increase patient awareness of vocational rehab resources to assist
with returning to work
CMS Quality Improvement Focus Areas for 2019
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How Coaches help Patients Get
Involved
Patient Engagement
Activity
QAPI, Support Group, Peer Mentorship
Program
Share information with other patients and their family/caregiver
Patient Facility Representative
Project Lead
Patient Health Coach
Provide feedback to facility leadership
Working Together to Improve Quality
Improved patient experience of care & quality of life
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Increase Rates of Patients Dialyzing at
Home Criteria:
• Identify 30% of dialysis facilities to participate (231
Facilities)
Network/Facility Goal:
• Demonstrate a 2 percentage point improvement in the
natural trend of patients using a home modality
National Goal:
• By 2023 increase the number of ESRD patients dialyzing at
home to 16% from the 2016 national average of 12%
12.0% 16.0% 5 Year
Goal
2
3
Current Dialysis Treatments types in the United States
88% In-Center Dialysis
10% Peritoneal Dialysis
2% Home Hemodialysis
2016 Chronic Kidney Disease (CKD) Centers for Medicare & Medicaid Services (CMS).
The
current
national
average of
patients
dialyzing
at home is
only 12%
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Home Dialysis Facts
• It is a requirement by Medicare that
ESRD patients receive treatment
option education at least once per
year.
• When surveyed 32% of patients
responded they were not informed or
educated on all treatment options.
• Treatment options include:
• In-Center Hemodialysis
• Home Treatment – Peritoneal
Dialysis
• Home Treatment – Home
Hemodialysis
• Transplant
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Increase Rates of Patients on Transplant
Waitlist
Criteria:
• Identify 30% of dialysis facilities to participate (231 Facilities)
Network/Facility Goal:
• Demonstrate a 2 percentage point improvement in the natural trend
of patients on the waitlist or being evaluated for living donor
National Goal:
• By 2023 increase the number of ESRD patients on the transplant
waitlist to 30% from the 2016 national average of 18.5%
18.5% 30% 5 Year
Goal
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Transplant Statistics
750,000 people affected by ESRD in the US
100,000 ESRD patients on waitlist
UCSF- The Kidney Project -2016
20,161 ESRD patients transplanted
The current
national
average of
patients on
the transplant
waitlist is only
18.5%
2
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Kidney Transplant Options
The benefits of transplantation extend to ESRD patients regardless of age,
gender, or ethnicity, or conditions like diabetes and hypertension.
Transplant Centers have different criteria for determining waitlist eligibility
Benefits
• Improved health and quality of life.
• Greater freedom (no dialysis treatments)
• Increased energy levels
• Fewer diet restrictions
Considerations
• Surgery recovery
• Possible kidney rejection
• Anti-rejection medication needed to maintain transplanted kidney
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Reducing the rates Blood Stream Infections
Criteria:
• Identify 50% of dialysis facilities to participate (376 Facilities)
Network/Facility Goal:
• Demonstrate a 20% or greater reduction in the rates of blood
stream infections
National Goal:
• By 2023 reduce the rates of blood stream infections in dialysis
patients by 50% that occurred in 2016
50%
Reduction
5 Year
Goal
Reducing Blood Stream Infections
• Infections are the second leading
cause of death in patients with ESRD
• The majority of blood stream
infections are catheter related BSIs
• Reducing BSIs reduces
hospitalization and improves quality
of life
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Reducing the rates Long Term Catheters
Criteria:
• Identify 20% of dialysis facilities with the highest infection
rates to participate
Network/Facility Goal:
• Demonstrate a 2% or greater reduction in the rates of long
term catheters
National Goal:
• By 2023 achieve less than 10% of long term catheter
accesses in dialysis patients
10.6% <10% 5 Year
Goal
p. 31
Advantages and Disadvantages of Vascular
Access Types
Choosing a vascular access is
important, it is a Lifeline for a Lifetime
Benefits BSI and Long Term
Catheter Reduction
The benefits of BSI and Long term catheter reduction
include:
BSI Reduction
• Reduced hospitalizations
• Improved quality of life
LTC Reduction
• Fewer catheter related infections
• Better dialysis clearance
• Freedom to shower and swim
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3
3
Population Health Focused Pilot QIA (PHFPQ) Vocational Rehabilitation
ESRD Beneficiaries between the
ages of 18 and 54 may be eligible to
receive free services including:
• Job training
• Career counseling
• Vocational rehabilitation
• Job placement
• Ongoing support services
necessary to achieve a work goal
Questions? Comments?
p. 34
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Patient Facility
Representatives
How you can make a
difference!
Chanell McCain
Patient Services Director
Jenna Huff
Community Outreach Coordinator
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Facility participation in Quality
Improvement:
Your facility is participating in an ESRD Network Quality Improvement
project in one of these areas
To reach their quality improvement goal and the improvement goals at a
national level, we must partner with patients like you!
Your facility has committed to engaging patients and has identified you as
their representative to work together in one of the following focus areas:
• Patient Peer Mentorship
• Creating a Patient Support Group
• Incorporating Patient Representation in the facility
Quality Assurance Performance Improvement (QAPI)
meetings
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Working together to improve quality
Patient Engagement
Strategy
Patient Facility Representative
Project Lead
Patient Health Coach
Share Information with other Patients
Provide feedback to facility leadership
p. 38
Patient Peer Mentorship Program
Peer mentoring provides
support and increases the
confidence that many new
patients need, and offers
patients access to someone
who has been through
the similar experiences and
can understand their concerns
one on one.
p. 39
Training Modules
• Mentoring to Support Choices
• Talking Effectively with Another
Patient
• Discussing Home Dialysis as an
Option
• Discussing Transplant as an
option
• Helping Peers Plan for a
Vascular Access
E-University
• Online training platform
Peer Mentor Training Program
p. 40
Training courses are designed to
help patients to:
Learn how to become a
leader at the facility and the importance of
patient engagement.
Access educational
resources on kidney care
choices.
Understand how with
communicate with peers and
keeping information confidential.
Understand peer mentoring and how their role as a peer
will make a difference.
Patient and Family Support Groups
An opportunity for people with kidney disease
to meet on a regular basis to:
• Share common concerns and issues
• Provide support and encouragement
• Learn about kidney disease research,
treatment options and services
• Discuss coping skills due to the effects of
kidney disease
• Empower each other to take an active role in
managing their care
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Popular Topics for Kidney Support
Group Meetings
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• Modality Choices
• Minimizing Problems of Long Term Dialysis
• Going Back to Work
• Coping with the Renal Diet
• Learning How Others Have Successfully Lived with ESRD
• Communicating with Your Physician
• Planning vacations
• Holiday Recipes
• Travel
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Quality Assurance and Performance
Improvement (QAPI)
QAPI is a data-driven, proactive approach
to improving the quality of life, care, and
services for patients in your facility.
Involves members at all levels of the
organization to:
• identify opportunities for improvement
• address gaps in systems or processes
• develop and implement an improvement or
corrective plan
• continuously monitor effectiveness of
interventions.
Patient or Family Member
Medical Director
Nephrologist
Social Worker
Special Project Leads
Dietician
Registered Nurse
Getting involved in QAPI
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Patients have unique skills and perspectives
that other members of the team do not….
Ideal QAPI Patient Facility Representatives
are those who can:
• Demonstrate interest in partnering with the
facility and providing constructive feedback
• Work well with staff and other patients
• Are able to share insights about their
experiences in ways that others can learn
from.
• Listen well and respect the opinions of
others.
• Are comfortable speaking with leadership.
Explains the patient
role in QAPI
Common Goal: Share information
with others at your facility
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• Become familiar with educational
resources provided by your facility
or available from the ESRD
Network
• Share this information with others
at your facility
• Encourage others to be active in
their healthcare and talk with their
healthcare team about their options
Questions? Comments?
p. 46
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Next Steps
Chanell McCain
Patient Services Director
Jenna Huff
Community Outreach Coordinator
How do I get started?
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• Review the Patient Advisory
Committee Welcome Booklet
• Meet with your facility quality
improvement project lead,
social worker, or patient health
coach
• Discuss your focus area and
ways that you may be able to
partner with the facility to
achieve focus area goals
How do I get started?
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• Work with your facility to create
an education station
• Education Station Tips:
• Reserve a space in the lobby
• Develop a mobile resource cart
• Use colorful, eye catching
materials
• Display patient success stories
throughout the unit
• Use balloons, flags or signs to
draw attention to your space
Ridgeland Dialysis
Share your success and challenges
with the ESRD Network
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The ESRD Network will contact you either by phone,
text or email depending on your preference and ask
you to respond about your participation in activities at
your facility and to invite you to follow up meetings.
The phone number will be: 1-800-524-7139
The text number will be: 1-866-708-4369
The email address will be: [email protected]
Mark Your Calendar for future calls!
51
The Patient Advisory Committee meets every other month to
exchange ideas, discuss challenges and learn about our
progress in achieving our state, regional, and national goals.
List of PAC Meeting Dates:
Wednesday, May 15th from 5:00-6:00pm
Wednesday, July 17th from 5:00-6:00pm
Wednesday, September 18th from 5:00-6:00pm
• Please make sure you have signed the patient confidentiality form. We
must have this on file to invite you to future meetings.
p. 52
ESRD Network of the South Atlantic (Network 6) Staff
Shannon Wright Executive Director [email protected] Emily Watson Administrative Coordinator [email protected] Loretta Ezell Quality Improvement Director [email protected] Michelle Lewis Quality Improvement Coordinator [email protected] Alex Cruz Quality Improvement Coordinator [email protected]
Chanell McCain Patient Services Director [email protected] Jenna Huff Community Outreach Coordinator [email protected] Jaya Bhargava Operations Director [email protected] Ben Williams Data Analyst [email protected] Jasmine Taborn Data Coordinator [email protected]
Questions? Comments?
p. 53
Presentation Template
Draft for Review
April 6, 2017
p. 1
Corporate Headquarters
1979 Marcus Avenue
Lake Success, NY 11042-1002
www.ipro.org
For more
information:
Website: https://network6.esrd.ipro.org/
Email Address: [email protected]
Patient Toll Free Number: 800-524-7139
