Meaningful Use and Personalized Patient Education:

Consumer Health Information Activities at the National Library of Medicine

James J. Cimino, MDChief, Laboratory for Informatics Development

NIH Clinical Center and the National Library of Medicine

Disclaimer

This presentation is not intended to promote any commercial entity, including healthcare providers, knowledge resources or children’s entertainment.

PersonalHealth

Records

Personal Health Records

• State of the art in PHRs

Personal Health Records

• State of the art in PHRs

• NLM Personal Health Record

How does it differ from other PHRs? How does it differ from other PHRs?

• Single web page for efficient data entry Single web page for efficient data entry

• Generates input forms “on the fly”Generates input forms “on the fly”

• Can capture almost any kind of structured dataCan capture almost any kind of structured data

• Aims to code all key facts with US standardsAims to code all key facts with US standards

• Intelligent, Intelligent, patient-specificpatient-specific reminders reminders

Personal Health Records

• State of the art in PHRs

• NLM Personal Health Record

PersonalHealth

Records

ElectronicKnowledgeResources

Electronic Knowledge Resources

• MedlinePlus

MedlinePlus

• Consumer & patient health• English & Spanish• Coverage:

– Diseases and conditions– Health and wellness– Drugs, herbs, and supplements– Videos, interactive tutorials, etc.

• Stringent quality criteria

~1,000 drugs100 supplements~1,000 drugs100 supplements

172 tutorials78 anatomy videos112 surgery videos5 Sp surgery videos

172 tutorials78 anatomy videos112 surgery videos5 Sp surgery videos

>40 languages>250 topics>3,000 links

>40 languages>250 topics>3,000 links

~ 3,500 encyclopedia articles> 2,000 images~ 3,500 encyclopedia articles> 2,000 images

15-20 news stories daily15-20 news stories daily

1,445 links to ClinicalTrials.gov1,445 links to ClinicalTrials.gov

885 English856 Spanish885 English856 Spanish

http://www.nlm.nih.gov/mobile/

Electronic Knowledge Resources

• MedlinePlus

• Genetics Home Reference

Genetics Home Reference Genetics Home Reference

• Website of genetics information for the publicWebsite of genetics information for the public• Currently more than 1,400 summaries Currently more than 1,400 summaries

– Incidence and prevalenceIncidence and prevalence– Gene/disease relationshipsGene/disease relationships– Common vocabulary terms, definedCommon vocabulary terms, defined

• Background information about geneticsBackground information about genetics– Handbook: Handbook: Help Me Understand GeneticsHelp Me Understand Genetics– Glossary of genetics termsGlossary of genetics terms

Electronic Knowledge Resources

• MedlinePlus

• Genetics Home Reference

• Clinical Trials.gov

ClinicalTrials.gov

• Access to data about individual clinical trials

• 97,835 registered trials from 7,961 Sponsors

• 2,467 Results entries from 449 Sponsors

• 43% with associated publications

• Powerful search tools

• Users can identify and track trials and outcomes

Electronic Knowledge Resources

• MedlinePlus

• Genetics Home Reference

• Clinical Trials.gov

• Infobot

39

Infobot

• Augment an EMR with pertinent information from evidence-based resources

• Provide access to key facts needed to support clinical decision making and evidence based plans of care

Inside of CRIS

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Electronic Knowledge Resources

• MedlinePlus

• Genetics Home Reference

• Clinical Trials.gov

• Infobot

PersonalHealth

Records

ElectronicKnowledgeResources

Infobuttons

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Infobuttons

• Context-specific links out to information resources

Infobuttons

• Context specific links out to information resources

• Resources that respond to specific information needs

MedlinePlus Connect for DiagnosesMedlinePlus Connect for Diagnoses

Spanish MedlinePlus Connect for DiagnosesSpanish MedlinePlus Connect for Diagnoses

MedlinePlus Connect for Medications

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Infobuttons

• Context specific links out to information resources

• Resources that respond to specific information needs

PersonalHealth

Records

ElectronicKnowledgeResources

LITEInfobuttons

?

i

Clinical Applicationwith Infobutton Link

UserPatient

Healthcare Institution

InfobuttonManager

Page of Links

Infobutton ManagerKnowledge Base

The Librarian Infobutton Tailoring Environment

(LITE)

Institutional Librarian(or other LITE users)

PersonalHealth

Records

ElectronicKnowledgeResources

LITEInfobuttons

?

Thanks to…

• Thomas Graf, Geissinger Health System

• Louise Lang, Kaiser Permanente

• Clem McDonald, NLM

• Swapna Abhayankar, NLM

• Joyce Backus, NLM

• May Cheh, NLM

• Deborah Zarin, NLM

• Dina Demner Fushman, NLM