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Keeping Service User Involvement in Research Honest
Dr Hugh McLaughlin
University of [email protected]
Levels of Involvement
Tokenism
Consultation
Collaboration
Service User Controlled
Profile required
Claimed benefits for research
Common languageIdentify questions overlooked, prioritizingUser-friendliness of toolsRange and quality of data enhanced YP raise issues with other young people they would not raise with an adultSelf-esteem, confidence and employabilityEnergyPresentation of results
Before the Research Begins
Whose idea was it?
Recruitment –same old suspects?
Informing-for-consent
Training
Safeguarding
Morally active researcher
Over promising
Reward and recognition
Issues During the Research
Support needs of service users
Confidentiality
Researcher discomfort
Identity- Service user co-researcher or co- researcher who is also a service user
Knowledge Claims
• Favours qualitative• ‘No research about
us without us’• Standpoint position• Service user peers• Same or different
criteria of validity• Experience plus
research tools
Conclusions
Inadequate attentionOutcomes not just processLess rhetoric more critical analysisNeither underclaim nor overclaimKeep service user involvement in research honest
Final thoughts
If we accept that differing types of Knowledge and expertise contribute to a full understanding , then no one has privilged ‘insider’ knowledge, but everyone has differing knowledge from which everybody can learn. Herein lies the nub of the issue. Nolan et al. 2007:190
