KETOGENIC DIETARY THERAPIES Course Contents and Mentors · Case stud eamples Transition EIO IE Panel 1pm-2pm EOEIC LCH 2 3 KETOGENIC DIETARY THERAPIES COURSE CONTENTS AND MENTORS

KETOGENIC DIETARY THERAPIESCourse Contents and Mentors

19th – 21st JUNE 2018Crowne Plaza Felbridge London Road • East GrinsteadWest Sussex • RH19 2BH England • Uk

Ketocollege_Programme_2018AM.indd 1 09/05/2018 12:34

MATTHEW’S FRIENDS KETOCOLLEGE | COURSE CONTENTS AND MENTORS

DAY 1 - 27 JUNE

DAY 1 - MEDICAL MASTERCLASS

9.30 - 10am REGISTRATION AND COFFEE

10 -10.15am Welcome from MF and MF Medical Board | Helen Cross

SESSION 1: EPILEPSY CHAIR – HELEN CROSS

10.15-10.45am Introduction to ketogenic therapy - history and mechanisms of action Helen Cross• History of the diet • Mechanisms of action • Brief introduction to traditional ketogenic diets and modified variants • Clinical trials update including efficacy data• Brief mention of conditions other than epilepsy which may benefit from ketogenic

therapy (NB. neuro-metabolic disease and cancer will be covered in separate sessions

10.45-11.30am Therapeutic options for intractable paediatric epilepsy – When to use dietary treatment and which diet to choose Eric Kossoff• Treatment options for intractable epilepsy : when to consider diet?• Choice of diet (expanding content of first talk)• Indications and contra-indications for ketogenic therapy• New uses in epilepsy (FIRES, absence, JME, status epilepticus)• The concurrent use of ketogenic therapy and other medical treatments (VNS, AEDs)• Weaning of AEDs when on ketogenic therapy• Epilepsy surgery and ketogenic therapy • Special considerations when treating infants

11.30-11.45am COFFEE BREAK

11.45-12.30pm Ketogenic therapies for adultsMackenzie Cervenka• Literature overview• Efficacy and other benefits• Dietary protocols and practical considerations, including pregnancy

and Status Epilepticus. • Health and well being• Case study examples• Transition

12.30 – 1pm QUESTION TIME | Panel

1pm-2pm KETOGENIC LUNCH

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KETOGENIC DIETARY THERAPIESCOURSE CONTENTS AND MENTORS

19TH – 21ST JUNE 2018CROWNE PLAZA FELBRIDGE, LONDON ROAD, EAST GRINSTEAD,

WEST SUSSEX, RH19 2BH, ENGLAND, UK

Audience:Neurologists, Neuro-oncologists, Paediatricians, General Practitioners,

Dietitians & Dietetic Assistants.

RCPCH CPD APPLIED FOR

Certificates of Attendance will be given out at the end of the meeting upon completion and receipt of the evaluation form.

Attendance at KetoCollege does NOT provide a qualification to administer ketogenic therapy.

Ketogenic therapies always require strict medical supervision and should only be prescribed by a registered dietitian working with a medical team.

PROGRAMME ENDORSED BY ERN EPICARE

SPONSORED BY:

Ketocollege_Programme_2018AM.indd 2-3 09/05/2018 12:34

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DAY 1 - MEDICAL MASTER CLASS | CHAIR - PROFESSOR HELEN CROSS

9.30 - 10.00am REGISTRATION AND COFFEE

10.00 - 10.05am Welcome and Housekeeping | Emma Williams

10.05 - 10.45am Introduction to ketogenic therapy | Helen Cross • History of diet

• Efficacy Data

• Mechanisms of Action

• Non-Epilepsy Uses

• Future of Ketogenic therapy

• QUESTION/DISCUSSION TIME

10.45 - 11.45am Therapeutic Options for intractable paediatric epilepsy - When to use diet and which diet to choose | Eric Kossoff• Treatment options for intractable epilepsy: when to consider diet?

• Choice of diet

• Indications and contra-indications for ketogenic therapy

• New uses in epilepsy (FIRES, absence, JME, status epilepticus)

• The concurrent use of ketogenic therapy and other medical treatments (VNS, AEDs)


11.45am - 12.45pm Ketogenic Dietary Therapies for Adults | Mackenzie Cervenka• Literature overview

• Efficacy and other benefits

• Dietary protocols and practical considerations, including pregnancy and Status Epilepticus.

• Health and well being

• Case study examples

• Transition


12.45pm – 1.45pm KETOGENIC LUNCH

CHAIR - PROFESSOR ERIC KOSSOFF

1.45 – 2.30pm Ketogenic Dietary Therapies and AED’s | Eric Kossoff• AEDs and ketogenic therapy - risk of interactions

• AED weaning during diet therapy and when

• Why you need to work alongside a managing neurologist


2.30 – 3.00pm Management of emergency situations (illness, status, ICU) | Archana Desurkar• Management of illness in the patient on ketogenic therapy

• Status epilepticus and initiation of ketogenic therapy

• Intensive care situations

• General anaesthesia and surgery

• Case study examples


3.00 – 3.30pm Psychological and behavioural assessments | Anita Devlin• Assessing quality of life and psychological/behavioural changess


3.30 – 4.00pm TEA BREAK

4.00 – 5.30PM CONCURRENT SESSIONS: CHOOSE ONE AT TIME OF BOOKING

SESSION 1: Metabolic Disorders – Glut 1 Deficiency and Pyruvate Dehydrogenase Deficiency | Led by: Joerg Klepper • Background to GLUT 1 DS and PDHD• Ketogenic therapy in neurometabolic disease - when to use, which diet, literature update• Case study examples• How treatment and condition changes from childhood to adulthood• QUESTION/DISCUSSION TIME

SESSION 2: Neuro-oncology | Chair: Catherine Zabilowicz

• Talk 1 - Ketogenic Diet and Brain Tumours | Nelofer Syed

• Talk 2 - Dietary Factors to consider for Neuro-oncology | Sue Wood

• Talk 3 - The US Experience of treating Brain Tumours | Mackenzie Cervenka

FREE EVENING FOR DELEGATES

DAY 1 - 19TH JUNE 2018

MATTHEW’S FRIENDS KETOCOLLEGE | COURSE CONTENTS AND MENTORS MATTHEW’S FRIENDS KETOCOLLEGE | COURSE CONTENTS AND MENTORS


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DAY 2 - 20TH JUNE 2018


DAY 2 - DIETETIC, NURSE AND DIETETIC ASSISTANTS MASTERCLASS CHAIR - HELENA CHAMPION RD

9.00 - 9.05am Welcome and housekeeping

9.05 - 9.30am Preparing a family for ketogenic therapy and what to expect from them | Emma Williams • What are you dealing with when a family comes through the door

• How to prepare them for ketogenic therapy

• What to take into consideration

• Building confidence for the family AND the patient


9.30 – 10.00am Considerations of type of ketogenic therapy to use with each patient | Susan Wood • Pre-diet evaluations

• Overview of each diet, comparing the protocols and which to choose


10.00 - 10.30am COFFEE

CHAIR - LINDA AIR RD

1.30 – 3.30pm MCT Workshop and cookery demonstration Led By Dr. Elizabeth Neal RD and Dietetic Mentors• How the MCT diet is calculated and when to use it.

• Fine Tuning

• Case Studies

• Cooking demonstration

3.30 – 4.00pm TEA

4.00 – 4.20pm EKM Demonstration and tutorials (can be booked before meeting) | Bruce Carroll• Demonstration of EKM

• Different platforms available to use it

• How to change existing recipes

• How to get it for your centre and your families


4.20 – 5.00pm Ketogenic Dietary Therapy for Infants | Helena Champion• Using classical diets with infants

• Special considerations in this age group including initiation and monitoring

• Feeding methods including use of breast milk and weaning into solid food


5.00pm CLOSE OF THE DAY

7.30PM - EVENING RECEPTION/DINNER AT THE HOTEL

10.30AM - 12.30PM CONCURRENT SESSIONS: CHOOSE ONE AT TIME OF BOOKING

SESSION 1: Classical Diet Workshop and Cookery Demonstration Led by Dr. Elizabeth Neal RD and Dietetic Mentors• How to Calculate the classical diet

• Fine-tuning

• Case studies

• Cookery demonstration with MF cook – Mo

SESSION 2: Nurses and Dietetic Assistants workshop Led by: Lucy Bellis, Vicki Whitely RD, Val Aldridge and Catherine Zabilowicz• Ketone Testing – Bloods, Urine and Breath

• Monitoring

• Recipe manipulation

• Family support

12.30 – 1.30pm LUNCH


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Learning Aim:By the end of this course delegates will have an understanding of ketogenic dietary therapies, how and when ketogenic therapies should be used, how they can be safely implemented and monitored in their patients.

Delegates will also have an understanding of how different ketogenic therapies are used in different patient groups. Delegates will be given all course materials to utilise in their own ketogenic clinics.


CHAIR - HELEN GROSSI RD

2.00 - 2.45pm Switching and/or weaning KDT | Vanessa Appleyard• Switching to a different type of diet or discontinuing diet therapy

• Once weaned off the diet, is it worth revisiting again in the future if needed?

2.45 – 3.30pm Tube feeding, blended diets and parenteral nutrition | Vicki Whitely • Enteral feeding with case study examples

• Basics of managing TPN in a ketogenic diet patient

• Managing Blended ketogenic diets

3.30 – 4.00pm What makes a good ketogenic centre? | Eric Kossoff• Which patients are the best ones to start off with

• How to build confidence

• Team work

• Working with the families

• What meetings are the right ones to attend

• Case studies

4.00 - 4.30pm How can MF support your centre? | Emma Williams

4.30pm CLOSE OF THE DAY

DAY 3 - 21ST JUNE 2018DAY 3 - DIETETIC MASTERCLASS | CHAIR - HELEN GROSSI RD

9.00 - 11.00am Modified Dietary Workshop and Cookery Demonstration Led by Sue Wood and Dietetic Mentors• How to calculate modified diets

• The difference in the modified diets

• Modified diets for adults

• Fine tuning

• Case studies

• Cookery demonstration

11.00 - 11.30am COFFEE BREAK

11.30 - 12.15pm Monitoring and Side Effects | Anita Devlin• Home monitoring - blood/urine ketones, weight, recording seizures

• Clinic monitoring - biochemistry, growth, optional other tests (renal ultrasound, EEG, DEXA, ECG)

• Common side effects and their management

• Rare side effects and their management


12.15 - 1.00pm Supplementation and medications | Linda Air • Importance of low carbohydrate and reading labels in medications - AEDs and other

prescription medications and choosing appropriate over-the-counter products

• Routes of administration - oral or enteral tube, IV

• Vitamin, mineral and trace element requirements on ketogenic therapy

• Choosing an appropriate supplement and current available products for both children and adults

• Carnitine

• Essential fatty acids

1.00 - 2.00pm LUNCHMANY THANKS TO OUR MAIN SPONSORS FOR THEIR SUPPORT IN PROVIDING THIS COURSE.

Please visit the exhibitor stands during the breaks.


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MATTHEW’S FRIENDS KETOCOLLEGE | COURSE CONTENTS AND MENTORSMATTHEW’S FRIENDS KETOCOLLEGE | COURSE CONTENTS AND MENTORS

TRAINING PROGRAMME AUTHORS AND COURSE MENTORS

We are extremely proud to have with us some very experienced professionals teaching the programme

this year and we would like to thank all their respective hospitals and centres who have allowed them to take

time away from their busy clinics in order to be with us.

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Dr. Kossoff is a Professor of Neurology and Pediatrics at Johns Hopkins University in Baltimore, MD. He received his medical degree from SUNY at Buffalo School of Medicine in New York, followed by a residency in pediatrics at Eastern Virginia Medical School in Norfolk, Virginia. He completed a fellowship in child neurology and then pediatric epilepsy and clinical neurophysiology at The Johns Hopkins Hospital in Baltimore. He has been at Johns Hopkins since 1998.

His research and clinical practice focuses on the diagnosis and treatment of childhood seizures and epilepsy, particularly treatments other than medications such as diet, neurostimulation and surgery. Currently the Medical Director of the Pediatric Ketogenic Diet Center at Johns Hopkins, he is a world expert on the ketogenic diet and created the modified Atkins diet for children and adults in 2003. He is dedicated to bringing the use of diet therapies for neurologic disorders to the entire world and was the head of a Task Force within the International League Against Epilepsy to help achieve this goal. He is a coauthor of The Ketogenic and Modified Atkins Diets: Treatments for Epilepsy and Other Disorders, now in its 6th edition, and helped organize the 2009 expert consensus statement on ketogenic diet management. Dr. Kossoff is also published in the fields of Sturge-Weber syndrome, migraine and epilepsy, infantile spasms, Doose syndrome, and benign rolandic epilepsy.

Dr. Kossoff is also very involved in teaching and mentorship and is the Director of the Pediatric Neurology Residency Program at Johns Hopkins.

Professor Eric Kossoff

Neurology and Paediatrics Director, Paediatric Neurology Residency Program, Medical Director, Ketogenic Diet Centre.

Johns Hopkins Hospital Baltimore, USA.

Her research has been targeted at improving outcomes in early onset epilepsy, specifically in assessing the role of surgery and ketogenic diet.

She is Treasurer of the International League Against Epilepsy 2017-2021 (Secretary General 2013-2017), Clinical Advisor to the National Children’s Epilepsy Surgery Service, Chair of the BPNA Research Committee and Chair of the Neurosciences Clinical Study Group of the Clinical Research Network (Children).

She is the Coordinator of the European Reference Network for Rare and Complex Epilepsies (EpiCARE) launched in 2017. She holds NIHR Senior Investigator status 2016-2020.

She was awarded the Ambassador for Epilepsy Award from the ILAE/IBE in 2007 and Officer, Order of the British Empire for services to children with epilepsy in the Queens Birthday Honours in 2015. She holds an Honorary Doctorate from the University of Gothenburg (2014), and the University of Tartu (2013).

Professor J. Helen Cross OBEMB, ChB, PhD, FRCP, FRCPCH

Prince of Wales’s Chair of Childhood Epilepsy and Head of the Developmental Neuroscience Programme at UCL-Great Ormond Street Institute of Child Health,

Honorary Consultant in Paediatric Neurology Great Ormond Street Hospital

for Children NHS Foundation Trust, London and Young Epilepsy, Lingfield, UK.


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Dr. Mackenzie Cervenka is an Associate Professor of Neurology at Johns Hopkins University School of Medicine.

She completed her undergraduate studies at the University of Virginia and received her medical degree from the University of Virginia School of Medicine. She then completed her internship in internal medicine and residency in neurology at the University of Maryland Medical Center. Dr. Cervenka completed a fellowship in epilepsy and clinical neurophysiology at Johns Hopkins and has stayed there on faculty in the Epilepsy Division since 2010. She is Medical Director of the Johns Hopkins Adult Epilepsy Diet Center and the Epilepsy Monitoring Unit. The Adult Epilepsy Diet Center is the first of its kind, providing ketogenic diet therapies to adults with intractable epilepsy and smoothly transitioning children from a paediatric to a comprehensive adult diet center.

Dr. Cervenka’s research focuses the efficacy of ketogenic diets in the treatment of adults with epilepsy and refractory status epilepticus.

Dr. Mackenzie CervenkaAssociate Professor of Neurology

Johns Hopkins Hospital Baltimore, USA

Professor Klepper is recognised as one of the world’s leading authorities in the area of Glut 1 Deficiency and speaks at many international conferences.

His main field of work are disorders of brain energy metabolism such as GLUT1 deficiency syndrome or pyruvate dehydrogenase deficiency. Both disorders are associated with intractable epilepsy and respond to the ketogenic diet. Research interests are mechanisms and adverse effects of the diet, as well as establishing international protocols for the use of the diet in epilepsy and metabolic disorders. Since 01/07: Medical Director of Aschaffenburg Children’s Hospital.

Professor Klepper is on the MF Glut 1 Medical Advisory board and works with Dr. Archana Desurkar in the MF Glut 1 clinic.

Professor Jörg KlepperChefarzt Kinderklinik

Klinikum Aschaffenburg, Germany

Dr Archana Desurkar has been an NHS Consultant Paediatric Neurologist at SCH since Dec 2010. Her specialist area of interest and expertise is children’s epilepsies, especially complex cases, ketogenic diet treatment for medication resistant epilepsies in children and evaluating children for potential epilepsy surgery.

She is the lead clinician for the ketogenic diet service provided at the trust and works in the team with a specialist nurse and specialist dietician and a co-lead for children’s epilepsy surgery program.

Dr Desurkar has trained in the UK in a variety of specialist settings across the UK, and her specialist neurology training was initially in the ‘Institute of Neurosciences’ in Edinburgh and subsequently at St George’s Hospital, London, Evelina Children’s Hospital (Guys and St Thomas’s NHS Foundation Trust) in London and Kings College Hospital, London. She also has gone on to complete a senior fellowship in clinical neurophysiology at Kings College Hospital focussing on expanding her experience in reporting children’s EEGs. She has worked as a consultant in Complex Epilepsy Services in a specialist children’s hospital in London and also in a residential setting ‘Young Epilepsy’, formerly National Centre for Young People with Epilepsy and is part of the clinical team working at Matthew’s Friends. Dr. Desurker also works alongside Professor Klepper at the MF Glut 1 Clinics.

Dr. Archana Desurkar

Consultant Paediatric Neurologist

Sheffield Children’s Hospital & Matthew’s Friends Clinics

Anita Devlin has been a Consultant in Paediatric Neurology at the Newcastle-upon-Tyne NHS FT since 2002. She graduated from University College London Medical School in 1988 and has trained in Oxford, Southampton, Aberdeen, London and Newcastle gaining a higher doctorate (MD) for research in 2001.

Anita specialises in the diagnosis and management of epilepsy in childhood and is the departmental and regional lead for epilepsy in children and young people. She successfully obtained funding for and set-up a regional Ketogenic Therapy service for children in the North-East and Cumbria and set up the regional paediatric epilepsy network in the North East and Cumbria.

Anita was a member of the award winning team, which produced national training courses in paediatric epilepsy (PET courses) and has published in peer review journals as well as reviewing manuscripts and guidelines for publication.

Anita graduated from the London Business School Executive MBA programme in 2009 and uses these skills along with her knowledge about epilepsy to serve as a member of the Board of Trustees of Young Epilepsy. She is also a member of the Matthew’s Friends Medical Advisory Board.

Dr. Anita Devlin

Consultant Paediatric Neurologist, Newcastle Upon Tyne NHS


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Vanessa is a Senior Specialist Dietitian with over seven years’ experience working with the Ketogenic Team at Birmingham Children’s Hospital.

She also has several years’ experience working with the Inherited Metabolic Disorders Team. The Birmingham team provides the Classical, Modified Ketogenic Diet and Low Glycaemic Index Diet Treatment to over seventy babies, children and adolescents with complex Epilepsy (including GLUT1 patients).

They also host coffee mornings and cookery days for their families and are currently involved in both the KIWE and EDIBLE trials. Vanessa is also a member of the recently established Ketogenic Dietitians Research Network.

Vanessa Appleyard RD

Senior Specialist Dietitian

Birmingham Children’s Hospital

Helena graduated from the University of Sheffield with a BSc in Biochemistry before qualifying as a Dietitian after further post graduate study.

She has worked at Cambridge University Hospital for the past 14 years, and is currently the dietetic lead for the provision of the ketogenic diet for children with epilepsy with in the East of England; a service she helped establish in 2009. She has worked with the inherited disease metabolic service; both for children and adults as well as in gastroenterology and paediatric cystic fibrosis.

Helena has contributed to a weaning booklet for infants on a ketogenic diet released in 2015 and has published an observational case study of an infant who was breast fed while following a ketogenic diet. Helena is also a member of the Matthew’s Friends Medical Board.

Helena Champion RD

Paediatric Dietitian specialising in Ketogenic Diet Therapy

Cambridge University Hospital

Dr Syed obtained her PhD from Imperial College in Molecular Immunology and joined the Ludwig Institute of Cancer Research (LICR) in London as a Junior Post-Doctoral Research Scientist to pursue her interests in cancer biology. This was followed by a CRUK Senior Post-Doctoral Fellowship at the Breakthrough Toby Robins Breast Cancer Research Centre at the Institute of Cancer Research (ICR) to carry out translational studies.

Whilst at ICR, Dr Syed played a key role in identifying a gene (TIP60) having a critical involvement in breast cancer development. She returned to Imperial College at the end of 2008 to set up the John Fulcher Molecular Neuro-oncology Laboratory with Dr Roncaroli and Mr Kevin O’Neill funded by the Brain Tumour Research Campaign and became principle investigator in 2011.

Her ultimate goal is to translate laboratory-based findings and hypothesis into molecularly based treatments for patients with CNS tumours with a view to improving clinical outcome.

Dr. Nelofer Syed

Senior Research Fellow Division of Brain Sciences, Department of Medicine

Imperial College London, Hammersmith Hospital Campus

Helen qualified as a Dietitian in 1983 and has worked for the past 22 years as a Paediatric Dietitian.

Before retiring in the latter part of 2017, Helen has worked as the Ketogenic Diet Coordinator for the North of Scotland as part of NeSCANN, which is the North Scotland Child and Adolescent Neurology Network. This service covers Tayside, Grampian, Highland and the Northern Isles (Orkney and Shetland) Health Boards.

As part of her role she also chaired a group of other Ketogenic Dietitians in Scotland to ensure a seamless service and provided patient information and documentation that was consistent across Scotland, as well as teaching about the Ketogenic Diet whenever the opportunity arose.

Helen works on various projects as part of the Matthew’s Friends Medical board in the mentoring and writing of their courses and training programmes as well as their information for families.

Helen Grossi RD

Matthew’s Friends Medical Board, Ketocollege Course Author and Mentor


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Victoria has worked as a paediatric dietitian for 14 years, specialising in ketogenic diet therapy for the last 7 years. In 2012 she joined the Royal Manchester Childrens Hospital and established the ketogenic diet service by creating a business case and securing permanent funding.

Since then the service has grown to one of the largest centres within the UK and covers neurology and metabolic conditions. She has a particular interest in research and sits as co-chair on the Ketogenic Dietitians Research Network.

Victoria Whiteley RD

Paediatric Dietitian, specialising in ketogenic diet therapy

Royal Manchester Childrens Hospital, UK

After graduating from Surrey University with an honours degree in Nutrition, Liz specialised in paediatric dietetics and studied for a Masters degree in Public Health Nutrition at the London School of Hygiene and Tropical Medicine. From 2001 she worked as ketogenic research dietitian at UCL-Institute of Child Health where she completed her PhD study on traditional ketogenic diet therapies for intractable childhood epilepsy.

She has since contributed to many scientific journal and book publications on the subject. She currently works for Matthew’s Friends ketogenic dietary therapy clinics and continues research links with the Institute of Child Health where she holds an honorary post.

Elizabeth Neal RD MSc PhD

Ketogenic dietitian Matthew’s Friends Clinics, Lingfield, UK

Honorary Research Associate, Department of Neuroscience, UCL-Institute of Child

Health, London, UKSusan Wood has worked as a UK registered dietitian for 32 years, predominantly in the NHS, treating a wide range of paediatric and adult conditions.

In 2008, the referral of one young adult for the dietary management of drug resistant epilepsy sparked her interest in ketogenic therapy and since then, she has been pursuing the development of adult treatment protocols in the UK and raising the awareness of dietitians and neurologists to the life changing potential that ketogenic therapy can offer adults.

In 2009 she started to work alongside the Matthews Friends Charity, offering support to adults and their neurology teams seeking treatment and in 2011 she joined the newly formed clinical team at the Matthews Friends Centre for Ketogenic Dietary Therapies. She continues to lead on the treatment of adults with difficult epilepsy and also supports adults with brain tumours keen to trial this novel approach to manage symptoms.

Sue Wood RD

Specialist ketogenic dietitian Adults and Children

Matthew’s Friends Clinics

Lucy has been qualified as a paediatric nurse for 15 years, in which 13 of those have been working within paediatric neurology.

Over the past 6 years she has worked part-time as a nurse specialist within paediatric neurology and is the lead nurse within the ketogenic team. Lucy and the other members of the ketogenic team have worked hard to develop a regional service in the North-east.

They are all immensely proud of what they have achieved and continually strive to develop and improve the knowledge and care offer.

Lucy Bellis

Paediatric Neurology Nurse Specialist

The Great North Children’s Hospital. Royal Victoria Infirmary, Newcastle


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Emma set up the Matthew’s Friends Charity in 2004 after her son Matthew responded so positively to the ketogenic diet.

She is now one of the world’s leading advocates for ketogenic therapies and has worked full time in this field for over 14 years, as well as being a single mum to her 2 children. Not only does she have over 6 year’s personal experience of managing her own son with these diets, she has supported thousands of other families through the charity. She has written numerous magazine articles, featured in many television/radio interviews and co-authored several papers on the Ketogenic therapies with some of the leading Ketogenic medical experts from around the globe.

Emma is invited to speak at a considerable number of International meetings and was the pioneer behind Nutricia’s global ‘Cooking with Ketocal’ Campaign.

With branches of Matthew’s Friends now registered in New Zealand and Canada, she works with her Country CEO’s to make sure that the mission of Matthew’s Friends is continued so that ketogenic therapies are available to all those who may need them and could benefit from them. 2013 saw her awarded an MBE from Her Majesty the Queen for her services to Children with Epilepsy.

Emma Williams MBE

Founder/CEO - Matthew’s Friends charity

Director - Matthew’s Friends Clinics

Catherine has worked as the Nutrition Advisor at Maggie’s Cancer Caring Centre at Charing Cross Hospital since graduating with a degree in Nutritional Therapy in 2008.

She has also gained a Postgraduate Certificate in Nutritional Medicine from Surrey University. Other roles include lecturing on nutrition, working for a District Council running community and schools nutrition programmes and working for ‘The Food Doctor’ as their nutrition and cancer therapist. Her interest in the influence of diet on cancer stems from her son’s diagnosis of leukaemia, and his successful treatment, 15 years ago.

Her ongoing research began to flag up emerging papers on the ketogenic diet and its potential as a cancer therapy and Catherine joined the Matthew’s Friends clinical team working with their dietitian, Sue Wood, in supporting their Brain Tumour patients.

Catherine Zabilowicz

Dietetic Assistant – Oncology Matthew’s Friends Clinics

Val’s experience in nursing began in 1980 through roles in dental and auxiliary nursing. She qualified as an enrolled nurse in 1984, then as a registered nurse in 1990, quickly specialising in coronary care. She has 2 children Robyn and Greg. Greg’s seizures started when he was 4 and that is also when his behaviour changed. After 4 very difficult years, Val met Emma and learnt about the ketogenic diet. She also met Professor Cross on a surgical referral and when surgery was not an option, Greg was started on the MCT Ketogenic diet as part of the GOSH trial and it changed not only Greg’s life but the whole families, such was the improvement in Greg’s quality of life and seizure management.

Soon after this time, Emma contacted Val and asked if she would like to be involved with a charity she was thinking of starting up and Val readily agreed. Val is still a Trustee for the charity and now works very closely with the clinical team in the support of ketogenic patients in the MF Clinic. She is involved in training patients, carers and families in the implementation and management of ketogenic therapy.

She has gained a wealth of experience in implementing dietary therapies both personally with Greg and through supporting families from around the UK. She has also gained a vocational certificate in epilepsy care via distance learning to gain a broader knowledge of epilepsy.

Val Aldridge

Ketogenic Dietetic Assistant, Matthew’s Friends Clinic’s and Charity.

Maureen has an extensive background in cooking and hotel catering.

As a keen supporter of Matthew’s Friends 3 years ago she combined her passion for food and her support of the charity, joining Neil (Keto chef)in being a ketocook for the Matthew’s Friends organisation.

Mo is responsible for recipe development and also helps families that are struggling to make tasty meals using their prescriptions. You can see Maureen demonstrating some of her recipes on the Matthew’s Friends website and YouTube ketokitchen channel.

Maureen Benn (Mo)

Ketocook – Matthew’s Friends Charity & Clinics


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Neil Palliser-Bosomworth is a consultant chef with 19 years of experience working in various NHS hospitals in the UK, catering for different patient groups and their unique dietary needs.

He has also worked as head chef at the Marie Curie Hospice and St Oswald’s Hospice. About 9 years ago he was introduced to Matthew’s Friends Founder and CEO, Emma Williams. Neil and Emma spent a great deal of time together as she took him through the ketogenic diet and all that it entailed. Neil has since flown with this and ketogenic therapies are now one of his specialities.

Neil regularly travels abroad to demonstrate Keto cooking and can be found at Matthew’s Friends meetings and on their ketocooking channel. Neil now works as a medical chef for Nutritional Company, Vitaflo, who make prescription products for Ketogenic Therapies as well as devoting charitable time for Matthew’s Friends with their Ketocook Mo, in their recipe development kitchen.

Neil Palliser-Bosomworth

Keto Chef – Vitaflo and Matthew’s Friends

Derek qualified in 1992 from Rank Hovis as master baker. After leaving college he started working in London in a top hotel producing wedding cakes and sugar confectionery. After this, he then started working for himself in private dining and wedding functions.

“My godson, Tylan, was born in 2011 with PKU and this is where my passion and drive has come from to develop and create new recipes, not only for PKU but also other genetic conditions.”

Derek also works with Matthew’s Friends and is now a regular face on their KetoCooking YouTube channel.

Derek Clarke

Keto Chef - Nutricia

Bruce Carroll has worked with the NHS and dietitians developing specialist nutritional analytical software for over 30 years.

He began developing EKM back in 2004 to assist with the GOSH trial of the Ketogenic Diet. EKM is now sponsored by Matthews Friends and is availalbe on PC’s, Mac’s, iPhone, Android and tablets.

Bruce Carroll

Senior Software Engineer MicroMan2000 Ltd


NOTES

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MATTHEW’S FRIENDS KETOCOLLEGE | COURSE CONTENTS AND MENTORS


DESIGNED BY ACEYM DESIGN | 07789 753 007 | [email protected]

Matthew’s Friends Clinics Ltd, St. Piers Lane, Lingfield, Surrey RH7 6PW

[ Telephone (Office): 01342 836571 YWebsite address: www.mfclinics.com / Email: [email protected]

PROGRAMME ENDORSED BY ERN EPICARE

SPONSORED BY:

Ketocollege_Programme_2018AM.indd 24 09/05/2018 12:35

Documents

KETOGENIC DIETARY THERAPIES Course Contents and Mentors · Case stud eamples Transition EIO IE Panel 1pm-2pm EOEIC LCH 2 3 KETOGENIC DIETARY THERAPIES COURSE CONTENTS AND MENTORS