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1 Updated 01/11/2019 CURRICULUM VITAE Laura A. Siminoff, Ph.D. EDUCATION and TRAINING 1975 B.A. in Anthropology, McGill University, Montreal, Quebec, Canada 1978 M.A. in Anthropology, University of New Brunswick, Fredericton, New Brunswick, Canada 1988 Ph.D. in Public Health, Department of Behavioral Sciences and Health Education, School of Hygiene and Public Health, Johns Hopkins University HONORS and AWARDS 1976 1978 University of New Brunswick Scholarship 1984 1985 Leopold Schepp Foundation Grant 1983 1987 Johns Hopkins University Scholarship 1997 2006 Million Dollar Professor, Case Western Reserve University, Cleveland, OH 2001 2002 Executive Leadership in Academic Medicine (ELAM) Fellowship 2005 Fulbright Specialist (Visiting Professor, University of Sydney, Sydney, AU 2006) 2005 Ranked above the 95 th percentile of NIH awardees over the past 25 years 2008 2014 Theresa A. Thomas Memorial Foundation Chair in Cancer Prevention and Control 2010 Visiting Professor, University of Southampton, United Kingdom 2014 Laura H. Carnell Professorship, Temple University, Philadelphia, PA 2016 2019 Diamond Jubilee Visiting Scholar, University of Southampton, United Kingdom PROFESSIONAL APPOINTMENTS 1987 1988 Research Coordinator, Center for Medical Ethics, University of Pittsburgh, Pittsburgh, PA 1989 1996 Director of Research, Center for Medical Ethics, University of Pittsburgh,

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Page 1: Laura A. Siminoff, Ph.D. EDUCATION and TRAINING ... › sites › cph › files › node › profile...2016 NCI P01 Study Section 2019 CMPC Study Section 4. Institutional Service (local

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Updated 01/11/2019

CURRICULUM VITAE

Laura A. Siminoff, Ph.D.

EDUCATION and TRAINING

1975 B.A. in Anthropology, McGill University, Montreal, Quebec, Canada

1978 M.A. in Anthropology, University of New Brunswick, Fredericton, New

Brunswick, Canada

1988 Ph.D. in Public Health, Department of Behavioral Sciences and Health

Education, School of Hygiene and Public Health, Johns Hopkins University

HONORS and AWARDS

1976 – 1978 University of New Brunswick Scholarship

1984 – 1985 Leopold Schepp Foundation Grant

1983 – 1987 Johns Hopkins University Scholarship

1997 – 2006 Million Dollar Professor, Case Western Reserve University, Cleveland, OH

2001 – 2002 Executive Leadership in Academic Medicine (ELAM) Fellowship

2005 Fulbright Specialist (Visiting Professor, University of Sydney, Sydney, AU

2006)

2005 Ranked above the 95th percentile of NIH awardees over the past 25 years

2008 – 2014 Theresa A. Thomas Memorial Foundation Chair in Cancer Prevention and

Control

2010 Visiting Professor, University of Southampton, United Kingdom

2014 – Laura H. Carnell Professorship, Temple University, Philadelphia, PA

2016 – 2019 Diamond Jubilee Visiting Scholar, University of Southampton, United Kingdom

PROFESSIONAL APPOINTMENTS

1987 – 1988 Research Coordinator, Center for Medical Ethics, University of Pittsburgh,

Pittsburgh, PA

1989 – 1996 Director of Research, Center for Medical Ethics, University of Pittsburgh,

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Pittsburgh, PA

1989 – 1995 Assistant Professor of Psychiatry, University of Pittsburgh School of Medicine,

Pittsburgh, PA

1990 – 1995 Assistant Professor of Public Health, University of Pittsburgh, Graduate School

of Public Health, Pittsburgh, PA

1995 – 1996 Associate Professor of Public Health, University of Pittsburgh, Graduate School

of Public Health, Pittsburgh, PA

1996 – 1999 Associate Professor of Medicine and Bioethics, Case Western Reserve University

School of Medicine, Cleveland, OH

2000 – 2006 Professor of Medicine, Bioethics, and Oncology, Case Western Reserve

University School of Medicine, Cleveland, OH

2002 – 2006 Professor of Bioethics, Family Medicine and Oncology, Case Western Reserve

University School of Medicine, Cleveland, OH

2006 – 2014 Professor and Chair, Department of Social and Behavioral Health, School of

Medicine, Medical College of Virginia, Virginia Commonwealth University,

Richmond, VA

2006 – 2014 Associate Director, Cancer Prevention and Control Program, Massey Cancer

Center, Richmond, VA

2014 – Dean and Laura H. Carnell Professor of Public Health, College of Public Health,

Temple University, Philadelphia, PA

MEMBERSHIPS IN PROFESSIONAL and SCIENTIFIC SOCIETIES

1983 – American Public Health Association

1989 – Society for Medical Decision Making

1993 – Academy Health

2000 – American Society for Preventive Oncology

2004 – American Psychosocial Oncology Society

2004 – International Psycho-Oncology Society

2004 – European Association Communication and Health

2013 – The College of Physicians of Philadelphia

2014 – The Transplant Society

PROFESSIONAL SERVICE ACTIVITIES

1. Journal Referee (partial list)

Annals of Internal Medicine

Archives Internal Medicine

Clinical Transplantation

Health Affairs

Health Communication

Health Psychology

Journal of General Internal Medicine

Johns Hopkins University Press

Journal Health Politics, Policy and Law

Journal of Clinical Oncology

Journal of Family Medicine

Journal of the American Medical Association

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Journal of the National Cancer Institute

Medical Care

Medical Decision Making

Milbank Quarterly

Patient Education & Counseling

Qualitative Sociology

Social Science & Medicine

Psycho-Oncology

2. Editorial Board

1998 – 2001 Journal of Transplant Coordination

2001 – Progress in Transplantation

2010 – American Journal of Bioethics: Primary Research

3. Study Section (Peer Review) Member

1992 – Dutch Cancer Society

1993 – 1997 Health Services Development Grants Study Section (Agency for Health Care

Policy and Research)

1993 – National Cancer Institute (Ad Hoc Reviewer)

1995 – 1998 National Cancer Institute of Canada

1997 – 2002 Veterans Administration HSR&D (Ad Hoc Reviewer)

1997 – 2000 Agency for Health Care Policy and Research (Ad Hoc Reviewer)

1998 – 1999 American Cancer Society Institutional Grant Review Panel (Ohio)

2000 – 2003 Susan B. Komen Breast Cancer Foundation

2003 National Institute of Health, SNEM-1 study section (Ad Hoc Reviewer)

2004 – 2006 HRSA Division of Transplantation

2007 – Veterans Administration HSR&D Health Disparities Panel

2011 – 14 NCI Subcommittee F (R25 Reviewer)

2012 – 14 PCORI Study Section

2015 NHGRI CEER Study Section

2016 NCI P01 Study Section

2019 CMPC Study Section

4. Institutional Service (local and national)

1988 – 1991 Pittsburgh Cancer Institute Human Subjects Review Committee

1988 – 1997 Associate, Pittsburgh Cancer Institute

1989 – 1996 WPIC Research Committee

1991 – 1992 Bio-behavioral Sciences Teaching in the Medical School Subcommittee,

University of Pittsburgh

1991 – 1996 Research Integrity Committee for the University of Pittsburgh Medical School

1991 – 1993 Women’s Health Care Center Committee, University of Pittsburgh

1992 – 1993 Medicine and Society Course Steering Committee, University of Pittsburgh

1992 – 1995 Provost’s Advisory Committee on Women’s Concerns, University of Pittsburgh

1991 – 1996 University of Pittsburgh School of Nursing Research Committee

1995 – 2001 National Action Plan on Breast Cancer Task Force, Clinical Trials Working

Group (Department of Health and Human Services)

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1996 – 2006 Program Leader, Case Comprehensive Cancer Center, University Hospitals of

Cleveland

1996 – 1998 Department of Medicine Research Coordinating Committee, Case Western

Reserve University

1998 – 2006 Women Faculty of the School of Medicine, Case Western Reserve University

(Board Member)

1998 – 2000 Division of General Internal Medicine Leadership Committee, Case Western

Reserve University

1998 – 2000 Faculty Computing and Information Resources Committee, Case Western

Reserve University

1998 – 2002 United Network of Organ Sharing (UNOS) Committee on Council for Organ

Availability Exceptional Requestor Working Group

1999 – 2002 Veterans Administration Research and Development Review Board, Louis

Stokes Cleveland VA

1999 – 2001 Department of Medicine Committee on Appointments, Promotions and Tenure,

Case Western Reserve University School of Medicine

1999 – 2001 Department of Medicine Committee on Research, Case Western Reserve

University School Of Medicine

2000 – Consensus Conference on Living Related Donors, National Kidney Foundation

2000 – 2001 State of the Art Conference on Informed Consent, Veterans Administration

(Steering Committee)

2001 – 2002 Science and Societal Issues Symposium, Case Western Reserve University

Biology Department (Judge)

2001 – Conference on Non-related Living Donors, National Kidney Foundation

2001 – 2002 American Society for Bioethics and Humanities, Membership Survey Committee

2001 – 2006 Minority Organ Tissue Transplant Education Program (MOTTEP), (Advisory

Board Member)

2002 – 2004 Dean’s Women’s Issues Advisory Committee, School of Medicine, Case

Western Reserve University, Cleveland, OH

2002 – 2006 Research Committee, School of Medicine, Case Western Reserve University,

Cleveland, OH

2002 – 2004 Chair, Committee on Dry Lab Research, School of Medicine, Case Western

Reserve University, Cleveland, OH

2002 – 2005 Faculty Senate, Case Western Reserve University, Cleveland, OH

2004 – 2006 Medical Advisory Board Member, LifeBanc, Cleveland, OH

2004 – 2005 Consultant and Speaker for NICHD National Network on Psychosexual

Differentiation

2005 – 2007 Chair, American Society for Bioethics and Humanities Research Affinity Group

2005 – 2006 Chair, Behavioral Protocol Review, Safety and Monitoring Committee, Case

Comprehensive Cancer Center, Cleveland, OH

2005 – 2006 School of Medicine Committee on Appointment, Promotion and Tenure, Case

Western Reserve University, Cleveland, OH

2006 – 2014 Massey Cancer Center, PRMS, Virginia Commonwealth University, Richmond,

VA

2006 – 2014 Women’s Health Institute, Steering Committee, Virginia Commonwealth

University, Richmond, VA

2009 National Kidney Foundation Advisory meeting on Financial Incentives for

Donation. Washington, DC.

2009 Invited participant to: The Transplant Society New Key Opinion Leader Meeting.

Jackson Hole, WY

2009 – 2012 National Kidney Foundation, End the Wait Task Force (Task Force Member).

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2009 – 2010 National Cancer Institute, Acquisition of Normal Tissues Working Group (Work

Group Member)

2009 – 2010 European Association for Communication in Healthcare. Member, Scientific

Committee of the next International Conference on Communication in

Healthcare (ICCH)

2010 – 2014 National Cancer Institute, Genomic Management Program (GMaP) (Region 1

member and Social and Behavioural group leader).

2010 External Advisory Board U54 CCSG: Howard-Hopkins Partnership.

2010 – 2014 European Association for Communication in Healthcare. Deputy National US

Representative

2010 – 2011 Conference Executive Advisory Board, DC Health Communication Conference

2011 Co-chair, 7th Annual Women’s Health Research Day. VCU Institute for

Women’s Health. Richmond, VA

2011 – 2012 Scientific Committee Member, International Conference on Communication in

Health Care

2015 – 2016 Chair, Temple University Building Planning Executive Steering Committee

2015 Planning Committee of the Division of Cancer Control and Population Sciences

(DCCPS) at the National Cancer Institute (NCI) & the Division of Extramural

Science Programs (DESP) at the National Institute of Nursing Research (NINR),

Caring for Caregivers and Patients: Revisiting the Research and Clinical

Priorities for Informal Cancer Caregiving

2015 – 2017 Differences of Sex Development (DSD) Health Ad Hoc Committee of the

Association of American Medical Colleges Advisory Committee on Sexual

Orientation, Gender Identity, and Sex Development

2015 – Research Committee, Association of Schools & Programs of Public Health

2015 – 2016 Chair, Temple University Presidential Committee on Campus Sexual Misconduct

2016 – 2017 Member, Temple University Enrollment Management Taskforce

2017 – 2018 Chair, Temple University Smoke-Free Campus Taskforce

2017 – 2018 Member, Temple University Vice Provost for Enrollment Search Committee

2018 Chair, Temple University Review Committee of Dean Joe Lucia

2018 – Member, Temple University Committee on Distance Learning

2018 – Member, American Cancer Society Board

TEACHING and ADMINISTRATION

1. Administrative Positions

1999 – 2006 Co-Director, Program in Cancer Prevention, Control and Population Research,

Case Western Reserve University and University Hospitals of Cleveland,

Comprehensive Cancer Center, Cleveland, OH

2001 – 2006 Director, Prevention Research Educational Postdoctoral Training Program

(PREP), Case Comprehensive Cancer Center, Case Western Reserve University

2002 – 2006 Program Leader, Behavioral Cancer Prevention and Control Program, Case

Comprehensive Cancer Center, Cleveland, OH

2003 – 2006 Director, Doctoral Program in Bioethics, Department of Bioethics, Case Western

Reserve University

2006 – 2014 Associate Director, Cancer Prevention and Control Program, Massey Cancer

Center, Richmond, VA

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2006 – 2014 Chair, Department of Social and Behavioral Health, School of Medicine, Medical

College of Virginia, Virginia Commonwealth University, Richmond, VA

2014 – Dean and Laura H. Carnell Professor of Public Health, College of Public Health,

Temple University, Philadelphia, PA

2. Courses and Seminars

1988 – 1992 Introduction to Patient Care, Division of Family Medicine, University of

Pittsburgh (Responsible for small group sessions with first year medical students)

1989 – 1994 Clinical Ethics Training Program, Center for Medical Ethics, University of

Pittsburgh (Periodic case conferences with medical house staff and fellows)

1990 – 1996 Research Ethics, Department of Psychiatry, University of Pittsburgh

(Survey course in research ethics for post-doctoral students, fellows, and faculty)

1991 – 1996 Research Methods, Ethical Research Concerns: IRBs and Consent Forms

Department of Internal Medicine, University of Pittsburgh

(Annual seminar with internal medicine fellows)

1991– 1995 Project Coordinator Course, Introduction to Research Ethics, Department of

Psychiatry, University of Pittsburgh

(Biannual seminar presents an overview of research ethics pertinent to WPIC

project coordinators and other staff)

1992 – 1994 Medicine and Society, University of Pittsburgh

(Member of committee directing this 40-week course for first and second year

medical students: lectures on treatment decision making and ethical issues in a

variety of medical areas)

1993 – 1996 Social Science Views of Medicine and Clinical Practice, Center for Medical

Ethics and Department of History and Philosophy of Science, University of

Pittsburgh (Seminar series on medical sociology for fellows and graduate

students given in conjunction with a clinical practicum)

1993 – 2005 Integrative Seminar in Health Services Research (HSADM3004), University of

Pittsburgh (Lecture: “Studying Hospital Health Care Providers: Going Beyond the

Medical Charts”)

1993 – 1996 Design of Clinical Trials (EPI2181), University of Pittsburgh (Lecture: “Ethical

Issues in the Conduct of Clinical Trials”)

1998 – 2000 Planning Measurements - I (Department of Medicine –– Seminar in Methods,

CWRU SOM (Lecture: “Validity Assessments, Psychometrics, Use of

Questionnaires and Surveys and Development of New Instrumentation”)

1999 – 2005 Graduate Seminar in Pediatric Psychology, CWRU SOM (Lecture: “Analyzing

and Managing Qualitative Data”)

1998 – 2005 Bioethics Masters Paper - BETH 402: Preceptor, MA First Year Paper

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1998 – 2003 EPBI 460 and 461, Health Services Research Methods I and II (Lecture: “Using

Qualitative Methods in Health Services Research”)

1999 – 2001 BETH 401: Organ Transplantation Seminar Series (Fall Semester)

2003 – 2005 BETH 401: Empirical Methods in Bioethics

2005 – 2005 BETH 511: Grant Writing

2006 – 2014 Lectures for several VCU courses including Health Psychology, Health

Communication, and Departmental Seminars

2014 – Lectures for several Temple University Seminars

2017 Faculty Senate Status of Women’s Conference Keynote: “Women’s Leadership

and Advancement”

3. Supervision of Students and Fellows and Others (partial list)

Postdocs & Fellows

David Scott Miller, MD; M.A. Department of Medicine, University of Pittsburgh. (1989–1990).

Lois Teston, MD. Oncology Fellow, Division of Oncology, School of Medicine, Case Western Reserve

University 1999–2000).

Chris Simon, Ph.D. Department of Bioethics, Case Comprehensive Cancer Center, School of Medicine, Case

Western Reserve University (2001–2003).

Catherine Demko, Ph.D. Department of Epidemiology and Biostatistics, Case Comprehensive Cancer Center,

School of Medicine, Case Western Reserve University (2001–2003).

Jane Brown, Ph.D. Department of Sociology, Case Comprehensive Cancer Center, School of Medicine, Case

Western Reserve University (2002–2004).

Christina Saunders Sturm, Ph.D. Department of Sociology, Case Comprehensive Cancer Center, School of

Medicine, Case Western University, (2002–2004).

Maghboeba Mosavel, Ph.D. Department of Bioethics, Case Comprehensive Cancer Center, School of Medicine,

Case Western Reserve University, Department of Social and Behavioral Health, VCU (2002–2005).

Richard Brown, Ph.D. Department of Bioethics, Case Comprehensive Cancer Center, School of Medicine, Case

Western Reserve University, Department of Social and Behavioral Health, VCU (2003–2005).

Esa Washington, MD. Department of Family Practice, Case Comprehensive Cancer Center, School of Medicine,

Case Western Reserve University, Department of Social and Behavioral Health, VCU (2003–2005).

Levi Ross, Ph.D. Department of Bioethics, Case Comprehensive Cancer Center, School of Medicine, Case

Western Reserve University (2004–2006).

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Jennifer Kraly, Ph.D. Department of Sociology, Case Comprehensive Cancer Center, School of Medicine, Case

Western Reserve University (2005–2007).

Mary Step, Ph.D. Department of Communications, Case Comprehensive Cancer Center, School of Medicine,

Case Western Reserve University (2005–2008).

Robin Matsuyama, Ph.D. Massey Cancer Center, School of Medicine, Department of Social and Behavioral

Health, VCU (2006–2007).

Patricia Carcaise-Edinboro, Ph.D. Massey Cancer Center, School of Medicine, Department of Social and

Behavioral Health, VCU (2007–2008).

Heather Marshall Traino, Ph.D. Department of Social and Behavioral Health, School of Medicine, VCU (2007–

2009).

Maria Thomson, Ph.D. Department of Social and Behavioral Health, School of Medicine, VCU (2010 – 2014).

Graduate Students

Beth Chaitin, MSW; M.A. candidate in Medical Ethics, Center for Medical Ethics and Department of

History and Philosophy of Science, University of Pittsburgh. The Ethic of Caring and the Provision of

Nursing Care to AIDS Patient (1996).

Kata Chillag, M.A.; Ph.D. candidate in Medical Anthropology, Department of Anthropology, University

of Pittsburgh. Defining Normal: Representations of Patients’ and Families Experiences after Liver

Transplantation (1997).

Elisa Gordon, M.A.; Ph.D. candidate in Medical Anthropology, Department of Anthropology, Case

Western Reserve University. “If It’s Not Broke, Don’t Fix It”: Patients’ and Clinicians’ Decision Making

for Treatment of End-Stage Renal Disease in the United States (1999).

Christina Saunders, M.A.; Ph.D. candidate in Medical Anthropology, Department of Anthropology, Case

Western Reserve University. Breast Cancer Illness Narratives: Examining the experience of living with

breast cancer (1999–2002).

Grace Warner, M.S.; Ph.D. candidate in Epidemiology and Biostatistics, Department of Epidemiology

and Biostatistics, Case Western Reserve University. The Importance of Fatigue in Predicting Disability

within a Community-Based Elderly Population (2000).

Dean Leahy, MSW; Ph.D. candidate in Social Work, School of Social Work, University of Pittsburgh.

Improving the Organ Donation Process: Can Social Work Help? (2002).

Melissa Barber, MPH; Ph.D. candidate in Bioethics, Department of Bioethics, Case Western Reserve

University. (2004–2006).

Aaron Goldenberg. MPH; Ph.D. candidate in Bioethics, Department of Bioethics, Case Western Reserve

University (2004–2006).

Daniel Baughn, M.S.; Ph.D. candidate in Psychology, Department of Psychology, Virginia

Commonwealth University (2007– 12 ).

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Laura Slosky, M.S.; Ph.D. candidate in Psychology, Department of Psychology, Virginia Commonwealth

University (2008– 12).

Lindsey Dorflinger, M.S.; Ph.D. candidate in Psychology, Department of Psychology, Virginia

Commonwealth University (2009– 12).

Lindsey Kurland, M.S.; Ph.D. candidate in Public Health, Department of Social and Behavioral Health,

Virginia Commonwealth University (2011– 13).

Jennifer St Claire Russell, MPH; Ph.D. candidate in Public Health, Department of Social and Behavioral

Health. School of Medicine, Virginia Commonwealth University (2012–2014).

Laura Aubree Shay, MA. Ph.D. candidate in Public Health, Department of Social and Behavioral Health.

F Award mentor. School of Medicine, Virginia Commonwealth University (2012–2015).

Beth Chalick-Kaplan, DNP. Capstone Project. Candidate in Nursing, Department of Nursing, College of

Public Health, Temple University (2015–2016).

Megan Urbanski, MA.; Ph.D. candidate in Social and Behavioral Health Sciences. Committee and F

Award Mentor. College of Public Health, Temple University. (2016 – present).

Junior Faculty

Amy Zhang, Ph.D. Instructor in General Internal Medicine and Health Care Research, Case Western

Reserve University. Primary advisor/mentor (Mentor for American Cancer Society Small Projects Award

for New Investigators 1998-2001; Award received 1999).

Said Ibrahim, MD. Assistant Professor of General Internal Medicine and Health Care Research, Case

Western Reserve University (Mentor for a career development award: 1999–2004; Award received 2000).

Anita Weiss, MD. Assistant Professor of Pediatrics, Case Western Reserve University (Mentor for NIH

career development award 2000–2005; Award received 2000).

Amy Heneghan, MD. Assistant Professor of Pediatrics, Case Western Reserve University (Mentor for

Robert Wood Johnson Generalist Physician Faculty Scholars Award: Award received 2001).

Carolyn Ievers-Landis, MD. Assistant Professor of Pediatrics, Case Western Reserve University (Mentor

for NIH career development award: Award received 2001).

Elisa Gordon, Ph.D. Assistant Professor, Loyola University Medical School (Chicago). (Mentor for NIH

career development award: Award received 2003).

Sana Loue, Ph.D. JD candidate in Medical Anthropology, Department of Anthropology, Case Western

Reserve University (2000–2004).

Christian Simon, Ph.D. Assistant Professor of Bioethics, Case Western Reserve University (Mentor for

NIH career development award: Award received 2004).

Robin Matsuyama, PhD. Assistant Professor, Department of Social and Behavioral Health, VCU, (Mentor

on American Cancer Society Cancer Control career development award: Award received 2008).

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Maghboeba Mosavel, Ph.D., Associate Professor, Department of Social and Behavioral Health, VCU,

(Mentor on NIH career development award: (K) Award received 2008).

Heather Marshall Traino, Ph.D., Instructor, Department of Social and Behavioral Health, VCU, (Mentor

on NIH/NIDDK career development (K) award: Award received 2010).

Elizabeth Thompson, Ph.D., Assistant Professor, Department of Rehabilitation Sciences, College of

Public Health, Temple University. (Mentor on NIH career development award: (K) Award received

2017).

Yaara Zisman-Illani, Ph.D., Assistant Professor, Department of Rehabilitation Sciences, College of Public Health,

Temple University. (Mentor on NIH career development award: (K) Award).

4. Selected Seminars and Invited Lectureships

Siminoff LA. “Development of a Model of Decision-Making Among Breast Cancer Patients.” Presented

at: Jay Yardley Symposium, The Johns Hopkins Oncology Center. Baltimore, MD; October 1986.

Siminoff LA. “Breast Cancer Treatment Decisions: Ethical Implications.” Presented at: Ethics for Lunch

Series, University of Pittsburgh. Pittsburgh, PA; March 1988.

Siminoff LA, Fetting JH. “Facing Medical Uncertainty: Making Breast Cancer Treatment Decisions after

Surgery.” Presented at: American Public Health Association Annual Meeting. Boston, MA; November

1988.

Siminoff LA. “Referral to Cancer Trials: A Population Based Model.” Presented at: Pittsburgh Cancer

Institute’s Scientific Retreat. Pittsburgh, PA; December 1988.

Fetting JH, Siminoff LA. “Description and Perception of Standard Breast Cancer Adjuvant Therapy

Benefits: Effect on Clinical Trial Accrual.” Presented at: American Society of Clinical Oncologists

Annual Meeting. San Francisco, CA; May 1989.

Siminoff LA, Fetting JH. “The Reluctance of Physicians to Recommend Clinical Trials: Factors Which

May Affect Attractiveness of Trials for Physicians.” Presented at: Society for Controlled Clinical Trials.

Toronto, ON; May 1990.

Siminoff LA, Fetting JH. “Patients and Physicians Talk About Breast Cancer.” Presented at: ICA Annual

Meeting. Chicago, IL; May 1991.

Siminoff LA, Arnold RM, Caplan A, Virnig B. “Required Request: Dilemmas of Organ, Tissue and

Corneal Procurement.” Presented at: Nebraska-Dartmouth Ethics Conference: Dilemmas in Organ

Transplantation. Omaha, NE; October 1991.

Siminoff LA, Arnold RM, Miller DS. “Difference in the Procurement of Organs and Tissues by Health

Care Professionals.” Presented at: Nebraska-Dartmouth Ethics Conference: Dilemmas in Organ

Transplantation. Omaha, NE; October 1991.

Siminoff LA. “Patients and Physicians: Current Trends in the Treatment of Breast Cancer Patients and

the Factors which Effect Treatment Decision-Making.” Presented at: University of Illinois at Chicago,

Reframing Women's Health: Multidisciplinary Research and Practice. Chicago, IL; October 1992.

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Siminoff LA. “Recruitment of Breast Cancer Patients to Clinical Trials.” Presented at: American Public

Health Association Annual Meeting. Washington, DC; November 1992.

Erlen JA, Siminoff LA, Dorst SK, Sereika SM. “Quality Nursing Care, Patient Satisfaction, and Patients

with AIDS.” Presented at: Second Annual National Nursing Research Conference. Charleston, WV;

October 1993.

Siminoff LA, Arnold RM. “Preliminary Results from a Public Opinion Survey of Attitudes and Projected

Behavior About Non-Heart Beating Organ Donation Procurement Techniques.” Presented at: Washington

Hospital Consensus Conference on Trauma Victims and Organ Donation. Washington, DC; October

1993.

Erlen JA, Siminoff LA, Dorst SK, Sereika SM. “Quality Care and Patients with AIDS: A Challenge for

Nursing.” Presented at: Scientific Sessions of Sigma Theta Tau International Biennial Convention.

Indianapolis, IN: November 1993.

Siminoff LA, Arnold RM. “Organ Donation and Procurement: Clinical Issues and Controversies.”

Presented at: Allegheny General Hospital Grand Rounds. Pittsburgh, PA; December 1993.

Erlen JA, Siminoff LA, Dorst SK, Sereika SM. “Quality Nursing Care and Patient Satisfaction.”

Presented at: Sixth Annual Scientific Sessions of the Eastern Nursing Research Society. Binghamton,

NY; April 1994.

Siminoff LA, Arnold RM, Caplan AL, Seltzer DL. “Implementation of Required Request and Its Impact

on Organ Donation.” Presented at: 3rd Biennial Conference on Psychiatric, Psychosocial and Ethical

Issues in Organ Transplantation. Richmond, VA; October 1994.

Arnold RM, Siminoff LA, Seltzer DL, Caplan AL, Virnig B. “Estimation and Characterization of the

Organ, Tissue and Cornea Donor Pool.” Presented at: 3rd Biennial Conference on Psychiatric,

Psychosocial and Ethical Issues in Organ Transplantation. Richmond, VA; October 1994.

Seltzer DL, Siminoff LA, Arnold RM. “Public Opinion and Attitudes Toward Alternative Methods of

Organ Procurement.” Presented at: 3rd Biennial Conference on Psychiatric, Psychosocial and Ethical

Issues in Organ Transplantation. Richmond, VA; October 1994.

Siminoff LA. “Guiding Public Policy and Empirical Data: The Lesson of Organ Donation.” Presented at:

American Public Health Association Annual Meeting. San Diego, CA; November 1995.

Siminoff LA, Erlen JA, Sereika S, Dorst SK. “The Practice of Avoidance Behaviors by Nurses When

Caring for HIV Patients.” Presented at: American Public Health Association Annual Meeting. San Diego,

CA; November 1995.

Siminoff LA. “American Attitudes and Beliefs About Death.” Presented at: Defining Death in a

Technological Age: The Interface Between Medical, Science, and Society Conference. Cleveland, OH;

November 1995.

Siminoff LA. “Required Request/The Consent Process: Lessons Learned and Directions for the Future.”

Presented at: Ortho Biotech Transplant Institute OPO Roundtable. Phoenix, AZ; November 1995.

Siminoff LA. “Differences Between Donor and Nondonor Families and the Request Process.” Presented

at: Division of Transplantation Annual Meeting. February 1996.

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Siminoff LA. “Doctor-Patient Communications: Patient Concerns Regarding Anti-estrogens.” Presented

at: Fareston Investigators Meeting. Palm Springs, CA; October 1996.

Siminoff LA. “An Intervention Study to Increase Older Patients’ Participation in Adjuvant Therapy

Decisions for Breast Cancer.” Presented at: Cancer Prevention and Control Conference Series (Ireland

Cancer Center/MetroHealth Medical Center). Cleveland, OH; October 1996.

Ravdin PM, Siminoff LA, Harvey JA. “Survey of American Women Who Have Received Adjuvant

Chemotherapy.” Presented at: 19th Annual San Antonio Breast Cancer Symposium. San Antonio, TX;

December 1996.

Erlen JA, Sereika SM, Siminoff LA. “The Relationship between Quality of Care and Patient Satisfaction

in Patients with AIDS.” Presented at: Nursing Research Conference. Dayton, OH; February 1997.

Sutton LB, Glad J, Erlen J, Siminoff LA. “Recruiting Persons With AIDS for Research: Barriers and

Strategies.” Presented at: Eastern Nursing Research Society Conference. Philadelphia, PA; April 1997.

Erlen JA, Sereika SM, Siminoff LA. “Factors Related to the Quality of Nursing Care of AIDS Patients.”

Presented at: Eastern Nursing Research Society Conference. Philadelphia, PA; April 1997.

Ravdin PM, Siminoff LA, Harvey JA. “Attitudes of Breast Cancer Patients Who Have Received

Chemotherapy.” Presented at: Annual Meeting of the American Society of Clinical Oncologists. Denver,

CO; May 1997.

Siminoff LA. “Patient Understanding and Information Giving: The Effect of Presentation of Graphical

Information on the Treatment Decisions of Older Breast Cancer Patients.” Presented at: Ireland Cancer

Center Blood Club Seminar. Cleveland, OH; May 1997.

Erlen JA, Sereika SM, Siminoff LA. “The Relationship between Outcomes and Quality of Care of AIDS

Patients.” Presented at: Sigma Theta Tau International Research Conference. Vancouver, BC, Canada;

June 1997.

Siminoff LA. “Consent to Organ Donation: Who Donates, Who Doesn’t, and What Can We Do About

It?” Presented at: Association of Organ Procurement Organizations Annual Meeting. Chicago, IL; June

1997.

Siminoff LA. “How Patients Make Decisions Approaches in Breast Cancer: Today’s Challenges.”

Presented at: University Hospitals of Cleveland. Cleveland, OH; October 1997.

Siminoff LA. “Communicating with Alzheimer’s Disease Patients.” Presented at: University of

Pittsburgh Alzheimer’s Disease Research Center. Pittsburgh, PA; October 1997.

Siminoff LA. “African-American Perspectives on Organ Donation.” Presented at: Fourth International

Society for Organ Donation Congress. Washington, DC; July 1997.

Siminoff LA. “Making Decisions with Breast Cancer Patients Rather Than for Them.” Presented at: Dana

Farber Cancer Center. Boston, MA; February 1998.

Siminoff LA. “Breast Cancer Adjuvant Decision Making.” Presented at: Case Western Reserve

University Medical School (Medical Grand Rounds). Cleveland, OH; March 1998.

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Siminoff LA. “Communicating with Older Breast Cancer Patients: Challenges and Issues.” Presented at:

Cleveland VA Medical Center (Division of Geriatric). Cleveland, OH; April 1998.

Siminoff LA, Ravdin PM, et al. “The Psycho-Social Impacts of Breast Cancer.” Presented at: UICC and

the Swiss Cancer League. Luzern, Switzerland; April 1998.

Siminoff LA, Ravdin PM, et al. “Impact of a Computer-Based Tool for Providing Individualized

Estimates of Outcomes Breast Cancer Patients.” Presented at: Annual Meeting of the American Society of

Clinical Oncology. Los Angeles, CA; May 1998.

Siminoff LA. “Update on the National Organ Procurement Study.” Presented at: Semi-Annual Meeting

of the Ohio State Organ Procurement Organizations. Columbus, OH; May 1998.

Siminoff LA. “A New Framework for Thinking about Informed Consent: An Empirical Study.”

Presented at: Annual Bioethics Summer Retreat. Brewster, MA; June 1998.

Siminoff LA. “Consent for Pediatric Organ Donation.” Presented at: LifeBanc Seminar. Cleveland, OH;

September 1998.

Siminoff LA. “New Results from the National Study into Family Consent to Organ Donation.” Presented

at: Fifth Biennial Conference on Psychiatric, Psychosocial and Ethical Issues in Organ Transplantation.

Cleveland, OH; October 1998.

Siminoff LA, Silverman M. “Telling Patients the Diagnosis is Alzheimer’s Disease.” Presented at:

Annual Meeting of the Gerontological Society of America. Philadelphia, PA; November 1998.

Siminoff LA. “Organ Procurement and Democracy: Issues and Controversies.” Presented at: Messer

Conference Plenary Session in Bioethics and Medicine (University of Pittsburgh). Pittsburgh, PA; April

1999.

Siminoff LA. “Breast Cancer Patients’ Participation in Adjuvant Therapy Treatment Decision-Making.”

(Plenary Speaker) Presented at: International Conference on Treatment Decision-Making in the Clinical

Encounter (McMaster University). Hamilton, ON; May 1999.

Siminoff LA. “Decoupling Does Not Work- The Data That Proves It.” (Plenary Speaker) Presented at:

24th Annual Meeting of the National Association of Transplant Coordinators (NATCO). Albuquerque,

NM; July 1999.

Ibrahim SA, Burant CJ, Siminoff LA, Kwoh CK. “Perceptions of Quality of Life in Patients with Chronic

Knee and Hip Differences Between African-Americans and White Veterans.” Presented at: Society of

General Internal Medicine (Midwest Division Meeting). Chicago, IL; September 1999.

Siminoff LA. “Organ Procurement and Policy.” Presented at: Annual Meeting of the American Nursing

Association (Dialysis Nurses Section). Seven Springs, PA; October 1999.

Siminoff LA. “Results from the NIH Informed Consent Initiative.” Presented at: Annual Meeting of the

American Society for Bioethics and Humanities. Philadelphia, PA; October 1999.

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Ibrahim SA, Burant CJ, Siminoff LA, Kwoh CK. “Health-related Attitudes/Beliefs Among Elderly,

African-American and White Veterans With Chronic Knee and/or Hip Pain.” (Poster) Presented at: VA

HSR&D Annual Conference. Washington, DC; March 2000.

Siminoff LA. “Required Request: Determinants of Family Consent.” Presented at: UNOS Region 10

Transplant Forum. Cleveland, OH; April 2000.

Siminoff LA. “What the Empirical Data Tells Us are ‘Best Practices’ for Consent to Organ Donation.”

Presented at: UNOS Forum on Best Practices. San Antonio, TX; May 2000.

Siminoff LA. “Ethical Issues and Organ Transplantation.” (Keynote Address) Presented at: The

McMahon-Coburn Ethics Colloquium (University of Texas). Dallas, TX; May 2000.

Siminoff LA. “Consent Issues.” Presented at: Association of Organ Procurement Organizations 17th

Annual Meeting (AOPO). Asheville, NC; June 2000.

Siminoff LA. “Informed Consent in Dementia.” Presented at: Clinical, Behavioral and Social Science Research

Conference (University Alzheimer’s Center). Cleveland, OH; June 2000.

Siminoff LA. “The Future of Organ Procurement: Thoughts for the 21st Century.” (Keynote Speaker)

Presented at: Mid-America Transplant Services Board Retreat. Colorado Springs, CO; September 2000.

Siminoff LA. “Organ Procurement Policy and Its Implications for Hospitals.” Case Western Reserve University

Medical School (Department of Medicine-Grand Rounds). Cleveland, OH; October 2000.

Siminoff LA. “Informed Consent for Tissue Donation.” Presented at: Ethics of Tissue Banking Project (II).

Cleveland, OH; October 2000.

Trauth J, Jernigan J, Neal-Ferguson D, Siminoff LA, Weissfeld J. “Recruitment Decisions of African-

American Women Regarding Participation With the PLCO Cancer Screening Trial.” Presented at:

American Public Health Association Annual Meeting. Boston, MA; November 2000.

Ang DC, Ibrahim S, Burant CJ, Siminoff LA, Kwoh CK. “Does Perception of the Role of Prayer in

Arthritis Treatment Account for the Differential Rates of Joint Replacement between African Americans

and Whites.” Presented at: ACR 64th Annual Scientific Meeting. Washington, DC; November 2000.

Kwoh CK, Burant CJ, Siminoff LA, Ibrahim SA. “Do African American and White Veterans With

Chronic Knee and Hip Pain Differ with Respect to Their Knowledge About Joint Replacement Surgery

and Its Risks and Benefits?” (Poster) Presented at: Annual Meeting of the Gerontological Society.

Washington, DC; November 2000.

Kodish ED, Drotar D, Siminoff LA. “Ethical Implications of Informed Consent: Informed Consent in

Pediatric Research.” Presented at: American Society for Bioethics and Humanities Annual Meeting. Salt

Lake City, UT; 2001.

Siminoff LA. “Optimizing Donation Outcomes.” Presented at: Life Sharing Organ Procurement

Organization Annual Meeting. San Diego, CA; April 2001.

Siminoff LA. “Decision Aids for Cancer Treatment: What Are They and Do They Work?” Presented at:

University of Hawaii (Visiting Professor Lecture). Honolulu, HI; April 2001.

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Siminoff LA, Ravdin PM, Hewlett J, Parker H, Mercer MB, Davis G. “Evaluation of the Impact of a

Communication Tool Generated by the Computer Program ‘Adjuvant,’ on Patients with Early Breast

Cancer and Their Doctors.” Presented at: ASCO Annual Meeting. San Francisco, CA; May 2001.

Siminoff LA. “Decision Aids and Communicating with Breast Cancer Patients.” Presented at: Ireland

Cancer Center Blood Club Seminar. Cleveland, OH; September 2001.

Siminoff LA. “Graduate Education in Bioethics: A Ph.D. Program in Empirical Bioethics.” American

Society for Bioethics and Humanities Annual Meeting. Nashville, TN; October 2001.

Graham GC, Burant CJ, Kwoh CK, Siminoff LA, Ibrahim SA. “Knee/Hip Osteoarthritis Severity and

Depression in Older Patients: Developing and Testing a Causal Model.” (Poster/Abstract) Presented at:

Annual Meeting of the Gerontological Society of America. Washington, DC; November 2001.

Burant CJ, Kwoh CK, Siminoff LA, Ibrahim SA. “Patient Factors Associated with ‘Willingness’ to

Undergo Joint Replacement: A Study of Elderly Male Patients with Osteoarthritis.” (Poster/Abstract)

Presented at: Annual Meeting of the Gerontological Society of America. Washington, DC; November

2001.

Ibrahim SA, Burant CJ, Siminoff LA, Kwoh CK. “Perceptions of Access to Medical Care Among Elderly

African-American and White Veterans Attending Primary Care Clinics.” Presented at: VA HSR&D

Annual Conference. Washington, DC; 2001.

Siminoff LA. “Factors Influencing Consent to Donate Organs.” Presented at: Scientific Registry of

Transplant Recipients (University Renal Research and Education Association). Ann Arbor, MI; April

2002.

Siminoff LA. “Decision Aids and Their Use in Clinical Trial Settings.” Presented at: Southwest

Oncology Group (SWOG) Spring Group Meeting. Dallas, TX; April 2002.

Siminoff LA. “Working in Harmony: What Tissue Donors Want To Know.” Presented at: National

Kidney Foundation (Transitions in Transplantation). Orlando, FL; June 2002.

Siminoff LA. “Public Understanding of Death.” Presented at: American Society of Bioethics and

Humanities. Baltimore, MD; October 2002.

Peele P, Siminoff LA. “Value of Information: Women’s Choice of Cancer Treatment.” Presented at:

Southern Economic Association Annual Meeting. New Orleans, LA; November 2002.

Siminoff LA. “Measurement Issues in the Study of Organ Donation.” Presented at: Second Chance Trust

Fund Conference (Ohio Department of Health). Columbus, OH; November 2002.

Siminoff LA. “Attitudes and Practices Affecting Organ Donation by the African American Community.”

(Keynote Speaker) Presented at: Annual MOTTEP Meeting. Cleveland, OH; November 2002.

Siminoff LA. “Family Consent: Developing a Model Intervention to Increase Consent to Organ

Donation.” (Plenary Speaker) Presented at: UNOS Research to Practice: A National Consensus

Conference. Orlando, FL; April 2003.

Siminoff LA. “Decision Aids for Cancer Patients.” Presented at: University of New Mexico Cancer

Center. Albuquerque, NM; April 2003.

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Siminoff LA. “Understanding Consent to Tissue Donation: Knowing Family’s Needs and Engendering

Trust.” (Plenary Speaker) Presented at: Association of Organ Procurement Organizations (AOPO).

Philadelphia, PA; June 2003.

Siminoff LA. “Factors that Affect Consent to Organ Donation: HRSA Expert Panel on Organ Donation.”

Washington, DC; June 2003.

Siminoff LA. “Comparing Consent Practices to Randomized Controlled Trials for Cancer Patients with

Those for Alzheimer’s Disease and Critically Ill Pediatric Patients: A Comparison of Communication

Styles and Practices.” Presented at: Panelist for Communication (Medicine and Ethics Conference).

Cardiff, Wales, UNITED KINGDOM; June 2003.

Peele PB, Siminoff LA, Xu Y. “The Impact of an Evidence-Based Decision Tool in Adjuvant Therapy

for Breast Cancer.” Presented at: 5th International Conference on the Scientific Basis of Health Services.

Washington, DC; September 2003.

Peele PB, Xu Y, Siminoff LA. “Evidence-based Information and Women’s Choice of Adjuvant Breast

Cancer Therapy.” Presented at: Southern Economic Association, San Antonio, TX; November 2003.

Siminoff LA. “Comparing Consent Practices to Randomized Controlled Trials for Cancer Patients with

Those for Alzheimer’s Disease and Critically Ill Pediatric Patients: A Comparison of Communication

Styles and Practices.” Presented at: National Communication Association Convention. Miami, FL;

November 2003.

Siminoff LA. “Communication and Informed Consent: Empirical Perspectives.” Presented at: European

Association on Communication & Health (EACH). Bruges, Belgium; September 2004.

Siminoff LA. “Ethical and Policy Dilemmas with Financial Incentives for Organ Donation: Early

Referral Study Results.” Presented at: Mid-America Transplant Services Board Retreat. Williamsburg,

VA; October 2004.

Siminoff LA. “A Comparison of the Informed Consent Process in Pediatric and Adult Oncology.”

Presented at: American Society of Bioethics and Humanities. Philadelphia, MD; October 2004.

Siminoff LA. “Organ Donation Among the African American Community.” Presented at: The Douglas-

Satcher Lecture Series, University Hospitals. Cleveland, OH; November 2004.

Siminoff LA, Graham G, Gordon N. “Disparities in Doctor-Patient Communication Patterns of Breast

Cancer Patients: The Influence of Socioeconomic and Demographic Factors.” Presented at: The

American Psychosocial Oncology Society (APOS). Phoenix, AZ; January 2005.

Zhang A, Siminoff LA. “Silence and Cancer: Why Do Families and Patients Fail to Communicate?”

Presented at: The American Psychosocial Oncology Society (APOS). Phoenix, AZ; January 2005.

Appelt CJ, Ibrahim SA, Burant CJ, Siminoff LA, Kwoh CK. “Arthritis-Specific Health Beliefs among

Older Male Patients with Knee/Hip Osteoarthritis.” Presented at: Plenary Paper Session, VA HSR&D

Annual Conference. Baltimore, MD; February 2005.

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Siminoff LA. “Systematic Approaches for Obtaining Consent to Organ Donation.” Presented at: 2nd

Annual Michigan Conference on Organ Donation, International Association for Organ Donation. April

2005.

Siminoff LA. “Determinants of Organ Donation”. Presented at: Workshop on Increasing Rates of Organ

Donation, Institute of Medicine. Washington, DC; June 2005.

Siminoff LA. “Perception of Brain Death and Organ Donation.” (Keynote Speaker) Presented at: Swiss

Science Foundation Conference on Psychological Issues of Organ Donation. Bern, Switzerland;

September 2005.

Siminoff LA. “Empirical Bioethics: Can Empirical Approaches Be Used to Understand Consent to

Organ Donation.” Presented at: American Society for Bioethics & Humanities. Washington DC; October

2005.

Siminoff LA, Graham G, Gordon N. “Cancer Communication Patterns and the influence of Patient

Characteristics: Disparities in Information-Giving and Affective Behaviors.” Presented at: EACH and

AAVP Joint Meeting. Chicago, IL; October 2005.

Siminoff LA. “Setting a Research Agenda for Clinical Decision Making Tools.” Panelist for Special NCI

– Sponsored Symposium at the Annual Meeting Society for Medical Decision Making. San Francisco,

CA; November 2005.

Siminoff LA. “Informed Consent: Ethical and Empirical Consideration.” Presented at: Center for Values,

Ethics and the Law in Medicine, University of Sydney. Sydney Australia; March 2006.

Siminoff LA. “Coding Conversations: Opening the Black Box of Decision – Making to Improve Cancer

Patient Care.” Presented at: Cancer Council of New South Wales (Australia), Sydney, Australia; March

2006.

Siminoff LA. “ Organ Donation: Ethics, Policy and Behavior in Conflict.” School of Psychology,

University of Sydney. Sydney, Australia; April 2006.

Siminoff LA. “Coding Conversations: Research Tools to Understand and Improve Cancer

Communication.” Presented at: Grand Rounds, Memorial Sloan Kettering. New York City, NY; May

2006.

Siminoff LA. “Issues in Organ Donation.” The President’s Council on Bioethics. Washington, DC; June

2006.

Siminoff LA. “Making Optimal Treatment Decisions: Communicating with and Listening to Cancer

Patients.” Presented at: MCV Annual Alumni Association Continuing Education Program. Richmond,

VA; April 2007.

Siminoff LA. “Shared Decision Making, Ethics and Communication: What do oncologists need to

know?” Presented at: American Society of Clinical Oncology Annual Meeting. Chicago, IL; June 2007.

Siminoff LA. “Specialist to Patient: Effective Communication Strategies.” Presented at: Physician

Education Resource Cancer Conferences. Hilton Head, SC; September 2007.

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Step MM, Rose J, Siminoff LA. “Differences in Oncologist Initiated Relational Communication

Messages toward Middle Aged and Older Breast Cancer Patients.” Presented at: International Conference

on Communication in Healthcare. Charleston, SC; October 2007.

Siminoff LA, Bowen G, Marshall HM. “Results from the Early Referral and Request Model Study.”

Presented at: HRSA Division of Transplantation. Nashville, TN; October, 2007.

Siminoff LA, Step M, Rose J. “Coding Conversational Data: Approaches, Challenges and a New System

for Data Coding.” Presented at: IPOS 10th World Congress of Psycho-Oncology. Madrid, Spain; June

2008.

Siminoff LA, Step M. “Importance of Relational Communication to Cancer Care: Measurement and

Outcomes.” Presented at: EACH International Conference on Communication in Healthcare. Oslo,

Norway; September 2008.

Siminoff LA. “Overcoming Obstacles to Conducting Effective Clinical Trials.” Presented at: National

Commission on Cancer. Baltimore, MD; July 2008.

Siminoff LA, Rogers H, Maghboeba M. “Influence of Gender and Race on Diagnostic Delay in Colon

Cancer.” Presented at: Cancer Health Disparities Summit. Bethesda, MD; July 2008.

Siminoff LA. “Communicating with Cancer Patients: Challenges and Approaches.” Presented at:

Wampler Lecture, Internal Grand Rounds, Virginia Commonwealth University School of Medicine.

Richmond, VA; September 2008.

Siminoff LA. “Understanding Consent to Tissue Donation.” Presented at: NATCO/AATB Tissue

Webinar. April 2009.

Robbins N, Haddad E, Siminoff LA, Quittner A, Rogan B, Speiser P, Mercer MB, Sandberg DE.

“Parental Decision Making: A Contextual Analysis.” Presented at: Midwest Conference on Pediatric

Psychology. Kansas City, MO; April 2009.

Robbins, N, Haddad E, Siminoff LA, Quittner A, Kogan B, Speiser P, Mercer MB, Sandberg DE.

“Parental Medical Decision Making: A Contextual Analysis” Presented at: Midwest Conference on

Pediatrics Psychology. Kansas City, MO; April 2009.

Siminoff LA. “Consenting Patients to Randomized Clinical Trials.” Presented at: American Society of

Clinical Oncology Annual Meeting. Orlando, FL; June 2009.

Marshall HM, Siminoff LA. “Improving rates of living donation among minority populations.” Presented

at: The Transplantation Society Key Opinion Leader Meeting. Jackson Hole, WY; July 2009.

Siminoff LA. “Organ and tissue donation in the USA: Using multimethod research to understand and

address the organ shortage.” Presented at: International Distinguished Lecture Series and the National

Health Service, University of Southampton, School of Health Sciences. Southampton, United Kingdom;

October 2009.

Siminoff L, Rogers H, Maghboeba M. “Predictors of Diagnostic Delay in Colorectal Cancer.” Presented

at: American Public Health Association Annual Meeting, Philadelphia, PA; November 2009.

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Siminoff LA. Psychiatry Grand Rounds: “Interpersonal Communication and Organ Donation.” Presented

at: Virginia Commonwealth University. Richmond, VA; February 2010.

Ford ME, Siminoff LA, Pickelsimer E, et.al. “Enhancing Diversity in Clinical Trials; Solutions from

Community Members.” Presented at: American Association for Cancer Research. Washington DC, April

2010.

Brown RF, Penberthy L, Siminoff LA, Shickle L, Dahman BA. “The Impact of Race on Reasons for

Ineligibility and Refusal to Cancer Clinical Trials.” Presented at: International Psycho-Oncology Society

(IPOS). Quebec City, PQ, Canada; May 2010.

Siminoff LA, Rogers HL. “A Qualitative Study of Diagnostic Delay in 50 Recently Diagnosed Colorectal

Cancer Patients.” Presented at: International Psycho-Oncology Society (IPOS). Quebec City, PQ, Canada;

May 2010.

Siminoff LA. Pilot Workshop on Behavioral and Social Sciences Research: Engaging Patients and

Providers in Patient-Centered Primary Care. “Effective Patient-Centered Clinical Communication.”

Presented at: National Institutes of Health, Centers of Medicare and Medicaid Services. Baltimore, MD;

June 2010.

Stern M, Lamanna, Russell C, Siminoff LA, Dillion R, Godder K. “Communication of Adolescents with

Cancer and their Health Care Providers During an End of Active Treatment Medical Appointment.”

Presented at: The 11th International Conference on Long-Term Complications of Treatment of Children

and Adolescents for Cancer. Williamsburg, VA; June, 2010.

Siminoff LA, Rogers, HL. “Factors Related to Appraisal and Diagnostic Delay: A Qualitative Study of

Colorectal Cancer Patients.” Presented at: International Congress of Behavioral Medicine. Washington,

DC; August 2010.

Zhang AY, Strauss GJ, Siminoff LA. “Effects of Combined Pelvic Floor Muscle Exercises and Support

Group on Urinary Incontinence and Quality of Life of Patients with Prostatectomy.” Presented at: World

Cancer Congress of International Union Against Cancer (UICC). Shenzhen, China; August 2010.

Zhang AY, Siminoff LA. “Differential Patient Opinions of Treatment and Care for Advanced Lung

Cancer Patients.” Presented at: World Cancer Congress of International Union Against Cancer (UICC).

Shenzhen, China; August 2010.

Siminoff LA, Rogers HL. “Factors Associated with Diagnostic Delay in Patients Recently Diagnosed

with Colorectal Cancer.” Presented at: European Association Communication and Health (EACH).

Verona, Italy; September 2010.

Siminoff LA. “Making the Diagnosis: the Role of Communication in Colorectal Cancer.” ICTS Visiting

Professor, University of Iowa. Iowa City, IA; November 2010.

Siminoff LA. “Diagnostic Delay and Colorectal Cancer.” Presented at: Karmanos Cancer Institute Grand

Rounds. Detroit, MI; April 2011.

Siminoff LA. “Coding Conversational Data for Content and Affect.” Presented at: DC Health

Communication Conference, George Mason University. Fairfax, VA; May 2011.

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Siminoff LA. “Consent to Organ Donation: It’s More Than Just Knowing How to Talk – What’s the

Evidence?” (Keynote Address) Presented at: Art and Science of Authorization for Organ Donation.

Chicago, IL; May 2011.

Siminoff LA. “Early Referral and Approach (ERRA) Model to Improve Consent: Process, Progress, and

Interim Results.” Presented at: Association of Organ Procurement Organizations. Denver, CO: June 2011.

Siminoff LA. “Recruiting subjects for clinical research outside the academic setting.” Presented at: VCU

5th Thursday for Human Research Ethics. Richmond, VA; September 2011.

Siminoff LA, Shafer T, Traino H, Alolod G. “The Early Referral and Request Approach (ERRA)

Model.” Presented at: AOPO Annual Meeting. Fort Worth, TX; November 2011.

Siminoff LA. “Responding to NIH Summary Statements.” Presented at: VCU CTSA Seminar.

Richmond, VA; December 2011.

Siminoff LA. “Creating Health Care Policy about Organ Donation through Empirical Data.” Presented at:

VCU Public Health Seminar. Richmond, VA; January 2012.

Siminoff LA. “Strategies to Secure NIH funding in the Age of Scarcity.” Presented at: Race, Ethnicity,

and Disabilities Conference. Arlington, VA; March 2012.

Siminoff LA. “US Strategies to Increase Consent.” Presented at: DonateLife Network Forum. Brisbane,

Australia; March 2012.

Siminoff LA. “Communication in Health Care Settings.” Presented at: DonateLife Network Forum.

Brisbane, Australia; March 2012.

Siminoff LA. “Organ Donation and End-Of-Life.” Presented at: DonateLife Network Forum. Brisbane,

Australia; March 2012.

Siminoff LA. “Evaluation of Hospital Processes of Organ Donation Activities in the Hospital Setting:

Integration and Organizational Challenges.” Presented at: DonateLife Network Forum. Brisbane,

Australia; March 2012.

Thomson MD, Siminoff LA. “The influence of patient characteristics on symptom recognition and

appraisal by patients diagnosed with colorectal cancer (CRC)." Presented at: 2012 Canadian Association

of Psychosocial Oncology Conference. Vancouver, BC, Canada; April 2012.

Siminoff LA. “Consent to Organ & Tissue Donation: US Policies & Strategies to Increase Consent.”

Presented at: British Association for Tissue Banking XXth Annual Scientific Meeting. Oxford, United

Kingdom; May 2012.

Siminoff LA. “Tissue Donation and the Research Enterprise: Genotype Tissue Expression Initiative, the

Ethical, Legal and Social Issues (ELSI) Sub-Study.” Presented at: British Association for Tissue Banking

XXth Annual Scientific Meeting. Oxford, United Kingdom; May 2012.

Siminoff LA, Long-Sutehall T. “Tissue Consent Workshop.” Presented at: British Association for Tissue

Banking XXth Annual Scientific Meeting. Oxford, United Kingdom; May 2012.

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Siminoff LA, Shafer T, Traino HM, Alolod GP. “Communicating Effectively about Donation.” Presented

at: Health Resources and Services Administration, Division of Transplantation, Grantee Workshop.

Denver, CO; August 2012.

Siminoff LA. “Making Decisions When You Disagree with the Doctor: The Social/Family Context.”

Presented at: John M. Eisenberg Center for Clinical Decisions and Communications - 2012 White Paper

Series Meeting. Rockville, MD; September 2012.

Siminoff LA, Rogers HL, Harris-Haywood S, Thompson M. “Facilitating cancer diagnoses: the role of

task versus relational communication during primary care consultations.” Presented at: European

Association Communication and Health (EACH). St. Andrews, Scotland; September 2012.

Traino HM, Siminoff LA. "Broaching the Unexpected: The Impact of Relational and Instrumental

Communication in the Introduction of Unanticipated Conversations.” Presented at: European Association

Communication and Health (EACH). St. Andrews, Scotland; September 2012.

Step M, Siminoff LA. “Observational Measure of Doctor’s Verbal Confirmation and Disconfirmation of

Patients’ in Cancer and Primary Care.” Presented at: European Association Communication and Health

(EACH). St. Andrews, Scotland; September 2012.

Thomson MD, Siminoff LA. “Age-related differences in colorectal cancer symptom recognition and

communication with physicians.” Presented at: European Association Communication and Health

(EACH). St. Andrews, Scotland; September 2012.

Thomson MD, Siminoff LA. “Influence of insurance status on patterns of care-seeking among colorectal

cancer patients”. Presented at: American Public Health Association 2012 Annual Conference. San

Francisco, CA; October 2012.

Siminoff LA, Rogers, HL, Sonja Harris-Haywood, MD, Maria Thompson, PhD. “Diagnostic delay in

colorectal cancer: Sociodemographic and communication factors.” Presented at: IPOS World Congress of

Psycho-Oncology, Brisbane, Australia; November 2012.

Siminoff LA, Traino HM. “Communicating Effectively about Donation.” Presented at: United Network

for Organ Sharing. Richmond, VA; October 2013.

Traino HM, Siminoff LA. “Keep it going: maintaining health conversations using relational and

instrumental approaches.” (Poster) Presented at: National Communication Association 99th Annual

Convention. Washington, DC; November 2013.

Thomson MD, Siminoff LA. “Exploring the association of patient age and symptom presentation on

physician diagnostic decisions for colorectal cancer.” Presented at: 15th World Congress of Psycho-

Oncology. Rotterdam, The Netherlands; November 2013.

Siminoff LA. “The Value of Empirical Research to Bioethics: Methods and Examples.” Bioethics

Weekly Conference President’s Bioethics Commission. Washington, DC; December 2013.

Siminoff LA. “Successfully Managing Your R01.” Presented at: NCI Division of Cancer Control and

Population Sciences 20114 New Grantee Workshop. Rockville, MD; January 2014.

Siminoff LA. “Shared Decision Making in DSD.” Presented at: The Transplantation Society, Pediatric

Donor Meeting. Geneva, Switzerland; March 2014.

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Siminoff LA, Traino HM, Alolod GP, Adair-Kriz M, Shafer T. “Communicating Effectively about

Donation (CEaD): Communicating about Choices in Transplantation.” Presented at: 31st Annual Meeting

of the Association for Organ Procurement Organizations. Baltimore, MD; June 2014.

Siminoff LA. “Communicating Effectively About Donation (CEaD): Results and New Developments

(Abstract #738).” Presented at: World Transplant Congress. San Francisco, CA; July 2014.

Siminoff LA. “Communicating Effectively About Donation (CEaD): Results of the National Randomized

Trial and New Developments.” Presented at: NATCO. San Antonio, TX; August 2014.

Siminoff LA, Traino HM, Barker LK, Adair-Kriz M. “The Impact of the Ethical, Legal and Social Issues

Project.” Presented at: National Disease Research Interchange. Philadelphia, PA; August 2014.

Siminoff LA. “Primary Care Physicians Communication Differences Based on Unannounced

Standardized Patient Gender and Race.” Presented at: European Association for Communication in

Healthcare, International Conference on Communication in Healthcare. Amsterdam, The Netherlands;

September 2014.

Siminoff LA. “NIH Opportunity for Funding.” Presented at the University of Deusto. Bilbao, Spain;

October 2014.

Siminoff LA. “Authorization and Why Families Say Yes.” Texas Transplantation Society Annual

Meeting. San Antonio, TX; July 2015.

Siminoff LA. “Women in Transplant.” Presented at: Texas Transplantation Society Annual Meeting. San

Antonio, TX; July 2015.

Siminoff LA. “Authorization and Why Families Say Yes.” Presented at: International Society for Organ

Donation and Procurement Webinar. April 2015.

Siminoff LA, Barker KA. “It’s all about donors: Attitudes towards donations for research purposes.”

Presented at: NIH GTEx Symposium: All Things Considered---Bio specimens, ‘omics data, and ethical

issues. Bethesda, MD; May 2015.

Traino HM, Alolod GP, Siminoff LA. “Communicating Effectively about Donation:

What have we learned?” Presented at: 40th Annual Meeting of the North American Transplant

Coordinators Organization. Louisville, KY; August 2015.

Traino HM, Molisani AJ, Siminoff LA. “Geographic variation in the process and outcomes of requests

for solid organ donation.” Presented at: International Conference on Communication in Healthcare. New

Orleans, LA; October 2015.

Traino HM, Molisani AJ, Siminoff LA. “A comparison of the quality and content of communication in

requests for adult and pediatric organ donation.” Presented at: International Conference on

Communication in Healthcare. New Orleans, LA; October 2015.

Traino HM, Molisani AJ, Siminoff LA. “Geographic variation in the process and outcomes of requests

for solid organ donation.” Presented at: 13th Congress of the International Society for Organ Donation and

Procurement. Seoul, South Korea; October 2015.

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Traino HM, Molisani AJ, Siminoff LA. “A comparison of the quality and content of communication in

requests for adult and pediatric organ donation.” Presented at: 13th Congress of the International Society

for Organ Donation and Procurement. Seoul, South Korea; October 2015.

Alolod GP, Traino HM, Siminoff LA. “Usability of the Rapid Assessment of hospital procurement

barriers in Donation (RAPiD) as a tool for OPO hospital development staff.” Presented at: 13th Congress

of the International Society for Organ Donation and Procurement. Seoul, South Korea; October 2015.

Siminoff LA. “Race and Gender Effects on Timely Colorectal Cancer Diagnosis: Methods and results

from a Standardized Patient Study.” Presented at: Moffitt Cancer Center. Tampa, FL; March 2016.

Siminoff LA, Thomson M. “Examining Gender and Employment in Caregiving Burden.” Presented at:

Society for Behavioral Medicine. Washington, DC; March 2016.

Siminoff LA. “Direct Observation – Informal Caregiver Burden in Advanced Cancer: Economic and

Health Outcomes.” (Diamond Jubilee Visiting Fellow) Presented at: University of Southampton.

Southampton, United Kingdom; May 2016.

Siminoff LA. “Research in Complex and Varied Environments.” (Diamond Jubilee Visiting Fellow)

Presented at: University of Southampton. Southampton, United Kingdom; May 2016.

Siminoff LA. “Family-Patient Communication and Economic Outcomes.” Presented at: Fox Chase

Cancer Center Hematology Oncology Research Meeting. Philadelphia, PA; July 2016.

Siminoff LA. “Success in Organ Donation: The Role of Hospital Health Care Providers.” Presented at:

Temple University Hospital Grand Rounds. Philadelphia, PA; September 2016.

Siminoff LA. “Ethical, Social and Legal Implications of the GTEx Project.” Presented at: 9th Annual

Biorepositories and Sample Management Conference. Boston, MA; October 2016.

Alolod GP, Siminoff LA, Traino HM, Wilson-Genderson M. “Comparing the authorization approach and

outcomes of donation after circulatory death (DCD) and donation after brain death (DBD): results from a

U.S. study.” Presented at: 7th International Meeting on Transplantation from Donation after Circulatory

Determination of Death (DCD). Barcelona, Spain; October 2016.

Siminoff LA. “Informal Caregiver Burden in Advanced Cancer: Economic and Health Outcomes.”

(Diamond Jubilee Visiting Fellow). Presented at: University of Southampton. Southampton, United

Kingdom; November 2016.

Siminoff LA. “Decision Making, Donor and Non Donor Knowledge and Attitudes Regarding GTEx.”

Presented at: GTEx Steering Committee Meeting. Washington DC; December 2016.

Siminoff LA. “GTEx ELSI Sub-Study.” Presented at: GTEx Steering Committee and Community

Meeting. Washington DC; June 2017.

Siminoff LA. “Communicating Effectively about Donation: An Effectiveness and Implementation

Study.” Presented at: Technical Assistance Workshop, Division of Transplantation, HRSA WebEx.

August 2017.

Siminoff LA. “Successfully Managing an R01.” Presented at: NCI DCCPS Workshop. Bethesda, MD;

September 2017.

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Traino HM, Gordon E, Agu C, Siminoff L, Alolod G, Kim R, Gonzalez T, Montalvo A, Lopez E,

Munoz O, Arriola J, Benitez A, Hernandez I, Guinansaca N. “Organ donation attitudes and behaviors

among older Hispanic women and Hispanic community health workers: Formative research to inform a

culturally-competent mobile health education intervention.” Presented at: 14th Congress of the

International Society for Organ Donation & Procurement. Geneva, Switzerland; September 2017.

Agu C, Gordon E, Siminoff L, Alolod G, Kim R, Gonzalez T, Montalvo A, Lopez E, Munoz O,

Arriola J, Benitez A, Hernandez I, Guinansaca N, Traino H. “Organ donation attitudes and behaviors

among older Hispanic women and Hispanic community health workers: Formative research to inform a

culturally-competent mobile health education intervention.” Presented at: American Public Health

Association 2017 Annual Meeting and Expo. Atlanta, GA; November 2017.

Siminoff LA, Matsuyama R, Van Houtven, C. “Intensity of Cancer Patient Caregiving and Its

Implications for Financial, Physical, and Psychological Well-Being of Caregivers.” Presented at:

International Psycho-Oncology Society (IPOS). Hong Kong, HK; October 2018.

Thomson M, Siminoff LA. “Navigating Role Changes: How Cancer Caregivers Maintain Employment.”

Presented at: International Psycho-Oncology Society (IPOS). Hong Kong, HK; October 2018.

Siminoff LA, Matsuyama R, Van Houtven C. “New Observational Methods to Collect Data from

Caregivers of Late State Cancer Patient. Presented at: International Psycho-Oncology Society (IPOS).

Hong Kong, HK; October 2018.

ACTIVE RESEARCH

Informal caregiver Burden in Advanced Cancer: Economic and health outcomes

Principal Investigator

R01CA196576/National Institutes of Health/ National Cancer Institute

2015 – 2020

$3,826,245

Understanding and Planning Donation Information Needs of Asian American Communities

Principal Investigator

R01 DK114881-01/National Institutes of Health/NIDDK

2017 – 2022

$1,170,000

Developing a Communication Approach to Discuss VCA Donation with Families Who Have Authorized

Organ Donation

Partnering Principal Investigator

RT170071/Department of Defense

2018 – 2021

$1,500,000

PAST RESEARCH

Description and Correlates of Breast Cancer Adjuvant Treatment Decisions

Principal Investigator

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HS0545/National Cancer for Health Services Research

1986 – 1987

$10,000

Health Services Improvement Fund Grant Dissertation Research

Principal Investigator

Blue Cross and Blue Shield of Greater New York

1986 – 1987

$20,000

Decision-Making When Entering the Hospital

Co-Investigator

MacArthur Foundation

1990

Referral to Cancer Trials: A Population Based Model

Principal Investigator

R01 CA49641/National Cancer Institute

1990 – 1993

$500,000

Organ Procurement: Dilemmas of Required Request

Principal Investigator

R01 HS06579/Agency for Health Care Policy and Research

1990 – 1993

$1.2 Million

AIDS and the Quality of Nursing Care

Co-Principal Investigator

R01 NR02664/National Institute for Nursing Research

1992 – 1995

Adult Science Literacy for Mental and Addictive Disorders

Co-Investigator

R25 MH50549/ADAMHA

1992 – 1995

Study of the Attitudes and Outcomes of Non Heartbeating Organ Donation

Co-Principal Investigator

Department of Anesthesiology and Critical Care Medicine Seed Money Grant, University of Pittsburgh

1994 – 1996

Disclosing a Diagnosis of Alzheimer’s Disease

Principal Investigator

University of Pittsburgh Alzheimer’s Disease Research Center, NIA Seed Money Grant

1995 – 1996

$20,000

Health Care Responses of Older African Americans

Co-Investigator

R01 AG1HS12899/National Institute on Aging

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1994 – 1997

Women and Minority Recruitment to Clinical Trials

Co-Principal Investigator

R03 CA73340/National Cancer Institute

1996 – 1998

Required Request: Determinants of Family Consent

Principal Investigator

R01 HS08209/Agency for Health Care Policy and Research

1994 – 1999

$2,066,243

Breast Cancer Adjuvant Therapy in Older Women

Principal Investigator

R01 CA71104/ National Cancer Institute/National Institute on Aging

1996 – 2001

$2,081,864

Ethnic/Cultural Variations in the Care of Veterans with Osteoarthritis

Co-Principal Investigator

ECV 97-014/ VA HSR&D

1997 – 2001

Revealing a Diagnosis of Alzheimer’s Disease to Patients and Subsequent Decision for Treatment and

Care

Principal Investigator

RG3 96-022/ Alzheimer’s Association

1997 – 1999

$115,000

Therapeutic Research Consent: Empirical and Ethical Analysis

Principal Investigator

R01 CA78210/National Cancer Institute

1997 – 2000

$600,000

Overcoming Barriers to Adequate Delivery of Hemodialysis

Co-Principal Investigator

R01 DK51472/National Institute of Diabetes, Digestive, and Kidney Diseases

1998 – 2001

Ethnic Differences in the Management of Patients with Ischemic Heart Disease

Principal Investigator

ECV 98-082/VA HSR&D

1999 – 2003

$791,800

Public Attitudes Toward the Definition of Death and Organ Procurement Policy

Co-Director

Greenwall Foundation

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1999 – 2002

$270,941

Public Attitudes Toward Death and Organ Procurement

Principal Investigator

R01-HS10047/Agency for Health Care Policy & Research

1999 – 2002

$300,012

Model Intervention to Increase Consent to Organ Donation

Principal Investigator

Wyeth-Ayerst Pharmaceuticals

1999

$5,000

Developing A Model Intervention to Increase Consent to Organ Donation

Principal Investigator

R13 H510074/Agency for Health Care Policy & Research

1999 – 2000

$25,000

Model Intervention to Increase Consent for Organ Donation

Principal Investigator

18-4-01-QDP-5D6/Second Chance Trust Fund, State of Ohio

1999 – 2000

$74,199

Characteristics of Long Term Breast Cancer Survivors

Co-Principal Investigator

R01 CA78517/National Cancer Institute

2000 – 2005

$487,163

Developing a Model Intervention to Increase Consent for Organ Donation

Principal Investigator

18-4-002-4-DP/Second Chance Trust Fund, State of Ohio

2001 – 2002

$82,896

Family Conflict and Decision Making for Advanced Cancer

Principal Investigator

R01 CA89513/National Cancer Institute

2001 – 2006

$1,216,519

Prevention Research Educational Postdoctoral Training Program

Program Director

R25-CA90355/National Cancer Institute

2001 – 2006

$2,011,227

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Developing a Model Intervention to Increase Consent for Organ Donation

Principal Investigator

18-4-001-4-DP/ Second Chance Trust Fund, State of Ohio

2002 – 2003

$98,819

Understanding Consent to Tissue Donation

Principal Investigator

R01 HS-13152/Agency for Healthcare Research and Quality

2002 – 2007

$2,707,402

Testing the Early Referral and Request Approach (ERRA) Model

Principal Investigator

R39 OTO 1126/Healthcare Resources and Services Administration (Division of Transplantation)

2003 – 2007

$1,046,216

Appraisal and Diagnostic Delay in Colon Cancer

Principal Investigator

R01 CA124607/National Cancer Institute

2008 – 2014

$3,776,487

Appraisal Delay and Disparities in Timely Cancer Diagnosis

Principal Investigator

R01 CA134280/National Cancer Institute

2008 – 2013

$1,359,819

ERRA Intervention to Increase Consent to Organ Donation

Principal Investigator

R39 0T1 0581/ Health Resources & Services Administration

2008 – 2012

$1,500,755

A Randomized Trial of the ERRA Intervention to Increase Consent to Organ Donation

Principal Investigator

R01 DK081118/National Institute of Diabetes and Digestive and Kidney Diseases

2009 – 2013

$3,069,220

Training Program in Behavioral and Health Services Cancer Control Research

Co-Principal Investigator

R25 CA142520-01 (relinquished grant on move to Temple University)/ National Institutes of Health/

National Cancer Institute

2011 – 2016

$2,322,816

Family-Patient Communication and Economic Outcomes

Principal Investigator

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R01 CA168647/National Institutes of Health/ National Cancer Institute

2013 – 2018

$2,851,137

GTEX Substudy of the Ethical, Legal and Social Issues of the Gene Expression Project (Scale-Up)

Principal Investigator

NIH Common Fund Contract Number HHSN261200800001E Siminoff/National Institutes of Health/

National Cancer Institute

2011 – 2017

$1,995,911

Communicating Effectively about Donation: An Effectiveness and Implementation Study

Principal Investigator

R39 OT25728/ HRSA

2013 – 2016

$1,888,978

Decision Support for Parents Receiving Genetic Information about Child’s Rare Disease

Site Principal Investigator

PCORI/PCORI

2013 – 2016

$400,629

PUBLICATIONS

1. Refereed Articles

1. Siminoff LA. Competition and Primary Health Care: Separating Fact from Fancy. International

Journal of Health Services, 16(1): 57-69, 1986.

2. Siminoff LA, Fetting JH. Effects of Outcome Framing on Treatment Decisions in the Real

World: Impact of Framing on Adjuvant Breast Cancer Decisions. Medical Decision Making, 9(4):

135-45, 1989.

3. Siminoff LA, Fetting JH, Abeloff MD. Doctor-Patient Communication about Breast Cancer

Adjuvant Therapy. Journal of Clinical Oncology, 7(9): 1192-1200, 1989.

4. Siminoff LA. Cancer Patient and Physician Communications: Progress and Continuing

Problems. Annals of Behavioral Medicine, 11(3): 108-112, 1989.

5. Fetting JH, Siminoff LA, Piantadosi S, Abeloff MD, Damron DJ, Sarsfield AM. Effect of

Patients’ Expectations of Benefit With Standard Breast Cancer Adjuvant Chemotherapy on

Participation in a Randomized Clinical Trial: A Clinical Vignette Study. Journal of Clinical

Oncology, 8(9): 1476-1482, 1990.

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6. Parker L, Arnold RM, Meisel A, Siminoff LA, Roth LH. Ethical Factors in the Allocation of

Experimental Medical Therapies: The Chronic Left Ventricular Assist System. Clinical

Research, 38(3): 537-44, 1990.

7. Siminoff LA, Fetting JH. Factors Affecting Treatment Decisions for a Life-Threatening Illness:

The Case of Medical Treatment of Breast Cancer. Social Science & Medicine, 32(7): 813-818,

1991.

8. Siminoff LA, Erlen JA, Lidz CW. Stigma, AIDS and Quality of Nursing Care: State of the

Science. Journal of Advanced Nursing, 16(3): 262-269, 1991.

9. Adams JG, Arnold RM, Siminoff LA, Wolfson AB. Ethical Conflicts in the Prehospital Setting.

Annals of Emergency Medicine, 21(10): 1259-1265, 1992.

10. Siminoff LA. Improving Communication with Cancer Patients. Oncology, 6(10): 83-87, 1992.

11. Sheldon JM, Fetting JH, Siminoff LA. Offering the Option of Randomized Clinical Trials to

Cancer Patients Who Overestimate their Prognoses with Standard Therapies. Cancer

Investigation, 11(1): 57-62,1993.

12. Goold SD, Arnold RM, Siminoff LA. Discussions About Limiting Treatment in a Geriatric

Clinic. Journal of the American Geriatrics Society, 41(3): 277-81, 1993.

13. Siminoff LA, Arnold RM, Virnig B, Caplan A. Can We Ever Solve the Shortage Problem?

American Public Policy and Organ, Tissue, and Corneal Procurement from Cadaver Sources.

Journal of Transplant Coordination, 3(2): 51-59, 1993.

14. Hoge SK, Lidz C, Mulvey E, Roth LH, Bennett N, Siminoff LA, Arnold R, Monahan J. Patient,

Family, and Staff Perceptions of Coercion in Mental Hospital Admission: An Exploratory Study.

Behavioral Sciences and the Law, 11(3): 281-293, 1993.

15. Siminoff LA, Arnold RM, Miller DS. Differences in the Procurement of Organs and Tissues by

Health Care Professionals. Clinical Transplantation, 8(5): 460-465, 1994.

16. Siminoff LA, Arnold RM, Caplan AL, Virnig BA, Seltzer DL. Public Policy Governing Organ

and Tissue Procurement in the United States: Results from the National Organ and Tissue

Procurement Study. Annals of Internal Medicine, 123(1): 10-17, 1995.

17. Siminoff LA, Arnold RM, Caplan AL. Health Care Professional Attitudes Toward Donation:

Effect on Practice and Procurement. Journal of Trauma, 39(3): 553-559, 1995.

18. Arnold RM, Siminoff LA, Frader J. Ethical Issues in Organ Procurement: A Review for

Intensivists. Critical Care Clinics, 12(1): 29-48, 1996.

19. Siminoff LA, Arnold RM, Caplan AL. Asking for Altruism When Death Occurs: Who Asks for

Organ Donation and Why? Transplantation Proceedings, 28(6): 3632-3638, 1996.

20. Siminoff LA. Withdrawal of Treatment and Organ Donation. Critical Care Nursing Clinics of

North America, 9(1): 85-95, 1997.

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21. Erlen JE, Siminoff LA, Sereika SM, Sutton LB. Multiple Authorship: Issues and

Recommendations. Journal of Professional Nursing, 13(4): 262-270, 1997.

22. Ravdin PM, Siminoff LA, Harvey JA. Survey of Breast Cancer Patients Concerning Their

Knowledge and Expectations of Adjuvant Therapy. Journal of Clinical Oncology, 16(2): 515-21,

1998.

23. Siminoff LA, Erlen JE, Sereika S. Do Nurses Avoid AIDS Patients? Avoidance Behaviors and

the Quality of Care of Hospitalized AIDS Patients. AIDS Care, 10(2): 147-63, 1998.

24. Siminoff LA, Saunders Sturm CM. Nursing and the Procurement of Organs and Tissues in the

Acute Care Hospital Setting. Nursing Clinics of North America, 33(2): 239-251, 1998.

25. Fischer GS, Tulsky JA, Rose MR, Siminoff LA, Arnold RM. Patient Knowledge and Physician

Predictions of Treatment Preferences After Discussion of Advance Directives. Journal of General

Internal Medicine, 13(7): 447-454, 1998. PMCID: PMC1496983

26. Siminoff LA, Nelson RA. The Accuracy of Hospital Reports of Organ Donation Eligibility,

Requests, and Consent: A Cross-Validation Study. Joint Commission Journal on Quality

Improvement, 25(3): 129-135, 1999.

27. Siminoff LA, Arnold RM. Increasing Organ Donation in the African American Community:

Altruism in the Face of an Untrustworthy System. Annals of Internal Medicine, 130(7): 607-609,

1999.

28. Silverman M, Musa D, Kirsch B, Siminoff LA. Self Care for Chronic Illness: Older African

Americans and Whites. Journal of Cross-Cultural Gerontology, 14(2): 169-189, 1999.

29. Siminoff LA, Chillag K. The Fallacy of the “Gift of Life.” Hastings Center Report, 29(6): 34-41,

1999.

30. Siminoff LA, Leonard MD. Financial Incentives: Alternatives to the Altruistic Model of Organ

Donation. Journal of Transplant Coordination, 9(4): 250-256, 1999.

31. Shafer TL, Schkade L, Siminoff LA, Mahoney T. Ethical Analysis of Organ Recovery Denials

by Medical Examiners, Coroners, and Justices of the Peace. Journal of Transplant Coordination,

9(4): 232-249, 1999.

32. Siminoff LA, Ravdin PM, Colabianchi N, Saunders Sturm CM. Doctor-Patient Communication

Patterns in Breast Cancer Adjuvant Therapy Discussions. Health Expectations, 3(1): 26-36, 2000.

33. Siminoff LA, Zhang A, Colabianchi N, Saunders Sturm C, Shen QS. Factors That Predict the

Referral of Breast Cancer Patients Onto Clinical Trials by Their Surgeons and Medical

Oncologists. Journal of Clinical Oncology, 18(6): 1203-11, 2000.

34. Siminoff LA, Saunders Sturm C. African-American Reluctance to Donate: Beliefs and Attitudes

about Organ Donation and Implications for Policy. Journal of the Kennedy Institute of Ethics,

10(1): 59-74, 2000.

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35. DeVita MA, Snyder JV, Arnold RM, Siminoff LA. Observations of Withdrawal of Life-

Sustaining Treatment from Patients Who Became Non-Heart-Beating Organ Donors. Critical

Care Medicine, 28(6): 1709-1712, 2000.

36. Trauth JM, Musa D, Siminoff LA, Jewell IK, Ricci EM. Public Attitudes Regarding Willingness

to Participate in Medical Research Studies. Journal of Health and Social Policy, 12(2): 23-43,

2000.

37. Siminoff LA, Zhang A, Saunders Sturm C, Colabianchi N, Shen QS. Referral of Breast Cancer

Patients to Medical Oncologists After Initial Surgical Management. Medical Care, 38(7): 696-

704, 2000.

38. Ubel PA, Bryce CL, Siminoff LA, Caplan AL, Arnold RM. Pennsylvania’s Voluntary Benefits

Program: Evaluating an Innovative Proposal for Increasing Organ Donation. Health Affairs,

19(5): 206-11, 2000.

39. The Authors for the Live Organ Donor Consensus Group. Consensus Statement on the Live Organ Donor.

Journal of the American Medical Association, 284(22): 2919-2926, 2000.

40. Seltzer DL, Arnold RM, Siminoff LA. Are Non-Heart Beating Cadaver Donors Acceptable to the

Public? Journal of Clinical Ethics, 11(4):347-357, 2000.

41. Siminoff LA, Mercer MB. Public Policy, Public Opinion, and Consent for Organ Donation.

Cambridge Quarterly of Healthcare Ethics, 10(4): 377-386, 2001.

42. Siminoff LA, Arnold RM, Hewlett J. The Process of Organ Donation and its Effects on Consent.

Clinical Transplantation, 15(1): 39-47, 2001.

43. Ravdin PM, Siminoff LA, David GJ, Mercer MB, Hewlett J, Gerson N, Parker HL. Computer

Program to Assist in Making Decisions about Adjuvant Therapy for Women with Early Breast

Cancer. Journal of Clinical Oncology, 19(4):980-91, 2001.

44. Siminoff LA, Gordon N, Hewlett J, Arnold RM. Factors Influencing Families’ Consent for

Donation of Solid Organs for Transplantation. Journal of the American Medical Association,

286(1):71-77, 2001.

45. Ibrahim SA, Siminoff LA, Burant CJ, Kwoh K. Variation in Perceptions of Treatment and Self-

Care Practices in Elderly With Osteoarthritis: A Comparison Between African American and

White Patients. Arthritis Rheum, 45(4):340-345, 2001.

46. Ibrahim SA, Siminoff LA, Burant CJ, Kwoh CK. Understanding Ethnic Differences in the

Utilization of Joint Replacement for Osteoarthritis: The Role of Patient-level Factors. Medical

Care, 40(1 suppl): I44-I51, 2002.

47. Sehgal AR, Leon JB, Siminoff LA, Singer ME, Bunosky LM, Cebul RD. Improving the Quality

of Hemodialysis Treatment: A Community-Based Randomized Controlled Trial to Overcome

Patient-Specific Barriers. Journal of the American Medical Association, 287(15): 1961-1967,

2002.

48. Siminoff LA, Lawrence RH, Zhang A. Decoupling: What is it and Does it Really Help Increase

Consent to Organ Donation? Progress in Transplantation, 12(1): 52-60, 2002.

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49. Delmonico FL, Arnold RM, Scheper-Hughes N, Siminoff LA, Kahn J, Youngner SJ. Ethical

Incentives – Not Payment – For Organ Donation. New England Journal of Medicine, 346(25):

2002-2005, 2002.

50. Ibrahim SA, Siminoff LA, Burant CJ, Kwoh CK. Differences in Expectations of Outcome

Mediate African American/White Patient Differences in “Willingness” to Consider Joint

Replacement. Arthritis and Rheumatism, 46(9): 2429-2435, 2002.

51. Ibrahim SA, Burant CJ, Siminoff LA, Stoller EP, Kwoh CK. Self-assessed Global Quality of

Life: A Comparison between African-American and White Older Patients with Arthritis. Journal

of Clinical Epidemiology, 55(5): 512-517, 2002.

52. Ang DC, Ibrahim SA, Burant CJ, Siminoff LA, Kwoh CK. Ethnic Differences in the Perception

of Prayer and Consideration of Joint Arthroplasty. Medical Care, 40(6): 471-476, 2002.

53. Adams PL, Cohen DJ, Danovitch GM, Edington MD, Gaston RS, Jacobs CL, Luskin RS,

Metzger RA, Peters TG, Siminoff LA, Veatch RM, Rothberg-Wegman L, Bartlett ST, Brigham

L, Burdick J, Gunderson S, Harmon W, Matas AJ, Thistlethwaite JR, Delmonico FL. The Non-

Directed Live-Kidney Donor: Ethical Considerations and Practice Guidelines: A National

Conference Report. Transplantation, 74(4): 582-589, 2002.

54. Siminoff LA, Lawrence RH. Knowing Patients’ Preferences about Organ Donation: Does it

Make a Difference? The Journal of Trauma: Injury, Infection, and Critical Care, 53(4): 754-760,

2002.

55. Siminoff LA, Lawrence RH, Arnold RM. Comparison of Black and White Families’

Experiences and Perceptions Regarding Organ Donation Requests. Critical Care Medicine, 31(1):

146-151, 2003.

56. Nathan HM, Conrad SL, Held PJ, McCullough KC, Pietroski RE, Siminoff LA, Ojo AO. Organ

Donation in the United States. American Journal of Transplantation, 3(Suppl. 4): 29-40, 2003.

57. Ibrahim SA, Burant CJ, Mercer MB, Siminoff LA, Kwoh CK. Older Patients’ Perceptions of

Quality of Chronic Knee or Hip Pain: Differences by Ethnicity and Relationship to Clinical

Variables. Journals of Gerontology Series A: Biological Sciences and Medical Sciences, 58(5):

M472-M477, 2003.

58. Sutton LB, Erlen JA, Glad JM, Siminoff LA. Recruiting Vulnerable Populations for Research:

Revisiting the ethical issues. Journal of Professional Nursing, 19(2): 106-112, 2003.

59. Redline S, Larkin EK, Kercsmar C, Berger M, Siminoff LA. Development and Validation of

School-Based Asthma and Allergy Screening Instruments for Parents and Students. Annals of

Allergy, Asthma & Immunology, 90(5): 516-528, 2003.

60. Simon C, Zyzanski SJ, Eder M, Raiz P, Kodish ED, Siminoff LA. Groups Potentially at Risk for

Making Poorly Informed Decisions About Entry into Clinical Trials for Childhood Cancer.

Journal of Clinical Oncology, 21(11): 2173-2178, 2003.

61. Brehaut JC, O’Connor AM, Wood TJ, Hack TF, Siminoff LA, Gordon E, Feldman-Stewart D.

Validation of a Decision Regret Scale. Medical Decision Making, 23(4): 281-292, 2003.

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62. Siminoff LA, Mercer MB, Arnold R. Families’ Understanding of Brain Death. Progress in

Transplantation, 13(3): 218-224, 2003.

63. Zhang AY, Siminoff LA. Silence and Cancer: Why Do Families and Patients Fail to

Communicate? Health Communication, 15(4): 415-429, 2003.

64. Zhang AY, Siminoff LA. The Role of the Family in Treatment Decision Making by Patients

With Cancer. Oncology Nursing Forum, 30(6): 1022-1028, 2003.

65. Siminoff LA. Toward Improving the Informed Consent Process in Research with Humans. IRB,

25(5):S1-S3, 2003.

66. Sachs GA, Hougham GW, Sugarman J, Agre P, Broome ME, Geller G, Kass N, Kodish E, Mintz

J, Roberts LW, Sankar P, Siminoff LA, Sorenson J, Weiss A. Conducting Empirical Research on

Informed Consent: Challenges and Questions. IRB, 25(5):S4-S10, 2003.

67. Broome ME, Kodish E, Geller G, Siminoff LA. Children in Research: New Perspectives and

Practices for Informed Consent. IRB, 25(5):S20-S23, 2003.

68. Hougham GW, Sachs GA, Danner D, Mintz J, Patterson M, Roberts LW, Siminoff LA,

Sugarman J, Whitehouse PJ, Wirshing D. Empirical Research on Informed Consent with the

Cognitively Impaired. IRB, 25(5):S26-S32, 2003.

69. Siminoff, LA. The dead donor rule: not dead yet. Am J Bioeth. 3(1):30, 2003. PMID: 12859841

70. Simon CM, Siminoff LA, Kodish ED, Burant C. Comparison of the Informed Consent Process

for Randomized Clinical Trials in Pediatric and Adult Oncology. Journal of Clinical Oncology,

22(13): 2708-2717, 2004.

71. Kodish ED, Eder M, Noll RB, Ruccione K, Lange B, Angiolillo A, Pentz R, Zyzanski S,

Siminoff LA, Drotar D. Communication of Randomization in Childhood Leukemia Trials.

Journal of the American Medical Association, 291(4): 470-475, 2004.

72. Siminoff LA, Caputo M, Burant C. The Promise of Empirical Research in the Study of Informed

Consent Theory and Practice. HEC Forum, 16(1): 53-71, 2004.

73. Siminoff LA, Burant C, Youngner SJ. Death and Organ Procurement: Public Beliefs and

Attitudes. Social Science & Medicine, 59(11): 2325-2334, 2004.

74. Lopez JPF, Burant CJ, Siminoff LA, Kwoh CK, Ibrahim SA. Patient Perceptions of Access to

Care and Referrals to Specialist: A Comparison of African-American and White Older Patients

with Knee and Hip Osteoarthritis. Journal of the National Medical Association, 97(5): 667-673,

2005. PMCID: PMC2569351

75. Peele PB, Siminoff LA, Xu Y, Ravdin PM. Decreased Use of Adjuvant Breast Cancer Therapy in

a Randomized Controlled Trial of a Decision Aid with Individualized Risk Information. Medical

Decision Making, 25(3): 301-307, 2005.

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76. King LP, Siminoff LA, Myer DM, Yancy CW, Ring WS, Mayo TW, Drazner MH. Health

Insurance and Cardiac Transplantation: A Call for Reform. Journal of the American College of

Cardiology, 45(9): 1388-91, 2005.

77. Gordon EJ, Prohaska T, Siminoff LA, Minich PJ, Sehgal AR. Needed: Tailored Exercise

Regimens for Kidney Transplant Recipients. American Journal of Kidney Diseases, 45(4):769-

774, 2005. PMCID: PMC1242115

78. Gordon EJ, Prohaska T, Siminoff LA, Minich PJ, Sehgal AR. Can Focusing on Self-Care Reduce

Disparities in Kidney Transplant Outcomes? American Journal of Kidney Diseases, 45(5):935-

940, 2005. PMCID: PMC1249519

79. Siminoff LA, Step MM. A Communication Model of Shared Decision Making. Accounting for

Cancer Treatment Decisions. Health Psychology, 24(4 Suppl):S99 –S105, 2005.

80. Trauth JM, Jernigan JC, Siminoff LA, Musa D, Neal-Ferguson D, Weissfeld J. Factors Affecting

Older African Women’s Decisions to Join the PLCO Cancer Screening Trial. Journal of Clinical

Oncology, 23(34): 8730-8738, 2005.

81. Siminoff LA, Ross L. Access and Equity to Cancer Care in the US: A Review and Assessment.

Postgraduate Medical Journal, 81(961): 674-679, 2005. PMCID: PMC1743395

82. Bryce CL, Siminoff LA, Ubel PA, Nathan H, Caplan A, Arnold RM. Do incentives mater?

Providing benefits to families of organ donors. American Journal of Transplantation, 5

(12): 2999-3008, 2005.

83. Mayo T, Siminoff LA, Drazner MH. A heartfelt story for the rich. North Carolina Medical

Journal, 67(1): 93, 2006.

84. Perloff RM, Bonder B, Ray GB, Ray EB, Siminoff LA. Doctor-Patient Communication, Cultural

Competence, and Minority Health: Theoretical and Empirical Perspectives. American Behavioral

Scientist, 49(6): 835-852, 2006.

85. Simon C, Eder M, Kodish E, Siminoff LA. Altruistic Discourse in the Informed Consent Process

for Childhood Cancer Clinical Trials. The American Journal of Bioethics, 6(5): 40-47, 2006.

86. Siminoff LA, Rose JH, Zhang A, Zyzanski SJ. Measuring Discord in Treatment Decision

Making: Progress toward Development of a Cancer Communication and Decision-making

Assessment Tool. Psycho-Oncology, 15(6):528-540, 2006.

87. Siminoff LA, Burant CJ, Ibrahim SA. Racial Disparities in Preferences and Perceptions

regarding Organ Donation. Journal of General Internal Medicine, 21(9):995-1000, 2006. PMCID:

PMC1831604

88. Siminoff LA, Graham G, Gordon NH. Cancer Communication Patterns and the influence of

Patient Characteristics: Disparities in Information-Giving and Affective Behaviors. Patient

Education & Counseling, 62(3): 355-360, 2006.

89. Zhang AY, Strauss GJ, Siminoff LA. Intervention on Urinary Incontinence and Quality of Life

Outcome of Prostate Cancer Patients. Journal of Psychosocial Oncology, 24 (2): 17-30, 2006.

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90. Siminoff LA, Gordon NH, Silverman P, Budd T, Ravdin PM. A decision aid to assist in adjuvant

therapy choices for breast cancer. Psycho-Oncology, 15(11): 1001-1013, 2006.

91. Appelt CJ, Burant CJ, Siminoff LA, Kwoh CK, Ibrahim SA. Arthritis-Specific Health Beliefs

among Older Male Patients with Knee/Hip Osteoarthritis. Journal of Gerontology Biological

Sciences Series A: Biological Sciences and Medical Sciences, 62(2): 184-190, 2007.

92. Gordon NH, Silverman P, Lasheen W, Meinert J, Siminoff LA. Thirty-year follow-up of

chemo/hormonal therapy in node-positive breast cancer. Breast Cancer Res Treat, 102(3): 301-

312, 2007.

93. Siminoff LA, Mercer MB, Graham G, Burant C. The Reasons Families Donate Organs for

Transplantation: Implications for Policy and Practice. The Journal of Trauma, Injury, Infection

and Critical Care, 62(4): 969-978, 2007.

94. Zhang AY, Strauss GJ, Siminoff LA. Effects of Combined Pelvic Floor Muscle Exercise and a

Support Group on Urinary Incontinence and Quality of Life of Post Prostatectomy Patients.

Oncology Nursing Forum, 34(1): 47-53, 2007.

95. Barnato A, Llewellyn-Thomas H, Peters, E, Siminoff LA, Collins D, Barry M. Communication

and Decision Making in Cancer Care: Setting Research Priorities for Decision Support/Patients’

Decision Aids. Medical Decision Making, 27(5): 626-634, 2007.

96. Howard DH, Siminoff LA, McBride V, Lin M. Does Quality Improvement Work? Evaluation of

the Organ Donation Breakthrough Collaborative. Health Services Research, 42(6 pt 1): 2294-

2323, 2007. PMCID: PMC2151398

97. Gordon EJ, Prohaska TR, Gallant MP, Siminoff, LA. Adherence to Immunosuppression: A

Prospective Diary Study. Transplantation Proceedings, 39(10): 3081-5, 2007. PMCID:

PMC2361155

98. Siminoff LA, Hausmann LR, Ibrahim S. Barriers to Obtaining Diagnostic Testing for Coronary

Artery Disease Among Veterans. American Journal of Public Health, 98(12): 2207-2213, 2008.

PMCID: PMC2636512.

99. Siminoff LA. Why Learning to Communicate with Our Patients is So Important: Using

Communication to Enhance Accrual to Cancer Clinical Trials. Journal of Clinical Oncology,

26(16): 2614-5, 2008. PMID: 18509171

100. Siminoff LA, Zyzanski SJ, Rose JH, Zhang AY. The Cancer Communication Assessment Tool

for Patients and Families (CCAT-PF): A New Measure. Psycho-Oncology, 17(12):1216-1224,

2008. PMCID: PMC2830149

101. Zhang AY, Galanek, J, Strauss GJ, Siminoff LA. What it would Take for Men to Attend and

Benefit from Support Groups after Prostatectomy for Prostate Cancer: A Problem Solving

Approach. Journal of Psychosocial Oncology, 26(3): 97-112, 2008.

102. Brown RF, Hill C, Burant C, Siminoff LA. Satisfaction of Early Breast Cancer Patients with

Discussions During Initial Oncology Consultations with a Medical Oncologist. Psycho-Oncology,

18(1): 42–49, 2009. PMCID: PMC4839191

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103. Siminoff LA, Marshall HM, Dumenci L, Bowen G, Swaminathan A, Gordon N. Communicating

Effectively about Donation (CEaD): An Educational Intervention to Increase Consent to

Donation. Progress in Transplantation, 19(1): 35-43, 2009.

104. Siminoff LA, Traino HM. Improving Donation Outcomes: Hospital Development and the Rapid

Assessment of Hospital Procurement Barriers in Donation (RAPiD). Progress in Transplantation,

19(2): 180-187, 2009.

105. Vickers AJ, Elkin EB, Peele PB, Dickler M, Siminoff LA. Long-Term Health Outcomes of a

Decision Aid: Data from a Randomized Trial of Adjuvant! in Women with Localized Breast

Cancer. Medical Decision Making, 29(4): 461-467, 2009. PMCID: PMC3540794

106. Siminoff LA, Marshall HM. The Rapid Assessment of Hospital Procurement Barriers in

Donation (RAPiD): Assessing Hospitals for Change. The Journal of Healthcare Quality, 31(4):

24-33, 2009. NIHMSID: 175891 PMID: 19753805

107. Step MM, Rose JH, Albert JM, Cheruvu VK, Siminoff LA. Modeling Patient-Centered

Communication: Oncologist Relational Communication and Patient Communication Involvement

in Breast Cancer Adjuvant therapy decision-making. Patient Education & Counseling, 77(3): 369-

378, 2009. PMCID: PMC2787652

108. Step MM, Siminoff LA, Rose JH. Differences in Oncologist Communication Across Age

Groups and Contributions to Adjuvant Decision Outcomes. Journal of American Geriatrics

Society, 57 Suppl 2: S279-282, 2009. PMID: 20122030

109. Kiviniemi MT, Hay JL, James AS, Lipkus IM, Meissner HI, Stefanek M, Studts JL, Bridges JF,

Close DR, Erwin DO, Jones RM, Kaiser K, Kash KM, Kelly KM, Craddock Lee SJ, Purnell JQ,

Siminoff LA, Vadaparampil ST, Wang C. Decision Making About Cancer Screening: An

Assessment of the State of the Science and a Suggested Research Agenda from the ASPO

Behavioral Oncology and Cancer Communication Special Interest Group. Cancer Epidemiology,

Biomarkers & Prevention, 18(11): 3133-3137, 2009. PMCID: PMC2810193

110. Gordon EJ, Prohaska TR, Gallant MP, Sehgal AR, Strogatz D, Yucel R, Conti D, Siminoff LA.

Longitudinal Analysis of Physical Activity, Fluid Intake, and Graft Function Among Kidney

Transplant Recipients, Transplant International, 22(10): 990-998, 2009. PMCID: PMC2925536

111. Gordon EJ, Prohaska TR, Gallant M, Siminoff LA. Self-care Strategies and Barriers among

Kidney Transplant Recipients: A Qualitative Study, Chronic Illness, 5(2):75-91, 2009. PMCID:

PMC3540789

112. Gordon EJ, Gallant M, Sehgal AR, Conti D, Siminoff LA. Medication-Taking Among Adult

Renal Transplant Recipients: Barriers and Strategies. Transplant International, 22(5): 534-545,

2009. PMCID: PMC3540791

113. Gordon NH, Siminoff LA. Measuring Quality of Life of Long-Term Breast Cancer Survivors:

The Long Term Quality of Life-Breast Cancer (LTQOL-BC) Scale. Journal of Psychosocial

Oncology, 28:589-609, 2010. PMCID: PMC3540802

114. Gordon EJ, Prohaska TR, Gallant MP, Sehgal AR, Strogatz D, Conti D, Siminoff LA.

Prevalence and Determinants of Physical Activity and Fluid Intake in Kidney Transplant

Recipients. Clinical Transplantation, 24(3): E69-E81, 2010. PMCID: PMC2925539

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115. Brown R, Bylund CL, Siminoff LA, Slovin SF. Seeking Informed Consent to Phase I Cancer

Clinical Trials: Identifying Oncologists’ Communication Strategies. Psycho-Oncology, 20(4):

361-368, 2010. PMID: 20878842

116. Siminoff LA, Wilson-Genderson M, Baker S Jr. Depressive Symptoms in Lung Cancer Patients

and their Family Caregivers and the Influence of Family Environment. Psycho-Oncology, 19(12):

1285-1293, 2010. PMCID: PMC2891398

117. Siminoff LA. Money and the Research Subject: A Comment on Grady. The American Journal of

Bioethics, 1(2): 65-66, 2010.

118. Zhang AY, Zyzanski SJ, Siminoff LA. Differential Patient-Caregiver Opinions of Treatment

and Care for Advanced Lung Cancer Patients, Social Science & Medicine, 70(8): 1155-1158,

2010. PMCID: PMC2840198

119. Baughn D, Auerbach SM, Siminoff LA. Roles of Gender and Ethnicity in Procurement

Coordinator-Family Communication During the Organ Donation Discussion. Progress in

Transplantation, 20(3): 247-255, 2010. PMID: 20929109

120. Quillin JM, Bodurtha JN, Siminoff LA, Smith TJ. Exploring Hereditary Cancer Among Dying

Cancer Patients—A Cross-Sectional Study of Hereditary Risk and Perceived Awareness of DNA

Testing and Banking. Journal of Genetic Counseling, 19(5): 497-525, 2010. PMID: 20680422

121. Davis DS, Gerson N, Ponsaran R; Siminoff LA. Ashkenazi Jews: Overburdened and

Overexposed? New Genetics and Society, 29(3): 241-260, 2010.

122. Siminoff LA, Traino HM, Gordon N. Determinants of Family Consent to Tissue Donation, The

Journal of Trauma: Injury, Infection, and Critical Care, 69(4): 956-963, 2010. PMCID:

PMC3530615

123. Siminoff LA, Step MM. A Comprehensive Observational Coding Scheme for Analyzing

Instrumental, Affective and Relational Communication in Healthcare contexts. Journal of Health

Communication. 16(2): 178-197, 2011. PMCID: PMC3147015

124. Siminoff LA, Rogers HL, Waller AC, Harris-Haywood S, Epstein RM, Borrell Carrio F, Gliva-

McConvey G, Longo DR. The Advantages and Challenges of Unannounced Standardized Patient

Methodology to Assess Healthcare Communication. Patient Education and Counseling, 82(3):

318–324, 2011. PMCID: PMC3064426

125. Siminoff LA, Traino HM, Gordon N. An Exploratory Study of Relational, Persuasive, and

Nonverbal Communications in Requests for Tissue Donation. Journal of Health Communication,

16(9): 955-75, 2011. PMCID: PMC3183146

126. Siminoff LA, Rogers HL, Thomson MD, Dumenci L, Harris-Haywood S. Doctor, what's Wrong

with Me? Factors that Delay the Diagnosis of Colorectal Cancer. Patient Education and

Counseling, 84(3): 352–358, 2011. PMCID: PMC3159771

127. Belkora JK, Hutton DW, Moore DH, Siminoff LA. Does Use of the Adjuvant! Model Influence

Use of Adjuvant Therapy Through Better Risk Communication. Journal of National

Comprehensive Cancer Network, 9(7): 707–712, 2011. PMCID: PMC3528013

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128. Zhang, A, Zyzanski, SJ, Siminoff, LA. Ethnic Differences in the Caregiver’s Attitudes and

Preferences for the Treatment and Care of Advanced Lung Cancer Patients. Psycho-Oncology,

21(11): 1250-1253, 2011. PMCID: PMC3612394

129. Quillin JM, Bodurtha JN, Siminoff LA, Smith TJ. Physicians' Current Practices and

Opportunities for DNA Banking of Dying Patients with Cancer. Journal of Oncology Practice,

7(3): 183-187, 2011. PMCID: PMC3092660

130. Thomson MD, Siminoff LA, Longo DR. Internet Use for Prediagonsis Symptom Appraisal by

Colorectal Cancer Patients. Health Education & Behavior, 39(5): 583-588, 2012. PMCID:

PMC3521844

131. Rosenblum AM, Horvart LD, Siminoff LA, Prakash V, Beitel J, Garg AX. The Authority of

Next-of-Kin in Explicit and Presumed Consent Systems for Deceased Organ Donation: An

Analysis of 54 Nations. Nephrology, Dialysis Transplantation, 27(6): 2533-2546, 2011. PMCID:

PMC3363979

132. Siminoff LA, Traino HM. Consenting to Donation: An Examination of Current Practices in

Informed Consent for Tissue Donation in the US. Cell Tissue Bank, 2013 Mar; 14(1): 85-95.

[Epub ahead of print] doi: 10.1007/s10561-012-9303-7. PMCID: PMC3568202

133. Siminoff LA, Dorflinger L, Agyemang A, Baker S, Wilson-Genderson M. Oncologists’

Assessments of Lung Cancer Patient and Family Disagreements Regarding Treatment Decision

Making. Lung Cancer, 77(1) :212-216, 2012. PMCID: PMC3368070

134. Shay A, Dumenci L, Siminoff LA, Flocke SA, Elston Lafata J. Factors Associated with Patient

Reports of Positive Physician Relational Communication. Patient Education and Counseling,

89(1): 96-101, 2012. PMCID: PMC3431455

135. Dorflinger L, Auerbach SM, Siminoff LA. The Interpersonal Process in Tissue Donation

Requests with “Undecided” Next of Kin. Progress in Transplantation, 22(4): 427-435, 2012.

PMCID: PMC3526067

136. Penberthy L, Brown R, Wilson-Genderson M, Dahman B, Ginder G, Siminoff LA. Barriers to

Therapeutic Clinical Trials Enrollment: Differences between African-American and White

Cancer Patients Identified at the Time of Eligibility Assessment. Clinical Trials, 9(6): 788-797,

2012. PMID: 23033547

137. Traino HM, Alolod GP, Shafer T, Siminoff LA. Interim Results of a National Test of the Rapid

Assessment of Hospital Procurement Barriers in Donation (RAPiD). American Journal of

Transplantation, 12(11): 3094-3103, 2012. PMCID: PMC3532942

138. Tilley BC, Mainous AG, Elm JJ, Pickelsimer E, Soderstrom LH, Ford ME, Diaz VA, Siminoff

LA, Burau K, Smith DW. A Randomized Recruitment Intervention Trial in Parkinson’s Disease

to Increase Participant Diversity: Early Stopping for Lack of Efficacy. Clinical Trials, 9(2): 188-

197, 2012. PMID: 22496398 NIHMSID: 430401

139. DuBay D, Redden D, Haque A, Gray S, Fouad M, Siminoff LA, Holt C, Kohler C, Eckhoff D. Is

Decedent Race an Independent Predictor of Organ Donor Consent or Merely a Surrogate Marker

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of Socioeconomic Status? Transplantation, 94 (8): 873-878, 2012.

140. Traino HM, Siminoff LA. Attitudes and Acceptance of First Person Authorization: A National

Comparison of Donor and Nondonor Families. The Journal of Trauma and Acute Care Surgery,

74(1): 294-300, 2013. PMCID: PMC3540811

141. Dorflinger L, Auerbach SM, Siminoff LA. Predictors of Consent in Tissue Donation:

Interpersonal Aspects and Information Provision During Requests by Phone. Patient Education

and Counseling, 91(2): 161-6, 2013.

142. Ford ME, Siminoff LA, Pickelsimer E, Mainous AG, Smith DW, Diaz VA, Siderstrom LH,

Jefferson MS, Tilley BC. Unequal Burden of Disease, Unequal Participation in Clinical Trials:

Solutions from African American and Latino Community Members. Health Social Work, 38(1):

29-38, 2013.

143. Siminoff LA, Agyemang A, Traino HM. Consent to Organ Donation: A Review. Progress in

Transplantation, 23(1): 99-104, 2013. PMID: 23448829

144. Siminoff LA. Incorporating Patient and Family Preferences into Evidence-Based Medicine.

BMC Med Inform Decis Mak, 13 (Suppl 3):S6, 2013. [Epub 2013 Dec 6] doi: 10.1186/1472-

6947-13-S3-S6. Epub 2013 Dec 6. PMCID: PMC4029304

145. Brown RF, Cadet DL, Houlihan RH, Thomson MD, Pratt ED, Sullivan A, Siminoff LA.

Perception of Participation in a Phase I, II, or III Clinical Trial Among African American Patients

with Cancer: What Do Refusers Say? Journal of Oncology Practice, 9(6): 287-93, 2013.

146. Cartwright LA, Dumenci L, Siminoff LA, Matsuyama RK. Cancer Patients' Understanding of

Prognostic Information. J Cancer Educ, 29(2): 311-317, 2014 Jun. PMCID: PMC4284942

147. Dumenci L, Matsuyama RK, Kuhn L, Perera RA, Siminoff LA. On the Validity of the Rapid

Estimate of Adult Literacy in Medicine (REALM) Scale as a Measure of Health

Literacy. Communication Methods and Measures, 7(2): 134-143, 2013. PMID: 23935770

148. Haun MW, Sklenarova H, Winkler EC, Huber J, Thomas M, Siminoff LA, Woll M, Brechtel A,

Herzog W, Hartmann M. Assessing Patient-Caregiver Communication in Cancer-A Psychometric

Validation of the Cancer Communication Assessment Tool (CCAT-PF) in a German sample.

Support Care Cancer, 22(9): 2473-2478, 2014. PMID: 24722779

149. Siminoff LA, Thompson MD, Dumenci L. Factors Associated with Delayed Patient Appraisal of

Colorectal Cancer Symptoms. Psycho-Oncology, 23(9): 981–988, 2014.

150. Slosky LE, Stern M, Burke NL, Siminoff LA. Decision Making in the PICU: An Examination of

Factors Influencing Participation Decisions in Phase III Randomized Clinical Trials. Int J Pediatr.

2014;2014:676023. [Epub 2014 Aug 4] doi:10.1155/2014/676023. PMID: 25161672 PMCID:

PMC4138893

151. DuBay DA, Ivankova N, Herby I, Wynn TA, Kohler C, Berry B, Foushee H, Carson AP, Redden

DT, Holt C, Siminoff LA, Fouad M, Martin MY. African American Organ Donor Registration: A

Mixed Methods Design Using the Theory of Planned Behavior. Progress In Transplantation,

24(3): 273-83, 2014 September.

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152. Dumenci L, Matsuyama R, Riddle DL, Cartwright LA, Perera RA, Chung H, Siminoff LA.

Measurement of Cancer Health Literacy and Identification of Patients with Limited Cancer

Health Literacy. Journal of Health Communication, 19 Suppl. 2:205-24, 2014. PMID: 25315594

153. Thomson MD, Siminoff LA. Finding medical care for colorectal cancer symptoms: experiences

among those facing financial barriers. Health Educ Behav, 42(1):46-54, 2015 Feb. [Epub 2014

Nov 12] doi: 10.1177/1090198114557123. PMID:25394821 PMCID: PMC4604569

154. Thomson MD, Siminoff LA. Perspectives on mammography after receipt of secondary screening

owing to a false positive. Women’s Health Issues, 25(2): 128-133, 2015 Mar-Apr. [Epub 2015

Jan 31] doi: 10.1016/j.whi.2014.11.003. PMID: 25648490 PMCID: PMC4355242.

155. Lafata JE, Wunderlich T, Flocke SA, Oja-Tebbe N, Dyer KE, Siminoff LA. Physician use of

persuasion and colorectal cancer screening. Transl Behav Med. 5(1): 87-93, 2015. PMID:

25729457

156. GTEx Consortium (including LA Siminoff). Human genomics. The Genotype-Tissue Expression

(GTEx) pilot analysis: multi-tissue gene regulation on humans. Science, 348(6235): 648-660,

2015 May.

157. Siminoff LA, Molisani AJ, Traino HM. A Comparison of the Request Process and Outcomes in

Adult and Pediatric Organ Donation. Pediatrics,136(1): e108-14, 2015. PMID: 26034251

158. Siminoff LA, Sandberg DE. Promoting. Shared Decision Making in Disorders of Sex

Development (DSD): Decision Aids and Support Tools. Hormone Metab Res, 47(5): 335-9, 2015.

PMID: 25853896

159. Siminoff LA, Rogers HL, Harris-Haywood S. Missed Opportunities for the Diagnosis of

Colorectal Cancer. Biomed Res Int. 2015; 2015:285096. [Epub 2015 Oct 4]

doi:10.1155/2015/285096. PMID: 26504796 PMCID: PMC4609372

160. Siminoff LA, Traino HM, Genderson, MW. Communicating Effectively about Organ Donation:

A Randomized Trial of a Behavioral Communication Intervention to Improve Discussions about

Donation. Transplant Direct, 1(2), 2015. doi: 10.1097/TXD.0000000000000513. PMCID:

PMC4486302

161. Siminoff LA, Traino HM, Mosavel M, Barker L, Gudger G, Undale A, the GTEx Consortium.

Family decision-maker perspectives on the return of genetic results in biobanking research.

Genetics in Medicine, 8(1): 82-8, 2016. PMID: 25856669

162. Traino HM, Siminoff LA. Keep it going: maintaining health conversations using relational and

instrumental approaches. Health Commun, 31(3):308-319, 2016. [Epub 2015 Sep 1]

doi:10.1080/10410236.2014.950020. PMID: 26325602

163. Aelion CM, Airhihenbuwa CO, Alemagno S, Amler RW, Arnett DK, Balas A, Bertozzi S,

Blakely CH, Boerwinkle E, Brandt-Rauf P, Buekens PM, Chandler GT, Chang RW, Clark JE,

Cleary PD, Curran JW, Curry SJ, Diez Roux AV, Dittus R, Ellerbeck EF, El-Mohandes A,

Eriksen MP, Erwin PC, Evans G, Finnegan JR Jr, Fried LP, Frumkin H, Galea S, Goff DC Jr,

Goldman LR, Guilarte TR, Rivera-Gutiérrez R, Halverson PK, Hand GA, Harris CM, Healton

CG, Hennig N, Heymann J, Hunter D, Hwang W, Jones RM, Klag MJ, Klesges LM, Lahey T,

Lawlor EF, Maddock J, Martin WJ, Mazzaschi AJ, Michael M, Mohammed SD, Nasca PC, Nash

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D, Ogunseitan OA, Perez RA, Perri M, Petersen DJ, Peterson DV, Philbert M, Pinto-Martin J,

Raczynski JM, Raskob GE, Rimer BK, Rohrbach LA, Rudkin LL, Siminoff L, Szapocznik J,

Thombs D, Torabi MR, Weiler RM, Wetle TF, Williams PL, Wykoff R, Ying J. The US Cancer

Moonshot Initiative. Lancet Oncol, 17(5): PE178-E180, 2016 May. doi: 10.1016/S1470-

2045(16)30054-7.

164. Alolod GP, Traino HM, Siminoff LA. Utility and Usability of the Rapid Assessment of Hospital

Procurement Barriers in Donation (RAPiD) as a Tool for OPO Hospital Development Staff. Prog

Transplant, 26(3): 241-248, 2016 Sep. [Epub 2016 Jun 19] doi: 10.1177/1526924816655960.

PMID: 27323955

165. Siminoff LA, Wilson-Genderson M, Mosavel M, Barker L, Trgina J, Traino HM. Confidentiality

in Biobanking Research: A Comparison of Donor and Nondonor Families’ Understanding of

Risks. Genetic Test Mol Biomarkers, 21(3): 1-7, 2017. PMID: 28121471

166. Traino HM, Molisani AJ, Siminoff LA. Regional Differences in Communication Process and

Outcomes of Requests for Solid Organ Donation. Am J Transplant. 17(6):1620-1627, 2017 Jun.

[Epub 2017 Jan 23] doi: 10.1111/ajt.14165.

167. Rogers HL, Siminoff LA, Longo DR, Thomson MD. Coping with Prediagnosis Symptoms of

Colorectal Cancer: A Study of 244 Individuals with Recent Diagnosis. Cancer Nurs, 40(2): 145-

151, 2017. PMID: 27044057 PMCID: PMC5045736

168. Dyer KE, Dumenci L, Siminoff LA, Thomson MD, Lafata JE. The contribution of body mass

index to appraisal delay in colorectal cancer diagnosis: a structural equation modeling study.

British Journal of Cancer, 116(12): 1638-1642, 2017 Jun. [Epub 2017 May 2] doi:

10.1038/bjc.2017.123. PMID: 28463963 PMCID: PMC5518852

169. Siminoff LA, Wilson-Genderson M, Mosavel M, Barker L, Trgina J, Traino HM, Nathan HM,

Hasz RD, Walters, G. Impact of Cognitive Load on Family Decision Maker Recall and

Understanding of Genotype-Tissue Expression Project (GTEx) Donation Requests. Journal of

Clinical Ethics, 29(1): 20-30, 2018. PMID: 29565794

170. Siminoff LA, Alolod GP, Wilson-Genderson M, Yuen EYN, Traino HM. A Comparison of

Request Process and Outcomes in Donation after Cardiac Death and Donation After Brain Death:

Results From a National Study. Am J Transplant, 17(5):1278-1285, 2017 May. [Epub 2016 Nov

21] doi: 10/1111/ajt.14084. PMID: 27753206 PMCID: PMC5395358

171. Gordon E, Agu C, Siminoff LA, Alolod GP, Kim R, Gonzalez T, Montalvo A, Lopez E, Munoz

O, Arriola J, Benitez A, Hernandez I, Guinansaca N, Traino H. Organ Donation Attitudes and

Behaviors among Older Hispanic Women and Hispanic Community Health Workers: Formative

Research to Inform a Culturally-Competent Mobile Health Education Intervention.

Transplantation, 2017 August. doi: 10.1097/01.tp.0000525070.59547.4a

172. DuBay DA, Ivankova N, Herby I, Schoenberger YM, Redden DT, Holt C, Siminoff LA, Fouad

M, Martin MY. Factors Perceived to Influence the Decision for African Americans to Become

Registered Organ Donors at the Department of Motorized Vehicles. J Natl Med Assoc., 109(4):

287-293, 2017. [Epub 2017 May 5] doi: 10.1016/j.jnma.2017.04.004. PMID: 29173936 PMCID:

PMC5726287

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173. Siminoff LA, Alolod GP, Wilson Genderson M, Yuen EYN, Traino HM. A comparison of the

request process and outcomes in Donation after Cardiac Death (DCD) and Donation after Brain

Death (DBD): Results from a national study. Am J Transplant, 17(5): 1278-1285, 2017 May.

[Epub 2016 Nov 21] doi: 10.1111/ajt.14084. PMID: 27753206 PMCID: PMC5395358

174. Dumenci L, Matsuyama R, Riddle D, Cartwright L, Siminoff LA. Validation of the Cancer

Health Literacy Test-30 for Populations Without Cancer. HLRP: Health Literacy Research and

Practice. 2(2): e58-e66, 2018. doi: 10.3928/24748307-20180207-01.

175. Wilson-Genderson M, Barker KL, Gardiner HM, Mosavel M, Thomas J, Siminoff LA.

Authorization of tissues from deceased patients for genetic research. Hum Genet, 137(1): 63-71,

2018 Jan. [Epub 2017 Dec 4] doi: 10.1007/s00439-017-1855-y. PMID: 29204889

176. Siminoff, LA, Gardiner HM, Wilson-Genderson M, Shafer TJ. How Inaccurate Metrics Hide the

True Potential for Organ Donation in the United States. Prog Transplant, 28(1):12-18, 2018 Mar.

doi: 10.1177/1526924818757939. PMID: 29592635

177. Thomson MD, Siminoff LA. Managing work and cancer treatment: Experiences among

survivors of hematological cancer. Cancer, 124(13): 2824-2831, 2018 Jul. [Epub 2018 Apr 16]

doi: 10.1002/cncr.31375. PMID: 29660822

178. Siminoff LA, Wilson-Genderson M., Gardiner HM, Mosavel M, Barker KL. Consent to a

Postmortem Tissue Procurement Study: Distinguishing Family Decision Makers' Knowledge of

the Genotype-Tissue Expression Project. Biopreserv Biobank, 16(3): 200-206, 2018. PMID:

29746160

179. Rogers HL, Dumenci L, Epstein RM, Siminoff LA. Impact of Patient Gender and Race and

Physician Communication on Colorectal Cancer Diagnostic Visits in Primary Care. J Women’s

Health. 2018 Nov 29. [Epub ahead of print] doi: 10.1089/jwh.2018.6961. PMID 30489201

180. Timmermans S, Yang A, Gardner M, Keegan CE, Yashar BM, Fechner PY, Shnorhavorian M,

Vilain E, Siminoff LA, Sandberg DE. Does Patient-centered Care Change Genital Surgery

Decisions? The Strategic Use of Clinical Uncertainty in Disorders of Sex Development Clinics. J

Health Soc Behav., 59(4): 520-535, 2018 Dec. [Epub 2018 Oct 10] doi:

10.1177/0022146518802460. PMID: 30303019

181. Mosavel M, Barker KL, Gardiner HM, Siminoff LA. Responsiveness and adaptability in

community engaged biobanking research: experiences from a Hispanic community. J

Community Genet, 2019. [Epub ahead of print] doi.org/10.1007/s12687-018-0397-x. PMID:

30610570

2. Books and Book Chapters, and Other Publications.

1. Siminoff LA. “A Study into the Physical Abuse of Women in Fredericton.” New Brunswick

(New Brunswick Government Publication); 1978.

2. Siminoff LA. “The Reluctance of Physicians to Recommend Clinical Trials to Breast Cancer

Patients.” Proceedings of the Society for Clinical Trials; 1990.

3. Siminoff LA. “A Feasibility Study Into the Need for a Centre for Health Education for Women in

the Hamilton-Wentworth Area.” Ontario Government Publication; 1980.

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4. Caplan A, Siminoff LA, Arnold BM, Virnig B. “Increasing Organ and Tissue Donation: What

are the Obstacles; What are our Options?” in: Surgeon General's Workshop on Increasing Organ

Donation. US Dept HHS: Washington, DC; 1991.

5. Siminoff LA, Arnold RM, Sear M. “Death.” in: Encyclopedia of U.S. Biomedical Policy, pp. 51-

53, ed. RH Blank and JC Merrick. Greenwood Press, Westport, CT; 1996.

6. Siminoff LA, Arnold RM, Sear M. “Organ Procurement.” in: Encyclopedia of U.S. Biomedical

Policy, pp. 215-221, ed. RH Blank and JC Merrick. Greenwood Press, Westport, CT; 1996.

7. Siminoff LA, Arnold RM, Sear M. “Organ Transplantation.” in: Encyclopedia of Biomedical

Policy, pp. 221-223, ed. RH Blank and JC Merrick. Greenwood Press, Westport, CT; 1996.

8. Siminoff LA, Arnold RM, Sear M. “Uniform Anatomical Gift Act.” in: Encyclopedia of

Biomedical Policy, pp. 311-312, ed. RH Blank and JC Merrick. Greenwood Press, Westport, CT;

1996.

9. Siminoff LA, Arnold RM, Sear M. “Artificial Heart” in: Encyclopedia of Biomedical Policy, pp.

15-16, ed. RH Blank and JC Merrick. Greenwood Press, Westport, CT; 1996.

10. Ravdin PM, Siminoff LA, Harvey JA. “Survey of American Women Who Have Received

Adjuvant Chemotherapy.” Breast Cancer Research and Treatment, 41, 219; 1996.

11. Siminoff LA. "Society's Choices: Social and Ethical Decision Making in Biomedicine." (Book

Review) Medical Decision Making, 16(1) 93; 1996.

12. Siminoff LA, Arnold RM. Consent to Donation: A Review. Tissue and Cell Report, 3(1): 19-

26, 1996.

13. Ravdin PM, Siminoff LA, Harvey JA. “Survey of American Women Who Have Received

Adjuvant Chemotherapy.” Proceedings of the American Society Clinical Oncology, 16, 44a;

1997.

14. Arnold RM, Siminoff LA. “Organs and Tissues--Making Good from Bad.” in: Good Physicians:

A Physician's Guide to Medical Communication Competencies in the Nineties, ed. P.A.

Rowland-Morin, (Oxford University); 1999.

15. Siminoff LA. “American Beliefs and Attitudes about Death.” in: Defining Death in a

Technological Age, pp. 183-193, ed. S. Youngner, R. Arnold, R. Shapiro. Johns Hopkins

University Press, Baltimore, MD; 1999.

16. Siminoff LA. “Some Elements of Prognosis in Terminal Cancer.” (Book Review). Oncology,

13(8) 1174; 1999.

17. Ibrahim SA, Burant CJ, Siminoff LA, Kwoh CK. “Perceptions of Quality of Life in Patients

with Chronic Knee or Hip Pain: Differences Between African-Americans and White Veterans.”

Journal of Investigative Medicine, 47(7) 249A; 1999.

18. Siminoff LA. “The Ethics of Organ Transplants: The Current Debate.” Quarterly Review of

Biology, 75(1) 41-42; 2000.

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19. Ibrahim SA, Burant CJ, Siminoff LA, Kwoh CK. “Do African-American and White Patients

with Chronic Knee/Hip Pain Differ With Respect to Their Awareness of Joint Replacement and

its Benefits and Risks.” Journal of Clinical Epidemiology, 240(4) 441; 2000.

20. Ibrahim SA, Burant CJ, Siminoff LA, Kwoh CK. “Do African-American and White Patients

With Chronic Knee/Hip Pain Differ With Respect to Their Awareness of Joint Replacement and

its Benefits and Risks.” Journal of General Internal Medicine, 15(1 Suppl) 73; 2000.

21. Ang DC, Ibrahim SA, Burant CJ, Siminoff LA, Kwoh CK. “Role of Prayer in the Treatment of

Arthritis: Is There an Ethnic Difference in Perception.” Journal of General Internal Medicine,

15(1 Suppl) 51; 2000.

22. Siminoff LA. “Money and the Research Subject.” American Journal of Bioethics, 1(2), 65-66;

2001.

23. Ibrahim SA, Burant CJ, Siminoff LA, Kwoh CK. “Outcome Concerns Mediate Racial

Differences in Attitudes Toward Joint Replacement.” Journal of General Internal Medicine, 16(1

Suppl) 141; 2001.

24. Siminoff LA. “The Dead Donor Rule: Not Dead Yet.” The American Journal of Bioethics, 3(1)

32; 2003.

25. Siminoff LA. (supplement editor). Toward Improving the Informed Consent Process in Research

with Humans. IRB: Ethics & Human Research, Supplement 25(5), S1-S3; 2003.

26. Siminoff LA. “Empirical Methods in Bioethics,” in: The Encyclopedia of Bioethics, pp. 746-48,

ed. SG Post, McMillan Reference, New York, NY; 2004.

27. Siminoff LA. “The Armstrong/Holland Article Reviewed.” Oncology, 18(3), 373-75; 2004.

28. Siminoff LA, Morse RE. “An Ethicist’s Analysis,” in: Moral Dilemmas in Community Health

Care (Cases and Commentaries), pp. 194-196. ed. Cox White B and Zimbelman JA, Pearson

Education, Inc.; 2004.

29. Youngner SJ, Shapiro R Siminoff LA. “Guest Editor” of: Kennedy Institute of Ethics Journal

14(3): John Hopkins University Press, 2004.

30. Youngner SJ and Siminoff LA. “Introduction” in: Kennedy Institute of Ethics Journal 14(3): 211-

215, 2004.

31. Siminoff LA, Burant C, Youngner SJ. “Death and Organ Procurement: Public Beliefs and

Attitudes.” Kennedy Institute of Ethics Journal 14(3): 217-234, 2004.

32. Siminoff, LA. “Health Care at the Crossroads: Strategies for Narrowing the Organ Donation Gap

and Protecting Patients.” JCAHO, 2004.

33. Siminoff LA, Graham G, Gordon N. “Disparities in Doctor-Patient Patterns of Breast Cancer

Patients: The Influence of Socioeconomic and Demographic Factors” Psycho-Oncology

14(Suppl. 1): S12-13, 2005.

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34. Zhang AY, Siminoff LA. “Silence and Cancer: Why Do Families and Patients Fail to

Communicate?” Psycho-Oncology 14(Suppl. 1): S13, 2005.

35. Siminoff LA & Shafer T. “Requesting Organ Donation: Effective Communication,” in: A

Clinician’s Guide to Donation and Transplantation, pp791-804. ed. Rudow DL, Ohler L, Shafer

T, Applied Measurement Professionals, Inc: 2006.

36. Siminoff, LA. “Family Discussion Regarding Organ Donation,” in Organ Donation:

Opportunities for Action, pp. 68. ed. Childress JF, Liverman CT, National Academies Press: May

2006.

37. Appelt CJ, Ibrahim SA, Burant CJ, Siminoff LA, Kwoh CK. Determinates of Arthritis-Related

Health Beliefs Among Male Veterans with Osteoarthritis. Osteoarthritis Cartilage, 12(Suppl B):

S113, 2007.

38. Jacoby L (ed) & Siminoff LA (ed). Empirical Methods for Bioethics: A Primer. Elsevier Science

Ltd, December, 2007.

39. Siminoff, LA. “The Ethical Context,” in: Handbook of Communication in Oncology and

Palliative Care, ed. Kissane DW, Bultz BD, Butow P, Finlay I, Oxford University Press: 51-64,

2010.

40. Wakefield CE, Watts KJ, Homewood J, Meiser B, Siminoff L. Attitudes toward organ donation

and donor behavior: a review on the international literature. Prog Transplant. 2010

Dec;20(4):380-91.

41. Rogers, H., Longo, D., Siminoff, L., and Thomson M. Coping with symptoms of colorectal

cancer: Socio-demographic differences in strategies that influence care seeking delay. Psychology

and Health, 28 (Sup. 1), 142. 2013.

42. Siminoff, LA. “Empirical Methods in Bioethics,” in: Encyclopedia of Bioethics, 4th Edition (ed. B

Jennings); Macmillan Reference USA / Cengage Learning. 2014.

43. Siminoff LA & Thomson MD “Decision Making in the Family,” in: Handbook of Health

Decision Science, ed. Diefenbach MA, Miller-Halegoua S, Bowen DJ. Springer: 171-80, 2016.