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ListofSupportMeetings&phone/emailsupport
USAandCanada
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USA ALLSTATES
THEMULTIPLESYSTEMATROPHY(MSA)COALITION(formerlytheShy-Drager/MSASupportGroup)9935-DReaRoad#212Charlotte,NC28277USAwww.MultipleSystemAtrophy.orgTollfree:1-866-737-4999or1-866-737-5999“UnitedtoDefeatMULTIPLESYTEMATROPHY”
TheMultipleSystemAtrophy(MSA)CoalitionTMisa501(c)3charitableorganization(EIN:74-2926378)devotedtoafourpillarmission:•Supportingpatientsandcaregiversaffectedbymultiplesystematrophy•Educatingpatients,caregiversandhealthcareprofessionals•FinancingandencouragingmeaningfulresearchtowardidentifyingacauseandfindingacureforMSA•AdvocatingforissuesimportanttotheMSAcommunity,includingcreatinggreaterawareness
Information:WeoffertwotollfreesupportlinesstaffedbyformerMSAcaregivers.Contact: VeraJames(CAUSA) 1-866-737-5999 [email protected] JudyBiedenharnRN(OHUSA)1-866-737-4999 [email protected](s):WehostanannualconferenceforMSApatientsandfamiliesinadifferentUScityeachyear,usuallySeptemberorOctobertimeframe.Pleasewatchforannouncementsonourwebsitewww.MultipleSystemAtrophy.orgDVD’sofpastconferencesareavailabletoorderOthercontacts: CarolLanger(MAUSA) [email protected] DonCrouse(NCUSA) [email protected] PamBower(NSCANADA) [email protected]
LarryKellerman(IAUSA)[email protected](MIUSA)[email protected](NCUSA)[email protected](NJUSA)[email protected]
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USAandCanada
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Note: Every effort is made to ensure meeting times & dates are accurate, however we do suggest that you contact the facilitator first before attending a meeting for the first time. ALABAMA
CHICKASAWInformation:NoMeetingPhoneSupportOnlyContact:JanieceNaberMartindale251-300-1196 [email protected]
ARKANSAS
LITTLEROCKInformation:ForanyoneaffectedbyPSP,CBDorMSALocation:Alzheimer’sArkansas201MarkhamCenterDrive,LittleRock,AR72205(askfrontdeskforroomdetails,501-224-0021MeetingTime:4thThursdayofeverymonthsfrom1:00pm-2:30pmFacilitator:[email protected]
ARIZONA
TEMPEInformation:NoMeetingPhoneSupportOnlyContact: JeanSuico 480-839-3794 [email protected]
GILBERTInformation:NoMeetingContact:TandyKing Facebook:www.facebook.com/kingchtata
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CALIFORNIABakersfieldInformation:AnyoneaffectedbyPSP,CBD,MSALocation:Denny’srestaurant,BanquetRoom,8710RosedaleHighway,Bakersfield,CAMeetingTime:1stWednesdayofeverymonthfrom1:00pm-3:00pmFacilitator:[email protected]
Information:NoMeetingPhoneSupportOnlyContact: CandyWelsh 650-218-5858 [email protected]
FOUNTAINVALLEY
Information:ForfamilymembersandcaregiversdealingwithAtypicalPD+DisordersLocation: OrangecoastMemorialMedicalCenter,ClassroomC,9920TalbertAve FountainValley,CA92708Facilitator: JustinAquines 714-907-0074 [email protected]:Non-profitforMSACureMSA–KathyShihMemorialFoundationP.O.Box15088Fremont,CA94539USAwww.curemsa.org
Contact:LilyShih(ExecutiveDirector) 510-226-0453 [email protected]:NoMeetingPhoneSupportOnlyContact: SandyBierman 510-656-6897 [email protected] LilyShih 510-226-0453 [email protected]:NoMeetingPhoneSupportOnlyafter11amESTContact: GeorgeRelles 805-683-4829 [email protected]
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IRVINEInformation:Forpatients,caregiversandfamiliesaffectedbyParkinson’s,PSP,CBD,MSAandOtheratypicalParkinsoniandisorders.Location:AtriaWoodbridgeAssistedLiving,1Witherspoon,Irvine,CA92604MeetingTime:EveryTuesday10:30am-12:00pmLocation:LakeviewSeniorCenter,20LakeRoad,Irvine,CA92604Meetingtime:3rdWednesdayofeverymonthfrom10:30am-12:00pmFacilitator:[email protected]
LIVERMOREInformation:NoMeetingPhoneSupportOnlyContact:CarolDutcher 925-998-3656 [email protected]
LOSANGELESUCLAinformation:Forpatients,families&friendsaffectedbyPSP,CBD,MSAandotherDisodersLocation:RonaldReaganUCLAMedicalCenter757WestwoodPlaza.LosAngeles,CARoom3102(roommayvarypleasecallahead)[email protected]:1stFridayofeverymonthfrom2:00pm-4:00pmFacilitator:LorettaMazorraRN,NP,MN,[email protected]
MODESTO
Information:NoMeetingContact: JaneicePartridge [email protected]/SANMATEOInformation:Neurodegenerativemovementdisordergroup(MSAPSP,CBD,etc.)–caregivers
only.Contactfacilitatorformoreinfo.Location: Mimi'sCafe,2208BridgepointeParkway,SanMateo,CA94404MeetingTime(s):Everysixweeks(callore-mailforschedule)from5:00pm-7:00pmFacilitator: [email protected]
SACAMENTOInformation:ForpatientsandcaregiverdealingwithPSP,CBD,MSAandParkinson’sLocation:Shriner’sHospitalontheUCDavisMedicalCenterCampus,7thFloorBoardRoom,2425StocktonBlvd,Sacramento,CAMeetingTime4thWednesdayofeverymonth7:00pm-9:00pmFacilitator:[email protected]
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SANDIEGOInformation:Forpatients/caregiversdealingwithAtypicalParkinsonianDisorderslikeMSA,PSP,
CBD,OPCA,SND,SDSLocation: Parkinson’sAssociation,8555AeroDrive,Suite308,SanDiego,CAMeetingTime(s):3rdThursdayofeverymonthfrom1:00pm-3:00pmFacilitator: Kathryn Krug [email protected]
SANDIEGO
Information:ForONLYcaregiversdealingwithAtypicalParkinsonDisorders (MSA,PSP,CBD,OPCA)Location: HolyAngelsByzantineCatholicChurch,2235GalahadRoad,SanDiego,CA92123MeetingTime(s):EveryothermonthonthefirstWednesdayfrom11:00am-1:00pmFacilitator:[email protected], 760) 814-8426
SANTABARBARAInformation:NoMeetingPhoneSupportOnly
Contact: SuzanneGrimmesey-Kirk805-692-4010 [email protected]
COLORADO
DENVER/ENGLEWOODInformation:Neurodegenerativemovementdisordergroup(MSA,PSP,CBD)Location: JohnsonAdultDayCenter,3444SouthEmersonSt.,Englewood,CO80113
MeetingTime(s):2ndFridayofeachmonthfrom10:00am-12:00pmforPatients/Caregivers4thFridayofeachmonthfrom10:00am-12:00pmforCaregiversonly
Facilitator: HelennFranzgrote 303-789-9900 [email protected]
JOHNSTOWN/LOVELANDInformation:MSA,PSP,CBDLocation: NorthernColoradoRehabilitationHospital4401UnionStreet Johnstown/Loveland,CO80528MeetingTime:1stFridayofeachmonthfrom1:00pm-3:00pm(NoDec/Janmeeting)Facilitator: RuthFletcher-Carter970-532-2681 [email protected]
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FLORIDA
Central/OrlandoAreaInformation:Forpatients/caregivers/familiesaffectedbyPSP,CBD,MSAandrelateddiseasesLocations&Meetingtimes:Onceamonth(contactfacilitatorformoreinformation)Facilitator:[email protected]
PORTORANGEInformation:NoMeetingPhoneSupportOnlyContact: JimGrant 386-334-2691 [email protected]
SOUTHEAST/DEERFIELDBEACH
Information:Forpatients/caregivers/familiesaffectedbyMSA,PSP,CBDandrelateddiseasesLocation: NorthBrowardMedicalCenter,201E.SampleRoad,DeerfieldBeach,FL33064,1st
Floor,Classrooms7&8(fordirectionsonly:954-941-8300)MeetingTime(s):ContactFacilitatorformoreinfoFacilitator: PaulFreeman 305-970-0805 [email protected]/NAPLESInformation:Forpatients/caregivers/familiesaffectedbyMSA,PSP,CBDandrelateddiseasesLocation: ManorCareatLelyPalms,6135RattlesnakeHammockRoad,Naples,FL34113MeetingTime(s):2ndSaturdayofeachmonthfrom2:00pm-3:30pmFacilitator: CindyMacDonald 239-353-3960/[email protected]
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GEORGIA
ATLANTAInformation:ForcarepartnersonlyofthoselivingwithAtypicalParkinsonism’s,PSP,CBDLocation:EmoryBrainHealthCenter.12ExecutiveParkDr.Room331CAtlantic,GAMeetingTime(s):2ndSaturdayofeachmonth(exceptMay)from10:00am–11:30amFacilitator: LynnRoss 404-712-7091 [email protected]
Contact:PaulaDavis 706-669-1978 [email protected]
HAWAIIHonoluluInformation:ForanyonedealingwithPSP,CBD,MSAorAtypicalParkinson’sLocation:WaikikiBanyan201OhuaAve,Honolulu,HI96815MeetingTimes:2ndSaturdayofeachmonthfrom10:00am-11:30amFacilitatior:[email protected]
ORLANDPARKInformation:NoMeetingPhoneSupportOnlyContact: Arthur(Ed)Wall 708-478-1236 [email protected]
CHICAGOAREAInformation:MSASupportMeetingforPatients/Caregivers
Meetinginformation:Quarterlymeetings.TimeandplaceannouncedonFacebookNECentralUSAPageorContactFacilitator.Facilitator:JohnStandley 815-403-2221 [email protected]
NORTHWESTERNAREAInformation:ForthosewithPDandothermovementdisordersLocation:NorthwesternMemorialHospital251EastHuron,FeinbergPavilion,3rdFloorRoomA(freeparkingatHuron/St.Clair)MeetingTime:4thThursdayofeverymonthfrom1:00-2:00pmFacilitator:[email protected]
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INDIANAINDIANAPOLIS
Information:NoMeetingPhoneSupportOnlyContact: GaryHuddleston 317-501-4899 [email protected]:ForMSAPatients/caregiversContact:[email protected] [email protected] FrancieHutton765-453-9020 [email protected]
WARSAWInformation:NoMeetingPhoneSupportOnlyContact:TerryShepherd 574-267-1566 [email protected]
IOWA
WESTERNIOWAAREAInformation:NoMeetingPhoneSupportOnlyContact: KerynPaul 402-813-7315 [email protected]
KENTUCKY
LOUISVILLEInformation:AtypicalParkinsonianDisorders(MSA,PSP,CBD)Location:ParkisnonCenter,315TowneparkCircle,Suite100MeetingTime:2ndTuesdayofeverymonth6:30pmFacilitator: DanHeins 502-216-4563 [email protected]
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LOUISANA
NEWORLEANSInformation:Patients/families/caregiverswithPSP/CBD/MSA&relateddiseasesLocation: LittleFarmsUnitedChurchofChrist,135SauveRoad,RiverRidge,LA70123MeetingTime(s):3rdThursdayofeachmonthfrom7:00pm-8:00pmFacilitator: ShielaGrose 504-737-2614 [email protected]:NoMeetingContact:GloriaChaney [email protected]
MAINE
FALMOUTHInformation:Forpatients/caregiversdealingwithAtypicalParkinsonianDisorderslikePSP,CBD,MSA,OPCA,SND,SDSLocation: MaineParkinson’sI&RCenter,5BucknamRoad,Falmouth,MEMeetingTime(s):OneSundayperquarterfrom1:00pm-3:00pm.ContactFacilitatorforinfo.Facilitator: BarbiJohnson [email protected]
MARYLAND
ANNEARUNDELCOUNTYInformation:Forpatients/caregiversaffectedbyPSP,CBD&otherneurodegenerativediseasesLocation: KrisLeighAssistedLivingFacility,831RitchieHighway,SevernaPark,MDMeetingTime(s):3rdSaturdayofeverymonthfrom1:00pm–3:00pmFacilitator:[email protected]
BALTIMOREInformation:ForcaregiversaffectbyNeurodegenerativediseasesLocation:JohnsHopkinsatGreenspringstation,10753FallsRoad,PavillionII,CaféConferenceRoom,Lutherville,MD21093MeetingTime1stThursdayofeverymonthfrom10:00am-12:00pmFacilitator: BeckyDunlop,RN 410-955-8795 [email protected]
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BELAIRInformation:ForcaregiveraffectedbyMSA,PSP,CBD&otherneurodegenerativediseasesLocation: WilliamMcFaulActivitiesCenter525WestMcPhailRoad,BelAir,MD21014MeetingTimes:4thThursdayofeverymonthfrom2pm-4pmFacilitatior:BaileyVernon,RN [email protected]:forcaregiversaffectedbyParkinson’sPSP,CBD,MSAandotherNeurodiseasesLocation:EasternShoreSmileSolutions29267EricksonDr.Easton,MD21601MeetingTime:3rdWednesdayofeverymonthfrom3:30pm-5:00pmFacilitator:[email protected]:NoMeetingPhoneSupportOnlyContact:ShirleySnyder 410-259-1354 [email protected]
PRINCEFREDERICK
Information:NoMeetingPhoneSupportOnlyContact: JamesTaylor 410-535-0780 [email protected]
MASSACHUSETTSBOSTON
Information:ForMSAPatients/CaregiversLocation: BostonUniversityMedicalCenter;88EastNewtonStreet,2ndfloor,ConfRmC,Boston,MAMeetingTime:quarterlyFacilitator: MelissaDiggin 339-927-5468 [email protected]:CarolLanger 617-93603053 [email protected]
GARDNERInformation:ForMSApatients/caregiversLocation: HeywoodHospitalinGardner,MAMeetingTime:lastWednesdayofeachmonthat2PMFacilitator: MarybethKumph978-630-643CarlBillington 987-632-9682
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MICHIGAN
DETROITInformation:NonProfitforMSA
DefeatMSAJosephGFortierFoundation29924JeffersonAveSt.ClairShores,MI48080USAjgf.foundation.msa@gmail.comwww.movingtodayformsa.orgwww.facebook.com/JGFFoundationForMSAWemovetoday,inserviceoftomorrow!
Contact:PhilipMFortier(Co-Director)586246-1475(cell/vm)[email protected]
ALMAInformation:Forpatients,caregivers,andfamiliesdealingwithPSP,CBD,MSAandotheratypicalParkinsoniandisordersLocation:MasonicPathways,1200WarwickDrive,Alma,Michigan,DiogConferenceCenter(belowchapel)MeetingTime(s):4thWednesdayofeverymonthFacilitators:RobbieandKeithVirgo 989-681-6321 [email protected]
DELTON
Information:Forpatients,caregiversandfamilieswithPSP,CBD,MSAandotheratypicalparkinsonian
location:1137FloriaDrive,Delton,MI49046(parkinchurchparkinglot)MeetingTime:2ndSaturdayofeachmonthfrom2:00pm-3:30pmbeginningApril12,2014Facilitator:[email protected]
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MINNESOTAMINNEAPOLI
Information:ForpatientsandfamiliesdealingwithPSP,CBD,MSA
Location:Struther'sParkinson'sCenter6701CountryClubDrive,GoldenValley,MN55427
MeetingTime:2ndWednesdayofeverymonthfrom1:00pm-2:30pm Facilitator:JoanHlas952-993-6650 MONTANA
KALISPELLInformation:NoMeetingPhoneSupportOnlyContact: GaryCuthbertson 406-257-4392 [email protected]
NEBRASKA
OMAHAInformation:NoMeetingPhoneSupportOnlyContact: KerynPaul 402-813-7315 [email protected]
LINCOLNInformation:ForcaregiverandfamiliesdealingwithPSP,CBD,MSAandothersAtypicalPD Location:5901N.27thStreet,Lincoln,NE MeetingTime:4thTuesdayofeverymonthfrom6:30pm-8:30pm(beginningJan28,2014) Facilitator:[email protected]
LASVEGASInformation:NoMeetingPhoneSupportOnlyContact: MartyKoppel 702-914-8041 pleaseleavemessageifnoanswer
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NEWHAMPSHIRE
CONCORDInformation:NoMeetingContact:GayleGardner [email protected]
NEWJERSEY
TRI-STATEAREAInformation:Nonprofitsupportgroupcoveringthetri-stateareaMSANJP.O.Box773Howell,NJ07731www.msanj.orgContact: CynthiaRoemer [email protected]
CAPEMAYInformation:ForcaregiverdealingwithAtypicalParkinson+disordersLocation: CapeRegionalMedicalCenter,2StoneHarborBlvd,CapeMayCourtHouse,NewJersey(exit10offtheGardenStateParkway,MaruchiRoom(firstfloorofmedicalcenter)MeetingTime:1stTuesdayofeverymonth1:00pm-3:00pmFacilitator: BonnieKratzer 609-463-4043 [email protected](5minutesfromPhillyand30fromTrenton)Information:NoMeetingPhoneSupportOnlyContact:RachelZambrano 856-316-6742 [email protected]
SUMMIT
INFORMATION:ForanyoneaffectedbyMSA
Location:OverlookMedicalCenter,ConferenceRoom#1,99BeauvoirAveSummit,NJ07901
MeetingTime:2ndSaturdayofeverymonth,11:00am-1:30pm
Facilitator:[email protected]
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NEWMEXICO
ALBUQUERQUE Information:Forpatients,caregiversandfamiliesaffectedbyPSP,CBD,MSAandAtypicalPD Location:TheFlyingStar10700CorralesRoad,Albuquerque,NM MeetingTime:1stWednesdayofeachmonthfrom6:30pm-8:00pmuntilSept. Note:StartingSeptmeetingwillchangetothefirstTuesdayofeachmonthatsametimeFacilitator:RoxiPadrid312-485-9342
NEWYORK
TRI-STATEAREAInformation:Nonprofitsupportgroupcoveringthetri-stateareaMSANJP.O.Box773Howell,NJ07731www.msanj.orgContact: CynthiaRoemer [email protected]
BUFFALOInformation:NoMeetingPhoneSupportOnlyContact: MaureenConley 716-627-7344 [email protected]
NEWYORKCITYMETROAREAInformation:Forpatients/caregiversdealingwithAtypicalParkinsonianDisorderslikePSP,CBD,MSA,OPCA,SND,SDSLocation: NorthShoreUniversityHospital,TowerConferenceRooms,FirstFloor,300
CommunityDrive,Manhasset,NY11030MeetingTime(s):3rdSaturdayQuarterlyfrom1:30pm-3:30pmFacilitators:KaraHolisher 516-932-1696 [email protected]
HarrietFeiner 718-224-4654 [email protected]
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SYRACUSE/CHITTENANGOInformation:ForAnyonewithParkinsonorSDS/MSALocation: JimMarshallFarmFoundationsFacilityNorthChittenango Directionstothefarmcanbefoundathttp://www.jmffinc.org/servicesMeetingtimes:4thTuesdayofeachmonthfrom12:30PM-2:30PMContact: WayneHamilton 315-687-9014
NORTHCAROLINA
CHARLOTTEInformation:NoMeetingPhoneSupportOnlyContact: RobertLee 704-552-9198 [email protected]:NoMeetingPhoneSupportOnlyContact:JoeTurner 919-971-3512 [email protected] MelissaTurner 919-741-9668 [email protected]:NoMeetingPhoneSupportOnlyContact:[email protected]
OHIO
BEREAInformation:Forpatients/families/friends/caregiversaffectedbyPSP,CBD,MSA,Shy-Drager+LewyBodiesLocation: SouthwestGeneralHospital,18697BagleyRoad,MiddleburgHeights,OH,Room
15C(basementlevel)MeetingTime(s):2ndSundayofeachmonthfrom1:00pm-3:00pmDirections/Parking:HospitaliseasyaccessedfromI-480,I-71andtheOhioTurnpike-freeparkingreargarageofhospital.Facilitator: DavePotter440-263-5330davepotter7@gmail.comPatBeekman440-234-0007
CINCINNATIInformation:NoMeetingPhoneSupportOnlyContact:KathyGriffin 513-208-6621 [email protected]
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FAIRFIELDInformation:Forpatients/families/friendsaffectedbyMSA,PSP,CBD&ParkinsonLocation:TheFairfieldLaneLibrary1485CorydaleDrive,Fairfield,OH45014MeetingTime(s):4thThursdayfrom6:00pm–7:30pmFacilitator:[email protected]@yahoo.com
KETTERINGInformation:ForMSApatients/caregiversMeetingTime(s):AgettogetherisarrangedinthisareaacoupletimesayearContact:SusanCervone 937-369-9531 [email protected]
WESTERVILLEInformation:ForMSAcaregiversMeetingTime(s):OccasionalmeetingsarenowbeingheldContact:CathyRapenport 614-403-1440 [email protected]
OKLAHOMA
GROVEInformation:NoMeetingPhoneSupportOnlyContact: PaulNandico 918-786-4949
OREGONPORTLAND
Information:ForMSAPatients/CaregiversLocation: MarquisCareCenter,319NERussetST,Portland,ORMeetingTime:3rdSaturdayofeachmonth10amtonoonFacilitator: VickiBlacken 503-651-3633 [email protected]
PORTLAND
Information:Forfamilies&caregiversofpeoplewithPSP&CBDalsowelcomesMSALocations:OHSURiversidebuildingRoom12181 3303SWBondSt.Portland,OR97239
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MeetingTime:1stThursdayofeachmonthat5:30pmFacilitator:[email protected]
BENDInformation:NoMeetingPhoneSupportOnlyContact: NenaClose 541-419-6408(cell) 541-383-0302(work)[email protected]
EUGENE
Information:PD+disorders(PSP,CBD,MSA,LewyBody)andtheircarepartners.
Location:Parkinson'sResourcesofOregon-LaneCountyatEugeneMindworks
Meeting:the2ndWednesday,1:30-3:00(Usuallyeveryothermonth)
Facilitator:Gordon&[email protected]
PleasecontactGordon&Loriaboutthenextmeeting
PENNSYLVANIA
TRI-STATEAREAInformation:Nonprofitsupportgroupcoveringthetri-stateareaMSANJP.O.Box773Howell,NJ07731www.msanj.orgContact: CynthiaRoemer [email protected]
N.VERSAILLESInformation:NoMeetingPhoneSupportOnlyContact: CaroleBarber 412-678-8948 [email protected]
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PHILADELPHIAInformation:NoMeetingContact:LizMartin [email protected]
PHILADELPHIAInformation:ForpersonswithmovementdisordersLocation: PennsylvaniaHospitalMovementDisorderCenter,330S.9thStreet,2ndfloorconferenceroom.Philadelphia,PA19107MeetingTime:3thSaturdayofeachmonthfrom1:00pmto2pmFacilitator: ChristinSalemno 215-829-2347 [email protected]
YORKInformation:NoMeetingPhoneSupportOnly
Contact:ThomasFitzgerald 717-840-3830
Youngwood
Information:forpersonswithmovementdisorders
Location:HoneysuckleHaven621South5thStreet,Youngwood,PA
MeetingTime:3rdThursdayofeachmonthfrom6-8pm
Facilitator:[email protected]
PUERTORICO
Information:NoMeetingContact:AlexisBrewer [email protected]
RHODEISLAND
CRANSTONInformation:NoMeetingContact:JanGillis [email protected]
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SOUTHDAKOTA
SIOUXFALLSInformation:NoMeetingPhoneSupportOnlyContact:DawnKoenig 605-759-6740 [email protected]
TENNESSEE
TULLAHOMAInformation:NoMeetingPhoneSupportOnlyContact: MarilynMorris 913-455-3108 [email protected]
FAIRFIELDGLADEInformation:PD&MovementBriandisorderSupportGroup(PD,MSA,ET,PSP,CBD)
Location: ChristLuthernChurchFellowshipHall481SneadDr.FairfieldGlade,TNMeetingTime:1stTuesdayofeachmonthat2:30pmFacilitator: Gary&SallyDixner 931-484-0193
TEXAS
HOUSTONInformation:Forpatients/familieswithPSP,CBD,MSA,LBDLocation: MemorialHermannSWHospital,Houston,TX,LearningCenterB,Professional
BuildingIIMeetingTime(s):3rdSaturdayofeachmonth(exceptJulyandDecember)at1:00pmFacilitator: KarenKennemer 281-358-2282 [email protected]
DALLASInformation:ForPSP/CBD/MSApatientsandcaregiversLocation: TexasHealthResourcesUniversity(THRU)building,Room111MeetingTime(s):3rdSaturdayofthemonth(exceptAugust)from10:00am-11:30amFacilitator: KathrynMacDonell 214-908-4793 [email protected]
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SEYMOURInformation:Forpatients&caregiversaffectedbyMSA,PSP,CBD&AtypicalPD+Location: BaylorCountryExtensionBuilding500N.MainStreetSeymour,TX76380MeetingTime:3rdMondayofeachmonthfrom4:00pm-5:30pmFacilitator: SisHammack 940-889-6638 [email protected]:NoMeetingPhoneSupportOnlyContact: SharonSutton 210-296-4619 [email protected] CandiceValenta 210-912-4530 [email protected]
VERMONT
BURLINGTONInformation:ForcaregiversofParkinson'swithmildcognitiveimpairmentandParkinson'sPlussyndromesLocation: Varies;contactfacilitatorforinfoMeetingTime(s):Varies;contactfacilitatorforinfoFacilitator: JaniceClements 802-862-7464 [email protected]
VIRGINIA
AMISSVILLEInformation:WillmeetwithpeopleiftheywanttotraveltoAmissvilleorwillmeetatother’shomeifaccessibleandcanarrangeatimeanddatetohaveameetingContact: BillWerre 540-937-6092 [email protected]:Patients&carepartnersaffectedbyParkinson,PSP,CBD,MSA&otherPD+Location:TheVirginian,B1AssemblyRoom,9229ArlingtonBlvd,Fairfax,VA22031Meetingtime:EveryWednesdayat5:00pm,Carepartnersgroupsledbycarepartnerandpatientsgroupledbyaspeechlanguagepathologist.Facilitator:[email protected]
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VIRGINIABEACHInformation:NoMeetingPhoneSupportOnlyContact:James(Jim)Alvaro757-430-2237 [email protected]
WASHINGTON
SPOKANEInformation:Forpatients/caregiverswithPSP/CBDbutsupportsotherneurodegenerativediseasesLocation: ContactfacilitatorforinfoMeetingTime(s):ContactfacilitatorforinfoFacilitator: MaryAnneMemminger 509-921-6645 JimBarron 509-332-6053 [email protected]:ForPatients/CaregiverswithMSALocation:SwedishCherryHill,MotherJosephConferenceRoom55017thAve,Seattle,WAMeetingTime:4thMondayofeachmonthat11:00amFacilitator:SuzannaL.EllerMA 206-320-2084. [email protected] Social worker Swedish Neuroscience Institute
WESTVIRGINIA
BECKLEYInformation:Forpatients,caregivers,andfamiliesdealingwithPSP,CBD,MSAandotheratypicalParkinsoniandisordersLocation: OfficesofDr.RhondaGuy,424StanafordRoad,Beckley,WestVirginiaMeetingTime(s):3rdSaturdayofeverymonthfrom1:00pm-3:00pmFacilitator: JeanJohnson 304-573-3284 [email protected]
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MARTINSBURGInformation:NoMeetingPhoneSupportOnlyContact:ShelliHannonKuhn 717-830-6199 [email protected]
WYOMING
JOHNSTOWN/LOVELAND(COLORADO)Information:Neurodegenerativedisorder(MSA,PSP,CBD)Location:NorthernColoradoRehabilitationHospital,4401UnionStreet,Johnstown/Loveland,CO80528MeetingTime:1stFridayofeachmonthfrom1:00pm-3:00pmFacilitators:[email protected]
CANADA
ALLPROVINCES
Information:NoMeeting–EmailandWebsiteforMSAinformationonlyMultipleSystemAtrophyAwarenessWebsite:www.MSAawareness.org“Spreadingawarenessworldwide”Contact: PamBower [email protected]@accesscable.net
ALBERTA
FORTMCMURRAYInformation:NoMeetingPhoneSupportOnly-ContactforthenorthernregionofAlbertaContact:IrisKirschner 780-792-7732 [email protected]
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BRITISHCOLUMBIA
SIDNEYInformation:NoMeetingPhoneSupportOnlyContact:AnnJeffrey 250-656-9799 [email protected]
CALGARY,AB
Information:Forpatients,caregiverandfamilieswithPSP,CBD,MSAandotherAtypicalPD
Location:ServusCreditUnion-CreeksideBranch12662SymonsValleyRDNW,Calgary,AB
Meetingtime:3rdSaturdayofeverymonthfrom12:00pm-2:00pm
Facilitator:[email protected]
NOVASCOTIA
HALIFAXInformation:NoMeeting–EmailandWebsiteforMSAinformationonlyContact:PamBower [email protected]@accesscable.netWebsite:www.MSAawareness.org
ONTARIO
HAMILTONInformation:NoMeetingPhoneSupportOnlyContact:BonnieLlewellyn 905-979-8254 [email protected]
BURLINGTONInformation:Forpatients,caregivers,andfamiliesdealingwithPSP/CBD/MSAandotheratypical
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ParkinsoniandisordersLocation:ApplebyPlaceRetirementResidence,500ApplebyLine,Burlington,ONMeetingTime(s):1stThursdayofeverymonthfrom6:30pm-8:30pm(beginningOctober3,2013)Facilitator:KimberleyAdrovez 905-296-1095 [email protected]
KINGSTONInformation:ForpatientsandfamiliesaffectedbyPSP,CBDandMSALocation: Legion560(FiresideRoom),734MontrealStreet,Kingston,ON(freeparkingandhandicapaccessible)MeetingTime(s):1stThursdayofeverymonthfrom6:00pm-8:00pmbeginningAugust1,2013Facilitator:MJOverby 613-531-2685 [email protected]
TORONTOInformation:ForcarepartnersofPSP/CBD/MSApatients;hostedbyParkinsonSocietyofCentral&NorthernOntarioLocation:4211YongeStreet,Suite321,Toronto,ONMeetingTime(s):3rdWednesdayofeverymonthfrom6:15pm–8:00pmFacilitator:RobertTerSteege 416-227-3372/[email protected]
Surrey,BC
Information:ForanyoneaffectedbyPSP,CBD,MSA
Location:Elimvillage,OasisBuilding,FamilyRoom,9008158thStreet,SurreyBC
MeetingTime:4thFridayofeverymonthfrom10:00am-11:00am
Facilitator:BobBrett604-930-8150bandmbrett@[email protected]
ListofSupportMeetings&phone/emailsupport
USAandCanada
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WINNIPEG,MB
Information:Forpatients,caregiversandfamilyaffectedbyPSP,CBD,MSA&otherPDdisorders
Location:BronxParkCommunityCentre-TheMeetingRoom720HendersonHighway,Winnipeg,MB
MeetingTime:LastTuesdayofeverymonthfrom6:30pm-8:00pm
Facilitator:[email protected]
Regional facebook pages for the USA/Canada
New England states USA (ME-NH-VT-CT-RI-MA) http://www.facebook.com/groups/MSANewEngland/
Middle Atlantic states USA (NY-NJ-PA) http://www.facebook.com/groups/MSAMidAtl/
Northeast Central states USA (IN-IL-MI-WI-OH) http://www.facebook.com/groups/MSANECentralUS/
Northwest Central states (IA-KS-MN-MO-ND-SD-NE) http://www.facebook.com/groups/MSANWCentralUS/
South Atlantic states USA (DE-DC-FL-GA-MD-NC-SC-VA-WV) http://www.facebook.com/groups/MSASOATL/
Southeast Central states USA(AL-KY-MS-TN) http://www.facebook.com/groups/MSASECentralUS/
ListofSupportMeetings&phone/emailsupport
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Southwest Central states USA (TX-OK-LA-AR) http://www.facebook.com/groups/MSASWCentral/
Mountain states USA (AZ-CO-ID-NM-MT-UT-NV-WY) http://www.facebook.com/groups/MSAMountainUS/
Pacific states USA (CA-OR-WA-HI-AK) http://www.facebook.com/groups/MSAPacificUS/
Canada
https://www.facebook.com/groups/MSACanada/
Monthly Online Discussion webinars
Online Discussion webinars - For MSA caregivers
When:1st Monday of each month
Time: 8:00 pm - 9:00 pm EST
Location: https://www2.gotomeeting.com/register/977578139
Online Discussion webinars - For MSA Patient
When:3rd Monday of each month
Time: 8:00 pm - 9:00 pm EST
Location: https://www2.gotomeeting.com/register/759482131
shydrager online support group for MSA
ListofSupportMeetings&phone/emailsupport
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Founded by Vanderbilt University Autonomic Dysfunction Center staff and currently hosted at http://groups.yahoo.com/group/shydrager