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Living with HopeProgram
FOR INFORMATION 1 800 720.1307 [email protected] parkinsonquebec.ca
CROWNE PLAZA GATINEAU-OTTAWA HOTEL 2 Montcalm Street Gatineau, QC J8X 4B4
819 778.3880 ihg.com/crowneplaza
MAY 2019
22-244th
EDITION
Parkinson Québec’s provincial conference, Living
with Hope, is a major gathering for the Quebec
Parkinson’s community and everyone interested
in this neurodegenerative disease that affects
almost 100,000 people, including caregivers, in
Quebec.
With lectures, workshops and a panel presenting the latest discoveries and current issues surrounding Parkinson’s Disease, this conference is intended mainly for people living with the disease and their caregivers, but it will also interest healthcare professionals and community outreach workers and counsellors from support and services organizations.
During this conference, speakers will cover topics related to quality of life for people living with the disease and their caregivers as well as issues surrounding research and treatments.
ACKNOWLEDGEMENTS
Parkinson Québec wants to acknowledge the contribution of many people to making this conference a success. In particular, we are grateful to the specialists, healthcare professionals and community outreach workers and counsellors who have generously agreed to share their expertise with the Parkinson’s community. We also want to thank all of the volunteers involved, especially the Parkinson Outaouais team. They have made it possible for us to provide an enriching and hopeful conference.
We especially want to thank Dr. Abdallah Tahar, Honorary Chair, neurologist specialized in movement disorders at the Neuro-Outaouais clinic, Hull hospital.
COMMITTEES COORDINATED BY
Romain Rigal Services Development Coordinator, Parkinson Québec
Annie Turcot Network Development Coordinator – Communications, Parkinson Québec
PROGRAM COMMITTEE
Abdallah Tahar, M.D., Ph. D., FRCPC, Honorary Chair
Neurologist and head of the Neurology Department, Hull Hospital, Neuro-Outaouais clinic
Paola Campana, P.T. Physiotherapist in the short-term geriatric unit and head of the physiotherapy department, Institut universitaire de gériatrie de Montréal, instructor on Parkinson’s Disease for health professionals
Eileen Cortina Person living with Parkinson’s Disease
Eileen has been involved in the services offered in the Basses- Laurentides region for a long time. She embodies empowerment and is therefore an outstanding ambassador for Parkinson Québec.
Jean-François Gagnon, PhD Professor in the psychology department at Université du Québec à Montréal and holder of the Canada Research Chair in Cognitive Decline in Pathological Aging, Centre d’études avancées en médecine du sommeil, Hôpital du Sacré-Cœur de Montréal
Nicolas Jodoin, MD Neurologist, Unité des troubles du mouvement André Barbeau, Centre Hospitalier de l’Université de Montréal and assistant professor in the neurosciences department at Université de Montréal
ORGANIZING COMMITTEE
Marc Bédard Volunteer, person living with Parkinson’s Disease
Sylvie Mantha Activities Coordinator, Parkinson Outaouais
Pierre Normandin Volunteer, person living with Parkinson’s Disease
Carla Reyes Community Development Officer, Parkinson Québec
Claire Robert Caregiver, President of Parkinson Outaouais
André Riopel Volunteer, person living with Parkinson’s Disease
A WORD FROM THE HONORARY CHAIRDear patients, families and friends,
Parkinson’s storms into our lives like an uninvited guest. By working together, we can make less space for this unsavoury intruder. During this conference held by Parkinson Québec, we want to share with you the most-recent developments that could help you improve the quality of your daily life, regardless of the stage of the disease.
The presentations at this conference are centred around the progression of the disease. This will help everyone understand that better support is available at every stage. The lectures have been structured to present you with the latest research developments, their clinical applications, practical exercises and hopeful developments for the future.
Our speakers are excited to share this information with you in the hopes of helping you better live with this disease.
Have a great conference!
Abdallah Tahar, M.D., Ph. D., FRCPC Neurologist specializing in movement disorders, Neuro-Outaouais clinic, Hull Hospital
A WORD FROM OUR EXECUTIVE DIRECTORParkinson Québec is honoured to welcome you to the Crowne Plaza Gatineau-Ottawa Hotel for its fourth annual provincial conference, Living with Hope.
Again this year, the support of volunteers, administrators, healthcare professionals, researchers, specialists and Parkinson Québec staff allows us to innovate and use all of our expertise to benefit people living with Parkinson’s Disease and their caregivers.
The organizing committee has developed a unique program, adapted to your needs and full of tools and ideas to empower you, featuring lectures and roundtables aimed at constantly improving quality of life.
I encourage you to actively participate in the next three days, to talk to other attendees and to take the opportunity to learn from our experts. Away from your everyday life, pause and take advantage of this time of relief at your pace and as it suits you.
Have a wonderful 2019 conference and I hope to have the pleasure of meeting you,
Nicole Charp entierExecutive Director, Parkinson Québec
REGISTRATION
Participants must register at the tables on the ground floor of the Crowne Plaza hotel.
WEDNESDAY MAY 22 ............................................... FROM 2:30 TO 4:30 PMTHURSDAY MAY 23 ............................................................ FROM 8 TO 9 AMFRIDAY MAY 24 .................................................................. FROM 8 TO 9 AM
FOOD
Tea, coffee, juice and snacks will be served during the morning and afternoon breaks. An onsite buffet can be reserved for Thursday and Friday lunches, not included in the conference fees.
RELAXATION ROOM
A relaxation room is available in the Chaudière II room for those who want some down time. This room will be open at all times during the day. Physical activity workshops will be held from 8 to 8:30 am before the lectures. Chair massages will be available during the day. A schedule will be posted onsite.
DIRECTIONS
From Montreal:Take Highway 15 N. Take Exit 35 to Highway 50 O. Take rue Montcalm to your destination.
From the Laurentians:Mont-Tremblant : Take route 323 S to Highway 50 O. Take rue Montcalm to your destination.
Saint-Sauveur / Saint-Jérôme: Take Highway 15 S. Take Exit 35 to Highway 50 O. Take rue Montcalm to your destination.
From Abitibi-Témiscamingue:Take route 117 S. Take Highway 105 S to connect to Highway 5. Take Exit 2 and continue on Boulevard de Maisonneuve S. Take rue Montcalm to your destination.
EXHIBITORS
THURSDAY MAY 23 ........................................................8:30 AM TO 4:30 PMFRIDAY MAY 24 .................................................................. 8:30 AM TO 2 PM
A space for exhibitors will be set up in the mezzanine. Ten spaces are available to showcase products and services for people living with Parkinson’s Disease and their caregivers. Booths will be available at all times during the days of Thursday, May 23 and Friday, May 24. To reserve your paid space, contact Carla Reyes at [email protected].
Exhibitor’s passport
You are invited to visit the exhibitor’s booths to discover the products and services offered and get a stamp on your exhibitor’s passport for the draw that will be held at the closing panel.
PRESENTATIONS
The lecture presentations will be available after the conference at parkinsonquebec.ca, subject to the approval of speakers.
TRANSPORTATION
You can travel to Gatineau by car, bus or train (Ottawa station). More information is available at:
• tourismeoutaouais.com• greyhound.ca• viarail.ca
GATINEAU TAXI SERVICE819 777.1645 or 819 777.5231
PARKING
Paid parking onsite at the hotel. Paid municipal parking nearby.
The city of Gatineau allows tourists and passing visitors who live outside a radius of 80 km from the city to park at no cost in certain areas, for shopping or for business. This permit is valid for two days. Conditions apply. Submit your request to the city of Gatineau.
gatineau.ca
GENERAL INFORMATION
4
SOCIAL MEDIA
FACEBOOK: follow and share the latest conference updates by liking Parkinson Québec’s Facebook page TWITTER: follow us @parkinsonquebec; the official conference hashtag is #congresparkinson2019 INSTAGRAM : conference photos will be shared on our Instagram @parkinsonquebec. Use the hashtag #congresparkinson2019 to join our photo stream.
PHOTOS AND VIDEO
Filming or photographing lectures is prohibited without the express autho-rization of Parkinson Québec. An official photographer will be onsite to take photos that will be published on the Parkinson Québec website.
WALKING TOUR
We are pleased to offer you a morning walking tour led by a team member to get your day off to a good start. Departure is at 7:45 am Thursday and Friday from the hotel lobby.
THURSDAY MAY 23
7:45 AM Morning walking tourDeparture from the lobby of the Crowne Plaza hotel
8–8 :30 AM Muscle strengthening exercise workshopRelaxation room
5:30 PM • Leisure time in the evening, activities available nearby• Free admission to the Canadian Museum of History from 5–8 pm
FRIDAY MAY 24
7:45 AM Morning walking tourDeparture from the lobby of the Crowne Plaza hotel
8–8 :30 AM Karate workshopRelaxation room
5
WEDNESDAY MAY 22
2–4:30 pm REGISTRATIONLobby
4:30 pm COCKTAILOPENING BANQUETBanquet, tickets required
6
THURSDAY MAY 23
7:45 WALKING TOUR (Optional)Departure from the lobby
8:00 • REGISTRATION - Lobby• EXHIBITOR’S FAIR
8–8:30
MUSCLE STRENGTHENINGEXERCISE WORKSHOP (Optional)Relaxation room
9:00 LECTURESChoice of 3 lectures in French and 1 in English
10:00 • REFRESHMENT BREAK• EXHIBITOR’S FAIR
10:30 LECTURESChoice of 3 lectures in French and 1 in English
11:30 • LUNCH Buffet at the hotel restaurant (reservations required) Numerous restaurants nearby
• EXHIBITOR’S FAIR
1:00 LECTURESChoice of 3 lectures in French and 1 in English
2:00 • REFRESHMENT BREAK• EXHIBITOR’S FAIR
2:30–3:30
LECTURESChoice of 3 lectures in French and 1 in English
3:45 ROUNDTABLES6 themes, including one in EnglishRegistration required in the lobbyby 8 am Thursday May 23
5:00 FREE EVENINGActivities available nearby
FRIDAY MAY 24
7:45 WALKING TOUR (Optional)Departure from the lobby
8:00 • REGISTRATION - Lobby• EXHIBITOR’S FAIR
8–8:30
KARATE WORKSHOP (Optional)Relaxation room
9:00 LECTURESChoice of 3 lectures in French and 1 in English
10:00 • REFRESHMENT BREAK• EXHIBITOR’S FAIR
10:30 LECTURESChoice of 3 lectures in French and 1 in English
11:30 • LUNCH Buffet at the hotel restaurant (reservations required) Numerous restaurants nearby
• EXHIBITOR’S FAIR
1–3 CONFERENCE CLOSING (IN FRENCH)
• Testimony of Diane Patenaude, author, person living with Parkinson’s Disease
• Closing panel: Do we have the power to influence the development of Parkinson’s Disease?
During refreshment breaks and lunch, attendees can take a moment to relax or enjoy a chair massage in the relaxation room.
PROGRAM
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THURSDAY, MAY 23
9–10 AM
A-101
Speech Therapy for Parkinson’s Disease: Take charge of your voice!Alice Mostlova, M. Sc. A., S-LP(C)Carla Di Gironimo, MS, S-LP(C), CCC-SLP
F-102Traitement pharmacologique de la maladie de Parkinson : bénéfices et effets secondairesAbdallah Tahar, M.D., Ph. D., FRCPC
F-103Cognition et maladie de Parkinson : comprendre, prévenir et intervenirJean François Gagnon, Ph. D.
F-104Approche complémentaire pour le ParkinsonCyril Meyre, ND. A.
10:30–11:30 AM
A-201 Parkinson’s disease pharmacological treatment: benefits and side effectsAbdallah Tahar, M.D., Ph. D., FRCPC
F-202Les mouvements involontaires dans la maladie de Parkinson : sont-ils toujours nuisibles?Christian Duval, Ph. D.
F-203Parkinson et sexualité, au-delà des préjugés!Johanne Ductan-Petit, sexologist
F-204Décider à l’avance de ses volontés en matière de soins de santé : enjeux et conséquencesDanielle Chalifoux, LL.B., LL.M.
1–2 PM
A-301 Reward, dopamine and cognition in Parkinson’s diseaseMadeleine Sharp, M.D., M. Sc., FRCPC
F-302Nouveaux traitements pour la maladie de ParkinsonFrancesca Cicchetti, Ph. D.
F-303Organisation anatomique et fonctionnelle du cerveau parkinsonienMartin Parent, Ph. D.
F-304Syndromes parkinsoniens atypiquesIsabelle Beaulieu-Boire, M.D., FRCPC
2:30–3:30PM
A-401New treatments for Parkinson’s diseaseFrancesca Cicchetti, Ph. D.
F-402Diagnostic précoce de la maladie de Parkinson et le défi de maintenir une performance cognitive normaleAlexandru Hanganu, Ph. D.
F-403Bien vieillir avec la maladie de Parkinson : symptômes non moteurs et prise en charge multidisciplinaire Christiane Lepage, M.D., FRCPC
F-404Cannabis et ParkinsonRomain Rigal, PharmD, M. Sc.
FRIDAY, MAY 24
9–10 AM
A-501Integrated Parkinson’s Care Network: improving the lives of people with Parkinson’s disease todayTiago Mestre, M.D, M. Sc.
F-502Les technologies portables et les téléphones mobiles peuvent-ils améliorer la qualité de vie des personnes vivant avec la maladie de Parkinson? Jean François Daneault, Ph. D.
F-503Exercices adaptés pour la maladie de ParkinsonJessica Maire, B. Sc. Kin.
F-504La stimulation intracérébrale pour la maladie de ParkinsonMarie-Pierre Fournier-Gosselin, M.D., FRCSC
10:30–11:30 AM
A-601Can wearable technologies and mobile phones improve quality of life of patients living with Parkinson’s disease?Jean François Daneault, Ph. D.
F-602Le freezing et les autres troubles du mouvement : comment les déjouer?Paola Campana, pht
F-603Avancées en recherche sur la nutrition et l’exercice physique dans la maladie de ParkinsonOlivier Kerdiles, Ph. D.
F-604J’ai de la difficulté lorsque je mange ou je parle, que puis-je faire? Caroline Morin, speech therapist
1 PM Panel
LECTURES
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A-101 English lecture
Speech Therapy for Parkinson’s Disease: Take charge of your voice!
This presentation will assess how Parkinson’s Disease affects speech and discuss effective existing speech therapy treatments. It will particularly fo-cus on SPEAK OUT®! and Loud CROWD® programs developed as part of the Parkinson Voice Project in Dallas, Texas. Treatment demonstrations will be provided and video testimonies from patients will be shown.
F-102Traitement pharmacologique de la maladie de Parkinson : bénéfices et effets secondaires
Pharmacological treatment with dopaminergic and non-dopaminergic agents and their short- and long-term benefits and side effects will be discussed. The various strategies available to treat dyskinesias and motor fluctuations will then be presented. Lastly, we will briefly cover the indications of Dr. Tahar’s surgical approach.
F-103Cognition et maladie de Parkinson : comprendre, prévenir et intervenir
Many people living with Parkinson’s Disease will develop cognition disorders as the disease progresses. During the presentation, the nature, risk factors and causes of cognitive disorders in Parkinson’s Disease will be discussed. You will also see the methods available for preventing and reducing the im-pact of cognitive disorders for people suffering from them and their loved ones.
F-104Approche complémentaire pour le Parkinson
Neurological diseases, the scourge of the century! How can complementary techniques help? Review of the scientific research on several factors related to Parkinson’s and to people living with Parkinson’s. Oxidative stress, mito-chondrial dysfunction, neuroinflammation, how can natural health products help on multiple levels?
A-201 English lecture
Parkinson’s disease pharmacological treatment: benefits and side effects
See lecture F-102.
F-202Les mouvements involontaires dans la maladie de Parkinson : sont-ils toujours nuisibles?
This presentation will cover Professor Duval’s laboratory research. He will discuss the various types of involuntary movements like trembling and dyskinesias and their real influence on patient’s movements in their daily life.
F-203Parkinson et sexualité, au-delà des préjugés!
Talking seriously about sexuality can be difficult for many people. So imagine the difficulty of discussing sexuality in a situation where one partner is sick. In this lecture, defining sexual health and sexuality will be key. Furthermore, participants will be able to demystify the taboos surrounding the sexuality of people living with Parkinson’s Disease. Lastly, the presentation will attempt to convey information and break certain barriers related to sexuality in the context of disease.
F-204Décider à l’avance de ses volontés en matière de soins de santé : enjeux et conséquences
Exercising the fundamental right to autonomous decision making, recognized by charters and jurisprudence on the topic, recognizes that the right to freedom of choice in health matters can be exercised in advance, by issuing directives. This process can be carried out in various ways and through several means that are discussed during the lecture. Advance medical directives stipulated by law will be discussed. More specifically, those concerning end-of-life care, which are different particularly because they are mandatory.
RÉSUMÉ DES CONFÉRENCES* Les conférences numérotées avec A sont données en anglais.
LECTURE SUMMARY
9
* Lectures that start with the letter A are given in English and those beginning with F are given in French.
10
A-301 English lecture
Reward, dopamine and cognition in Parkinson’s disease
Parkinson’s Disease affects brain neurons that produce dopamine, reducing dopamine levels. Decades of neuroscientific research in animals and humans have shown that dopamine plays a crucial role in the brain: its release indicates a reward is being experienced. The ability to correctly send reward signals is essential because most of what we think, memorize, learn and do is controlled or guided by rewards: we remember positive experiences, we learn from good results and we pay special attention to what counts. In this talk, the research findings show why it is important to understand the rewards system in patients with Parkinson’s Disease and how this could help us develop better treatments.
F-302Nouveaux traitements pour la maladie de Parkinson
This presentation will cover the research led by Dr. Cicchetti’s team. You will learn more on the phenomena that contribute to the development of neurodegenerative diseases, particularly Parkinson’s and Huntington’s; the search for biological markers that will help to better diagnose the disease and test the effectiveness of new treatments; the development of therapeutic strategies that will allow early or later intervention in the development of the disease; and lastly, the latest advances in cellular transplantation.
F-303 Organisation anatomique et fonctionnelle du cerveau parkinsonien
This lecture will begin with a short historical review of Parkinson’s Disease. Then, a brief discussion will be held on the main neuropathological changes that characterize this neurodegenerative disease and the general functioning of certain pharmacological and surgical treatments available. Lastly, some recent data obtained from the CERVO research centre’s brain bank will be discussed.
F-304 Syndromes parkinsoniens atypiques
Although most patients who present with parkinsonism are diagnosed with Parkinson’s Disease, approximately 20% of patients will receive a diagnosis of atypical parkinsonisms, either from the onset of the disease or even a few years later. These syndromes include Multiple System Atrophy (MSA), Progressive Supranuclear Palsy (PSP), Cortico-basal Degeneration (CBD) and Lewy body disease (LBD). During the lecture, the various clinical presentations, evolutions and treatments will be discussed to properly distinguish these syndromes from idiopathic Parkinson’s Disease.
A-401 English lecture
New treatments for Parkinson’s disease
See lecture F-302.
F-402Diagnostic précoce de la maladie de Parkinson et le défi de maintenir une performance cognitive normale
Today, maintaining normal cognitive function in people with Parkinson’s Disease remains a challenge. Neuroimaging is an excellent tool that can be used to diagnose early cognitive impairments. But the current research highlights the possibility of predicting future cognitive impairment based on additional clinical and neuropsychiatric characteristics. This presentation describes the results of Dr. Hanganu’s research and presents his current research perspectives.
F-403Bien vieillir avec la maladie de Parkinson : symptômes non moteurs et prise en charge multidisciplinaire
My husband coughs when he takes his pills; my wife is lightheaded when she gets up; my husband moves and screams in the night; I always have to remind my wife to take her pills. Parkinson’s Disease doesn’t just affect an individual’s mobility, it is accompanied by a slew of non-motor symptoms that harm the quality of life of people affected. What are these non-motor symptoms? How can they be handled? How can an interdisciplinary team provide support? There are solutions, and that’s what we’re discussing in this presentation!
F-404Cannabis et Parkinson
With many cannabis-based products now on the market, it is time for an overview of their effectiveness for people living with Parkinson’s Disease. In this presentation, the effects of cannabinoid derivatives on the various symptoms related to Parkinson’s Disease will be discussed as well as their interaction with anti-Parkinson’s medication.
LECTURE SUMMARY
* Lectures that start with the letter A are given in English and those beginning with F are given in French.
11
A-501 English lecture
Integrated Parkinson Care Network: improving the lives of people with Parkinson’s disease today
Parkinson’s Disease is complex and creates many needs. In this session, you will learn about an innovative care program for Parkinson’s Disease based on integrating care, self-management support and digital health technologies. This program is called the Integrated Parkinson Care Network (IPCN) and is based in Ottawa. Mr. Mestre will explain the reasoning behind IPCN, tell the story of its development, share the preliminary results of its real-life application and projects for the future.
F-502Les technologies portables et les téléphones mobiles peuvent-ils améliorer la qualité de vie des personnes vivant avec la maladie de Parkinson?
The current omnipresence of mobile and wearable technologies can be used to improve quality of life for patients living with Parkinson’s Disease. The objective of this presentation is to provide an overview of the various fields where technology can have an impact, from diagnosis to education, as well as numerous other technological applications for a better future.
F-503Exercices adaptés pour la maladie de Parkinson
Did you know that it’s possible to move…even when you’re sitting down? Come find out how to work various parts of your body while sitting down. This is a great way to slow the progress of Parkinson’s Disease in a safe, fun way.
F-504La stimulation intracérébrale pour la maladie de Parkinson
After this presentation, participants will have realistic expectations of surgery to implant an intracerebral neurostimulator for Parkinson’s Disease. The following aspects will be addressed: When should patients be referred to a specialist for an assessment? Which symptoms of Parkinson’s Disease can be improved by neurostimulation? What are the risks of the surgery? What are the steps of the surgery and the follow up required?
A-601 English lecture
Can wearable technologies and mobile phones improve quality of life of patients living with Parkinson’s disease?
See lecture F-502.
F-602Le freezing et les autres troubles du mouvement : comment les déjouer?
People living with Parkinson’s Disease will experience frequent and disparate movement disorders throughout the disease: some are part of the disease, others are a result of medication but they all interfere with mobility quality. How can patients overcome them? Easier movement can be achieved in various ways; very simple objects and strategies can make effective movement possible by relying on intact parts of the brain. Tools to facilitate freezing, to improve walking and transfers will be reviewed. Participants will also take part in a demonstration and practical session.
F-603Avancées en recherche sur la nutrition et l’exercice physique dans la maladie de Parkinson
For several years, nutrition has occupied a growing position in Parkinson’s research. During this presentation, participants will see the results of studies in Dr. Calon’s laboratory confirming the benefits of omega-3s in preventing the development of Parkinson’s Disease in mice, and also the potential of restoring dopaminergic neurons. Physical exercise has shown similar effects in other studies. In a mice model, physical exercise and a diet rich in omega-3 were combined to see if these two factors could work in synergy not only to stop the progress of the disease but eventually reverse the degeneration of dopaminergic neurons.
F-604J’ai de la difficulté quand je mange ou je parle, que puis-je faire?
A certain proportion of people living with Parkinson’s Disease will at one point have to deal with swallowing difficulties (food and/or saliva) that can greatly alter the person’s quality of life and cause them to isolate themselves socially. Swallowing disorders can also sometimes affect the vital prognosis. What are the realistic and concrete options to improve my quality of life, or the quality of life of my loved one regarding swallowing? Through various concrete examples, different low-risk dietary strategies will be explained, discussed and general exercises will be covered. This will give you and your loved ones more tools in your tool box!
LECTURE SUMMARY
TABLE 1 : ENJOY THE TRIP!
Facilitator: Diane Côté, RN
If you have Parkinson’s Disease or are travelling with someone who has the disease, it is important to plan properly to facilitate your trip. The discussion will focus on the special needs of Parkinson’s Disease as well as the safety and comfort that will make your well-deserved vacation more enjoyable. We will share important advice that will allow you to travel with ease either by car, plane, bus, train or cruise. Furthermore, you will learn how to travel at a discount with some carriers.
Roundtable in English
TABLE 2:PARKINSON ET FINANCES : TOUT CE QU’IL FAUT SAVOIR SUR LE PLAN FINANCIER
Facilitator: Pascal Girard, social worker
Parkinson’s Disease touches and affects various parts of life for the people who have it and their families. Finances are unfortunately not spared. The purpose of this roundtable is to discuss and inform participants on various issues, such as adaptation at work, employment insurance, disability, retire-ment, tax credits, financial power of attorney and more.
TABLE 3:SESSION QUESTIONS ET RÉPONSES
Facilitator: Lucie Lachance, B. Sc (N)., M. Sc.
Take the opportunity to ask all your questions about Parkinson’s Disease. Ms. Lachance has worked for several years in a movement disorders clinical setting and will be able to guide you to solutions adapted to your situation.
TABLE 4:AVONS-NOUS LE POUVOIR D’INFLUENCER L’ÉVOLUTION DE LA MALADIE DE PARKINSON?
Facilitator: Diane Patenaude
What are the attitudes and tools that help preserve the independence of a person with Parkinson’s Disease? This is an invitation to share our personal experiences and our small victories over the invasive symptoms of the disease. Hear from someone who has been living with the disease for 25 years and who describes herself as still 95% independent and 97% happy.
TABLE 5:QUELS SONT NOS OUTILS POUR ABORDER LES MOMENTS PLUS DIFFICILES?
Facilitator: Sophie Lecours, Ph. D. Neuropsychology, caregiver counsellor
Parkinson’s Disease is associated with successive griefs that can result in feelings of worry, anger and great sadness in both those directly affected and in their caregivers. Recognizing that these are normal reactions to losses then helps to better adapt to them, each person in their own way and at their own pace. Whether you are someone living with Parkinson’s Disease, their spouse or their parent, this roundtable on grieving will allow you to share your experiences, discuss ways that grief affects your life and how you can move through it. In a quest for hope, this discussion forum will also allow you to find useful advice to save your strength and live better, while reminding you that it is still possible to find joy and love despite the grief.
TABLE 6:SOUTIEN AUX PROCHES AIDANTS
Facilitator: Line Beaudet, inf., Ph. D.
Being a caregiver to someone living with Parkinson’s means having a specific path and needs that evolve as the disease progresses. To support my loved one while preserving my health and some life balance, how do I take care of myself on a daily basis and leverage the resources available? This roundtable will allow you to discuss concerns and strategies, discover services and learn how to use them. Join us to make the most of tips, tricks and energy. Together, let’s get empowered!
REGISTRATION REQUIRED. ROUNDTABLE REGISTRATION WILL BE AVAILABLE DURING THE CONFERENCE FROM 8:30 ON THURSDAY, MAY 23.
ROUNDTABLES
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SPEAKERS AND FACILITATORS
Line Beaudet, inf., Ph. D.
Nurse, senior advisor in specialized care and clinical research (CHUM), researcher (CRCHUM) and associate professor (faculty of nursing sciences, Université de Montréal)
Ms. Beaudet is a senior advisor in specialized care and clinical research at CHUM, regular researcher at CRCHUM, Junior 1 clinician fellow at Fonds de recherche du Québec - Santé (FRQS) and associate professor in the nursing sciences faculty at Université de Montréal. Her work primarily concerns the development, assessment and implementation of innovative web interventions. These are designed in partnership with people living with Parkinson’s Disease or other neurological diseases, caregivers and counsellors in the healthcare and community fields.
Isabelle Beaulieu-Boire, M.D., FRCPC
Neurologist, specialized in movement disorders, Centre hospitalier universitaire de Sherbrooke (CHUS)
Dr. Isabelle Beaulieu-Boire is a neurologist specialized in movement disorders at CIUSSS-de-l’Estrie-CHUS. After specializing in neurology, Dr. Beaulieu-Boire completed a fellowship in movement disorders under the supervision of Dr. Anthony Lang at Toronto Western Hospital. The majority of her practice is dedicated to Parkinson’s Disease and other parkinsonian syndromes.
Paola Campana, P.T.
Physiotherapist, head of the physiotherapy department and clinical lecturer at the Institut universitaire de gériatrie de Montréal
Ms. Campana is a physiotherapist who has worked at the assessment and short-term geriatric unit at the Institut universitaire de gériatrie de Montréal for 30 years. Since 2000, she has been training physiotherapists and rehabilitation therapists across Quebec, as part of the professional development activities recognized by the Ordre Professionnel de la Physiothérapie du Québec. She is also a lecturer for various organizations.
Francesca Cicchetti, Ph. D.
Researcher, Axe Neurosciences, Centre de recherche at Centre hospitalier de l’Université Laval and associate professor, department of psychiatry and neuroscience, faculty of medicine, Université Laval
Ms. Cicchetti obtained her PhD in neurobiology from Université Laval in 1998. In 2002, she completed a postdoctoral training at Harvard Medical School in the field of cellular therapy. She is now a full professor in the department of psychiatry and neuroscience at the Faculté de médecine at Université Laval. Francesca Cicchetti is very involved in the Quebec Parkinson’s community and regularly explains issues surrounding Parkinson’s research in the media.
Danielle Chalifoux, LL.B., LL.M.
Attorney and speaker
Me Danielle Chalifoux is an attorney and speaker. She founded and was president of the Institut de planification des soins until 2018. Her practice is focused on health law and people with chronic degenerative diseases as well as their caregivers. She gives talks, courses and regularly publishes on these topics. In 2015, she published a comprehensive study on the rights of caregivers subsidized by the Fondation du Barreau du Québec, in partnership with the Regroupement des aidantes et aidants naturels de Montréal and she is currently interested in home care.
Diane Côté, B. Sc. inf.
Nurse, Neurosciences Clinic, Ottawa Hospital
Ms. Côté is a nurse at the Parkinson’s Disease and Movement Disorders Clinic at the Ottawa Hospital. Previously, she taught nursing sciences and pharmacology in the health sciences department at La Cité Collégiale. She also participated in a wide range of phase I to IV clinical research tests in rheumatology, multiple sclerosis, oncology and infectious diseases.
For more than 10 years, she specialized in clinical nursing care and coordinated studies on Parkinson’s Disease at the Ottawa Hospital Research Institute. Since 2016, she has been coordinating a project aimed at developing an integrated model for handling Parkinson’s Disease. Diane Côté volunteers for various initiatives, including sessions on financing and information sessions on Parkinson’s Disease. Her goal is to promote health and a better quality of life for people with neurological diseases.
Jean François Daneault, Ph. D.
Assistant professor, Rutgers University
Mr. Daneault obtained his Bachelor’s and Master’s degrees in kinesiology at Université du Québec à Montréal. He completed a doctorate in neuroscience in the department of neurology and neurosurgery at the Hôpital neurologique de Montréal and the Research Institute of the MUHC, where he studied the impact of subthalamic deep brain stimulation on motor performance in patients with Parkinson’s Disease. He recently received a postdoctoral research grant from the Canadian Institutes of Health Research in the field of motor control and biomechanics in the early stages of Parkinson’s Disease.
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Carla Di Gironimo, MS, S-LP(C), CCC-SLP
Speech therapist, Centre Gériatrique Maimonides Donald Berman, Hôpital neurologique de Montréal, private practice
Ms. Di Gironimo obtained a Master’s in speech therapy from Clarion University of Pennsylvania in 1989. In her 25-year career, she has worked in various clinical settings, from short-term care to rehabilitation. She has devoted many years of her career to the treatment of adults with neurodegen-erative diseases, particularly Parkinson’s Disease. She is certified in treatment programs such as Lee Silverman Voice Treatment (LSVT), SPEAK OUT!® and LOUD CROWD®.
Johanne Ductan-Petit
Sexologist
Ms. Ductan-Petit has a Bachelor’s degree in sexology from Université du Québec à Montréal. In 2017, the Parkinson Québec South Shore regional office invited her to speak. From there, she participated in the roundtables at Parkinson Québec’s Provincial Conference in Sherbrooke that year. As a sexologist and a lecturer, she wants to promote sexual health in Quebec.
Christian Duval, Ph. D.
Researcher, Centre de Recherche de l’Institut universitaire de gériatrie Mon-tréal (CRIUGM) and professor in the exercise science department at Université du Québec à Montréal (UQAM)
Mr. Duval is a professor in the exercise science department at Université du Québec à Montréal and researcher at the Centre de recherche de l’institut universitaire de gériatrie de Montréal. He obtained a doctorate in neuroscience from the department of neurology and neurosurgery at McGill University. His research interests concern assessing the mobility of aging people who are healthy or suffering from a neurodegenerative disease. He is developing ways of monitoring patients with Parkinson’s Disease and he tries to better understand the side effects of medications on patients’ mobility.
Marie-Pierre Fournier-Gosselin, M.D., FRCSC
Neurosurgeon, functional neurosurgery, Centre hospitalier de l’Université de Montréal (CHUM), and associate clinical professor, department of surgery, Université de Montréal
Dr. Marie-Pierre Fournier-Gosselin has been a neurosurgeon at the Centre hospitalier de l’Université de Montréal (CHUM) since 2010. Her subspecialty is functional neurosurgery and she offers pioneering surgical treatment in deep brain stimulation (DBS) for movement disorders, particularly for advanced Parkinson’s Disease.
Jean François Gagnon, Ph. D.
Professor in the psychology department at Université du Québec à Montréal
Mr. Gagnon teaches in the psychology department at Université du Québec à Montréal and holds the Canada Research Chair in Cognitive Decline in Pathological Aging. His research work is at the Center for Advanced Research in Sleep Medicine at the Hôpital du Sacré-Cœur de Montréal and at the Institut universitaire de gériatrie de Montréal. His interests include sleep and cognition disorders in Parkinson’s Disease. His work focuses on identifying the first signs of Parkinson’s Disease to improve early diagnosis and to potentially test interventions aimed at slowing and preventing the development of Parkinson’s Disease and dementia.
Pascal Girard
Social worker in the Movement Disorders Clinic, McGill University Health Centre (MUHC)
Mr. Girard has been a hospital social worker since 2014. He is a member of the Ordre des travailleurs sociaux et des thérapeutes conjugaux et familiaux du Québec. He joined the MUHC’s Movement Disorders Clinic in September 2016.
Alexandru Hanganu, Ph. D.
Researcher, Centre de Recherche de l’Institut universitaire de gériatrie Montréal (CRIUGM)
Mr. Hanganu completed his doctoral studies at Kishinau Medical University in Moldova in partnership with Kiel University in Germany. He continued his postdoctoral research at Université de Montréal at the Centre de Recherche of the Institut universitaire de gériatrie de Montréal, under the supervision of Dr. Oury Monchi. Mr. Hanganu then continued at University of Calgary at the Hotchkiss Brain Institute, to return to the CRIUGM for a short postdoctoral with Dr. Sylvie Belleville. His work is focused on cognitive performance and neuroimaging models associated with neurodegeneration in Parkinson’s Disease and Alzheimer’s Disease.
Olivier Kerdiles, Ph. D.
Researcher, Axe Neurosciences, at the Centre de recherche of the Centre hospitalier universitaire de l’Université Laval, Institute of Nutrition and Functional Foods (INAF), OptiNutriBrain International Associated Laboratory
Mr. Kerdiles began his doctorate on Dr. Frédéric Calon’s team in 2017 and since has studied whether the combination of an omega-3-rich diet and voluntary physical exercise can result in the restoration of dopaminergic neurons in Parkinson’s Disease. Passionate about his research, he is committed to better understand the disease, to discover and develop new treatment options and to thereby improve patients’ daily lives.
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Lucie Lachance, B. Sc. inf., M. Sc.
Clinical nurse, movement disorders program, McGill University Health Centre (MUHC)
Ms. Lachance is a clinical nurse in the movement disorders program at the McGill University Health Centre (MUHC). She is very active in the Parkinson’s community and attends various conferences as a specialist. She was a committee member and speaker for the 2013 World Parkinson Congress (WPC) in Montreal and 2016 in Portland, she was also a member of the Parkinson Canada board of directors from 2006–2013 and previously with the Société Parkinson du Québec from 2002–2004.
Sophie Lecours, Ph. D.
Neuropsychology, caregiver counsellor, Parkinson Montréal-Laval
Ms. Lecours worked for several years as a neuropsychologist in the healthcare network, particularly in rehabilitation and geriatrics for various clienteles. She has been a caregiver counsellor at Parkinson Montréal-Laval since 2018, where her responsibilities include developing and offering support, information and accompaniment service to caregivers of people living with Parkinson’s Disease.
Christiane Lepage, M.D., FRCPC
Assistant professor, department of family medicine and emergency medicine, Université de Montréal, and researcher at the Centre de recherche du Centre hospitalier de l’Université de Montréal (CRCHUM)
General practitioner with a Master’s in epidemiology, Dr. Lepage has been practicing since 2009 as a clinical doctor at the Unité des troubles du mouvement André Barbeau at the Centre hospitalier de l’Université de Montréal (CHUM) and is director of the Centre d’évaluation interdisciplinaire Renata Hornstein. She was a clinician and head of the ambulatory geriatric department at the Centre hospitalier universitaire de Québec (CHUQ), and clinician at the Institut universitaire de gériatrie de Montréal (IUGM) where she sat on the board of directors and took charge of the general medicine department. She directs and participates in several research projects on Parkinson’s Disease and has spoken several times on the subject. She is an assistant clinical professor in the department of family medicine and emergency medicine at Université de Montréal and has been a member of the board of directors of Parkinson Montréal-Laval since April 2014 and was a member of the Parkinson Québec board of directors in 2015–2016.
Jessica Maire, B., Sc. Kin.
Kinesiologist-Kinesitherapist
Ms. Maire obtained her Bachelor’s degree in kinesiology from Université de Sherbrooke in 2016 and continued her graduate studies in therapeutic exercises in 2017. She currently works at the Action Sport Physio clinic in Sherbrooke with the objective of helping people through physical activity and manual therapy. During her studies, she worked and acquired particular experience with people living with Huntington’s Disease, a degenerative disease that bears some resemblance to Parkinson’s.
Tiago Mestre, M.D. M. Sc.
Neurologist and researcher, Ottawa Hospital, Ottawa Hospital Research Institute and at the Brain and Mind Research Institute at Ottawa University
Dr. Tiago Mestre is a neurologist specializing in movement disorders at the Ottawa Hospital and researcher at the Ottawa Hospital Research Institute and at the Brain and Mind Research Institute at Ottawa University. He is currently directing advanced treatment programs for Parkinson’s Disease at the Ottawa Hospital, including deep brain stimulation (DBS) and Duodopa. He is interested in developing a new care provision paradigm for Parkinson’s Disease, transferrable to other chronic neurodegenerative disorders.
Cyril Meyre, ND.A.
Naturopath and hypnotherapist
Mr. Meyre is a naturopath who has been practicing since 2003. In his consultations he integrates the principles of iridology, an alternative medicine technique based on studying the iris, and neurolinguistic programming. He also works as an R&D consultant for natural products companies, in addition to being a speaker and trainer for various therapeutic clienteles across Canada. His consultant role also includes developing files related to regulation of natural product numbers (NPN) with Health Canada.
Caroline Morin, M. Sc.
Speech therapist, head of nursing care, Centre Intégré de Santé et de Services Sociaux de l’Outaouais (CISSSO), Hull Hospital
Ms. Morin holds a Master’s in speech therapy from Ottawa University. Her experience, particularly in rehabilitation centres, led her to specialize in adults with communication and/or swallowing difficulties. Ms. Morin currently works at the Hull Hospital and was briefly a lecturer in the speech therapy (dysphasia) master’s program at Ottawa University. She also works for her professional order as a consultant and inspector.
Alice Mostlova, M.Sc.A., S-LP(C)
Speech Therapist, Centre Gériatrique Maimonides Donald Berman, Hôpital neurologique de Montréal, private practice
Ms. Mostlova obtained a Master’s in speech therapy from McGill University in 2008. She has worked with adults with various neurological diseases in an acute care and rehabilitation setting, but she has always had a particular interest in Parkinson’s Disease. She is certified in the Lee Silverman Voice Treatment (LSVT), SPEAK OUT!® and LOUD CROWD® programs. She leads a successful language group for people living with Parkinson’s Disease at the Centre gériatrique Donald Berman Maimonides de Montréal, and has a private firm specializing in speech therapy for patients living with Parkinson’s Disease.
SPEAKERS AND FACILITATORS
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Martin Parent, Ph. D.
Associate professor, department of psychiatry and neuroscience, faculty of medicine, Université Laval
Mr. Parent is an associate professor in the department of psychiatry and neurosciences in the faculty of medicine at Université Laval. He also leads a research group at the CERVO centre located in Quebec City. His team’s work focuses on the characterization of neural changes that occur in Parkinson’s Disease and that may represent new therapeutic targets.
Romain Rigal, PharmD, M. Sc.
Services Development Coordinator, Parkinson Québec
Mr. Rigal is a pharmacist by training and has worked for more than 15 years in evaluative research in academic and pharmaceutical settings. Since April 2018, he has worked at Parkinson Québec developing and assessing the services offered to the community.
Madeleine Sharp, M.D., M. Sc., FRCPC
Associate professor, Department of neurology and neurosurgery, McGill University
Dr. Madeleine Sharp is a neurologist specializing in movement disorders. Her research focuses on cognitive mechanisms responsible for cognitive dysfunction in patients presenting movement disorders. Cognitive and behavioural symptoms are very common in these patients but are still not well understood and are difficult to treat. Her laboratory research aims to compare what is known about the role of the basal ganglia in healthy cognition, common cognitive symptoms such as executive disfunction, difficulty accomplishing many tasks and apathy.
REGISTRATION AT THE CONFERENCE
Cost: $90 / person from May 22 to 24, 2019* *Single-day registration is not offered.
THIS INCLUDES:• Lecture attendance
• Roundtable attendance
• Closing panel
• Refreshment breaks
• Attendance at the opening cocktail (drinks at participant’s cost)
• Admission to and participation in the activities in the relaxation room
• Access to exhibitor’s booths
• Morning walking tour
You must indicate your choice of lectures when you register. One English lecture and three French lectures are available each session.
REGISTER ONLINE
Online registration is fast, easy and secure. Register today on our website imakeanonlinedonation.org/parkinsonquebec using the Conference 2019 form. One form per registrant is required.
OPENING BANQUET
Cost: $46 / person
THIS INCLUDES:• Attendance at the welcome cocktail and opening banquet
• Three-course meal provided by the Crowne Plaza Hotel
• Show and evening entertainment
LUNCH
Buffet cost: $24 / person / day
Reserve your place at the hot and cold buffet provided by the hotel restaurant for Thursday and Friday lunch. You must reserve your meal when you register. We cannot guarantee the restaurant will be available at the time of the conference. Downtown Gatineau also offers a wide variety of restaurants near the conference.
THURSDAY MENU • Tuscan bean salad
• Roasted bone-in chicken
• Eggplant parmigiana
• Oven-roasted potatoes
• Seasonal vegetables
• Dessert (chef’s choice)
• Beverages
FRIDAY MENU • Garden salad (2 vinaigrettes)
• Meat lasagne
• Vegetarian lasagne
• Bread rolls
• Assorted cakes
• Beverages
ACCOMMODATIONS
Crowne Plaza Gatineau-Ottawa Hotel
2 Montcalm St., Gatineau, QC, J8X 4B41 800 567-1962 ou 819 778.3880 • ihg.com/crowneplaza
Crowne Plaza room, standard King ..............................................$149*
Crowne Plaza room, two standard double beds ...........................$149*
* Preferential rate available until April 22, 2019. Applicable taxes are extra.
A block of rooms has been reserved at the Crowne Plaza Gatineau-Ottawa hotel where the conference will be held.
Rooms can be reserved by telephone directly with the hotel at 1-800-567-1962 or 819-778-3880 or online by mentioning the group name: CONGRES PROVINCIAL and code: PQC
REGISTRATION INFORMATION
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IDENTIFICATION
Last name, first name:
Address:
City: Postal code:
Telephone: Email:
q Person living with Parkinson’s q Caregiver q Healthcare professional q Community outreach worker/counsellor q Researcher q Person interested in Parkinson’s Disease
SPECIFICATIONS
q I use a wheelchair q I have allergies or dietary restrictions. Please specify: ___________________________
Language: q French q English q I plan to park my vehicle in the hotel’s paid parking lot
I WILL STAY AT:
q Hotel (please specify): ________________________________________________ q Family and friends q No accommodations
LECTURE SELECTION
Thursday May 23
9:00 q A-101 q F-102 q F-103 q F-104
10:30 q A-201 q F-202 q F-203 q F-204
1:00 q A-301 q F-302 q F-303 q F-304
2:30 q A-401 q F-402 q F-403 q F-404
Friday May 24 9:00 q A-501 q F-502 q F-503 q F-504
10:30 q A-601 q F-602 q F-603 q F-604
MEAL
q I will attend the Banquet on May 22 / $46 per person
I want to reserve the lunch buffet / $24 each q May 23 buffet q May 24 buffet
PAYMENT
q Single registration / $90 q Banquet / $46 q Buffet: ______ x $24
I have enclosed my payment in the amount of $ ___________ q I am also paying for the registration of __________________________ Note: Please complete one form per person. If you are sending your registration by mail you can make a single payment.
q Cheque to the order of Parkinson Québec q Visa q Mastercard
Card number:
Expiry: ___ / ___ Signature: ____________________________________________________________________________
PLEASE RETURN THE FORM AND PAYMENT BY MAIL TO:
Parkinson Québec, 560 Ontario Street East, Montreal, Quebec H2L 0B6
Online registration: IMAKEANONLINEDONATION.ORG/PARKINSONQUEBEC
REGISTRATION FORM
ONE FORM PER PERSON IS REQUIRED
8776
9561
9 RR
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