LouAnn Long Marilyn Ruiz Lori Fahey Slide 2
www.centraldirectory.org [email protected] 1-800-654-4440
Florida Department of Education Slide 3 Overview of Floridas
Central Directory A one-stop source of information, referral and
personal assistance for persons who are at risk for developmental
delays, disabilities, and special health care needs. Statewide
1-800-654-4440 is available nationally and website
www.centraldirectory.org includes Directorswww.centraldirectory.org
e mail address [email protected] for easy access. Provide
answers/or possible choices of services and supports within your
community. Slide 4 Provides education on disability related
services. Provides advocacy role for families with disability &
special health care needs. Calls can be electronically routed to
Early Steps, FDLRS/Child Find Programs & Early Learning
Coalitions Inclusion contact person. Slide 5 Resource Specialists
provide 2 week follow-up calls on family calls While speaking with
family during follow-up call we request family to complete a short
Family Survey to assist with improving Central Directory services
Slide 6 Our specialized information & referral database is like
a fluid document which we are always striving to improve the
resources available within Florida and information on National and
State disability and special health care need organizations.
Currently the Central Directory website includes portions of our
provider database which is available for families and professionals
to search at their convenience
www.centraldirectory.orgwww.centraldirectory.org Slide 7 VALUES All
individuals have worth and value, regardless of physical, health or
mental challenges. The family has value and importance; a family
receiving the supports and services necessary is the best
environment for all persons. Slide 8 Continued: We need to respect
the values, lifestyle, and culture of the family and each familys
ability to make appropriate decisions for its members. Slide 9
Continued Everyone is best served, and lives are improved, when
families are provided or offered the necessary skills to use our
human service system effectively! Slide 10 Questions & Concerns
Looking forward to working together as a TEAM to improve the
Central Directory services. Lou Ann Long, Director Closing! THANK
YOU! Slide 11 Slide 12 Family Driven Non-Profit 501(c)3 Slide 13 We
DO: Provide Support Provide Information Help Identify Options We do
NOT: Act As Attorneys Slide 14 Family Network on Disabilities, Inc.
is a national network of individuals of all ages who may be
at-risk, have disabilities, or have special needs and their
families, professionals, and concerned citizens. The mission of
Family Network on Disabilities is to ensure through collaboration
that individuals have full access to family-driven support,
education, information, resources, and advocacy and to serve
families of children with disabilities, ages birth through 26, who
have the full range of disabilities described in section 602(3) of
IDEA. Slide 15 Slide 16 Family S.T.A.R. Support, Training,
Assistance, and Resources The F2F Health Information Center of FND
Slide 17 Family STAR Support, Training, Assistance, and Resources
Project of FND, is the F2F Health Information Center, for children
and youth with special health care needs and their families. we
will reach out to Florida's families of Children and Youth with
Special Health Care Needs (CYSHCN) to assist them in making
informed decisions about health care in order to promote good
-treatment decisions, cost effectiveness, and improved health
outcomes for their children. The Florida F2F Family STAR Health
Information Center is funded by a grant from the U.S. Department of
Health and Human Services Administration, and Child Health Bureau,
Division of Services for Children with Special Health Needs. Slide
18 This project will assist families of and (CYSHCN) to make
informed decisions about health care for their children, and youth
through providing support, training, assistance and resources to
families and professionals, so that families can be effective
partners in health care decision making at all levels. Slide 19
Family STAR will assist families to : partner in all levels of
decision - making; through medical home, have access to
comprehensive health and related services; will be able to obtain
early and continuous screening, evaluation, and diagnosis; have
adequate public and/or private financing of the services they need;
have access to community services that are organized so that
families can use them easily; and receive services and resources so
that they can successfully transition to all aspects of adult
health care, work, and independence. Slide 20 Workshops: The Family
STAR Program offers: Welcome to ESE Transition from IFSP to IEP
Self - Determination Understanding ADHD Positive Behavioral
Supports Healthcare Transition Planning with Sticky Notes Section
504 Beginning the Journey I, and II The Nuts and Bolts of Starting
a Support Group Transition from Pediatric to Adult Health Services
A Parent to Parent Support Group Understanding Healthcare Issues
Understanding the Service System Planning is Crucial, Wills, Trust,
and Guardianship Tools for Independence Involve the Whole Family
Patient Protection and the Affordable care Act - 101 Planning for
the future; Accessing CDC Plus, Waiver Services, University/College
Services, and Transportation. Slide 21 Together we can ensure the
future of our children's Health Care. United we can make local
changes. With Family STAR we can have a voice at the State, and
Federal level Slide 22 WITH FAMILY STAR WE CAN MAKE CHANGES Slide
23 Thank you! Still have questions? 800-825-5736 (Toll Free)
727-523-1130 727-523-8687 (Fax) [email protected] www.fndusa.org
[email protected] www.fndusa.org Slide 24 Collaboration Advocacy
Friendship Empowerment The Family Caf Lori Fahey, President/CEO
888-309-CAF (2233) * www.FamilyCafe.net *
[email protected]@familycafe.net Slide 25
What is The Family Caf? The Family Caf has been connecting
individuals with disabilities and their families with information,
training, resources and networking opportunities since 1998. The
Family Caf was founded by families of individuals with disabilities
to serve individuals with disabilities and their families. We are a
family and consumer driven organization. The Family Caf serves
individuals with all types of disabilities, of all ages, throughout
the State of Florida. Slide 26 What does The Family Caf do? The
Family Caf engages Floridians with disabilities and their families
in a variety of ways: The Annual Family Caf Leadership Development
Annual Resource Guide Information and Referral The Florida Youth
Council SAMHSA Statewide Family Network SAMHSA Technical Assistance
Center Slide 27 The Annual Family Caf The nations largest
cross-disability event, typically attracting 6,000 8,000 attendees.
More than 160 classroom size sessions on an array of
disability-related topics. Three Keynote Addresses on relevant,
timely topics. An Exhibit Hall with dozens of public and private
vendors Adaptive Recreation demonstrations. Employment Expo. The
Annual Summit on Disabilities, where families can connect with
policy makers and elected officials. No Registration Fee for
individuals with disabilities and their families. Slide 28
Leadership Development The Change Agent Network (CAN) This network
of Floridians committed to advocacy on behalf of individuals with
disabilities works to promote awareness of pressing issues and
engagement in the public policy conversation. The Family Caf
Delegates Delegates connect The Family Caf with communities
state-wide, disseminating information in their local areas and
connecting The Family Caf with Florida families. Slide 29 Annual
Resource Guide, Information and Referral The Family Caf Questions
& Answers Book Families submit questions and comments on
policies and services. The Family Caf, in turn, distributes them to
relevant State Agencies. Their responses are compiled to create an
annual resource guide called The Questions & Answers Book.
Information and Referral The Family Caf provides information
year-round through its email list serve, toll-free line, website,
and social media outlets. Slide 30 The Florida Youth Council The
FYC is made up of Youth and Emerging Leaders with disabilities from
throughout Florida. They: promote awareness, advocacy and
engagement among their peers host an Annual Youth Summit each
August where some 200 attendees get access to resources, training,
information and peer-to-peer networking; publish a quarterly
newsletter, The Noodle; promote Disability History and Awareness
Weeks each October. Slide 31 SAMHSA Grant Programs Statewide Family
Network supports the TFC in providing information and resources to
families of children with behavioral health needs in Florida. The
CAF TA Center One of five national TA centers for adult behavioral
health consumers. Offers information and resources on Supported
Education, Workforce Development, Disaster Preparedness and
Organizational Development. Supports consumers and their
organizations as they seek to advocate for genuine consumer
involvement and peer leadership in the mental health system of
care. www.CAFETACenter.net Slide 32 519 N Gadsden St. Tallahassee,
FL 32301 888-309-CAF (2233) www.FamilyCafe.net [email protected]
http://www.facebook.com/TheFamilyCafeFL @TheFamilyCafe The Family
Caf Contact Us! Slide 33 More Information Central Directory
www.centraldirectory.org [email protected] 1-800-654-4440
www.centraldirectory.org [email protected] Family
STAR/Family Network on Disabilities 800-825-5736 (Toll Free)
727-523-1130 727-523-8687 (Fax) [email protected] www.fndusa.org
[email protected] www.fndusa.org The Family Caf 888-309-CAF (2233)
www.FamilyCafe.net [email protected] www.FamilyCafe.net
[email protected]
