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RITA MALDONADO BRANCO

Mapping dementia

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Presentation done for MA Communication Design, Central Saint Martins. My MA project aims to investigate how communication design, namely information design, can be helpful in health communication. Dementia and Alzheimer’s disease were chosen for case study. The project tries to raise awareness about dementia and how it’s affecting and will affect more people. Moreover it seeks to support and help patients, their families and carers in an efficient way. I would also like to go further and attempt to find out if design can help to slow down the progression of dementia.

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RITAMALDONADO BRANCO

SHOULD INFORMATION DESIGN HAVE A MORE SIGNIFICANT ROLE IN HEALTH COMMUNICATION?

SHOULD INFORMATION DESIGN HAVE A MORE SIGNIFICANT ROLE IN HEALTH COMMUNICATION?

ALZHEIMER’S AND OTHER FORMS OF DEMENTIA STUDY CASE.

dementia Alzheimer’s

impact of dementia

personal reasons

areas of action

audiences outcomes

future

dementia Alzheimer’s

impact of dementia

personal reasons

areas of action

audiences outcomes

future

dementia Alzheimer’s

impact of dementia

personal reasons

areas of action

audiences outcomes

future

dementia Alzheimer’s

impact of dementia

personal reasons

areas of action

audiences outcomes

future

dementia Alzheimer’s

impact of dementia

personal reasons

areas of action

audiences outcomes

future

dementia Alzheimer’s

impact of dementia

personal reasons

areas of action

audiences outcomes

future

WHAT IS DEMENTIA?

A GROUP OF SYMPTOMSconfusion

memory loss

decreased judgment

communication problems

behaviour change

confusion

disorientation time and place

disturbed sleep

delusions

hallucinations

epileptic seizures

parkinson symptoms

movement disorders

trembling

disconnected speech

loss of speech

concentration problems

difficulty with familiar tasks

difficulty in solving problems/planning

demandingsuspicious

withdrawn

depression incontinencephysical weakness

paralysis

stroke symptoms

inappropriate behaviour

inhibition

change eating habits

loss of empathyrepetition

memory loss

decreased judgment

communication problems

behaviour change

source: Alzheimer’s Society, Alzheimer’s Association, NHS, Mayo Clinic

communication problems

behaviour change

violent

confusion

epileptic seizures

parkinson symptoms

movement disorders

trembling

disconnected speech

loss of speech physical weakness

paralysis

stroke symptoms

inappropriate behaviour

inhibition

change eating habits

loss of empathy

behaviour change

disorientation time and place

disturbed sleep

delusions

hallucinations

concentration problems

difficulty with familiar tasks

difficulty in solving problems/planning

demandingsuspicious

violent

withdrawn

depression incontinence

repetition

memory loss

decreased judgment

communication problems

Alzheimer’s Disease

source: Alzheimer’s Society, Alzheimer’s Association, NHS, Mayo Clinic

parkinson symptoms

movement disorders

trembling

disconnected speech

loss of speech

inappropriate behaviour

inhibition

change eating habits

loss of empathy

confusion

disorientation time and place

disturbed sleep

delusions

hallucinations

epileptic seizures

concentration problems

difficulty with familiar tasks

difficulty in solving problems/planning

demandingsuspicious

violent

withdrawn

depression incontinencephysical weakness

paralysis

stroke symptoms

repetition

memory loss

decreased judgment

communication problems

behaviour change

Vascular Dementia

source: Alzheimer’s Society, Alzheimer’s Association, NHS, Mayo Clinic

confusion

parkinson symptoms

movement disorders

trembling

disorientation time and place

disturbed sleep

delusions

hallucinations

epileptic seizures

concentration problems

difficulty with familiar tasks

difficulty in solving problems/planning

demandingsuspicious

violent

withdrawn

depression incontinencephysical weakness

paralysis

stroke symptoms

repetition

behaviour change

disconnected speech

loss of speech

inappropriate behaviour

inhibition

change eating habits

loss of empathy

memory loss

decreased judgment

communication problems

Fronto-temporal Dementia

source: Alzheimer’s Society, Alzheimer’s Association, NHS, Mayo Clinic

confusion

disorientation time and place

disturbed sleep

delusions

hallucinations

parkinson symptoms

movement disorders

trembling

concentration problems

repetition

memory loss

Dementia with Lewy bodies

epileptic seizures

disconnected speech

loss of speechdifficulty with familiar tasks

difficulty in solving problems/planning

demandingsuspicious

violent

withdrawn

depression incontinencephysical weakness

paralysis

stroke symptoms

inappropriate behaviour

change eating habits

loss of empathy

decreased judgment

communication problems

behaviour change

source: Alzheimer’s Society, Alzheimer’s Association, NHS, Mayo Clinic

confusion

disorientation time and place

disturbed sleep

delusions

hallucinations

epileptic seizures

parkinson symptoms

movement disorders

trembling

disconnected speech

loss of speech

concentration problems

difficulty with familiar tasks

difficulty in solving problems/planning

demandingsuspicious

violent

withdrawn

depression incontinencephysical weakness

paralysis

stroke symptoms

inappropriate behaviour

inhibition

change eating habits

loss of empathyrepetition

memory loss

decreased judgment

communication problems

behaviour change

Alzheimer’s DiseaseVascular DementiaFronto-temporal DementiaDementia with Lewy bodies

source: Alzheimer’s Society, Alzheimer’s Association, NHS, Mayo Clinic

WHAT IS ALZHEIMER’S?

Alzheimer’s Disease

confusion

disorientation time and place

disturbed sleep

delusions

hallucinations

concentration problems

difficulty with familiar tasks

difficulty in solving problems/planning

demandingsuspicious

violent

withdrawn

depression incontinence

repetition

MEMORY LOSS

decreased judgment

communication problems

behaviour change

source: Alzheimer’s Society, Alzheimer’s Association, NHS, Mayo Clinic

Alzheimer’s Disease

confusion

disorientation time and place

disturbed sleep

delusions

hallucinations

concentration problems

difficulty with familiar tasks

difficulty in solving problems/planning

demandingsuspicious

violent

withdrawn

depression incontinence

repetition

MEMORY LOSSCOMPLETE LOSS OF MEMORY

decreased judgment

communication problems

behaviour change

source: Alzheimer’s Society, Alzheimer’s Association, NHS, Mayo Clinic

ALZHEIMER’S IS THE MOST COMMON TYPE OF DEMENTIA

50-75% ALZHEIMER’S

source: World Alzheimer Report 2009. Wikipedia

ALZHEIMER’S IS THE MOST COMMON TYPE OF DEMENTIA

20-30% VASCULAR DEMENTIA

source: World Alzheimer Report 2009. Wikipedia

ALZHEIMER’S IS THE MOST COMMON TYPE OF DEMENTIA

5-10% FRONTO-TEMPORAL

source: World Alzheimer Report 2009. Wikipedia

ALZHEIMER’S IS THE MOST COMMON TYPE OF DEMENTIA

<5% LEWY

BODIES

source: World Alzheimer Report 2009. Wikipedia

ALZHEIMER’S IS THE MOST COMMON TYPE OF DEMENTIA

50-75% ALZHEIMER’S

20-30% VASCULAR DEMENTIA

5-10% FRONTO-TEMPORAL

<5% LEWY

BODIES

source: World Alzheimer Report 2009. Wikipedia

WHY IS IT IMPORTANT?

source: World Alzheimer Report 2009, Wikipedia

35,560,000ESTIMATED NUMBER OF PEOPLE WITH DEMENTIA IN THE WORLD

source: World Alzheimer Report 2009, Wikipedia

35,560,000ESTIMATED NUMBER OF PEOPLE WITH DEMENTIA IN THE WORLD

source: World Alzheimer Report 2009, Wikipedia

MORE THAN 4x POPULATION LONDON: 7,753,600

35,560,000ESTIMATED NUMBER OF PEOPLE WITH DEMENTIA IN THE WORLD

source: World Alzheimer Report 2009, Wikipedia

115,380,0002050:

ESTIMATED NUMBER OF PEOPLE WITH DEMENTIA IN THE WORLD

source: World Alzheimer Report 2009, Wikipedia

115,380,0002050:

ESTIMATED NUMBER OF PEOPLE WITH DEMENTIA IN THE WORLD

source: World Alzheimer Report 2009, Wikipedia

ALMOST 2x POPULATION UK:

62,041,708

115,380,0002050:

ESTIMATED NUMBER OF PEOPLE WITH DEMENTIA IN THE WORLD

THE COST OF DEMENTIA WORLDWIDE

source: World Alzheimer Report 2010, bp.com, google.co.uk, apple.com

dementia$604 bn

THE COST OF DEMENTIA WORLDWIDE

source: World Alzheimer Report 2010, bp.com, google.co.uk, apple.com

dementia$604 bn

BP$239 bn

THE COST OF DEMENTIA WORLDWIDE

source: World Alzheimer Report 2010, bp.com, google.co.uk, apple.com

dementia$604 bn

BP$239 bn

Tesco$62 bn

THE COST OF DEMENTIA WORLDWIDE

source: World Alzheimer Report 2010, bp.com, google.co.uk, apple.com

dementia$604 bn

BP$239 bn

Tesco$62 bn

Apple$20 bn

£27,647/year

THE COST OF DEMENTIA IN THE UK

source: Alzheimer’s Research Trust, 2010

average cost of care for patient

£27,647/year

£24,700/year

THE COST OF DEMENTIA IN THE UK

source: Alzheimer’s Research Trust, 2010

average cost of care for patient

UK median salary

WHY IS IT IMPORTANT PERSONALY?

Grandpa Vasco Grandma Elisa Grandpa Júlio Grandma Rita

Grandpa Vasco91 years old

Grandma Elisa89 years old

Grandpa Júlio88 years old

Grandma Rita89 years old

Grandpa VascoAlzheimer’s

Severe10 years ago

Grandma Elisa Grandpa JúlioFronto-temporal

dementiaMild

2 years ago

Grandma RitaAlzheimer’s

Moderate6 years ago

WHAT MUST BE DONE?

RAISING AWARENESS

common misunderstandings about dementia

having a healthy life can prevent dementia

understanding symptoms and progression

plan and adapt to new realities

RIGHT SUPPORT

MORE VISUAL?

MORE VISUAL?

MORE VISUAL?

TO WHOM?

2. CARERS

1. GENERAL PUBLIC

3.PATIENTS

Web-based information?Booklets?

How to prevent dementia.How to recognize it.

1. GENERAL PUBLIC

Understand dementia. How does it progresses.How to help.

Web-based information?Booklets?

2. CARERS

Data lossDesorientationCommunication Problems

3. PATIENTS

CAN WE HELP THIS?

Help to soften progression.Stimulus.

Interactive and participatory artefact

3. PATIENTS

FUTURE?

?

?

?graphic design

social design

THANKYOU