Medical & Scientific Program 11th Australasian Cystic Fibrosis … · 2019-02-24 · 1 Medical & Scientific Program 11th Australasian Cystic Fibrosis Conference Sunday 16th August

1

Medical & Scientific Program 11th Australasian Cystic Fibrosis Conference

Sunday 16th August 2015 Medical & Scientific Program 0730 – 0900 Registration & Posters Up 0900 – 1030 Special Interest Groups – SIGs Appendix - SIG Session Briefs 1. Scientists Chair: Martin Donnelly Start 1000 Wentworth Room 2. Nurses Chairs: Sharon Hunt Felicity Finlayson Adelaide Room 3. Physiotherapists Chair: Ruth Dentice Michael Doumit Sydney Room 4. Dietitians Chair: Tamarah Katz James Cook Room 5. Psychosocial Chair: Mary Fantidis Hobart Room 7. Pharmacists Chair: Courtney Munro Edwin Flack Room 8. CF Centre Directors Mathew Flinders Closed Meeting Room 1030 – 1100 Morning tea

2

Sunday 16th August 2015 Medical & Scientific Program

1100 – 1200 SIGs Continued All groups will conclude at lunch 1200 – 1300 Lunch All afternoon sessions in the Wentworth Ballroom 1300 – 1335 Official Opening CF – LIFE IN THE FAST LANE WHERE HAVE WE COME FROM & WHERE ARE WE GOING? Chair: Patrick O’Connor

President CFA Welcome to County By Matthew Doyle Accomplished composer, musician, Didgeridoo player, choreographer and dancer CONFERENCE OPENING Nathan Charles CFA Ambassador Professional Rugby Union Player currently with the Western Force Debuted with the Wallabies in 2014 and has CF 1335 – 1500 KEY NOTE ADDRESS – Plenary 1 Chair: Peter Wark Speakers: Barry Plant

Evolution of CF management and what the future holds? Professor Consultant Pulmonologist & CF Centre Director, Cork University Hospital, Ireland Claire Wainwright

3


Local Perspective, the development of CF care in Australia, where are we going? Professor Respiratory Specialist and Head of Cystic Fibrosis Services Lady Cilento Children's Hospital, Brisbane Sian Ellett Consumer Perspective Life with CF in Australia 2015. Writer, orator and meditation practitioner with a Masters in Creative Writing, Publishing and

1500 – 1530 Afternoon tea 1530 – 1700 Joint Q & A THE REAL COSTS OF CYSTIC FIBROSIS FACILITATED PANEL DISCUSSION Facilitator: Mick O’Regan

Journalist & Broadcaster, ABC and the Seven Network

Panel to include: Barry Plant and Sian Ellett David Isaacs Clinical Professor in Paediatric Infectious Diseases, University of Sydney, Children's Hospital Westmead, Sydney Eleanor Main Senior lecturer in Physiotherapy & Course Director Institute Child health London UK Francis Hollander Dietetics & Nutritional Science at Utrecht, The Netherlands Pradeep Singh Professor of Medicine and Microbiology University of Washington USA

4


John Massie, A/Professor Respiratory Physician Royal Children’s Hospital Melbourne Susan Biggar CF Parent, Author, Inaugural Chair Royal Children’s Hospital Family Advisory Council Melbourne

Topics to include financial costs, emotional costs and ethics

1700 – 1800 The Welcome Cocktail Party, all delegates

welcome to attend, in the Trade Exhibition area

5

Monday 17th August 2015 Medical & Scientific Program

0730 – 0900 Registration 0730 – 0830 Breakfast Sessions Mathew Flinders Room

1. Antimicrobial treatment including aminoglycoside monitoring Facilitator: Courtney Munro Speaker: David Young Clinical Professor Pharmacy University of Utah USA

Melbourne Room

2. How do you know you are doing a good job as a physio? Facilitator: Ruth Dentice Speaker: Eleanor Main Senior Lecturer in Physiotherapy &

Course Director Institute of Child Health London UK

Edwin Flack Room

3. An introduction to CF for new staff Facilitator: Felicity Finlayson Speakers: Judith Glazner CF Coordinator & Counsellor Royal Children’s Hospital Melbourne Nicola Reardon CF Coordinator & Counsellor Royal Children’s Hospital Melbourne

6


Adelaide Room

4. Tube feeding: Benefit or burden? Facilitator: Tamarah Katz Speaker: Francis Hollander

Dietitian Cystic Fibrosis and Lung transplant Center University Medical Center Utrecht, The Netherlands

Hobart Room

5. Interpreting CT Scans & X-rays in CF Facilitator: Sharon Hunt Speaker: Scott Nagle

Assistant Professor Medical Physics University Wisconsin USA

0900 - 1000 Plenary 2 Perth/Sydney Room THE IMPLEMENTATION OF THE AUSTRALIAN STANDARDS OF CF CARE AND PEER REVIEW PROCESS

Chair: Peter Middleton Australian CF Standard of Care – why so long?

Speaker: Scott Bell Professor, Director Adult Cystic Fibrosis Senior Staff Specialist The Prince Charles Hospital Brisbane

7


Results of the Australian Peer Review Process 2010 – 2015

Speakers: Peter Wark Chair Conference Organising Committee Professor, Senior Staff Specialist Respiratory & Sleep Medicine John Hunter Hospital Newcastle

The Australian Peer Review Process Claire Wainwright Professor, Respiratory Specialist and Head of Cystic Fibrosis Services Lady Cilento Children's Hospital Brisbane

1000 – 1030 Morning tea

8


1030 - 1200 Concurrent Sessions 1 Concurrent Session 1A Melbourne Room CT SCANS IN CF: BENEFITS & RISKS

Chair: John Widger Introduction: the capabilities of CT scanning in CF

Speakers: Scott Nagle Assistant Professor, Medical Physics University Wisconsin USA

Lessons learnt from AREST CF

Stephen Stick Professor Head of Respiratory Services Princess Margaret Hospital for Children Perth

Lessons learnt from the London CF collaboration

Colin Wallis Consultant in Respiratory Paediatrics Great Ormond Street Hospital London UK

Closing: Future options for imaging in CF Scott Nagle Q and A with panel discussion

9


Concurrent Session 1B Perth Room THE EVOLUTION OF DIVERSITY IN P. AERUGINOSA IMPLICATIONS FOR DISEASE

Chair: Sarath Ranganathan Evolution of diversity in Pseudomonas; implications for disease

Speakers: Pradeep Singh Professor of Medicine and Microbiology University of Washington USA

A case of a difficult to manage Pseudomonas infection David Reid Staff Physician Thoracic Medicine The Prince Charles Hospital Brisbane

Australian Clonal Pseudomonas strains Kay Ramsay

PhD Queensland Children's Medical Research Institute

Concurrent Session 1C Adelaide Room HEALTHY BONES: MEDICAL NUTRITIONAL EXERCISE INTERVENTIONS TO OPTIMISE BONE HEALTH

Chair: Shihab Hameed Speakers: Craig Munns

A/Professor Staff Specialist Endocrinology, Paediatrics & Child Health, Children's Hospital, Westmead Sydney

Dr Susannah King

10


Senior Dietitian Alfred Health Melbourne

Anna Middleton Research Physiotherapist

Children’s Hospital Westmead Sydney

Concurrent Session 1D Hobart Room WHAT THE AUSTRALIAN CYSTIC FIBROSIS DATA REGISTRY CAN DO FOR YOU!

Chair: Peter Cooper Speakers: Geoff Sims

Manager of the Australian Cystic Fibrosis Data Registry (ACFDR) Adam Jaffe’ Consultant in Respiratory Medicine and Associate Director of Research, Sydney Children's Hospitals Network

Concurrent Session 1E Edwin Flack Room M.ABSCESSUS: THE EMERGING NEMESIS Chair: Scott Bell Case study: Odette Erskine CF Fellow Westmead Hospital

Sydney

Speakers: Rachel Thomson Thoracic Physician

11


The Prince Charles Hospital Brisbane Senior Lecturer University of Queensland Brisbane David Young

Clinical Professor of Pharmacy University of Utah USA

1200 – 1300 Lunch 1200 – 1300 Brown Bag Lunch Sessions Brown Bag Session 1 Sydney Room MODEL FOR ADDRESSING REPRODUCTIVE AND SEXUAL HEALTH IN CYSTIC FIBROSIS SERVICES Chair: Mary Fantidis

Speaker: Kathryn Frayman Respiratory Medicine Royal Children’s Hospital Respiratory Diseases Group Murdoch Children’s Research Melbourne

Brown Bag Session 2 Perth Room NEW INSIGHTS INTO BIOFILMS AND CHRONIC CF INFECTIONS Chair: Paul Robinson

Speaker: Pradeep Singh Professor of Medicine and Microbiology University of Washington USA

Brown Bag Session 3 Melbourne Room

12


LAUNCH OF THE CF NURSING STANDARDS OF CARE AND UPDATES ON PHYSIOTHERAPISTS & NUTRITION GUIDELINES

Chair: Adam Jaffe Speakers: Julie Bunting

Clinical Nurse Consultant Clinical Service Innovation The Prince Charles Hospital Brisbane

Anne Holland

Clinical Chair Physiotherapy

Alfred Health and La Trobe University Melbourne

Nicole Saxby Dietitian and the Paediatric Coordinator for the Tasmanian Cystic Fibrosis Service Hobart

1300 – 1330 ePoster Discussion Stream 1 Clinical

Adelaide Room Stream 2 Basic Science/Genetics

Hobart Room Stream 3 GI Nutrition/Endocrine

Edwin Flack Room Stream 4 Physiotherapy/Cardiopulmonary

Matthew Flinders Room Stream 5 Psychosocial/Education/QI

Wentworth Room

13


1330 – 1430 Poster Discussion Brisbane Room Posters shortlisted for a prize will deliver a slide presentation in the ePoster session Grab and Go afternoon tea 1430 - 1600 Plenary 3 Perth Room DETECTION OF EARLY DISEASE Chair: Sarath Ranganathan

Role of LCI Speakers: Paul Robinson

Clinical Senior Lecturer Paediatrics & Child Health, Children's Hospital, Westmead Sydney Role of CT Stephen Stick Professor Head of Respiratory Services Princess Margaret Hospital for Children Perth Role of MRI Scott Nagle Assistant Professor, Medical Physics University Wisconsin USA

14


1600 - 1700 Oral Abstract Presentations Stream 1 Clinical

Melbourne Room Stream 2 Basic Science/Genetics

Adelaide Room Stream 3 GI Nutrition/Endocrine

Edwin Flack Room Stream 4 Physiotherapy/Cardiopulmonary

Hobart Room Stream 5 Psychosocial/Education/QI Matthew Flinders Room 1900 – The Conference Dinner The Crystal Ballroom at Luna Park 1 Olympic Drive Milsons Point Arrival drinks at 7pm

15

Tuesday 18th August 2015 Medical & Scientific Program

0730 – 0900 Registration 0730 - 0830 Breakfast Symposium Perth Room Sponsored by Novartis ADHERENCE, TREATMENT SATISFACTION AND REAL WORLD DATA FOR DRY POWDER TOBRAMYCIN

Chair: Claire Wainwright Speakers: Barry Plant

Professor Consultant Pulmonologist & CF Centre Director, Cork University Hospital, Ireland

Paul Robinson Staff Specialist The Children's Hospital at Westmead, Sydney Brenda Button Adjunct Clinical Associate Professor Departments of AIRmed and Physiotherapy Alfred Health

0900 - 1000 Concurrent Sessions 2 Concurrent Session 2A Sydney Room GETTING THE MOST OUT OF OUR ANTIBIOTICS Chair: Kingsley Coulthard

Speaker: David Young Clinical Professor of Pharmacy University of Utah, USA

16


Concurrent Session 2B Adelaide Room REMOTE CONTROL: ADVANCES IN TELE-HEALTH Chair: David Reid

Speakers: John Wilson Professor, Head CF Service Alfred Health Narelle Cox Senior Physiotherapist Adult CF Service, Alfred Health & Monash University Melbourne Denise Clarke CF Research Nurse, Project Manager, Regional e-Health & Telemonitoring Program

Concurrent Session 2C Hobart 1 & 2 Room ATYPICAL CF Chair: Colin Wallis UK perspective on cystic fibrosis screen positive, inconclusive diagnosis

Speakers: Colin Wallis Consultant in Respiratory Paediatrics Great Ormond Street Hospital London UK

Australian perspective on newborn screening – What do we call these cases?

John Massie Associate Professor Paediatric Respiratory Physician Royal Children's Hospital University of Melbourne

17


Fellow Murdoch Children's Research Institute

Adult cases of CF missed by newborn screening Peter Middleton Associate Professor Sydney Medical School CF Centre Director Westmead Hospital

Panel Discussion and Questions Concurrent Session 2D Wentworth Room PSYCHOSOCIAL ASPECTS OF LUNG TRANSPLANTATION CF POPULATION Chair: Anne Li

Speakers: Jane Harris Social Worker Lung Transplant Service Alfred Health Melbourne Carla Patist Psychiatric Registrar Lung Transplant Service Alfred Health Melbourne

Concurrent Session 2E Edwin Flack Room UNCLOGGING DIOS Chair: Mark Oliver

Speakers: Angela Matson Senior CF Dietitian The Prince Charles Hospital Brisbane Keith Ooi Paediatric Gastroenterologist The Sydney Children’s Hospital

18


Senior Lecturer University of NSW Sydney

Concurrent Session 2F NEW THINKING ABOUT OLD PHYSIOTHERAPY QUESTIONS IN CF Melbourne Room Chair: Ruth Dentice Speaker: Eleanor Main

Senior Lecturer in Physiotherapy & Course Director Institute of Child Health London UK

1000 – 1030 Morning tea

19


1030 - 1130 Concurrent Session 3 Concurrent Session 3A Melbourne Room EARLY INSULIN THERAPY IN CF

Chair: John Widger Speaker: Shihab Hameed Paediatric Endocrinologist Sydney Children’s Hospital Conjoint Lecturer UNSW

Concurrent Session 3B Sydney Room THE CHALLENGE OF EMERGING ORGANISMS IN CF Chair: Peter Wark

Speaker: David Young Clinical Professor of Pharmacy University of Utah, USA

Concurrent Session 3C Hobart 1 & 2 Room ECMO AS A BRIDGE TO LUNG TRANSPLANTATION

Chair: Allan Glanville Speakers: Brenda Button

Associate Professor Senior Physiotherapist Alfred Health Melbourne Dominic Keating Respiratory Physician Alfred Health Melbourne

20


Concurrent Session 3D Perth Room CF LIVER DISEASE: NATURAL HISTORY AND CHALLENGES

Chair: Keith Ooi Speakers: Mark Oliver

Associate Professor Head of Clinical Services Department of Gastroenterology Royal Children's Hospital Melbourne

Keith Ooi

Paediatric Gastroenterologist Sydney Children’s Hospital Senior Lecturer University of NSW Sydney

Concurrent Session 3E Adelaide Room ENERGY EXPENDITURE, HYDRATION AND NUTRITION IN THE ACTIVE PERSON WITH CF

Chair: Michael Doumit Speakers: Andrea Kench

CF Dietitian The Children’s Hospital Westmead Sydney Anna Middleton Senior Respiratory Physiotherapist The Children’s Hospital Westmead Sydney

21


1145 - 1300 Plenary 4 Sydney/Melbourne Room LIFE IN THE FAST LANE, ADVANCES IN TRANSPLANT CARE Chair: Paul Robinson

Speakers: Allan Glanville Professor & Medical Director Lung Transplantation, Director of Thoracic Medicine, St Vincent’s Hospital Sydney Miranda Paraskeva Consultant Lung Transplant & Respiratory Physician, Alfred Health Melbourne

NUTRITIONAL CHALLENGES PRE AND POST TRANSPLANTATION

Speaker: Francis Hollander Internal Medicine and Dermatology, Dietitician Cystic Fibrosis and Lung Transplant Center, University Medical Center Utrecht, The Netherlands

1300 – 1400 Lunch

22


1300 - 1400 Lunch Symposium Perth Room Sponsored by Vertex IVACAFTOR BEYOND THE LUNGS

Chair: Hugh Greville Speakers: Eric Cheah

Fellow Gastroenterology Children’s Hospital Westmead Sydney Sydney on Ivacaftor and pancreas function

John Wilson Professor Head CF Centre Alfred Health Melbourne on Ivacaftor and exercise Panel: Steve Stick Perth

Barry Plant Ireland 1400 - 1530 Closing Plenary

Sydney/Melbourne Room

NOVEL APPROACHES FOR CF Chair: Peter Wark

CFTR modulation, who benefits most? Clinical efficacy and real world effectivness

Speakers: Barry Plant Professor, Consultant Pulmonologist & CF Centre Director, Cork University Hospital, Ireland

23


Orphan diseases & related costs. Are we missing the bigger picture?

David Isaacs Clinical Professor in Paediatric Infectious Diseases, University of Sydney The Children's Hospital Westmead Sydney John Massie Associate Professor Respiratory Physician Royal Children’s Hospital Melbourne

1530 Conference close

24

APPENDIX: SIG SESSION BRIEFS Scientists The Past, Present and Future of CF care, diagnostics and research in Australia Moderators: Dr Martin Donnelley and Dr Nigel Farrow

What: The goal of the Scientists SIG is to have an informal discussion about where CF science has come from, where we are at, and where we are going to go in the future. Some specific discussion points include, but are not limited to:

• What are we currently doing well in research and diagnostics?

• What are the current issues, including funding opportunities, training of new staff and researchers?

• What’s new in CF research, pulmonary function testing, microbiology, etc? What are the emerging technologies likely to alter CF diagnosis and treatment?

• Where will we be in 5, 10 20 years’ time? Will CF be cured? Is a cure needed, or will treatment options improve?

• How can CF scientists in Australia collaborate and communicate better? Do people need and want this?

• Can we improve the NHMRC Project Grant funding rate for CF research? What about the new research funds available from the USACFF?

Who: Many SIG’s are very focussed, but we recognise that the Scientists at the Australian CF Conference have a diverse range of backgrounds, skills and interests. This session is aimed at all scientists involved in any aspect of CF, including those in pulmonary function testing, laboratory diagnostics, and research.

25

Format: The session will be informal, and conducted in a round-table format. What you will get out of it: An interesting morning of discussions about CF science, and its future in Australia and worldwide. An opportunity to meet new people, put a face to others in CF science, and form new collaborations. What do you need to prepare: All participants should have a 2-3 minute verbal introduction prepared, outlining who you are, where you work, why you’re here, and what your “thing” or goal in CF is. If you have been a recipient of CF Australia Funding (e.g. Research Grant or PhD top-up, etc), then we’d like to hear what you have done with it. If you have an issue that we can add to the list above then please advise the moderators and bring it along to the meeting. Contact details: [email protected] [email protected]

26

Dietitians 0900 – 1030 CF and nutrition, new generation, new concerns. 0900 – 0930 Dr Susannah King, Doctor, Senior Dietitian, Alfred Hospital Melbourne Prevention and management of obesity in cystic fibrosis: is it time to revise our guidelines? 0930 - 0950 Jenna Stonestreet, Senior Dietitian, The Prince Charles Hospital, Brisbane Tess Stanway, Dietitian, Children’s Hospital Westmead, Sydney Obesity and CF case studies, adult and paediatric 0950 – 1030 Dr Audrey Tierney, Senior Dietitian, Cystic Fibrosis, Alfred Hospital Melbourne Effects of Gene Modulators on Nutrition in CF 1100 – 1200 Nicole Saxby State-wide Cystic Fibrosis Coordinator & Senior Dietitian, Royal Hobart Hospital, Burnie Community Health Centre and Tory Crowder Adult Cystic Fibrosis Dietitian Canterbury Cystic Fibrosis Service, New Zealand CF Dietitian SIG Meeting

27

Nurses 0900- 0910 Welcome 0910 – 0930 Guest Speaker Julie Bunting CNC- Clinical Services Innovation, The Prince Charles Hospital, North Metro Hospital Health Service, Brisbane. 0930-1030 Oral Abstract Presentations Sharon Simonds Kim Cookson Megan France Georgina Paterson Elizabeth Shevill 1030 – 1100 Morning Tea 1100 - 1200 Business Meeting. Physiotherapists 0900 – 1030 Evolving your CF physiotherapy practice: European lessons for Australian physios 1100 – 1200 Your patient has no symptoms associated with their CF, how should you proceed

28

Psychosocial 0900 - 0945 Speakers to be announced on the day 0945 - 1000 Kim Cookson Unmet needs among adult patients living with CF 1000 - 1030 Breakfast 1100 - 1200 CF and psychosocial issues relevant for the current era, new approaches and considerations for the future 1100 – 1115 Cindy Branch-Smith Early surveillance of CF of parent’s psychosocial experience’s of disease knowledge and their children’s procedures 1115 - 1130 Alice Morgan When is too little (care) too much (harm) in CF? An ethical and psychological analysis 1130 – 1145 Anthony Talbot Multiple transitions from a young adult with end stage CF: An integrated psychosocial team approach 1145 – 1200 Fiona Moran Hospital in the Home for CF- Current practice and planning for the future

29

Pharmacists Part I: 0900 – 1030 Presentation and Discussion of Abstracts

1030 – 1100 Morning Tea Part II: 1100 – 1130 Value of a CF Pharmacist Part III: 1130 – 1200 Q&A with an Expert

Part I: 0900-1030 5 minutes/presentation followed by questions and discussion

Ivacaftor Challenges 0910 – 0915

1. Reynolds Julie, and McKay K. BIG PHARMA, BIG PRICE, BIG PROBLEMS – SURVIVAL AND LESSONS LEARNED FROM THE SUPPLY OF IVACAFTOR

0915 – 0920 2. France Megan, Jong Tiffany, and Wood M. THE

ROCKY ROAD TO ESTABLISHING PBS SUBSIDISED KALYDECO IN A LARGE ADULT CENTRE.

0920 – 0925 3. France Megan, Jong Tiffany, Reid D., Smith D., Bell

S. and Wood M. FALLING THROUGH THE CRACKS – THE CHALLENGES OF PBS CRITERIA FOR PRESCRIBING KALYDECO.

0925 – 0940 Discussion of abstracts 1-3 and ivacaftor challenges.

Quality Prescribing 0945 – 0950

4. McDermott Louise. PAEDIATRIC OUTPATIENT CF CLINIC – THE WAY FORWARD WITH QUALITY PRESCRIBING

30

0950 – 0955 Discussion of Abstract 4.

Quality Use of Medicines 0955 – 1000

5. Paterson Georgina, Coulthard Kingsley, Greville H. and Morton J. HOME MEDICATION REVIEW – IS THIS A USEFUL TOOL TO ENGAGE CF PATIENTS IN IMPROVED ADHERENCE AND SELF-MANAGEMENT.

1000 – 1005 Discussion of Abstract 5. 1005 – 1015 Malien Katri. DISCUSSION OF CF PHARMACY SERVICES AT THE TOWNSVILLE HOSPITAL. 1015-1025

6. TBC

Part II: 1100 – 1130

Value of a CF Pharmacist Dr David Young

Part III: 1100 – 1200

Q&A with an Expert Expert: Dr David Young Moderators: Courtney Munro & Kingsley Coulthard

Documents

Medical & Scientific Program 11th Australasian Cystic Fibrosis … · 2019-02-24 · 1 Medical & Scientific Program 11th Australasian Cystic Fibrosis Conference Sunday 16th August