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A Patient’s Journey into Health Care Social Media, but where’s Pharma? March 13, 2013 Health 2.0 NYC Michael A. Weiss, Esq., MBA Founder Crohn’s Disease Warrior Patrol Blog HospitalPatient.com @HospitalPatient

Michael a weiss march 13 2013 pp presentation for health 20 nyc

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Page 1: Michael a weiss march 13 2013 pp presentation for health 20 nyc

A Patient’s Journey into Health

Care Social Media,

but where’s Pharma?

March 13, 2013 – Health 2.0 NYC

Michael A. Weiss, Esq., MBA

Founder – Crohn’s Disease Warrior Patrol

Blog – HospitalPatient.com

@HospitalPatient

Page 2: Michael a weiss march 13 2013 pp presentation for health 20 nyc

Diagnosed w/ Crohn’s Disease

See Doctor/Hospital

@HospitalPatient

Page 3: Michael a weiss march 13 2013 pp presentation for health 20 nyc

Now What?

@HospitalPatient

Page 4: Michael a weiss march 13 2013 pp presentation for health 20 nyc

Patient Education

@HospitalPatient

Page 5: Michael a weiss march 13 2013 pp presentation for health 20 nyc

Patient Support

Peer-to-Peer

Patient Support

Visiting a NEW Crohn’s

Patient

@HospitalPatient

Page 6: Michael a weiss march 13 2013 pp presentation for health 20 nyc

Patient Engagement

@HospitalPatient

Page 7: Michael a weiss march 13 2013 pp presentation for health 20 nyc

Patient Options – Analog/Digital

Analog Digital

@HospitalPatient

Page 8: Michael a weiss march 13 2013 pp presentation for health 20 nyc

Options

1-on-1 “Word of Mouth” – Analog

GLOBAL Patient Movement - #HCSM - Digital

@HospitalPatient

Page 9: Michael a weiss march 13 2013 pp presentation for health 20 nyc

Interactive

Health Care Social Media (#HCSM)

@HospitalPatient

Page 10: Michael a weiss march 13 2013 pp presentation for health 20 nyc

Introverted

Health Care Social Media (#HCSM)

• Wikipedia

• WebMD – Web Portals

• Yahoo Groups –

“Living w/ Crohn’s”

• Google Key Word

Searches

• Blogs – RSS Feeds

• Podcasts

• Vlogs

@HospitalPatient

Page 11: Michael a weiss march 13 2013 pp presentation for health 20 nyc

A Vlog

@HospitalPatient

Page 12: Michael a weiss march 13 2013 pp presentation for health 20 nyc

A Blog

@HospitalPatient

Page 13: Michael a weiss march 13 2013 pp presentation for health 20 nyc

Virtual Patient Communities

@HospitalPatient

Page 14: Michael a weiss march 13 2013 pp presentation for health 20 nyc

Where’s Pharma?

@HospitalPatient

Page 15: Michael a weiss march 13 2013 pp presentation for health 20 nyc

Pharma – Print/Websites (Analog)

Drug – Humira/Abbott Drug – Cimzia/UCB

@HospitalPatient

Page 16: Michael a weiss march 13 2013 pp presentation for health 20 nyc

TV Pharma Ads to Patients

ONLY in US & New Zealand

SNL Parody Ad (Analog)

@HospitalPatient

Page 17: Michael a weiss march 13 2013 pp presentation for health 20 nyc

#HCSM Helpful Patient Pharma

Data ?????

@HospitalPatient

Page 18: Michael a weiss march 13 2013 pp presentation for health 20 nyc

FDA Regulating Facebook “Likes”?

@HospitalPatient

Page 19: Michael a weiss march 13 2013 pp presentation for health 20 nyc

#HCSM FDA “Piecemeal Policy-Making”

“But one must ask whether this

purposeful ambiguity is any way to run a

regulatory process.”

@ScottGottliebMD

Forbes Magazine

@HospitalPatient

Page 20: Michael a weiss march 13 2013 pp presentation for health 20 nyc

FDA Analog Solutions BUT Digital Pharma

Opportunities

iPhone/Smartphones

Music/Video Tablets

@HospitalPatient

Page 21: Michael a weiss march 13 2013 pp presentation for health 20 nyc

Why Pharma MUST ActPatient/Physician Intel

Real-Time

Refinement of Drugs

Real-Time

@HospitalPatient

Page 22: Michael a weiss march 13 2013 pp presentation for health 20 nyc

How Can Pharma Act?Facilitate Patient

Influencers

Nurture Organic Patient

Community

@HospitalPatient

Page 23: Michael a weiss march 13 2013 pp presentation for health 20 nyc

Pharma MUST LEAD FDALead with Intent to

HELP

Help Define FDA

Regulations

@HospitalPatient

Page 24: Michael a weiss march 13 2013 pp presentation for health 20 nyc

Michael A. Weiss, Esq., MBABlog – HospitalPatient.com

Vlog – YouTube.com/HealthcareInterview

Founder - www.CrohnsDiseaseWarriorPatrol.org

@HospitalPatient