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Missouri: Overview of the ALL
13%65%(62,498)
Enrolled HCBS DD Services
State DD Services
Targeted Case Management
19%
Based on 1.58% prevalence of 3.815 million citizens, US Census
95,498 estimated Missourians with Developmental Disabilities
3%
ICF/DD
Current Influences in Missouri
•New Division of DD director •Valerie Huhn
• Restructure of DDD Regional Offices• Partnership for Hope• Self-Directing DD Supports•HCBS rule and transition plan•Mo. DD Council commitment to supporting
individuals and families• Flexibility of County Boards (SB40 boards)
to try new things
Missouri’s COP Priorities
Discovery and Navigation• Long Term Services and Supports (LTSS)– Front Door– Consistent messaging– Support Coordination and planning
• Transition to Adulthood– Employment– Alternatives to Guardianship
• Voice of Individuals and Families
Long Term Services & Supports
Policies and Systems
• Updated DDD Quality Outcomes in line with LifeCourse• Referring families directly to MOF2F at
the DDD front door• Sustaining 10 years of folder
dissemination
Long Term Services & Supports
Organizations
& Professionals
• Embedding LifeCourse in Support Coordinator Training and Coaching • Piloting LifeCourse tools with PCS
(County Board) & scaling up• Established and sustaining LifeCourse
Tools and Practice workgroup
Long Term Services & Supports
Individuals & Families
• Piloted Family LifeCourse Workshop with St Louis Arc• Creating Individual/Family Portfolios
Transition to Adulthood
• Linked COP and Show Me Careers grant activities• Changed DESE template for Transfer of
Rights at age 18 letter to reflect choice of guardianship alternatives
Policies and Systems
Transition to Adulthood
• School districts including LifeCourse
Transition handout with “the letter”• Disseminating LC folders and booklets at
school conferences and events•Training LOQW employment counselors on LifeCourse framework and tools•Arranged Guardianship Options and Alternatives into LifeCourse format
Organizations & Professionals
Transition to Adulthood
• Embedded LifeCourse in Columbia Community Transition Team (CTT) conference for students and families • Created and replicated Youth Leadership
Academy based on LifeCourse Framework
Individuals & Families
Voice of Individuals & Families
Policies and Systems
• DD Council conducted restructure survey and listening sessions with a comprehensive report• DD Council infused LC into Partners in
Policymaking Program• DD Council strategic planning around LC• DD Council held HCBS rule public forums
Voice of Individuals & Families
Organizations
& Professionals
• Engaging LifeCourse Affiliate Network• Arc with support from DDC hosted
conference on DDD restructure and redesign proposal• Integrating LifeCourse into F2F HIC and
Parent to Parent
Voice of Individuals & Families
Individuals & Families
• Held Partners in Policymaking Alum LifeCourse event• Actively engaged LifeCourse Network
Stakeholders
Connecting and Networking
• Re-energizing and re-focusing the
Regional Advisory Councils (RACs)• Establishing Family Network and Peer
Support COP work group• Expanding the Family LifeCourse
Workshop and training facilitators
Happening Over Next Few Months
Goods and Services
Coming Soon!
• Exploring Respite• Providing LifeCourse training for
provider agencies and direct care workers
Missouri’s Lessons Learned
• Change is hard and it takes a long time• Excitement and Innovation is contagious• People are ready and excited about and ready for the
message and concrete, practical tools• People are more apt to engage in things if it’s
easy or simplified• Scheduled team meetings or phone calls give
needed structure• Missouri is different – lines get blurred – we were
engaging in COP activities before there was a COP!