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Moray Physical and Sensory Disability Strategy 2015-2025 MORAY PHYSICAL & SENSORY DISABILITY STRATEGY DRAFT Current version 24 March 15 2015 - 2025

Moray Physical & Sensory Disability Strategic Group 5-Appendix 1.pdf · MORAY PHYSICAL & SENSORY DISABILITY STRATEGY ... People with a disability are entitled to have their human

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Moray Physical and Sensory Disability Strategy 2015-2025

MORAY

PHYSICAL & SENSORY DISABILITY STRATEGY

DRAFT

Current version 24 March 15

2015 - 2025

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APPENDIX 1
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Moray Physical and Sensory Disability Strategy 2015-2025

1. Welcome

Welcome to the Moray Physical and Sensory Disability Strategy 2015-25. This

strategy is for people from birth to age 65 who’s only or major impairment is a

physical or sensory one, this includes people with life limiting long term conditions

and acquired brain injury, but excludes those with learning disabilities and/or autistic

spectrum disorder as there are separate strategies covering these areas. There will

clearly be an overlap in this strategy with policies and services for older people who

have a physical or sensory impairment who are over 65 and we will deal with this by

ensuring that links are made to relevant strategies for older people.

The World Health Organisation has recognised that people with disabilities,

including those with a sensory impairment, have poorer health outcomes, lower

educational achievements, less economic participation and higher rates of poverty

than people without a disability. It acknowledges that they do not have equal access

to a range of services, to the extent that disability is now increasingly understood as

a human rights issue.

People with a disability are entitled to have their human rights respected. However

barriers to health care, rehabilitation, education, employment, and support services

are still in place. Often these barriers are due to accessibility and the obstacles they

face in their everyday lives, but it is also about the level of awareness and

understanding that society as a whole has in relation to people with a physical or

sensory disability.

The Scottish Government’s Getting It Right for Every Child approach (GIRFEC)

approach throughout Scotland is intended to ensure that all services and agencies

working with children, young people and their families take a co-ordinated approach

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to holistic assessment, planning and service delivery that is appropriate,

proportionate and timely. It also states that children and their families are fully

involved in any decisions that affect them. This is irrespective of age, impairment,

condition or circumstances and therefore will include all children and young people

with physical or sensory disability.

Under the Education (Additional Support for Learning) (Scotland) Act 2004, as

amended, education authorities are required to identify, meet and keep under

review the additional support needs of all pupils for whose education they are

responsible and to tailor provision according to their individual circumstances.

For national and local content for the strategy, detailed information can be found at

the end of the strategy in Appendix 1, with clear definitions outlined in Appendix 2

relating to the mean of what is defined as a disability.

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2. What services do we have?

Employment Support Service Quarriers Carers Support

Quarriers epilepsy fieldwork service Moray Citizens Advice Bureau

Capability Scotland Moray Disability Forum

The Blue Badge Scheme Moray Resource Centre

MAT – Moray Assisted Transport Scheme Shopmobility – Moray Limited

North east sensory Services (NESS) Crossroads

M.O.V.E Movement Opportunities via education

Development Play Groups

SENSE Scotland Taigh Farrais Respite

PANIS – Access to diabled toilets The Oaks Hospice

SSAFA – For military families CHAS Childresn Hospice Association

Scotland

RAF Benevolent Fund Archie Fund

Moray Duo – Disabled User Led

Organisation

More Info - Database of services

Homecare services Dial a bus

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3. What the budget looks like

Health & Social Care Annual Budge 2014/15

Health & Social Care Budget

Mental Health £1,642,000

Drug & Alcohol £201,000

Learning Disabilities £10909,000

Older People £21,577,000

Occupational Therapy £1,204,000

Physical, Sensory & Disabled £2,385,000

Children & Families £16,327,000

Management, Strategy & Support £1,885,000

Total £56,130,000

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The Moray Council spends 61% on external service providers and 39% is spent on

internal service provision.

What we know about the budget

We do not have lots more money to spend. Money from the Government is

reducing.

This strategy includes the move toward more Self Directed Support, which is all

about personalisation and giving people choice and control. It is also about the fair

sharing of money based on a persons’ need.

We will have to do things better without waste, ending some services, and have

even more creative and cost effective services.

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4. Key Trends in Moray

NEEDS ASSESSMEN TO BE ADDED

A full needs assessment can be found at the end of the strategy in Appendix 3

5. Developing our strategy

The development of our strategy has been highly participative, drawing on the views

of individuals, families, communities and partner organisations. A consultation event

and a series of focus groups and workshops were held with stakeholders who

included people with physical and sensory disabilities. The views expressed have

informed the content of our final strategy.

We developed a questionnaire to capture people’s thoughts, feelings and opinions.

We know that not everyone likes to fill in questionnaires so we held a conversation

cafe for people to come and talk to us in an informal setting over a coffee. We also

visited services in Moray so that they could talk to us in familiar surroundings. We

were also available for one to one chats.

It was really important to get the strategy right. It helps decide what services are

needed, how many services are needed and where they should be. It also helps us

to think about how services already available can be used and how service in the

community that anyone, if they are able, can use. It helps us look at self-help and

how we can help keep ourselves healthier.

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6. Our vision – how we want things to be

We listened to everything people said about what they want their lives to be like.

We agreed our vision, we feel we all need to work together to make this happen.

Our vision says:

We must also make sure all services and staff who work in services treat people in

the right way as it says in the Human Rights Act (1998) and the Equality Act (2010).

Moray is a community where people are heard and listened to and have

choice and control to meet their individual needs and

chosen lifestyle

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7. What we found out

Some things people told us

Support people to live - let go

See life as a whole not segmented

Talk to people who have done it before –

peer support

Think about where you put disabled

spaces - on a hill!!

Professionals need to see beneath 'everything

is fine'

People don't want to bother people

in services

Information is vital

I feel lucky to live in Moray. It has a lot to offer people like me

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Things people told us were important:

Summary: Some main things we found out from the needs assessment and

what people have told us…..

Appendix 4 gives more feedback information from the consultation process.

Being allowed to live in the community and not in hospital

Having a buddy would help reduce isolation

Aberdeen is a long way to travel for hospital appointments to see a

specialist or attend wheelchair clinics

The Moray Resource Centre could do a different range of activities

People are all different and cope in different ways. Some days are

better than others, good and bad. Time spent with people who are

caring and not patronising as people want to be proud of themselves

(feel good factor) even though we can be grumpy at times

I attend the Moray Resource Centre with all my friends. Does not

matter what disability, we are all the same

Chemists are very helpful

Self directed support gives me more control and sets out what I want

my support to do. I felt there was a lack of flexibility and quality of care

before

Lack of flexible care to suit my needs. I can’t spontaneously decide to

do something. It all has to be planned and organised in advance

Volunteering should be started at a younger age

Diagnosis is just the start of the process

Co-ordinate the childs support services with a specialist team

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We have collected a lot of data from the consultation process and it has been used to write our strategy as highlighted in Appendix 4. We have identified some emerging themes from the comments received through the various methods of early engagement have been identified six strategic themes as:

1. Sustaining good health

2. Supporting relationships

3. Housing, Equipment and Transport

4. Information and Involvement

5. Increasing financial security

6. Professional workforce

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8. Six Strategy Themes

The 6 themes in detail:

Sustain and promote good health

Strategy Aim: people of all ages will receive the support they need, when they need it to keep physically and

emotionally healthy

The things we are doing to make this happen include:

Ensure effective transition between children and adult services.

Develop anticipatory care plans

Support uptake of Self-Directed Support (SDS)

Further develop / consolidate outcome-focused / goal-based planning

Support the Dementia Strategy

Ensure that there is a concerted effort to sustainably reduce the stigma and discrimination faced by people with disabilities

Continue to support disability awareness training.

Reduce inequalities for vulnerable groups, ensuring equitable access and provision of services.

Encourage and support access to universal services and community opportunities

Support the work of the Scottish Human Rights Commission

See Hear - Encourage local partnerships (health and social care agencies, 3rd

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sector) to develop care pathways when developing and reviewing services

Develop more and raise awareness of accessible toilets and changing facilities

Review all current spend on sensory impairment, including that relating to

carers, across statutory Health and Social Care and third sector agencies, in

relation to specialist provision

See Hear - Local partnerships should consider options for the introduction of

basic sensory screening, for example, for people of a certain age, and at

agreed times in their care pathway

See Hear - Accessible local information strategies should be developed to include preventative measures and good self care in retaining sensory health, but also providing information on how to access services

Support school health and awarenss programmes

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Supporting relationships

Strategy Aim: to ensure that people with a disability are supported to achieve social inclusion by being able to

access a range of services including information, advice and advocacy to support their relationships within their

own family and wider community.

The things we are doing to make this happen include:

Ensure support for families and carers

Ensure that service users of all ages and their families and carers are fully

involved in service development.

Develop volunteer support services

Support greater use of formal and informal peer support approaches

Develop peer support worker roles within care teams

Ensure access to Independent Advocacy

Support the development of self advocacy

Develop opportunities for respite

Encourage community support groups

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Housing, equipment and transport

Strategy Aim: that the mobility and access needs of people

with a disability are met through a range of accessible transport services and buildings that meet high standards of accessibility agreed with people who have a disability.

The things we are doing to make this happen include:

Improve mental wellbeing by improving the condition of housing.

Ensure vulnerable groups have fair access to safer homes

Increase uptake of telehealth / telecare

Explore the use of technology for better engagement with people

Allow people to try equipment to help them into work

Develop a quicker repair service for equipment

Training for bus and taxi drivers in disability awareness

More dropped kerbs

Information to shop owners on problems with A boards

Think about where disabled parking is put – not on a hill, not with doors

opening onto busy roads

Explore options to reduce wheelie bins left across pavements

More choice of transport, either public, private or community vehicles

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Information and involvement

Strategy Aim: People who have or develop a sensory loss are able to access information and be supported to take

the maximum possible control over living as independently as possible, while also getting direct assistance when needed; appropriate communication is critical to this.

The things we are doing to make this happen include:

Ensure that people of all ages are better informed about services available,

with age appropriate information being available.

Ensure that service users feel listened to and are fully involved in decisions

about their own care.

See Hear - Support stronger local partnerships with service user and carer

engagement / co-production in the design of services and activities which

reflects the need in Moray through appropriate service planning.

Develop local awareness raising initiatives for the public and local

organisations including local businesses.

See Hear - There should be robust systems for maintaining information

locally, and sharing this between agencies, in relation to people who have

received a diagnosis of a sensory impairment at any time from birth onwards.

See Hear - Compliance with the Equality Act 2010 should be scrutinised in

relation to sensory impairment, particularly in relation to communication, and

consideration given as to what future action may be required.

Develop an information point

See Hear - audit current spend and service patterns on sensory impairment,

including for carers, in relation to specialist provision and also to those

elements of other service provision that impact on people with a sensory

impairment. In the light of the findings, consideration should be given to

options for service redesign as appropriate;

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See Hear - Explore opportunities to increase awareness and expertise int eh

area of impairment awareness, building in appropriate content into core

training regimes of different professional groups.

Make information available in a range of formats

Encourage the use of simple language when comminucating to children

Data sharing to be made easier across all agencies

Increasing financial security

Strategy Aim: that people are supported into meaningful activities and have access to good employment or volunteering opportunities

whilst ensuring appropriate options to support people into employment are available.

The things we are doing to make this happen include:

Ensure that people with disabilities have access to advice and support on

financial matters

Support people to maximise incomes / mitigate impact of Welfare Reform

Promote employment opportunities including self employment

Improve skills for employment and help young people progress into

employment.

Promote the use of Employment Support Service

Support more appropriate volunteering / intermediate employment

opportunities.

Support people into and employers to offer flexible working patterns

Promote the use of self directed support to become self employed

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Support people to go to college

Explore and promote early years activites focusing on under 3s

Professional workforce

Strategy Aim: that staff have the skills and training they need to

provide good support to people.

The things we are doing to make this happen include:

All staff to promote a culture that is respectful and experienced as

empowering.

Ensure a sustainable skilled workforce that helps people improve health.

Develop service culture for positive risk management.

Increase awareness of employability and health issues among frontline staff

Encourage involvement in the Healthy Working Lives (HWL) programme

among local employers, businesses and other workplaces

Develop coordinated approach to disability training and awareness for staff

across services

See Hear - There should be mandatory training in sensory awareness and

assessing for non complex needs across staff in health and social care

settings, targeted in the first instance on older people’s services

Ensure processes arer in place enabling skilled staff to pass on their

knowledge and experience before they leave

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In order to achieve everything highlighted within our 6 themes we have produced a

delivery plan which sets out in more detail what we want to do, how we will do it,

when we will do it, who will do it and what resources we need to do it. This delivery

plan is Appendix 5 at the end of this strategy.

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9. How will we know our strategy is working?

Part of the process of developing this strategy has been to bring together

stakeholders on a regular basis. This has been done by having working groups,

larger events and smaller more intimate conversation cafes. A Physical and

Sensory Partnership Board has been created which will oversee the continual

development and implementation of our strategy.

The role of the partnership board is to:

Helping identify what services people with physical and sensory

and their carers need in Moray

Increasing understanding of what works, service gaps and what

people with physical and sensory disabilities and their carers value most

Supporting the development of strategies and work plans

Reviewing and overseeing the implementation of strategies and

work plans

Promoting wider involvement and participation

Consulting and communicating with wider stakeholders including

users and carers to aid the priority setting process

Agreeing priorities and making recommendations on the above

Ensuring effective handover and transition arrangements for young

people and older adults

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10. Want to know more?

If you need more information please contact:

the Moray Councils Commissioning and Performance Team

Please email us at:

[email protected]

Telephone us on:

01343 567179

Go online to:

www.moray.gov.uk

If you need information from the Moray Council in a different format, such as Braille, audio

tape or large print, please contact:

如果閣下需要摩里議會用你認識的語言向你提供議會資訊的話,請要求一位會說英語的朋友或親人

與議會聯繫

Jeżeli chcieliby Państwo otrzymać informacje od samorządu rejonu Moray w swoim języku ojczystym,

Państwa przyjaciel lub znajomy, który mówi dobrze po angielsku, może do nas

Se necessita de informação, do Concelho de Moray, traduzida para a sua língua, peça o favor a um amigo ou

parente que fale Inglês para contactar através do:

Jeigu Jums reikalinga informacija iš Moray regiono Savivaldybės [Moray Council], kurią norėtumėte gauti

savo gimtąja kalba, paprašykite angliškai kalbančių draugų arba giminaičių susisiekti su mumis

Чтобы получить информацию из Совета Морэй на Вашем языке, попросите, пожалуйста, Вашего

друга или родственника, говорящих по английски, запросить ее

Si necesitas recibir información del Ayuntamiento de Moray en tu idioma. Por favor pide a un amigo o

familiar que hable inglés que:

Project Officer (Equal Opportunities),High Street,Elgin, IV30 1BX

01343 563319 [email protected]

(Wednesday or Thursday only): 18002 01343563319

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Contents of Appendices

Appendix 1 – National and local content

Appendix 2 – Definitions

Appendix 3 - Full needs assessment

Appendix 4 - Feedback from consultation process

Appendix 5 – Delivery plan

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Appendix 1 - National and Local Context See Hear: A strategic framework for meeting the needs of people with a

sensory impairment in Scotland

http://www.scotland.gov.uk/Resource/0044/00448444.pdf

See Hear covers cradle to grave sensory impairment and is set against a

background of increasing demand, the requirement for greater efficiency and

effectiveness with available resources and Health and Social Care Integration. It

has been developed in the context of a number of wider national policies including

Self Directed Support (SDS), Reshaping Care for Older Pople, the Early Years

Collaborative, the Revision of the National Care Standards, the implementation of

the Carers and Young Carers Strategy, the Children and Young People (Scotland)

Bill and the Doran review. Further development included practice expectations, and

has been directly informed by the views of a wide range of stakeholders who have

contributed their views on current service provision and made suggestions for future

developments.

Mental Health Strategy for Scotland: 2012-2015 The Scottish Government published the three year national strategy for mental health in 2012. The strategy established the following seven priority themes:

Working more effectively with families and carers.

Embedding more peer to peer work and support.

Increasing the support for self management and self help approaches.

Extending the anti-stigma agenda forward to include further work on discrimination.

Focusing on the rights of those with mental illness.

Developing the outcomes approach to include personal, social and clinical outcomes.

Ensuring that we use new technology effectively as a mechanism for providing information and delivering evidence based services.

Reference to the new strategy

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Self-Directed Support

In April 2014 the Self Directed Support Act came into operation. Self Directed Support can help people achieve changes in their life. It is an opportunity for a person to have more choice and take greater control over their social care support, enabling them to enjoy greater independence.

Self Directed Support puts the person in control by giving them a lot more say about the type of support they get. They can choose to spend their budget on the support they most need and prefer in order to live the life they want. It is a way of providing social care services which enables them to:

Have more choice and flexibility

Have money to buy their own services

Choose services to suit and improve their lifestyle

Manage their own support

The community care officer or social worker will tell the person how much money they have in their individual budget. They can then strategy and decide the best way to use it. They don’t have to just spend the money on services. They might choose to spend some of it on buying the kind of services they already receive and the rest on new and different things that would make a real difference to their life.

They can choose how they would like their Self Directed Support to be delivered:

The local authority can make a direct payment for them to arrange their own support;

They can choose their support and the local authority makes arrangements for the support on their behalf;

The local authority selects and arranges the appropriate support on their behalf; or

A combination of the options for each type of support

Self Directed Support will mean that that those who commissioning services will

have to do things in a different way. No longer will services be bought in long term

block contracts. We will move to outcomes focused services to meet the needs of

the individual.

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Integration of Adult Health and Social Care Services The integration of adult health and social care will facilitate integration of commissioning budgets for adult services, in such a way that the source of the resources will lose its identity, for as the Cabinet Secretary has stated: “where money comes from, be it health or social care, will no longer be of consequence”. The Integration of Adult Health and Social Care Bill has placed a duty on

partnerships to put in place locality strategizing arrangements to deliver locally

agreed strategic commissioning strategies that have the support of the

professionals and other care providers who will deliver services as well as users

and carers. It is vital that this new partnership arrangements function to improve

performance in the form of the delivery of outcomes for local communities, and that

joint commissioning functions to ensure the specific needs of people are met.

Achieving Sustainable Quality in Scotland’s Healthcare – A 20:20 Vision In 2011 the Scottish Government published its strategic vision for achieving sustainable quality in the delivery of healthcare services across Scotland. The Scottish Government's 2020 Vision is that by 2020 everyone is able to live longer healthier lives at home, or in a homely setting and, that we will have a healthcare system where:

We have integrated health and social care

There is a focus on prevention, anticipation and supported self-management

When hospital treatment is required, and cannot be provided in a community setting, day case treatment will be the norm

Whatever the setting, care will be provided to the highest standards of quality and safety, with the person at the centre of all decisions

There will be a focus on ensuring that people get back into their home or community environment as soon as appropriate, with minimal risk of re-admission

See Hear A strategic framework for meeting the needs of people with a sensory imparment in Scotland. This framework covers cradle to grave sensory impairments and is set against a background of increasing demand, the requirement for greater effeicincy and effectiveness with available resources and Health and Social Care Integration. The issues identified will be addressed over a 10 year period and pogress will be subject to regular review.

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Moray Physical and Sensory Disability Strategy 2015-2025

Commissioning Social Care, Audit Scotland In 2012, Audit Scotland identified the substantial gaps and uncoordinated way in which services have tended to be commissioned. The main recommendations made in their report included:

the need to develop commissioning strategies;

the need to manage the risks of contracting services from voluntary and private providers;

implement self-directed support in a way that service-users will get information, advice and support and processes are in place to monitor the outcomes of the support; and

the need to work very closely together with all partners, including the Third and Independent Sectors.

Caring Together: The Carers Strategy for Scotland 2010-2015 Caring Together acknowledges the vital contribution unpaid carers make to the health and social care system and commits to working with carers as equal partners in the planning and delivery of care and support. It is recognised both nationally and locally that Health and Social Care services depend on the significant amounts of caring provided by partners, family members and others to respond to the increasing challenges posed by an ageing population. Adult Support and Protection The Adult Support and Protection Act 2007 provide greater protection to adults at risk of harm through powers to investigate and take action to support and protect adults in situations where concern exists. It places a duty on Councils to make enquiries and investigations to find out whether or not further action is required to stop or prevent harm from occurring, and introduces a range of protection orders including assessment orders, removal orders and banning orders. Equality Act 2010 The Equality Act 2010 places duties on bodies, including service providers in the statutory, Third and Independent Sectors not to discriminate on the basis of certain protected characteristics and make reasonable adjustments in certain situations. Welfare Reform Act 2012 The Welfare Reform Act came into law in March 2012. The Act makes a wide range of changes to the UK's benefits system. Key changes include:

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Universal Credit: This new benefit aims to simplify the system by combining a number of different benefits into one payment, including income-related Employment and Support Allowance. It is a key part of the Government's pledge to make work pay and cut fraud in the benefits system.

Personal Independence Payment (PIP): This new benefit will replace Disability Living Allowance (DLA) for working age people from April 2013. Between 2013 and 2016, existing DLA claimants who are aged 16 - 64 will be reassessed to see if they are entitled to this new benefit. PIP uses a new assessment process that will take account of a range of abilities, but maintains a very similar structure to DLA.

There are also a wide range of changes introduced in the Act to cut fraud, change the Housing Benefit system and overhaul child support payments. Understanding the implications of the reforms for people experiencing mental ill health, and keeping up to date with developments will be a key concern for those working in mental health. Children and Young People (Scotland) Act The Act sits within the context of the Christie Commission which emphasised the importance of early years, prevention and personalised service delivery. It aims to put children and young people at the centre of planning and services and enduring their rights are respected across the public sector. The Act covers the following key areas:

Promoting the rights of children and young people – placing duties in line with the United Nations Convention on the Rights of the Child (UNCRC), extending the powers of Scotland’s Commissioner for Children and Young People.

Wellbeing and Getting it Right for Every Child (GIRFEC) - ensuring young people have access to a Named Person, and placing duties on public bodies to coordinate the planning, design and delivery of services for children and young people with a focus on improving wellbeing outcomes (and reporting collectively on how they are improving those outcomes).

Early learning and childcare – strengthening early years support by increasing the amount and flexibility of free early learning and childcare.

Getting it right for looked after children – supporting better permanence planning for looked after children through a clearer definition of corporate parenting, a duty on local authorities to assess care leaver’s requests for assistance, additional support for kinship carers and a new statutory footing for Scotland’s Adoption Register.

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The Act promotes stronger cooperation and collaboration among those responsible for looking after children and young people. This includes different local authority departments, services and associated agencies and promotes the principle of corporate parenting whereby relevant agencies hold corporate parenting responsibilities. The Act supports collaboration between corporate parents in terms of information sharing, provision of advice, and coordination of activities. Among the duties placed on corporate parents is a requirement to be alert to matters that may adversely affect the wellbeing of children and young people whom they support. The provisions in relation to information sharing are relevant for the interface between children’s services and adult mental health services.

A Guide to Commissioning for Community Care

The guide includes a clear framework for the commissioning and delivery of support and services to the people of Moray. This means finding out what services people need and then deciding how we can best put those services in place. We want to make sure that people with lived experience of mental ill health, their families and their carers help us to make these decisions.

Moray Health and Social Care Partnership agreed what Commissioning for

Community Care means:

“Commissioning is the process we use to ensure the effective and efficient use of

resources to achieve the best possible outcomes for the population of Moray. The

process includes all the activities involved in assessing and forecasting needs,

agreeing desired outcomes, considering options, strategizing the nature, range and

quality of future services and working in partnership to put these in place”.

The commissioning cycle below was developed by the Institute of Public Care and adopted by the Scottish Government.

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Good commissioning has four main types of activity shown in the cycle:

Analysing – making sure that you know how things are working at the moment, how much there is to spend, who needs the services and what national policies and guidelines have to be kept to.

Planning – finding out where the gaps in service are, developing strategies for the future, which like this one, is based on both the analysis and the views of everyone concerned, especially the people who use the services.

Doing – making sure that the services are delivered as planned and that if problems occur they are dealt with properly.

Reviewing – assessing the services on a regular basis and making sure that they are still meeting people’s needs.

These activities work in a cycle and in order, and help make sure we have the services we need.

Integrated Children’s Services Commissioning Framework

Our aim is that this framework will promote coherence and consistency in commissioning across different care groups and services and help the service and its partners to assess and take decisions about the relative priority given to different

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groups within the community, as well as the balance of investment in prevention, early intervention and supports that are more intensive. We follow the same commissioning cycle (shown above) as Community Care. The service aims to achieve the following specific objectives through the implementation of this Framework –

service strategies identify and address the most significant needs and risks affecting outcomes for children, young people, parents and carers

strategies support the achievement of positive outcomes in relation to those needs, for people using services

strategies promote choice and control on the part of service users in relation to the support and services that they use

strategies help us to achieve value for money

strategies promote equality of opportunity

strategies increase the preventative effect of our services

strategies foster good long-term relationships with service providers, building a culture of trust and mutual respect

strategies develop the range and depth of the market in services to children, young people and families

strategies build capacity in families and communities to meet the needs of children and young people

strategies build capacity in services to meet the needs of children and families, through the development and retention of –

o knowledge, skills and values o a culture of partnership o synergies between sources of support

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Three Tiered Intervention Model The Government’s mental health strategy has been broadly welcomed but gaps in the strategy have been identified by some sources - including the organisation ‘Children in Scotland’. They suggest:

Improving children and young people’s mental health – primarily through Child

and Adolescent Mental Health Services (CAMHS) - is not one of the listed

priority areas

The Scottish Government’s stated commitment to the well-being of children

and young people in so many other policy areas -- from Getting it Right for

Every Child (GIRFEC) to the Early Years Framework, as well as from

Scotland’s Curriculum for Excellence to the Additional Support for Learning

Act -- is not well reflected in the strategy.

There is insufficient emphasis on prevention and early intervention

There is too much emphasis on health services

The emphasis is on those who need specialist treatment

In order to support young people in developing resilience and in promoting their own emotional well-being and to offer more specialist support to overcome difficulties, we need to ‘get it right’ at a number of levels ranging from the support offered in universal services to those in dedicated mental health roles. Clarification about the thresholds and interface between these levels is also of vital importance if young people are to be the subject of timely, proportionate and effective intervention.

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Threshold: Practitioners

including teachers, GPs,

health visitors require an

awareness of issues relating to

emotional well-being so they

can identify potential need,

support young people and

signpost confidently and

appropriately

Threshold: Practitioners

including those in the named

person role or those working

with vulnerable young people

are better able to identify

when more specialist support

is needed and are aware of

thresholds and referral

pathways for CAMHS

support Specialist /

CAMHS

support

Early Intervention Support with issues such as anxiety,

bereavement, low mood, self-harm,

sleep issues, attendance etc

UNIVERAL SERVICES

SCHOOLS: Mental and emotional wellbeing is a key

component of the curriculum

PUBLIC HEALTH NURSING: Promoting the emotional

well-being of parents and young children

COMMUNITY LEARNING & DEVELOPMENT:

Promoting community support and resilience

Integrated Children’s Services The Three Tiered Intervention Model

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Moray 2023 a Plan for the Future Written by public sector providers in collaboration with the Third Sector Interface (TSI Moray) the aim of this document is to describe what Moray will look like 10 years from now. The plan includes targets for improvement, targets to address changing demands for specific services and targets to maintain a high quality of life for many communities. The vision for 2023 is ambitious and will require a significant shift in resources to be achieved; inevitably this will require a reduction in some areas of public service activity and these areas are clearly identified. Community leaders believe that fundamental changes need to be delivered to ensure that Moray is a great place to live in 2023.

‘Caring Together in Moray’ 2011-2015 Caring Together in Moray, A strategy for unpaid carers was co-produced by local unpaid carers and Moray Community Health & Social Care Partnership. It brings together the identified needs of unpaid carers in Moray and the ideas that were shared as part of this process for how we, the Moray Council, NHS Grampian, the Voluntary Sector and Unpaid Carers themselves, can consistently deliver appropriate support to those people who provide an unpaid caring role.

Moray Telehealthcare Strategy

This strategy is about using technology to help maintain people’s independence and

well-being safely.

The Moray Council Procurement Strategy 2010-2014 The Moray Council will support sustainable procurement. This can be described as buying services, whilst at the same time providing other benefits to the local community. All of which must meet with the principles of Best Value.

So, for example, the Council to encourage small and medium enterprises and the third sector (voluntary/charity organisations) to provide services to the Council will ensure that any selection relating to financial viability are proportionate to the contract in question and do not unreasonably exclude small and medium enterprises or third sector providers. An example of promoting social issues would be to encourage volunteering by mentioning this in the contract specification and taking this into account in the award criteria.

By promoting sustainable procurement by means of community benefits and social issues, the Council can support local employment and encourage inclusive supportive communities.

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The Moray Council Local Housing Strategy 2013-2018 The overall aim of the Local Housing Strategy is:-

To ensure that sufficient good quality, affordable housing is available to meet the needs of people living in or requiring housing in Moray.

The Three Tier Model A new model of delivering adult community care services in Moray in now in place. It is a vision shared with the Christie Commission for the reform of public services in Scotland. At the heart of this vision is a new relationship between those who provide services and people who receive these services. For Moray Adult Community Care Services this new model can be described as a

three tier process:

Tier 1- Help to help you (information and advice), universal services to the whole community and emphasis on prevention.

Tier 2- Help when you need it (immediate help in a crisis, re-ablement and regaining independence.

Tier 3- Ongoing support for those who need it through the delivery of 1 or more self directed support (sds) options.

There are a number of principles that have been adopted:

Principle 1: The provision of social care services is not the first response. The provision of information has an important role to play in supporting more people to live independently and to make full use of their local community.

Principle 2: The conversation is at the heart of what we do. Identifying positive outcomes that matter to people is based on a conversation. This level of engagement is the essential first step in delivering an outcomes based service.

Principle 3: Promoting Independence. The role of Moray Adult Community Care Service should always be to focus on empowering the service user.

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Principle 4: Providing Choice and Control. The new model embraces self directed support. If people require on-going support, care officers will help people identify which of the SDS options would best suit their needs.

Principle 5: Improving People Outcomes. This three tier model aims to provide clarity in terms of our core process thereby reducing bureaucracy, minimising delays in providing services and improving outcomes for service users and carers. In practical terms, it means that people cannot be escalated to tier 2 and 3 until their outcomes have been fully explored at tier 1.

Telecare and Living it Up (LiU) The term ‘Telecare’ refers to a range of equipment and associated services which support and enhance safety for people living at home. We know that telecare can greatly increase a person’s independence and in Moray we wish to promote the use of telecare equipment. Living it Up (LiU) is the name of the dallas project in Scotland which will run until at least 2015 and Moray is very pleased to be one of the five early implementer sites. LiU aims to empower people to stay healthy for as long as possible and to help those with long term health and care issues by using technology to enhance opportunities for wellbeing and independence within their community. LiU also aims to provide better links to useful information, products and services; to enable people to support themselves and others. Social Enterprise and Micro Enterprise In Moray we are keen to support the development of social and micro enterprises. A social enterprise is a business that tries to tackle social problems, improve communities, people’s life chances, or the environment. This might sound like charity work, but social enterprises are businesses and come in all sizes, from small community cafés to really big organisations. They make and do things that earn money and make profits like any business. It is how they work and what they do with the profit that is different. Social enterprises reinvesting the profits they make to do more good. A micro-enterprise is a small business. This is a way of creating a job that makes good use of your skills and abilities. Anyone can have a micro-enterprise, including people with profound and multiple learning disabilities. Micro-enterprises can be anything from running your own gardening business to owning a vending machine.

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Appendix 2 - Definitions

The Disability Discrimination Act 1995/2005 (DDA) protects disabled people. The

Act sets out the circumstances in which a person is "disabled". It says you are

disabled if you have:

A mental or physical impairment; Which has an adverse effect on your ability to

carry out normal day to day activities;

The adverse effect is substantial;

The adverse effect is long term (meaning it has lasted for 12 months, or is likely

to last for more than 12 months or for the rest of your life).

There are also some special provisions, for example:

If your disability has badly affected your ability to carry out normal day to day

activities, but doesn't any more, it will still be counted as having that effect if it is

likely to do so again;

If you have a condition which can get worse such as multiple sclerosis or

arthritis, and it will badly affect your ability to carry out normal day to day

activities in the future, it will be treated as having a bad effect on you now.

At least one of these areas must be badly affected:

Mobility Continence

Manual Dexterity Physical Co-ordination

Speech, hearing or eyesight Ability to lift, carry or move everyday

objects

Memory or ability to concentrate,

learn or understand

Understanding of the risk of physical

danger

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Disabilities can be divided into four broad categories:

physical disabilities

sensory disabilities

learning disabilities

mental health problems

Impairments

A physical impairment can arise as a result of accident, illness or congenital

disorder and may be caused by a range of health conditions such as neurological,

circulatory, respiratory and musculo-skeletal disorders which may be long term. It

generally has an impact on someone's physical ability or function.

A sensory impairment refers to people who have a hearing impairment, a visual

impairment, speech impairment and people who are deaf blind. Almost everyone

who has a physical or sensory impairment would be covered by the definition of

disability in the DDA, the definition most widely used and accepted by organisations

such as the Council, Primary Care and Secondary Care.

Visual Impairment

This is a term used to cover those who have some residual vision to those who

have no sight at all. To be registered, a person has to be so blind as to be unable to

perform any work for which eyesight is essential. It does not mean that the person

will have no vision at all. The Social Work (Scotland) Act 1968 gives local

authorities the power to maintain a register of people who are blind or partially

sighted.

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Hearing Impairment

This is a generic description that covers several groups. This includes, the deaf

community, a term that is generally used to describe those people who use British

Sign Language. There are also a larger number of people who are profoundly deaf,

many of who have become deafened through the course of their lives. The largest

group is those who are hard of hearing, many of whom acquire hearing loss as they

become older.

Dual Sensory Impairment

This refers to people with a combination of sight and hearing loss. It includes people

who are both deaf and blind from birth, people who are either blind or deaf from

birth and who lose the other sense and people who acquire a significant visual and

hearing impairment in later life. People with a dual sensory loss typically have

difficulty with communication, access to information and mobility. (Community Care

Services for People with a Sensory Impairment – An Action Plan. Scottish Executive

2003)

Long Term Conditions

A long term condition(LTC) is a condition that requires ongoing medical care, limits

what one can do as a result of various degrees of impairment and is likely to last

longer than one year (action report LTC). It includes conditions such as diabetes,

asthma, epilepsy, arthritis, heart disease and Chronic Obstructive Pulmonary

Disease (COPD) as well as conditions more commonly identified with physical

impairment such as muscular sclerosis or spinal injury. These are conditions which

cannot be cured but require early identification, symptom control by drugs,

treatments and therapies and close monitoring with a greater emphasis on self-

care, self management and advanced care planning.

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The national vision is that by 2025 many long term conditions will be being

prevented by health education measures as well as advances in preventative health

care but it is anticipated that the proportion of our population who will suffer from

long term conditions will increase because of the anticipated increase in older

people.

Neurological Conditions

A Neurological Condition is a general term to include a range of people who have

illnesses such as Muscular Dystrophy, Cerebral Palsy, Motor Neurone Disease,

Multiple Sclerosis, and Epilepsy. The term also includes people who have an

acquired neurological injury such as Stroke, Aneurysm, Acquired Spinal Cord Injury,

Acquired Brain Injury. It is recognised that many of the people who have these

conditions will also have a physical disability and/or a sensory impairment.

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Appendix 3 - FULL NEEDS ASSESSMENT

TO BE ADDED

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Appendix 4 - FEEDBACK FROM CONSULTATION PROCESS

Adult Consultation

What we found out

What does living well and as independently as possible mean to you?

To stay in power – my life, my disabilities

Receiving the support of Crossroads, Elgin Resource Centre and now Quarries’

as we have already lost two important lines of support from the health care

services in the last 3-4 years

I am independent and take a pride in myself. I don’t get depressed

It means everything to me

Getting out of hospital

Doing what I can do for myself and getting help with the things I can no longer do

It allows me to continue to do the things that I am still able to do for myself,

maintaining my confidence and independence and it allows me to remain

assertive and ask for help when I need it. I like to be involved in any decisions

that are being made about myself and my care.

Hoping I can cope with my hearing loss which can be very hard at times when

everyone is chattering

Being able to lead my own life, making my own decisions, keeping as much

independence as I can

It means a lot to me. I don't like having to depend on others as I feel I may come

across as being lazy

Being able to make my own choices

What helps you to live well and independently in your community?

Aids from NESS. Hearing loop when we are at meetings makes it easier

NESS, my guide dog, the NHS

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The Moray Resource Centre has helped grow my confidence due to the support

of staff and other service users that attend

I attend the Moray Resource Centre with all my friends. Does not matter what

disability, we are all the same.

Attending Moray Resource Centre keeps me independent. Go three times a

week and help in the kitchen. This give me independence and family respite

We are lucky to have Moray Resource Centre here. More people could benefit if

there was more promotion

Support from health professionals and family. Walking aids supplied by OT

services

Helpful health and social care professionals

I have a brilliant care package from Hanover Housing

Self directed support gives me more control and sets out what I want my support

to do. I felt there was a lack of flexibility and quality of care before

Being allowed to get out of hospital and live in the community

Attendance of a carer for half an hour each morning

Chemists are very helpful

My GP is good

Having the right equipment for my wife

I can always some get help from Handy Persons Service and W.V.S. Also attend

Friends Forever

Attending Moray College

Peer support is important

Being able to eat properly and buy good cheap food. Able to shop for ourselves

or with assistance when necessary

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What, if anything, stops you from playing as full a part in community life as

possible?

Lack of flexible care to suit my needs. I can’t spontaneously decide to do

something. It all has to be planned and organised in advance

When we're ill or cannot get to places. Cannot walk too far

When I get in a muddle and have trouble with my aids and can't hear very well.

When going out worry about toilet facilities and some shops could have a seat so

you could rest while doing shopping

I can't always get dressed due to my severe pain. On the days I can't get out I

get tired easily

My disability at times can prevent me from being able to go out of the house and

be part of the community. I have foot drops and wear splints on my legs and can

cause pain. My deafness can cause pain. My deafness can also make me

anxious when I can't hear what someone is saying.

Need my activities to be arranged and organised around my needs and to

manage my anxieties. I need to rely on family to take me to unfamiliar places and

to accompany me to appointments etc

I have M.S. My walking and stability hold me up. I never have two days the same

Having to deal with pain, relying on medication, stiffness of limbs/joints and

hands. There are times when hands and feet don't always co-ordinate. Living life

for today and not "what ifs".

I am becoming a recluse because of my vertigo. My visits outside are limited to

when I feel safe. My friends have their own lives and families to deal with

Not being allowed to get out of hospital in two years

Registered blind

My head injury made me dependent on care

Poor eyesight and limited mobility

Having no one to assist me in case of falling

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Because of my disability I am rarely out of the house

Shutting the public toilets was a real mistake

Not being able to get out and about without depending on others. Loss of

confidence, feeling I no longer have much to contribute and that I am not of value

What would help to change this?

Being allowed to live in the community and not in hospital

Having regular checks on health and taking on board advice given by medical

professionals and also try to be as mobile as I possibly can be within limitations

of movement

If medication could reduce my epilepsy and control my falls from vertigo I would

feel more confident about going out if I had more help

Currently there is a question mark about the Moray Resource Centre closing.

Although it cannot help with my pain it helps my confidence. I feel that if it were

to close I would not have anywhere to go and I would be alone with no support

A choice of day services in Moray. Having someone (paid carer) to take me out

to increase the number of social interactions that I have and to help me

experience new things

Nothing but to maintain present level of independence helps to be part of

community.

I only have basic computer skills, which is something that is becoming almost a

necessity, so something to help me with that would be helpful

Someone keeping an eye out for us. Friendship, caring people

Having someone to assist me to and from groups. Even having someone to take

you out for a coffee can be worthwhile, at least you won't be isolated

Having a buddy would help reduce isolation

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What could be better?

As far as we are concerned maybe employ another person to help in the office

(NESS) as Diane and John are always busy but always have time for clients.

They do a good job with compassion and listen to what we have to say

The Moray Resource Centre could do a different range of activities. On Mondays

we do card making and Tuesday we do art. I do like these

Due to proposed changes to a user led service there (MRC) are some concerns

on the future

There should be more volunteering opportunities at Moray Resource Centre

When called for NHS appointments, they shout your name and then the staff

walk away and leave you (visually impaired man)

I have had to use hospital transport to get to Aberdeen appointments however

this has been a very bad experience. I am exhausted and sore afterwards. The

transport leaves very early, picks up people all over the place and I don't get

home till very late and often miss meals therefore it affects my diabetes. Now I

ask friends to take me or miss my neurology appointments. Improve hospital

transport or clinics in Elgin. Improve the waiting times at the diabetic clinic in

Elgin (2 hours average wait). Bring back an assisted transport scheme to help

with the cost and accessibility of wheelchair transport. Sometimes it's a lack of

communication and disabled people get stressed out

Staff shortages and cut backs at day services alarm me. I like routine and

structures and knowing that I can approach my support worker at any time. I've

benefited from the one-to-one approach

Waiting times to see health specialist, communication from health and social

care services

A neurology clinic in Elgin – Aberdeen is too far away and I am more likely to

miss appointments

A wheelchair clinic in Elgin

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Easier access to health and social care professionals and seeing the same

person so that someone knows me well and I don’t have to go over the same

ground

More nurses and doctors, physiothrapists, OTs, available beds - the complete

health package. Less waiting times for waiting in A&E and home visits if

necessary. More training for care workers and back up

Aberdeen is a long way to travel for hospital appointments to see a specialist or

attend wheelchair clinics

Suitable care in the community. Communication between health and social care

More care from social work to give as much help for persons living in community

independently. More trained nursing staff to help out with the normal 9-5 working

hours and more doctors on call. Not having to wait for medical help to arrive

much too late in some cases and more hospital beds if needed for wellbeing

Get more appointments locally as going to Aberdeen/Inverness can be quite

difficult

Change how Self Directed Support is handled, run and channeled.

Shopmobility open seven days a week

Everything can always be better. Content with Crossroads. Resource Centre is

not as good as when my wife first started going but is still useful and Quarries’

looks promising. Health service is going downhill in a hurry through financial

constraints

Making it easier to access services

Regular health checks are needed

More local health clinics

Home carers need more training – I had to talk carers through putting me to bed

Unable to comment as don't use any. Can't use any in hospital as under 65 years

Audio books are usually good.

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Nothing. Shopmobility staff are very helpful and on my down days I always feel

happier after talking to the staff there

Nothing could be improved upon. The services always deliver and help me to

achieve my personal goals. It's only my own personal health that could be

improved upon.

Quite content with services meantime

Nothing. Happy with the services I use

What’s missing? What are the gaps? Are there things in other areas you

would like to see in Moray?

The mental health issues of people with disabilities are not dealt with

You have the therapy pool in Forres why not have one as part of the leisure

centre in Elgin? At least we could have use of all the facilities in one place

Should be more activities like wheelchair dances and where you can just talk to

people

Volunteering should be started at a younger age

Maybe look into buddy system a bit more to see who is being alone. There will

always be someone who has slipped the net. Can we be aware of this?

I'm happy with what I do just now. I have not seen or heard of anything in other

areas

I feel lucky to live in Moray. It has a lot to offer people like me

Moray Resource Centre works for my daughter

I know there are other services available in Moray but I do not use them

Is there anything else you want to say about living with a physical or a

sensory disability?

People are all different and cope in different ways. Some days are better than

others, good and bad. Time spent with people who are caring and not patronising

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as people want to be proud of themselves (feel good factor) even though we can

be grumpy at times

We have to try and help ourselves as much as possible but it's nice to know

services are in place

I'm struggling to do everyday tasks due to severe pain. I need to get help around

my flat from agencies but I don't know who to ask to get items for my everyday

life.

To get out of hospital to live my life as I want to, not how someone else thinks I

should

Due to the nature of disability things can change

It is very hard

I do not wish to become over dependent on services which I know can be

provided in order that I can keep my independence for as long as possible

I can't get out every day and I've always been active but I struggle to do

everyday tasks even getting washed and brush my teeth. I don't get help from

anybody, I struggle

Living with a disability can be extremely demoralising and can lead to feelings of

isolation or you are too much of a bother. Patience on all concerned.

Taking the resource centre away won't be the same as a user led organisation

So far I manage quite well. I know if I need help I can access help and a care

officer through day service or by ringing direct

Used to get all the support and information on other help through two health

support workers but those posts don't exist anymore

People talk a lot of nothing gets done

To ensure all disabled people have a voice which is heard

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HILDREN’S AND FAMILIES SERVICE CONSULTATION

What we found out: Sustaining Good Health

More play parks and activity centres for children in wheelchairs

Involve the dads more in activities

Co-ordinate the support services by having a specialist team

Change the school, policy, so individuals can go to the school which would best support their needs

Sending children out of area is not good for their physical and mental health

There are no high level services in moray, invest for long term value

Communication skills need to be invested especially for 0-2 yrs, with a more structured approach to nurseries providing support.

Need to be proactive with support from birth not from P1 age.

Upskill parents before kids are born

Who is more important the child with disabilities or the other 28 children in the class?

Upskill expectant parents, more connection before the baby is born

Need nursery accreditation programmes

Social worker for children who are deaf need to be trained in BSL

Need a dedicated Social Worker and a transition social worker

Develop children resilience and coping strategies

There is a lack of understanding with regards to sensory issues

Supporting Relationships

Support the transition of personal budgets

Share information, 1 plan for each child so we can all share information efficiently

A family should be able to give overarching consent

Make toilet changing facilities more available so families can access a broader range of activities

Lack of opportunities for respite can make or break a relationship

Supporting advocacy is important

Communication devises are not always available in public places e.g. signs in the town hall

More opportunities for people to meet face to face to support each other

Transport issues – getting children to activities

Continuity of support groups, with challenges of transient community e.g. RAF, Army

Needs of young carers don’t want to be identified

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Lack of understand from parents without disabled children

Not enough early intervention, help and support needed

Diagnosis is just the start of the process

Lack of support workers

Lack of places to deal with children with complex problems

Social isolation for other members of the family, struggle to have friends round

Challenges for keeping children in the community as the child groups up

Lack for support for military families

Issues around access and public transport suitability

Medical treatment can lead children to be disengaged from school and friends as they are seen as different

Little respite for other families members

More parent support required

Some young carers are very young and need more support

Some good examples of transitions between Greenwards and High school through their extended transitions

Learn from good practice

Lack of knowledge of what is available, what services are out there and professionals not always clear

Housing, Equipment and Transport

Transport is an issue to access services

Lack of suitable transport

Equipment needs for communication not always realised

Remember about acoustics and the environment

Hearing aid systems can be ineffective 1 metre away

Lack of houses available for assisted living needs

Appropriate training for volunteers and taxi drivers

Maintenance costs of equipment can be huge

Information and Involvement

Lack of respect for professional opinion and knowledge

Lack of knowledge on sensory issues at budget level

Everyone plans and informs in different ways, different consent with sharing of information

No consistency in communication across Moray

Confusion in understanding peoples roles

Children’s services are defragmented

Children’s sensory Vi and Hi are good in the schools

Assumptions made that parents know exactly who is working with their child.

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Data sharing must be made simpler

Better communication back to parents

Different levels of guardianship of consent needs to be made clearly after the child turns 16

Duplication across the partner’s. Sometime too many people involved

Generally a small workforce, when someone goes off sick there is no continuity of service

Incresing Financial Security

Self-directed support, concerns over funding available for the individual versus care and support the individual needs

Worry about what happens after school

Self-directed support raises expectations of what is available but can’t be met

We must learn to engage more with parents

Inequality, who shouts the loudest, is heard

Costs of respite care is a worry

Nursery places do not start until age 3, difficulty in getting support for age 3 and under

Information and nvolvement

See Hear Strategy, who is the local authority champions

Frustration when services do not link together

Lack of whole school approach to disabilities

Inequality of training opportunities for staff

Schools sometime operate as islands

High staff turnover can cause issues

Different viewpoints on needs and communication needs experienced across agencies

Quality of relationships differs across authority

Going to Aberdeen for various appointments can be an issue

Movement of workforce on temporary contract can cause inconsistencies

All schools are different

In Moray accessing BSL classes can be a problem

Lack of knowledge for resource availability

Budgetary consideration need to be addressed

Lack of staff and vacant post or cutbacks can reduce the workforce

Experienced staff leaves and take with them all their knowledge

How do you keep good people?

Staff resistant to increase workloads as class room assistants have been cut which impacts on service delivery

Shonagh.Jancsics
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CHILDREN’S AND FAMILIES SERVICE CONSULTATION on

16 Oct 2014

Comments made during families event at Cedarwood, Elgin, on 16.10.2014 What’s the best way for you to access information, advice and support and physical on sensory disability and other related issues?

Internet

GP surgery

Carers forum

Information should be freely available in a booklet to k now what’s available and

who to contact

NAS. Good to get directed to reputable sites

Facebook

Personal phone calls and letters

Good advice from epilepsy phone line in Inverness. Epilepsy nurses at Inverness

excellent. Moray expertise at a local level would be good.

Support networks – Quarriers are important

By asking IT

Have special schools. Integration is fine but doesn’t work for every child. As

school etc doesn’t have all facilities/staff training etc.

Just getting awareness out

Accessing information etc is a nightmare. Difficult to find things that are specific

to our area, or to Scotland. Internet and emails are the best way to find out

anything. A database of local groups, people, professionals, therapies would be

good and very, very helpful...it is very time consuming to be searching on the

internet when you have a disabled child to care for.

How do we reduce the stigma and discrimination against those with physical

and sensory disability in schools and our communities?

Information, awareness raising in class

Other parents and staff in shops – they don’t understand autism and do give you

disappointed looks

Council should do more about autism awareness. Link with Glenn Morris access

to services

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Difficult to get people to understand the condition it’s so rare. No specialist

support base up here. Online support is important – forums etc

Need to raise awareness about mental health – people think my son is stupid

Not enough support in schools – teachers vary in their ability to include and

integrate my child

Last year’s teacher was excellent but this year’s is not so good

Waiting for a programme “Smart Moves” in school for 18 months

School is good but they don’t have the knowledge. They deal with epilepsy but

they don’t understand it. If school nurse was to listen to (epilepsy) experts

School deals with epilepsy well - call it “day dreams” to explain it to children. I

find this nice than epilepsy

Better communication and information between school and home – asked for a

diary and so did the speech therapist and they have refused twice

School doesn’t understand condition. Hard to retain information but has support

I would start by making it easier to speak about school things with teachers and

professionals. It always seems very 'secretive' in a way, as they don’t seem to

want to tell us. It helps us parents to feel confident in what we are doing and not

feeling stupid. PTA and other parent groups should have knowledge of disability

rules, so that if a parent of a child with disabilities asks about something then

they should have the back up somewhere to find out how to help. There has to

be more involvement with the regular children.... having separate class time

should be kept to a minimum. It saddens me to see the additional needs kids out

on a shopping trip for all to see.... why cant they be mixed with the other

children? Parents need educating about disabilities of children, to realise that

those children AND their parents like to be spoken to as well, and to be

involved. Maybe Call Scotland passport system to be used more, with parents

consent, to give out to families. Children might like to aim for certificates etc for

learning more about and helping disabled children. Also if staff are not

respecting the parents then no one in school will.

What are the key places where accessibility needs to be improved?

Playbarn. Places with unfamiliar people, places with lots of people

McDonalds is really disability friendly

Christies in Fochabers is great but it would be better if they could lock the gate

and make it safe

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A great idea would be to have a disabled friendly play day with extra supervision

and safer exits

Playbarn – parents attitudes is a barrier to accessing this service

Family circumstances change and additional support needs to be in place.

Accessibility needs to improve in school transport. Buses should really be

transporting, especially country children, in a bus that has other children in it.... It

really is a big deal that a child goes to school on a bus on his own.... the joy he

would have being with others! More accessible for all clubs..... its not good

enough to have something to include special needs if, on the day of it, its

discovered that there has not been the right training for a particular piece of

equipment etc! Swimming should be advertised for disabled children like it is for

other children. Took me months to finally get some pool time...shouldn’t be so!

More accessible afterschool clubs etc....and think about the country kids, we

don’t all live in Elgin. Please... better blue badge spaces, and lots more of

them! Having to unload a child from a car to a wheelchair that is on the road! is

not good enough, and having to put up with abuse and shouting from some

drivers for doing so is even worse! Access to better toilet facilities...having to lay

your child on a filthy toilet floor is not good....and how are we supposed to get

them up off there afterwards....when we are told not to lift, use the hoist! Info on

a web page maybe of where there are suitable walks for wheelchairs, play parks

etc... Play parks should have equipment for all to use...... very little out there for

our children.

What changes to housing, transport and equipment would make a difference

to your child’s life and that of your family?

Get rails in house. Fencing for the garden would be useful so family could play

safely. Council refused. It is hard to have my daughter stuck in the house

Safety

We could do with a larger house but wouldn’t know where to start or go about

doing this (I have 4 children).

OT assessment

Need to ensure housing is suitable – epilepsy no bath or stairs which are a

hazard

My five year old could benefit from support to get a break from my children with

special needs. He misses out

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Be useful if partners could share information on what activities go on and how to

find out more about them

Go to Step by Step in Forres and Little Fish – these are too busy for my child.

Need quieter, calming activity groups

Key locks for doors. High fences

Transport..... blue badge spaces, suitable buses for wheelchairs. Equipment ....

too much red tape into getting equipment...form filling, meetings and then

equipment takes sometimes months to come. If a parents know that a piece of

equipment is going to be good for their child but it cant be funded, perhaps a

voucher for part of the cost could be given to the parents, and then they can use

it along with money of their own to get the equipment they need It is done in

some parts of England. We should have the same rights and freedom to family

life as any other family does.

How do we raise awareness in our schools and community about

physical and sensory disability?

Give schools information and ensure they are prepared and able to cope

Better communication and partnership working between school and home

Not tolerating teasing/bullying of vulnerable children

Staff need more education. More ASN workers. Education in autism

More awareness training for some teachers

Staff don’t have enough knowledge and skills to deal with autism in mainstream

More auxiliaries/assistance in class where required

Need more 1-to-1 support in schools - person centred – burn off energy. Early

intervention

All children needs education on inclusion at schools

Classes doing themes about disabilities. Info about it on the school web page.

Having a specific awareness day/s in school for any particular disability. Ask

parents views and ideas on what they would like their school to be doing to raise

awareness of their child’s disability, if any at all.

How can we support young people with physical and sensory

disability issues into further employment?

Suitable workers

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Striking a balance – helping my child participate in everyday activities –

swimming and skating – but keeping them safe

What types of technology would benefit your child/you?

Calming lights

GPS type tracker gadget for wandering. Needs a good signal

Alarms and sensors at different parts of house – doors, fridge, cooker, etc

Difficulty getting the right information – too much on the internet. It’s confusing

It’s difficult to know what is out there! New things coming out all the time, but

often the parents are aware of all that’s new for their child, as opposed to a

professional that is acting for them as a group maybe..... Parents should be

involved so much more. Parents should be told of anything that would benefit

their child, and be allowed to donate money if they wish to purchase it.

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