MS CONNECTION NEWSLETTER...ms connection newsletter inside this issue 03 support options, t ele-learning and programming 04 walk ms: breaking down the numbers 06 save the date: bike

SUMMER 2016 VOLUME 4, ISSUE 3 MID SOUTH AND KENTUCKY-SE INDIANA CHAPTERS

MS CONNECTION NEWSLETTER

INSIDE THIS ISSUE

03SUPPORT

OPTIONS, TELE-LEARNING AND PROGRAMMING

04WALK MS: BREAKING DOWN THE NUMBERS

06SAVE THE DATE: BIKE MS AND FALL EVENTS

10CONGRATULATIONS 2016 SCHOLARSHIP RECIPIENTS

THE MID SOUTH CHAPTER & THE KENTUCKY-SE INDIANA CHAPTER

JOIN FORCES!Expanding our MS Connection Newsletters across state linesIn addition to being neighbors, the Mid South and Kentucky-SE Indiana chapters remain committed to ensuring you are connected to the information and resources you need to live your best life as we end MS forever. We are excited to share that we are combining our quarterly newsletter, MS Connection, into one publication for the Tennessee and Kentucky and SE Indiana MS community, making it easier than ever to be fully informed about events and news across both geographies. A single, consistent MS Connection newsletter, enables the National MS Society to operate most e�ectively, while ensuring optimal stewardship of precious resources.

2 MS CONNECTION: SUMMER 2016

When: Tuesday, July 12, 2016 8 - 9:15pm EST/7 - 8:15pm CST

“Understanding and Managing Spasticity” Presented by Gail Hartley, MSN, NP; Kathy SanMartino, PT, NCS

When: Tuesday, August 9, 2016, 8 - 9:15pm EST/7 - 8:15pm CST

“Workout your Worries: Anxiety and Exercise in MS” Presented by Meghan Beier, PhD; Amanda Rohrig, PT, DPT

For call-in number, register at http://www.mscando.org/webinar.

For an additional list of upcoming live programs in your area, please ta enilno retsiger osla nac uoY .1 noitpo tceles dna 7684-443 )008( llac

www.nationalmssociety.org, choose your Chapter, and click on the calendar.

To continue staying up to date on research and programs in your area, please

[email protected] or (KY) [email protected].

CAN DO MS

WEBINARS/TELELEARNING

Issue compiled by: Teresa Johnson

ON THE PHONEMS Friends - Peer Telephone Support866-673-7436, 9 am–Midnight ET

CHAT ROOM & BOARDSMS World - www.MSworld.org

ONLINE PEER CONNECTIONSMS Connection - www.MSconnection.orgConnect with others on a discussion forum, join an online support group, or make a one-on-one peer connection via email (telephone support also available if needed).

Like us: http://www.facebook.com/NMSSMidSouth

Follow us: http://twitter.com/ NMSSMidSouth

Follow us: http://instagram.com/NMSSMidSouth

Like us: http://www.facebook.com/KYNMSS

Follow us: http://twitter.com/ NMSSSKentucky

Follow us: http://instagram.com/NMSSKentucky

NATIONAL SUPPORT OPTIONS:

CANDO

THE POWER TO BE MORE THAN YOUR MS

3NATIONALMSSOCIETY.ORG | 1-800-344-4867

Everyone has their own idea of their best life. For people living with multiple sclerosis, the idea of that “best life” can change due to the challenges of having a chronic, unpredictable and lifelong disease. To address this challenge, the Society developed this new program for people living with MS, their support partners and family members: Everyday Matters: Living Your Best Life with MS.

positive psychology; identify a challenge they would like to address, along with the positive psychology strategy(ies) they want to employ to develop an action plan; and participate in an interactive learning experience, deepening the classroom experience through sharing and connecting with others.

Each session’s 90-minute tele-learning program has two parts: a lecture component and a discussion. Program runs August 4 through September 8, from 5:00-6:30pm.

*Call space is limited; to join this free tele-learning program, please register by calling (800) 344-4867, option 1.

KENTUCKY-SE INDIANA CHAPTER

PROGRAMS EVERYDAYMATTERS

Ocean Beach native and

local surf legend Steve Bettis

was diagnosed with MS in

2006. Although surfing is still

central to his life, he hasn’t

been able to get out on the

water in 10 years. For a man

whose daily routine always

included a few waves, more than a decade

out of the surf is just too long. This is why the

National MS Society teamed up with his

buddy Robert “Wingnut” Weaver and used

virtual reality to get Steve back

on his wave. See their

experience and find out how

you can share yours at

WeAreStrongerThanMS.org.Together WeAre Stronger


to an end and the numbers are in!

put forth by all those involved with the National MS Society’s longest running

fundraising event, Walk MS.

Chattanooga: $24,049.62Clarksville: $28,523.00Cookeville: $4,793.60Greeneville: $15,293.01Knoxville: $88,795.21Memphis: $47,866.80Middle Tennessee: $119,555.17

Combined, the seven Mid South Chapter’s Walk MS sites had over 3,500 walkers who participated and raised $339,604.82! We are so proud of all of those who took part in this year’s Walk MS and appreciate all of the board members, volunteers, sponsors and fundraisers who helped to make this year such a success!

Congratulations to our top teams at each event!

Chattanooga: Team Rosebud, captained by Jennifer Moore - $3,580 Clarksville: Team 4 a Reason, with team captain Terri Tilghman-Douglas - $11,286.38 Knoxville: Team Feinbaum KO MS, captained by Melissa Feinbaum - $14,110 Memphis: Team Garry, led by Colleen Smith - $12,431.47 Middle Tennessee: Lippsmackers, led by team captain, Maura Lipp - $17,279*Greeneville and Cookevillenot included.

WALK MS: MID SOUTH CHAPTER

Walk MS teams

gathered for

pictures with the MS arch.

Families enjoyed a day at

Walk MS, hoping to end MS forever!

Stretching and

Zumba

the Walk MS events across the

state.

walk to create aworld free of MS


participated and volunteered for Walk MS so far this year. To date, Kentucky has raised $258,000 and nearly 3,000 people participated in our Spring

to complete! To be a part of Walk MS please visit our website at www.walkms.org or call our Fundraising Support Center at 855-372-1331.

Please join us for our Appreciation and Awards Party on Wednesday, July 20 from 6-8pm at ARGI Financial Group. 2110 High Wickham Pl, Louisville KY 40245. RSVP www.nationalmssociety.org/kyw

A BIG THANK YOU to our lead volunteers: Karen Hastings and Eben Hollingsworth Walk MS LexingtonCynthia Gooch Walk MS Perry CountyRick Sexton Walk MS Pulaski CountyKenny Jewell, Denise Jewell, Kenny White,

Walk MS Louisville

A BIG THANK YOU to our top sponsors: Kindred Healthcare

BriovaRx

Upcoming Walk MS Events Include: Walk MS Central Kentucky Freeman Lake – Williams Pavilion Saturday September 10, 2016 Walk MS Columbia Lindsey Wilson College Saturday September 17, 2016Walk MS Bowling Green Preston Miller Park Saturday September 17, 2016 Walk MS Western Kentucky Noble Park Saturday September 24, 2016

WALK MS: KENTUCKY-SE INDIANA CHAPTER Congrats to our top teams and fundraisers! Walk MS Lexington Top Team AIN NeuroBlockers ($5,455.00)Walk MS Lexington Top FundraiserKatharine Yusuf ($5,050.00)

Walk MS Perry County Top Team Team Whitney Hall ($4,795.00)Walk MS Perry County Top FundraiserHeather Crockett ($2,076.00)

Walk MS Pulaski County Top Team Team Monica Jones ($2,779.00)Walk MS Pulaski County Top FundraiserRick Sexton ($1,545.00)

Walk MS Louisville Top Team Cathie’s Crue ($27,275.00)Walk MS Louisville Top Fundraiser John Craig ($4,285.00)



DON’T JUST RIDE

Bike MS: Bluegrass, Bikes, Bourbon & BBQAt Bike MS: Bluegrass, Bikes, Bourbon & BBQ, June 25-26, cyclists raised critical funds all while enjoying the scenery of some of Louisville’s coolest neighborhoods. Neighborhoods like Anchorage

which has hosted such names as Presidents Monroe and Jackson, and explorers Lewis and Clark.

Jason’s Deli, Papa John’s and Valu Market. And let’s not forget all the bourbon such as Four Roses,

Please join us for our Appreciation Awards Party on Wednesday July 20 from 6-8pm at ARGI Financial Group, 2110 High Wickham Pl, Louisville KY 40245. RSVP www.nationalmssociety.org/kyw


MID SOUTH CHAPTER

DON’T JUST RIDE

Bike MS: FedEx Rock-N-Roll Rideride from Southhaven, MS to Tunica, MS. Work has already begun on this amazing ride and we are so excited to see what success and changes lie ahead! Registration for this year’s Rock-N-Roll Ride is now available at www.bikems.org for $45.

YOU CAN HELP by recruiting new corporate and/or friends and family teams – open the door for

[email protected]. Like us on Facebook: https://www.facebook.com/rocknrollbikems/

Bike MS: Bike to Jack and BackOn October 1-2, we will be riding 150 miles to celebrate 150 years of the Jack Daniel’s Distillery! Planning has already begun for Bike MS: Bike to Jack and Back and we are looking forward to seeing this event continue to grow. Registration is now open for $45. Register at www.bikems.org.

YOU CAN HELP by recruiting new corporate and/or friends and family teams – open the door for

[email protected]. Like us on Facebook: https://www.facebook.com/JackandBack. Follow us on Twitter: @BikeToJackNBack.

Rock-N-Roll Ride

Bike to Jack & Back



SAVE THE DATE

Crystal Boots & Silver Spurs is the ultimate networking and business development opportunity where you will party at your own pace, where black tie is optional and country hats and boots are the

South, dessert bars, several signature drinks, live music featuring Southern Sirens and Burning Las Vegas, and live and silent auction.

Tennessee Smokies Baseball MS Awareness NightJoin us for MS Awareness Night when the Tennessee Smokies take on the Mississippi Braves,

First pitch will be thrown at 6:55 p.m. by 12 year old Matthew of Team Matthew, who was diagnosed with MS at the age of 8.

Special discount tickets are available for MS Awareness Night. Tickets can be bought online at www.smokiesbaseball.com; simply click on “Tickets and Promotions” and enter the event’s Promo Code: MS2016. Tickets can also be purchased by calling 865.286.2300.

Make sure you visit the MS Awareness Table! See you there: Smokies Stadium3540 Line DriveKodak, TN 37764

Join us in celebrating our 7th Annual Crystal Boots & Silver Spurs Gala presented by BB&T Insurance and MAC Construction, September 24 from 5:30-9pm at the home of Victor and Jeannie Unruh!

MID SOUTH CHAPTER

Our special guest and keynote speaker is a Society Ambassador, acclaimed performer, and singer, Kristie Salerno Kent. Kristie was diagnosed in 1999

2016 Gala is sure to be an evening to remember and an event you won’t want to miss! *To purchase tickets and for more information, please go to www.crystalboots.com.


MID SOUTH CHAPTER

SAVE THE DATE

On Sunday, September 25, from 4-8pm, the Mid South Chapter will present the annual Fall Crush, one of Nashville’s premier wine and social events!

Fall Crush will be held at the Grand Barn at Green Door Gourmet, a working farm in West Nashville.

Join us for this celebration of wine and food

feature a silent and live auction, big band music, wines of the Carneros Region and a locally sourced dinner from a variety of Nashville’s fantastic chefs.

Our goal is to raise $100,000 to help ensure that the National MS Society can continue to fund vital MS research, like the $2.1 million currently invested in MS researchers here in Tennessee.

*To become an event sponsor, join the committee, purchase tickets, or donate to the silent and live auction, please contact [email protected].

Farm, we will bring supporters together to celebrate the hope of a cure for MS. Our purpose is to raise $25,000 to help ensure that the National MS Society can fund vital MS research and continue to be a resource for people living with MS.

*For sponsorship opportunities, tickets or more details, contact [email protected].

Witches and Wine 2016 will celebrate the trendiest witch hat fashion, delicious wine, yummy

*For more information about attending or to buy tickets, please email [email protected].

October 20, the National MS

Society, Mid South Chapter will host

Witches and Wine, Chattanooga’s

most witch-tastic event!

Fall Crush Knoxville is a unique wine

experience and auction being

held this year on November 3.


CONGRATULATIONS 2016

SCHOLARS It’s with great pleasure that we announce the Mid South Chapter’s 2016 scholarship recipients!

Congratulations to each of these scholars. Our Chapter awarded a record 24 recipients totalling over $31,000! We are proud to recognize the determination, success and ambition of these extraordinary people.

Erick Booth Ryan Casing Farin Cloyd Sarah CourtrightMackenzie Dales Grant Davenport Alexis Donaldson William FarabowNicole Farley Austin Gomez Kate Landon Suzanna LinerEmily Marcum Amelia Mcclurkin Rebekah Neal Alisha PeardonKevin Sammons Baylee West

Chapter’s scholarship committee: Lowry Whitehorn, Sara Dhom, Brit Hartung, Julia Baker, Heidi LaPoint, Autumn Scott, Cindy Tobin, Eleanor Reynolds, Susan Couch, and Samantha Waggoner.

MS should never get in the way of an education. Please enjoy a few words of thanks from our scholars:

“My mom is a huge inspiration to me. She has shown me that, even though she has MS, she will never give in to the disease. She is so strong.”

“I really felt as though my dreams were coming true when I received the scholarship. Despite my struggles

“To the scholarship donors: thank you for investing in my future... I am truly humbled.”

week, so some good news was needed for my family.”

“My mother has had PPMS since before I was born; my sister and I are her caretakers... for awhile, I could not attend college because of this. Now, with the generous support of donors, I can.”

“Post secondary education has always been a dream of mine... it’s an amazing feeling to feel like someone else cares about how hard I worked to get where I’m at.”

to my sister and I what she was feeling. She urged us to pursue our dreams.”

MID SOUTH CHAPTER


CONGRATULATIONS 2016

SCHOLARS


Shayla Bolin, Shelbyville KY Michael Curry, Paducah KY Melissa Dooley, Campbellsville KY

Abigail Wathen, Bardstown KYAmanda Ellis, Paducah KY Amy Wathen, Bardstown KY

Gabrielle Sprague, Lexington KY Not pictured: Shelby Lawson, Sellersburg IN

academic scholarships for 2016. Funding for these is made possible by donations at the variety of fundraising events hosted throughout the year.

For more information about eligibility, Society awards and scholarships, or

for 2017, please visit www.nationalmssociety.com/scholarship.


WRAP UP

SUMMER EVENTS

Scramble was held on June 12-13. In this event’s history, nearly $1,100,000 has been raised in the

$80,000 to date with donations still coming in.

guests were treated to a private concert provided by Vince Gill (pictured above and below right) with

Randy Houser. Golfers enjoyed a day on the beautiful Grove course where everyone had a wonderful time.

None of this would be possible without Bob Mueller. Each year Bob puts on a wonderful event where his friends, chapter constituents, and the local community are able to come together and take a stand against MS. We are so appreciative of Bob’s long time support of the society and our mission to end MS forever. Congratulations on 20 wonderful years!

If you are interested in joining the committee for next year’s event, please email [email protected].

On Saturday, May 7, nearly thirty people living with and impacted by MS joined together for a day-long Everyday Matters program, focusing on

MS-trained clinical psychologist, Lucille Carriere, PhD, (pictured below right), with the Alvin C. York VA Center in Murfreesboro, facilitated the program focusing on the happiness advantage, the importance of family and a social network, and simple changes to enhance emotional health with the changes that may come from living with MS.

people living with MS learn what contributes to

plan to improve balance, endurance, strength and mobility. MS-trained physical therapist, Jennifer Tooher Meyer with Vanderbilt, is facilitating this program which will wrap up on August 9.

FREE FROM FALLS:THE NATIONAL MS SOCIETY’S COMPREHENSIVE FALL PREVENTION PROGRAM


With the support of the following wonderful companies, we are able to fund additional

for people living with MS across the southeast.

COMPREHENSIVE MS CARE CENTERS Cole Neuroscience at UT Medical Center 1928 Alcoa Highway, Ste. B-102 Knoxville, TN (865) 305-6740

KentuckyOne Multiple Sclerosis Center 1021 Majestic Drive, Ste. 200 Lexington, KY (859) 296-1922

4230 Harding Road, Ste. 535 Nashville, TN (615) 383-8575

Vanderbilt MS Center 3810 Bedford Avenue, Ste. 100 Nashville, TN (615) 343-1176

THANK YOU TO OUR

GRANTORS

PARTNERS IN MS CARE Baptist Health Rehab 610 East Brannon Road, Ste. 202 Nicholasville, KY (859) 260-4540

Wesley Neurology Clinic 8000 Centerview Pkwy, Ste. 300 Memphis, TN (901) 624-2960

helping support one-time scholarships for two Knoxville area students.

WE JOINEDTHE MOVEMENT


NATIONAL MULTIPLESCLEROSIS SOCIETY

Mid South Chapter214 Overlook Circle, Suite 153

Brentwood, TN 37027

STAFF

Jennifer LeeExecutive Vice President,

Southeast Region

Diane PayneVP, Finance & Administration

Leslie MortonManager, Information Systems

Deanna JonesSr. Director, Community Development

Sherry BramucciDirector, Programs & Services

Abby Harwood Director, Development

Teresa JohnsonSpecialist, Programs & Services

Advocacy

Kelsey VaughnSpecialist, Development

Kelley CashCoordinator, Volunteer & Logistics

Ashley BinkleyCoordinator, Walk MS

© 2016 National Multiple SclerosisSociety, Mid South Chapter

JOIN ONE OF OUR

SELF HELP GROUPSFor more information on our self help groups, including date, time and location of meetings, please contact the self help group leader listed on page 15. If you are interested in becoming a SHG leader in Kentucky, please contact [email protected]; if you’re interested in becoming a leader in Tennessee, please contact [email protected] for details and training info.

Kentucky-SE Indiana Chapter1201 Story Avenue, Suite 200

Louisville, KY 40206

STAFF

Jennifer LeeExecutive Vice President,

Southeast Region

Mary CarabellaDirector, Development

Manager, Development

Maci BaurleCoordinator, Development

Jinny Cornett Manager, Programs & Services

Shelby JettDirector, Operations

Cathy KempleAdministrator, Operations

© 2016 National Multiple SclerosisSociety, Kentucky-SE Indiana Chapter


TENNESSEE Chattanooga Leader: Aronna (423) 987-3069

Chattanooga Women Only Leader: Arica (423) 715-1036

Clarksville Leader: Melba (931) 552-1486

Cookeville Leader: Kim (931) 520-0020

Dickson Leader: Viola (615) 763-0523

Greeneville Leader: Jan (423) 639-1904

Leader: Carol (731) 423-1656

Leader: Sherrie (865) 660-6270

Kingsport

Jackson

Je!erson City

Leader: Judy (423) 357-6087

Knoxville Cole MS Group Leader: Sallie (865) 305-6740

Knoxville Day Group Leaders: Vicki (865) 851-7135

Maryville Leader: Debby (865) 379-9545

McMinn, Meigs, Monroe County Leader: Amy (423) 263-5721

Memphis Leader: Lowry (901) 382-9292

Memphis Leader: Autumn (901) 286-5410

Memphis YAMS (Young Adults with MS) Leader: Nicole (901) 550-9242

Morristown - Lakeway Leader: Marilyn (423) 235-6944

Portland Leader: Kathy (615) 325-2196

Pulaski Leader: Grefonda (931) 363-4723

Waynesboro Leader: Lisa (931) 332-0649

KENTUCKY Bowling Green

Leader: Shannon ([email protected])

Campbellsville

Leader: Melissa (502) 507-3724

Lexington

Leader: Leslie (859) 269-4036

Madisonville Leader: Dan & Carolyn (270) 635-1178

Madison County/Richmond Leader: Lisa (606) 560-9240

Middlesboro Leader: Nina (606) 499-1987

Muhlenberg County Leader: Kim (270) 315-3248

Paducah Leader: Alicia (270) 564-9010

214 Overlook CircleSuite 153Brentwood, TN 37027

FREE MATTERFOR THE

BLIND ORHANDICAPPED

Yes! I will join the movement to support the National Multiple Sclerosis Society.Please accept my gift in the amount of:

$1,000 Golden Circle Membership $500 $250 $100 $50 Other $___________

Name___________________________________ Credit Card________________________________I wish to remain annonymous Expiration Date_____________________________

Address__________________________________ Signature__________________________________City |State |Zip____________________________ Please designate my tax-deductible gift for:Phone Number____________________________ Local Chapter programsE-mail___________________________________ National research programsMy check (payable to NMSS) is enclosed. OtherPlease charge my: Visa MC AMEX Discover If none of the above is selected, your gift will

be unrestricted.

MAIL TO: National MS Society,Mid South Chapter214 Overlook Circle, Suite 153Brentwood, TN 37027

MAIL TO: National MS Society,Kentucky-SE Indiana Chapter1201 Story Avenue, Suite 200Louisville, KY 40206

– OR –

Documents

MS CONNECTION NEWSLETTER...ms connection newsletter inside this issue 03 support options, t ele-learning and programming 04 walk ms: breaking down the numbers 06 save the date: bike