National Association of Councils on Developmental Disabilities Webinar with Autism NOW March 29, 2011

8/7/2019 National Association of Councils on Developmental Disabilities Webinar with Autism NOW March 29, 2011

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NACDD/Autism NOW


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M

ission

NACDD serves as the National Voice of State

and Territorial Councils on DevelopmentalDisabilities. We support Councils in

implementing the Developmental Disabilities

Assistance and Bill of Rights Act promoting the

interests and rights of people withdevelopmental disabilities and their families.

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Who We Are

The National Association of Councils on

Developmental Disabilities (NACDD) is a national

membership organization representing the 55 State

and Territorial Councils on Developmental Disabilities.

NACDD is a 501(c) 3 organization with the purpose of

promoting and enhancing the outcomes of our

member councils in developing and sustaining

inclusive communities and self directed services andsupports for individuals with developmental

disabilities.

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What We DoNACDD

Educates the public and Congress about issues ofimportance to people with developmental disabilitiesand their families

Represents Councils on disability policy issues throughcoalitions and collaboration

Administers Technical Assistance to Councils throughfederally funded technical assistance project -Information and Technical Assistance for Councils on

Developmental Disabilities (ITACC) Provides Councils a platform to share information on

best practices and model programs


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Core Values in the DEVELOPMENTAL DISABILITIES ACT

Independence

Productivity Integration

Inclusion

Self Determination


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H

ow Councils Effect Change

The DD Act charges Councils to work within specific areas of emphasis.

These include employment; education and early intervention;

transportation; health; recreation; child care; formal and informal

community supports, and; quality assurance.

As such, it is essential that Councils continue to engage the autism

community as a vital part of the broader DD community, and that

people with autism, and advocacy organizations that address their

needs, work with Councils to build better futures that includeeconomic opportunities, independent living and full participation in

community life.

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The Councils Work

Councils engage in activities through

Advocacy

Capacity building

Systems change


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The Councils Work

Like other people with developmental disabilities,

people with autism need assistance in earlyintervention and education, transition from school

to work, health, recreation, employment, housing,

and transportation.

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NACDD and ItsM

ember Councils Support efforts to address the sharp rise of autism

diagnoses

Support assisting DD advocates, families, service providers,

and systems in meeting the needs of children and adultsacross the autism spectrum

Support the further engagement of people with autism,

their families and service providers in the broader DD

movement Actively seek individual with autism and their family

members to serve on State/Territory Councils


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NACDD and ItsM

ember Councils

NACDD recognizes that autism is the fastest

growing segment of the broader developmental

disabilities population. Like all people with developmental disabilities,

children and adults on the autism spectrum have

the same rights as other people to exert control

and choice over their lives, to live independentlyand to participate fully in, and contribute to, their

communities.

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M

ember Services

NACDD provides services designed to assist

Councils in their efforts to promote the interests

and rights of individuals with developmental

disabilities and to inform policymakers and the

public about the results of these efforts.

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2011

Annual Conference

Building Bridges

Meeting the Expectations of a NewGeneration

NACDD Annual Conference

November 16-17, 2011Gaylord National Harbor, Metropolitan Washington, DC

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ITACC

ITACC (Information and Technical Assistance forCouncils on Developmental Disabilities) is a federally

funded technical assistance project providing technical

assistance to Councils on Developmental Disabilities.


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Public Policy

NACDD assists Councils with their role as advocates for

systems change by educating the public and Congress

about issues of importance to people withdevelopmental disabilities and their families. NACDD

also works with other disability organizations that

have a similar vision to achieve common goals.

DD Network Disability Policy Seminar

CCD


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Council Work

Councils work to benefit allpeople with developmental

disabilities and their families, and seek programs and

policies that benefit people with allkinds of developmental

disabilities.

We prefer policies and programs that benefit the broader

community rather than target a specific diagnosis or

condition. Yet we acknowledge the alarming growth in therate of autism diagnoses, and the subsequent increased

interest in, concern about, and action on autism.

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Council Work H

ealth Care

Advocacy Example: advocate for access to health

care, treatment, pain management and quality care

for people with developmental disabilities

Capacity Building- Example: Dental care initiatives

Systems Change - Example: securing on-going funding

for health related programs, accessibility issues

physician offices, and appropriate diagnosis andtreatment for individuals with DD who are

experiencing mental health issues (dual diagnosis)


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Council Work - Employment

Advocacy - Councils advocate for policy changes,changes in standards affecting service delivery ofemployment related services, promote abilities ofpeople with developmental disabilities, educateemployers and policymakers about policy changesneeded to improve employment outcomes forpeople with developmental disabilities

Capacity Building Example: train employers

Systems Change Example: promotingEmployment First


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Council Work Community Inclusion

Councils work in a variety of ways to ensure people withdevelopmental disabilities and their families are

included in communities of their choice. Example:

individuals, family members and policy makers


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Councils Work on Autism

Washington State:

The DDC was instrumental in creating and implementing a waiver for children

with DD needing intensive in-home behavioral supports that now serves

about 60 families. To implement the CII

BS Waiver, the DDC met withpolicymakers to clarify certification and licensing barriers to contracting with

professionals in the field. As a result, legislation was introduced to address

workforce issues.

The DDC assisted the House Human Services Committee with obtainingtestimony on best practices for diagnosing and treatment for individuals with

Autism and their families. To educate policymakers, the Council assembled a

panel of Medical professionals, parents, providers, and individuals with

Autism.


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South Carolina

Training initiatives

Key Autism Indicators and Training

Capacity building based on 8 key autism indicators that reflect quality programming & bestpractices

Autism Training Collaborative

staff training across the life span developing a roadmap, developing resources, etc.

Capacity Building

All are Welcome

Education curriculum for faith communities to be a welcoming & supportive for individualswith autism and other developmental disabilities

Life Lessons

Teaching age appropriate social skill development for youth with Autism to prepare themfor successful employment

Research

Emergence & Stability of Autism in High Risk Infants

Responsive Robot-Assisted Therapy for Children with Autism

Child Health Services: Evaluating pediatric health disparities


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Nebraska

Training

Designed to educate parents on how to reinforce social skills

taught to their children/youth with autismCapacity Building

Developed curriculum and implemented training to respite care

providers.

South Dakota

Sponsors statewide Autism conference

Recreation project for youth with autism to learn about sports in a

non-competitive environment

Developing a post secondary program with local University


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Massachusetts

Provide information and referral resources about the Autism Insurance lawthat took effect on January 1, 2011 and will require private insurance coverageby July 1, 2011.

Established on-line autism insurance resources in partnership with New

England Index. Support an Autism information specialist position at the MA Network of

Information Providers.

Support two Autism advocacy organizations to participate in our cross-disability advocacy coalition.

Colorado

The Council funds a statewide self-advocacy organization, Watch Our Words(WOW) that is led by people with developmental disabilities, many of whomare on the autism spectrum. They have developed a curriculum andimplement it when they do trainings around the state on facilitatedcommunication, and aspects of living with disability in school, work andcommunity.


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Minnesota

Developed extensive resource center for employment of people on

the Autism Spectrum and technology

http://www.mncdd.org/asd-employment/index.html

Emergency planning and individuals with ASD

Iowa

Provides public policy staff support to statewide Autism organizationto help advocates prepare their agenda, develop messages and

deliver messages to decision makers.


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Many Councils serve on State level Commissions on Autism;

Councils support and enhance the work of these State level

Commissions (Oregon, Maryland,Iowa, Washington State,

New York, New Hampshire, Massachusetts) are a few Councils

who were instrumental in ensuring Autism Commissions were

formed, active and these Councils continue to foster

relationships designed to improve services and supports forindividuals with autism and their families

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Combating Autism Act

Combating Autism Act (CAA) coordinates and expands

research at National

Institutes of Health

increasing awareness and surveillance by Centers for

Disease Control

interdisciplinary training of health professionals to identify

and support children with autism spectrum disorders and

their families.

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NIH Report to Congress on CAA shows enormous, positive impact in that

CAA enabled:

training of many medical professionals to better diagnose and treat autism

spectrum disorders (ASD) through expansion ofLEND LeadershipEducation in Neuro-developmental & Related Disabilities

outreach to many families, childcare providers and others about how to

address ASD by funding CDCs Learn the Signs, Act Early campaign.

work of the reconstituted Interagency Autism Coordinating Committee

(IACCD) and individual Federal agencies that have served well to identify

promising ASD research areas, as well as to pinpoint both best practices

and gaps in ASD research and support including development of new

diagnostic tools and measures of the efficacy and cost-effectiveness of

evidence-based services for people with ASD.

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Report emphasizes that Although research on ASD has

expanded over the past decade, there remains an urgent need

for continuing research and development of services and

supports programs to help families facing this challenge. Report released January 2011 by Congressmen Mike Doyle (D-

PA) and Chris Smith (R-NJ), bi-partisan Co-Chairs of

Congressional Autism Caucus.

Report is available on Congressman Doyles website at

http://doyle.house.gov/legislation/2011%2001%2006%20HHS%

20report%20on%20RTC%20on%20Activities%20Related%20to%

20ASD.pdf

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Remarkable progress of CAA in just four years.

Essential to continue the work

identifying the causes of ASD and the best practices for

diagnosing and dealing with AS

bring emerging new information and practices to the people

who need them most -- medical professionals, educators and

people with ASD and their families.

CAA will expire in September 2011 unless Congress reauthorizesit. NACDD is working with our partners at AUCD and NDRN,

including April 4th Hill Drop Day to provide information to

Congress.

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NACDD

Thank You!

Please contact us:National Association of Councils on Developmental Disabilities

1660 L Street, NW, Suite 700

Washington, DC 20036

Phone: 202.506.5813 Fax: 202.506.5846

www.nacdd.org

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Documents

National Association of Councils on Developmental Disabilities Webinar with Autism NOW March 29, 2011