OLIVIA - Driscoll Children's Hospital · Olivia was born with femoral hypoplasia-unusual facies syndrome, which is . characterized by underdeveloped thigh bones (femurs) and unusual

SPRING 2016 | Vol . 30 | No. 2

Teamwork pays off in historic separation surgery

DonorSpotlightNueces Power Equipment

OLIVIA Medical Success

Welcome from Driscoll President and CEO

There are moments and experiences in our lives that cause each of us to pause and take a closer look at the

past, the present and the future. April 2016 has been one of those moments, those experiences for me personally and in the life of Driscoll Children’s Hospital.

First, we had the opportunity to celebrate the life of C. Ivan Wilson, a man who gave so generously of himself and his skills to Driscoll Children’s Hospital, leading the way for 35 years. He served as a dedicated Trustee of the Driscoll Foundation, as well as a member of the Hospital Governing Board of which he was Chairman for 10 years. His commitment to this hospital knew no limits.

Certainly, long before I had the privilege of knowing Ivan Wilson, he had a vision for Driscoll — one that has been in place for some time — as Driscoll has for many years had the profound distinction of being a premier, freestanding children’s hospital, and Ivan Wilson was instrumental in making that happen.

He will be greatly missed, and his legacy will live on as will his leadership, his kindness and his sincere caring for children and families throughout South Texas. We are and always will be most grateful to Ivan Wilson, “a man for all children.”

For those of us who have the opportunity to be a part of Driscoll on a daily basis, we understand what an extraordinary facility we have, and the exceptional doctors, nurses and staff who are part of our community. Even for us, the experience of having Scarlett and Ximena Hernandez-Torres at Driscoll since May 2015, and the successful separation surgery of the conjoined twin girls on April 12, 2016, has been incredibly remarkable. Their story brings into focus how far we have come since Clara Driscoll’s vision

became a reality when this children’s hospital opened in 1953. It’s nothing short of amazing.

The fact that this experience all happened right here — from beginning to end with our own Driscoll team — is a testament to our skilled medical professionals, our extraordinary community support and our mission of hope and healing. This moment, this exceptional outcome took so many people.

From the maternal fetal physicians who diagnosed the babies’ condition at 26 weeks; to the medical team who were infinitely prepared for the twins and their sister Catalina’s birth at 34 weeks; to the Neonatal Intensive Care Unit (NICU) team who cared for them for months prior to the surgery, and the Driscoll physicians and surgeons, nurses and staff who meticulously planned and executed the 12-hour procedure; it took all of them to make this moment happen for the girls and for the entire family.

We are indeed fortunate to have a state-of-the-art children’s hospital in Corpus Christi, a hospital that we are continually improving as we serve children from Victoria to Brownsville to Laredo. The completed renovation of our Emergency Department and lobby, and our plans in progress to add a new outpatient surgery center and Pediatric Intensive Care Unit (PICU) with expanded operating room facilities, will certainly provide future moments and experiences that will no doubt give us all pause – something about which I am sure Clara Driscoll and Ivan Wilson would definitely be most pleased.

Robert Driscoll and Julia Driscoll and Robert Driscoll, Jr. Foundation Board of TrusteesTom Dobson, ChairmanRobert Furgason, Vice-ChairmanSam L. Susser, Secretary-TreasurerJoe FultonMartha L. Hinojosa Loyd NealC. Ivan Wilson

Governing BoardLoyd Neal, ChairmanSam L. Susser, Vice-ChairmanMurray Bass, Jr.Julie BuckleyMike CarrellPaul Daniel ChapaJim DevlinLenora KeasReba Cardenas McNairEstela O’Daniell, MD, Chief of StaffBill SterettC. Ivan WilsonSteve Woerner, Driscoll Health System President & CEO

Development Foundation Board of Directors

OFFICERSJulie Buckley, PresidentAlex Kirkland, Vice PresidentRichard Valls, Jr., Vice PresidentFrank Hastings, TreasurerSally Wallace, SecretaryWes Hoskins, Past PresidentDIRECTORSDavid Ainsworth, Sr.Edgar Cortes, MDJoe DebellasMiguel DeLeon, MDAnn EngelDiane GatesNancy HawnTom HuntMarc Layton

Paul McDanielBill MoffittLiz NisbetEduardo PeredaValerie PompaBob ShockneyRoger Timperlake, MDLinda Weeks

TRUSTEES EMERITUSMary D. ClarkGerald EckelBernard PaulsonRich TuttleEX-OFFICIOSteve Woerner, President & CEOMartha Avery, CFRE, Vice President DevelopmentDriscoll Children’s Hospital3533 South Alameda Street Corpus Christi, Texas 78411 (361) 694-5000TTY Deaf Messaging (800) 735-2989www.driscollchildrens.orgProduced by the Driscoll Children’s Hospital Marketing and Public Relations Department

SPRING 2016Vol. 30No. 2

Steve Woerner | President & CEODriscoll Health System

Welcome from Driscoll Development Foundation Board President

It was a privilege to work on this year’s Fiesta de los Niños with such a generous and hard-working group of

volunteers. I know we were all excited to see our efforts result in reaching over a $1 million in gross revenue for the first time in the event’s 24-year history. This milestone would not have been achieved if not for our community coming together in overwhelming support for the programs and services provided at Driscoll Children’s Hospital.

We are all excited to be a part of the future growth and expansion of the

hospital which includes the relocation of our Pediatric Intensive Care Unit (PICU) and creation of a new Outpatient Surgery Center. But, I think we were all especially moved that the proceeds from Light up the Night raised during Fiesta could help fund the purchase and installation of the Angel Eye Camera System, new Internet-enabled Web cameras that allow parents the meaningful experience of staying connected with their infants in the Neonatal Intensive Care Unit (NICU) when they cannot be there in person. It is truly these initiatives that bring the mission to full realization of providing hope

and healing in an environment of trust, compassion and care.

Thank you for the generous partnership of so many with the hospital in providing the children of South Texas with the best and most specialized care available today. We should all be proud of the resource and gem we have in Driscoll Children’s Hospital.

SPRING 2016

Julie Buckley | PresidentDriscoll Children’s HospitalDevelopment Foundation Board

Inside:Miracle story | Page 4

Conjoined Twins | Page 7

PICU | Page 8

Donor Spotlight | Page 10

For kids’ sake | Page 12

Community Giving | Page 15

Valley Giving | Page 15

Honor Giving | Page 17

Memorial Giving | Page 18

Tribute | Page 19

4 SPRING 2016 DRISCOLL LIFE www.driscollchildrens.org

Dy-na-mite!

Little Miss

DRISCOLL LIFE SPRING 2016 5www.driscollchildrens.org

If Driscoll Children’s Hospital’s Miracle Child Olivia Hope Stephenson were a singer, she very well might be Brenda

Lee: “Little Miss Dynamite.”

The description certainly fits. The 7-year-old’s voice may not be booming — yet — but she certainly knows how to work a room. In that, she is a pro.

Viewers of the Children’s Miracle Network Telethon, scheduled June 4-5, will get a chance to see her in action as she and others share their personal miraculous stories with the community.

Almost anyone who spends any time at Driscoll knows Olivia, even if they don’t know her by name.

She’s the little girl in the wheelchair, constantly in motion, always smiling – and often talking. She is animated, but in a different way from Cinderella and the other Disney princesses she adores. Imagine a whirlwind in a wheelchair, and you can picture Olivia.

“Olivia knows everyone, and everyone knows Olivia,” said Delma Maldonado Gomez, Olivia’s Occupational Therapist at Driscoll. “She is so warm to the other children — her presence puts them at ease and reassures them that Driscoll is a fun place to be.”

Such empathy can be rare in a child so young, but Olivia has had to endure much in her seven years, including a disease so rare many people have never heard of it.

Olivia was born with femoral hypoplasia-unusual facies syndrome, which is characterized by underdeveloped thigh bones (femurs) and unusual facial characteristics. In Olivia’s case, she has no knees or thighs. The exact cause of femoral hypoplasia-unusual facies syndrome is not known.

Olivia’s pediatrician at the Children’s Clinic, Richard Cortes, MD, has been in practice since 1998, and he has never seen it in another child. When Olivia’s mom, Natalie Stephenson, was pregnant in 1998-99, only 40 cases in the world had been reported.

In addition to femoral hypoplasia-unusual facies syndrome, Olivia has caudal regression syndrome, which impairs

the development of the lower (caudal) half of the body. With Olivia, the caudal regression syndrome showed up as her spine being underdeveloped, which, by itself, disposed Olivia to medical problems.

Both medical conditions presented challenges to physicians.

“There are so many angles the doctors had to treat her from,” said Dr. Cortes. He and her specialists had to take care of her, organ system by organ system.

As an infant, she had feeding issues and was on a feeding tube. Cleft palate

surgery had to be performed; her club foot was fixed; ear tubes had to be put in. For a while, diabetes was a concern but her blood sugar now has stabilized.

She’s had some pretty big things stacked against her, but she has gotten better, said Dr. Cortes.

Olivia was in the Driscoll Neonatal Intensive Care Unit (NICU) for almost two months. She arrived when she was 3 weeks old. She also spent time in Driscoll’s Pediatric Intensive Care Unit (PICU).

Dressed as a snowflake, Olivia Stephenson was one of many Driscoll Children’s Hospital patients who enjoyed participating in the 2015 Holiday Spectacular.

See “Olivia” page 6


David I. Ryan, MD, a pediatric intensivist in the Driscoll Children’s Hospital PICU, remembers Olivia was there with malignant hyperthermia and a difficult airway after surgery. She required extreme vigilance and detailed focused care, but she eventually recovered and was able to leave the PICU. Olivia also required mechanical ventilation, deep sedation and steroids to protect her airway, and prompt therapy to reverse her malignant hyperthermia.

“Her parents were very attentive and it was clear they were loving and supporting parents,” said Dr. Ryan.

Stephenson also had praise for Dr. Ryan and the rest of the PICU staff: “The first two years we lived at Driscoll. They did real good in PICU.”

Stephenson has a special place in her heart for all those who take such good care of Olivia: “Driscoll is home to us.”

The family is quite familiar with many different departments at the hospital. In addition to regularly scheduled physician appointments, Olivia goes to speech therapy, physical therapy and occupational therapy.

“Olivia does love therapy,” said Stephenson.

Her therapists love her too, and do special things to help Olivia toward her goal of self-sufficiency.

Music has been key to Olivia’s therapy, said Occupational Therapist Gomez.

“Olivia loves to sing,” Gomez explained. “Once I was really struggling with coming up with activities she was motivated to do that would help her strengthen her hands. She asked to go to the music room, so I pulled out some castanets and we sang ‘Old McDonald’ at the top of our lungs. We kept at it so long that even my hands felt tired from the exertion! Afterward, we laughed so hard our stomachs hurt.”

Clarice Butler, Lead Physical Therapist at Driscoll, understands how important motivating Olivia is to her continued improvement.

“We try to make everything fun in therapy and we also allow Olivia to choose 90

percent of the activities that she works on in therapy,” said Butler. “That way, she is really empowered to take ownership of her rehab.”

Gomez’s ultimate purpose in working with Olivia is to help her be as independent as possible. Like other children her age, Olivia and her family value her ability to move independently, to engage in the type of play she liked and to be able to take care of herself.

Gomez’s therapy is play-based, such as crawling up slides to strengthen her body or playing different games to improve her visual-motor skills, coordination and reasoning.

“Therapy is hard work. It is our job as clinicians to assess what difficulties she has and, with an artful hand, guide her to overcome them,” said Gomez. “Olivia is marvelous to work with because even on her toughest days she is always willing to work with us.”

And all that hard work is paying off for Olivia, who has accomplished much since beginning her different therapies at Driscoll.

When she began at the age of 4, Olivia was wheelchair-bound, had never stood up on

her legs and was unable to get on to her stomach. Now, Olivia is able to walk up to 400 feet in her walker; she is also able to get in and out of her wheelchair independently.

Olivia has exceeded all expectations, said Dr. Cortes, who credits her family and therapists.

With the exception of pediatrician visits, the family has been able to cut back on doctor visits.

“Her health is pretty good right now,” said Stephenson.

Olivia’s two siblings, Jasmine, 16, and Stephen, 13, have a very special bond with their sister. The siblings are protective, but they insist Olivia try to do things for herself.

Stephenson said the two siblings “really had to adjust since Day 1.” But they don’t mind. Like siblings worldwide, they treat Olivia like the precocious baby sister that she is. The siblings make Olivia do things for herself. However, they learned early on how to do feedings, first aid, CPR — anything that might assist Olivia.

Olivia has even inspired her sister, a junior, who wants to be a pediatric physical therapist or possibly go into sports medicine. Jasmine sometimes goes to therapy with Olivia.

Wearing a green polo-style shirt and bluejeans, hairbows and white tennis shoes with pink bottoms, Olivia is very much like any other 7-year-old, which is exactly the way her mother likes it.

What does the future hold for Olivia? “Who knows?” said Dr. Cortes. “She already has beat so many odds, the sky’s the limit.”

Hope certainly is more than just Olivia’s middle name. For Olivia and her family, it is a guiding force in their life.

Stephenson has some advice for parents of other children who face major medical challenges.

“Don’t ever give up. There will be ups and downs, challenges, but be there for your child. Don’t treat them differently. You have to fight every day,” Stephenson said. “You will have your good days and bad days, but they will amaze you in the end.”

Olivia Stephenson loves to smile. The 7-year-old is well-known at Driscoll Children’s Hospital, where she brings many a smile to the faces of employees, parents and other children.

“Olivia” from page 5


Conjoined twins separated

“The teamwork has been phenomenal,” said Haroon Patel, MD, Pediatric Surgeon and Team

Leader, at the press conference held

April 15, 2016, to announce the successful

separation of conjoined twins Ximena and

Scarlett Hernandez-Torres. “We could not do

something like this without countless others.”

Forty-five medical professionals took part in the surgery. And, so many others in the Driscoll family have been doing their part in caring for the twins since their arrival at Driscoll just hours after their birth May 16, 2015. Physicians at the press conference were quick to applaud the

accomplishments of all.

“There’s an adage that it takes a village to

raise a child. Here, it took all of

Driscoll to care for these twins,” said

Roger W. Timperlake, MD, Pediatric

Orthopaedic Surgeon.

Steve Woerner, President and CEO of

Driscoll Health System, described the

separation surgery as a “man on the

moon event” for the hospital.

Such a historic moment doesn’t just

happen though.

“I used to have an old football coach who

said, ‘Luck is when preparation meets

opportunity.’ We were very well prepared

for this,” said P. Stephen Almond, MD,

Pediatric Surgeon, Head of Divisions

of Pediatric Surgery, Urology and

Transplantation.

Such preparedness was music to the ears

of the surgery’s team leader.

“It was almost like an orchestra,” said Dr.

Patel. “Everything came together perfectly.”

Conjoined twins Scarlett (left) and Ximena Hernandez-Torres, who had been attached at the pelvis, were successfully separated by a team of Driscoll Children’s Hospital surgeons April 12, 2016. The two, along with their triplet Catalina, were born May 16, 2015.

Members of the conjoined twins medical team taking part in the post-surgery news conference (from left) Miguel DeLeon, MD; Ryan Loftin, MD; William J. Grimes, MD; Mohammad A. Emran, MD; Angelina Bhandari, MD; Haroon Patel, MD; Kevin S. Hopkins, MD; Omar Cruz-Diaz, MD; Christopher P. Comstock, MD; Roger W. Timperlake, MD; and Karl Maher, MD. (Inset, from left) P. Stephen Almond, MD; Vanessa Dimas, MD, and León I. Smith-Harrison, MD.



Driscoll’s pediatric critical care specialists provide advanced and compassionate care for seriously ill children of South Texas

If the doctors and nurses who work in Driscoll’s Pediatric Intensive Care Unit (PICU) were a football team, they’d play

defense. And they’d approach each play like they were lined up at their own one-yard line.

“We are the guys you put in on the one-yard line when you absolutely have to stop the other team from scoring,” said

Karl L. Serrao, MD, one of five board certified pediatric critical care specialists on staff at Driscoll. In the PICU, when the “other team” scores, it can have devastating effects for a young patient.

Patients in the PICU require specialized, round-the-clock care for serious illnesses and injuries ranging from cancer to trauma, chronic illnesses to surgery, infections to transplants. They range in age from infants to young adults and come from cities, towns and rural areas throughout South Texas. Many come to the Driscoll PICU through the Emergency Department or as a result of surgery. Some have never been in a hospital before, while others have conditions that require frequent treatment. Most have families who suffer right along with them and need to be included in the treatment plans.

What they have in common is that they are medically fragile and vulnerable. They need a defense that knows how to stop the “other team” in its tracks.

Specialized training and treatmentStopping requires a highly trained and skilled team of medical professionals. All Driscoll PICU physicians are board certified in both general pediatrics and

pediatric critical care. To earn certification in the relatively new specialty of pediatric critical care, they undergo an additional three years of training in treating medically complex patients in a hospital setting. Only about 3,000 physicians nationwide have achieved the demanding certification.

PICU Medical Director Karl Maher, MD, said the extra training prepares a critical care specialist to perform much like an orchestra conductor, serving as the maestro who brings diverse elements together into a seamless, successful unit. In the case of the PICU, that means providing complex, high-tech medical care while coordinating nursing, diagnostics, therapy, housekeeping and specialty care, all of which work together to help children and their families get through a difficult time.

Driscoll’s team of critical care specialists has remarkable longevity with the hospital. Kevin P. Schooler, MD, who recently completed his sixth year on staff, is the newcomer. The remaining physicians have been at Driscoll for more than a decade each. As a group, they have more than 65 years of experience here, which brings a rare and valuable level of teamwork to the PICU.

“Thanks to advances in critical care, we treat a lot of children who wouldn’t have survived their illness or injury 20 or 30 years ago,“ said Ramon Julio Rivera, MD. “Taking care of those children requires

PICUPediatric Intensive Care Unit

Occupational Therapist Barbi Balliet provides bedside therapy to a patient in PICU.


New, expanded PICU will focus on the needs of patients and familiesDriscoll plans to relocate and modernize the PICU as part of the hospital’s $80 million expansion and renovation project. The new PICU will be on the second floor of the North Pavilion to be constructed on campus. The larger renovated PICU will improve efficiency for the medical staff and have more accommodating spaces for families.

In addition, the expanded PICU will be 40 percent larger and include 16 private rooms that are more spacious and welcoming than the existing rooms. Currently, the private rooms are separated by curtains, and some patients are in open rooms that offer less privacy. In addition to being private, the new rooms will be “right-sized” to accommodate the many technologies and specialists that contribute to achieving the best outcomes for medically fragile children.

“Being able to have private rooms for our patients and families is beneficial for their emotional well-being when children need intensive critical care,” said Driscoll President and CEO Steve Woerner. “Having your own private room allows the families to relax a little bit more and focus on healing.”

Other important additions include a larger, more inviting waiting room, a family lounge and a conference room where families can meet with their medical team to discuss their child’s care plan.

teamwork, and it takes time for teamwork to develop.”

He compares the PICU team to a NASCAR pit crew that can service a car and get it back on the track in a few seconds. Every member has a specific job, and every move is finely choreographed and timed. That’s the level of coordination and expertise required to provide critical care.

PICU physicians are just one element of the team. Critical care nurses, therapists and specialists also play a key role. “We’ve got an outstanding team,” said Dr. Schooler. “We have the best nurses and therapists, no doubt about it, and we have board certified specialists available whenever we need them. The work is intense, but we’ve got the team to handle it.”

Patient-centered, family-orientedPediatric critical care is sometimes called “pediatrics on steroids with machines,” and it’s easy to see why. The PICU beeps and buzzes with activity at all hours of the day and night as patients receive bedside care to meet their medical needs.

Families are always welcome to support their young loved ones.

The PICU team is on duty 24 hours a day. At least one PICU physician is present in the unit at all times to provide medical care, consult with specialists or simply talk with families as needed.

“We value comprehensive family care as part of good medical practice,” said David I. Ryan, MD. “Anyone who has been ill themselves can appreciate the difference between a culture that values family care and one that doesn’t. Our philosophy of care is to be available to families when they need us.”

For many families, the PICU becomes a home away from home during a stressful time. Having highly trained medical staff available around the clock helps keep families informed and minimizes their stress. Sometimes, the most valuable medical care physicians can provide is to be available to family members in their time of need, said Dr. Maher.

“No matter how hard our day is, we chose to be here. The patients and families didn’t have a choice,” said Dr. Maher. “We’re here to serve them.”

Driscoll Children’s Hospital’s Pediatric Intensivists (from left) Karl L. Serrao, MD; Karl Maher, MD; Ramon Julio Rivera, MD; David I. Ryan, MD; and Kevin P. Schooler, MD.


DONOR SPOTLIGHT

The Power of GivingGrant Bradshaw of Nueces Power

Equipment takes his affiliation with Driscoll Children’s Hospital

personally — very personally.

And with good reason. In June 2013, Bradshaw spent his 35th birthday at Driscoll.

His youngest child, Addison, now 3, was rushed to the Pediatric Intensive Care Unit (PICU) at Driscoll Children’s Hospital. She had spinal meningitis, and for the whole family, it was a terrifying experience. She stayed in the hospital for 15 days. As Bradshaw explained it, “I got the real in-depth tour.”

Addison is fine now, but Bradshaw has never forgotten what superb care his daughter got from everyone at Driscoll.

“They worked really, really hard” on doing everything possible for his daughter. Going through PICU, Bradshaw said he felt like he got to know everybody there. And he was impressed by the passion of the staff.

“My hat is off to Driscoll. If we can give them some money every year, that part is easy.”

Giving to Driscoll is a tradition that runs in the family. His father, Nueces Power Equipment President Clifton Bradshaw, has been a dedicated Driscoll supporter for decades.

Clifton Bradshaw’s dear friend Hoyte Gentry, the owner of Gentry Plumbing who died in 2015, was the one who inspired Clifton to give back to the community. Clifton Bradshaw, however, is very humble about how he has helped others in South Texas.

As Grant Bradshaw puts it: “Good people run with good people. You have to go beyond yourself. If you focus only on yourself, you will never be happy.”

It all goes back to mentorship, to friendship, to good people encouraging others to do well and help those in need. Gentry was the foundation for so many others to work hard but to also give back.

Bradshaw and his family give to Driscoll because he realizes there are so many

children who have been born into less than ideal situations, situations they have no control over and that they don’t deserve. To him, they are “the innocents of the world.” He gives to Driscoll to help the children and make their lives better through the care available at the hospital. “This is why we love Driscoll so much.”

During his daughter’s hospital stay, he was able to experience firsthand what happens behind the scenes, and it affected him deeply. “That’s heartbreaking. I still get emotional about it,” Bradshaw said.

What did Bradshaw like most about Driscoll? “It’s the people.” He said he was greatly impressed the employees at Driscoll are motivated into going into the health care profession to help others. “People at Driscoll care. They aren’t there just for the money.”

Family is incredibly important to the Bradshaws. Clifton and his wife, Bonnie, have been married 44 years. They have two children, Grant Bradshaw and Jana Walker.

Grant Bradshaw and his wife, Meghan, have been married 10 years and have three children: Reese, 7; Abrielle, 5; and Addison, 3.

The love of family is applicable at work too. “People know we’re big on family here,” Bradshaw said.

To the Bradshaws, family always comes first. Bradshaw related a story about one of the salesmen, whose mother was in the hospital, but the salesman was at work

at the office. Clifton Bradshaw’s response when he saw him there? “Doesn’t your laptop work in the hospital?” He wanted the salesman to be with his family.

The senior Bradshaw is a great kidder with a keen sense of humor. When asked why he started his own business, he answered wryly, “I needed a job.”

For someone who needed a job, Clifton Bradshaw’s foray into the business world has gone quite well. Nueces Power Equipment established its headquarters in Corpus Christi in 1989, supplying customers with a wide range of new, used and rental equipment, as well as parts and service. In recent years, the company has expanded to 200 employees in seven facilities located across the state: Victoria, Laredo, San Benito, El Paso, San Antonio, Houston, and corporate headquarters in Corpus Christi.

Corpus Christi is home to the Bradshaw family, and they are proud the city has so much to offer. Corpus Christi is fortunate to have such a world-class hospital in a smaller metropolitan area, Bradshaw said. “Most people don’t realize how many in the region use it.” Bradshaw is impressed that Driscoll serves 31 counties in South Texas. “That is a huge footprint.”

Nueces Power Equipment

“If you focus only on yourself, you will never be happy.”


The Bradshaws know well what it means to cover a large chunk of Texas. Their territory ranges from El Paso to Houston, and such expansion has been good for the business, yet exhausting. Bradshaw is on the road constantly to keep things running smoothly at the seven facilities.

Even with such a wide path, Nueces Power Equipment refuses to become a faceless corporate entity. An individualized approach is what works well for them. “We try to stay on the mom-and-pop level,” Bradshaw said, and they do as they personalize and customize to meet the needs of their

customers. The last thing they want is a cookie-cutter system that doesn’t allow them to interact with their clients.

From a young age, his dad taught Bradshaw the ins and outs of the business. Bradshaw started hanging around dealerships at 8, and he started working at his father’s dealership during the summer when he was in middle school. “I’ve always travelled with Dad. He always treated me like I was 30.”

Bradshaw eventually will take over the business, but right now there is no specific timeline and he has no official title. “Not in any hurry to jump up and do that,” he said,

explaining a title limits people on what

they can and can’t do. “I’m a go-fer. I run

around and cover up holes.”

Bradshaw is philosophical about what life has

to offer. “Money will never make you happy.

Of course, you have to take good care of your

family, your employees, but you’re going

to blink, and life will pass you by.” He is

trying to choose what is best for everyone.

“We got lucky with the business,”

Bradshaw said, and he hopes the next 30

years will go well for the third generation

of his family in the business. “I want to

continue to give.”

Nueces Power Equipment(From left) Abrielle, Addison and Reese Bradshaw.

DRISCOLL LIFE SPRING 2016 11


Driscoll fundraising events

offer the community a

chance to gather and

support our mission.

FOR

KIDS’ SAKE24th annual Fiesta de los Niños raises more than $1 million gross

Because of our patrons’ generosity, more than $1 million in gross revenue was raised at the 24th

annual Fiesta de los Niños, setting a new record. Net funds raised ended up being more than $940,000. Funds raised will go toward the addition of a contemporary state-of-the-art Pediatric Intensive Care Unit (PICU) that will be housed in the future North Pavilion.

Proceeds from Light Up the Night will support the purchase and installation of 30 special Internet-enabled Web cameras. These cameras will be installed in the Neonatal Intensive Care Unit (NICU) and provide parents the ability to see and talk to their baby 24 hours a day, 7 days a week.

This year’s Live Auction generated almost $200,000 alone, and included items such as a quail and deer hunt, Spurs trip for Driscoll patients and a New Orleans trip for six.

“We extend a special thank you to our title sponsor, Flint Hills Resources, as well as the many generous supporters and community volunteers who have assisted Driscoll Children’s Hospital in enhancing our services and programs for the children of South Texas,” said Steve Woerner, President and CEO, Driscoll Health System.


(From left) Rick Valls, Fiesta de Los Niños Co-Chair; Steve Woerner, President and CEO, Driscoll Health System; and Julie Buckley, Fiesta de Los Niños Co-Chair

Raymond Ames (in sombrero) delivers a margarita to auction winner P. Stephen Almond, MD, Chief of Staff, Head, Division of Pediatric Surgery, Urology and Transplantation for Driscoll Children’s Hospital.

Miracle Sponsors

Presenting Sponsor

JSJJSJ Services, Inc.


Raymond Ames (in sombrero) delivers a margarita to auction winners Steve and Jessica Johnson, JSJ Services, Inc.

(From left) Diane Gates, Marc Layton and Thomas A. Gates

Raymond Ames (in sombrero) delivers a margarita to auction winners Debbie and Sam Isaacs, Rabalais I&E Constructors.

Tammy and Bob Shockney, Kiewit Offshore Services

(From left) Phil Gaarder, Flint Hills Resources, and Kelly and Philip Hall, NALCO Champion



Driscoll, K99 team up

Driscoll Children’s Hospital’s 14th annual K99 Radiothon was held Friday, March 4, 2016, and raised $55,875. Thanks to all the

generous K99 listeners who donated and made the 2016 Radiothon a great success.

The Children’s Miracle Network National Radiothon mobilizes local radio stations to conduct community-oriented Radiothons that raise substantial funds for hospitals. Since 2003, hospital employees, physicians, patients and patient families have been interviewed by K99 hosts during live broadcasts from Driscoll Children’s Hospital. Phone banks receive call-in pledges during the 12-hour event.

(Top, from left) CoCo, Klayssa Kitchens

and Big Frank

(Right) Omar Cruz-Diaz, MD, Pediatric Urologist,

and Yolanda Molina Rivera-Roman,

Practice Manager

Children’s Miracle Network CEO emphasizes growth

John Lauck, President and CEO of Children’s Miracle Network Hospitals (CMNH), visited Driscoll

Children’s Hospital on Friday, Jan. 15,

2016. Lauck emphasized future growth

opportunities during his first visit to

Driscoll Children’s Hospital.

Driscoll, a member of the network

since 1983, is one of 170 not-for-profit

children’s hospitals in the United

States and Canada that benefit from

the international charity. Lauck’s visit

at Driscoll was the result of a pledge

he made to visit all affiliated hospitals

in the network when he became

president in 2011.

Driscoll receives more than $1 million

in funds through CMNH programs

such as in-store campaigns with

national sponsors Walmart/Sam’s

Clubs, Credit Unions, Dairy Queens,

Stripes, and others, as well as the

annual CMNH Telethon and K99

Radiothon both held annually.

Lauck emphasized the power of all

funds raised locally staying with the

local children’s hospital and reiterated

a goal of bringing $4 million to Driscoll

by 2022, part of the net

billion-dollar goal the

charity wishes

to reach.

(From left) John Lauck, President and CEO of Children’s Miracle Network Hospitals; Steve Woerner, Driscoll Health System President & CEO; Joe Gazin, Kiii TV, and Richard Harris, Children’s Miracle Network Coordinator for Driscoll Children’s Hospital


COMMUNITY

Giving It is with deep gratitude that we thank our

friends across South Texas for their gifts

to Driscoll Children’s Hospital.

Firefighters C.A.R.E.

The Corpus Christi Firefighters Cancer Awareness Relief Effort (C.A.R.E.) brought along their C.A.R.E. pink fire truck and made

a $10,000 check presentation to the Driscoll Children’s Cancer and Blood Disorders Center.

Corpus Christi Firefighters C.A.R.E. is a group of firefighters who work for the City of Corpus Christi Fire Department. They are not affiliated with the Corpus Christi Fire Department and are their own 501c(3) tax-exempt entity.

Since 2009, the organization has donated more than $300,000 to different cancer-related causes around the Coastal Bend. They are pleased to have Driscoll Children’s Hospital on that list. This is the third year they have donated to Driscoll Children’s Hospital.

(From left) Lester Garza, C.A.R.E. President; Cris Johnson, MD, Medical Director, Driscoll Children’s Cancer and Blood Disorders Center; Ruben Cortez, C.A.R.E. Vice President; Cynthia McMinn, Clinical Coordinator, Driscoll Children’s Cancer and Blood Disorders Center; Gerardo Gomez, Director of Specialty Clinics, Driscoll Children’s Hospital; and Scott Marsh, C.A.R.E. Trustee

VALLEY

Giving The spirit and generosity of the Rio Grande

Valley community make miracles a reality.

Carmike Cinemas Help Kids in Need

Thank you to Carmike Cinemas in Edinburg

for their continued support of Driscoll

Children’s Hospital. In 2015, Carmike Cinemas

in Edinburg raised $6,845 for Driscoll Children’s

Hospital during their Children’s Miracle Network

campaign. Each year, Carmike invites moviegoers to

make a $1 donation by purchasing Miracle Balloons

that are displayed at the theater. This campaign

promotes the efforts of Carmike employees to give

back to the community and help kids in need.(From left) Carmike Cinemas employees Sulema Ysasi, Diana Galloso and Linda Ybarra



Gifts offering hope and hearingAudiology expansion

The renovation of the Audiology Department and the addition of a new audiology booth and other

much-needed equipment at Driscoll Children’s Hospital will allow even more South Texas children to receive the attention they need and deserve.

Thanks to $149,000 in generous donations from several major sponsors (see box below), Driscoll Children’s Hospital is leading the way by providing the latest in technological innovations. The department is the only exclusive pediatric audiology provider in the area.

Among the new equipment purchased were three new audiometers, three tympanometry machines, a newborn hearing screening machine, additional equipment to complete auditory brainstem response testing, and equipment used to dispense hearing aids.

“It’s all about efficiency and ease of use,” said Susan Fields, Director, Rehabilitation Services at Driscoll Children’s Hospital, of the equipment and technology.

Most of the equipment is now networked, which means the information flows from one piece of equipment to another. This capability avoids duplication of data entry as well as reduces the potential for error. Saving time like this allows the audiologist to focus less time on machines and more time on patients and families.

The department is installing an interface with our electronic medical record system, which allows all the patient information to be in one place, so everything can be downloaded into an easy-to-read report for the doctors.

Such advances are helping Driscoll respond to the needs of its young patients.

“We have had such an increase in our referral base due to changes in state regulations for hearing testing for newborns, changes in the requirements from the insurance companies and the much-needed development of the pediatric ear, nose and throat practice here at Driscoll Children’s Hospital,” Fields said. “We are working very hard to meet the needs of our community.”

With the installation of the new audiology booth, the department is able to staff four full-time audiologists. With the state-of-the-art booth, the department can accommodate an additional 25 to 30 children for hearing testing each week, which translates to an increased capacity of more than 1,200 children a year.

Nationally, one in every 200 children has a hearing loss. Fields, however, says the number seen by staff at Driscoll Children’s Hospital is higher. “We believe our incidence is more like one in every 100 children has a hearing loss that requires treatment or amplification,” she said.

With the generous support of local foundations (see box below), the Driscoll Children’s Hospital Audiology Department was able to expand its services to improve communication outcomes for children with hearing loss. After renovation, the hearing booths are colorful and inviting, and the animals are wearing hearing aids, which makes children feel more at ease.

Thank you to:Anonymous Friend

EZCorp Foundation

Halliburton Foundation

Laverne & Thomas Howell Foundation

BEFORE

AFTER


Chris AdlerSusser Family Foundation

Ruby and Amado AguilarMr. John DeLeon

Noorullah Akhtar, M.D.Art Center of Corpus Christi

Jeanene and Brett AnthonyMs. Mary Beth DeLano

Pat ArringdaleMr. Eddie Greene

Auxiliary to Driscoll Children’s HospitalMrs. Geraldine Reeves

Aubree AvantsMr. and Mrs. Joseph A. Mazzola

Andy BandaMrs. Cecile Pesek

Anastasia BertrandMr. and Mrs. Edsel A. Renken

Melinda and David BradfordMs. Mary Beth DeLano

Kerry and Matthew BradyMrs. Cecile Pesek

Edna G. Brown - KronkMs. Marcia B. Morley

Sue and Frank ByrneMrs. Cecile Pesek

James David CollinsMr. and Mrs. James W. Collins

Katrina Cook, M.D.Ms. Beverly Dirks

Diane and Don CooperMrs. Cecile Pesek

Edgar L. Cortes, M.D.Celia D. Reyes-Acuna, M.D.

Amanda and Don DavisMr. Eddie Greene

Driscoll Children’s Hospital VolunteersMs. Laura Shaver

Lydia and Isreal DeLeonMr. John DeLeon

Barbara J. DodsonMs. Roxane Rolingson

Carolyn ElwinMrs. Peggy Moloney

Charleen and Adriano FariselliMrs. Peggy Moloney

Joshua David FloresMr. and Mrs. Rodney Flores

Kelsey and Mike GavinMs. Beverly Dirks

Mary L. GibsonMr. Eddie Greene

God’s BlessingsMrs. Amanda Fields

Jacob GonzalesMr. Ron Cardwell

Emily HaefsMrs. Julie M. Jensen

Bruce HarveyMs. Mary Elizabeth Clark

Neil HayesMrs. Cecile Pesek

Sterling and Joe HellerMr. and Mrs. Bruce Chadwick

Lennon HernandezMs. Donna Arnold

Gloria and Ed HicksDr. and Mrs. Gaylord Hoyt

Ann E. HodgesMs. Mary Beth DeLano

Charles ImbergamoMrs. Cecile Pesek

Josh JarvisMr. and Mrs. Gary D. Jarvis

Lenora and William KeasMr. and Mrs. Keith Braho

Daryl KeenMr. Ron Cardwell

Michael Patrick KellyMr. and Mrs. Walter J. Griffin

Carol KirklandSusser Family Foundation

Zuraya and Hector LeosMs. Rosie Villarreal

Linn-San Manuel Volunteer Fire DepartmentGuerra Bros. Successors, LTD.

Ashley Nicole LopezMs. Cynthia Lopez

William P. MoffittMs. Jacquelyn S. Moffitt

Donald B. MontgomeryMrs. Cecile Pesek

Kristi G. MoralesAnonymous Donor

Alicia and Dennis MoynihanMrs. Sherry Halbrook

Stephen J. MurdenMrs. Margaret Bode

My Grandchild/Grandchildren Mr. Santos E. Cantu Ms. Nana Martinez

My Great-Grandchildren Ms. Lupe Lopez Ms. Nana Martinez

Stephanie and Scott Myers Mrs. Cecile Pesek

All Nurses Ms. Laura Shaver

Our Clients LNV Engineering, Inc.

Alexia Padron Ms. Leslie Encinia

Jacob Palermo Mr. and Mrs. Joseph A. Mazzola

Amanda Coleman and Eric Pena Mrs. Cecile Pesek

Summer Avery Perez Ms. Celia Gamez

Anna Peterson Mrs. Cecile Pesek

Scott Plantowsky Susser Family Foundation

Veronica Bazaldua and Sammy Posada Ms. Beverly Dirks

Hilario Puente Mr. Ron Cardwell

Luke Renken Mr. and Mrs. Edsel A. Renken

Courtney Reopelle Mr. Todd Reopelle

Kari Rhodes Mrs. Mary Lynn Rhodes

Rick F. Rogers Susser Family Foundation

Ryko Car Wash Equipment Mr. and Mrs. Craig Scotton, Sr.

Amalia Sanchez Ms. Jane E. Longoria

Gerald Schaber Mr. Ron Cardwell

Ivan James Segovia Ms. Debbie Shumate

Ana Shockley Mr. Eddie Greene

Kim and Brian Tajchman Mr. and Mrs. Robert F. Allen

Adrianne Denise Torres Mrs. Guadalupe Y. Torres

Jorge Luis Torres Ms. Rosie Villarreal

Blaire Turnbull Mrs. Martha Avery

Valero Bill Greehey Refinery Valero Energy Foundation

Kaycee Weaver Mrs. Cecile Pesek

Patricia and Cass Winterrowd Mr. Mike Alexander

Craig Woodman Mr. and Mrs. Mel Malone Mr. Jeffrey A. Woodman

Tyler Yaklin Ms. Mary Yaklin

Honor givingAugust 1 , 2015 to February 23, 2016

It is the generous spirit of friends that makes our work possible. This generosity is

evident in countless ways, including gifts of financial support. Our tax laws not only

encourage the support of charitable organizations; the tax code provides benefits

that make it possible for the philanthropic spirit to be expressed through many

forms of giving. And while giving may seem a straightforward discussion, there are

many ways that friends choose to make a gift. Careful planning will ensure that

your objectives are met.

For information about giving options, please call the Driscoll Children’s

Hospital Development Foundation at (361) 694-6405. PL

AN

NE

Dg

ivin

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Memorial givingAugust 1 , 2015 to February 23, 2016

Adults and Children of Wimberley, TexasMs. Sylvia Mireles

All ChildrenMr. Marcos Obergon

Heather AlvaradoMrs. Melissa Esparza

Arnulfo AmayaMr. John DeLeon

Bailey AtkinsonLyssy & Eckel Feeds

Donald Earl BodineMr. and Mrs. Dave AdamsMs. Michele McIntire

Jerry BrittonMs. Kathryn Kowaleski

Betty and Garold BrooksMr. and Mrs. Frank Baumann, Jr.

Doug BrundigeMrs. Jo Green

Ruben I. CanalesMr. John G. Gogas

Emma CantrellMr. and Mrs. Lee A. DeLaune

Kathleen Marie CardwellMs. Kathryn Kowaleski

Elvira CisnerosMr. John DeLeon

Duane CookMs. Bette Noble

Bill CovaltBill’s Sparkling City Charter, Inc.

Lucy B. D’orsognaMs. Joyce S. AronsonDove, Thompson & Co., P.C.Ms. Ruth A. Smith

Bert M. DuBoiseFrost Bank

Mike DurbenMr. and Mrs. Aubrey V. Chapman

Joe DziukLyssy & Eckel Feeds

Adam EdelmanMr. and Mrs. Charles Edelman

Eric EdelmanMr. and Mrs. Charles Edelman

Ricky EverettMs. Edith L. Myers

Family and FriendsMs. Steffanie Flournoy

Family MembersMr. and Mrs. Sam Morris

Ruben FrankenhauserMr. and Mrs. Bruce Dugger

Hoyte GentryMr. and Mrs. Gerald W. EckelLyssy & Eckel Feeds

Pet “Patsy Girl”Mr. and Mrs. Stephen Way

James “Mike” Michael GordonMrs. Susan M. Gordon

Margaret M. GreeneMs. Sara Paine

Adelina Carmen Chapa GuerraGuerra Bros. Successors, LTD.

Rafael A. GuerraGuerra Bros. Successors, LTD.

Kenneth HarlanMr. and Mrs. Bruce Dugger

Kenneth HarmonMr. and Mrs. Bruce Dugger

William HarneyMr. and Mrs. Bruce Dugger

Ellie HarringtonMs. Kendra D. Harrington

Earlene HavelkaMs. Damla Eytemiz

Allen HedtkeMr. and Mrs. Mike Burris

Hazel N. HeldenfelsMr. and Mrs. Joseph P. Mueller

Helen E. Shapley EstateHelen E. Shapley Estate

Bruce M. Henderson, M.D.Mrs. Martha AveryMr. John BarhamDr. Ernest D. Buck and Mrs. Fran WillmsDr. Edgar L. Cortes and Dr. Imelda CortesMr. Carl J. FischerDr. and Mrs. George W. FloodMr. and Mrs. Craig HendersonDr. and Mrs. Joseph H. Jackson, Jr.Dr. Lucia C. Medina and Mr. Alfred MedinaThomas E. Morris, MDMr. and Mrs. Scot H. OshmanGirish A. Patel, MDMary D. Peterson, MDMr. David PettyMs. Carol Reid

Mrs. Georgia D. SchwartzMs. Kathryn SnapkaMr. and Mrs. Lawrence W. Vann, Jr.

Janie G. HerreraMr. and Mrs. Aubrey V. Chapman

Miss Brooke HesterMr. and Mrs. Jim R. CovingtonMr. Thomas MorganMs. Amy RadfordMs. Catherine W. Sievers

Joshua Ryan HollandMs. Ruthann CazalasMs. Linda S. Grubaugh

Avery KelleyMr. and Mrs. Charles H. DeCou

Jimmy KoehlorMr. and Mrs. Frank Baumann, Jr.

Maggie KroekerMr. and Mrs. Gerald W. Eckel

Amy E. LaudadioMr. and Mrs. Peter McNally

Kathryn LewisLyondell Basell

Michelle LopezMs. Maricella Lopez

Sally Groce LoveMr. and Mrs. Mike Burris

Sarah MarshMs. Tabitha Birdwell

Lester L. Mayberry, Jr.Ms. Mary A. CheuvrontMr. and Mrs. Vern CrockerEl Tapatio RestaurantMr. and Mrs. Lyndon ElliottMr. and Mrs. Joe JanysekMassey Farms, Inc.Mrs. Debra D. MayberryMr. and Mrs. John L. SimsMr. and Mrs. Arthur P. Smyth

Jonathan Andrew McCombMiss Claire VelaMiss Grace Vela

The McComb FamilyMr. and Mrs. Todd AllgoodDr. and Mrs. Kirby G. Barker, Jr.Mr. and Mrs. Gordon BennettMr. and Mrs. Richard A. BergfeldMr. Marti J. BowerMr. Daniel CaseyChevron Matching Employee FundsMr. and Mrs. Charles H. DeCouMr. and Mrs. Dale K. EibenMrs. Amanda Fields

Mr. and Mrs. Phil D. GaarderMr. and Mrs. Alex KirklandThe Larry & Pat McNeil FoundationMr. and Mrs. Edward A. MartinMr. Jonathan McCombMr. and Mrs. John T. NewtonMs. Deborah L. PopeReady Flo SystemsMr. and Mrs. Tommy L. SteelMs. Lisa StrickhausenMr. and Mrs. Durward Thompson, Jr.Mr. and Mrs. Raymond A. WelchMr. and Mrs. Kenneth Yancey, Jr.

Leighton Elizabeth McCombMiss Claire VelaMiss Grace Vela

Lester MillerMr. and Mrs. Ike Brackin

Ryan MircovichRelevant Solutions

Theresa Moore-CruzMs. Jennifer Alonso

Michael MorganMrs. Debbie Trexler

Audre S. MorrisonMr. and Mrs. Mike Burris

Agnes MoyLyssy & Eckel Feeds

Wendell MunsonLyssy & Eckel Feeds

Elias OlivarezMr. Edmundo Olivarez

Joseph N. Oshman, M.D.Mrs. Helen R. Reed

Sam PedrazaMr. and Mrs. Edward Pedraza

Vernon A. PruskiMr. and Mrs. Leroy Jendrusch

Julia Raabe Lyssy & Eckel Feeds

Gilbert Rodriguez, Jr. Mr. Gilbert Rodriguez

Juan DeLeon Rodriguez Mr. John DeLeon

Raymond Ruckert Mr. and Mrs. Carlos X. Guerra

Victor M. Sanchez Ms. Jane E. Longoria

Victor M. Sanchez, Jr. Ms. Jane E. Longoria

Adolfa Sandoval Mr. John DeLeon

Olga SandovalMr. John DeLeon

Rudy SandovalMr. John DeLeon

Diana Reyna SchickerMr. Michael G. Schicker

Nina ShippMs. Lauren W. Daughtry

Cole Harper SingletonMs. Sheila Sulser

Anna M. SmithEl Jardin Partnership

David SmithMr. and Mrs. Frank Baumann, Jr.

Patsy SpeightsMurray Bass Jr., Consulting Engineer

Stacie StechMr. and Mrs. Aubrey V. Chapman

Nan TackittMr. and Mrs. Leroy JendruschLyssy & Eckel Feeds

Gail TaylorLyssy & Eckel Feeds

Steven TrbulaMs. Linda Gray

Keiana VardonMs. Jennifer Barkdull

Alondra VelaMr. Mauro Vela

Leslie VesperMs. Sissy Hopper

Gene WalkerLyssy & Eckel Feeds

Robert G. WhistlerMrs. Mary G. Whistler

Lola Jean WilsonMrs. Martha AveryBandina Christian Youth Camp, Inc.Frost BankMr. and Mrs. Richard A. HarrisMrs. Lenora KeasMs. Diane LewisSusser Family FoundationWood, Boykin & Wolter, P.C.

J. R. (John) WomackMr. and Mrs. Frank Baumann, Jr.


In loving memory of

C. Ivan Wilson1927 – 2016

For 35 years, C. Ivan Wilson dedicated himself to carrying out Clara Driscoll’s vision of caring for the children of South Texas.

His service began in 1982 when he was appointed as a trustee to the Robert Driscoll and Julia Driscoll and Robert Driscoll Jr. Foundation.

Mr. Wilson played a vital role in the Children’s Miracle Network Telethon, which was established in 1984. From its beginnings, Mr. Wilson faithfully attended the two-day celebration, often offering a helping hand

and showing his support for the hospital he so dearly loved.

He served as treasurer of the Driscoll Children’s Hospital Governing Board and was its chairman for 10 years. A champion of high-quality healthcare for the children of South Texas, his dedication to Driscoll Children’s Hospital was an inspiration to many.

Under his leadership, the hospital built a medical tower, added guest rooms to house patients’ families, established a transport team, initiated insurance coverage throughout South Texas and began many more significant initiatives.

After stepping down as chairman of Driscoll’s

governing board, Mr. Wilson remained on the board, continuing to serve the children who were so important to him.

Driscoll Children’s Hospital continues to flourish due in large part to C. Ivan Wilson’s selfless efforts. He never lost sight of Driscoll’s mission — to offer hope and healing to children in an environment of trust, compassion and care.

In loving memory of

C. Ivan Wilson1927 — 2016

Children’s Miracle Network TelethonSaturday-Sunday, June 4-5, 2016

Schlitterbahn Riverpark & Resort Corpus Christi

driscollchildrens.org/telethon

Save the date:

Development Foundation3533 South Alameda StreetCorpus Christi, Texas 78411-1785www.driscollchildrens.org

Non-Profit Org U.S. Postage

PAID Permit No. 712

Corpus Christi, TX

Three Rivers: Monday, June 13, 2016

Hallettsville: Tuesday, June 21, 2016

Beeville: Friday, June 24, 2016

Alice: Tuesday, June 28, 2016

Rio Grande City: Friday, July 22, 2016

Cuero: Friday, August 5, 2016

Edinburg: Saturday, August 13, 2016

driscollchildrens.org/roundup

South Texas Cattlemen’s Roundup

Documents

OLIVIA - Driscoll Children's Hospital · Olivia was born with femoral hypoplasia-unusual facies syndrome, which is . characterized by underdeveloped thigh bones (femurs) and unusual