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Organ Donation and Transplantation in Paediatrics
Deceased donors, transplants and active transplant list in the UK
Paediatrics only (<18 yrs)
Transplant waiting lists
Paediatric patients (<18 yrs) on active transplant list at 9 July 2015
KIDNEY
Paediatric patients (<18 yrs) on active transplant list at 9 July 2015
HEART
Paediatric patients (<18 yrs) on active transplant list at 9 July 2015
LUNG
Paediatric patients (<18 yrs) on active transplant list at 9 July 2015
LIVER
Paediatric patients (<18 yrs) on active transplant list at 9 July 2015
SMALL BOWEL
Possible and actual organ donors
Deceased paediatric donors (<18 yrs), by donor type
Deceased paediatric donors (<2 yrs), by donor type
5 years: 1 April 2010 – 31 March 2015
Nu
mb
er
Number of paediatrics (<2 yrs) at each stage of DBD donation process
Nu
mb
er
5 years: 1 April 2010 – 31 March 2015
Number of paediatrics (<2 yrs) at each stage of DBD donation process, by year
Number of paediatrics (<2 yrs) at each stage of DBD donation process, by age group
5 years: 1 April 2010 – 31 March 2015
Number of paediatrics (<2 yrs) at each stage of DCD donation process
5 years: 1 April 2010 – 31 March 2015
Number of paediatrics (<2 yrs) at each stage of DCD donation process, by year
Number of paediatrics (<2 yrs) at each stage of DCD donation process, by age group
5 years: 1 April 2010 – 31 March 2015
Reasons for lack of family approach and for family refusal
Reasons for families of eligible DBD donors not being approached
Age group
< 2 months 2-6 months 6-12 months 12-24 months Total
Coroner/Procurator Fiscal refused permission
0 7 7 5 19
Other 0 1 1 3 5Family considered too upset to approach
0 1 0 1 2
Not identified as a potential donor / organ donation not considered
0 1 0 0 1
Other medical reason 0 0 0 1 1
Patient's general medical condition
0 0 0 1 1
Total 0 10 8 11 29
Coroner refusals due to non-accidental deaths and police investigations, and social services involvement.
Text stated under ‘other’ text for 5 cases includes information regarding police investigations and legal objections
5 years: 1 April 2010 – 31 March 2015
Age group
<1 month 1-2 months 2-6 months 12-24 months 6-12 months Total
Not identified as a potential donor / organ donation not considered
15 19 16 16 18 84
Patient outside age criteria 28 26 21 1 1 77Other 18 13 14 13 11 69Patient's general medical condition 11 9 11 7 4 42
Coroner/Procurator Fiscal refused permission 1 4 5 3 3 16
Other medical reason 2 3 5 2 2 14Family considered too upset to approach 1 1 1 2 1 6
Family stated that they would not consent/authorise before they were formally approached
0 0 0 3 1 4
Resource failure 0 0 1 0 0 1Total 76 75 74 47 41 313
Reasons for families of eligible DCD donors not being approached
Coroner refusals due to need to examine all organs for PM, social services/police involvement, some CODs not explained
Text stated under ‘other’ text includes information regarding donors being too young for DCD donation (local criteria quoted as 6 months up), too small, police investigations, and no suitable recipients
5 years: 1 April 2010 – 31 March 2015
Age group < 2 months 2-6 months 6-12 months 12-24
monthsTotal
Strong refusal - probing not appropriate 0 2 2 2 6
Family felt the body needs to be buried whole (unrelated to religious or cultural reasons)
0 1 1 3 5
Family did not want surgery to the body 0 0 2 1 3Other 0 0 2 1 3Family felt it was against their religious/cultural beliefs 0 0 2 0 2
Family wanted to stay with the patient after death 0 0 0 2 2
Family felt the length of time for donation process was too long 0 0 1 0 1
Total 0 3 10 9 22
Reasons for family consent/authorisation not given for DBD donation
Text stated under ‘other’ text for 3 cases includes no reason given by Consultant following their approach, and emotional reasons from family members
5 years: 1 April 2010 – 31 March 2015
Reasons for family consent/authorisation not given for DCD donation
Age group<1 month 1-2
months2-6
months12-24
months6-12
monthsTotal
Family felt the length of time for donation process was too long
5 1 4 2 9 21
Strong refusal - probing not appropriate 2 2 5 3 8 20Other 3 1 3 1 6 14Family did not want surgery to the body 3 1 2 0 4 10Family wanted to stay with the patient after death
1 1 1 4 3 10
Family felt the patient had suffered enough 0 1 0 1 4 6
Family felt it was against their religious/cultural beliefs
1 0 0 1 1 3
Family felt the body needs to be buried whole (unrelated to religious or cultural reasons) 0 1 1 0 1 3
Family were divided over the decision 0 1 0 0 2 3Family concerned that organs may not be transplanted
0 0 1 0 0 1
Family did not believe in donation 0 0 0 0 1 1Total 15 9 17 12 39 92
Text stated under ‘other’ text for 14 cases includes emotional reasons from family, child’s size, and contesting of medical decision RE WLST leading to a court case
5 years: 1 April 2010 – 31 March 2015