Patient Support groupsPatient Support groupsA practical guideA practical guide

Mo PeskettMo PeskettPeter GibbPeter Gibb

and All of youand All of you

WHAT WEWHAT WE’’LL COVERLL COVER

• IntroIntro

• The five stepsThe five steps

• Dealing with tricky questionsDealing with tricky questions

• Anything else?Anything else?

The five step planThe five step plan

• Establish a core groupEstablish a core group

• Define a group structureDefine a group structure

• Agree a support methodAgree a support method

• Drop in practicalitiesDrop in practicalities

• Funding needs Funding needs

Establish a core groupEstablish a core group

• Patients and relatives out of ICU for 6-18 Patients and relatives out of ICU for 6-18 monthsmonths

• Agree your objectivesAgree your objectives

• Meet at least 3 - 4 times to establish group Meet at least 3 - 4 times to establish group bondsbonds

Define a group structureDefine a group structure

• Partnership between patients and health Partnership between patients and health professionalsprofessionals

• Agree individual responsibilitiesAgree individual responsibilities

• Should be independent from the hospitalShould be independent from the hospital

• CVO support and advice CVO support and advice

• Organisation structureOrganisation structure

Agree a support methodAgree a support method

• Drop inDrop in

• Alternative optionsAlternative options

• Professional supportProfessional support

Drop-in practicalitiesDrop-in practicalities

• VenueVenue

• FrequencyFrequency

• DurationDuration

• TimingTiming

• PublicityPublicity

• LayoutLayout

• SuppliesSupplies

• RolesRoles

• InsuranceInsurance

Funding needsFunding needs

• Minimal funding requirementsMinimal funding requirements

• Consider sponsored eventsConsider sponsored events

• Contact local CVO for advice and grant Contact local CVO for advice and grant informationinformation

Frequently asked questionsFrequently asked questions

• BereavementBereavement

• ConfidentialityConfidentiality

• Münchausen syndromeMünchausen syndrome

• Disruptive participantsDisruptive participants

• Medical adviceMedical advice

Being an ICUsteps groupBeing an ICUsteps group

• Member of ICUstepsMember of ICUsteps

• IndependentIndependent

• Startup grantsStartup grants

• Support networkSupport network

• Contributing to the larger pictureContributing to the larger picture

• What do YOU want from membership?What do YOU want from membership?

ANYTHING ELSE?ANYTHING ELSE?