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Personal Experience Outcomes

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Introductions

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Agenda

• Introductions

• Personal Experience Outcomes Overview

• Your role in supporting Personal Experience Outcomes

• Moving Beyond a Good Paid Life

• Person Centered Thinking

• Community and Relationships

• Person First Language

• Valued Social Roles

• Self Evaluation

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Learning Objectives

• The learner will recognize the three themes of Personal Experience Outcomes and how they relate to all people.

• The learner will be able to explain what Personal Experience Outcomes are to others.

• The learner will demonstrate the ability to apply Person Experience Outcomes to their own life and to the lives of the people they support.

• The learner will critique their own use of Personal Experience Outcomes and related concepts and identify ways to improve their ability to integrate into their work with people.

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Personal Experience Outcomes 

Choice 

I decide where and with whom I live. The decisions reflect the

person’s lifestyle and preferences.

The homes meets the person’s needs.

The person feels safe and comfortable.

The person feels good in their home.

I make decisions regarding my supports and services. The person receives

services/supports to help in daily life.

The person receives services/supports given with respect to preferences and needs.

The person makes decisions about services/supports.

I decide how I spend my day. The person makes choices

about daily activities such as sleeping, eating, bathing and recreation.

The person decides when and how to do daily activities.

The person has the ability to choose routine or flexibility.

The person’s preferences are respected and honored.

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Personal Experience Outcomes 

Personal Experience I have relationships with family and friends that I care about. The person has family and

friends for whom she/he feels love, friendship or intimacy.

The person has friends or family involved in his/her life.

The person is receiving support from friends/family as she/he desires.

I do things that are important to me. The person does things each

day that are important to him/her (work, volunteer, hobbies, study, social time).

The person does things that are enjoyable and gives the person a sense of purpose.

I am involved in my community. The person is engaged in the

community in ways that she/he likes.

The person has a sense of belonging and connection.

The person believes that she/he is viewed by others as making a contribution.

The person has opportunities for socialization.

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Personal Experience Outcomes

Personal Experience Continued My life is stable. The person can live within

her/his means. The person is not worried

about changes that could happen in the future.

The person feels adequately prepared for whatever changes happen in the future.

I am respected and treated fairly. The person is treated with

respect by the people who are in her/his life.

The person is treated fairly by the program that support her/him.

The person is treated fairly as a citizen.

The person believes she/he is worthy of respect and fair treatment.

I have privacy. The person has time and

space to be alone when she/he wants.

The person can talk privately with others when she/he wants.

The person controls how personal information is shared with others.

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Personal Experience Outcomes 

Health and Safety I have the best possible health. The person is comfortable

with her/his physical, mental, emotional health.

The person is getting the help that she/he wants for any health concerns.

The person has information she/he wants about her/his health concerns and options.

The person can make informed decisions about her/his health.

I feel safe. The person feels safe where

she/he lives, works and in the community.

The person is able to make her/his own decisions about what is safe for her/him.

Other people respect the person’s right to make her/his own decisions about safety and risk.

The person has help making decisions about safety, if she/he needs it.

I am free from abuse and neglect. The person is not being

abused or neglected, in person, property or finances.

The person does not feel threatened or mistreated.

The person has the help that is needed to deal with past abuse or neglect.

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Moving Beyond a Good Paid Life

• Emphasis on services, programs, health and safety

Service Life

• Closest people are paid or family

• Few real connections

A Good Paid Life

• Active circle of support

• Focus on connecting, building relationships, and natural supports

Community Life

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In your role, how can you use the concept of moving beyond a good

paid life to support Personal Experience Outcomes?

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“Writing a plan without understanding what people aspire to leads to better paper, not better lives.” -Michael Smull

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System Orientation Person OrientationPlan a lifetime of programs Craft a desirable lifestyleOptions are limited Options are maximizedFocus on slots/closures/beds Focus on outcomesFocus on labels and deficits Focus on strengths and

capacitiesOrganized to please funders, policies

Organized to support quality of life

Professional control Person-driven control and shared decision making

Protection from failure Risk is responsibly supportedLots of planning, little action Lots of action and assessment

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Important ToImportant For

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Person Centered Thinking and Planning

Person Center

ed Planni

ng

Work on understanding the community

role & contribution of

people with disabilities.

Re-design of human service

culture, mission, & structure

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In your role, how can you use the concept of person centered

thinking to support Personal Experience Outcomes?

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“Loneliness is the only real disability.” -Beth Mount

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Community and RelationshipsFriendship

having friends, relationships, including a “best friend”. Mostly these can be

described as “strong ties’’

AcquaintanceHaving a network of acquaintances

MembershipBeing a member of associations and

organizations

Keeping in touchWith trends and movements of interest;

subscribing to them; belonging to “social worlds”

Being part of a familyHaving an active connection with family

life

Having a partnerSomeone to whom a long-term commitment has been made

Themes which impact all relationships

TimeThe amount of time

people spend together and the

length of time they have spent

together in the past.

Intensity Some ties and

connections are invested with a lot of emotion. They mean a lot to us,

perhaps more than anything else. Others are less important, and some not very

important at all.

ReciprocityThe exchange of services between people. This may

range from simply following the rules of politeness, to

providing practical help, to sharing

major parts of our life and work.

IntimacyWe share

confidences with some people more than with others. Some of our ties and connections involve a lot of

trust.

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In your role, how can you use relationships and community

connections to support Personal Experience Outcomes?

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Person First LanguageSay this Instead of this

• People with disabilities. The handicapped or disabled.

• He has a cognitive disability/diagnosis. He is mentally retarded.

• She has autism (or a diagnosis of…). She’s autistic.

• He has Down Syndrome (or a diagnosis of…). He’s Down’s; a mongoloid.

• She has a learning disability (diagnosis). She’s learning disabled.

• He has a physical disability (diagnosis). He’s quadriplegic/crippled.

• She’s of short stature/she’s a little person. She’s a dwarf/midget.

• He has a mental health condition/diagnosis. He’s emotionally disturbed/mentally ill.

• She uses a wheelchair/mobility chair. She’s confined to/is wheelchair bound.

• She needs…or she uses… She has problems with…has special needs.

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In your role, how can you use the concept of person first language (how

we talk about people) to support Personal Experience Outcomes?

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Valued Social Roles

You Person You Support

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In your role, how can you use the concept of social valued roles (how we

think about people) to support Personal Experience Outcomes?

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Sam Berns and his philosophy for a happy life

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Self Evaluation Personal Commitment