Embed Size (px)
Citation preview
Toluwalase (Lase) Ajayi, MD [email protected] Assistant Professor of Pediatrics University of California San Diego; Medical Director of Palliative Medicine Scripps Mercy San Diego; KL2 Clinical Scholar Scripps Translational Science Institute She is investigating how mobile health can provide real time patient reported outcomes that can be rapidly integrated into individualized clinical plans to improve HRQOL; as well as how digital medicine can augment how we manage symptoms prevalent in palliative medicine in hopes of deceased hospital and ED utilization.
Prasanna Ananth, MD, MPH [email protected] Instructor, Department of Pediatric Hematology/Oncology, Dana-Farber/Boston Children's Cancer and Blood Disorders Center Her research explores various dimensions of end-of-life care for children with advanced cancer, including hospital resource use, supportive care, and quality.
Justin N. Baker, MD, FAAP, FAAHPM [email protected] Chief, Division of Quality of Life and Palliative Care Attending Physician, Quality of Life Service Director, Hematology/Oncology Fellowship Program Associate Member, Department of Oncology St Jude Children's Research Hospital Ethical considerations surrounding enrollment in Phase I clinical trials, AYA palliative oncology care, end-of-life decision making, integrating palliative care into the ongoing care of children with cancer as well as patient-reported outcomes and pain and symptom control in the context of pediatric oncology care.
Emily Morell Balkin, MD [email protected] Pediatric Critical Care Fellow, University of California, San Francisco Emily is interested in the role of palliative care in the pediatric cardiac intensive care unit and discordance between parent/physician understanding of prognosis and goals of care.
Kim Beernaert, PhD (health sciences) [email protected] Senior researcher in the End-of-Life Care Research Group, Universiteit Gent & Vrije Universiteit Brussel My research interests are about end-of-life decisions in the perinatal period and in children and advance care planning in children.
Myra Bluebond-Langner, MA, PhD [email protected] Professor and True Colours Chair in Palliative Care for Children and Young People, University College London- Institute of Child Health Board of Governors’ Professor of Anthropology Emeritas, Rutgers University, Camden, NJ Honorary Contract, Palliative Care Service, Great Ormond Street Hospital for Children, London Pain symptom management and decision making for children with life limiting, life threatening illnesses.
Jori Bogetz, MD [email protected] Assistant Clinical Professor of Pediatrics, UC San Francisco, Site Director Hospice and Palliative Medicine Fellowship, Integrated Pain and Palliative Care Program (IP3) Her research interests include children with complex medical conditions, palliative care and medical education.
Kira Bona, MD, MPH [email protected] Instructor, Harvard Medical School Dana-Farber/Boston Children's Cancer and Blood Disorders Center She is a pediatric oncologist investigating the impact of poverty on pediatric cancer outcomes. The long-term goal of my research is to design poverty-targeted interventions to be tested in the pediatric oncology clinical trial setting.
Katharine Brock, MD, MS [email protected] Assistant Professor of Pediatric Oncology, Aflac Cancer & Blood Disorders Center, Emory University Physician, Pediatric Advanced Care Team (PACT), Children’s Healthcare of Atlanta She is interested in training clinicians in primary palliative care and communication using simulation or other novel medical education techniques, and also in studying how we can improve patient outcomes through integrated palliative oncology.
Amy Caruso Brown, MD, MSc, MSCS [email protected] Assistant Professor of Pediatrics, Bioethics and Humanities and Co-Director, Foundations of Reasoning in Medicine (MS1/MS2 course), SUNY Upstate Medical University She is exploring how families use social media to support information needs and decision making and also interested in how cultural differences are negotiated in shared decision making.
Susan Cadell, MSW, PhD [email protected] or [email protected] Professor , School of Social Work Renison University College - University of Waterloo Her research concerns positive aspects of stressful experiences such as meaning-making and posttraumatic growth, particularly as it pertains to caregivers.
Joan “ Jody” Chrastek, DNP, RN [email protected]
Pediatric Advanced Complex Care Team( PACCT ) Coordinator , Fairview Home Care and Hospice, M Health
Home based pediatric Palliative care, Financing of home based PPC, Nursing issues
Christopher Collura, MD, FAAP [email protected] Assistant Professor of Pediatrics Neonatology/Pediatric Palliative Care Mayo Clinic Children’s Center His current research interests include considerations towards end-of-life decision-making for infants and children with life-threatening and life-limiting illness and advanced communication interventions for perinatal and pediatric providers.
Erin R. Currie, PhD, RN [email protected] Assistant Professor, University of Alabama at Birmingham School of Nursing She is interested in pediatric palliative care consultation and end-of-life care within the neonatal intensive care setting.
Danielle D. DeCourcey, MD, MPH [email protected] Associate Chief, Division of Medicine Critical Care, Boston Children’s Hospital My research interests are focused on improving care delivery for children with medical complexity as well as communication around advance care planning for children with life-limiting illness.
Elisabeth Dellon, MD, MPH [email protected] Associate Professor of Pediatrics, UNC School of Medicine Her research focus is palliative care in advanced cystic fibrosis.
Sadie Dobrozsi, MD, MS [email protected] Assistant Professor, Pediatric Oncology at Medical College of Wisconsin Research interests include health outcomes and symptom management in children with cancer.
Veronica Dussel, MD, MPH [email protected] Associate Research Scientist, Pediatric Palliative Care, Boston Chidren´s Hospital Chair, Center for Research and Implementation in Palliative Care Institute for Clinical Effectiveness and Health Policy, Buenos Aires, Argentina (www.iecs.org.ar) Her intervention research relates to 1) the use of e-PROs as a facilitator of quality palliative care in children with cancer and 2) to understanding the provision of palliative care in Latin America and developing interventions that help increase access to these services.
Jeffrey Edwards, MD, MA (ethics), MAS (clinical research) [email protected] Assistant Professor of Pediatrics at Columbia University Medical Center/Morgan Stanley Children’s Hospital He is a pediatric ICU physician who focuses on the needs of children with medical complexity during critical illness. He is currently studying the decisional needs of families facing whether to initiate or forgo chronic ventilation for their children with a life-limiting illness.
Elana E. Evan, PhD [email protected] Director, Pediatric Palliative Care Program Development Associate Professor of Pediatrics Pediatric Pain and Palliative Care Program, David Geffen School of Medicine at UCLA I am interested in parent-child communication, mental health interventions, and novel approaches in pediatric palliative care program development and implementation.
Douglas Fair, MD, MS [email protected] Assistant Professor, University of Utah, Pediatric Hematology/ Oncology His research interests include palliative care, survivorship, and proper utilization of healthcare resources.
Angela M. Feraco, MD [email protected] Instructor, Pediatric Hematology/Oncology, Dana-Farber Cancer Institute and Boston Children’s Hospital Her primary research focus is in provider-family communication during the initial months of childhood cancer treatment; my broader interest is in linking physician training to patient-level outcomes.
Sarah Friebert, MD [email protected] Director, Pediatric Palliative Care Division Haslinger Family Pediatric Palliative Care Center – A Palette of Care Akron Children’s Hospital Professor of Pediatrics, Northeast Ohio Medical University Research interests in PPC: decision making, models of care, care coordination, family engagement and activation, advance care planning, expressive therapy/integrative health, children with medical complexity.
Stefan J. Friedrichsdorf, MD, FAAP [email protected] Medical Director, Department of Pain Medicine, Palliative Care & Integrative Medicine, Children's Hospitals and Clinics of Minnesota Associate Professor of Pediatrics, University of Minesota Dr. Friedrichsdorf's reserach interest include pediatric pain treatment and prevention, development & dissemination of education in pediatric palliative care, and changing clinical behavior at the bedside through education and quality
Richard Goldstein, MD [email protected] Palliative Medicine Physician and Instructor in Pediatrics, Harvard Medical School Dana-Farber Cancer Institute/Children's Hospital of Boston He is interested in the impact of illnesses on children and families, and promoting a practice of medicine that tries to understand and integrate a family-centered approach. His research has centered on the role of the primary care pediatrician when children die, critical communications and the skills involved, and the challenges of preventing and addressing Sudden Infant Death Syndrome.
Ross M. Hays, MD [email protected] Professor, Depts. of Rehabilitation Medicine, Pediatrics and Bioethics & Humanities, University of Washington School of Medicine Medical Director, PACT - Pediatric Palliative Care Program Seattle Children's Hospital I am interested in the interface between bioethics and clinical pediatric palliative care, particularly in relation to immigrant and underserved minority populations.
Douglas L. Hill, PhD [email protected] Behavioral Researcher Pediatric Advanced Care Team The Children's Hospital of Philadelphia Decision-making in pediatric palliative care, hopeful thinking, regoaling among parents and clinicians, concordance in perceived problems and hopes among parents and clinicians, helping parents and clinicians cope with stress, team collaboration among clinicians, mental health of siblings of children with serious illness, and pain management among patients who are unable to communicate.
Lisa Humphrey, MD [email protected] Director, Pediatric Hospice and Palliative Medicine at Nationwide Children’s Hospital in Columbus, OH She is interested in QI research that promotes palliative care related themes within pediatric institutions including improved and accurate referrals to palliative care and improving young adult palliative care issues within pediatric health systems.
Emily Johnston, MD [email protected] Pediatric Hematology/Oncology Fellow and Health Services Masters Student at Stanford Children’s Hospital She is intersted in disparities in end-of-life care, particularly intensity of end-of-life care for oncology patients.
Barbara L. Jones, PhD, MSW Associate Dean of Health Affairs and Professor Co-Director, The Institute for Collaborative Health Research and Practice UT Austin School of Social Work She is interested in adolescent and young adult palliative care, pediatric palliative care interventions, mindfulness and family support.
Tammy I. Kang, MD, MSCE [email protected] Chief, Palliative Care Associate Vice Chair, Clinical Affairs, Texas Children’s Hospital Associate Professor of Pediatrics, Baylor College of Medicine Research interests include – pediatric palliative care program development, integration of palliative care into complex health systems, medical decision making, and pediatric palliative care education and training.
Erica Carmen Kaye, MD, MPH in progress [email protected] Combined Pediatric Hematology-Oncology and Hospice and Palliative Medicine Fellow, St. Jude Children's Research Hospital My research focuses on the ways in which pediatric oncology clinicians communicate difficult information to children with high-risk cancer and their families, particularly at the high-stress time points of disease relapse, progression, and end of life.
Alisha Kassam, MD, MPH [email protected] Pediatric Oncologist and Palliative Medicine Physician Southlake Regional Health Centre, Newmarket Ontario Associate staff, The Hospital for Sick Children Assistant Professor, University of Toronto Main research focus is palliative pediatric oncology.
Rebecca A. Kirch, JD [email protected] PedPC Consultant, Center to Advance Palliative Care Focused on research, policy and practice initiatives to advance the field and improve care quality for all seriously ill infants and children and their families.
Debra Lotstein, MD, MPH [email protected] Associate Professor, USC Keck School of Medicine Director, Comfort and Palliative Care Department of Anesthesia and Critical Care Medicine Children’s Hospital Los Angeles Her research interests include QI in pediatric palliative care, improving access to pediatric palliative care, and collaboration with community based hospice providers.
Mary Ellen Macdonald, PhD [email protected] Associate Professor, Division of Oral Health and Society, Faculty of Dentistry, McGill University Her research interests are in the areas of medical anthropology; palliative care; oral health; qualitative methodologies; health professions education and indigenous health.
Kevin Madden, MD [email protected] Assistant Professor, Department of Palliative, Rehabilitation and Integrative Medicine University of Texas M.D. Anderson Cancer Center I am primarily interested in symptom management in children with cancer. I am specifically focused on methadone and it’s use as a first-line agent analgesic for cancer pain, its side effects and clinical attitudes, behaviors and practices towards the use of methadone. I am also interested in the screening and treatment of delirium in children with cancer.
Vanessa N Madrigal, MD [email protected] Assistant Professor, George Washington University; Attending Physician in Pediatric Critical Care at Children's National Health System in Washington DC Parental Decision Making in Pediatric Critical Illness and the Chronically Critically Ill
Christina Mangurian, MD, MAS [email protected] Vice Chair for Diversity, UCSF Psychiatry; Associate Professor Health care delivery system solutions to improve well-being of caregivers of seriously ill children under 5.
Melissa Mark, MD [email protected] Combined Pediatric Hematology/Oncology and Palliative Care Fellow, Cincinnati Children’s Hospital Current research includes home visit curriculum for oncology fellows, physician bereavement, and narrative medicine.
Kelly Michelson, MD, MPH [email protected] Associate Professor of Pediatrics and Julia and David Uihlein Professor in Medical Humanities and Bioethics, Northwestern University Feinberg School of Medicine Director, Center for Bioethics and Medical Humanities, Northwestern University Feinberg School of Medicine Attending Physician, Ann & Robert H. Lurie Children’s Hospital of Chicago
Her research focuses on communication and decision making among patients, family caregivers, and professional caregivers in the pediatric intensive care unit as well as in the palliative care setting.
Elissa G Miller, MD [email protected] Chief, Division of Palliative Medicine, Nemours/Alfred I duPont Hospital for Children She is interested in collaborating on all manner of PPC research projects and topics. I find just about everything interesting and have no specific research interests at this time.
Dominic Moore, MD [email protected] Associate Medical Director, Rainbow Kids Palliative Care, Primary Children's Hospital Assistant Professor, Pediatrics, University of Utah School of Medicine He is interested in useful metrics for quality pediatric palliative care, barriers to clear communication, pharmacotherapy (especially effective tapers of opioids and benzos post ICU), and the impact of spirituality on decision making.
Savithri Nageswaran, MD, MPH [email protected] Associate Professor, Department of Pediatrics, Wake Forest School of Medicine Director, Pediatric Enhanced Care Program, Brenner Children’s Hospital She has research interests in improving healthcare delivery for children with medical complexity.
Jennifer Needle, MD,MPH [email protected] Assistant Professor of Pediatrics and Bioethics University of Minnesota Her research interests include end of life care in the pediatric intensive care unit and adolescent medical decision-making and advance care planning.
Kate Nelson, MD [email protected] Palliative care physician, Hospital for Sick Children, Toronto, Ontario, Canada" She is interested in family decision-making for children with severe neurologic impairment.
Keith P Pasichow, MD [email protected] Clinical Fellow, Pediatric Palliative Medicine Sidney Kimmel Medical College - Thomas Jefferson University Nemours/AI DuPont Hospital for Children I am interested in opioid medications, especially methadone, including effective pediatric dosing, toxicity, adverse events, and social implications/modifiers of the current opioid abuse epidemic. I am also interested in opioid and non-opioid chronic pain therapies, with a particular interest patients with sickle cell disease.
Katherine Ratzan Peeler, MD [email protected] Staff Attending, Medicine Critical Care, Boston Children’s Hospital Instructor of Pediatrics, Harvard Medical School Her primary research interest is looking at the experience of children and families around end-of-life for those children who die from sudden unexpected causes such as trauma, drowning, ingestion, or fulminant infection in an otherwise healthy child.
Ken Pituch, MD [email protected] Medical Director, Pediatric Palliative Care Program Medical Director, Hospice of Michigan He is interested in outcomes associated with training professionals in end-of-life care and in values-guided decision support.
Andrea Postier, MPH, PhD-c [email protected] Scientific Investigator Pain Medicine, Palliative Care & Integrative Medicine Children’s Hospitals & Clinics of Minnesota Her main areas of focus include health utilization and cost in palliative and end-of-life care, as well as the role of family caregivers in caring for children with life-limiting or life-threatening conditions.
Elliot Rabinowitz, MD [email protected] Fellow, Pediatric Pulmonary Medicine at Boston Children's Hospital His research interests explore the overlap between pediatric pulmonary disease and palliative care, including communication education and strategies to improve decision-making between clinicians and patients with cystic fibrosis and children with complex medical conditions.
Lindsay Ragsdale, MD, FAAP [email protected] Director Pediatric Advanced Care Team Kentucky Children’s Hospital Lexington, KY Current research includes “Assessment of NICU Inter-Provider Communication and Patient Safety” for children with severe neurologic impairment.
Stacy S. Remke, MSW, LICSW, ACHP-SW [email protected] Teaching Specialist, School of Social Work, University of Minnesota My research interests cover a range of psychosocial issues related to pediatric palliative care including child and family coping with life threatening conditions, grief loss and bereavement, education of palliative care practitioners from multiple disciplines, and team collaboration and functioning.
Margaret (Maggie) Root, MSN, RN, CPNP-AC, CHPPN [email protected] Pediatric Palliative Care Nurse Practitioner UCSF Benioff Children's Hospital, San Francisco My research interests in pediatric palliative care focus on the impact of palliative care education on bedside nurses.
Abby R. Rosenberg, MD, MS [email protected] Assistant Professor, Pediatrics, University of Washington; PI, Palliative Care and Resilience Program, Seattle Children’s Research Institute; Medical Director, Adolescent and Young Adult Oncology, Seattle Children’s Hospital Cancer and Blood Disorders Center; Research Faculty, Treuman Katz Center for Pediatric Bioethics. My research focuses on interventions to promote resilience in the context of pediatric illness. Other projects involve communication and ethical issues of end-of-life care for adolescents and young adults.
Linda Siegel, MD, FAAP [email protected] Director, Pediatric Palliative Care, Assistant Professor of Pediatrics Cohen Children’s Medical Center Research interests include communication and decision making in palliative care.
Bryan Sisk, MD [email protected] Pediatric Chief Resident, St. Louis Children's Hospital I am interested in the practical and ethical implications of communication in the pediatric decision-making process.
Jennifer Snaman, MD, MS [email protected] Physician Scientist Training Fellow/Chief Fellow in Pediatric Hematology-Oncology at St. Jude Children’s Research Hospital, Memphis, TN. She is interested in parental grief and bereavement, communication training for trainees, and decision making in adolescent and young adult oncology patients.
Allison Soeller, MA, PhD (Organizational Communication) [email protected] Research Specialist, Division of Palliative Care at Children’s Hospital Los Angeles She’s interested in communication (defined broadly to include verbal, nonverbal, and symbolic communication) and how it structures social environments in health care organizations in ways that impact collaborative care generally and interdisciplinary palliative care specifically.
Holly Spraker-Perlman, MD, MS [email protected] Associate Professor (in July!), Pediatric Oncology & Palliative Care, University of Utah, Primary Children's Hospital Primary research interests include physician:patient communuication, pediatric advanced care planning, and palliative care for adolescent and young adult cancer patients.
Rachel Thienprayoon, MD, MSCS [email protected] Assistant Professor, Anesthesiology and Pediatrics Medical Director, StarShine Hospice Cincinnati Children’s Hospital Medical Center Her primary research interest is in designing pediatric home-based hospice and palliative care (HPC) systems that are structured to both tailor care to the individual patient while also delivering high standards of care for the field and desired outcomes.
Amy Trowbridge, MD [email protected] Assistant Professor, Pediatrics and Palliative Care, Seattle Children’s Hospital and University of Washington I have broad research interests within palliative care, but am currently focused on palliative care education for learners at all levels, provider burn-out and resilience, and decision-making and advanced care planning for children with severe neurologic impairment.
Christina Ullrich, MD, MPH, FAAHPM [email protected] Assistant Professor in Pediatrics, Harvard Medical School Senior Physician, Pediatric Hematology / Oncology, Dana-Farber Cancer Institute / Boston Children's Hospital A physician in Pediatric Hematology/Oncology and Hematopoietic Stem Cell Transplant (HSCT) as well as Pediatric Palliative Care, Dr. Ullrich is currently investigating the palliative care needs and patient-reported outcomes of children who undergo intensive and restorative care such as HSCT
Alisa Van Cleave, MD [email protected] Assistant Professor, Department of Pediatrics Division of Pediatric Critical Care Medicine Attending Physician, Pediatric Advanced Care Team Seattle Children’s Hospital University of Washington School of Medicine Her research interests are in physician-family communication during difficult conversations in the pediatric intensive care unit.
Jennifer Walter, MD, PhD, MS (PhD in Philosophy/Ethics, MS in Health Services Research) [email protected] Assistant Professor of Pediatrics and Medical Ethics Her research is focused on improving communication and collaboration among interprofessional teams caring for children with serious illness.
Meaghann Weaver, MD, MPH [email protected] Pain and Palliative Care Fellow at National Institutes of Health; accepted role as Medical Director of Hand in Hanad Palliative Care at Omaha Children’s Hospital. Research interests include Supportive Care in Oncology, Palliative Care in International Settings, Adolescent Decision-Making, Implementation and Intervention Metrics, Patient Reported Outcomes, Hospice and Home Health Transitions, Spirituality in Health, Integrative Therapies.
Kevin Weingarten, MD, FRCPC, MHSc [email protected] Staff Physician, Division of Haematology/Oncology & Paediatric Advanced Care Team - Division of Paediatrics, Sickkids, Toronto Paediatric Palliative Care Fellowship Director Research interests include early intervention of palliative care in the pediatric stem cell transplantation population.
Kimberley Widger, RN, PhD, CHPCN(C) [email protected] Assistant Professor, Lawrence S. Bloomberg Faculty of Nursing, University of Toronto and Nursing Research Associate, Hospital for Sick Children The overall goal of her research is to examine and enhance the quality of palliative care provided to children living with life-threatening illnesses and their families.
Joanne Wolfe, MD, MPH [email protected] Division Chief, Pediatric Palliative Care Service, Department of Psychosocial Oncology and Palliative Care, Dana-Farber Cancer Institute, Director, Pediatric Palliative Care, Department of Medicine, Boston Children's Hospital Associate Professor of Pediatrics, Harvard Medical School The primary focus of her research is using patient-reported outcomes to improve care of children with advanced illness and their families. She is currently developing the PediQUEST Response Intervention, an early palliative care intervention, aimed at improving quality of life and symptom management in children with advanced cancer.
