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Privacy, Security and Data Sharing Committee
Annual ReportOct. 2, 2007
Background and Mission Formed Dec. 9, 2002
Mission represent public health and health services
research interests in privacy and security issues
address balancing patient privacy, confidentiality, and security with the need for useful data for public health and research
Focus on priorities related to privacy, security and data standardization including implementation of the HIPAA privacy and security rules
Accomplishments Revise Privacy and Security
Committee Web Page for improved access to committee products and information resources
Participate in national privacy and security efforts (HISPC and HITSP)
Develop PRISM Privacy Tool to improve public sector privacy guidance
Revise Privacy and Security Committee Web Page
New Privacy, Security and Data Sharing Committee web page
Revised page format and content Consolidated privacy and security
materials, resources, and websites
Committee page at http://phdsc.org/about/committees/psds.htm
Participate in National Efforts on Privacy and Security
Participate in national privacy and security efforts
State and national privacy and security projects (HISPC)
Participation in defining public health scenarios. Several members participate/participated in state-specific efforts.
National privacy and security standards harmonization (HITSP)
Participation in the Security and Privacy Workgroup. Involves selection, definition, and standards recommendation of relevant security
and privacy constructs.
Develop PRISM Privacy Tool
An electronic, table-driven, web-based tool Provides a framework for understanding the basic
legal privacy requirements for the use and disclosure of health information in the public sector
Identifies and defines the baseline conditions and requirements that a government or other health entity must follow when using and disclosing specific types of health information
Organizes key privacy requirements related to uses and disclosures to provide direction to improve privacy policies, procedures, and compliance
Addresses a gap in federal HIPAA privacy guidance
Develop PRISM Privacy Tool
PRISM structure and contents Uses the HIPAA privacy rule as the framework,
then adds other federal privacy laws, such as 42 CFR pt. 2 and FERPA, where relevant
References common provisions in state law
Focuses on DISCLOSURES of health information by public programs
Funded by the National Center for Health Statistics (NCHS)
Access PRISM at http://www.phdsc.org/prism/introduction.htm. Will be available during the meeting to view
Future Activity Submitted a proposal for further
development, review, and refinement of the PRISM tool
Submitted a proposal to conduct a systematic, in-depth analysis of the state-level HISPC Public Health Domain findings to identify best practice and guidance recommendations
Continue to monitor and look for avenues of involvement and/or participation in the national privacy/security efforts
Development of ideas for security projects
Committee Chairs
Vicki Hohner, MBASenior ConsultantFox Systems, [email protected]
David P. Lawton RN, PhDPublic Health Informatics CoordinatorNebraska Department of Health and Human [email protected]
Committee Members Kimberly Baldwin-Stried, MBA, MJ, RHIA,
CPHQ KBS Consulting
Bruce BurnsTexas Health Care Information Council
Kathleen Cook National Association of County and City Health Officials (NACCHO)
Robert DavisNational Association of Health Data Organizations
Sterling Elliott, MPHAssociation of State and Territorial Health Officials (ASTHO)
Angela Fix, MPH Association of State and Territorial Health Officials (ASTHO)
Committee Members Marjorie Greenberg, M.A.
CDC/NCHS Hetty Khan, M.S., B.S.N., R.N.
CDC/NCHS Sally Klein, RN, MBA
Fox Systems, Inc. Denise Love
National Association of Health Data Organizations Dr. Gerald Masson
Johns Hopkins University Anna Orlova
Public Health Data Standards Consortium Barbara Rudolph, Ph.D.
The LeapFrog Group
Committee Members Virginia K. Saba, Ph.D
Georgetown University Walter Suarez, M.D., M.P.H.
Midwest Center for HIPAA Education Jonathan Teague
California Office of Statewide Health Planning and Development
Jessica Townsend, M.P.H.Health Resources & Services Administration
Socrates TuchOhio Department of Health
Richard Urbano, MDVanderbilt Kennedy Center
