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Coffee and TA Series: Core Function Basics
Product Development and Information Dissemination
July 23, 20202:00 – 3:00 pm EST
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Introductions
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PRESENTERS
Dana Yarbrough, MS, MAPartnership for People with DisabilitiesVirginia University Center for ExcellenceVirginia Commonwealth University
Maureen van Stone, Esq., MSMaryland Center for Developmental DisabilitiesKennedy Krieger Institute
Luis Valdez, MPHAssociation of University Centers on Disabilities (AUCD)
Webinar Overview
• Welcome and introductions • Federal guidance• Highlights and examples from the network:
– Partnership for People with Disabilities– Maryland Center for Developmental Disabilities
• Question and answer period• End
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Coffee and TA SeriesCore Function Basics
1) Interdisciplinary Pre-service Preparation2) Continuing Education3) Community Training4) Technical Assistance5) Model Services6) Demonstration Services7) Research8) Product Development and Information Dissemination9) Developing Core Function Plans – August 27th, 2020
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DD Act
H.R. 4920 — 106th Congress: Developmental Disabilities Assistance and Bill of Rights Act of 2000.www.GovTrack.us. 2000. August 30, 2018 https://www.govtrack.us/congress/bills/106/hr4920
Section 153(D) Dissemination of information related to activities undertaken to address the purpose of this title, especially dissemination of information that demonstrates that the network authorized under this subtitle is a national and international resource that includes specific substantive areas of expertise that may be accessed and applied in diverse settings and circumstances.
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Developmental Disabilities Program Final Rule
o. The UCEDD must integrate the mandated core functions into its activities and programs and must have a written plan for each core function area.
45 C.F.R § 1328.6 2015
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OIDD – UCEDD Program Funding Opportunity
According to each application for core funding, it must describe a five-year plan for meeting the purpose of the DD Act of 2000.
The five-year plan must describe how the applicant will carry out each of the following four UCEDD core functions: • Interdisciplinary Pre-service Preparation and Continuing Education• Community Services• Research• Information Dissemination
HHS-2018-ACL-AOD-DDUC-0251, pg. 14
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OIDD’s Definition of Information Dissemination
Distribution of knowledge-based information through UCEDD developed products and activities.
UCEDD Logic Model
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Product Development & Dissemination
Hello!
I am so glad you are here!
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AGENDA
• Our Localization Process for Product Development
• Some Successful Dissemination Avenues and Strategies
• Questions…
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24 people with disabilities, parents, siblings, grandparents who:• Provide 1:1 emotional,
informational and systems navigational support to 5,200+ families each year
• Disseminate over 20,000 products each year
47% White/Caucasian29% Black/African American10% Hispanic10% Other/Unknown4% Asian
Two .50 FTE video/social media specialists
We can probably all agree that…• The demographics of our communities are
constantly changing;• Not having adequately translated and available
materials increases healthcare disparities ;• The end users of traditionally translated products
are passive recipients of the information with no input into the cultural adaptation of these materials; and
• Not having translated materials hurts relationships between schools/agencies and parents.
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“Localization and…Analyzing the semantics in a language to make sure the right thing is said as well as making sure the product “works” functionally and linguistically in the intended culture (Lionbridge, 2012).
Relevantly takes into account the customs, traditions, information preferred formats, and the rules of the country for which the information is intended.
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Translation is a sub-task of localization
…Product adaptation”15
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Launching Products
Consider… Generational Preferences
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Branding….colors, shapesWebsite
Blog
Facebook / Twitter / Instagram
Podcast
YouTube
Linking sites and pages
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CFI YouTube Channel
2 – 3 minute ‘Burning Question’ videos
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Maryland Center for Development Disabilities (MCDD)
Maryland Center for Developmental
Disabilitiesat Kennedy Krieger Institute
MCDD Partners
AUCD Webinar
• State developmental disability network organizations (sister agencies)
– Disability Rights Maryland – MD’s Protection & Advocacy Agency– Maryland Developmental Disabilities Council—MD’s DD Council
• Collaborating State agencies– Maryland Developmental Disabilities Administration (DDA)– Maryland State Department of Education (MSDE)– Maryland Department of Health, Office for Genetics and People with Special Health
Care Needs (Maryland’s Title V Agency)
• Other partnerships– Law firms (Baker Donelson, Ballard Spahr, DLA Piper|Baltimore, & Offiit Kurman)– RE/MAX Advantage – Towson University – University of Baltimore School of Law– University of Maryland Francis King Carey School of Law
Our Mission
AUCD Webinar
“Provide leadership that advances inclusion for people with intellectual, developmental, and other disabilities.”
Four Core Functions
Pre-Service Training
& Continuing Education
Community Services & Technical Assistance
Research and
Evaluation
Information Dissemination
Product Development
AUCD Webinar
• Strong collaboration with Kennedy Krieger Institute’s marketing and public relations department
– Branding (e.g., green as the primary color and yellow as the secondary color and the MCDD logo on all materials).
• Products – Fact sheets– Brochures– Power Point slides– Posters – Signage
• Accessibility review – Community Advisory Council– People On the Go (Maryland’s largest statewide self-advocacy organization)– Embedding Cultural and Linguistic Competence project
Product Development
Product Development, cont’d ...
Product Development, cont’d …
Product Development, cont’d …
Cultural and Linguistic Competence
AUCD Webinar
• In September of 2018, the MCDD received three days of on-site technical assistance and support from Georgetown University’s National Center for Cultural Competence through the Embedding Cultural and Linguistic Competency (CLC) project.
• Goal to embed widely accepted CLC policies, structures, and practices across the four UCEDD core functions and across all aspect of the MCDD’s work, including:
– Training program (i.e., undergraduate and graduate trainee recruitment and experience)
– MCDD products (e.g., website, fact sheets, brochures, presentations, and posters)
– Senior management of Kennedy Krieger Institute– Community Advisory Council
Product Dissemination
AUCD Webinar
• Kennedy Krieger Institute media outlets:– Facebook– Twitter– Website– Intranet– Potential (external magazine)– Connection (internal newsletter for employees) – Kennedy Krieger Institute mass distribution emails – Patient mailings
• MCDD media outlets:– Quarterly newsletter– Community Advisory Council– Professional and community-based trainings
Information Dissemination: Resource Finder
AUCD Webinar
The Resource Finder informs consumers, families, and professionals about community services, trainings, research, and other information on developmental disabilities and related disorders across the lifespan.
Resource Finder
AUCD Webinar
• Referrals for service providers and specialists
• Parent and caregiver resources
• Housing and other resource materials
• Legislative and advocacy guides and materials
• Professional publications and presentations
AUCD Webinar
Resource Finder Services
Population ServedFamily Members/Caregivers
Professionals and Paras
General Public/CommunityMembers
Trainees
Adults with Disabilities
Other Classroom Students
Children/Adolescents withDisabilities/SHCN
Resources RequestedService Provider(s)
Kennedy Krieger Requests
Reimbursements/Benefits
Schools/Education
Recreation
Financial Resources
Housing
Diagnosis Information
Respite
Training
Transition
Transportation
Recommendations
AUCD Webinar
• Successes – Dissemination plan– Dedicated staff person – Sponsorship of an annual conference dedicated to promoting CLC within
Kennedy Krieger Institute, The Johns Hopkins University, and the community• Challenges
– Cost – Mistakes
• Recommendations– Develop a strong relationship with your marketing and/or public relations
department or contract with a outside firm– Embed CLC exercises into your staff meetings– Add a budget line item on all grants for cultural and linguistic competence– Run accessibility checks for all products– Monitor your website for outdated information and materials– Have a writer/editor review materials
MCDD
Maryland Center for Developmental Disabilities7000 Tudsbury Road
Windsor Mill, Maryland 21244443-923-9555
Resource Finderwww.kennedykrieger.org/community/initiatives/
resource-finder
Questions?
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AUCD Contacts
Dawn RudolphSr. Director, Technical Assistance & Network Management, [email protected]
Luis ValdezProgram [email protected]
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