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Project Title: Healios – Working to empower patients and families affected by mental illness Background The NHS Five Year Forward View stresses the need to reshape how care is delivered, increase access to the right care at the right time, drive down variations in the quality of care on offer, and improve outcomes. They acknowledge people want care in the least restrictive setting that is appropriate to meet their individual needs, at any age, and is close to home. One way in which they propose to meet this challenge is by expanding access to digital services ensuring more people have increased access and choice to high quality care when they need it. They state “We see a pivotal role for digital technology in driving major changes to mental health services over the next five years.” The National Institute for Health and Care Excellence (NICE) have published clinical guideline for psychosis and schizophrenia in adults (CG178; National Institute for Clinical Excellence. Clinical Guidance 178, 2014), supported by NICE quality standard (QS80; National Institute for Clinical Excellence. Quality Standards 80, 2015). The benefits of family intervention are outlined within the guidelines and are recommended for all families of people with psychosis or schizophrenia who live with or are in close contact with the service user, not only those with first episode psychosis. NICE also outline three key aspects for family intervention, these are: How to deliver psychological interventions, section 1.3.7 Monitoring and reviewing psychological intervention, section 1.3.8 Competencies for delivering psychological intervention, section 1.3.9 The first set of mental health targets which have been introduced are the new Access & Waiting time Standards which came into effect on 1 st April 2016 (Guidance to support the introduction of the access and waiting time standards for mental health services 2015/2016, 2015). These targets will initially focus on people experiencing their First Episode of Psychosis (FEP). The expectation is that, within a maximum of two weeks from referral, more than 50% of people with suspected FEP: have been assessed by the EIP service and, where appropriate: have been accepted onto the EIP service caseload have been allocated an EIP care coordinator who has actively engaged with the person to develop a plan of care and commence treatment in line with NICE recommendations. Importantly there will be an accreditation process for providers where they will have to demonstrate their ability to not only offer, but actually have the means and capacity to deliver all the aspects of the NICE concordant care package. This is likely to be a significant challenge for providers.

Project Title: Healios – Working to empower patients and ... · Dr. Angharad Rudkin, Child Clinical Psychologist with nearly 15 years’ experience within CAMHS. Alison Joyce, Clinical

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ProjectTitle:Healios–WorkingtoempowerpatientsandfamiliesaffectedbymentalillnessBackgroundTheNHSFiveYearForwardViewstressestheneedtoreshapehowcareisdelivered,increaseaccesstotherightcareattherighttime,drivedownvariationsinthequalityofcareonoffer,andimproveoutcomes.Theyacknowledgepeoplewantcareintheleastrestrictivesettingthatisappropriatetomeettheirindividualneeds,atanyage,andisclosetohome.Onewayinwhichtheyproposetomeetthischallengeisbyexpandingaccesstodigitalservicesensuringmorepeoplehaveincreasedaccessandchoicetohighqualitycarewhentheyneedit.Theystate“Weseeapivotalrolefordigitaltechnologyindrivingmajorchangestomentalhealthservicesoverthenextfiveyears.”TheNationalInstituteforHealthandCareExcellence(NICE)havepublishedclinicalguidelineforpsychosisandschizophreniainadults(CG178;NationalInstituteforClinicalExcellence.ClinicalGuidance178,2014),supportedbyNICEqualitystandard(QS80;NationalInstituteforClinicalExcellence.QualityStandards80,2015).Thebenefitsoffamilyinterventionareoutlinedwithintheguidelinesandarerecommendedforallfamiliesofpeoplewithpsychosisorschizophreniawholivewithorareinclosecontactwiththeserviceuser,notonlythosewithfirstepisodepsychosis.NICEalsooutlinethreekeyaspectsforfamilyintervention,theseare:

• Howtodeliverpsychologicalinterventions,section1.3.7• Monitoringandreviewingpsychologicalintervention,section1.3.8• Competenciesfordeliveringpsychologicalintervention,section1.3.9

ThefirstsetofmentalhealthtargetswhichhavebeenintroducedarethenewAccess&WaitingtimeStandardswhichcameintoeffecton1stApril2016(Guidancetosupporttheintroductionoftheaccessandwaitingtimestandardsformentalhealthservices2015/2016,2015).ThesetargetswillinitiallyfocusonpeopleexperiencingtheirFirstEpisodeofPsychosis(FEP).Theexpectationisthat,withinamaximumoftwoweeksfromreferral,morethan50%ofpeoplewithsuspectedFEP:

• havebeenassessedbytheEIPserviceand,whereappropriate:• havebeenacceptedontotheEIPservicecaseload• havebeenallocatedanEIPcarecoordinatorwhohasactivelyengagedwiththepersonto

developaplanofcareandcommencetreatmentinlinewithNICErecommendations.

Importantlytherewillbeanaccreditationprocessforproviderswheretheywillhavetodemonstratetheirabilitytonotonlyoffer,butactuallyhavethemeansandcapacitytodeliveralltheaspectsoftheNICEconcordantcarepackage.Thisislikelytobeasignificantchallengeforproviders.

ProjectDescription:HealioscredentialsFoundedin2013,Healiosphilosophyistoimprovethelivesofthoseaffectedbydisablingillnesses.Healiosdoesthisbyprovidingevidencebasedservicesfocusedondeliveringclinicallymeaningfuloutcomesforclientandfamilies/carers.TheyrecognisethegreatworkandcarebeingdeliveredwithintheNHS,whilstappreciatingthestrainthehealthserviceisunder.HeliosstrivestosupportandoptimisethisgreatworkbycollaboratingwithNHStreatmentteamstoenhancethe‘triangleofcare’betweenclients,families/carersandtheNHSclinician.CoretoHealiosistheirsafeguarding,riskmanagement,informationgovernanceandsupervisionresponsibilities.HealiosvaluesandrespectthetrustNHSpartnerorganisationsplaceinusandthereforethesafetyofallclientsandfamily/carer/significantothersisourfirstpriority.AttheheartofHealiosisaveryexperiencedclinicalleadershipteammadeupofDr.LarsHansen,ConsultantPsychiatristwithover20years’experienceandcurrentEIPleadwithinSouthampton.Dr.KatieAshcroft,ConsultantClinicalPsychologistwithnearly20years’experienceandprevioustrainingandsupervisionleadforSouthernHealth.Dr.AngharadRudkin,ChildClinicalPsychologistwithnearly15years’experiencewithinCAMHS.AlisonJoyce,ClinicalTeamManagerwithover18years’experienceworkingwithinNHSmentalhealthteams.Since2013,HealioshavebeencommissionedacrosstheUKbyNHSTrusts,CCG’s,localauthoritiesandcharitiestodeliverpsychologicalinterventionstopeopleandtheirfamilies/carersaffectedbymentalillness.Healioshavedeliveredthousandsofpsychologicalsessionandhavedemonstrated,byusingvalidatedscales,improvedclinicaloutcomes.Theseoutcomesincludeimprovedpatientfunctionality,reducedsubstanceuse,reductioninoverallburdenanddistress,increasedtreatmentadherence,increasedserviceuserexperienceforbothpatients&families/carersandmore.Healiosfamilyinterventionserviceisbuiltuponcomponentsofbehaviouralfamilytherapy,briefsystemicfamilytherapy,systemicfamilytherapyandunderpinnedbyHealios’sproprietary5tierqualitysupervisionmodelandManualRatingScale.Healiosusesthebestofmoderntechnologyprovidingvideoaccesstoatrainedclinicianwhowillworkwiththeclientandfamily/carertodeliverstructuredinterventiontoaddresstheirspecificneeds.Healiosusesavarietyofmultimediatoolstosupportunderstandingandlearningwhichhelpsfacilitateaveryengagingandinteractivesession.Eachcoursewillbestructuredaroundtheneedsofthefamily,asisthepaceofdelivery.

Inaddition,HealiosfollowtherequirementssetoutbytheNationalInstituteforHealthandCareExcellence(NICE)forwhatfamilyinterventionshouldencompass,thisissetoutwithinCG178,sections1.3.7,1.3.8and1.3.9.NICEhaveendorsedthetrainingprovidedbyHealiosaspartoftheirfamilyinterventionservicestosupportfamiliesimpactedbypsychosis.NICEendorsementstatementforresourceproducerE0094-Healios

FamilyInterventionservicemanual

“ThisservicemanualsupportstherecommendationsonfamilyinterventionintheNICEguidelineonpsychosisandschizophrenia.TheservicemanualdescribesthecontenttobeusedbythoseprovidingtrainingforfamilyinterventioninlinewithNICEguidance.ItalsosupportsthestatementonfamilyinterventionintheNICEqualitystandardforpsychosisandschizophrenia.”NationalInstituteforHealthandCareExcellenceMay2016Healiosistransforminghowcareisdelivered,byprovidinginnovativesolutionstothecomplexchallengesfacedwithintheNHS.ThisisverymuchalignedwiththeNHSFiveYearForwardViewand

Healioshasestablishedanewgold-standardinclinicalsupervisiontodeliveraconsistentlyhighqualityFIservice

WeeklyQualityControl&Supervision

Model

StriveforContinuousImprovementContinuousprofessionaldevelopmentsupportedwithtrainingfromConsultant

Psychiatristandotherpsychologyspecialismsbasedoncurrentevidencebase

RecordingofAll Session

OverseenbyConsultantPsychologistProvidesregularhighquality1:1andgroupsupervision,

traininganddevelopmentcoaching

Ensuresconsistenthighquality&safety

Healios’ManualRatingScale(HMRS)

Cliniciansselfmarkagainstconsistentscale

SupervisionbyClinicalTeamLeaderRecordedsessionsselectedeachweekandscored

againsttheHMRS

akeycomponentofthis,isbeingabletofindwaysinwhichtoprovideservicesinamoresustainableway.Futureservicesneedtomeetboththeincreasingdemandbythepopulationintermsofwhen,whereandhowtheywishtoaccesscare,butalsothefinancialpressuresofbeingabletorealiseefficiencysavings.Healiosareabletodeliveruponboththesecriticalchallenges.Firstly,duetothemodeloftheirservicedeliverytheyareabletodeliverfamilyinterventionserviceatpaceandscale.Healiosdelivergreateraccess,choice,flexibilityandconvenienceforpeople.TheservicecanallowpartnerTrustsandCCG’storealiseimportantsavings,thesemayincludedirectcostofdeliverysavings,freeingupvaluablestafftimetoreprioritiseinotherareasofneedandsignificantdownstreamsavingsinhospitalisationcosts.

ServiceuserexperienceiskeytoHealiosandtodatehavedemonstratedsomeexceptionalresultswith98%ofusersbeingverysatisfiedorsatisfiedand95%whowoulddefinitelyrecommendtheservice.Astheserviceisdeliveredonline,itmeansaslongasthepersonorfamilymemberhasasmartdevice,tabletorcomputerwithaccesstotheinternetor3Gconnection,theyareabletoaccesssupportfromHealios.RecentindependentdatapublishedbyOfcomsuggests80%ofadultshavebroadbandwithafurther66%havingasmartphone.Thisincreasesto90%forpersonsaged16-24years.Ofcomalsofoundthatpersonsagedbetween7-16yearsspendonaverage3hoursperdayonline,increasingto4.8hourswhenlookingatpersonsagedbetween15-16years.Theyreportedasharpincreaseinownershipoftabletcomputersbychildren,up50%comparedwiththepreviousyear.

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FamilyInterventionshouldbeprioritisedwithintheNICEconcordantcarepackageforpsychosis

0%

5%

10%

15%

20%

25%

30%

35%

StandardCare FIGroup

FIimpact onreducing relapseandhospitalisation

0

5

10

15

20

25

30

35

40

45

50

Standardcare FIgroup

FIreducesaveragelength ofstay(days)inhospital

%re

lapse&hospitalisation

Bedda

ysThrough38randomisedclinicaltrials,FIhasconsistentlyprovento:

• Reduceoverallcostofcare

• Reducerelapse

• Reducehospitalisation

• Reduceburden

• Improvetreatmentadherence

• Increasefunctionality

• Manyotherparameters

50%reduction

61%reduction

HealiosserviceisavailableMondaytoFriday8am-8pm.Clients/family/carersscheduletheirownappointmentswiththesameclinicianatatimewhichisconvenientforthem.It’simportanttonotethatmultipleuserscanaccessthesameonlinesessionatthesametime,meaningiffamilymembersarenotinthesamegeographicallocation,theyarestillabletoconnectandsupporteachotherinthesamesession.ThispartnershipbetweenapproachisalignedtonationalguidelinesandtheNHSdirectionoftravel.AtthesametimethispartnershipwillensureTrustsandCCG’sareabletocontinuetodeliverhighqualitycare,greateraccess,choice,convenience,flexibilityfor'whenandhow'peopleandtheirfamiliesaffectedbypsychosiswishtoaccesssupport.MoreaboutHealiosHealiosprovidepsychologicalandbehaviourchangetherapiesacrossawiderangeofmentalandphysicalhealthconditionsuchaspsychosis,schizophrenia,CAHMS,dementia,bipolar,PTSD,anxietyanddepression,eatingdisorder,diabetesandcardiovascular.HealiosalsohaveAppbasedtechnologieswhichproviderealtimefeedbackonthepatients’statustotreatmentsteamssupportingclinicaldecisionmakingandresourceprioritisation.

4

Healiosprovidesinnovativesolutionsacrossmultipleconditionswithnewtherapyofferingsindevelopment

Psychosis,Schizophrenia

Child&Adolescent

Bipolar

Anxiety

Depression (incl.perinatal*)

PTSD

Adjustmentdisorder

Dementia

Obesity*

COPD/Asthma*

EatingDisordersSubstancemisuse* HIV/AIDS*

Mentalillnesses/Neurologicalconditions Physicalconditions

Diabetes&CV

Underpinned byrelevantnationalclinicalguidelinesonbehaviouralchange

Builtoncomponentsofbehavioural familytherapy,briefsystemicfamilytherapy&

functionalfamilytherapy

*Indevelopment

LogoofOrganisation:

ChangingthelivesoffamiliesaffectedbymentalillnessAnyotherimages,documentsorvideosrelevanttotheproject:

1. outcomes&measures

Theaimoftheserviceistodeliveranumberofoutcomeswhichcanbecategorisedintofourmaingroups:Clinicalrelatedoutcomesforclients&family/carer:

• Improvedpatientandfamilyfunctioning• Reductioninsubstancemisuse• Improvedtreatmentadherence• Reductioninoverallfamilyburden• Reductioninoverallfamilydistress

Serviceuserexperienceoutcomes:• Clientandfamily/carerexperience,choice,serviceengagementandsatisfaction• Clientandfamilypreferencedata

NHSEfficiencyrelatedoutcomes:• Numberofworkingdaysfreedupforstaff

NHSFinancialoutcomes:• Reducedcostofdelivery• Reductioninhospitalisationcosts

SavingscanbemodelledonthebasisofdatasuppliedbyTrusts/Commissionerstosupportthedevelopmentofadetailedbusinesscase.Anexampleofdirectcostsavingsbasedon100familiesreceiving12sessionsishighlightedinthetablebelow.Thisdoesnotincludethesignificantsavingthatcanbeobtainedthroughreductionofrelapseratesandreductioninhospitallengthofstay

,througheffectiveearlydeliveryofFamiliyIntervention.Studieshavealsoshownsignificantimpactonmortalitywherefamilyinterventionshavebeenprovided.

10

Familyinvolvementfromthestartsignificantlyreducesmortalityrates

0

0.1

0.2

0.3

0.4

0.5

0.6

0.7

0.8

0.9

1

AllCauses NaturalCauses UnnaturalCauses

NoInvolvementoffamilyatfirstcontact LimitedInvolvementoffamilyatfirstcontactFullInvolvementoffamilyatfirstcontact

MortalityHa

zardRatio

MortalitybyCause

Reininghausetal2014:10yearfollow-updataofearlyinterventionservicesinpsychosis

50%

30%

90%

90% reductioninunnaturalcauses

whenfamilyinvolvedfromthe

start

Measures:

• Substanceuse-(SubstanceUseandfrequency)• Treatmentadherence-(TherapyandMedicationCompliance)• Distress–(HospitalAnxietyandDepressionScale–HADS)• Burden–(InvolvementEvaluationQuestionnaire–IEQ)• Serviceusersatisfaction–(ClientSatisfactionQuestionnaire–CSQ8)• Workandsocialfunctioning–(WorkandSocialAdjustmentScale)• Lifesatisfaction-(BriefMultidimensionalStudent’sLifeSatisfactionScale;BMSLSS)• Reducedcostofdelivery–Trustdata• Relapse,hospitalisation&lengthofstay–Trustdata• Numberofdaysfreedupforstaff–Trustdata

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CommissioningHealios helpsyousaveTimeandMoneytore-prioritise inotherareasofneed(basedon100patients/families receiving12sessionsofFI)

-

50,000

100,000

150,000

200,000

250,000

300,000

350,000

CurrentServices Healios

££144,000

68

75

Working daysrequiredbyNHStreatmentteamtodeliver240sessions

DaysofFIsessions

Daysofround-triptraveltime

293 totaldays

DaysofFIadmin

150

WorkingDaysCostofDelivery

CurrentServices

AHealiosClinicalResearcherwillleadtheassessmentapproachwiththeclientandfamily/careratbaseline,after8and12weeks.Amajorityoftheseassessmentswillbeconductedonlinetoallowflexibilityandconvenienceforclientsandfamilies.Forthosewhoareunabletocompletetheonlineassessmentsforwhateverreason,theHealiosClinicalResearcherwillconductrecordedtelephoneassessments.Allpatientdatawillbeanonymisedandanalysedusingaspecialiststatisticalsoftwarepackage.ScalesusedtomeasureoutcomescanbevariedtomatchTrustrequirements.DetailsofresultsfromHealiosprojectsareattachedasPowerpointpresentation.

1.1 Risksidentificationandmitigation

Risk MitigationSafeguardingandriskmanagementincidencemaybemissed

HealioshasaproventrackrecordofdeliveringfamilyinterventionforotherTrusts.Theyalsohaveestablishedprocessesinplaceoverseenbyaclinicalgovernanceteamofqualified

14

Healios improvesthelivesofpeoplewithmentalillnessandtheirfamilymembers

Healiosdatafromover3,000sessions inpsychosisbetweenJun2013–Mar2015basedonusershaving8sessionswithaHealiosclinician

Familycriticalcomments

Substanceuse

13%reduction

22%reduction

Patient-relatedoutcomes

Treatmentadherence

8%increase

OverallFamilyburden

Familyoveralldistress

28%reduction

23%reduction

Family-relatedoutcomes

healthcareprofessionals(ledbyaConsultantPsychiatrist,Dr.LarsHansen)whohaveallpreviouslyworkedwithintheNHS.ThisisfurtherenhancedbyHealiosincorporatingthecommissioningTrust’sspecificrequirementsintotheirsafeguardingandriskmanagementproceduresfortheproject.AllHealiosstaffincontactwithclientsandfamilieshavecompletedlevels1,2,3safeguardingtrainingforadultsandchildren

InformationGovernanceandsharingidentifiabledata

ThelevelofinformationsharingwillbekepttoanabsoluteminimumrequiredinorderforHealiostofullycarryouttheinterventions.HealiosisregisteredasIGlevel2withintheNHSIGtoolkitandISOcertified.HealioshasrobustsystemsandprocessesinplacethatprovideassuranceandasmentionedhavesuccessfullyworkedwithotherNHSTrustsinthesamecapacity.

Failuretogainbuyinfromstaffimpactingthenumberofreferralsgenerated

HealioswillprovidecomprehensivetrainingforrelevantTruststaffontheservice.Staffwillbeprovidedwithhowtoguidesandaresourcepacktosupportengagementandclarity.HealioswillbeincludedwithinthemonthlyMDTmeetingsandamonthlyperformancereportproducedbythemtofacilitateandidentifyareasforimprovement.

Difficultyinrecruitingtherapiststosupportphase2oftheproject

Duetothemodelofdelivery,HealiosareabletorecruitfromtheentireUKandassuchareabletotoprovideservicesatpaceandscale.

Failuretoreducerelapseratesandhospitalisations

Theseoutcomeswilltakeatleast12-24monthstodemonstrateatalocallevel.Anumberofsurrogatemarkerscanbeagreedastheprimaryoutcomesforanypilot.Ifachieved,theycanbeusedtotriggerawiderrolloutoftheservices.

2. Healiosreference

3. SummaryInsummary,apartnershipwithHealioswill:

1) Providegreateraccess&choiceforwhere,whenandhowserviceusersandtheirfamilies/carerswishtoaccesssupport

2) Providegreaterconvenienceasserviceusersandfamilymembersareabletoaccesscarefromthecomfortoftheirhome,orindeedonthemoveprovidingtheyhaveasmartdeviceand3Gconnection

3) Providegreaterflexibilitywithserviceusersschedulingsessionsaroundtheirexistingcommitments,anytimebetweenthehoursof8am-8pmMondaytoFriday

4) Supportfamiliestostayconnectedandfeelsupportedaspeoplecandialintothesamesessionfromdifferentgeographicallocations

5) Supportingclients&carerstostayinemploymentastheycanmoreeasilysupportthemselvesandtheirlovedones

6) Reducerelapseandhospitalisationratesbyanestimated50%andshortenthelengthofhospitalstaybyanestimated61%.

7) DeliverthehigheststandardsandqualityofcarethroughtheHealiosfive-tierqualitycontrolandsupervisionmodel

8) Providedocumentedevidencefortheclinicalinterventionthathavebeendeliveredandtheoutcomesachieved.DataTrustscoulduseasevidencetosupportperformancereviewswithlocalCCG’s,nationalbodiessuchasMonitorandtomeetthenewAccessandWaitingTimeStandardsforEIPservices

9) DeliverexceptionalserviceuserexperienceratingswhichtheTrustcoulduseaspartoftheiroverallqualityratings

10) ProvidecareinaccordancewithclinicalguidelinessuchasNICE11) SupportTrustaccreditationrequirementsforEIPservices12) Transformhowcareisdeliveredbyembeddinginnovativesolutionstooptimiseexisting

servicein-linewiththeNHSFiveYearForwardView13) HelplocalTrustdemonstratetheimplementationofanumberofimportantpolicies:NHS

FiveYearForwardView,NHSandAdultSocialCareOutcomesFramework,PersonalisedHealthandCare2020,PersonalisationofCare,TheBetterCareFundandTheCareAct

14) Realiseimportantfinancialsavingsincostofdelivery,15) Deliverimportantefficiencysavingsinstafftime,16) Reducehospitalisationcosts

DoyouwishtomakeyourprojectprivateandonlyviewabletoyouandtheInnovationAgencyNO?Contacts: Name:SteveRoberts Website:www.healios.org.uk Email:[email protected] Telephone:07971770584